FAMILY VOICES

Advocate for reauthorization of the family-to-family health information centers program or H.R. 7300, the Family-to-Family Reauthorization Act of 2024.

Client expense: — · Firm income: $50,000

Matched citations: H.R. 7300

Advocate for reauthorization of the family-to-family health information centers program or H.R. 7300, the Family-to-Family Reauthorization Act of 2024.

Client expense: — · Firm income: $50,000

Matched citations: H.R. 7300

Advocate for reauthorization of the family-to-family health information centers program or H.R. 7300, the Family-to-Family Reauthorization Act of 2024.

Client expense: — · Firm income: $50,000

Matched citations: H.R. 7300

-Letter introducing the HAB Coalition and suggesting changes to certain regulations regarding the habilitation benefit in the ACA. -Letter urging the Administration to take further action to ensure that states make vaccination protocols, appointment systems, and related materials accessible to all members of the public, including people with disabilities and those with limited English proficiency. -Letter supporting the Strengthening the Vaccines for Children Program Act of 2021 -Statement of policy principles about how to address challenges in child and adolescent mental health -Statement urging policymakers to reject use of the metric "quality-adjusted life years," which results in discrimination against people with disabilities, chronic conditions, and advanced age. -Letters to Congress and the president about ACA, Medicaid and other health priorities for next COVID legislative package -Letter supporting the bill to permanently reauthorize CHIP, the Childrens Health Insurance Program Permanency (CHIPP) Act, introduced by Rep. Nanette Barragan (D-CA) (H.R. 2347)

Client expense: — · Firm income: $30,000

Matched citations: H.R. 2347

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements, CMS-9912-IFC - Urge HHS rescission of guidance on Medicaid work requirements - Urge immediate HHS rescission of Medicaid work-requirement waivers - Urge approval of GA waiver to extend Medicaid postpartum coverage from 60 days to 6 months - Provide patient-community priorities for not-yet-introduced COVID-19 Legislation, 2/1/21 (increase funding for state Medicaid programs, maintain the maintenance of effort provisions included in the CARES Act, and extend the length of time states can use funds; Require COVID-19 testing, treatment, vaccines, and recovery services to be provided at no-cost to consumers, regardless of their method of coverage; Incentivize states to expand Medicaid; Block the implementation, enforcement, and effect of all final rules that expanded availability of non-compliant plans like short-term, limited-duration and association health plans; Codify limits on non-compliant plans into law; Extend eligibility and provide subsidies for individuals who have lost employer sponsored coverage) - Provide patient-community priorities for not-yet-introduced reconciliation bill (2/2/21) (Increase the availability and generosity of advance premium tax credits (APTCs); increase affordability by changing the APTC benchmark from the current silver plan to a higher-level plan, such as gold; fix the family glitch to ensure that families with unaffordable employer-based coverage can access the Affordable Care Act (ACA)s advance premium tax credits and cost-sharing assistance; secure and strengthen the Medicaid program both now and in the future by: Increasing the Medicaid federal medical assistance percentage (FMAP) to at least 14 percent, preserving the Maintenance of Effort (MOE) provision, icentivizing states to expand Medicaid by providing 100 percent FMAP for the first three years that states expand their Medicaid program, implementing automatic policies that will stabilize the Medicaid program during the current and future economic downturns. - Statement for the Record, House Committee on Energy & Commerce, Comments Regarding Provisions of the Budget Reconciliation Pursuant to S.Con.Res.5 -Statement for the record of the Energy & Commerce hearing on ACA, 3/23/21, Building on the ACA: Legislation to Expand Health Coverage and Lower Costs - Urge CMS to work directly with states and stakeholders to update the Medicaid School Health Technical Assistance Guide and Administrative Claiming Guide by June 1. - Support American Rescue Plan bill (COVID bill) provisions to extend health coverage to more people through incentives for states to expand Medicaid, increased subsidies to purchase private insurance, and other measures. - Support Kids Access to Primary Care Act (H.R. 1025) to facilitate interstate Medicaid coverage - Support of the nomination of Robert Duncan to be on the Medicaid & CHIP Payment and Access Commission (MACPAC), per request of Childrens Hospital Association.

Client expense: — · Firm income: $10,000

Matched citations: H.R. 1025

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements. CMS-9912-IFC -Patient community priorities for not-yet-introduced COVID-19 Legislation, 2/1/21 (increase funding for state Medicaid programs, maintain the maintenance of effort provisions included in the CARES Act, and extend the length of time states can use funds; Require COVID-19 testing, treatment, vaccines, and recovery services to be provided at no-cost to consumers, regardless of their method of coverage; Incentivize states to expand Medicaid; Block the implementation, enforcement, and effect of all final rules that expanded availability of non-compliant plans like short-term, limited-duration and association health plans; Codify limits on non-compliant plans into law; Extend eligibility and provide subsidies for individuals who have lost employer sponsored coverage) - Patient community priorities for not-yet-introduced reconciliation bill (2/2/21) (Increase the availability and generosity of advance premium tax credits (APTCs); increase affordability by changing the APTC benchmark from the current silver plan to a higher-level plan, such as gold; fix the family glitch to ensure that families with unaffordable employer-based coverage can access the Affordable Care Act (ACA)s advance premium tax credits and cost-sharing assistance; secure and strengthen the Medicaid program both now and in the future by: Increasing the Medicaid federal medical assistance percentage (FMAP) to at least 14 percent, preserving the Maintenance of Effort (MOE) provision, icentivizing states to expand Medicaid by providing 100 percent FMAP for the first three years that states expand their Medicaid program, implementing automatic policies that will stabilize the Medicaid program during the current and future economic downturns. - Statement for the Record, Ways and Means Committee, Markup of COVID-19 Relief Measures - supporting ACA subsidy increases and expansion, COBRA subsidies, and subsidies for unemployed indivs. not COBRA-eligible. - Statement for the Record, House Committee on Energy & Commerce, Comments Regarding Provisions of the Budget Reconciliation Pursuant to S.Con.Res.5 - Urge Congress to add $16 million in the reconciliation bill for HRSAs Pediatric Mental Health Care Access Program, which funds Child Psychiatry Access Program models in 21 states, to allow HRSA to expand funding to all states, DC and the territories. Each state gets an average grant of $450,000 so an additional $16 million annually will expand the program nationwide. - Urge CMS to work directly with states and stakeholders to update the Medicaid School Health Technical Assistance Guide and Administrative Claiming Guide by June 1. - Support American Rescue Plan bill (COVID bill) provisions to extend health coverage to more people through incentives for states to expand Medicaid, increased subsidies to purchase private insurance, and other measures. - Support Kids Access to Primary Care Act (H.R. 1025) - Statement for the record of the Energy & Commerce hearing on ACA, 3/23/21, Building on the ACA: Legislation to Expand Health Coverage and Lower Costs - Support of the CHAMPVA Children's Protection Act (to fix a glitch in coverage for children of disabled veterans; they cant keep parents insurance to age 26 like other dependents)

Client expense: — · Firm income: $10,000

Matched citations: H.R. 1025

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements, CMS-9912-IFC - Urge HHS rescission of guidance on Medicaid work requirements - Urge immediate HHS rescission of Medicaid work-requirement waivers - Urge approval of GA waiver to extend Medicaid postpartum coverage from 60 days to 6 months - Provide patient-community priorities for not-yet-introduced COVID-19 Legislation, 2/1/21 (increase funding for state Medicaid programs, maintain the maintenance of effort provisions included in the CARES Act, and extend the length of time states can use funds; Require COVID-19 testing, treatment, vaccines, and recovery services to be provided at no-cost to consumers, regardless of their method of coverage; Incentivize states to expand Medicaid; Block the implementation, enforcement, and effect of all final rules that expanded availability of non-compliant plans like short-term, limited-duration and association health plans; Codify limits on non-compliant plans into law; Extend eligibility and provide subsidies for individuals who have lost employer sponsored coverage) - Provide patient-community priorities for not-yet-introduced reconciliation bill (2/2/21) (Increase the availability and generosity of advance premium tax credits (APTCs); increase affordability by changing the APTC benchmark from the current silver plan to a higher-level plan, such as gold; fix the family glitch to ensure that families with unaffordable employer-based coverage can access the Affordable Care Act (ACA)s advance premium tax credits and cost-sharing assistance; secure and strengthen the Medicaid program both now and in the future by: Increasing the Medicaid federal medical assistance percentage (FMAP) to at least 14 percent, preserving the Maintenance of Effort (MOE) provision, icentivizing states to expand Medicaid by providing 100 percent FMAP for the first three years that states expand their Medicaid program, implementing automatic policies that will stabilize the Medicaid program during the current and future economic downturns. - Statement for the Record, House Committee on Energy & Commerce, Comments Regarding Provisions of the Budget Reconciliation Pursuant to S.Con.Res.5 -Statement for the record of the Energy & Commerce hearing on ACA, 3/23/21, Building on the ACA: Legislation to Expand Health Coverage and Lower Costs - Urge CMS to work directly with states and stakeholders to update the Medicaid School Health Technical Assistance Guide and Administrative Claiming Guide by June 1. - Support American Rescue Plan bill (COVID bill) provisions to extend health coverage to more people through incentives for states to expand Medicaid, increased subsidies to purchase private insurance, and other measures. - Support Kids Access to Primary Care Act (H.R. 1025) to facilitate interstate Medicaid coverage - Support of the nomination of Robert Duncan to be on the Medicaid & CHIP Payment and Access Commission (MACPAC), per request of Childrens Hospital Association.

Client expense: — · Firm income: $10,000

Matched citations: S.Con.Res.5

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements. CMS-9912-IFC -Patient community priorities for not-yet-introduced COVID-19 Legislation, 2/1/21 (increase funding for state Medicaid programs, maintain the maintenance of effort provisions included in the CARES Act, and extend the length of time states can use funds; Require COVID-19 testing, treatment, vaccines, and recovery services to be provided at no-cost to consumers, regardless of their method of coverage; Incentivize states to expand Medicaid; Block the implementation, enforcement, and effect of all final rules that expanded availability of non-compliant plans like short-term, limited-duration and association health plans; Codify limits on non-compliant plans into law; Extend eligibility and provide subsidies for individuals who have lost employer sponsored coverage) - Patient community priorities for not-yet-introduced reconciliation bill (2/2/21) (Increase the availability and generosity of advance premium tax credits (APTCs); increase affordability by changing the APTC benchmark from the current silver plan to a higher-level plan, such as gold; fix the family glitch to ensure that families with unaffordable employer-based coverage can access the Affordable Care Act (ACA)s advance premium tax credits and cost-sharing assistance; secure and strengthen the Medicaid program both now and in the future by: Increasing the Medicaid federal medical assistance percentage (FMAP) to at least 14 percent, preserving the Maintenance of Effort (MOE) provision, icentivizing states to expand Medicaid by providing 100 percent FMAP for the first three years that states expand their Medicaid program, implementing automatic policies that will stabilize the Medicaid program during the current and future economic downturns. - Statement for the Record, Ways and Means Committee, Markup of COVID-19 Relief Measures - supporting ACA subsidy increases and expansion, COBRA subsidies, and subsidies for unemployed indivs. not COBRA-eligible. - Statement for the Record, House Committee on Energy & Commerce, Comments Regarding Provisions of the Budget Reconciliation Pursuant to S.Con.Res.5 - Urge Congress to add $16 million in the reconciliation bill for HRSAs Pediatric Mental Health Care Access Program, which funds Child Psychiatry Access Program models in 21 states, to allow HRSA to expand funding to all states, DC and the territories. Each state gets an average grant of $450,000 so an additional $16 million annually will expand the program nationwide. - Urge CMS to work directly with states and stakeholders to update the Medicaid School Health Technical Assistance Guide and Administrative Claiming Guide by June 1. - Support American Rescue Plan bill (COVID bill) provisions to extend health coverage to more people through incentives for states to expand Medicaid, increased subsidies to purchase private insurance, and other measures. - Support Kids Access to Primary Care Act (H.R. 1025) - Statement for the record of the Energy & Commerce hearing on ACA, 3/23/21, Building on the ACA: Legislation to Expand Health Coverage and Lower Costs - Support of the CHAMPVA Children's Protection Act (to fix a glitch in coverage for children of disabled veterans; they cant keep parents insurance to age 26 like other dependents)

Client expense: — · Firm income: $10,000

Matched citations: S.Con.Res.5

- Response to MCHB RFI on A Blueprint for Change: Guiding Principles for Advancing the System of Services for Children and Youth with Special Health Care Needs (CYSHCN) and Families - Response to MCHB RFI on MCHB strategic plan - Support for maternal health bills (HR 4995, 4996) - Urge Congress to end surprise medical billing in COVID legislation - Comments opposing proposed rule, Securing Updated and Necessary Statutory Evaluations Timely (SUNSET) NPRM (RIN 0991-AC24, Docket No. HHS-OS-2020-0012) - Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements - Comments on 2022 Notice of Benefit and Payment Parameters for Affordable Care Act

Client expense: — · Firm income: $10,000

Matched citations: HR 4995

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements. - Letter supporting the Accelerating Kids Access to Care Act (H.R. 5900 and S. 4717) to facilitate Medicaid provider enrollment across states

Client expense: — · Firm income: $10,000

Matched citations: H.R. 5900

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements. - Letter supporting the Accelerating Kids Access to Care Act (H.R. 5900 and S. 4717) to facilitate Medicaid provider enrollment across states

Client expense: — · Firm income: $10,000

Matched citations: S. 4717

- Response to MCHB RFI on A Blueprint for Change: Guiding Principles for Advancing the System of Services for Children and Youth with Special Health Care Needs (CYSHCN) and Families - Response to MCHB RFI on MCHB strategic plan - Support for maternal health bills (HR 4995, 4996) - Urge Congress to end surprise medical billing in COVID legislation - Comments opposing proposed rule, Securing Updated and Necessary Statutory Evaluations Timely (SUNSET) NPRM (RIN 0991-AC24, Docket No. HHS-OS-2020-0012) - Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements - Comments on 2022 Notice of Benefit and Payment Parameters for Affordable Care Act

Client expense: — · Firm income: $35,000

Matched citations: HR 4995

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements. - Letter supporting the Accelerating Kids Access to Care Act (H.R. 5900 and S. 4717) to facilitate Medicaid provider enrollment across states

Client expense: — · Firm income: $35,000

Matched citations: H.R. 5900

- Comments on Interim Final Rule with Comments on Families First Act Medicaid maintenance-of-effort requirements and 1332 waiver requirements. - Letter supporting the Accelerating Kids Access to Care Act (H.R. 5900 and S. 4717) to facilitate Medicaid provider enrollment across states

Client expense: — · Firm income: $35,000

Matched citations: S. 4717

Letter urging Members of Congress to cosponsor H.R. 2073 and S. 110 to make permanent the 7.5% threshold for medical expense deductions, and support an extension of the 7.5% threshold in the end-of-year legislative package.

Client expense: — · Firm income: —

Matched citations: H.R. 2073

Letter urging Members of Congress to cosponsor H.R. 2073 and S. 110 to make permanent the 7.5% threshold for medical expense deductions, and support an extension of the 7.5% threshold in the end-of-year legislative package.

Client expense: — · Firm income: —

Matched citations: S. 110

- Support for reauthorization of the Family-to-Family Health Information Center grant program (H.R. 2822; S. 1647) - RFI on Sec. 1332 guidance (for waivers of ACA requirements) - Autism CARES Act (Urging support for adding self-advocates to IACC) - Letter to CMS opposing 1115 waivers for block grants or per capita caps - Letter to Congress in general support of the Americans with Disabilities Act - Proposed rule on Sec. 1557 of ACA

Client expense: — · Firm income: $10,000

Matched citations: H.R. 2822

- Support for reauthorization of the Family-to-Family Health Information Center grant program (H.R. 2822; S. 1647) - RFI on Sec. 1332 guidance (for waivers of ACA requirements) - Autism CARES Act (Urging support for adding self-advocates to IACC) - Letter to CMS opposing 1115 waivers for block grants or per capita caps - Letter to Congress in general support of the Americans with Disabilities Act - Proposed rule on Sec. 1557 of ACA

Client expense: — · Firm income: $10,000

Matched citations: S. 1647

- Support for reauthorization of the Family-to-Family Health Information Center grant program (H.R. 2822; S. 1647) - Letter supporting of Lifespan Respite Care Reauthorization Act - Letter supporting HR 1010, legislation to provide that the rule entitled Short-Term, Limited Duration Insurance shall have no force or effect. - Letter to HRSA calling on them to focus greater attention on behavioral health workforce projections for children, adolescents, and young adults. - Letter supporting for H.R. 776 and S. 1173, the Emergency Medical Services for Children Program Reauthorization Act of 2019. - Response to CMS RFI re: sale of insurance across state lines - Letter supporting Autism CARES Act. - Letter supporting School-Based Health Center Reauthorization Act

Client expense: — · Firm income: —

Matched citations: HR 1010

- Support for reauthorization of the Family-to-Family Health Information Center grant program (H.R. 2822; S. 1647) - Letter supporting of Lifespan Respite Care Reauthorization Act - Letter supporting HR 1010, legislation to provide that the rule entitled Short-Term, Limited Duration Insurance shall have no force or effect. - Letter to HRSA calling on them to focus greater attention on behavioral health workforce projections for children, adolescents, and young adults. - Letter supporting for H.R. 776 and S. 1173, the Emergency Medical Services for Children Program Reauthorization Act of 2019. - Response to CMS RFI re: sale of insurance across state lines - Letter supporting Autism CARES Act. - Letter supporting School-Based Health Center Reauthorization Act

Client expense: — · Firm income: —

Matched citations: H.R. 2822

- Support for reauthorization of the Family-to-Family Health Information Center grant program (H.R. 2822; S. 1647) - Letter supporting of Lifespan Respite Care Reauthorization Act - Letter supporting HR 1010, legislation to provide that the rule entitled Short-Term, Limited Duration Insurance shall have no force or effect. - Letter to HRSA calling on them to focus greater attention on behavioral health workforce projections for children, adolescents, and young adults. - Letter supporting for H.R. 776 and S. 1173, the Emergency Medical Services for Children Program Reauthorization Act of 2019. - Response to CMS RFI re: sale of insurance across state lines - Letter supporting Autism CARES Act. - Letter supporting School-Based Health Center Reauthorization Act

Client expense: — · Firm income: —

Matched citations: H.R. 776