2050 -- Huntington’s Disease Disability Insurance Access Act of 2021 | Poliscope

Huntington’s Disease Disability Insurance Access Act of 2021

2050

117th Congress

In Committee

Huntington’s Disease Disability Insurance Access Act of 2021

Legislative Progress

✓

Introduced

2

Committee

3

Floor Vote

4

Other Chamber

5

Enacted

Introduced

March 18, 2021

Latest Action

March 18, 2021

Primary Sponsor

Bill Pascrell, Jr.Democratic(NJ)

Momentum (last 30 days)

0

score

0 actions · 0 new cosponsors · 0 votes

Speed vs cohort

0pct

0d open

vs 9,698 other HR bills in the 117th — cohort avg 63d

Summary

Huntington's Disease Disability Insurance Access Act of 2021 This bill expedites payment of Social Security Disability Insurance (SSDI) benefits and eligibility for Medicare coverage for those with Huntington's disease. This is an inherited disorder that causes brain cells to die, including in areas of the brain that help to control voluntary movement. Specifically, the bill eliminates the 5-month waiting period for SSDI benefits and the subsequent 24-month waiting period for Medicare coverage for individuals with Huntington's disease. Under current law, individuals generally must wait five months after the onset of disability to begin receiving SSDI benefits and an additional 24 months to become eligible for Medicare.

Lobbying filings that explicitly cite this bill (19)

These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.

Filing registrants (2)

THORN RUN PARTNERS (13)PTC THERAPEUTICS, INC. (6)

PTC THERAPEUTICS, INC.client→PTC THERAPEUTICS, INC.

2023 · first_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Issues relating to the adoption of value-based payment arrangements; H.R. 7389 - MVP Act; H.R. 2050- Huntington's Disease Disability Insurance Access Act of 2021

Client expense: $570,000 · Firm income: Not reported

H.R. 2050

JONATHAN MCPHERSON

Subjects (4)

Disability assistance

Hereditary and development disorders

Neurological disorders

Actions (3)

March 18, 2021

Referred to the Subcommittee on Social Security.

March 18, 2021

Referred to the House Committee on Ways and Means.

March 18, 2021

Introduced in House

Congress.gov source codes: 1000, Intro-H

Committees

Committee	Chamber	Activity	Date
Ways and Means Committee	House	Referred to	March 18, 2021

Text Versions

Version	Date	Links
Introduced in House	March 18, 2021	XML

Cosponsors (177)

Name	Party	State
A. Donald McEachin	Democratic	VA
Adam B. Schiff	Democratic	CA
Adam Kinzinger	Republican	IL

Related Bills (1)

Bill	Congress	Relationship
S 868	117th	Identical bill

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Sources: Congress.gov

Show 15 more cited filings

PTC THERAPEUTICS, INC.client→PTC THERAPEUTICS, INC.

2022 · fourth_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Issues relating to the adoption of value-based payment arrangements; H.R. 7389 - MVP Act; H.R. 2050- Huntingtons Disease Disability Insurance Access Act of 2021;

Client expense: $160,000 · Firm income: Not reported

H.R. 2050

JONATHAN MCPHERSON LEAH SVOBODA mr NICHOLAS BRAUGHTON

Government targets: HOUSE OF REPRESENTATIVES

PTC THERAPEUTICS, INC.client→THORN RUN PARTNERS

2022 · fourth_quarter · Health Issues

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H.Res.742 - Supporting the designation of October 23, 2021, as "AADC Deficiency Awareness Day". H.R.2050/S.868 - Huntingtons Disease Disability Insurance Access Act of 2021. H.R.2617 - Consolidated Appropriations Act, 2023.

Client expense: Not reported · Firm income: $50,000

H.R.2050

ANDREW ROSENBERG BEAU SCHUYLER STUART CHAPMAN

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2022 · fourth_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Focused on including the HD Parity Act (H.R.2050/S.868) in the end-of-year omnibus package.

Client expense: Not reported · Firm income: $30,000

H.R.2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2022 · third_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050), and identify opportunities to pass the legislation as part of another vehicle.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, SENATE

PTC THERAPEUTICS, INC.client→THORN RUN PARTNERS

2022 · third_quarter · Health Issues

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H.Res.742 - Supporting the designation of October 23, 2021, as "AADC Deficiency Awareness Day". H.R.2050/S.868 - Huntingtons Disease Disability Insurance Access Act of 2021.

Client expense: Not reported · Firm income: $50,000

H.R.2050

ANDREW ROSENBERG BEAU SCHUYLER STUART CHAPMAN

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2022 · third_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

PTC THERAPEUTICS, INC.client→PTC THERAPEUTICS, INC.

2022 · third_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Issues relating to the adoption of value-based payment arrangements; H.R. 7389 - MVP Act; H.R. 2050- Huntingtons Disease Disability Insurance Access Act of 2021;

Client expense: $190,000 · Firm income: Not reported

H.R. 2050

JONATHAN MCPHERSON LEAH SVOBODA mr NICHOLAS BRAUGHTON

Government targets: HOUSE OF REPRESENTATIVES

PTC THERAPEUTICS, INC.client→THORN RUN PARTNERS

2022 · second_quarter · Health Issues

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H. Res. 742, Designation of AADC Deficiency Awareness Day. S. 868/H.R. 2050, Huntington's Disease Parity Act

Client expense: Not reported · Firm income: $50,000

H.R. 2050

ANDREW ROSENBERG BEAU SCHUYLER STUART CHAPMAN

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2022 · second_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

PTC THERAPEUTICS, INC.client→THORN RUN PARTNERS

2022 · first_quarter · Health Issues

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H.R. 742: Supporting the designation of October 23, 2021, as AADC Deficiency Awareness Day. S. 868/H.R. 2050, Huntington's Disease Parity Act

Client expense: Not reported · Firm income: $50,000

H.R. 2050

ANDREW ROSENBERG BEAU SCHUYLER STUART CHAPMAN

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2022 · first_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2021 · fourth_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2021 · third_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in Congress Build Back Better proposals.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2021 · second_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support proposed by the Presidents American Jobs Act and American Family Plan.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

HUNTINGTON'S DISEASE SOCIETY OF AMERICAclient→THORN RUN PARTNERS

2021 · first_quarter · Medicare/Medicaid

Open original LDA filing ↗

Cited source text, amounts, lobbyists, and targets

Secured reintroduction of the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050), which eliminates the two-year waiting period for Medicare eligibility and the six-month waiting period of SSDI benefits for persons with HD who qualify for disability benefits. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support that were considered as part of H.R. 1319, American Rescue Plan of 2021.

Client expense: Not reported · Firm income: $30,000

H.R. 2050

CATHERINE FINLEY

Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE