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Reported covered position: None
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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
Preserving Employee Wellness Programs Act
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 244: Consolidated Appropriations Act, 2017; provisions related to Health and Human Services appropriations HR 1313: Preserving Employee Wellness Programs Act; provisions related to Genetic Information Nondiscrimination Act of 2008 and employee wellness programs HR 1628: American Health Care Act of 2017; all provisions H.R.5054 - (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 2956: (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 3040: (114th Congress) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017; provisions related to National Institutes of Health, Heath Resources and Services Administration and Centers for Disease Control and Prevention appropriations Discussions related to Better Care Reconciliation Act; all provisions Discussions related to Fiscal Year 2018 Labor, Health and Human Services, and Education Appropriations; provisions related to funding for National Institutes of Health, Health and Human Services, Health Resources and Services Administration and Centers for Disease Control and Prevention and newborn screening funding Discussions related to Fiscal Year 2018 Agriculture Appropriations; provisions related to Food and Food and Drug Administration Discussions related to Health Care Reform
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2017 · third_quarter · Q3
H.R. 878: Right to Try Act of 2017; all provisions H.R. 1628: American Health Care Act of 2017/Better Care Reconciliation Act (Senate); and Graham-Cassidy-Heller-Johnson proposed amendment (S. Amdt. 1030); all provisions H.R. 3921: HEALTHY KIDS Act; all provisions S. 204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017; all provisions S. 1569: A bill to amend the Public Health Service Act to eliminate the non-application of certain State waiver provisions to Members of Congress and congressional staff. (Better Care Reconciliation Act); all provisions Childrens Health Insurance Program (CHIP) Reauthorization; all provisions General discussions regarding healthcare reform
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Source: Senate LDA
American Health Care Act of 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
H.R. 878: Right to Try Act of 2017; all provisions H.R. 1628: American Health Care Act of 2017/Better Care Reconciliation Act (Senate); and Graham-Cassidy-Heller-Johnson proposed amendment (S. Amdt. 1030); all provisions H.R. 3921: HEALTHY KIDS Act; all provisions S. 204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017; all provisions S. 1569: A bill to amend the Public Health Service Act to eliminate the non-application of certain State waiver provisions to Members of Congress and congressional staff. (Better Care Reconciliation Act); all provisions Childrens Health Insurance Program (CHIP) Reauthorization; all provisions General discussions regarding healthcare reform
American Health Care Act of 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 244: Consolidated Appropriations Act, 2017; provisions related to Health and Human Services appropriations HR 1313: Preserving Employee Wellness Programs Act; provisions related to Genetic Information Nondiscrimination Act of 2008 and employee wellness programs HR 1628: American Health Care Act of 2017; all provisions H.R.5054 - (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 2956: (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 3040: (114th Congress) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017; provisions related to National Institutes of Health, Heath Resources and Services Administration and Centers for Disease Control and Prevention appropriations Discussions related to Better Care Reconciliation Act; all provisions Discussions related to Fiscal Year 2018 Labor, Health and Human Services, and Education Appropriations; provisions related to funding for National Institutes of Health, Health and Human Services, Health Resources and Services Administration and Centers for Disease Control and Prevention and newborn screening funding Discussions related to Fiscal Year 2018 Agriculture Appropriations; provisions related to Food and Food and Drug Administration Discussions related to Health Care Reform
American Health Care Act of 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 1628: American Health Care Act of 2017: all provisions S.191: Patient Freedom Act of 2017; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure S.222 - Obamacare Replacement Act; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure Discussions related to health care reform as related to the rare disease community Discussions related to the National Institutes of Health and Food and Drug Administration appropriations Discussions related to Affordable Care Act reform proposals including Paul Ryans A Better Way, provisions related to high risk pools, protections for those with pre-existing conditions, Medicaid funding and Medicaid expansion Discussions related to Health Care Access issues for people with Cystic Fibrosis
Consolidated Appropriations Act, 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 244: Consolidated Appropriations Act, 2017; provisions related to Health and Human Services appropriations HR 1313: Preserving Employee Wellness Programs Act; provisions related to Genetic Information Nondiscrimination Act of 2008 and employee wellness programs HR 1628: American Health Care Act of 2017; all provisions H.R.5054 - (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 2956: (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 3040: (114th Congress) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017; provisions related to National Institutes of Health, Heath Resources and Services Administration and Centers for Disease Control and Prevention appropriations Discussions related to Better Care Reconciliation Act; all provisions Discussions related to Fiscal Year 2018 Labor, Health and Human Services, and Education Appropriations; provisions related to funding for National Institutes of Health, Health and Human Services, Health Resources and Services Administration and Centers for Disease Control and Prevention and newborn screening funding Discussions related to Fiscal Year 2018 Agriculture Appropriations; provisions related to Food and Food and Drug Administration Discussions related to Health Care Reform
H.R. 878: Right to Try Act of 2017; all provisions H.R. 1628: American Health Care Act of 2017/Better Care Reconciliation Act (Senate); and Graham-Cassidy-Heller-Johnson proposed amendment (S. Amdt. 1030); all provisions H.R. 3921: HEALTHY KIDS Act; all provisions S. 204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017; all provisions S. 1569: A bill to amend the Public Health Service Act to eliminate the non-application of certain State waiver provisions to Members of Congress and congressional staff. (Better Care Reconciliation Act); all provisions Childrens Health Insurance Program (CHIP) Reauthorization; all provisions General discussions regarding healthcare reform
Right to Try Act of 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
H.R. 878: Right to Try Act of 2017; all provisions H.R. 1628: American Health Care Act of 2017/Better Care Reconciliation Act (Senate); and Graham-Cassidy-Heller-Johnson proposed amendment (S. Amdt. 1030); all provisions H.R. 3921: HEALTHY KIDS Act; all provisions S. 204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017; all provisions S. 1569: A bill to amend the Public Health Service Act to eliminate the non-application of certain State waiver provisions to Members of Congress and congressional staff. (Better Care Reconciliation Act); all provisions Childrens Health Insurance Program (CHIP) Reauthorization; all provisions General discussions regarding healthcare reform
A bill to amend the Public Health Service Act to eliminate the non-application of certain State waiver provisions to Members of Congress and congressional staff.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
H.R. 878: Right to Try Act of 2017; all provisions H.R. 1628: American Health Care Act of 2017/Better Care Reconciliation Act (Senate); and Graham-Cassidy-Heller-Johnson proposed amendment (S. Amdt. 1030); all provisions H.R. 3921: HEALTHY KIDS Act; all provisions S. 204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017; all provisions S. 1569: A bill to amend the Public Health Service Act to eliminate the non-application of certain State waiver provisions to Members of Congress and congressional staff. (Better Care Reconciliation Act); all provisions Childrens Health Insurance Program (CHIP) Reauthorization; all provisions General discussions regarding healthcare reform
Patient Freedom Act of 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 1628: American Health Care Act of 2017: all provisions S.191: Patient Freedom Act of 2017; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure S.222 - Obamacare Replacement Act; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure Discussions related to health care reform as related to the rare disease community Discussions related to the National Institutes of Health and Food and Drug Administration appropriations Discussions related to Affordable Care Act reform proposals including Paul Ryans A Better Way, provisions related to high risk pools, protections for those with pre-existing conditions, Medicaid funding and Medicaid expansion Discussions related to Health Care Access issues for people with Cystic Fibrosis
Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
H.R. 878: Right to Try Act of 2017; all provisions H.R. 1628: American Health Care Act of 2017/Better Care Reconciliation Act (Senate); and Graham-Cassidy-Heller-Johnson proposed amendment (S. Amdt. 1030); all provisions H.R. 3921: HEALTHY KIDS Act; all provisions S. 204: Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017; all provisions S. 1569: A bill to amend the Public Health Service Act to eliminate the non-application of certain State waiver provisions to Members of Congress and congressional staff. (Better Care Reconciliation Act); all provisions Childrens Health Insurance Program (CHIP) Reauthorization; all provisions General discussions regarding healthcare reform
Obamacare Replacement Act
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 1628: American Health Care Act of 2017: all provisions S.191: Patient Freedom Act of 2017; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure S.222 - Obamacare Replacement Act; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure Discussions related to health care reform as related to the rare disease community Discussions related to the National Institutes of Health and Food and Drug Administration appropriations Discussions related to Affordable Care Act reform proposals including Paul Ryans A Better Way, provisions related to high risk pools, protections for those with pre-existing conditions, Medicaid funding and Medicaid expansion Discussions related to Health Care Access issues for people with Cystic Fibrosis
Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 244: Consolidated Appropriations Act, 2017; provisions related to Health and Human Services appropriations HR 1313: Preserving Employee Wellness Programs Act; provisions related to Genetic Information Nondiscrimination Act of 2008 and employee wellness programs HR 1628: American Health Care Act of 2017; all provisions H.R.5054 - (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 2956: (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 3040: (114th Congress) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017; provisions related to National Institutes of Health, Heath Resources and Services Administration and Centers for Disease Control and Prevention appropriations Discussions related to Better Care Reconciliation Act; all provisions Discussions related to Fiscal Year 2018 Labor, Health and Human Services, and Education Appropriations; provisions related to funding for National Institutes of Health, Health and Human Services, Health Resources and Services Administration and Centers for Disease Control and Prevention and newborn screening funding Discussions related to Fiscal Year 2018 Agriculture Appropriations; provisions related to Food and Food and Drug Administration Discussions related to Health Care Reform
Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 244: Consolidated Appropriations Act, 2017; provisions related to Health and Human Services appropriations HR 1313: Preserving Employee Wellness Programs Act; provisions related to Genetic Information Nondiscrimination Act of 2008 and employee wellness programs HR 1628: American Health Care Act of 2017; all provisions H.R.5054 - (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 2956: (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 3040: (114th Congress) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017; provisions related to National Institutes of Health, Heath Resources and Services Administration and Centers for Disease Control and Prevention appropriations Discussions related to Better Care Reconciliation Act; all provisions Discussions related to Fiscal Year 2018 Labor, Health and Human Services, and Education Appropriations; provisions related to funding for National Institutes of Health, Health and Human Services, Health Resources and Services Administration and Centers for Disease Control and Prevention and newborn screening funding Discussions related to Fiscal Year 2018 Agriculture Appropriations; provisions related to Food and Food and Drug Administration Discussions related to Health Care Reform
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
HR 244: Consolidated Appropriations Act, 2017; provisions related to Health and Human Services appropriations HR 1313: Preserving Employee Wellness Programs Act; provisions related to Genetic Information Nondiscrimination Act of 2008 and employee wellness programs HR 1628: American Health Care Act of 2017; all provisions H.R.5054 - (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 2956: (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 3040: (114th Congress) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017; provisions related to National Institutes of Health, Heath Resources and Services Administration and Centers for Disease Control and Prevention appropriations Discussions related to Better Care Reconciliation Act; all provisions Discussions related to Fiscal Year 2018 Labor, Health and Human Services, and Education Appropriations; provisions related to funding for National Institutes of Health, Health and Human Services, Health Resources and Services Administration and Centers for Disease Control and Prevention and newborn screening funding Discussions related to Fiscal Year 2018 Agriculture Appropriations; provisions related to Food and Food and Drug Administration Discussions related to Health Care Reform
Food and Drug Administration Safety Over Sequestration Act of 2013
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
Board on the Hill lobby day, Affordable Care Act Implementation, Medicaid, Medicare, budget and appropriations, National Institutes of Health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
Food and Drug Administration Safety Over Sequestration Act of 2013
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
Board on the Hill lobby day, Affordable Care Act Implemention, Medicaid, Medicare, budget and appropriations, National Institutes of Health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
Food and Drug Administration Safety Over Sequestration Act of 2013
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
Board on the Hill lobby day, Affordable Care Act Implementation, Medicaid, Medicare, budget and appropriations, National Institutes of health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
Food and Drug Administration Safety Over Sequestration Act of 2013
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
Board on the Hill lobby day, Affordable Care Act Implementation, Medicaid, Medicare, budget and appropriations, National Institutes of health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
House, Senate, FDA, Energy and Commerce and Labor-HHS Committee on Prescription Drug User Fee Act Agreement (PDUFA V), HR 4156, and S 2218; funding for National Center for Advancing Translational Sciences (NCATS) at NIH, FDA funding, NIH funding; FY13 Appropriations and Sequestration; CMS/Medicaid; Congressional CF Caucus; Patient Protection and Affordable Care Act and general health reform issues; Teen Advocacy Day and May Board on the Hill lobby days
House, Senate, FDA on EXPERRT Act (HR 4156, S 2218), Energy and Commerce and Labor-HHS Committee on Prescription Drug User Fee Act Agreement (PDUFA V), funding for National Center for Advancing Translational Sciences (NCATS) at NIH, FDA funding, NIH funding, Appropriations testimony, FTC on MedCo ExpressScripts merger, CMS on Medicare and Medicaid, Congressional CF Caucus, HHS comments on health reform and other regulations, FDA on Kalydeco
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
To amend title 38, United States Code, to provide for penalties for employees of the Veterans Health Administration who intentionally fail to follow infection control practices.
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
Improving Access to Clinical Trials Act of 2009
Client: CYSTIC FIBROSIS FOUNDATION · Firm: CYSTIC FIBROSIS FOUNDATION
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
2017 · second_quarter · Q2
HR 244: Consolidated Appropriations Act, 2017; provisions related to Health and Human Services appropriations HR 1313: Preserving Employee Wellness Programs Act; provisions related to Genetic Information Nondiscrimination Act of 2008 and employee wellness programs HR 1628: American Health Care Act of 2017; all provisions H.R.5054 - (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 2956: (114th Congress) Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2017; provisions related to Food and Drug Administration appropriations S. 3040: (114th Congress) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017; provisions related to National Institutes of Health, Heath Resources and Services Administration and Centers for Disease Control and Prevention appropriations Discussions related to Better Care Reconciliation Act; all provisions Discussions related to Fiscal Year 2018 Labor, Health and Human Services, and Education Appropriations; provisions related to funding for National Institutes of Health, Health and Human Services, Health Resources and Services Administration and Centers for Disease Control and Prevention and newborn screening funding Discussions related to Fiscal Year 2018 Agriculture Appropriations; provisions related to Food and Food and Drug Administration Discussions related to Health Care Reform
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2017 · first_quarter · Q1
HR 1628: American Health Care Act of 2017: all provisions S.191: Patient Freedom Act of 2017; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure S.222 - Obamacare Replacement Act; provisions related to preexisting conditions, benefits, Medicaid financing, subsidy structure Discussions related to health care reform as related to the rare disease community Discussions related to the National Institutes of Health and Food and Drug Administration appropriations Discussions related to Affordable Care Act reform proposals including Paul Ryans A Better Way, provisions related to high risk pools, protections for those with pre-existing conditions, Medicaid funding and Medicaid expansion Discussions related to Health Care Access issues for people with Cystic Fibrosis
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2014 · first_quarter · RA
Board on the Hill lobby day, Affordable Care Act Implementation, Medicaid, Medicare, budget and appropriations, National Institutes of Health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2013 · fourth_quarter · 4A
Board on the Hill lobby day, Affordable Care Act Implementation, Medicaid, Medicare, budget and appropriations, National Institutes of health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2013 · fourth_quarter · Q4
Board on the Hill lobby day, Affordable Care Act Implementation, Medicaid, Medicare, budget and appropriations, National Institutes of health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2013 · fourth_quarter · Q4
Board on the Hill lobby day, Affordable Care Act Implemention, Medicaid, Medicare, budget and appropriations, National Institutes of Health and Food and Drug Administration funding, HR 2725 the FDA SOS Act
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2013 · third_quarter · Q3
Funding for the National Institutes of Health and Food and Drug Administration, Social Security Disability Insurance proposed eligibility changes, Congressional Cystic Fibrosis Caucus, Hawaii Care Center advocacy, access to cystic fibrosis care under the Patient Protection and Affordable Care Act
Filing targets: Army, Dept of (Other), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2013 · second_quarter · Q2
Teen Advocacy Day, Board on the Hill, funding for the National Institutes of Health and Food and Drug Administration, Social Security Disability Insurance proposed eligibility changes, Congressional Cystic Fibrosis Caucus, Hawaii Care Center advocacy, health reform access to care measures
Filing targets: Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2013 · first_quarter · Q1
Board on the Hill and March on the Hill advocacy days, Sequestration, NIH-FDA Budget, FDA Breakthrough Designation, Prescription Drug User Fee Act Congressional follow up, International CF project, Lasker award congressional support, federal budget and appropriations, Social Security Disability Insurance eligibility changes, Medicaid cost-sharing
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2012 · fourth_quarter · Q4
American Thoracic Society briefing, FDA, NIH, Sequestration, Fiscal Cliff and Budget, Hawaii Care Center access for civilians, Rare Disease Legislative Advocates briefing, international patient visa issue, Board on the Hill event, ACA comments (Essential Health Benefits, Medicaid Expansion, Insurance Exchanges), CMS Comments
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2012 · third_quarter · Q3
FDA (EXPERRT, PDUFA) follow up, Board on the Hill, Appropriations and Sequestration (NIH & FDA), Teen Advocacy Day follow up, Congressional CF Caucus, Congressional Briefings, Make Every Breath Count grassroots campaign, 340B, Meeting with White House Science and Technology office, communications to grassroots advocates, Essential Health Benefits & Exchanges under PPACA, coverage for Kalydeco, Medicaid drug coverage
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, White House Office
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2012 · second_quarter · Q2
House, Senate, FDA, Energy and Commerce and Labor-HHS Committee on Prescription Drug User Fee Act Agreement (PDUFA V), HR 4156, and S 2218; funding for National Center for Advancing Translational Sciences (NCATS) at NIH, FDA funding, NIH funding; FY13 Appropriations and Sequestration; CMS/Medicaid; Congressional CF Caucus; Patient Protection and Affordable Care Act and general health reform issues; Teen Advocacy Day and May Board on the Hill lobby days
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2012 · first_quarter · Q1
House, Senate, FDA on EXPERRT Act (HR 4156, S 2218), Energy and Commerce and Labor-HHS Committee on Prescription Drug User Fee Act Agreement (PDUFA V), funding for National Center for Advancing Translational Sciences (NCATS) at NIH, FDA funding, NIH funding, Appropriations testimony, FTC on MedCo ExpressScripts merger, CMS on Medicare and Medicaid, Congressional CF Caucus, HHS comments on health reform and other regulations, FDA on Kalydeco
Filing targets: Centers For Medicare and Medicaid Services (CMS), Federal Trade Commission (FTC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2011 · fourth_quarter · Q4
Medicaid, Medicare, Deficit Reduction Committee-re: protecting Medicaid from budget cuts, PDUFA, FTC on Medco Express Scripts merger, review of FDA reform and messaging, NIH and FDA funding, NCATS establishment at NIH, TREAT Act, Health Care Reform implementation, strategic planning for grassroots agenda
Filing targets: Centers For Medicare and Medicaid Services (CMS), Federal Trade Commission (FTC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2011 · third_quarter · Q3
NIH, FDA, L-HHS Appropriations; NCATS establishment and funding; CMS, SSA and Congress on Medicare and Medicaid funding and coverage decisions; CF Caucus support; Energy and Commerce Committee on PDUFA and general strategies; HHS comments and statements on health reform and other regulations
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA)
CYSTIC FIBROSIS FOUNDATION via CYSTIC FIBROSIS FOUNDATION
2011 · third_quarter · RA
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care
research funding, rare disease awareness, HR 2866 the Improving Access to Clinical Trials Act, HR 2965 Reauthorizing the Small Business Innovation and Research Act, food and drug safety, access to medical care