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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2026 · third_quarter · Q3
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) Impact of restructuring and reorganization of federal public health and research agencies FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding FY 2027 funding for Pediatric Specialty Loan Repayment Program Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 (H.R.9260) FY2027 Continuing Appropriations Act (through 12/04/2026)(H.R. 9770) FY2027 Continuing Appropriations and Extensions Act (through 12/11/2026)(H.R. 6500) OMB proposed Regulation for Federal Financial Assistance (OMB-2026-0034)
Source: Senate LDA
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Clinical Trial Modernization Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Issues impacting laboratory testing and pediatric reference intervals (PRIs) Clinical trials regulations and coverage Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Issues related to vaccines and immunization practices for individuals with hematologic disorders OMB proposed Regulation for Federal Financial Assistance (OMB-2026-0034) Clinical Trial Modernization Act (H.R. 3521 / S. 4440)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371) FY 2026 Consolidated Defense, LHHSED, Nat. Sec.-State, THUD, FSGG Appropriations Act (H.R. 7148) FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding
Continuing Appropriations, Agriculture, Legislative Branch, Military Construction and Veterans Affairs, and Extensions Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371) FY 2026 Consolidated Defense, LHHSED, Nat. Sec.-State, THUD, FSGG Appropriations Act (H.R. 7148) FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding
Continuing Appropriations and Extensions Act, 2027
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) Impact of restructuring and reorganization of federal public health and research agencies FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding FY 2027 funding for Pediatric Specialty Loan Repayment Program Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 (H.R.9260) FY2027 Continuing Appropriations Act (through 12/04/2026)(H.R. 9770) FY2027 Continuing Appropriations and Extensions Act (through 12/11/2026)(H.R. 6500) OMB proposed Regulation for Federal Financial Assistance (OMB-2026-0034)
Consolidated Appropriations Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371) FY 2026 Consolidated Defense, LHHSED, Nat. Sec.-State, THUD, FSGG Appropriations Act (H.R. 7148) FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding
Medicare Patient Access and Practice Stabilization Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Medicare Patient Access and Practice Stabilization Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Medicare Patient Access and Practice Stabilization Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) Impact of restructuring and reorganization of federal public health and research agencies FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding FY 2027 funding for Pediatric Specialty Loan Repayment Program Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 (H.R.9260) FY2027 Continuing Appropriations Act (through 12/04/2026)(H.R. 9770) FY2027 Continuing Appropriations and Extensions Act (through 12/11/2026)(H.R. 6500) OMB proposed Regulation for Federal Financial Assistance (OMB-2026-0034)
Improving Access to Transfusion Care for Hospice Patients Act of 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Continuing Appropriations Act, 2027
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) Impact of restructuring and reorganization of federal public health and research agencies FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding FY 2027 funding for Pediatric Specialty Loan Repayment Program Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 (H.R.9260) FY2027 Continuing Appropriations Act (through 12/04/2026)(H.R. 9770) FY2027 Continuing Appropriations and Extensions Act (through 12/11/2026)(H.R. 6500) OMB proposed Regulation for Federal Financial Assistance (OMB-2026-0034)
Expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371) FY 2026 Consolidated Defense, LHHSED, Nat. Sec.-State, THUD, FSGG Appropriations Act (H.R. 7148) FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding
Clinical Trial Modernization Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Issues impacting laboratory testing and pediatric reference intervals (PRIs) Clinical trials regulations and coverage Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Issues related to vaccines and immunization practices for individuals with hematologic disorders OMB proposed Regulation for Federal Financial Assistance (OMB-2026-0034) Clinical Trial Modernization Act (H.R. 3521 / S. 4440)
Sickle Cell Disease Treatment Centers Act of 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Sickle Cell Care Expansion Act of 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Establishing the congressional budget for the United States Government for fiscal year 2025 and setting forth the appropriate budgetary levels for fiscal years 2026 through 2034.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2025 and FY 2026 NIH funding FY 2025 and FY 2026 AHRQ funding FY 2025 and FY 2026 CDC funding FY 2025 and FY 2026 funding for CDC Sickle Cell Data Collection program FY 2025 and FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2025 and FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies FY2025 Full-Year Continuing Appropriations and Extensions Act (through 9/30/2025) (H.R. 1968) FY2025 Budget Resolution (H. Con. Res. 14/S. Con. Res. 7)
Establishing the congressional budget for the United States Government for fiscal year 2025 and setting forth the appropriate budgetary levels for fiscal years 2026 through 2034.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology FY2025 Budget Resolution (H. Con. Res. 14/S. Con. Res. 7) Sickle Cell Disease Comprehensive Care Act (S. 721)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies One Big Beautiful Bill Act (H.R. 1)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Sickle Cell Disease Comprehensive Care Act (S. 721) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721) One Big Beautiful Bill Act (H.R. 1) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Full-Year Continuing Appropriations and Extensions Act, 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2025 and FY 2026 NIH funding FY 2025 and FY 2026 AHRQ funding FY 2025 and FY 2026 CDC funding FY 2025 and FY 2026 funding for CDC Sickle Cell Data Collection program FY 2025 and FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2025 and FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies FY2025 Full-Year Continuing Appropriations and Extensions Act (through 9/30/2025) (H.R. 1968) FY2025 Budget Resolution (H. Con. Res. 14/S. Con. Res. 7)
Born-Alive Abortion Survivors Protection Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Born-Alive Abortion Survivors Protection Act (H.R. 21/S. 6) Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587)
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371)
Continuing Appropriations, Agriculture, Legislative Branch, Military Construction and Veterans Affairs, and Extensions Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371)
Medicare Patient Access and Practice Stabilization Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Sickle Cell Disease Comprehensive Care Act (S. 721) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Medicare Patient Access and Practice Stabilization Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology FY2025 Budget Resolution (H. Con. Res. 14/S. Con. Res. 7) Sickle Cell Disease Comprehensive Care Act (S. 721)
Medicare Patient Access and Practice Stabilization Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Medicare Patient Access and Practice Stabilization Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
CONNECT for Health Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Seniors’ Timely Access to Care Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Sickle Cell Disease Comprehensive Care Act (S. 721) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Improving Access to Transfusion Care for Hospice Patients Act of 2025
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721) One Big Beautiful Bill Act (H.R. 1) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587)
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371)
Born-Alive Abortion Survivors Protection Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Born-Alive Abortion Survivors Protection Act (H.R. 21/S. 6) Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721) One Big Beautiful Bill Act (H.R. 1) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Sickle Cell Disease Comprehensive Care Act (S. 721) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Sickle Cell Disease Comprehensive Care Act
Client: AMERICAN SOCIETY OF HEMATOLOGY · Firm: AMERICAN SOCIETY OF HEMATOLOGY
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Issues impacting laboratory testing and pediatric reference intervals (PRIs) Clinical trials regulations and coverage Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Issues related to vaccines and immunization practices for individuals with hematologic disorders OMB proposed Regulation for Federal Financial Assistance (OMB-2026-0034) Clinical Trial Modernization Act (H.R. 3521 / S. 4440)
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Sickle Cell Care Expansion Act of 2026 (S. 5489) Sickle Cell Disease Treatment Centers Act of 2026 (S. 5488) Resolutions expressing support for the designation of September 2026 as "Sickle Cell Disease Awareness Month" (H.Res. 1577 / S.Res. 940)
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations for autologous stem cell transplantation for multiple myeloma Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Community engagement requirements of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936 / H.R. 9703) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Homeland Security, Dept of (DHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, Social Security Administration (SSA), Veterans Affairs, Dept of (VA), White House Office
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2026 · second_quarter · Q2
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) Impact of restructuring and reorganization of federal public health and research agencies FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding FY 2027 funding for Pediatric Specialty Loan Repayment Program
Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Issues related to H-1B visas for physician workforce Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Issues related to CAR-T/cellular and gene therapies Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Issues impacting laboratory testing and pediatric reference intervals (PRIs) Clinical trials regulations and coverage Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Issues related to vaccines and immunization practices for individuals with hematologic disorders
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Homeland Security, Dept of (DHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, Social Security Administration (SSA), Veterans Affairs, Dept of (VA), White House Office
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2026 · first_quarter · Q1
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Women's health and research Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Issues related to vaccines and immunization practices for individuals with hematologic disorders
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Coverage of blood transfusions under Medicare hospice benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Issues related to Social Security Administration disability evaluations for sickle cell disease Impact of Medicaid funding cuts on hematology Medicare codes for Chronic Care Management (CCM) and Principal Care Management (PCM) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Issues related to H-1B visas for physician workforce
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371) FY 2026 Consolidated Defense, LHHSED, Nat. Sec.-State, THUD, FSGG Appropriations Act (H.R. 7148) FY 2027 NIH funding FY 2027 AHRQ funding FY 2027 CDC funding FY 2027 funding for CDC Sickle Cell Data Collection program FY 2027 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2027 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2027 Department of Veterans Affairs research funding
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Homeland Security, Dept of (DHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, Social Security Administration (SSA), Veterans Affairs, Dept of (VA), White House Office
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2025 · fourth_quarter · Q4
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587) FY2026 Continuing Appropriations, Agriculture, Leg. Branch & Extensions Act (through 01/30/2026) (H.R. 5371)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Women's health and research Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting laboratory developed tests (LDTs) Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Issues related to vaccines and immunization practices for individuals with hematologic disorders
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telehealth and extension of telehealth flexibilities Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261)
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Improving Seniors Timely Access to Care Act (H.R. 3514 / S. 1816) CONNECT for Health Act (H.R. 4206 / S. 1261) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Issues related to H-1B visas for physician workforce
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Homeland Security, Dept of (DHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2025 · third_quarter · Q3
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 (H.R. 5304 / S. 2587)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Women's health and research Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting laboratory developed tests (LDTs) Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Issues related to vaccines and immunization practices for individuals with hematologic disorders
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and hematology Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721 / H.R. 5178) One Big Beautiful Bill Act (H.R. 1) Implementation of One Big Beautiful Bill Act (Public Law No. 119-21) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936) Extension of Affordable Care Act enhanced advance premium tax credits Issues related to H-1B visas for physician workforce
Issues related to H-1B visas for physician workforce
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Homeland Security, Dept of (DHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2025 · second_quarter · Q2
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Access to safe and effective vaccines Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721) One Big Beautiful Bill Act (H.R. 1) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2026 NIH funding FY 2026 AHRQ funding FY 2026 CDC funding FY 2026 funding for CDC Sickle Cell Data Collection program FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies One Big Beautiful Bill Act (H.R. 1)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2025 · first_quarter · Q1
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2025 and FY 2026 NIH funding FY 2025 and FY 2026 AHRQ funding FY 2025 and FY 2026 CDC funding FY 2025 and FY 2026 funding for CDC Sickle Cell Data Collection program FY 2025 and FY 2026 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2025 and FY 2026 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Impact of restructuring and reorganization of federal public health and research agencies FY2025 Full-Year Continuing Appropriations and Extensions Act (through 9/30/2025) (H.R. 1968) FY2025 Budget Resolution (H. Con. Res. 14/S. Con. Res. 7)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Women's health and research Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting laboratory developed tests (LDTs) Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2024 · fourth_quarter · Q4
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Issues related to healthcare workforce Sickle Cell Care Expansion Act (S. 1423/H.R. 3100) Life Saving Leave Act (H.R. 3024) Cancer Drug Parity Act (S. 2039/H.R. 6301) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (S. 1852/H.R. 3884) Issues impacting drug shortages Sickle cell disease quality measures House discussion draft of Stop Drug Shortages Act Let Doctors Provide Reproductive Health Care Act (H.R. 2907/S. 1297) Iron Deficiency Education and Awareness (IDEA) Act (H.R. 6746) Sickle Cell Disease Treatment Centers Act (H.R. 9872/S. 5226) Sickle Cell Disease Comprehensive Care Act (H.R. 7432/S. 5097) FDA guidance impacting hematology
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2024 · third_quarter · Q3
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Issues related to healthcare workforce Sickle Cell Care Expansion Act (S. 1423/H.R. 3100) Life Saving Leave Act (H.R. 3024) Cancer Drug Parity Act (S. 2039/H.R. 6301) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (S. 1852/H.R. 3884) Issues impacting drug shortages Sickle cell disease quality measures House discussion draft of Stop Drug Shortages Act Let Doctors Provide Reproductive Health Care Act (H.R. 2907/S. 1297) Iron Deficiency Education and Awareness (IDEA) Act (H.R. 6746) Sickle Cell Disease Treatment Centers Act (H.R. 9872/S. 5226) Sickle Cell Disease Comprehensive Care Act (H.R. 7432/S. 5097)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2024 · second_quarter · Q2
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H) White House Initiative on Womens Health Research re: priority research areas Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting laboratory developed tests (LDTs) Issues impacting drug shortages
Coverage of blood transfusions under Medicare Hospice Benefit Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Strengthening Medicare for Patients and Providers Act (H.R. 2474) Resident Physician Shortage Reduction Act (S. 1302) CONNECT for Health Act (S. 2016/ H.R. 4189) Improving Access to Transfusion Care for Hospice Patients Act (S. 2186) Provider Reimbursement Stability Act of 2023 (H.R. 6371) Telehealth Modernization Act (H.R. 7623 / S. 3967) Sickle Cell Disease Comprehensive Care Act (H.R. 7432) dental coverage for Medicare beneficiaries Centers for Medicare & Medicaid Services (CMS) FY 2025 Hospice proposed rule request for information on payment mechanisms for high intensity palliative care services, including blood transfusions Improving Seniors' Timely Access to Care Act (S. 4518/S. 4532/H.R. 8702) Senate Finance Committee Request for Information (RFI) on Medicare Graduate Medical Education (GME) and physician workforce shortages Senate Finance Committee Request for Information (RFI) on Medicare physician payment National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Duffy-null ICD-10 coding Issues impacting drug shortages
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2024 · first_quarter · Q1
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2024 NIH funding FY 2024 AHRQ funding FY 2024 CDC funding FY 2024 funding for CDC Sickle Cell Data Collection program FY 2024 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2024 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) FY 2024 funding for tobacco control and oversight programs at FDA and CDC FY 2024 Further Additional Continuing Appropriations and Other Extensions Act (H.R. 2872) FY 2024 Extension of Continuing Appropriations and Other Matters Act (H.R. 7463) FY 2024 Further Consolidated Appropriations Act (H.R. 2882) Funding for CDC to further develop to improve pediatric reference intervals in laboratory tests FY 2025 NIH funding FY 2025 AHRQ funding FY 2025 CDC funding FY 2025 funding for CDC Sickle Cell Data Collection program FY 2025 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2025 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2023 · fourth_quarter · Q4
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H) Medical Devices; Laboratory Developed Tests proposed rule (FDA-2023-N-217) Comments to White House Initiative on Womens Health Research re: priority research areas
Coverage of blood transfusions under Medicare Hospice Benefit Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Strengthening Medicare for Patients and Providers Act (H.R. 2474) Resident Physician Shortage Reduction Act (S. 1302) CONNECT for Health Act (S. 2016/ H.R. 4189) Improving Access to Transfusion Care for Hospice Patients Act (S. 2186) Provider Reimbursement Stability Act of 2023 (H.R. 6371) Establishment of Disincentives for Health Care Providers That Have Committed Information Blocking proposed rule (RIN 0955-AA05)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2023 · third_quarter · Q3
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Issues related to maternal health care and abortion access Issues related to healthcare workforce Sickle Cell Care Expansion Act (S. 1423 / H.R. 3100) Life Saving Leave Act (H.R. 3024) Cancer Drug Parity Act (S. 2039) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (S. 1852/H.R. 3884) Issues impacting drug shortages House discussion Draft of Stop Drug Shortages Act
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2023 · second_quarter · Q2
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H)
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2024 NIH funding FY 2024 AHRQ funding FY 2024 CDC funding FY 2024 funding for CDC Sickle Cell Data Collection program FY 2024 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2023 · first_quarter · Q1
Coverage of blood transfusions under Medicare Hospice Benefit Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169)
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Issues related to maternal health care and abortion access Issues related to healthcare workforce
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2022 · fourth_quarter · Q4
Public health program funding Federal research funding Emergency funding for COVID therapeutics Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) FY 2023 NIH funding FY 2023 AHRQ funding FY 2023 CDC funding FY 2023 funding for CDC Sickle Cell Data Collection program FY 2023 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2023 (H.R. 8295/S. 4659) FY2023 Further Continuing Appropriations Act (through 12/23/2022) (H.R. 1437) FY2023 Further Additional Continuing Appropriations Act (through 12/30/2022) (H.R. 4373) FY2023 Consolidated Appropriations Act (H.R. 2617)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Emergency funding for COVID therapeutics Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) Diversifying Investigations Via Equitable Research Studies for Everyone (DIVERSE) Trials Act (S. 2706 / H.R. 5030) Meaningful Access to Federal Health Plan Claims Data Act (H.R. 5394) Health Equity and Accountability Act (H.R. 7585) Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348)
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2022 · third_quarter · Q3
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Advancing Telehealth Beyond COVID Act (H.R. 4040)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2022 · second_quarter · Q2
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Emergency funding for COVID therapeutics Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) Diversifying Investigations Via Equitable Research Studies for Everyone (DIVERSE) Trials Act (S. 2706 / H.R. 5030) Meaningful Access to Federal Health Plan Claims Data Act (H.R. 5394) Health Equity and Accountability Act (H.R. 7585) Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2022 · first_quarter · Q1
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2021 · fourth_quarter · Q4
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Fetal tissues research Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) Diversifying Investigations Via Equitable Research Studies for Everyone (DIVERSE) Trials Act (S. 2706 / H.R. 5030) Meaningful Access to Federal Health Plan Claims Data Act (H.R. 5394)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2021 · third_quarter · Q3
Public health program funding Federal research funding FY 2022 NIH funding FY 2022 CDC funding FY 2022 funding for CDC Sickle Cell Data Collection program FY 2022 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Funding for Graduate Medical Education (GME) Labor, Health and Human Services, Education, Agriculture, Rural Development, Energy and Water Development, Financial Services and General Government, Interior, Environment, Military Construction, Veterans Affairs, Transportation, and Housing and Urban Development Appropriations Act, 2022 (H.R. 4502) House "Cures 2.0" discussion draft Advanced Research Projects Agency for Health (ARPA-H)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Fetal tissues research Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training House "Cures 2.0" discussion draft Advanced Research Projects Agency for Health (ARPA-H)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2021 · second_quarter · Q2
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Fetal tissues research Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training
Public health program funding Federal research funding FY 2022 NIH funding FY 2022 CDC funding FY 2022 funding for CDC Sickle Cell Data Collection program FY 2022 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Funding for Graduate Medical Education (GME)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2021 · first_quarter · Q1
Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth Extension of moratorium on Medicare sequester cuts Funding for Graduate Medical Education (GME) COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834)
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2020 · fourth_quarter · Q4
Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (H.R. 748/P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth Health Care at Home Act (H.R. 6644/S. 3741)
Proposals to maintain work authorization for individuals currently in Deferred Action for Childhood Arrivals (DACA) status during the COVID-19 national emergency Healthcare Workforce Resilience Act (H.R. 6788/S. 3599) June 22, 2020 Presidential Proclamation Suspending Entry of Aliens Who Present a Risk to the U.S. Labor Market Following the Coronavirus Outbreak
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2020 · third_quarter · Q3
Public health program funding Federal research funding FY 2021 NIH funding FY 2021 funding for CDC Sickle Cell Disease Data Collection Program FY 2021 funding for HRSA SCD Demonstration Program Funding for AHRQ Emergency funding for relief for coronavirus-related research disruptions/restarts H.R. 8337, FY2021 Continuing Appropriations Resolution (through 12/11/2020)
Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (H.R. 748/P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth Health Care at Home Act (H.R. 6644/S. 3741)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2020 · second_quarter · Q2
Cancer Drug Parity Act (S.741 / H.R.1730) Resident Physician Shortage Reduction Act of 2019 (S. 348/H.R. 1763) Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders Issues impacting blood safety/shortages Issues related to convalescent plasma Healthcare Workforce Resilience Act (H.R. 6788/S. 3599) Coronavirus Provider Protection Act (H.R. 7059) H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act Issues related to health equity/disproportionate impact of COVID-19 on minority populations
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2020 · first_quarter · Q1
Public health program funding Federal research funding FY 2021 NIH funding FY 2021 funding for CDC Sickle Cell Disease Data Collection Program FY 2021 funding for HRSA SCD Demonstration Program FY2020 3rd Coronavirus Supplemental Appropriations Act (H.R. 748, P.L. 116-136) FY2020 2nd Coronavirus Supplemental Appropriations Act (H.R. 6201, P.L. 116-127) FY2020 Coronavirus Preparedness and Response Supplemental Appropriations Act (H.R. 6074, P.L. 116-123)
Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders Response to CMS RFI on Coordinating Care from Out-of-State Providers for Medicaid Eligible Children with Medically Complex Conditions
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2019 · fourth_quarter · Q4
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues Fetal tissue research Reauthorization of the Patient-Centered Outcomes Research Institute (PCORI) Open access policy for peer reviewed research journals
Patient Access to Cellular Transplant (PACT) Act (S. 1268/H.R. 2498) Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders Improving Seniors Timely Access to Care Act of 2019 (H.R. 3107) Executive Order on Protecting and Improving Medicare for Our Nations Seniors; provision re: supervision and reimbursement of nonphysician professionals
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2019 · third_quarter · Q3
Public health program funding Federal research funding FY 2020 NIH funding FY 2020 funding for CDC Sickle Cell Disease Data Collection Program FY 2020 Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act (H.R. 2740) H.Amdt.283 to H.R. 2740 (increases funding to the Birth Defects, Development Disabilities, Disabilities and Health account by $2 million and decreases the administration account in the Office of the Secretary of Health and Human Services account by a similar amount)
Patient Access to Cellular Transplant (PACT) Act (S. 1268/H.R. 2498) Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders Impact of lowering poverty line on access to Medicaid and CHIP Improving Seniors Timely Access to Care Act of 2019 (H.R. 3107)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2019 · second_quarter · Q2
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues NRC training and experience requirements for radiopharmaceuticals Fetal tissue research H.Amdt.338 to H.R. 2740 (prohibits the use of funds for the implementation of a new HHS policy announced on June 5, 2019, that would restrict fetal tissue research) Reauthorization of the Patient-Centered Outcomes Research Institute (PCORI)
Patient Access to Cellular Transplant (PACT) Act (S. 1268/H.R. 2498) Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders Impact of lowering poverty line on access to Medicaid and CHIP
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2019 · first_quarter · Q1
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues NRC training and experience requirements for radiopharmaceuticals
Public health program funding Federal research funding FY 2020 NIH funding FY 2020 funding for CDC Sickle Cell Disease Data Collection Program H.J.Res. 1 (Department of Homeland Security continuing appropriations resolution providing continuing Homeland Security appropriations through 2/08/2019) H.J.Res. 27 ( FY2019 Further Additional Continuing Appropriations Act through 2/01/2019) H.J.Res. 28 (FY2019 Further Additional Continuing Appropriation Act through 02/15/2019) H.J.Res. 31 (FY2019 Continuing Appropriations for Homeland Security through 02/28/2019) H.R. 21 (Consolidated Appropriations Act) H.R. 648 (2nd Consolidated Appropriations Act, 2019)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2018 · fourth_quarter · Q4
Public health program funding Federal research funding
CMS reimbursement for CAR-T and immunotherapies Protect Access to Cellular Transplant (PACT) Act (H.R. 4215) Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2018 · third_quarter · Q3
CMS reimbursement for CAR-T Protect Access to Cellular Transplant (PACT) Act (H.R. 4215) Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determinations Medicaid Coverage for Sickle Cell Disease Issues impacting opioid access/use for patients with hematologic diseases and disorders
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) Resolution designating September 2018 as "Sickle Cell Disease Awareness Month" (S.Res. 661) Cancer Drug Parity Act (H.R. 1409) Patients Access to Treatment Act (H.R. 2999) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Issues Impacting Coverage for Hematologic Diseases and Conditions Reimbursement for CAR-T Issues impacting opioid access/use for patients with hematologic diseases and disorders
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2018 · second_quarter · Q2
FY 2019 Funding for the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and Agency for Healthcare Research and Quality (AHRQ), Health Resources and Services Administration (HRSA) Public Health Program Funding Federal Research Funding Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2019 (S.3158; as yet unnumbered House Subcommittee draft bill)
Sickle Cell Disease/Trait Issues Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations Regulation of Laboratory Developed Tests Cancer "Moonshot" Initiative
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2018 · first_quarter · Q1
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) Cancer Drug Parity Act (H.R. 1409) Patients Access to Treatment Act (H.R. 2999) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Issues Impacting Coverage for Hematologic Diseases and Conditions
Sickle Cell Disease/Trait Issues Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations Regulation of Laboratory Developed Tests Cancer "Moonshot" Initiative Antimicrobial Resistance (AMR) research
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2017 · fourth_quarter · Q4
FY 2018 Funding for the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and Agency for Healthcare Research and Quality (AHRQ), Health Resources and Services Administration (HRSA) Public Health Program Funding Federal Research Funding Further Continuing Appropriations Act, 2018 (H.J.Res.123) (Continuing Resolution through December 22, 2017) Further Continuing Appropriations Act, 2018 (H.R. 1370) (Continuing Resolution through January 19, 2018) Further Additional Supplemental Appropriations for Disaster Relief Requirements, 2017 (H.R. 4667)
Sickle Cell Disease/Trait Issues Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) H.Res. 539, Calling for sickle-cell trait research, surveillance, and public education and awareness Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations Regulation of Laboratory Developed Tests Cancer "Moonshot" Initiative
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2017 · third_quarter · Q3
Sickle Cell Disease/Trait Issues Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) H.Res. 539, Calling for sickle-cell trait research, surveillance, and public education and awareness S.Res.27, Designating September 2017 as "Sickle Cell Disease Awareness Month" Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations Regulation of Laboratory Developed Tests Cancer "Moonshot" Initiative
FY 2018 Funding for the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and Agency for Healthcare Research and Quality (AHRQ), Health Resources and Services Administration (HRSA) Public Health Program Funding Federal Research Funding FY 2018 Multi-Department Appropriations Act (H.R. 3354) Continuing Appropriations Act, 2018 and Supplemental Appropriations for Disaster Relief Requirements Act, 2017 (H.R. 601)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2017 · second_quarter · Q2
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Cancer Drug Parity Act (H.R. 1409) Patients Access to Treatment Act (H.R. 2999) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) American Health Care Act/Better Care Reconciliation Act (H.R. 1628) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Issues Impacting Coverage for Hematologic Diseases and Conditions
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) American Health Care Act/Better Care Reconciliation Act (H.R. 1628) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Medicaid Coverage for Sickle Cell Disease
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2017 · first_quarter · Q1
Sickle Cell Disease/Trait Issues Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations Regulation of Laboratory Developed Tests Cancer "Moonshot" Initiative
FY 2017 and FY 2018 Funding for the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and Agency for Healthcare Research and Quality (AHRQ) Public Health Program Funding
Cancer Drug Parity Act (H.R. 1409) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) American Health Care Act (H.R. 1628) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Issues Impacting Coverage for Hematologic Diseases and Conditions Vaccine Safety Issues Impact of Immigration and Travel Ban Executive Order on Science/Research
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2016 · fourth_quarter · Q4
Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015 (H.R. 1807) Advancing Hope Act (H.R. 1537/S. 1878) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage 21st Century Cures Act (H.R. 6, H.R. 34) Innovation for Healthier Americans initiative Issues impacting coverage for hematologic diseases and conditions
Further Continuing and Security Assistance Appropriations Act (H.R.2028) FY 2017 Funding for the National Institutes of Health and Centers for Disease Control and Prevention (S.3040, H.R. 5926) Public Health Program Funding 21st Century Cures Act (H.R. 6, H.R. 34) Innovation for Healthier Americans initiative
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2016 · third_quarter · Q3
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015 (H.R. 1807) Advancing Hope Act (H.R. 1537/S. 1878) Resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" (S.Res. 592/H.Res. 903) Sickle Cell Disease/Trait Issues Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Regulation of laboratory developed tests Cancer "Moonshot" initiative
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2016 · second_quarter · Q2
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Regulation of laboratory developed tests Cancer "Moonshot" initiative
FY 2017 Funding for the National Institutes of Health and Centers for Disease Control and Prevention (S.3040) Public Health Program Funding 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2016 · first_quarter · Q1
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations H.Res. 296, calling for sickle cell trait research 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Regulation of laboratory developed tests
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Issues impacting coverage for hematologic diseases and conditions
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2015 · fourth_quarter · Q4
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (H.R. 2) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations The Protect Continuing Physician Education and Patient Care Act (H.R.293)
FY 2016 Funding for the National Institutes of Health and Centers for Disease Control and Prevention Public Health Program Funding Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016 (H.R. 3020/S. 1695) FY 2016 Continuing Resolutions (H.R. 2250; H.J.Res. 78) FY 2016 Consolidated Appropriations Act (H.R. 2029) Bipartisan Budget Act of 2015 (H.R. 1314) 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2015 · third_quarter · Q3
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative
implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (H.R. 2) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations The Protect Continuing Physician Education and Patient Care Act (H.R.293)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2015 · second_quarter · Q2
Medicare Access and CHIP Reauthorization Act of 2015 (H.R. 2) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations The Protect Continuing Physician Education and Patient Care Act (H.R.293)
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) 21st Century Cures Act (H.R. 6)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2015 · first_quarter · Q1
Medicare Access and CHIP Reauthorization Act of 2015 (H.R. 2) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Patients' Access to Treatments Act (H.R. 1600)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2014 · fourth_quarter · Q4
SGR Repeal and Medicare Provider Payment Modernization Act (H.R. 4015/S. 2000) Protecting Access to Medicare Act of 2014 (H.R. 4302) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act(P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Cancer Drug Coverage Parity Act (H.R. 1801) Cancer Treatment Parity Act (S. 1879) Patients' Access to Treatments Act (H.R. 460)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2014 · third_quarter · Q3
FY 2015 Funding for the National Institutes of Health and Centers for Disease Control and Prevention; Public Health Program Funding; Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2015; Continuing Appropriations Resolution, 2015 (H.J.Res. 124)
Sickle Cell Disease/Trait; Hematology/Oncology Treatment Issues; General Hematology Public Health and Research Issues
SGR Repeal and Medicare Provider Payment Modernization Act (H.R. 4015/S. 2000); Protecting Access to Medicare Act of 2014 (H.R. 4302); Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148); CMS National Coverage Determination; Clinical Trials Regulations
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2014 · second_quarter · Q2
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148); Hematology and Oncology Drug Research and Approval Issues; Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144); Clinical Trials Regulations and Coverage; Cancer Drug Coverage Parity Act (H.R. 1801); Cancer Treatment Parity Act (S. 1879); Patients' Access to Treatments Act (H.R. 460)
SGR Repeal and Medicare Provider Payment Modernization Act (H.R. 4015/S. 2000); Protecting Access to Medicare Act of 2014 (H.R. 4302); Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148); CMS National Coverage Determination; Clinical Trials Regulations
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2014 · first_quarter · Q1
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues
FY 2014 and FY 2015 Funding for the National Institutes of Health and Centers for Disease Control and Prevention Public Health Program Funding Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2014 (S. 1284) FY 2014 Consolidated Appropriations Act (H.R. 3547)
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implimentation of The Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage; Cancer Drug Coverage Parity Act (H.R. 1801); Cancer Treatment Parity Act (S. 1879)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2013 · fourth_quarter · Q4
FY 2014 Funding for the National Institutes of Health Public Health Program Funding Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2014 (S. 1284) FY 2014 Continuing Resolution (H.J.Res. 59)
Medicare Patient Access and Quality Improvement Act of 2013 (H.R. 2810) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2013 · third_quarter · Q3
FY 2014 Funding for the National Institutes of Health Public Health Program Funding Department of Labor, Health and Humans Services, and Education, and Related Agencies Appropriations Act, 2014 (s. 1284) FY 2014 Continuing Resolution H.J.Res 59)
Medicare Patient Access and Quality Improvement Act of 2013 (H.R. 2810) Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Sickle Cell Disease/Trait Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2013 · second_quarter · Q2
Sickle Cell Disease/Trait Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues The Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials regulations and coverage Cancer Drug Coverage Parity Act (H.R. 1801)Cancer Drug Coverage Parity Act (H.R. 1801)
FY 2014 Funding for the National Institutes of Health Public Health Program Funding
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2013 · first_quarter · Q1
FY 2013 Funding for the National Institutes of Health Public Health Program Funding H.R. 933, Consolidated and Further Continuing Appropriations Act, 2013 H.R. 8, American Taxpayer Relief Act of 2012
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues The Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials regulations and coverage
Sickle Cell Disease/Trait Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2012 · fourth_quarter · Q4
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues The Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials regulations and coverage
FY 2013 Funding for the National Institutes of Health Public Health Program Funding S. 3295, Department of Labor, Health and Human Services, Education, and Related Agencies Appropriations Act, 2013 H.R. 8, American Taxpayer Relief Act of 2012
Sickle Cell Disease/Trait Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2012 · third_quarter · Q3
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting System (PQRS) Measures CMS Strategic Priorities Clinical Trials Regulations Electronic Health Records (EHR)
Thrombosis Sickle Cell Disease/Trait Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues Embryonic Stem Cell Research and Regenerative Medicine H.R. 3433, the Grant Reform and New Transparency Act
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2012 · second_quarter · Q2
FY 2013 Funding for the National Institutes of Health Public Health Program Funding
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues, Drug Shortage Issues S. 296, the Preserving Access to Life-Saving Medications Act H.R. 2245, the Preserving Access to Life-Saving Medications Act H.R. 3839, the Drug Shortage Prevention Act Hematology workforce issues Clinical Trials
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting System (PQRS) Measures CMS Strategic Priorities Clinical Trials Regulations Electronic Health Records (EHR)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2012 · first_quarter · Q1
Thrombosis Sickle Cell Disease/Trait Clinical Trials Regulations Electronic Health Records (EHR) Comparative Effectiveness Research Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues Embryonic Stem Cell Research and Regenerative Medicine Hematology and Oncology Drug Research and Approval Issues, Drug Shortage Issues S. 296, the Preserving Access to Life-Saving Medications Act H.R. 2245, the Preserving Access to Life-Saving Medications Act H.R. 3839, the Drug Shortage Prevention Act H.R. 3433, the Grant Reform and New Transparency Act Hematology workforce issues
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies (H.R. 3630, the Middle Class Tax Relief and Job creation Act of 2012) Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting System (PQRS) Measures Electronic Health Records CMS Strategic Priorities
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2011 · fourth_quarter · Q4
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting System (PQRS) Measures Electronic Health Records CMS Strategic Priorities
FY 2012 Funding for the National Institutes of Health Public Health Program Funding Budget Control Act of 2011 (S. 365) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2012 (S. 1599/H.R. 3070) Consolidated Appropriations Act, 2012 (H.R. 3671)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2011 · third_quarter · Q3
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting System (PQRS) Measures Electronic Health Records CMS Strategic Priorities
FY 2012 Funding for the National Institutes of Health Public Health Program Funding Budget Control Act of 2011 (S. 365) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2012 (S. 1599/H.R. 3070)
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Health Insurance Portability and Accountability Act
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2011 · second_quarter · Q2
Thrombosis Sickle Cell Disease Clinical Trials Regulations Electronic Health Records (EHR) Comparative Effectiveness Research Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues Embryonic Stem Cell Research and Regenerative Medicine Hematology and Oncology Drug Research and Approval Issues, Drug Shortage Issues H.R. 2376, the Stem Cell Research Advancement Act of 2011 S. 296, the Preserving Access to Life-Saving Medications Act H.R. 2245, the Preserving Access to Life-Saving Medications Act H.R. 640, the Bone Marrow Failure Disease Research and Treatment Act S.Res. 172, resolution designating May 2011 as National Cancer Research Month
FY 2011 and FY 2012 Funding for the National Institutes of Health Public Health Program Funding H.R. 1473, Department of Defense and Full-Year Continuing Appropriations Act, 2011
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2011 · first_quarter · Q1
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Health Insurance Portability and Accountability Act
H.R. 640, the Bone Marrow Failure Disease Research and Treatment Act General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues, Drug Shortage Issues Embryonic Stem Cell Research and Regenerative Medicine Sickle Cell Disease Thrombosis Electronic Health Records (EHR) Hematology/Oncology treatment Issues Comparative Effectiveness Research S. 296, the Preserving Access to Life-Saving Medications Act
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2010 · fourth_quarter · Q4
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Medicare and Medicaid Extenders Act of 2010 (H.R. 4994) Physician Payment and Therapy Relief Act of 2010 (H.R. 5712) Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting Initiative (PQRS) Measures Electronic Health Records CMS Strategic Priorities
Bone Marrow Failure Disease Research and Treatment Act (H.R. 1230) General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues Embryonic Stem Cell Research Issues Sickle Cell Disease Thrombosis Electronic Health Records (EHR) Hematology/Oncology treatment Issues Comparative Effectiveness Research Stem Cell Research Advancement Act (H.R. 4808 / S. 3766) Stem Cell Therapeutic and Research Reauthorization Act of 2010 (S. 3751 / H.R. 6081) Use of Cesium-137 Chloride (CsCl) sources in biomedical research
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2010 · third_quarter · Q3
Funding for the National Institutes of Health Public Health Program Funding House and Senate (S. 3686) FY 2011 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Bills
Bone Marrow Failure Disease Research and Treatment Act (H.R. 1230) General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues Embryonic Stem Cell Research Issues Sickle Cell Disease Public Access Thrombosis Electronic Health Records (EHR) Hematology/Oncology treatment Issues Clinical Trials Insurance Coverage Resolution Expressing Support for Designation of September 2010 as Blood Cancer Awareness Month (H.Res. 1433) Comparative Effectiveness Research Proposed Revisions to NIH COI Policy Stem Cell Research Advancement Act (H.R. 4808 / S. 3766) Stem Cell Therapeutic and Research Reauthorization Act of 2010 (S. 3751 / H.R. 6081)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2010 · second_quarter · Q2
Implementation of Health Reform Legislation / Patient Protection and Afforadable Care Act (H.R. 3590 / P.L. 111-148)
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Continuing Extension Act of 2010 (H.R. 4851) / American Jobs and Closing Tax Loopholes Act of 2010 (H.R. 4213) / PAID FOR Temporary Extension Act of 2010 (S. 3421) / Preservation of Access to Care for Medicare Beneficaries and Pension Relief Act of 2010 (H.R. 3962) Physician Quality Reporting Initiative (PQRI) Measures Electronic Health Records (EHRs) Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (H.R. 3590 / P.L. 111-148)
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2010 · first_quarter · Q1
Health Reform Legislation: America's Affordable Health Choices Act of 2009 (H.R. 3200) /Affordable Health Care for America Act (H.R. 3962) / Patient Protection and Affordable Care Act (H.R. 3590)
Funding for the National Institutes of Health House and Senate FY 2011 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Bills Public Health Program Funding
Stem Cell Research Advancement Act (H.R. 4808) / Embryonic Stem Cell Research Bone Marrow Failure Disease Research and Treatment Act (H.R. 1230) General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues Comparative Effectiveness Research (CER) Sickle Cell Disease Public Access Thrombosis Electronic Health Records (EHRs) Hematology/Oncology Treatment Issues Clinical Trials Insurance Coverage
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2009 · fourth_quarter · Q4
Funding for the National Institutes of Health House and Senate FY 2010 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Bills (H.R.3293) Public Health Program Funding House and Senate FY 2010 Department of Defense Appropriations Bill (H.R.3326)
Stem Cell Research Enhancement Act (H.R. 873/S. 487) / Embryonic Stem Cell Research Bone Marrow Failure Disease Research and Treatment Act (H.R. 1230) Health Reform Legislation: America's Affordable Health Choices Act of 2009 (H.R. 3200) /Affordable Health Care for America Act (H.R. 3962) / Patient Protection and Affordable Care Act (H.R. 3590) Physician Payments Sunshine Act (S. 301) General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues Comparative Effectiveness Research (CER) Sickle Cell Disease Public Access Thrombosis Electronic Health Records (EHRs) Hematology/Oncology Treatment Issues Clinical Trials Insurance Coverage
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2009 · third_quarter · Q3
Funding for the National Institutes of Health House and Senate FY 2010 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Bills (H.R.3293) Public Health Program Funding House and Senate FY 2010 Department of Defense Appropriations Bill (H.R.3326)
Stem Cell Research Enhancement Act (H.R.873/S.487) / Embryonic Stem Cell Research Bone Marrow Failure Disease Research and Treatment Act (H.R.1230) Health Reform Legislation/ America's Affordable Health Choices Act of 2009 (H.R.3200) /Affordable Health Choices Act (S.1679) Physician Payments Sunshine Act (S.301) General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues Comparative Effectiveness Research (CER) Sickle Cell Disease Public Access Thrombosis Use of Cesium-137 Chloride Sources in Biomedical Research
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2009 · second_quarter · Q2
Funding for the National Institutes of Health FY 2010 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Bills Public Health Program Funding FY 2010 Department of Defense Appropriations bill
Stem Cell Research Enhancement Act (H.R. 873/S. 487); Embryonic Stem Cell Research; Somatic Cell Nuclear Transfer; Human Reproductive Cloning Bone Marrow Failure Disease Research and Treatment Act (H.R. 1230) 21st Century Cancer ALERT Act (S. 717) Physician Payments Sunshine Act (S. 301) General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues Comparative Effectiveness Research (CER) Sickle Cell Disease Public Access Thrombosis Use of Cesium-137 Chloride Sources in Biomedical Research Health Reform Legislation
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2009 · first_quarter · Q1
Funding for the National Institutes of Health American Recovery and Reinvestment Act of 2009 (H.R. 1) FY 2009 Omnibus Appropriations Act (H.R. 1105) FY 2010 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Act Public Health Program Funding FY 2010 Department of Defense Appropriations Act
Stem Cell Research Enhancement Act (H.R. 873/S. 487), Somatic Cell Nuclear Transfer, Human Reproductive Cloning Bone Marrow Failure Disease Research and Treatment Act (H.R. 1230) 21st Century Cancer ALERT (Access to Life-Saving Early detection, Research and Treatment) Act (S. 717) Physician Payments Sunshine Act (S. 301) General Hematology-Related Research Sickle Cell Disease Public Access Thrombosis Use of Cesium-137 Chloride Sources and Radioisotopes in Biomedical Research
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Energy, Dept of, Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2008 · fourth_quarter · Q4
FY 2009 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Act (S. 3230) Funding for the National Institutes of Health Public Health Program Funding FY 2009 Department of Defense Appropriations Act FY 2008 Supplemental Appropriations Act (H.R. 2642) FY 2009 Continuing Resolution (H.R. 2638) Job Creation and Unemployment Relief Act of 2008 (S. 3688, S. 3689)
Coverage/Labeling of Erythropoiesis-Stimulating Agents (ESAs) Stem Cell Research Enhancement Act (H.R. 3/S. 5), Somatic Cell Nuclear Transfer, Human Reproductive Cloning General Hematology-Related Research Sickle Cell Disease Public Access Thrombosis Security and Continued Use of Cesium-137 Chloride Sources in Biomedical Research
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2008 · third_quarter · Q3
Coverage/Labeling of Erythropoiesis-Stimulating Agents (ESAs) Stem Cell Research Enhancement Act (H.R. 3/S. 5), Somatic Cell Nuclear Transfer, Human Reproductive Cloning Genetic Information Nondiscrimination Act (S. 358/H.R. 493) General Hematology-Related Research Sickle Cell Disease Public Access Thrombosis Security and Continued Use of Cesium-137 Chloride Sources in Biomedical Research
FY 2009 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Act (S. 3230) Funding for the National Institutes of Health Public Health Program Funding FY 2009 Department of Defense Appropriations Act FY 2008 Supplemental Appropriations Act (H.R. 2642) FY 2009 Continuing Resolution (H.R. 2638)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2008 · second_quarter · Q2
Coverage/Labeling of Erythropoiesis-Stimulating Agents (ESAs) Stem Cell Research Enhancement Act (H.R. 3/S. 5), Somatic Cell Nuclear Transfer, Human Reproductive Cloning Genetic Information Nondiscrimination Act (S. 358/H.R. 493) General Hematology-Related Research Sickle Cell Disease Public Access Thrombosis
FY 2009 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Act (S. 3230) Funding for the National Institutes of Health Public Health Program Funding FY 2009 Department of Defense Appropriations Act FY 2008 Supplemental Appropriations Act (H.R. 2642)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
AMERICAN SOCIETY OF HEMATOLOGY via AMERICAN SOCIETY OF HEMATOLOGY
2008 · first_quarter · Q1
Coverage/Labeling of Erythropoiesis-Stimulating Agents (ESAs) Stem Cell Research Enhancement Act (H.R. 3/S. 5), Somatic Cell Nuclear Transfer, Human Reproductive Cloning Genetic Information Nondiscrimination Act (S. 358/H.R. 493) General Hematology-Related Research Sickle Cell Disease Public Access
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Women's health and research Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting laboratory developed tests (LDTs) Issues impacting drug shortages FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Access to safe and effective vaccines Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology One Big Beautiful Bill Act (H.R. 1) Sickle Cell Disease Comprehensive Care Act (S. 721) Improving Access to Transfusion Care for Hospice Patients Act (S. 1936)
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
Coverage of blood transfusions under Medicare Hospice Benefit Medicare physician reimbursement issues Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) dental coverage for Medicare beneficiaries National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Impact of proposed Medicaid funding cuts on hematology FY2025 Budget Resolution (H. Con. Res. 14/S. Con. Res. 7) Sickle Cell Disease Comprehensive Care Act (S. 721)
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting blood supply shortages/safety Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Issues related to maternal health care and abortion access Born-Alive Abortion Survivors Protection Act (H.R. 21/S. 6) Issues related to healthcare workforce Issues impacting drug shortages Sickle cell disease quality measures FDA guidance impacting hematology Impact of restructuring and reorganization of federal public health and research agencies Sickle Cell Disease Comprehensive Care Act (S. 721)
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2025 NIH funding FY 2025 AHRQ funding FY 2025 CDC funding FY 2025 funding for CDC Sickle Cell Data Collection program FY 2025 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2025 funding for Pediatric Specialty Loan Repayment Program (PSLRP, Public Health Service Act Sec. 775) FY 2025 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2025 (H.R. 9029/S. 4942) Department of Defense Appropriations Act, 2025(H.R. 8774/S. 4921) FY 2025 Further Continuing Appropriations Act (through 3/14/2025)(H.R.10515, H.R. 10545)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H) White House Initiative on Womens Health Research re: priority research areas Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting laboratory developed tests (LDTs) Issues impacting drug shortages House Energy and Commerce Committee proposed framework for NIH reform FDA guidance impacting hematology
Coverage of blood transfusions under Medicare Hospice Benefit Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Strengthening Medicare for Patients and Providers Act (H.R. 2474) Resident Physician Shortage Reduction Act (S. 1302) CONNECT for Health Act (S. 2016/ H.R. 4189) Improving Access to Transfusion Care for Hospice Patients Act (S. 2186) Provider Reimbursement Stability Act of 2023 (H.R. 6371) Telehealth Modernization Act (H.R. 7623 / S. 3967) Sickle Cell Disease Comprehensive Care Act (H.R. 7432/S. 5097) dental coverage for Medicare beneficiaries CMS FY 2025 Hospice proposed rule and payment mechanisms for high intensity palliative care services, including blood transfusions Improving Seniors' Timely Access to Care Act (S. 4518/S. 4532/H.R. 8702) Senate Finance Committee Request for Information (RFI) on Medicare physician payment National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Duffy-null ICD-10 coding Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Senate draft Pay PCPs Act CY 2025 Hospital Outpatient Prospective Payment System (HOPPS) proposed rule CY 2025 Physician Fee Schedule proposed rule
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
Coverage of blood transfusions under Medicare Hospice Benefit Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Strengthening Medicare for Patients and Providers Act (H.R. 2474) Resident Physician Shortage Reduction Act (S. 1302) CONNECT for Health Act (S. 2016/ H.R. 4189) Improving Access to Transfusion Care for Hospice Patients Act (S. 2186) Provider Reimbursement Stability Act of 2023 (H.R. 6371) Telehealth Modernization Act (H.R. 7623 / S. 3967) Sickle Cell Disease Comprehensive Care Act (H.R. 7432/S. 5097) dental coverage for Medicare beneficiaries CMS FY 2025 Hospice proposed rule and payment mechanisms for high intensity palliative care services, including blood transfusions Improving Seniors' Timely Access to Care Act (S. 4518/S. 4532/H.R. 8702) Senate Finance Committee Request for Information (RFI) on Medicare physician payment National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS Local Coverage Decisions for hematopoietic stem cell transplantation (HSCT) for lymphoma Duffy-null ICD-10 coding Local Coverage Decisions for next generation sequencing Sickle cell disease quality measures Issues impacting drug shortages Senate draft Pay PCPs Act CY 2025 Hospital Outpatient Prospective Payment System (HOPPS) proposed rule CY 2025 Physician Fee Schedule proposed rule
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2025 NIH funding FY 2025 AHRQ funding FY 2025 CDC funding FY 2025 funding for CDC Sickle Cell Data Collection program FY 2025 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2025 funding for Pediatric Specialty Loan Repayment Program (PSLRP, Public Health Service Act Sec. 775) FY 2025 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2025 (H.R. 9029/S. 4942) Department of Defense Appropriations Act, 2025(H.R. 8774/S. 4921) FY2025 Continuing Appropriations and Extensions Act (through 12/20/2024)(H.R. 9747)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H) White House Initiative on Womens Health Research re: priority research areas Issues impacting laboratory testing and pediatric reference intervals (PRIs) Issues impacting laboratory developed tests (LDTs) Issues impacting drug shortages House Energy and Commerce Committee proposed framework for NIH reform
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2025 NIH funding FY 2025 AHRQ funding FY 2025 CDC funding FY 2025 funding for CDC Sickle Cell Data Collection program FY 2025 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program FY 2025 funding for Pediatric Specialty Loan Repayment Program (PSLRP, Public Health Service Act Sec. 775) FY 2025 funding for Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2025 (H.R. 9029) Department of Defense Appropriations Act, 2025(H.R. 8774)
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Issues related to maternal health care and abortion access Issues related to healthcare workforce Sickle Cell Care Expansion Act (S. 1423/H.R. 3100) Life Saving Leave Act (H.R. 3024) Cancer Drug Parity Act (S. 2039/H.R. 6301) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (S. 1852/H.R. 3884) Issues impacting drug shortages House discussion Draft of Stop Drug Shortages Act Let Doctors Provide Reproductive Health Care Act (H.R. 2907/S. 1297) Iron Deficiency Education and Awareness (IDEA) Act (H.R. 6746) Sickle Cell Disease Comprehensive Care Act (H.R. 7432) H.Res. 1180, re: diversity, equity and inclusion in medical education
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
Coverage of blood transfusions under Medicare Hospice Benefit Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Strengthening Medicare for Patients and Providers Act (H.R. 2474) Resident Physician Shortage Reduction Act (S. 1302) CONNECT for Health Act (S. 2016/ H.R. 4189) Improving Access to Transfusion Care for Hospice Patients Act (S. 2186) Provider Reimbursement Stability Act of 2023 (H.R. 6371) Telehealth Modernization Act (H.R. 7623 / S. 3967) Sickle Cell Disease Comprehensive Care Act (H.R. 7432) National Coverage Decision for hematopoietic stem cell transplantation (HSCT) for MDS dental coverage for Medicare beneficiaries
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H) White House Initiative on Womens Health Research re: priority research areas Issues impacting laboratory testing and pediatric reference intervals (PRIs)
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Issues related to maternal health care and abortion access Issues related to healthcare workforce Sickle Cell Care Expansion Act (S. 1423/H.R. 3100) Life Saving Leave Act (H.R. 3024) Cancer Drug Parity Act (S. 2039/H.R. 6301) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (S. 1852/H.R. 3884) Issues impacting drug shortages House discussion Draft of Stop Drug Shortages Act Let Doctors Provide Reproductive Health Care Act (H.R. 2907/S. 1297) Iron Deficiency Education and Awareness (IDEA) Act (H.R. 6746) Sickle Cell Disease Comprehensive Care Act (H.R. 7432)
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2024 NIH funding FY 2024 AHRQ funding FY 2024 CDC funding FY 2024 funding for CDC Sickle Cell Data Collection program FY 2024 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Department of Defense Appropriations Act, 2024 (H.R. 4365 / S. 2587) FY 2024 Departments of Labor, Health and Human Services, and Education, and related agencies appropriations bill (H.R. 5894 / S. 2624) FY 2024 Further Continuing Appropriations and Other Extensions (H.R. 6363)
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Issues related to maternal health care and abortion access Issues related to healthcare workforce Sickle Cell Care Expansion Act (S. 1423/H.R. 3100) Life Saving Leave Act (H.R. 3024) Cancer Drug Parity Act (S. 2039/H.R. 6301) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (S. 1852/H.R. 3884) Issues impacting drug shortages House discussion Draft of Stop Drug Shortages Act Let Doctors Provide Reproductive Health Care Act (H.R. 2907/S. 1297) Iron Deficiency Education and Awareness (IDEA) Act (H.R. 6746)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE, White House Office
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues impacting delivery of bone marrow, peripheral blood, and cord blood Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H)
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2024 NIH funding FY 2024 AHRQ funding FY 2024 CDC funding FY 2024 funding for CDC Sickle Cell Data Collection program FY 2024 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP) Department of Defense Appropriations Act, 2024 (H.R. 4365 / S. 2587) FY 2024 Departments of Labor, Health and Human Services, and Education, and related agencies appropriations bill (H.R. 5894 / S. 2624)
Coverage of blood transfusions under Medicare Hospice Benefit Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Strengthening Medicare for Patients and Providers Act (H.R. 2474) Resident Physician Shortage Reduction Act (S. 1302) CONNECT for Health Act (S. 2016/ H.R. 4189) Improving Access to Transfusion Care for Hospice Patients Act (S. 2186)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Implementation of No Surprises Act (P.L. 116-260) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Issues related to maternal health care and abortion access Issues related to healthcare workforce Sickle Cell Care Expansion Act (S. 1423 / H.R. 3100) Life Saving Leave Act (H.R. 3024) Cancer Drug Parity Act (S. 2039) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (S. 1852/H.R. 3884) Issues impacting drug shortages
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2186) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to telemedicine/telehealth Sickle cell disease/trait issues, including coverage for cell and gene therapies Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 996) Prior authorization Implementation of the Inflation Reduction Act of 2022 (P.L. 117-169) Strengthening Medicare for Patients and Providers Act (H.R. 2474) Resident Physician Shortage Reduction Act (S. 1302) CONNECT for Health Act (S. 2016/ H.R. 4189)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Advanced Research Projects Agency for Health (ARPA-H)
Public health program funding Federal research funding Advanced Research Projects Agency for Health (ARPA-H) FY 2024 NIH funding FY 2024 AHRQ funding FY 2024 CDC funding FY 2024 funding for CDC Sickle Cell Data Collection program FY 2024 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Advancing Telehealth Beyond COVID Act (H.R. 4040) Supporting Medicare Providers Act (H.R. 8800) FY2023 Consolidated Appropriations Act (H.R. 2617)
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177/S.4425) Women's Health Protection Act (S. 1975/ H.R. 3755/S. 4132) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Health Equity and Accountability Act (H.R. 7585) Issues related to maternal health care and abortion access Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348) Affordability of employer coverage for family members/"family glitch Sickle Cell Disease Treatment Centers Act of 2022 (S. 4866/ H.R. 8855) Advancing Telehealth Beyond COVID Act (H.R. 4040) Resolution supporting the designation of September 2022 as "Sickle Cell Disease Awareness Month" (H.Res.1330/S.Res.868) Let Doctors Provide Reproductive Health Care Act (S. 4723/H.R. 8650) FY2023 Consolidated Appropriations Act (H.R. 2617)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Internal Revenue Service (IRS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Public health program funding Federal research funding Emergency funding for COVID therapeutics Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) FY 2023 NIH funding FY 2023 AHRQ funding FY 2023 CDC funding FY 2023 funding for CDC Sickle Cell Data Collection program FY 2023 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2023 (H.R. 8295/S. 4659) FY2023 Continuing Appropriations Act (through 12/16/2022) (H.R. 6833)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Emergency funding for COVID therapeutics Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) Diversifying Investigations Via Equitable Research Studies for Everyone (DIVERSE) Trials Act (S. 2706 / H.R. 5030) Meaningful Access to Federal Health Plan Claims Data Act (H.R. 5394) Health Equity and Accountability Act (H.R. 7585) Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348)
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177/S.4425) Women's Health Protection Act (S. 1975/ H.R. 3755/S. 4132) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Health Equity and Accountability Act (H.R. 7585) Issues related to maternal health care and abortion access Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348) Affordability of employer coverage for family members/"family glitch Sickle Cell Disease Treatment Centers Act of 2022 (S. 4866/ H.R. 8855) Advancing Telehealth Beyond COVID Act (H.R. 4040) Resolution supporting the designation of September 2022 as "Sickle Cell Disease Awareness Month" (H.Res.1330)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Internal Revenue Service (IRS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018)
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177/S.4425) Women's Health Protection Act (S. 1975/ H.R. 3755/S. 4132) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Health Equity and Accountability Act (H.R. 7585) Issues related to maternal health care and abortion access Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348) Affordability of employer coverage for family members/"family glitch
Public health program funding Federal research funding Emergency funding for COVID therapeutics Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) FY 2023 NIH funding FY 2023 AHRQ funding FY 2023 CDC funding FY 2023 funding for CDC Sickle Cell Data Collection program FY 2023 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2023 (H.R. 8295)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Internal Revenue Service (IRS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Public health program funding Federal research funding FY 2022 NIH funding FY 2022 CDC funding FY 2022 funding for CDC Sickle Cell Data Collection program FY 2022 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) Labor, Health and Human Services, Education, Agriculture, Rural Development, Energy and Water Development, Financial Services and General Government, Interior, Environment, Military Construction, Veterans Affairs, Transportation, and Housing and Urban Development Appropriations Act, 2022 (H.R. 4502) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2022 (S. 3062) FY 2022 Consolidated Appropriations Act (H.R. 2471) FY 2023 NIH funding FY 2023 AHRQ funding FY 2023 CDC funding FY 2023 funding for CDC Sickle Cell Data Collection program FY 2023 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Dr. Lorna Breen Health Care Provider Protection Act (H.R. 1667/S. 610) Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177) Women's Health Protection Act (S. 1975/ H.R. 3755) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018)
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H) Diversifying Investigations Via Equitable Research Studies for Everyone (DIVERSE) Trials Act (S. 2706 / H.R. 5030) Meaningful Access to Federal Health Plan Claims Data Act (H.R. 5394)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth Funding for Graduate Medical Education (GME) COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389)
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389)
Public health program funding Federal research funding FY 2022 NIH funding FY 2022 CDC funding FY 2022 funding for CDC Sickle Cell Data Collection program FY 2022 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Funding for Graduate Medical Education (GME) Labor, Health and Human Services, Education, Agriculture, Rural Development, Energy and Water Development, Financial Services and General Government, Interior, Environment, Military Construction, Veterans Affairs, Transportation, and Housing and Urban Development Appropriations Act, 2022 (H.R. 4502) Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2022 (S. 3062) Cures 2.0 Act (H.R. 6000) Advanced Research Projects Agency for Health (ARPA-H)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training House "Cures 2.0" discussion draft Sickle cell disease/trait issues
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth Funding for Graduate Medical Education (GME) COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Sickle cell disease/trait issues
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth Extension of moratorium on Medicare sequester cuts Funding for Graduate Medical Education (GME) COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024)
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Sickle cell disease/trait issues Hematology/oncology treatment issues Hematology/oncology drug research and approval issues General hematology public health and research issues Fetal tissues research Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Open access policy for peer reviewed research journals Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations COVID-19 vaccination policies/prioritization Clinical trials regulations and coverage
Public health program funding Federal research funding FY 2022 NIH funding FY 2022 CDC funding FY 2022 funding for CDC Sickle Cell Data Collection program FY 2022 funding for HRSA Sickle Cell Disease Treatment Demonstration program and Sickle Cell Disease Newborn Screening program Emergency funding for coronavirus-related research disruptions/research recovery Research Investment to Spark the Economy (RISE) Act (H.R. 869/S. 289) Extension of moratorium on Medicare sequester cuts Funding for Graduate Medical Education (GME)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues Fetal tissue research Protecting Cures Act of 2020 (H.R. 6417) Open access policy for peer reviewed research journals Issues impacting blood safety/shortages Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (H.R. 748/P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations
Public health program funding Federal research funding FY 2021 NIH funding FY 2021 funding for CDC Sickle Cell Disease Data Collection Program FY 2021 funding for HRSA SCD Demonstration Program Funding for AHRQ Emergency funding for relief for coronavirus-related research disruptions/restarts H.R. 8900, FY2021 Further Continuing Appropriations Act and Other Extensions Act (through 12/18/2020) H.J.Res. 107, FY2021 Continuing Appropriations Act (through 12/20/2020) H.J.Res. 110, FY2021 Continuing Appropriations Act (through 12/21/2020) H.R. 1520, FY2021 Continuing Appropriations Act (through 12/28/2020) H.R. 133, FY2021 Omnibus and COVID Relief and Response Act
Cancer Drug Parity Act (S.741 / H.R.1730) Resident Physician Shortage Reduction Act of 2019 (S. 348/H.R. 1763) Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders Issues impacting blood safety/shortages Issues related to convalescent plasma Healthcare Workforce Resilience Act (H.R. 6788/S. 3599) Coronavirus Provider Protection Act (H.R. 7059) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Health Care at Home Act (H.R. 6644/S. 3741) Withdrawal of the United States from the World Health Organization (WHO)
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Labor, Dept of (DOL), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), SENATE, State, Dept of (DOS), U.S. Agency for International Development (USAID), White House Office
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues Fetal tissue research Protecting Cures Act of 2020 (H.R. 6417) Open access policy for peer reviewed research journals Issues impacting blood safety/shortages Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (H.R. 748/P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations
Proposals to maintain work authorization for individuals currently in Deferred Action for Childhood Arrivals (DACA) status during the COVID-19 national emergency Healthcare Workforce Resilience Act (H.R. 6788/S. 3599) June 22, 2020 Presidential Proclamation Suspending Entry of Aliens Who Present a Risk to the U.S. Labor Market Following the Coronavirus Outbreak
Cancer Drug Parity Act (S.741 / H.R.1730) Resident Physician Shortage Reduction Act of 2019 (S. 348/H.R. 1763) Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders Issues impacting blood safety/shortages Issues related to convalescent plasma Healthcare Workforce Resilience Act (H.R. 6788/S. 3599) Coronavirus Provider Protection Act (H.R. 7059) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Health Care at Home Act (H.R. 6644/S. 3741) Withdrawal of the United States from the World Health Organization (WHO)
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Labor, Dept of (DOL), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), SENATE, State, Dept of (DOS), U.S. Agency for International Development (USAID), White House Office
Coverage of blood transfusions under Medicare Hospice Benefit Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (H.R. 748/P.L. 116-136) H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues Fetal tissue research Protecting Cures Act of 2020 (H.R. 6417) Open access policy for peer reviewed research journals Issues impacting blood safety/shortages Issues related to convalescent plasma Issues impacting delivery of bone marrow, peripheral blood, and cord blood Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (H.R. 748/P.L. 116-136) H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act Issues related to health equity/disproportionate impact of COVID-19 on minority populations
Proposals to maintain work authorization for individuals currently in Deferred Action for Childhood Arrivals (DACA) status during the COVID-19 national emergency Healthcare Workforce Resilience Act (H.R. 6788/S. 3599) June 22, 2020 Presidential Proclamation Suspending Entry of Aliens Who Present a Risk to the U.S. Labor Market Following the Coronavirus Outbreak H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act
Public health program funding Federal research funding FY 2021 NIH funding FY 2021 funding for CDC Sickle Cell Disease Data Collection Program FY 2021 funding for HRSA SCD Demonstration Program Emergency funding for relief for coronavirus-related research disruptions/restarts H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), SENATE, White House Office
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues Fetal tissue research Protecting Cures Act of 2020 (H.R. 6417) Open access policy for peer reviewed research journals Response to Request for Public Comment on Draft Desirable Characteristics of Repositories for Managing and Sharing Data Resulting from Federally Funded Research [FR Doc. 2020-00689] Response to NIH Request for Public Comments on a DRAFT NIH Policy for Data Management and Sharing and Supplemental DRAFT Guidance [NOT-OD-20-013] Response to National Library of Medicine RFI on Modernization of ClinicalTrials.gov (NOT-LM-20-003) Issues impacting blood safety/shortages/deferral policy Issues related to convalescent plasma
Cancer Drug Parity Act (S.741 / H.R.1730) Resident Physician Shortage Reduction Act of 2019 (S. 348/H.R. 1763) Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders Issues impacting blood safety/shortages/deferral policy Issues related to convalescent plasma
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), SENATE, White House Office
Cancer Drug Parity Act (S.741 / H.R.1730) Resident Physician Shortage Reduction Act of 2019 (S. 348/H.R. 1763) Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507) House resolution calling for sickle cell trait research, surveillance, and public education and awareness, and for other purposes (H.Res. 606) Senate resolution expressing support for the designation of September 2019 as "Sickle Cell Disease Awareness Month" (S.Res. 373) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders Reauthorization of the Patient-Centered Outcomes Research Institute (PCORI)
Public health program funding Federal research funding FY 2020 NIH funding FY 2020 funding for CDC Sickle Cell Disease Data Collection Program FY 2020 Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act (H.R. 2740) H.Amdt.283 to H.R. 2740 (increases funding to the Birth Defects, Development Disabilities, Disabilities and Health account by $2 million and decreases the administration account in the Office of the Secretary of Health and Human Services account by a similar amount) FY2020 Further Consolidated Appropriations Act (LHHSED, AG, Energy Water, Interior, Leg. Branch, MCVA, State-For. Ops, T-HUD)(H.R. 1865)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Commerce, Dept of (DOC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), SENATE, White House Office
Cancer Drug Parity Act (S.741 / H.R.1730) Resident Physician Shortage Reduction Act of 2019 (S. 348/H.R. 1763) Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507) House resolution calling for sickle cell trait research, surveillance, and public education and awareness, and for other purposes (H.Res. 606) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders NRC training and experience requirements for radiopharmaceuticals Impact of lowering poverty line on access to Medicaid and CHIP Reauthorization of the Patient-Centered Outcomes Research Institute (PCORI)
Sickle cell disease/trait issues Hematology/oncology treatment issues General hematology public health and research issues NRC training and experience requirements for radiopharmaceuticals Fetal tissue research Reauthorization of the Patient-Centered Outcomes Research Institute (PCORI)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), Office of Management & Budget (OMB), SENATE
Public health program funding Federal research funding FY 2020 NIH funding FY 2020 funding for CDC Sickle Cell Disease Data Collection Program FY 2020 Labor, Health and Human Services, Education, Defense, State, Foreign Operations, and Energy and Water Development Appropriations Act (H.R. 2740) H.Amdt.338 to H.R. 2740 (prohibits the use of funds for the implementation of a new HHS policy announced on June 5, 2019, that would restrict fetal tissue research) H.Amdt.283 to H.R. 2740 (increases funding to the Birth Defects, Development Disabilities, Disabilities and Health account by $2 million and decreases the administration account in the Office of the Secretary of Health and Human Services account by a similar amount)
Cancer Drug Parity Act (S.741 / H.R.1730) Resident Physician Shortage Reduction Act of 2019 (S. 348/H.R. 1763) Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders NRC training and experience requirements for radiopharmaceuticals Impact of lowering poverty line on access to Medicaid and CHIP Reauthorization of the Patient-Centered Outcomes Research Institute (PCORI)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), Office of Management & Budget (OMB), SENATE
CMS reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic diseases and disorders
Cancer Drug Parity Act (S.741 / H.R.1730) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic diseases and disorders NRC training and experience requirements for radiopharmaceuticals
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
Sickle cell disease/trait issues Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018/Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) Fetal tissue research Hematology/oncology treatment issues General hematology public health and research issues
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018/Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) Cancer Drug Parity Act (H.R. 1409/S. 3742) Patients Access to Treatment Act (H.R. 2999) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T and immunotherapies Issues impacting opioid access/use for patients with hematologic diseases and disorders
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Sickle Cell Disease/Trait Issues Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) resolution designating September 2018 as "Sickle Cell Disease Awareness Month" (S.Res. 661) Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues
FY 2019 Funding for the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and Agency for Healthcare Research and Quality (AHRQ), Health Resources and Services Administration (HRSA) Public Health Program Funding Federal Research Funding Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2019 (S.3158/H.R. 6570) Department of Defense and Labor, Health and Human Services, and Education Appropriations Act, 2019 and Continuing Appropriations Act, 2019 (H.R. 6157)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) Cancer Drug Parity Act (H.R. 1409) Patients Access to Treatment Act (H.R. 2999) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Issues Impacting Coverage for Hematologic Diseases and Conditions Reimbursement for CAR-T Issues impacting opioid access/use for patients with hematologic diseases and disorders
CMS reimbursement for CAR-T Protect Access to Cellular Transplant (PACT) Act (H.R. 4215) Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determinations Medicaid Coverage for Sickle Cell Disease Issues impacting opioid access/use for patients with hematologic diseases and disorders
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
FY 2018 Funding for the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and Agency for Healthcare Research and Quality (AHRQ), Health Resources and Services Administration (HRSA) Public Health Program Funding Federal Research Funding H.R.195, Continuing Resolution through February 8, 2018 Bipartisan Budget Act of 2018 (H.R. 1892) Consolidated Appropriations Act, 2018 (H.R.1625)
Protect Access to Cellular Transplant (PACT) Act (H.R. 4215) Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Medicaid Coverage for Sickle Cell Disease
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Protect Access to Cellular Transplant (PACT) Act (H.R. 4215) Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) American Health Care Act/Better Care Reconciliation Act/Health Care Freedom Act (H.R. 1628) Graham-Cassidy-Heller-Johnson Amendment re: ACA repeal/reform Bipartisan Health Care Stabilization Act (proposed by Senators Alexander and Murray) CMS National Coverage Determination Medicaid Coverage for Sickle Cell Disease
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) H.Res. 539, Calling for sickle-cell trait research, surveillance, and public education and awareness S.Res. 27, Designating September 2017 as "Sickle Cell Disease Awareness Month" Cancer Drug Parity Act (H.R. 1409) Patients Access to Treatment Act (H.R. 2999) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) American Health Care Act/Better Care Reconciliation Act/Health Care Freedom Act (H.R. 1628) Graham-Cassidy-Heller-Johnson Amendment re: ACA repeal/reform Bipartisan Health Care Stabilization Act (proposed by Senators Alexander and Murray) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Issues Impacting Coverage for Hematologic Diseases and Conditions
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) H.Res. 539, Calling for sickle-cell trait research, surveillance, and public education and awareness S.Res. 27, Designating September 2017 as "Sickle Cell Disease Awareness Month" Cancer Drug Parity Act (H.R. 1409) Patients Access to Treatment Act (H.R. 2999) Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) American Health Care Act/Better Care Reconciliation Act/Health Care Freedom Act (H.R. 1628) Graham-Cassidy-Heller-Johnson Amendment re: ACA repeal/reform Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Issues Impacting Coverage for Hematologic Diseases and Conditions
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) American Health Care Act/Better Care Reconciliation Act/Health Care Freedom Act (H.R. 1628) Graham-Cassidy-Heller-Johnson Amendment re: ACA repeal/reform Implementation of Patient Protection and Affordable Care Act (P.L. 111-148) Repeal of Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Medicaid Coverage for Sickle Cell Disease
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
FY 2017 and FY 2018 Funding for the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and Agency for Healthcare Research and Quality (AHRQ) Public Health Program Funding Federal Research Funding Consolidated Appropriations Act 2017(H.R. 244) Making Further Continuing Appropriations for FY2017 and for other purposes (H.J.Res. 99)
Sickle Cell Disease/Trait Issues Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (H.R. 2410) Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations Regulation of Laboratory Developed Tests Cancer "Moonshot" Initiative
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) (P.L. 114-10) American Health Care Act (H.R. 1628) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations Medicaid Coverage for Sickle Cell Disease
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), President of the U.S., SENATE, Veterans Affairs, Dept of (VA)
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015 (H.R. 1807) Advancing Hope Act (H.R. 1537/S. 1878) Sickle Cell Disease/Trait Issues Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations 21st Century Cures Act (H.R. 6, H.R. 34) Innovation for Healthier Americans initiative Regulation of laboratory developed tests Cancer "Moonshot" initiative
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (P.L. 114-10) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of the Vice President of the United States, SENATE, Veterans Affairs, Dept of (VA)
FY 2017 Legislative Branch Appropriations Act/Continuing Resolution through December 9, 2016 (H.R. 5325) FY 2017 Funding for the National Institutes of Health and Centers for Disease Control and Prevention (S.3040, H.R. 5926) Public Health Program Funding 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative
Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015 (H.R. 1807) Advancing Hope Act (H.R. 1537/S. 1878) Resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" (S.Res. 592/H.Res. 903) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Issues impacting coverage for hematologic diseases and conditions
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of the Vice President of the United States, SENATE, Veterans Affairs, Dept of (VA)
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Issues impacting coverage for hematologic diseases and conditions
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of the Vice President of the United States, SENATE, Veterans Affairs, Dept of (VA)
FY 2017 Funding for the National Institutes of Health and Centers for Disease Control and Prevention Public Health Program Funding 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative
Implementation of the Medicare Access and CHIP Reauthorization Act of 2015 (H.R. 2) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations The Protect Continuing Physician Education and Patient Care Act (H.R.293)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Veterans Affairs, Dept of (VA)
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations H.Res. 296, calling for sickle cell trait research 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Regulation of laboratory developed tests
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Issues impacting coverage for hematologic diseases and conditions
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Veterans Affairs, Dept of (VA)
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations H.Res. 296, calling for sickle cell trait research 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative regulation of laboratory developed tests
FY 2016 Funding for the National Institutes of Health and Centers for Disease Control and Prevention Public Health Program Funding Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016 (H.R. 3020/S. 1695) Continuing Appropriations Act, 2016 (H.R. 719) 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations H.Res. 296, calling for sickle cell trait research 21st Century Cures Act (H.R. 6)
FY 2016 Funding for the National Institutes of Health and Centers for Disease Control and Prevention Public Health Program Funding Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2016 *(H.R. 3020/S. 1695)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
FY 2016 Funding for the National Institutes of Health and Centers for Disease Control and Prevention Public Health Program Funding
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
FY 2015 Funding for the National Institutes of Health and Centers for Disease Control and Prevention Public Health Program Funding Departments of Labor, HHS, and Education, and Related Agencies Appropriations Act, 2015 FY 2015 Continuing Resolution (through December 13, 2014)(H.J.Res. 130) FY 2015 Continuing Resolution (through December 17, 2014)(H.J.Res. 131) FY 2015 Omnibus, Consolidated and Further Continuing Appropriations Act (H.R. 83)
Sickle Cell Disease/Trait Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148); Hematology and Oncology Drug Research and Approval Issues; Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144); Clinical Trials Regulations and Coverage; Cancer Drug Coverage Parity Act (H.R. 1801); Cancer Treatment Parity Act (S. 1879); Patients' Access to Treatments Act (H.R. 460)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
FY 2015 Funding for the National Institutes of Health and Centers for Disease Control and Prevention; Public Health Program Funding; Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2015
Sickle Cell Disease/Trait; Hematology/Oncology Treatment Issues; General Hematology Public Health and Research Issues
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Medicare Patient Access and Quality Improvement Act of 2013 (H.R. 2810) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials RegulationsSGR Repeal and Medicare Provider Payment Modernization Act (H.R. 4015 / S. 2000) Protecting Access to Medicare Act of 2014 (H.R. 4302)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues The Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage; Cancer Drug Coverage Parity Act (H.R. 1801)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues The Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials regulations and coverage; Cancer Drug Coverage Parity Act (H.R. 1801)
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) CMS National Coverage Determination Clinical Trials Regulations
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Hematology workforce issues The Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials regulations and coverage
FY 2013 Funding for the National Institutes of Health Public Health Program Funding S. 3295, Department of Labor, Health and Human Services, Education, and Related Agencies Appropriations Act, 2013
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Thrombosis Sickle Cell Disease/Trait Comparative Effectiveness Research Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues Embryonic Stem Cell Research and Regenerative Medicine H.R. 3433, the Grant Reform and New Transparency Act
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
FY 2013 Funding for the National Institutes of Health Public Health Program Funding
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Health Insurance Portability and Accountability Act
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
Thrombosis Sickle Cell Disease Clinical Trials Regulations Electronic Health Records (EHR) Comparative Effectiveness Research Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues Embryonic Stem Cell Research and Regenerative Medicine Hematology and Oncology Drug Research and Approval Issues, Drug Shortage Issues H.R. 2376, the Stem Cell Research Advancement Act of 2011 S. 296, the Preserving Access to Life-Saving Medications Act H.R. 2245, the Preserving Access to Life-Saving Medications Act Hematology workforce issues
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Health Insurance Portability and Accountability Act
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
Thrombosis Sickle Cell Disease Clinical Trials Regulations Electronic Health Records (EHR) Comparative Effectiveness Research Hematology/Oncology treatment Issues General Hematology Public Health and Research Issues Embryonic Stem Cell Research and Regenerative Medicine Hematology and Oncology Drug Research and Approval Issues, Drug Shortage Issues H.R. 2376, the Stem Cell Research Advancement Act of 2011 S. 296, the Preserving Access to Life-Saving Medications Act H.R. 2245, the Preserving Access to Life-Saving Medications Act Hematology workforce issues
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Health Insurance Portability and Accountability Act
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting System (PQRS) Measures Electronic Health Records CMS Strategic Priorities
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
FY 2011 and FY 2012 Funding for the National Institutes of Health Public Health Program Funding H.R. 1, the 2011 Full-Year Continuing Appropriations Act
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Medicare Advantage Coverage of Routine Costs for Clinical Trials Participants Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Physician Quality Reporting System (PQRS) Measures Electronic Health Records CMS Strategic Priorities
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Health Insurance and Portability Act
Continuing Appropriations and Surface Transportation Extensions Act, 2011 (H.R. 3082) Funding for the National Institutes of Health Public Health Program Funding House and Senate FY 2011 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Bills
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Nuclear Regulatory Commission (NRC), SENATE
Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) Health Insurance and Portability Act
Medicare Physician Payment: Medicare Reimbursement; Medicare Coverage Policies Electronic Health Records Implementation of Health Reform Legislation / Patient Protection and Affordable Care Act (P.L. 111-148) CMS Strategic Priorities Physician Quality Reporting Initiative (PQRI) Measures
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Funding for the National Institutes of Health House and Senate FY 2011 Departments of Labor, HHS, and Education, and Related Agencies Appropriations Bills Public Health Program Funding
Stem Cell Research Advancement Act (H.R. 4808) / Embryonic Stem Cell Research Bone Marrow Failure Disease Research and Treatment Act (H.R. 1230) General Hematology Public Health and Research Issues Hematology and Oncology Drug Research and Approval Issues Resolution Expressing Support for Designation of September 2010 as Blood Cancer Awareness Month (H.Res. 1433) Comparative Effectiveness Research (CER) Sickle Cell Disease Public Access Thrombosis Electronic Health Records (EHRs) Hematology/Oncology treatment Issues Clinical Trials Insurance Coverage Electronic Prescription for Controlled Substances
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of Science & Technology Policy (OSTP), SENATE
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), President of the U.S., SENATE