NATIONAL ORGANIZATION OF RARE DISORDERS, INC

Lobbying Spend

—

Filings

Firms Hired

Active Period

2025–2026

Lobbying Spend by Year

Client-reported lobbying expenses on LDA filings

Year	Lobbying Spend	Filings	Firms
2026	—	3	1
2025	—	4	1

Lobbying firms retained by this client; amounts are client-reported expenses when available

Firm Name	Reported Spend	Filings
JAMES P. KEESE	—	7

Government entities explicitly identified as targets in LDA filings

Government Body	Filings
Centers For Disease Control & Prevention (CDC)	6
Food & Drug Administration (FDA)	6
HOUSE OF REPRESENTATIVES	6
Health & Human Services, Dept of (HHS)	6
Natl Institutes of Health (NIH)	6
SENATE	6

Most frequently reported lobbying issues

NATIONAL ORGANIZATION OF RARE DISORDERS, INC — Lobbying Disclosure | Poliscope