Genetic Nondiscrimination in Health Insurance and Employment Act

S.889, S.283, H.R.2563, and H.R.2315, Patients' Bill of Rights S.318 and H.R.602, Genetic Nondiscrimination in Health Insurance and Employment Act H.R.3448, the Bioterrorism Preparedness Act of 2001 H.R.4984, Medicare Prescription Drug Benefit

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

Department of Defense Breast Cancer Research Program Dear Colleague letter to the Chairman of the Appropriations Defense Subcommittee in support of level funding of $175 million for the Department of Defense Breast Cancer Research Program. Urge enactment of H.R. 1624/S. 913, the Access to Cancer Therapies Act which would provide Medicare coverage of oral anti-cancer drugs. This legislation will build on current Medicare policy by extending coverage to all cancer drugs, whether oral or injectable, for Medicare beneficiaries under Part B. Breast Cancer and Environmental Research Act NBCC urges Congress to enact S. 830/H.R. 1723, the Breast Cancer and Environmental Research Act, which would make grants for multi-institutional, multi-disciplinary research centers to study the potential links between the environment and breast cancer. These centers would award grants based on a competitive, peer-reviewed process that involves consumer advocates. Genetic Nondiscrimination in Health Insurance and Employment Act: NBCC urges Congress to enact H.R. 602/S. 318, the Genetic Information Nondiscrimination in Health Insurance and Employment Act. This legislation, which has strong enforcement mechanisms that include a right to sue, would prohibit health insurers and employers from discriminating based on genetic information. Patients’ Bill of Rights: Patients deserve a comprehensive and enforceable patients’ bill of rights, with a right to sue, that includes coverage for routine health care costs associated with clinical trials; access to the right providers; involvement in treatment decisions that are based on good science; confidentiality of their health information, and the right to receive accurate information about their health plans. NBCC urges Congress to enact H.R. 2563/S. 1052, the Bipartisan Patient Protection Act which reflects these important principles. Medical Privacy Regulations - sent comments to the Department of Health and Human Services.

Client expense: $80,000 · Firm income: Not reported

S.318 and H.R.602, the Genetic Nondiscrimination in Health Insurance and Employment Act S.1379, Rare Diseases Act of 2001

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

S.1055 -- Privacy Act of 2001 (Feinstein) A bill to require the consent of an individual prior to the sale and marketing of such individual's personally identifiable information. S.1052 --Bipartisan Patient Protection Act (McCain, Kennedy) S.1014 --Social Security Number Privacy and Identity Theft Prevention Act of 2001 (Bunning, R-KY) A bill to amend the Social Security Act to enhance privacy protections for individuals, to prevent fraudulent misuse of the Social Security account number. S.889 --Bipartisan Patients' Bill of Rights Act of 2001 (Frist, Breaux, Jeffords) S.848 --Social Security Number Misuse Prevention Act of 2001 Feintstein, Gregg) A bill to amend title 18, U.S. Code, to limit the misuse of Social Security numbers, to establish criminal penalties for such misuse. S.627 --Long-Term Care and Retirement Security Act of 2001 Grassley, Baucus) S.451 --Social Security Number Protection Act of 2001 (Nelson, D-FL) A bill to establish civil and criminal penalties for the sale or purchase of a social security number. S.382 --Genetic Information Nondiscrimination in Health Insurance Act of 2001 (Snowe, DeWine) S.318 --Genetic Nondiscrimination in Health Insurance and Employment Act (Daschle) A bill to prohibit discrimination on the basis of genetic information with respect to health insurance. S. 450 --Financial Institution Privacy Protection Act of 2001 (Nelson, D-FL) A bill to amend the Gramm-Leach-Bliley Act to provide for enhanced protection of nonpublic personal information, including health information S. 30 --Financial Information Privacy Protection Act of 2001 (Sarbanes) A bill to strengthen control by consumers over the use and disclosure of their personal financial and health information by financial institutions. S. 324 --Social Security Number Privacy Act of 2001 (Shelby) A bill to amend the GLBA Act, to prohibit the sale and purchase of the SSN of an individual by financial institutions, to include SSN’s in the definition of nonpublic personal information. S. 630 --Controlling the Assault of Non-Solicited Pornography and Marketing Act of 2001 or CAN SPAM Act of 2001 3/27/02 (Burns,Wyden) S.283 --Bipartisan Patient Protection Act of 2001 (McCain, Kennedy) S.19 --Protecting Civil Rights for All Americans Act (Daschle) S.1164 --Location Privacy Protection Act (Edwards) A bill to provide for the enhanced protection of the privacy of location information of users of location-based services and applications, and for other purposes; to the Committee on Commerce, Science, and Transportation. HR.583 --Privacy Commission Act (Rep. Hutchinson, R-AK) A bill to establish the Commission for the Comprehensive Study of Privacy Protection. HR.347 --Consumer Online Privacy and Disclosure Act (Rep. Green, D-TX) A bill to require the FTC to prescribe regulations to protect the privacy of personal information collected from and about individuals on the Internet, to provide greater individual control over the collection and use of that information. HR 2421 -- Jurisdictional Certainty Over Digital Commerce Act (Stearns, R-FL) to exercise authority under article I, section 8, clause 3 of the Constitution of the United States to clearly establish jurisdictional boundaries over the commercial transaction of digital goods and services conducted through the Internet and to foster stability and certainty over the treatment of such transactions. HR.260 -- Wireless Privacy Protection Act of 2001 (Rep. Frelinghuysen, R-NJ) A bill to require customer consent to the provision of wireless call location information. HR.1408 - - Structured Settlement Protection Act (Rep. Shaw, R-FL) A bill to amend the Internal Revenue Code of 1986 to impose an excise tax on persons who acquire structured settlement payments in factoring transactions HR 1478 - - Personal Information Privacy Act of 2001 (Rep. Kleczka, D-WI) A bill to protect the privacy of the individuals with respect to the Social Security number and other personal information, and for other purposes. HR 2341 - - Class Action Fairness Act of 2001 (Goodlatte, Boucher) To amend the procedures that apply to consideration of interstate class actions to assure fairer outcomes for class members and defendants. HR 526 --Bipartisan Patient Protection Act 0f 2001 (Ganske) A bill to amend the Public Health Service Act, the employee Retire Income Security Act of 1974, and the Internal Revenue code of 1986 to protect consumers in managed care plans and other health coverage. HR. 2315 --Patients' Bill of right Act of 2001 (Fletcher) A bill to protect consumers in managed care plans in other health coverage. HR.112 --Electronic Privacy Protection Act 1/3/01 (Rep. Holt) A bill to prohibit the making, importation, exportation, distribution, sale, offer for sale, installation, or use of an information collection device without proper labeling or notice and consent. HR.89 --Online Privacy Protection Act of 2001 1/3/01 (Rep. Frelinghuysen, R-NJ) A bill to require the FTC to prescribe regulations to protect the privacy of personal information collected from and about individuals who are not covered by the Children's Online Privacy Protection Act of 1998 on the Internet, to provide greater individual control over the collection and use of that information. HR 1017 - - Anti-Spamming Act of 2001 (Rep. Goodlatte, R-VA) A bill to prohibit the unsolicited e-mail know as “spam”. HR 718 - - Unsolicited Commercial Electronic Mail Act of 2001 2/14/01 (Rep. Wilson, R-NM) A bill to protect individuals, families, and Internet service providers from unsolicited and unwanted electronic mail. HR 2036 - - Social Security Number Privacy and Identity Theft Prevention Act of 2001 (Rep. Shaw, R-FL) A bill to amend the Social Security Act to enhance privacy protections for individuals, to prevent fraudulent misuse of Social Security account number, and for other purposes. HR 91 - - Social Security On-Line Privacy Protection Act (Rep. Frelinghuysen, R-NJ) A bill to regulate the use of interactive computer services of Social Security account numbers and related personally identifiable information. HR. 602 --Genetic Non discrimination in Health Insurance and Employment Act. (Slaughter) A bill to prohibit discrimination on the basis of genetic information with respect to health insurance. HR. 1215 --Medical Information Protection and Research Enhancement Act of 2001 (Greenwood) A bill to ensure confidentiality with respect to medical records and health care- related information, and for other purposes. HR 1332 - - The Business Method Patent Improvement Act of 2001 (Berman, Boucher) S.1399 - Identity Theft Prevention Act of 2001 09/04/01 (Feinstein) A bill to prevent identity theft, and for other purposes H.R.3068 - Financial Privacy and National Security Enhancement Act 10/09/01 (Rep. Ney, R-OH) A bill to establish a Presidential Commission to strengthen and improve financial privacy and national security. S.1588 - Health Insurance Portability and Accountability Act of 1996 (Sen Craig, R-ID) A bill to provide a 1-year extension of the date for compliance by certain covered entities with the administrative simplification standards for electronic transactions and code sets issued in accordance with the Health Insurance Portability and Accountability Act of 1996. S.1684 - Health Insurance Portability and Accountability Act of 1996 (Sen. Dorgan, D-ND) A bill to provide a 1-year extension of the date for compliance by certain covered entities with the administrative simplification standards for electronic transactions and code sets issued in accordance with the Health Insurance Portability and Accountability Act of 1996 H.R.3323 – Social Security Act of 2001 11/16/01 (Hobson) A bill to ensure that covered entities comply with the standards for electronic health care transactions and code sets adopted under part C of title XI of the Social Security Act, and for other purposes. P.L.107-105 – Social Security Act of 2001 (Hobson) A bill to ensure that covered entities comply with the standards for electronic health care transactions and code sets adopted under part C of title XI of the Social Security Act, and for other purposes.

PBOR (Patients' Bill of Rights)/H.R. 2315 (Fletcher) entire bill Bipartisan Patient Protection Act"/H.R. 2563 (Ganske), S. 1052 (McCain) entire bill" Small Business Health Fairness Act/H.R. 1774 (Fletcher) AHPs, MEWAs "Mental Health Equitable Treatment Act"/S. 543 (Domenici) entire bill "Amendment to Part C of the Social Security Act"/H.R. 1975 (Shadegg) "Genetic Discrimination on Basis of Genetic Information"/H.R. 602 (Slaughter) entire bill "Genetic Non-Discrimination in Health Insurance and Employment Act"/S. 318 (Daschle) entire bill "Genetic Information Non-Discrimination in Health Insurance Act"/S. 382 (Snowe) entire bil ERISA Claims Rule FEHBP benefits 2002 "Administrative Simplification Compliance Act" HR3323 (Hobson) entire bill HIPAA Privacy Rule Tax credits for the purchase of health insurance (no bill) Tax credits for purchase of long-term care insurance (no bill)

Client expense: $3,540,000 · Firm income: Not reported

S.1052, S. 283, and H.R. 2563, Patient's Bill of Rights S. 318 and H.R. 602, Genetic Nondiscrimination in Health Insurance and Employment Act H.R. 3448, Bioterrorism Preparedness Act of 2001

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

S. 318 and H.R. 602, the Genetic Nondiscrimination in Health Insurance and Employment Act S. 1379, Rare Diseases Act of 2001

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

S. 1052, S. 283, and H.R. 2563, Patient's Bill of Rights S. 710 and H.R. 1520, Eliminate Colorectal Cancer Act S. 318 and H.R. 602, Genetic Nondiscrimination in Health Insurance and Employment Act

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE

Modification of S. 318/H.R. 602 and introduction of related legislation.

Client expense: Not reported · Firm income: $5,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

S. 318 and H.R. 602, The Genetic Nondiscrimination in Health Insurance and Employment Act

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

S. 1052, S. 283, and H.R. 2563, Patient's Bill of Rights S. 318 and H.R. 602, Genetic Nondiscrimination in Health Insurance and Employment Act

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE

S. 1052, S. 283, and H.R. 2563, Patient's Bill of Rights S. 710 and H.R. 1520, Eliminate Colorectal Cancer Act S. 318 and H.R. 602, Genetic Nondiscrimination in Health Insurance and Employment Act

Client expense: Not reported · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE

S.1055- Privacy Act of 2001 06/14/01 (Feinstein) A bill to require the consent of an individual prior to the sale and marketing of such individual's personally identifiable information. S.1052- Bipartisan Patient Protection Act 06/14/01 (McCain, Kennedy) Issue/ Topic: Patients' Bill of Rights S.1014- Social Security Number Privacy and Identity Theft Prevention Act of 2001 06/12/01 (Bunning, R-KY) A bill to amend the Social Security Act to enhance privacy protections for individuals, to prevent fraudulent misuse of the Social Security account number. Issue/ Topic: Social Security Numbers Privacy" S.889- Bipartisan Patients' Bill of Rights Act of 2001 05/15/01 (Frist, Breaux, Jeffords) Issue/ Topic: Bush's Patients' Bill of Rights S.848- Social Security Number Misuse Prevention Act of 2001 5/09/01 (Feintstein, Gregg) A bill to amend title 18, U.S. Code, to limit the misuse of Social Security numbers, to establish criminal penalties for such misuse. Issue/ Topic: Social Security Numbers Privacy S.627- Long-Term Care and Retirement Security Act of 2001 3/27/01 (Grassley, Baucus) Issue/ Topic: Long-term care S.451- Social Security Number Protection Act of 2001 3/1/2001 (Nelson, D-FL) A bill to establish civil and criminal penalties for the sale or purchase of a social security number. Issue/Topic: Social Security Numbers Privacy S.382- Genetic Information Nondiscrimination in Health Insurance Act of 2001 2/15/01 (Snowe, DeWine) Issue/Topic: Genetic Testing S.318- Genetic Nondiscrimination in Health Insurance and Employment Act 2/13/01 (Daschle) A bill to prohibit discrimination on the basis of genetic information with respect to health insurance. Issue/Topic: Genetic Testing S.450- Financial Institution Privacy Protection Act of 2001 3/1/2001 (Nelson, D-FL) A bill to amend the Gramm-Leach-Bliley Act to provide for enhanced protection of nonpublic personal information, including health information. Issue/Topic: Financial Privacy/ Medical Privacy S.30- Financial Information Privacy Protection Act of 2001 1/22/01 (Sarbanes) A bill to strengthen control by consumers over the use and disclosure of their personal financial and health information by financial institutions. Issue/Topic: Financial Privacy/ Medical Privacy S.324- Social Security Number Privacy Act of 2001 2/14/01 (Shelby) A bill to amend the GLB Act, to prohibit the sale and purchase of the SSN of an individual by financial institutions, to include SSN's in the definition of nonpublic personal information. Issue/Topic: Social Security Numbers Privacy S.630- Controlling the Assault of Non-Solicited Pornography and Marketing Act of 2001 or CAN SPAM Act of 2001 3/27/01 (Burns, Wyden) Issue/Topic: Anti-spam bill S.283- Bipartisan Patient Protection Act of 2001 2/07/01 (McCain, Kennedy) Issue/Topic: Genetic Testing S.19- Protecting Civil Rights for All Americans Act 1/22/01 (Daschle) Issue/Topic: Genetic Testing S.1164- Location Privacy Protection Act 7/11/01 (Edwards) A bill to provide for the enhanced protection of the privacy of location information of users of location-based services and applications, and for other purposes; to the Committee on Commerce, Science, and Transportation. Topic/Issue: Privacy (wireless locations) HR.583- Privacy Commission Act 2/13/01 (Rep. Hutchinson, R-AK) A bill to establish the Commission for the Comprehensive Study of Privacy Protection. Issue/Topic: Privacy HR.347- Consumer Online Privacy and Disclosure Act 1/31/01 (Rep. Green, D-TX) A bill to require the FTC to prescribe regulations to protect the privacy of personal information collected from and about individuals on the Internet, to provide greater individual control over the collection and use of that information. Issue/Topic: Privacy HR.2421- Jurisdictional Certainty Over Digital Commerce Act 6/28/01 (Stearns, R-FL) To exercise authority under article I, section 8, clause 3 of the Constitution of the United States to clearly establish jurisdictional boundaries over the commercial transactions of digital goods and services conducted through the Internet, and to foster stability and certainty over the treatment of such transactions. Issue/Topic: E-commerce HR.260- Wireless Privacy Protection Act of 2001 1/30/01 (Rep. Frelinghuysen, R-NJ) A bill to require customer consent to the provision of wireless call location information. Issue/ Topic: Privacy (wireless location) HR.1408- Structured Settlement Protection Act 4/4/01 (Rep. Shaw, R-FL) A bill to amend the Internal Revenue Code of 1986 to impose an excise tax on persons who acquire structured settlement payments in factoring transactions. Issue/Topic: Financial Privacy HR.1478- Personal Information Privacy Act of 2001 4/4/01 (Rep. Kleczka D-WI) A bill to protect the privacy of the individuals with respect to the Social Security number and other personal information, and for other purposes. Issue/Topic: Financial Privacy HR.2341- Class Action Fairness Act of 2001 6/27/01 (Goodlatte, Boucher) To amend the procedures that apply to consideration of interstate class actions to assure fairer outcomes for class members and defendants. Issue/Topic: Class Action Reform HR 526- Bipartisan Patient Protection Act 0f 2001 (Ganske) A bill to amend the Public Health Service Act, the employee Retire Income Security Act of 1974, and the Internal Revenue code of 1986 to protect consumers in manged care plans and other health coverage. (Patients' Rights/ Scope of the BIll) HR. 2315- Patients' Bill of right Act of 2001 (Fletcher) A bill to protect consumers in managed care plans in other health coverage. HR.112- Electronic Privacy Protection Act 1/3/01 (Rep. Holt) A bill to prohibit the making, importation, exportation, distribution, sale, offer for sale, installation, or use of an information collection device without proper labeling or notice and consent. Issue/Topic: Online Privacy HR.89- Online Privacy Protection Act of 2001 1/3/01 (Rep. Frelinghuysen, R-NJ) A bill to require the FTC to prescribe regulations to protect the privacy of personal information collected from and about individuals who are not covered by the Children's Online Privacy Protection Act of 1998 on the Internet, to provide greater individual control over the collection and use of that information. Issue/Topic: Online privacy HR.1017- Anti-Spamming Act of 2001 3/14/01 (Rep. Goodlatte, R-VA) A bill to prohibit the unsolicited e-mail known as ""spam"". Issue/Topic: Spam/E-commerce HR.718- Unsolicited Commercial Electronic Mail Act of 2001 2/14/01 (Rep. Wilson, R-NM) A bill to protect individuals, families, and Internet service providers from unsolicited and unwanted electronic mail. Issue/Topic: Spam/E-commerce HR.2036- Social Security Number Privacy and Identity Theft Prevention Act of 2001 5/28/01 (Rep. Shaw, R-FL) A bill to amend the Social Security Act to enhance privacy protections for individuals, to prevent fraudulent misuse of the Social Security account number, and for other purposes. Issue/Topic: Social Security Numbers Privacy HR.91- Social Security On-line Privacy Protection Act 1/3/01 (Rep. Frelinghuysen, R-NJ) A bill to regulate the use by interactive computer services of Social Security account numbers and related personally identifiable information. Issue/Topic: Social Security Numbers Privacy HR. 602- Genetic Non discrimination in Health Insurance and Employment Act. (Slaughter) A bill to prohibit discrimination on the basis of genetic information with respect to health insurance. HR. 1215- Medical Information Protection and Research Enhancement Act of 2001 (Greenwood) A bill to ensure confidentiality with respect to medical records and health care- related information, and for other purposes. HR. 1332- The Business Method patent Improvement Act of 2001 (Berman, Boucher) Issue/ Topic: Improvements in the process of assessing business method patents.

S 6 Patients’ Bill of Rights Act - All provisions pertaining to liability and medical necessity. S 10 Medicare Prescription Drug Coverage Act – All provisions pertaining to benefits, beneficiary eligibility and subsidies; how the benefit is provided; catastrophic coverage; duties and qualifications of the entities providing the benefit; effects on Medigap and Medicare+Choice plans, drug prices, and administrative oversight. S 125 Prescription Drug Fairness for Seniors Act – All provisions pertaining to Medigap and drug prices. S 283 Bipartisan Patient Protection Act – All provisions pertaining to liability and medical necessity. S 357 Medicare Preservation and Improvement Act – All provisions pertaining to competition and beneficiary services. S 358 Medicare Prescription Drug and Modernization Act – All provisions pertaining to benefits, beneficiary eligibility and subsidies; how the benefit is provided; catastrophic coverage; duties and qualifications of the entities providing the benefit, effects on Medigap and Medicare+Choice plans, drug prices, and administrative oversight. S382 Genetic Information Nondiscrimination in Health Insurance Act – All provisions pertaining to patients’ records, confidentiality, and genetic testing and information. S 543 Mental Health Equitable Treatment Act – All provisions pertaining to the cost of mental health coverage and other benefits. S 590 Relief, Equity, Access and Coverage form Health (REACH) Act – All provisions pertaining to a refundable health credit; employer sponsored and individual health care and state children’s health coverage. S 627 Long-Term Care and Retirement Security Act – All provisions pertaining to qualified long-term care insurance premiums, coverage under cafeteria plans and flexible spending arrangements; and a credit for individuals with long-term care needs. S 683 Fair Care for the Uninsured Act - All provisions related to a refundable health credit and the purchase of individual health insurance. S 872 Bipartisan Patient Protection Act – All provisions pertaining to liability and Medical necessity. S 889 Bipartisan Patients’ Bill of Rights Act – All provisions pertaining to liability and medical necessity. S 1052 Bipartisan Patient Protection Act – All provisions pertaining to liability and medical necessity. HR 526 Bipartisan Patient Protection Act – All provisions pertaining to liability and medical necessity. HR 602 Genetic Discrimination in Health Insurance and Employment Act – All provisions pertaining to patient records, confidentiality and genetic testing and information. HR 831 Long-term Care and Retirement Security Act – All provisions pertaining to qualified long-term care insurance premiums, coverage under cafeteria plans and flexible spending arrangements; and a credit for individuals with long-term care needs. HR 1181 Health Insurance Affordability and Equity Act – All provisions pertaining to a refundable health credit and individual health insurance. HR 1215 Medical Information Protection and Research Enhancement Act – All provisions pertaining to patient records, confidentiality and genetic testing and information. HR 1331 Fair Care for the Uninsured Act – All provisions related to a refundable health credit and the purchase of individual health insurance. HR 1400 Prescription Drug Fairness for Seniors Act – All provisions pertaining to Medigap and drug prices. HR 1524 Medical Savings Account Availability Act – All provisions pertaining to medical savings accounts. HR 1774 Small Business Health Fairness Act – All provisions pertaining to association health plans.

HR4576/S2593 DOD Appropriations for Breast Cancer Research Program PL106-354 Implementation of Medicaid Coverage for women screened and diagnosed w/ breast cancer HR602/S318;S382 Genetic-non-discrimination legislation S582;S1052/HR526;HR2563 Patients Bill of Rights legislation HR4577 Labor HHS Appropriations for Breast Cancer Research

Client expense: Not reported · Firm income: $40,000

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, White House Office

H.R.1975 and S.836 - Medical Privacy and H.H.S. Regs.; S.1052, S.889, H.R.526, H.R. 2563 and H.R. 2315 -Patients' Bill of Rights; Physician Antitrust Waiver; S.324, S.848 - Identity Theft/Privacy of SSN; Internet Privacy; H.R.2559 - FELTCP Tech Amendment; and S.318, S.382, H.R.602 - Genetic Discrimination in Health Insurance Employment Act. DOL Claims Regs.

Client expense: Not reported · Firm income: $860,000

Government targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), SENATE