Huntington’s Disease Parity Act of 2019

Advancing S. 1476 and HR 2770, the Huntingtons Disease Parity Act, which eliminates the two-year waiting period for Medicare eligibility for persons with HD who qualify for disability benefits. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support, including policies included in H.R. 6201, Families First Coronavirus Response Act, H.R. 6800, the Heroes Act, and the Cares Act (P.L. 116-136) that expand access to care through telehealth and expand paid leave for individuals and their family members.

Client expense: Not reported · Firm income: $20,000

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

Advancing S. 1476 and HR 2770, the Huntingtons Disease Parity Act, which eliminates the two-year waiting period for Medicare eligibility for persons with HD who qualify for disability benefits. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support, including policies included in H.R. 6201, Families First Coronavirus Response Act, H.R. 6800, the Heroes Act, and the Cares Act, Public Law 116-136.

Client expense: Not reported · Firm income: $30,000

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

Advancing S. 1476 and HR 2770, the Huntingtons Disease Parity Act, which eliminates the two-year waiting period for Medicare eligibility for persons with HD who qualify for disability benefits. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support, including policies included in H.R. 6201, Families First Coronavirus Response Act and S. 3548, Coronavirus Aid, Relief, and Economic Security Act or the CARES Act.

Client expense: Not reported · Firm income: $30,000

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE