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Huntington’s Disease Disability Insurance Access Act of 2021
Legislative Progress
Introduced
March 18, 2021
Latest Action
March 18, 2021
Primary Sponsor
Kirsten E. GillibrandDemocratic(NY)
Momentum (last 30 days)
0
score
0 actions · 0 new cosponsors · 0 votes
Speed vs cohort
0pct
0d open
vs 5,357 other S bills in the 117th — cohort avg 38d
Huntington's Disease Disability Insurance Access Act of 2021 This bill expedites payment of Social Security Disability Insurance (SSDI) benefits and eligibility for Medicare coverage for those with Huntington's disease. This is an inherited disorder that causes brain cells to die, including in areas of the brain that help to control voluntary movement. Specifically, the bill eliminates the 5-month waiting period for SSDI benefits and the subsequent 24-month waiting period for Medicare coverage for individuals with Huntington's disease. Under current law, individuals generally must wait five months after the onset of disability to begin receiving SSDI benefits and an additional 24 months to become eligible for Medicare.
These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.
Filing registrants (2)
2023 · first_quarter · Health Issues
Implementation of Mental Health Access and Improvement Act of 2022 (H.R.432/S.868) (117th)
Client expense: Not reported · Firm income: $30,000
Read twice and referred to the Committee on Finance.
Introduced in Senate
Bills with similar content found using semantic analysis.
Sources: Congress.gov
Government targets: Centers For Medicare and Medicaid Services (CMS)
2022 · fourth_quarter · Health Issues
Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H.Res.742 - Supporting the designation of October 23, 2021, as "AADC Deficiency Awareness Day". H.R.2050/S.868 - Huntingtons Disease Disability Insurance Access Act of 2021. H.R.2617 - Consolidated Appropriations Act, 2023.
Client expense: Not reported · Firm income: $50,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
2022 · fourth_quarter · Medicare/Medicaid
Focused on including the HD Parity Act (H.R.2050/S.868) in the end-of-year omnibus package.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · third_quarter · Medicare/Medicaid
Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050), and identify opportunities to pass the legislation as part of another vehicle.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · third_quarter · Health Issues
Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H.Res.742 - Supporting the designation of October 23, 2021, as "AADC Deficiency Awareness Day". H.R.2050/S.868 - Huntingtons Disease Disability Insurance Access Act of 2021.
Client expense: Not reported · Firm income: $50,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
2022 · third_quarter · Medicare/Medicaid
Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2022 · second_quarter · Health Issues
Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H. Res. 742, Designation of AADC Deficiency Awareness Day. S. 868/H.R. 2050, Huntington's Disease Parity Act
Client expense: Not reported · Firm income: $50,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
2022 · second_quarter · Medicare/Medicaid
Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2022 · first_quarter · Health Issues
Issues related to the development of therapies for rare diseases. Federal Funding for Covid-19 therapies. Increased awareness for AADC deficiency. H.R. 742: Supporting the designation of October 23, 2021, as AADC Deficiency Awareness Day. S. 868/H.R. 2050, Huntington's Disease Parity Act
Client expense: Not reported · Firm income: $50,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
2022 · first_quarter · Medicare/Medicaid
Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2021 · fourth_quarter · Medicare/Medicaid
Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in the Build Back Better Act.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2021 · third_quarter · Medicare/Medicaid
Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support considered for inclusion in Congress Build Back Better proposals.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2021 · second_quarter · Medicare/Medicaid
Working to increase the number of cosponsors for the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050) and identify opportunities to highlight the importance of the policy. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support proposed by the Presidents American Jobs Act and American Family Plan.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2021 · first_quarter · Medicare/Medicaid
Secured reintroduction of the Huntingtons Disease Parity Act of 2021 (S. 868/H.R. 2050), which eliminates the two-year waiting period for Medicare eligibility and the six-month waiting period of SSDI benefits for persons with HD who qualify for disability benefits. Pursuing policies on behalf of HDSA related to COVID 19 response and federal support that were considered as part of H.R. 1319, American Rescue Plan of 2021.
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
| Democratic |
| NY |
| Christopher A. Coons | Democratic | DE |
| Cory A. Booker | Democratic | NJ |
| Debbie Stabenow | Democratic | MI |
| Dianne Feinstein | Democratic | CA |
| Edward J. Markey | Democratic | MA |
| Elizabeth Warren | Democratic | MA |
| Kyrsten Sinema | Independent | AZ |
| Lisa Murkowski | Republican | AK |
| Margaret Wood Hassan | Democratic | NH |
| Mark Kelly | Democratic | AZ |
| Richard Blumenthal | Democratic | CT |
| Roy Blunt | Republican | MO |
| Sherrod Brown | Democratic | OH |
| Susan M. Collins | Republican | ME |
| Thom Tillis | Republican | NC |
| Thomas R. Carper | Democratic | DE |