Honor Our Living Donors Act

-Expanding Support for Living Donors Act (H.R. 7868) Legislation to expand how much living donors can be reimbursed and to increase the threshold for income-based qualification -Honor Our Living Donors Act (H.R. 628 / S. 957) Legislation to simplify the process of determining eligibility for reimbursement for living kidney donation-related costs -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582 and S. 1552). Clarifies and strengthens protections for Americans who donate an organ. -$77M in appropriations for HRSA Organ Transplant work in FY27 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY27 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for continued focus on modernizing the U.S. transplant system, including implementing the 2023 Securing the U.S. OPTN Act -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged HHS to ensure kidney health data remains accessible and complete, including advancing data-sharing, data standards, and interoperability -Raised questions about access to and quality of care in Medicare Advantage plans for kidney patients

Client expense: $80,000 · Firm income: Not reported

Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), SENATE

HR 628/S 957, Honor Our Living Donors Act Expanding Support for Living Donors Act (no bill number yet)

Client expense: Not reported · Firm income: $30,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

Activities to facilitate organ donation and transplantation, including the Honor our Living Donors Act (H.R. 628, S. 957); the Living Donor Protection Act (S.1552 and H.R. 4583); and legislation to clarify that organ donation surgery qualifies as a serious health condition for FMLA coverage (S. 1552, H.R. 4582). Request to require inclusion of phosphorus on nutrition labels. Implementation of P.L. 118-14, "Securing the U.S. Organ Procurement and Transplantation Network Act." Support for xenotransplantation. Implementation of the Advancing American Kidney Health Initiative. Support for telemedicine and telehealth access. The New Era of Preventing End-Stage Kidney Disease Act (H.R. 1518). Activities in support of access to affordable, accessible health care, including Affordable Care Act enhanced premium tax credits.

Client expense: $60,000 · Firm income: Not reported

Government targets: Centers For Disease Control & Prevention (CDC), Commerce, Dept of (DOC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), SENATE

Honor our Living Donors Act (H.R. 628/S. 957), Living Donor Protection Act (H.R. 4583), Living Donor FMLA Protection Act (H.R. 4582).

Client expense: Not reported · Firm income: $90,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

-Honor Our Living Donors Act (H.R. 628 / S. 957) Legislation to simplify the process of determining eligibility for reimbursement for living kidney donation-related costs -Removing Barriers for Organ Donation Act (H.R.4470) Mandates implementation of automated referral regarding potential organ donors from donor hospitals to local organ procurement organizations, with exceptions, and calls for a GAO study and agency coordination -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582 and S. 1552). Clarifies and strengthens protections for Americans who donate an organ. -$67M in appropriations for HRSA Organ Transplant work in FY26 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY26 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for HRSA to focus on transparency for patients, improvements to data use and management, and attention to allocation out of sequence issues as it implements the 2023 Securing the US OPTN Act and FY25 appropriations -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged HHS to ensure kidney health data remains accessible and complete, including collection of key demographic information via form 2728

Client expense: $60,000 · Firm income: Not reported

HR 628/S 957, Honor Our Living Donors Act Appropriations for KidneyX Living Donor Protection Act (not introduced during the lobbying period)

Client expense: Not reported · Firm income: $30,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

HR 628/S 957, Honor Our Living Donors Act Appropriations for KidneyX Living Donor Protection Act (not introduced during the lobbying period)

Client expense: Not reported · Firm income: $30,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

-Honor Our Living Donors Act (H.R. 628 / S. 957) Legislation to simplify the process of determining eligibility for reimbursement for living kidney donation-related costs -CONNECT for Health Act (S. 1261) Legislation to expand the use of telehealth and remote patient monitoring services in Medicare on a permanent basis -Organ Donation Referral Improvement Act (H.R. 330) Calls for study on adoption and best practices in automated referral regarding potential organ donors from donor hospitals to local organ procurement organizations -Removing Barriers for Organ Donation Act (H.R.4470) Mandates implementation of automated referral regarding potential organ donors from donor hospitals to local organ procurement organizations, with exceptions, and calls for a GAO study and agency coordination -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582 and S. 1552). Clarifies and strengthens protections for Americans who donate an organ. - H.R. 5178, Sickle Cell Disease Comprehensive Care Act Authorizes state Medicaid Programs to provide comprehensive coordinated care through a Home Health program. (Senate companion S. 721) -$67M in appropriations for HRSA Organ Transplant work in FY26 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY26 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for HRSA to focus on transparency for patients, improvements to data use and management, and attention to allocation out of sequence issues as it implements the 2023 Securing the US OPTN Act and FY25 appropriations -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged CMS to ensure kidney health data, particularly through the EQRS, remains readily available to the kidney research community as well as to the USRDS -Urged additional improvements to kidney care models at CMMI, particularly CKCC and IOTA - Urged Department of Homeland Security to not impose restrictions on physician visas, including to waive the $100,000 application fee for H1b visas, not implement new weighted tier system for H1b visa availability, and responded to proposal to modify current Duration of Status for J1 visa holders.

Activities to facilitate organ donation and transplantation, including the Honor our Living Donors Act (H.R. 628, S. 957); the Living Donor Protection Act (S.1552 and H.R. 4583); and legislation to clarify that organ donation surgery qualifies as a serious health condition for FMLA coverage (S. 1552, H.R. 4582). Implementation of P.L. 118-14, "Securing the U.S. Organ Procurement and Transplantation Network Act." Implementation of the Advancing American Kidney Health Initiative. Support for telemedicine and telehealth access. The New Era of Preventing End-Stage Kidney Disease Act (H.R. 1518). Activities in support of access to affordable, accessible health care. Opposed changes to Affordable Care Act eligibility, access and affordability under the One Big Beautiful Bill (H.R. 1).

Client expense: $50,000 · Firm income: Not reported

Government targets: Centers For Disease Control & Prevention (CDC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), SENATE

Activities to facilitate organ donation and transplantation, including the Honor our Living Donors Act (H.R. 628, S. 957) to modify criteria to determine eligibility to reimburse individuals under the Living Organ Donation Reimbursement Program, and the Living Donor Protection Act (S.1552) to prohibit discrimination in life, disability and long-term health coverage policies. Comments on proposed "Revisions to Human Immunodeficiency Virus (HIV) Policies to Align with Federal Regulatory Updates," from the Organ Procurement and Transplantation Networks (OPTN) Disease Transmission Advisory Committee. Implementation of P.L. 118-14, "Securing the U.S. Organ Procurement and Transplantation Network Act." Implementation of the Advancing American Kidney Health Initiative. Support for telemedicine and telehealth access. General activities in support of access to affordable, accessible health care. Opposed changes to Affordable Care Act eligibility, access and affordability under the One Big Beautiful Bill (H.R. 1).

Client expense: $90,000 · Firm income: Not reported

HR 628/S 957, Honor Our Living Donors Act Appropriations for KidneyX Living Donor Protection Act (not introduced during the lobbying period)

Client expense: Not reported · Firm income: $30,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

-Honor Our Living Donors Act (H.R. 628 / S. 957) Legislation to simplify the process of determining eligibility for reimbursement for living kidney donation-related costs -Expanding Support for Living Donors Act (draft bill) Draft legislation to expand eligibility for living kidney donors to receive reimbursement for living kidney donation-related costs -CONNECT for Health Act (S. 1261) Legislation to expand the use of telehealth and remote patient monitoring services in Medicare on a permanent basis -Organ Donation Referral Improvement Act (H.R. 330) Calls for study on adoption and best practices in automated referral regarding potential organ donors from donor hospitals to local organ procurement organizations -Removing Barriers for Organ Donation Act (bill number forthcoming) Mandates implementation of automated referral regarding potential organ donors from donor hospitals to local organ procurement organizations, with exceptions, and calls for a GAO study and agency coordination -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582) Clarifies and strengthens protections for Americans who donate an organ -One Big, Beautiful Bill (H.R. 1) ASN raised concerns about access to care for people with kidney diseases, including kidney failure and transplants, as well as the effect of limits on federal loan programs for the future nephrology workforce -Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Legislation to reverse a recent cut to physicians and other health professionals in the Medicare program and to provide stability in Medicare physician payments moving forward -$67M in appropriations for HRSA Organ Transplant work in FY26 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY26 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for HRSA to focus on transparency for patients, improvements to data use and management, and attention to allocation out of sequence issues as it implements the 2023 Securing the US OPTN Act and FY25 appropriations -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged CMS to ensure kidney health data, particularly through the EQRS, remains readily available to the kidney research community as well as to the USRDS -Urged additional improvements to kidney care models at CMMI, particularly CKCC and IOTA

Activities to facilitate organ donation and transplantation, including the Honor our Living Donors Act (H.R. 628, S. 957) to modify criteria to determine eligibility to reimburse individuals under the Living Organ Donation Reimbursement Program, and the Living Donor Protection Act (S.1552) to prohibit discrimination in life, disability and long-term health coverage policies. Comments on proposed "Revisions to Human Immunodeficiency Virus (HIV) Policies to Align with Federal Regulatory Updates," from the Organ Procurement and Transplantation Networks (OPTN) Disease Transmission Advisory Committee. Implementation of P.L. 118-14, "Securing the U.S. Organ Procurement and Transplantation Network Act." Implementation of the Advancing American Kidney Health Initiative. Support for telemedicine and telehealth access. General activities in support of access to affordable, accessible health care. Opposed changes to Affordable Care Act eligibility, access and affordability under the One Big Beautiful Bill (H.R. 1).

Client expense: $90,000 · Firm income: Not reported

HR 628/S 957, Honor Our Living Donors Act Appropriations for KidneyX Living Donor Protection Act (not introduced during the lobbying period)

Client expense: Not reported · Firm income: $30,000

Government targets: HOUSE OF REPRESENTATIVES, SENATE

Activities to increase, improve and facilitate organ donation and transplantation, including the Honor our Living Donors Act (H.R. 628, S. 957) and the Living Donor Protection Act (to be introduced). Implementation of P.L. 118-14, "Securing the U.S. Organ Procurement and Transplantation Network Act." Implementation of the Advancing American Kidney Health Initiative. Support for telemedicine and telehealth access. Activities in support of access to affordable, accessible health care. Comments on the Organ Procurement and Transplantation Networks Kidney Transplantation Committee regarding the Continuous Distribution (CD) of kidneys project. Comments on the Monitor Ongoing eGFR Modification Policy Requirements from the Organ Procurement and Transplantation Networks Minority Affairs Committee.

Client expense: $110,000 · Firm income: Not reported

-Honor Our Living Donors Act (H.R. 628 / S. 957) Legislation to simplify the process of determining eligibility for reimbursement for living kidney donation-related costs -OPTN Fee Collection Authority Act (S. 532) Legislation to clarify HRSA and HHS' ability to collect and distribute OPTN patient waitlist registration fees to support ongoing operation of the US transplant system -Expanding Support for Living Donors Act (draft bill) Draft legislation to expand eligibility for living kidney donors to receive reimbursement for living kidney donation-related costs -CONNECT for Health Act (S. 1261) Legislation to expand the use of telehealth and remote patient monitoring services in Medicare on a permanent basis -Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Legislation to reverse a recent cut to physicians and other health professionals in the Medicare program and to provide stability in Medicare physician payments moving forward -$67M in appropriations for HRSA Organ Transplant work in FY26 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY26 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged CMS to ensure kidney health data, particularly through the EQRS, remains readily available to the kidney research community as well as to the USRDS

Client expense: $90,000 · Firm income: Not reported