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Genetic Research Privacy Protection Act
Legislative Progress
Momentum (last 30 days)
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0 actions · 0 new cosponsors · 0 votes
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vs 3,548 other S bills in the 114th — cohort avg 43d
Genetic Research Privacy Protection Act This bill amends the Public Health Service Act to revise provisions regarding disclosure by researchers of the identifiable, sensitive information of research subjects. The Department of Health and Human Services (HHS) must prohibit researchers from disclosing such information from federally funded research to persons not connected to the research. Researchers may apply to have other research covered by this prohibition. Disclosures of such information are permitted if required by law, necessary for the medical treatment of the research subject, made with the consent of the subject, or made for the purposes of other research that is in compliance with regulations regarding protection of subjects. HHS may exempt identifiable information collected for biomedical research from disclosure under the Freedom of Information Act.
These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.
Filing registrants (3)
2020 · third_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA HR 1158, Consolidated Appropriations Act, 2020 HR 1865, Further Consolidated Appropriations Act, 2020 S 1790, National Defense Authorization Act for Fiscal Year 2020 FY2021 Appropriations SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants) HR 36, Combating Sexual Harassment in Science Act (full bill) HR 1155 (PUPPERS Act) HR 1622 (KITTEN Act) Securing American Science and Technology Act, HR 3038 Combating Sexual Harassment in Science Act, S. 1067 STEM Opportunities Act, HR 2528 RISE Act - HR 7308/HR 4286 Supporting Early Career Researchers Act - HR 8044
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced in Senate
Bills with similar content found using semantic analysis.
Sources: Congress.gov
Client expense: $50,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2020 · second_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA HR 1158, Consolidated Appropriations Act, 2020 HR 1865, Further Consolidated Appropriations Act, 2020 S 1790, National Defense Authorization Act for Fiscal Year 2020 FY2021 Appropriations SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants) HR 36, Combating Sexual Harassment in Science Act (full bill) HR 1155 (PUPPERS Act) HR 1622 (KITTEN Act) Securing American Science and Technology Act, HR 3038 Combating Sexual Harassment in Science Act, S. 1067 STEM Opportunities Act, HR 2528
Client expense: $70,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2020 · first_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA HR 1158, Consolidated Appropriations Act, 2020 HR 1865, Further Consolidated Appropriations Act, 2020 S 1790, National Defense Authorization Act for Fiscal Year 2020 SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants) HR 36, Combating Sexual Harassment in Science Act (full bill) HR 1155 (PUPPERS Act) HR 1622 (KITTEN Act) Securing American Science and Technology Act, HR 3038 Combating Sexual Harassment in Science Act, S. 1067 STEM Opportunities Act, HR 2528
Client expense: $90,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2019 · fourth_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA HR 1158, Consolidated Appropriations Act, 2020 HR 1865, Further Consolidated Appropriations Act, 2020 S 1790, National Defense Authorization Act for Fiscal Year 2020 SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants) HR 36, Combating Sexual Harassment in Science Act (full bill) HR 1155 (PUPPERS Act) HR 1622 (KITTEN Act) Securing American Science and Technology Act, HR 3038 Combating Sexual Harassment in Science Act, S. 1067 STEM Opportunities Act, HR 2528
Client expense: $70,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2018 · fourth_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants) HR 7031, Combating Sexual Harassment in Science Act of 2018 (full bill)
Client expense: $90,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2018 · third_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants)
Client expense: $100,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2018 · second_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants)
Client expense: $160,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2018 · first_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants)
Client expense: $120,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2017 · fourth_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act HR 1, Tax Cuts and Jobs Act (opposing the proposal to eliminate Section 117(d)(5) of the Internal Revenue Code which would tax tuition waivers granted to graduate students who serve as teaching or research assistants)
Client expense: $110,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2017 · third_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 34 (21st Century Cures Act) University Regulation Streamlining and Harmonization Act (HR 5583) S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act
Client expense: $90,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2017 · second_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 933/Public Law 113-006 (Consolidated and Further Continuing Appropriations Act, 2013) HR 34 (21st Century Cures Act) HR 2029 (FY 2016 omnibus appropriations bill) University Regulation Streamlining and Harmonization Act (HR 5583) S 2812, the "SBIR and STTR Reauthorization and Improvement Act of 2016 S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act H.R. 5325 - Continuing Appropriations and Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2017, and Zika Response and Preparedness Act
Client expense: $160,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2017 · first_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA SBIR/STTR reauthorization legislation HR 933/Public Law 113-006 (Consolidated and Further Continuing Appropriations Act, 2013) HR 34 (21st Century Cures Act) HR 2029 (FY 2016 omnibus appropriations bill) University Regulation Streamlining and Harmonization Act (HR 5583) S 2812, the "SBIR and STTR Reauthorization and Improvement Act of 2016 S 2744, the Genetic Research Privacy Protection Act S 3084, the American Innovation and Competitiveness Act H.R. 5325 - Continuing Appropriations and Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2017, and Zika Response and Preparedness Act
Client expense: $130,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2017 · first_quarter · Medical/Disease Research/Clinical Labs
Direct to consumer genetic testing Regulation and oversight of diagnostics S. 2744, Genetic Research Privacy Protection Act Public Law No. 44-255 21st Century Cures Act
Client expense: Not reported · Firm income: $20,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Office of Science & Technology Policy (OSTP), SENATE
2016 · fourth_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA. SBIR/STTR reauthorization legislation. HR 933/Public Law 113-006 (Consolidated and Further Continuing Appropriations Act, 2013). HR 34 (21st Century Cures Act). HR 2029 (FY 2016 omnibus appropriations bill). "University Regulation Streamlining and Harmonization Act" (HR 5583). S 2812, the SBIR and STTR Reauthorization and Improvement Act of 2016 S 2744 the Genetic Research Privacy Protection Act and S 3084, the American Innovation and Competitiveness Act H.R.5325 - Continuing Appropriations and Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2017, and Zika Response and Preparedness Act
Client expense: $100,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2016 · fourth_quarter · Medical/Disease Research/Clinical Labs
Direct to consumer genetic testing Regulation and oversight of diagnostics S.2744, Genetic Research Privacy Protection Act Public Law No. 44-255 21st Century Cures Act
Client expense: Not reported · Firm income: $20,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Office of Science & Technology Policy (OSTP), SENATE
2016 · third_quarter · Science/Technology
Appropriations and other issues related to: NIH, NSF, DOE, and VA. SBIR/STTR reauthorization legislation. HR 933/Public Law 113-006 (Consolidated and Further Continuing Appropriations Act, 2013). HR 6 (21st Century Cures Act). HR 2029 (FY 2016 omnibus appropriations bill). "University Regulation Streamlining and Harmonization Act" (HR 5583). S 2812, the SBIR and STTR Reauthorization and Improvement Act of 2016 S 2744 the Genetic Research Privacy Protection Act and S 3084, the American Innovation and Competitiveness Act
Client expense: $100,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Energy, Dept of, HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), Natl Science Foundation (NSF), SENATE, Veterans Affairs, Dept of (VA)
2016 · third_quarter · Medical/Disease Research/Clinical Labs
Direct to consumer genetic testing Regulation and oversight of diagnostics Precision Medicine Initiative S.2744, Genetic Research Privacy Protection Act
Client expense: Not reported · Firm income: $20,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Office of Science & Technology Policy (OSTP), SENATE
2016 · second_quarter · Health Issues
S.2511 Improving Health Information Technology Act H.R. 6 21st Century Cures Act H.R 5447/S. 3060 Small Business Health Care Relief Act of 2016 S. 2744 Genetic Research Privacy Protection Act H.R. 5273 Helping Hospitals Improve Patient Care Act S. 2713 Advancing Precision Medicine Act S. 1878 The Advancing Hope Act S. 1767 Combination Products Innovation Act S. 1077 Advancing Breakthrough Medical Devices for Patients Act S. 2512 Adding Zika Virus to the FDA Priority Review voucher Program Act S. 1101 Medical Electronic Data Technology Enhancement for Consumers Health Act S. 1597 Patient Focused Impact Assessment Act S. 2055 Medical Countermeasures Innovation Act S. 2873 Expanding Capacity for Health Outcomes (ECHO) Act H.R. 3081/ S. 1778 TELEmedicine for MEDicare (TELE-MED) Act H.R. 4442/S. 2484 CONNECT for Health Act H.R. 1192 National Diabetes Clinical Care Commission Act S. 620, H.R. 1189 Preserving Employee Wellness Programs Act H.R. 4878 Better Care, Lower Cost Act H.R. 5273 Helping Hospitals Improve Patient Care Act H.R. 4774 Training Tomorrows Doctors Today Act S. 2671, H.R.4732 Advancing Medical Resident Training in Community Hospitals Act S. 314, H.R. 592 Pharmacy and Medically and Underserved Areas Enhancement Act H.R.1314 Bipartisan Budget Act H.R. 1190/S. 141 Protecting Seniors' Access to Medicare Act H.R. 160/S. 149 Protect Medical Innovation Act H.R. 4732/ S. 2671 Advancing Medical Resident Training in Community Hospitals Act H.R. 2061, Equitable Access to Care and Health (EACH) Act H.R. 2446 To amend title XIX of the Social Security Act to require the use of electronic visit verification for personal care services furnished under the Medicaid program, and for other purposes. H.R. 2603/S. 1475 Saving Lives, Saving Costs Act H.R. 2646 Helping Families in Mental Health Crisis Act H.R. 2704/H.R. 4212/S.704 Community Based Independence for Seniors Act H.R. 2878/S. 1461 To provide for the extension of the enforcement instruction on supervision requirements for outpatient therapeutic services in critical access and small rural hospitals through 2015. H.R.2911/S. 1697 Small Business Healthcare Relief Act H.R. 3539 Reinvigorating Antibiotic and Diagnostic Innovation (READI) Act H.R. 3660 Preventive Health Savings Act H.R. 3716 Ensuring Terminated Providers are Removed from Medicaid and CHIP Act H.R. 3762 Restoring Americans Healthcare Freedom Reconciliation Act H.R. 3821 Medicaid Directory of Caregivers Act H.R. 5380 Telehealth Parity Act S. 139 Ensuring Access to Clinical Trials Act S. 2023 Prescription Drug Affordability Act S. 2030 Advancing Targeted Therapies for Rare Diseases Act S. 2045 Middle Class Health Benefits Tax Repeal Act S. 2075 American Worker Health Care Tax Relief Act S. 2153 Provider Payment Sunshine Act S. 2187 FDA Regulatory Efficiency Act S. 754 Cyber security Information Sharing Act (CISA) S.2104 Preserving Medicare Advantage for all Medicare Beneficiaries Act
2016 · second_quarter · Medical/Disease Research/Clinical Labs
Direct to consumer genetic testing Regulation and oversight of diagnostics Precision Medicine Initiative S.2744, Genetic Research Privacy Protection Act
Client expense: Not reported · Firm income: $20,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Office of Science & Technology Policy (OSTP), SENATE
Client expense: $160,000 · Firm income: Not reported
Government targets: Centers For Medicare and Medicaid Services (CMS), Congressional Budget Office (CBO), Executive Office of the President (EOP), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE