ECHO 2019 Act

P.L. 111-375 National Alzheimer's Project Act, All Sections P.L. 115-119 Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act P.L. 115-406 Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act P.L. 116-131 Supporting Older Americans Act of 2020 S.591 Guardianship Accountability Act S.299 Geriatrics Workforce Improvement Act S.548/H.R.1342 EMPOWER Care Act H.R.1343 Protecting Married Seniors from Impoverishment Act S.740 Alzheimer's Caregiver Support Act H.R. 1955 Understanding Appropriate Alzheimer's Care Act of 2019 S.880/H.R.1873 Improving HOPE for Alzheimer's Act S.2080/H.R.647 Palliative Care and Hospice Education and Training Act S.1250/H.R.2401 American Cures Act S.1017 Supporting America's Caregivers and Families Act S.995/H.R.2035 Lifespan Respite Care Reauthorization Act of 2019 S.1126/H.R.2283 Concentrating on High-Value Alzheimer's Needs to Get to an End (CHANGE) Act of 2019 S.1361/H.R.2584 Preventive Health Savings Act of 2019 S.1628 Paid Family Leave Pilot Extension Act S.1618 Expanding Capacity for Health Outcomes (ECHO) Act of 2019 S.1202 Independence at Home Act of 2019 H.R.3644 Independence at Home Demonstration Act of 2019 H.R.3436 Improving Chronic Care Management Act H.R.3107 Improving Seniors' Timely Access to Care Act S.2469/H.R.4386 Stop the Wait Act H.R.2781 Educating Medical Professionals and Optimizing Workforce Efficiency and Readiness (EMPOWER) for Health Act of 2019 S.2521/H.R.4397 Direct CARE Opportunity Act S.2677 Older Americans and Social Isolation and Loneliness Act H.R.4859 Protecting Older Americans from Social Isolation Act of 2019 H.Res.821 to establish a permanent select Committee in Aging in the House of Representatives H.R.6379 Families First Coronavirus Response Act S.3548/H.R.748 Coronavirus Aid, Relief, and Economic Security (CARES) Act; including provisions that would impact individuals living with Alzheimer's and other dementia and their caregivers. H.R.4334 Supporting Older Americans Act of 2020 S.3544/H.R.6305 Coronavirus Relief for Seniors and People with Disabilities Act S.3768 /H.R.6972 Nursing Home COVID-19 Protection and Prevention Act of 2020 H.R.7048 Nursing Home Pandemic Protection Act S.3644/H.R.6698 Quality Care for Nursing Home Residents and Workers During COVID-19 Act H.R.6638 Reducing COVID-19 Disparities by Investing in Public Health H.R.7158 Health Enterprise Zones Act H.R.6800 Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act S.3517/H.R.6487 ACCESS Act S.3740/H.R.6951 COVID-19 Recovery for Seniors and People with Disabilities Act H.R.8169 Elder Abuse Protection Act S.4182 Emergency Support for Nursing Homes and Elder Justice Reform Act of 2020 H.R.5958 Senior Health Planning Account Act S.4184/H.R.7463 Assisted Living Facility Coronavirus Reporting Act S.4682/H.R.8511 Care Corp Demonstration Act of 2020 H.R. 2477 Beneficiary Enrollment Notification and Eligibility Simplification (BENES) Act In forthcoming COVID-19 relief packages, the Alzheimer's Association is advocating for inclusion of policies that would impact those in the Alzheimer's and dementia community including: - Improving HOPE for Alzheimer's Act (S.880/H.R.1873) - Extension of the Independence at Home demonstration model - Promoting Alzheimer's Awareness to Prevent Elder Abuse Act, including Elder Justice Initiative training for professionals through the Department of Justice - Emergency Preparedness in long-term and community-based care settings - Expanding Capacity for Health Outcomes (Project ECHO) - Project VITAL: Virtual Inclusive Technology for ALL

Client expense: $360,000 · Firm income: Not reported

Government targets: Administration on Aging, Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Indian Health Service, Interior, Dept of (DOI), Internal Revenue Service (IRS), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Veterans Affairs, Dept of (VA)

Gun violence prevention research funding Child product safety Child passenger safety COVID-19 pandemic response for AI/AN communities Child care supplemental funding Providing Americans Insured Days of Leave Act (HR 6442 / S 3513) Special Diabetes Program for Indians Reauthorization Act (S 3937) Maternal, Infant, and Early Childhood Home Visiting Program funding Sudden Unexpected Infant Death (HR 2271 / S 1130) Infant sleep product safety Lead exposure prevention Regulation of air pollutants Food additive safety Paid family leave Climate change IHS funding Tribal Health Data Improvement Act (HR 7948 / S 4562) Child Abuse Prevention and Treatment Act reauthorization CAPTA Plans of safe care grants Family First Prevention Services Act implementation Issues related to the COVID-19 pandemic and providing supports for the child welfare community Emergency Funding for Child Protection Act (S 3660) Child Welfare Emergency Funding Act (S 4172) Supporting Foster Youth and Families through the Pandemic Act (HR 7947) Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act (HR 6800) The Informing Grandfamilies Act Standards in CBP Custody, S. 2135 Standards in ICE Family Detention Standards in ORR Custody Public Charge Child Nutrition Reauthorization/WIC SNAP Mental Health for Children OTC Drug Reform H.R. 6, DREAM Act Family Separation and Detention CARE for Families Act HR 3107 WIC Act Keep Families Together Act Breastfeeding Peer Counseling Program Public Health Preparedness and Response Research for Pregnant and Lactating Women Palliative Care and Hospice Education and Training Act (S. 2080) Dietary Guidelines Child Poverty HEROES Act Senate 4.0 Coronavirus Response Legislation Asylum Child Poverty Reduction Act Suicide Prevention Dr Lorna Breen Health Care Provider Protection Act S. 4349 CBP Medical Services Contract Child Nutrition Waivers Eviction Moratorium Quit Because of COVID-19 Act (H.R. 7286/ S. 4524) Pediatric Subspecialty Loan Repayment Program FY 2021 Appropriations 2020 Census Deadline Extensions Act (S. 4571) COVID-19 Relief Legislation Mainstreaming Addiction Treatment Act (H.R. 2482/S. 2074) Regulation of Tobacco Products Research Investment to Spark the Economy (RISE) Act (H.R. 7308) Childhood immunizations, including an amendment by the Department of Health and Human Services (HHS) to the PREP Act to allow pharmacists to administer immunizations to children aged three to 18 years old COVID-19 vaccine, the importance of following safety and testing protocols, and the need to include children in clinical vaccine trials FY2021 National Defense Authorization Act (NDAA), including support for provisions to halt the reduction or realignment of military medical personnel billets and transformation of the Military Health System/military medical treatment facilities VACCINES Act and related issues around combatting vaccine hesitancy and misinformation Payment for vaccine administration and reform to the Vaccines for Children (VFC) Program Federal funding for K-12 education in response to COVID-19 FY 2021 appropriations Requesting the collection and regular reporting of data on race and ethnicity by the Social Security Administration (SSA) Addressing the needs of students with disabilities in light of COVID-19 12-Month Continuous Medicaid/CHIP Eligibility Medicaid Work Requirements Medicaid Block Grants Medicaid Per Capita Caps Section 1115 Medicaid Waivers Medicaid Payment Parity Increase to Medicaid FMAP During COVID-19 Establish an automatic FMAP increase tied to state economic indicators S. 4108, Coronavirus Medicaid Response Act HR 6159, the Kids Access to Primary Care Act The Ensuring Access for Womens and Childrens Act, S. 4088. Medicaid Maintenance of Effort (MOE) Protections Comprehensive Access to Robust Insurance Now Guaranteed (CARING) for Kids Act (H.R.6151) H.R.6098 to Expand State CHIP Eligibility Delaying the CHIP FMAP Decrease H.R.6797/S.3881 - CHIPPER Act Medicaid Fiscal Accountability Rule Maternal Health H.R. 4995 Helping Moms Act Expanding Medicaid to 12 Months Post-Partum Medicaid Premiums and Cost Sharing Helping Families Access Pediatric Care Act of 2020 Medicaid Payment for Eligibility Workers Expanding the use of Telehealth in Medicaid/CHIP/Private Insurance Allow for the home and other secure locations as originating (patient) and distant (provider) sites in telehealth Waive telehealth cost-sharing for patients in telehealth Pay for telehealth care visits at parity with that of in-person visits Allow telehealth care for both new and established patients Expanding Capacity for Health Outcomes (ECHO) Act of 2019 (S 1618/HR 5199) Including Preventive Medicine Service Codes to be Eligible for Telehealth Increased Access To Broadband to Expand Telehealth Services Financial Relief to Medicaid Providers Financial Relief for Pediatricians Provider Relief Fund Expanding Provider Relief Fund Eligibility to Those Pediatricians Who Received a Small Medicare Allotment COVID-19 Response Targeted allocation of funds to primary care physician practices. Expand existing alternative payment models for primary care Fully implementing the 2021 outpatient E/M changes. Immediately implement the vaccine administration payment increases proposed in the 2021 MPFS. VACCINES Act, H.R. 2862 Expand VFC to separate CHIP Programs

S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO H.R.5199, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO Public Law 116-136, Coronavirus Aid, Relief, and Economic Security Act, Hospital and Healthcare services H.R.6800, Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act, Hospital and Healthcare services; and Project ECHO Future Coronavirus relief related issues

Client expense: Not reported · Firm income: $40,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

340B generally Coronavirus, Hospital and Healthcare Telehealth initiatives Monitor the following: Surprise Billing Health Care Transparency Prescription Drug Cost S.1895, Lower Health Care Cost Act, generally S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Telehealth generally Disproportionate Share Hospital (DSH) E-Cigarette Health related issues Medicaid Fiscal Accountability Rule

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

P.L. 111-375 National Alzheimer's Project Act, All Sections P.L. 115-119 Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act P.L. 115-406 Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act S.591 Guardianship Accountability Act S.299 Geriatrics Workforce Improvement Act S.548/H.R.1342 EMPOWER Care Act H.R.1343 Protecting Married Seniors from Impoverishment Act S.740 Alzheimer's Caregiver Support Act H.R. 1955 Understanding Appropriate Alzheimer's Care Act of 2019 S.880/H.R.1873 Improving HOPE for Alzheimer's Act H.R.1903/S.901 Younger-Onset Alzheimer's Disease Act of 2019 S.2080/H.R.647 Palliative Care and Hospice Education and Training Act S.1250/H.R.2401 American Cures Act S.1017 Supporting America's Caregivers and Families Act S.995/H.R.2035 Lifespan Respite Care Reauthorization Act of 2019 S.1126/H.R.2283 Concentrating on High-Value Alzheimer's Needs to Get to an End (CHANGE) Act of 2019 S.1361/H.R.2584 Preventive Health Savings Act of 2019 S.1628 Paid Family Leave Pilot Extension Act S.1618 Expanding Capacity for Health Outcomes (ECHO) Act of 2019 S.1202 Independence at Home Act of 2019 H.R.3644 Independence at Home Demonstration Act of 2019 H.R.3436 Improving Chronic Care Management Act H.R.3107 Improving Seniors' Timely Access to Care Act H.R.4334 Dignity in Aging Act of 2019 S.2469/H.R.4386 Stop the Wait Act H.R.2781 Educating Medical Professionals and Optimizing Workforce Efficiency and Readiness (EMPOWER) for Health Act of 2019 S.2521/H.R.4397 Direct CARE Opportunity Act S.3057 Modernization of the Older Americans Act Amendments S.2677 Older Americans and Social Isolation and Loneliness Act H.R.4859 Protecting Older Americans from Social Isolation Act of 2019 H.Res.821 to establish a permanent select Committee in Aging in the House of Representatives H.R.6379 Families First Coronavirus Response Act S.3548/H.R.748 Coronavirus Aid, Relief, and Economic Security (CARES) Act; including provisions that would impact individuals living with Alzheimer's and other dementia and their caregivers. H.R.4334 Supporting Older Americans Act of 2020 S.3544/H.R.6305 Coronavirus Relief for Seniors and People with Disabilities Act S.3768 /H.R.6972 Nursing Home COVID-19 Protection and Prevention Act of 2020 H.R.7048 Nursing Home Pandemic Protection Act S.3644/H.R.6698 Quality Care for Nursing Home Residents and Workers During COVID-19 Act H.R.6638 Reducing COVID-19 Disparities by Investing in Public Health H.R.7158 Health Enterprise Zones Act H.R.6800 Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act S.3517/H.R.6487 ACCESS Act S.3740/H.R.6951 COVID-19 Recovery for Seniors and People with Disabilities Act In forthcoming COVID-19 relief packages, the Alzheimer's Association is advocating for inclusion of policies that would impact those in the Alzheimer's and dementia community including: - Improving HOPE for Alzheimer's Act (S.880/H.R.1873) - Extension of the Independence at Home demonstration model - Promoting Alzheimer's Awareness to Prevent Elder Abuse Act, including Elder Justice Initiative training for professionals through the Department of Justice - Emergency Preparedness in long-term and community-based care settings - Expanding Capacity for Health Outcomes (Project ECHO) - Project VITAL: Virtual Inclusive Technology for ALL

Child Care is Essential Act (HR 7027 / S 3874), Flint Registry Reauthorization Act (HR 7253 / S 3976), Special Diabetes Program for Indians Reauthorization Act (S 3937), Maternal, Infant, and Early Childhood Home Visiting Program funding, Gun violence prevention research funding, Sudden Unexpected Infant Death (HR 2271 / S 1130), Child product safety, Child passenger safety, COVID-19 pandemic response for AI/AN communities, Funding for Child Care and Development Block Grant, Providing Americans Insured Days of Leave Act (HR 6442 / S 3513), Infant sleep product safety, Funding for ATSDR, Lead exposure prevention, Regulation of air pollutants, Paid Family Leave, TSCA Implementation, IHS Funding, Indian Health Service Health Professions Tax Fairness Act (HR 6448 / S 2871), Child Abuse Prevention and Treatment Act reauthorization, CAPTA Plans of safe care grants, Family First Prevention Services Act implementation, Issues related to the COVID-19 pandemic and providing supports for the child welfare community, Emergency Funding for Child Protection Act (S 3660), Child Welfare Emergency Funding Act (S 4172), FY21 Labor, Health and Human Services, and Education Appropriations: CDC/NIH Firearm Injury and Mortality Prevention Research, HRSA Emergency Medical Services for Children, HRSA Pediatric Subspecialty Loan Repayment Program, CDC National Center for Birth Defects and Developmental Disabilities, ACF Child Abuse Prevention and Treatment Act Grants, CDC Global Immunization Programs, ASPR Pediatric Disaster Care Pilot Program, HRSA Pediatric Mental Health Care Access, HRSA Screening and Treatment for Maternal Depression, NIH Adolescent E-Cigarette Cessation Research, SAMHSA Reducing Underage Drinking Through Screening, Brief Intervention, and Referral to Treatment , Vaccine Issues: Preserving the Current Vaccine Delivery System, Enhanced Medicaid Payment for Immunization Administration, Appropriately Valued Vaccine Codes, Prospective Medicaid Vaccine Payments, Policy Changes to the Vaccines for Children Program, and the VACCINES Act, School Reopening and Federal Education Funding amid COVID-19, FY21 National Defense Authorization Act, Newborn Screening Saves Lives Reauthorization Act, Voluntary certification of pediatric EHRs, REMOTE Act, Standards in CBP Custody, S. 2135, Standards in ICE Family Detention, Standards in ORR Custody, Public Charge, Child Nutrition Reauthorization/WIC, SNAP, Mental Health for Children, OTC Drug Reform, Requirements for airplane EMKs, H.R. 6, DREAM Act, Family Separation and Detention, Fair Day in Court for Kids Act, Nutrition Facts Label, Equality Act, HR 5, CARE for Families Act HR 3107, WIC Act, Keep Families Together Act, Breastfeeding Peer Counseling Program, Public Health Preparedness and Response, Medical Nutrition Equity Act, Therapeutic Fraud Prevention Act, Funding for Mental Health Access Grants, Funding for HRSA Maternal Depression Grants, Research for Pregnant and Lactating Women, Palliative Care and Hospice Education and Training Act (S. 2080), Medical Deferred Action, Access to Healthy Food for Young Children Act of 2019 (S. 2501), H.R. 3246, Traveling Parents Screening Consistency Act of 2019, Friendly Airports for Mothers Expansion (FAME) Act , Healthy Meals for Opioid-Affected Kids and Kids Raised by Grandfamilies, 21st Century Cures 2.0, Dietary Guidelines, Families First Coronavirus Response Act, Coronavirus Aid, Relief, and Economic Security (CARES) Act, Pediatric Disaster Care Pilot Program, Child Poverty, Funding for the Emergency Medical Services for Children (EMSC) Program, Funding for Pediatric Device Consortia, PUMP for Nursing Mothers Act, S. 3170, HEROES Act, Senate 4.0 Coronavirus Response Legislation, Asylum, Child Poverty Reduction Act, Suicide Prevention, Global Child Thrive Act, Global Health Security Act, CARES Act (H.R. 748), HEROES Act (H.R. 6800), Healthcare Workforce Resilience Act (H.R. 6788/S. 3599), Quit Because of COVID-19 Act (H.R. 7286), Pediatric Subspecialty Loan Repayment Program Appropriations, National Institutes of Health Appropriations, OJJDP COVID-19 Guidance: State Juvenile Detention and Correctional Facilities, Children's Online Privacy Protection Act Update (S. 748), Mainstreaming Addiction Treatment Act (H.R. 2482/S. 2074), Public Disclosure of Premarket Tobacco Applications, Classification of Tobacco Shops as Essential Businesses During COVID-19 Pandemic, 12-Month Continuous Medicaid/CHIP Eligibility, Medicaid Work Requirements, Medicaid Eligibility Proposed Rule, Medicaid Block Grants, Medicaid Per Capita Caps, Section 1115 Medicaid Waivers, Proposed Repeal of Medicaid Access Rule, Medicaid Payment Parity, Increase to Medicaid FMAP During COVID-19, Establish an automatic FMAP increase tied to state economic indicators, S. 4108, Coronavirus Medicaid Response Act, HR 6159, the Kids Access to Primary Care Act, Medicaid Maintenance of Effort (MOE) Protections, Comprehensive Access to Robust Insurance Now Guaranteed (CARING) for Kids Act (H.R.6151), H.R.6098 to Expand State CHIP Eligibility, Delaying the CHIP FMAP Decrease, H.R.6797/S.3881 - CHIPPER Act, Medicaid Fiscal Accountability Rule, Maternal Health, Expanding Medicaid to 12 Months Post-Partum, Medicaid Premiums and Cost Sharing, Medicaid Payment for Eligibility Workers, ChiPACC Act, Expanding the use of Telehealth in Medicaid/CHIP/Private Insurance, Allow for the home and other secure locations as originating (patient) and distant (provider) sites in telehealth, Waive telehealth cost-sharing for patients in telehealth, Pay for telehealth care visits at parity with that of in-person visits, Allow telehealth care for both new and established patients, Expanding Capacity for Health Outcomes (ECHO) Act of 2019 (S 1618/HR 5199), Including Preventive Medicine Service Codes to be Eligible for Telehealth, Increased Access To Broadband to Expand Telehealth Services, Public Health and Social Services Emergency Funding, Financial Relief to Medicaid Providers, Financial Relief for Pediatricians, Provider Relief Fund, Expanding Provider Relief Fund Eligibility to Those Pediatricians Who Received a Small Medicare Allotment, COVID-19 Response.

S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO H.R.5199, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO Public Law 116-136, Coronavirus Aid, Relief, and Economic Security Act, Hospital and Healthcare services H.R.6800, Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act, Hospital and Healthcare services; and Project ECHO Future Coronavirus relief related issues

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

340B generally Coronavirus, Hospital and Healthcare Telehealth initiatives Monitor the following: Surprise Billing Health Care Transparency Prescription Drug Cost S.1895, Lower Health Care Cost Act, generally S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Telehealth generally Disproportionate Share Hospital (DSH) E-Cigarette Health related issues Medicaid Fiscal Accountability Rule

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

P.L. 111-375 National Alzheimer's Project Act, All Sections P.L. 115-119 Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act P.L. 115-406 Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act S.591 Guardianship Accountability Act S.299 Geriatrics Workforce Improvement Act S.548/H.R.1342 EMPOWER Care Act H.R.1343 Protecting Married Seniors from Impoverishment Act S.740 Alzheimer's Caregiver Support Act H.R. 1955 Understanding Appropriate Alzheimer's Care Act of 2019 S.880/H.R.1873 Improving HOPE for Alzheimer's Act H.R.1903/S.901 Younger-Onset Alzheimer's Disease Act of 2019 S.2080/H.R.647 Palliative Care and Hospice Education and Training Act S.1250/H.R.2401 American Cures Act S.1017 Supporting America's Caregivers and Families Act S.995/H.R.2035 Lifespan Respite Care Reauthorization Act of 2019 S.1126/H.R.2283 Concentrating on High-Value Alzheimer's Needs to Get to an End (CHANGE) Act of 2019 S.1361/H.R.2584 Preventive Health Savings Act of 2019 S.1628 Paid Family Leave Pilot Extension Act S.1618 Expanding Capacity for Health Outcomes (ECHO) Act of 2019 S.1202 Independence at Home Act of 2019 H.R.3644 Independence at Home Demonstration Act of 2019 H.R.3436 Improving Chronic Care Management Act H.R.3107 Improving Seniors' Timely Access to Care Act H.R.4334 Dignity in Aging Act of 2019 S.2469/H.R.4386 Stop the Wait Act H.R.2781 Educating Medical Professionals and Optimizing Workforce Efficiency and Readiness (EMPOWER) for Health Act of 2019 S.2521/H.R.4397 Direct CARE Opportunity Act S.3057 Modernization of the Older Americans Act Amendments S.2677 Older Americans and Social Isolation and Loneliness Act H.R.4859 Protecting Older Americans from Social Isolation Act of 2019 H.Res.821 to establish a permanent select Committee in Aging in the House of Representatives H.R.6379 Families First Coronavirus Response Act S.3548/H.R.748 Coronavirus Aid, Relief, and Economic Security (CARES) Act; including provisions that would impact individuals living with Alzheimer's and other dementia and their caregivers. H.R.4334 Supporting Older Americans Act of 2020 S.3544/H.R.6305 Coronavirus Relief for Seniors and People with Disabilities Act In forthcoming COVID-19 relief packages, the Alzheimer's Association is advocating for inclusion of policies that would impact those in the Alzheimer's and dementia community including: - Improving HOPE for Alzheimer's Act (S.880/H.R.1873) - Extension of the Independence at Home demonstration model - Promoting Alzheimer's Awareness to Prevent Elder Abuse Act, including Elder Justice Initiative training for professionals through the Department of Justice - Emergency Preparedness in long-term and community-based care settings - Expanding Capacity for Health Outcomes (Project ECHO) - Project VITAL: Virtual Inclusive Technology for ALL

Newborn Screening Saves Lives Reauthorization, Reforms to the Military Health System / TRICARE Exceptional Family Member Program, Stopping Military Medical Personnel Billet Reductions, VACCINES Act - Inclusion in Coronavirus (COVID-19) Legislative Vehicles, FY21 Labor, Health and Human Services, and Education Appropriations: CDC/NIH Firearm Injury and Mortality Prevention Research, HRSA Emergency Medical Services for Children, HRSA Pediatric Subspecialty Loan Repayment Program, CDC National Center for Birth Defects and Developmental Disabilities, ACF Child Abuse Prevention and Treatment Act Grants, CDC Global Immunization Programs, ASPR Pediatric Disaster Care Pilot Program, HRSA Pediatric Mental Health Care Access, HRSA Screening and Treatment for Maternal Depression, NIH Adolescent E-Cigarette Cessation Research, SAMHSA Reducing Underage Drinking Through Screening, Brief Intervention, and Referral to Treatment, FY21 Agriculture, Rural Development, and FDA Appropriations: USDA/FNS WIC Breastfeeding Peer Counselor Program and FDA Pediatric Device Consortia, Healthy Start Reauthorization, Families First Coronavirus Response Act (HR 6201), Coronavirus Aid, Relief, and Economic Security Act (S 3548), Child Abuse Prevention and Treatment Act reauthorization, CAPTA Plans of safe care grants, Family First Prevention Services Act implementation, Maternal, Infant, and Early Childhood Home Visiting Program funding, Gun violence prevention research funding, Sudden Unexpected Infant Death (HR 2271 / S 1130), STURDY Act (HR 2211 / S 1902), Safe Sleep for Babies Act (HR 3172 / S 1767), Child product safety, Issues related to the COVID-19 pandemic and providing supports for the child welfare community, Funding for Child Care and Development Black Grant, Providing Americans Insured Days of Leave Act, Infant sleep product safety, Magnet Injury Prevention, Lead exposure, Regulation of air pollutants, Paid Family Leave, Climate change, TSCA Implementation, IHS Funding, Indian Health Service Health Professions Tax Fairness Act (HR 6448 / S 2871), REMOTE Act, Standards in CBP Custody, S. 2135, Standards in ICE Family Detention, Standards in ORR Custody, Public Charge, Child Nutrition Reauthorization/WIC, SNAP, Mental Health for Children, OTC Drug Reform, Requirements for airplane EMKs, H.R. 6, DREAM Act, Family Separation and Detention, Fair Day in Court for Kids Act, Menu Labeling, Nutrition Facts Label, Equality Act, HR 5, CARE for Families Act HR 3107, WIC Act, Keep Families Together Act, Breastfeeding Peer Counseling Program, Public Health Preparedness and Response, Medical Nutrition Equity Act, Therapeutic Fraud Prevention Act, Funding for Mental Health Access Grants, Funding for HRSA Maternal Depression Grants, Research for Pregnant and Lactating Women, Palliative Care and Hospice Education and Training Act (S. 2080), Medical Deferred Action, Access to Healthy Food for Young Children Act of 2019 (S. 2501), H.R. 3246, Traveling Parents Screening Consistency Act of 2019, Friendly Airports for Mothers Expansion (FAME) Act, Healthy Meals for Opioid-Affected Kids and Kids Raised by Grandfamilies , 21st Century Cures 2.0, Dietary Guidelines, Families First Coronavirus Response Act, Coronavirus Aid, Relief, and Economic Security (CARES) Act, Pediatric Disaster Care Pilot Program, Child Poverty, Funding for the Emergency Medical Services for Children (EMSC) Program, Funding for Pediatric Device Consortia, PUMP for Nursing Mothers Act, S. 3170, 12-Month Continuous Medicaid/CHIP Eligibility, Medicaid Work Requirements, Medicaid Eligibility Proposed Rule, Medicaid Block Grants, Medicaid Per Capita Caps, Section 1115 Medicaid Waivers, Increase to Medicaid FMAP During COVID-19, Establish an automatic FMAP increase tied to state economic indicators, HR 6159, the Kids Access to Primary Care Act, Medicaid Maintenance of Effort (MOE) Protections, Comprehensive Access to Robust Insurance Now Guaranteed (CARING) for Kids Act (H.R.6151), H.R.6098 to Expand State CHIP Eligibility, Delaying the CHIP FMAP Decrease, Medicaid Fiscal Accountability Rule, Maternal Health, Expanding Medicaid to 12 Months Post-Partum, Medicaid Premiums and Cost Sharing, Medicaid Payment for Eligibility Workers. Recoupment of the Payment Error Rate Measurement (PERM), Expanding the use of Telehealth in Medicaid/CHIP/Private Insurance, Allow for the home and other secure locations as originating (patient) and distant (provider) sites in telehealth, Waive telehealth cost-sharing for patients in telehealth, Pay for telehealth care visits at parity with that of in-person visits, Allow telehealth care for both new and established patients, Expanding Capacity for Health Outcomes (ECHO) Act of 2019 (S 1618/HR 5199), Including Preventive Medicine Service Codes to be Eligible for Telehealth, Public Health and Social Services Emergency Funding, Financial Relief to Medicaid Providers, COVID-19 Response, Coronavirus Preparedness and Response Supplemental Appropriations Act, 2020 (H.R. 6074), Families First Coronavirus Response Act (H.R. 6201), Coronavirus Aid, Relief, and Economic Security (CARES) Act (H.R. 748)Proposed Repeal of Medicaid Access Rule , Medicaid Payment Parity, Reversing the Youth Tobacco Epidemic Act (H.R. 2339), EMPOWER for Health Act (H.R. 2781), Investment in Tomorrow's Pediatric Health Care Workforce Act (S. 2443), Title VII Health Care Workforce Reauthorization Act of 2019 (S. 2997), National Institutes of Health Appropriations, Title VII Health Professions Programs Appropriations, NIH Environmental influences on Child Health Outcomes Appropriations, Pediatric Subspecialty Loan Repayment Program Appropriations, Food Allergy Appropriations Initiatives, CARES Act, Protecting Cures Act of 2020 (H.R. 6417), Fetal Tissue Research

S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO H.R.5199, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO Public Law 116-136, Coronavirus Aid, Relief, and Economic Security Act, Hospital and Healthcare services

Client expense: Not reported · Firm income: $40,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

Diabetes and Metabolism research program Monitor the following: Surprise Billing Health Care Transparency Prescription Drug Cost S.1895, Lower Health Care Cost Act, generally 340B generally S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Telehealth generally Disproportionate Share Hospital (DSH) E-Cigarette Health related issues Medicaid Fiscal Accountability Rule Coronavirus, Hospital and Healthcare related issues

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

P.L. 111-375 National Alzheimer's Project Act, All Sections P.L. 115-119 Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act P.L. 115-406 Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act S.591 Guardianship Accountability Act S.299 Geriatrics Workforce Improvement Act S.548/H.R.1342 EMPOWER Care Act H.R.1343 Protecting Married Seniors from Impoverishment Act S.740 Alzheimer's Caregiver Support Act H.R. 1955 Understanding Appropriate Alzheimer's Care Act of 2019 S.880/H.R.1873 Improving HOPE for Alzheimer's Act H.R.1903/S.901 Younger-Onset Alzheimer's Disease Act of 2019 S.2080/H.R.647 Palliative Care and Hospice Education and Training Act S.1250/H.R.2401 American Cures Act S.1017 Supporting America's Caregivers and Families Act S.995/H.R.2035 Lifespan Respite Care Reauthorization Act of 2019 S.1126/H.R.2283 Concentrating on High-Value Alzheimer's Needs to Get to an End (CHANGE) Act of 2019 S.1361/H.R.2584 Preventive Health Savings Act of 2019 S.1628 Paid Family Leave Pilot Extension Act S.1618 Expanding Capacity for Health Outcomes (ECHO) Act of 2019 S.1202 Independence at Home Act of 2019 H.R.3644 Independence at Home Demonstration Act of 2019 H.R.3436 Improving Chronic Care Management Act H.R.3107 Improving Seniors' Timely Access to Care Act H.R.4334 Dignity in Aging Act of 2019 S.2469/H.R.4386 Stop the Wait Act H.R.2781 Educating Medical Professionals and Optimizing Workforce Efficiency and Readiness (EMPOWER) for Health Act of 2019 S.2521/H.R.4397 Direct CARE Opportunity Act S.3057 Modernization of the Older Americans Act Amendments S.2677 Older Americans and Social Isolation and Loneliness Act H.R.4859 Protecting Older Americans from Social Isolation Act of 2019

Client expense: $400,000 · Firm income: Not reported

Monitor the following: Surprise Billing Health Care Transparency Prescription Drug Cost S.1895, Lower Health Care Cost Act, generally 340B generally S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Telehealth generally Disproportionate Share Hospital (DSH) E-Cigarette Health related issues Medicaid Fiscal Accountability Rule

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES

S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

P.L. 111-375 National Alzheimer's Project Act, All Sections P.L. 115-119 Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act P.L. 115-406 Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act S.591 Guardianship Accountability Act S.299 Geriatrics Workforce Improvement Act S.548/H.R.1342 EMPOWER Care Act H.R.1343 Protecting Married Seniors from Impoverishment Act S.740 Alzheimer's Caregiver Support Act H.R. 1955 Study on Use of Anti-Psychotics in Non-nursing Homes S.880/H.R.1873 Improving HOPE for Alzheimer's Act H.R.1903/S.901 Younger-Onset Alzheimer's Disease Act of 2019 S.2080/H.R.647 Palliative Care and Hospice Education and Training Act S.1250/H.R.2401 American Cures Act S.1017 Supporting America's Caregivers and Families Act S.995/H.R.2035 Lifespan Respite Care Reauthorization Act of 2019 S.1126/H.R.2283 Concentrating on High-Value Alzheimer's Needs to Get to an End (CHANGE) Act of 2019 S.1361/H.R.2584 Preventive Health Savings Act of 2019 S.1628 Paid Family Leave Pilot Extension Act H.R.2878 Homecare for Seniors Act S.1618 Expanding Capacity for Health Outcomes (ECHO) Act of 2019 S.1202 Independence at Home Act of 2019 H.R.3644 Independence at Home Demonstration Act of 2019 H.R.3436 Improving Chronic Care Management Act H.R.3107 Improving Seniors' Timely Access to Care Act H.R.4334 Dignity in Aging Act of 2019 S.2469/H.R.4386 Stop the Wait Act

Client expense: $500,000 · Firm income: Not reported

Monitor the following: Surprise Billing Health Care Transparency Prescription Drug Cost S.1895, Lower Health Care Cost Act, generally 340B generally S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Telehealth generally Disproportionate Share Hospital (DSH)

Client expense: Not reported · Firm income: $50,000

S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

Expressed support for reauthorization of the Patient-Centered Outcomes Trust Fund and the Patient-Centered Outcomes Research Institute Expressed support for preventing cuts to the Medicaid Disproportionate Share Hospital (DSH) program Expressed support for reauthorization of the NIH Special Diabetes Fund Expressed support for the ECHO Act of 2019 (S 1618) Discussed proposals to prevent surprise medical billing Discussed the Lower Health Care Costs Act (S. 1895) Expressed support of the Autism CARES Act (S 427, HR 1058) Discussed reimbursements for CAR-T cell therapy Requested letters of support for CDC NIOSH grant Discussed the availability of marijuana for public health research

Client expense: $135,659 · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE

P.L. 111-375 National Alzheimer's Project Act, All Sections P.L. 115-119 Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act P.L. 115-406 Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act S.591 Guardianship Accountability Act S.299 Geriatrics Workforce Improvement Act S.548/H.R.1342 EMPOWER Care Act H.R.1343 Protecting Married Seniors from Impoverishment Act S.740 Alzheimer's Caregiver Support Act H.R. 1955 Study on Use of Anti-Psychotics in Non-nursing Homes S.880/H.R.1873 Improving HOPE for Alzheimer's Act H.R.1903/S.901 Younger-Onset Alzheimer's Disease Act of 2019 H.R.647 Palliative Care and Hospice Education and Training Act S.1250/H.R.2401 American Cures Act S.1017 Supporting America's Caregivers and Families Act S.995/H.R.2035 Lifespan Respite Care Reauthorization Act of 2019 S.1126/H.R.2283 Concentrating on High-Value Alzheimer's Needs to Get to an End (CHANGE) Act of 2019 S.1361/H.R.2584 Preventive Health Savings Act of 2019 S.1628 Paid Family Leave Pilot Extension Act H.R.2878 Homecare for Seniors Act S.1618 Expanding Capacity for Health Outcomes (ECHO) Act of 2019 S.1202 Independence at Home Act of 2019 H.R.3436 Improving Chronic Care Management Act

Client expense: $871,000 · Firm income: Not reported

I lobbied the WV delegation offices for their possible co-sponsorship of the Expanding Capacity for Health Outcomes Act of 2019, which seeks to increase access to health care services in rural areas by expanding the use of technology based collaborative learning and capacity building models. The Senate bill is S. 1618. A House companion bill has yet to be introduced. I also lobbied the WV delegation for their potential co-sponsorship of S.427/H.R. 1058, the Autism Collaboration Accountability, Research, Education, and Support (CARES) Act which supports a number of programs that the WVU Center of Excellence for Disabilities administers for the State of WV.

Client expense: $50,000 · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE

S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Project ECHO

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

Surprise Billing Health Care Transparency Prescription Drug Cost S.1895, Lower Health Care Cost Act, generally 340B generally S.1618, Expanding Capacity for Health Outcomes (ECHO) Act of 2019, Telehealth generally

Client expense: Not reported · Firm income: $50,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE