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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2026 · third_quarter · Q3
Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Advocate for funding for Medicaid and strengthening HCBS, Developmental Disabilities programs
Source: Senate LDA
ENABLE Act (passed in HR 1); other ABLE improvement bills (support); ABLE Employment Flexibility Act (support); ABLE 3.0 package (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
ENABLE Act (passed in HR 1); other ABLE improvement bills (support); ABLE Employment Flexibility Act (support); ABLE 3.0 package (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, save funding for UCEDDDs
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
ENABLE Act (passed in HR 1); other ABLE improvement bills (support); ABLE Employment Flexibility Act (support); ABLE 3.0 package (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Protecting Students with Disabilities Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protecting Students with Disabilities Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protecting Students with Disabilities Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Prescription Drug Transparency and Affordability Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Prescription Drug Transparency and Affordability Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Prescription Drug Transparency and Affordability Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support); HCBS Access Act (support)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Department of Education Protection Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Department of Education Protection Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Department of Education Protection Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Restoring Sovereignty and Human Rights in Nicaragua Act of 2026
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support); HCBS Access Act (support)
Restoring Sovereignty and Human Rights in Nicaragua Act of 2026
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Restoring Sovereignty and Human Rights in Nicaragua Act of 2026
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
To terminate the Department of Education.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
To terminate the Department of Education.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
To terminate the Department of Education.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Stop the Wait Act of 2025
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Stop the Wait Act of 2025
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Stop the Wait Act of 2025
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support); HCBS Access Act (support)
SSI Savings Penalty Elimination Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
SSI Savings Penalty Elimination Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
SSI Savings Penalty Elimination Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support); HCBS Access Act (support)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Returning Education to Our States Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Returning Education to Our States Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Returning Education to Our States Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support); HCBS Access Act (support)
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
ENABLE Act (passed in HR 1); other ABLE improvement bills; ABLE Employment Flexibility Act (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
ENABLE Act (passed in HR 1); other ABLE improvement bills; ABLE Employment Flexibility Act
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
ENABLE Act (passed in HR 1); other ABLE improvement bills
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, save funding for UCEDDDs
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, UCEDDDs
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, save funding for UCEDDDs
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Protecting Students with Disabilities Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protecting Students with Disabilities Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protecting Students with Disabilities Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Prescription Drug Transparency and Affordability Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Prescription Drug Transparency and Affordability Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Prescription Drug Transparency and Affordability Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Department of Education Protection Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Department of Education Protection Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Department of Education Protection Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Restoring Sovereignty and Human Rights in Nicaragua Act of 2026
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Restoring Sovereignty and Human Rights in Nicaragua Act of 2026
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Restoring Sovereignty and Human Rights in Nicaragua Act of 2026
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
To terminate the Department of Education.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
To terminate the Department of Education.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
To terminate the Department of Education.
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Stop the Wait Act of 2025
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Stop the Wait Act of 2025
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Stop the Wait Act of 2025
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
SSI Savings Penalty Elimination Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
SSI Savings Penalty Elimination Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
SSI Savings Penalty Elimination Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
IDEA Full Funding Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Returning Education to Our States Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Returning Education to Our States Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Returning Education to Our States Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Charlotte Woodward Organ Transplant Discrimination Prevention Act
Client: NATIONAL DOWN SYNDROME CONGRESS · Firm: NATIONAL DOWN SYNDROME CONGRESS
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support)
ENABLE Act (passed in HR 1); other ABLE improvement bills (support); ABLE Employment Flexibility Act (support); ABLE 3.0 package (support)
Phase out 14(c) subminimum wage; Transformation to Competitive Integrated Employment Act (support)
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support); HCBS Access Act (support)
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2026 · second_quarter · Q2
Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Protect Medicaid- SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
ENABLE Act (passed in HR 1); other ABLE improvement bills (support); ABLE Employment Flexibility Act (support); ABLE 3.0 package (support)
Phase out 14(c) subminimum wage; Transformation to Competitive Integrated Employment Act (support)
Advocate for funding for Medicaid and strengthening HCBS, Developmental Disabilities programs
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2026 · first_quarter · Q1
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, save funding for UCEDDDs
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
ENABLE Act (passed in HR 1); other ABLE improvement bills (support); ABLE Employment Flexibility Act (support); ABLE 3.0 package (support)
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Phase out 14(c) subminimum wage; Transformation to Competitive Integrated Employment Act (support)
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2025 · fourth_quarter · Q4
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, save funding for UCEDDDs
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support); Deondra Dixon INCLUDE Act (support)
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Phase out 14(c) subminimum wage; Transformation to Competitive Integrated Employment Act (support)
ENABLE Act (passed in HR 1); other ABLE improvement bills; ABLE Employment Flexibility Act (support)
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2025 · third_quarter · Q3
ENABLE Act (passed in HR 1); other ABLE improvement bills; ABLE Employment Flexibility Act
None
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, save funding for UCEDDDs
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support)
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Phase out 14(c) subminimum wage; Transformation to Competitive Integrated Employment Act
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2025 · second_quarter · Q2
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
One Big Beautiful Bill (HR 1) - OPPOSE; Advocate for funding for Medicaid, HHS, Developmental Disabilities programs, UCEDDDs
HR 1 - OPPOSE (cuts to Medicaid); Charlotte Woodward Organ Transplant Discrimination Act (HR 1520/S. 1782) (support)
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2025 · first_quarter · Q1
Protect the US Department of Education; IDEA Full Funding Act
Funding for Medicaid, HHS, Developmental Disabilities programs
HEADS Up Act; Protect DD Act; Protect ACL/HHS funding
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2024 · fourth_quarter · Q4
Disability community concerns regarding employment Elimination of 14 (c) subminimum wage and grants to expand competitive integrated employment and community-based supports and Department of Labor review of 14(c) program H.R. 1263 / S.533, the Transformation to Competitive Integrated Employment Act, related to assisting employers providing employment under special certificates issued under section 14(c) of the Fair Labor Standards Act of 1938 in transforming their business and program models to models that support individuals with disabilities through competitive integrated employment, to phase out the use of such special certificates, and for other purposes. Supporting the Direct Support Professional workforce S.1332/H.R. 2941 - Recognizing the Role of Direct Support Professionals Act Workforce Investment and Opportunity Act Reauthorization S. 3528, Supporting Disabled Entrepreneurs Act - establish program in Small Business Administration
Implementation of the Individuals with Disabilities Education Act (P.L. 89-110); IDEA Full Funding Act Keep All Students Safe Act (restraint & seclusion)
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2024 · third_quarter · 3A
We advocated for the following bills: Keeping All Students Safe Act (H.R.3470/S.1750), RISE Act (H.R. 2401/S.1071), IDEA Full Funding Act (S. 2217), The Preparing and Retaining All Students Act (H.R.4550).
We urge Congress to pass the SSI Savings Penalty Elimination Act (H.R. 5408/S.2767) which would update asset limit in the Supplemental Security Income program.
We urged Congress to pass the H.R.3380 - HEADs UP Act of 2023 which would authorize the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. Grant recipients must provide specialized treatment to individuals with developmental disabilities as necessary. Advocated and lobbied for the Down Syndrome Diagnosis Act.
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2024 · third_quarter · Q3
We advocated for the following bills: Keeping All Students Safe Act (H.R.3470/S.1750), RISE Act (H.R. 2401/S.1071), IDEA Full Funding Act (S. 2217), The Preparing and Retaining All Students Act (H.R.4550).
Urged Congress to pass Recognizing the Role of Direct Support Professionals Act (S.1332/H.R.2941) which would require the Office of Management and Budget to establish a separate category within the Standard Occupational Classification system for direct support professionals (i.e., individuals who provide services to promote independence in individuals with an intellectual or developmental disability) for data reporting purposes. SSI Savings Penalty Elimination Act, HCBS Relief Act, Eliminating Marriage Penalty in SSI Act (EMPSA)
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2024 · first_quarter · 1A
We urged Congress to pass the H.R.3380 - HEADs UP Act of 2023 which would authorize the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. Grant recipients must provide specialized treatment to individuals with developmental disabilities as necessary. Advocated and lobbied for the Down Syndrome Diagnosis Act.
We urged Congress to pass the following bills: Keeping All Students Safe Act (H.R.3470/S.1750), RISE Act (H.R. 2401/S.1071), IDEA Full Funding Act (S. 2217), The Preparing and Retaining All (H.R.4550).
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2024 · second_quarter · Q2
Lobbied for increase funding for the Individual with Disabilities Education Act and the Transition and Postsecondary Programs for Students with Intellectual Disabilities.
We urged Congress to pass the following bills: Keeping All Students Safe Act (H.R.3470/S.1750), RISE Act (H.R. 2401/S.1071), IDEA Full Funding Act (S. 2217), The Preparing and Retaining All (H.R.4550).
Urged Congress to pass the Transformation to Competitive Integrated Employment Act (S.533/H.R. 1263) which would phase out the use of subminimum certificates for people with disabilities. We also sent recommendations to the House and Senate for a reauthorization of the Workforce Innovation and Opportunity Act.
NATIONAL DOWN SYNDROME CONGRESS via NATIONAL DOWN SYNDROME CONGRESS
2024 · first_quarter · Q1
Urged Congress to pass Recognizing the Role of Direct Support Professionals Act (S.1332/H.R.2941) which would require the Office of Management and Budget to establish a separate category within the Standard Occupational Classification system for direct support professionals (i.e., individuals who provide services to promote independence in individuals with an intellectual or developmental disability) for data reporting purposes. SSI Savings Penalty Elimination Act, HCBS Relief Act, Eliminating Marriage Penalty in SSI Act (EMPSA)
Urged Congress to pass the Transformation to Competitive Integrated Employment Act (S.533/H.R. 1263) which would phase out the use of subminimum certificates for people with disabilities. We also sent recommendations to the House and Senate for a reauthorization of the Workforce Innovation and Opportunity Act.
Protect Medicaid- Oppose OBBBA (HR1); SSI Savings Penalty Elimination Act (HR 2450/S. 1234) (support); Eliminating the Marriage Penalty in SSI Act (S. 73/HR 7055) (support); Stop the Wait Act of 2025 (HR 930) (support)
Phase out 14(c) subminimum wage; Transformation to Competitive Integrated Employment Act
ENABLE Act (passed in HR 1); other ABLE improvement bills
None
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Protect Medicaid
Phase out 14(c) subminimum wage; Transformation to Competitive Integrated Employment Act
ENABLE Act; other ABLE improvement bills
None
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Lobbied for increased funding for the Individual with Disabilities Education Act and the Transition and Postsecondary Programs for Students with Intellectual Disabilities.
Funding for long-term supports and services workforce Expanding access to health care Supporting a comprehensive approach to health equity and accountability H.R.7213-Autism CARES Act of 2024 H.R. 7406, the DeOndra Dixon INCLUDE Project Act of 2024 H.R.2706 - Charlotte Woodward Organ Transplant Discrimination Prevention Act H.R. 6160- Lifespan Respite Care Act reauthorization H.R. 2706/S.1183, The Charlotte Woodward Organ Transplant Discrimination Prevention Act, related to prohibiting discrimination on the basis of mental or physical disability in cases of anatomical gifts and organ transplants H.R.3308 - HEADs UP Act of 2023 - This bill authorizes the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. H.R. 2965/S.1333, Autism Family Caregivers Act of 2023
Bills to improve the Stephen Beck Jr Achieving a Better Life Experience (ABLE) Act - S. 4539/H.R. 9614, ENABLE Act S. 2522/H.R. 5102, ABLE Match Act S. 4910, ABLE Awareness Act S. 4911, ABLE Employment Flexibility Act H.R.10296, ABLE Tomorrow Act
Increased funding for Medicaid and SSI; eliminate barriers to employment and independence while preserving benefits; Funding for the Direct Care Workforce and addressing worker shortages SSI Savings Penalty Elimination Act (increase SSI asset limitation) S. 3118/HR 6296 The HCBS Relief Act (more funding for Medicaid HCBS) H.R. 7055 - Eliminating Marriage Penalty in SSI Act (EMPSA)
Improvements to Social Security Act Title II and Title XVI for people with disabilities. Supplemental Security Income program issues, provisions dealing with persons with disabilities. Social Security Disability program issues, provisions dealing with persons with disabilities. The SSI Savings Penalty Elimination Act (S.2767/H.R.5408) The Stop the Wait Act (S. 320/H.R. 883), the Work Without Worry Act (S.2196), and the SSI Restoration Act (H.R.7138). Eliminating the Marriage Penalty in SSI Act (HR 7055)
Filing targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), SENATE
Urged Congress to pass the Transformation to Competitive Integrated Employment Act (S.533/H.R. 1263) which would phase out the use of subminimum certificates for people with disabilities. We also sent recommendations to the House and Senate for a reauthorization of the Workforce Innovation and Opportunity Act.
Lobbied for increase funding for the Individual with Disabilities Education Act and the Transition and Postsecondary Programs for Students with Intellectual Disabilities.
Urged Congress to pass Recognizing the Role of Direct Support Professionals Act (S.1332/H.R.2941) which would require the Office of Management and Budget to establish a separate category within the Standard Occupational Classification system for direct support professionals (i.e., individuals who provide services to promote independence in individuals with an intellectual or developmental disability) for data reporting purposes. SSI Savings Penalty Elimination Act, HCBS Relief Act, Eliminating Marriage Penalty in SSI Act (EMPSA)
Filing targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), SENATE
We urge Congress to pass the SSI Savings Penalty Elimination Act (H.R. 5408/S.2767) which would update asset limit in the Supplemental Security Income program.
Lobbied for increase funding for the Individual with Disabilities Education Act and the Transition and Postsecondary Programs for Students with Intellectual Disabilities.
Urged Congress to pass the Transformation to Competitive Integrated Employment Act (S.533/H.R. 1263) which would phase out the use of subminimum certificates for people with disabilities. We also sent recommendations to the House and Senate for a reauthorization of the Workforce Innovation and Opportunity Act.
We urged Congress to pass the H.R.3380 - HEADs UP Act of 2023 which would authorize the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. Grant recipients must provide specialized treatment to individuals with developmental disabilities as necessary. Advocated and lobbied for the Down Syndrome Diagnosis Act.
Filing targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), SENATE
Lobbied for increase funding for the Individual with Disabilities Education Act and the Transition and Postsecondary Programs for Students with Intellectual Disabilities.
Urged Congress to pass the Transformation to Competitive Integrated Employment Act (S.533/H.R. 1263) which would phase out the use of subminimum certificates for people with disabilities. We also sent recommendations to the House and Senate for a reauthorization of the Workforce Innovation and Opportunity Act.
Urged Congress to pass Recognizing the Role of Direct Support Professionals Act (S.1332/H.R.2941) which would require the Office of Management and Budget to establish a separate category within the Standard Occupational Classification system for direct support professionals (i.e., individuals who provide services to promote independence in individuals with an intellectual or developmental disability) for data reporting purposes. SSI Savings Penalty Elimination Act, HCBS Relief Act, Eliminating Marriage Penalty in SSI Act (EMPSA)
We urge Congress to pass the SSI Savings Penalty Elimination Act (H.R. 5408/S.2767) which would update asset limit in the Supplemental Security Income program.
Filing targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), SENATE
We urge Congress to pass the SSI Savings Penalty Elimination Act (H.R. 5408/S.2767) which would update asset limit in the Supplemental Security Income program.
We urged Congress to pass the H.R.3380 - HEADs UP Act of 2023 which would authorize the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. Grant recipients must provide specialized treatment to individuals with developmental disabilities as necessary. Advocated and lobbied for the Down Syndrome Diagnosis Act.
Urged Congress to pass Recognizing the Role of Direct Support Professionals Act (S.1332/H.R.2941) which would require the Office of Management and Budget to establish a separate category within the Standard Occupational Classification system for direct support professionals (i.e., individuals who provide services to promote independence in individuals with an intellectual or developmental disability) for data reporting purposes. SSI Savings Penalty Elimination Act, HCBS Relief Act, Eliminating Marriage Penalty in SSI Act (EMPSA)
Filing targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), SENATE
We urged Congress to pass the following bills: Keeping All Students Safe Act (H.R.3470/S.1750), RISE Act (H.R. 2401/S.1071), IDEA Full Funding Act (S. 2217), The Preparing and Retaining All (H.R.4550).
Lobbied for increase funding for the Individual with Disabilities Education Act and the Transition and Postsecondary Programs for Students with Intellectual Disabilities.
We urged Congress to pass the H.R.3380 - HEADs UP Act of 2023 which would authorize the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. Grant recipients must provide specialized treatment to individuals with developmental disabilities as necessary. Advocated and lobbied for the Down Syndrome Diagnosis Act.
We urge Congress to pass the SSI Savings Penalty Elimination Act (H.R. 5408/S.2767) which would update asset limit in the Supplemental Security Income program.
Filing targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), SENATE