PKD Cures Act

-Expanding Support for Living Donors Act (H.R. 7868) Legislation to expand how much living donors can be reimbursed and to increase the threshold for income-based qualification -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582 and S. 1552). Clarifies and strengthens protections for Americans who donate an organ. -Concurrent Care for Comfort Act (HR 8367) and related policy concepts regarding helping patients on dialysis nearing end of life also access hospice care -Home Dialysis Improvement Act (HR 8875) and related policy concepts helping more patients consider electing home dialysis -Kidney Disease Education Expansion Act of 2026 (H.R. 9509) and related policy concepts to increase earlier upstream intervention to slow the progression of kidney disease, including screening and diagnosis -$77M in appropriations for HRSA Organ Transplant work in FY27 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY27 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for continued focus on modernizing the U.S. transplant system, including implementing the 2023 Securing the U.S. OPTN Act -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged HHS to ensure kidney health data remains accessible and complete, including advancing data-sharing, data standards, and interoperability -Encouraged CMMI to develop a subsequent kidney care focused model, building on the successes and lessons of the CKCC model -Asked questions about the adequacy of kidney patient access to specialized kidney and transplant care in MA plans -Endorsed the following bills: -Keeping Individuals with Dialysis Needs Equipped through Year-round (KIDNEY) Remote Monitoring Act (HR 8319) Provider Reimbursement Stability Act (HR 8163) -The Diabetes Foot Health Access and Modernization Act of 2026 (HR 7905/S 4070) -H-1Bs for Physicians and Healthcare Workforce Act (HR 7961) Living Organ Volunteer Engagement (LOVE) Act (HR 7581) -New Era of Preventing ESRD Act (HR 1518) -PKD Cures Act (HR 9169)

Client expense: $60,000 · Firm income: Not reported

Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), SENATE