161 -- Expressing support for the designation of the last day of February each year as "Rare Disease Day". | Poliscope

Expressing support for the designation of the last day of February each year as "Rare Disease Day".

161

116th Congress

Health

In Committee

Legislative Progress

✓

Introduced

Committee

Floor Vote

Other Chamber

Enacted

Introduced

February 28, 2019

Latest Action

March 1, 2019

Primary Sponsor

André CarsonDemocratic(IN)

Momentum (last 30 days)

score

0 actions · 0 new cosponsors · 0 votes

Speed vs cohort

60pct

1d open

vs 1,273 other HRES bills in the 116th — cohort avg 13d

Summary

This resolution expresses support for (1)the designation of Rare Disease Day; and (2)a national and global commitment to developing new treatments, diagnostics, and cures for rare diseases and disorders.

Lobbying filings that explicitly cite this bill (1)

These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.

Filing registrants (1)

NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) (1)

NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)client→NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

2019 · first_quarter · Health Issues

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Health issues impacting patients with rare diseases. H.R.2279: Safe Step Act. Rare Disease Advancement, Research, and Education Act (Legislation not yet introduced). H.Res.161/S.Res.90: Expressing support for the designation of the last day of February each year as "Rare Disease Day". H.Res.242: Affirming the importance of the Orphan Drug Act, celebrating the over 750 new orphan therapies approved since its creation, and recognizing the need to continue supporting research and development for rare diseases. Pediatric subspecialty loan repayment reauthorization. Newborn Screening Saves Lives Act Reauthorization (Legislation not yet introduced). H.R.1379/S.560: Ensuring Lasting Smiles Act. CMS-9923-NC: Request for Information Regarding Grandfathered Group Health Plans and Grandfathered Group Health Insurance Coverage. H.R.1884: Protecting Pre-Existing Conditions and Making Health Care More Affordable Act of 2019. The Patient-Centered Outcomes Research Institute (PCORI) Reauthorization (Legislation not yet introduced). Medical Nutrition Equity Act (Legislation not yet introduced). H.R.1010: To provide that the rule entitled "Short-Term, Limited Duration Insurance" shall have no force or effect.