Loading…
Sickle Cell Disease Comprehensive Care Act
Legislative Progress
Momentum (last 30 days)
0
score
0 actions · 0 new cosponsors · 0 votes
Speed vs cohort
43pct
1d open
vs 9,698 other HR bills in the 117th — cohort avg 63d
Sickle Cell Disease Comprehensive Care Act This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young adults and pregnant women. The Centers for Medicare & Medicaid Services must award planning grants to at least 10 states and must select between 5 and 10 states to participate in the project. Participating states must provide specified services and support for individuals with sickle cell disease, including multidisciplinary care teams, appropriate treatments, mental health services, and specialist services. The bill provides a 100% Federal Medical Assistance Percentage (i.e., federal matching rate) for services provided through the project.
These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.
Filing registrants (8)
Referred to the Subcommittee on Health.
Referred to the House Committee on Energy and Commerce.
Introduced in House
Congress.gov source codes: 1000, Intro-H
Bills with similar content found using semantic analysis.
Sources: Congress.gov
2023 · first_quarter · Health Issues
H.R. 6216/S. 3389 - Sickle Cell Disease Comprehensive Care Act (117th Congress) H.R. 8855/S. 4866, the Sickle Cell Disease Treatment Centers Act of 2022 (117th Congress) H.R.5376 - Inflation Reduction Act of 2022 (117th) H.R.2471 - Consolidated Appropriations Act, 2022 (117th) H.R.1350 - Camerons Law
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, White House Office
2022 · fourth_quarter · Medicare/Medicaid
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Advancing Telehealth Beyond COVID Act (H.R. 4040) Supporting Medicare Providers Act (H.R. 8800) FY2023 Consolidated Appropriations Act (H.R. 2617)
Client expense: $30,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2022 · fourth_quarter · Health Issues
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177/S.4425) Women's Health Protection Act (S. 1975/ H.R. 3755/S. 4132) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Health Equity and Accountability Act (H.R. 7585) Issues related to maternal health care and abortion access Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348) Affordability of employer coverage for family members/"family glitch Sickle Cell Disease Treatment Centers Act of 2022 (S. 4866/ H.R. 8855) Advancing Telehealth Beyond COVID Act (H.R. 4040) Resolution supporting the designation of September 2022 as "Sickle Cell Disease Awareness Month" (H.Res.1330/S.Res.868) Let Doctors Provide Reproductive Health Care Act (S. 4723/H.R. 8650) FY2023 Consolidated Appropriations Act (H.R. 2617)
Client expense: $30,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Internal Revenue Service (IRS), Natl Institutes of Health (NIH), SENATE
2022 · fourth_quarter · Health Issues
Health Insurance Coverage (general); Health Equity (general); Breastfeeding (general); Assisted Reproductive Technology (general); Substance Use Disorder (general); Gynecologic Cancer (general); Reproductive Health (general); Intimate Partner Violence (general); Gun Violence (general); Immunization (general); Breast Cancer (general); Medical Liability Reform (general); Health IT (general); Patient-Physician Relationship (general); Child Welfare (general); Maternal Mortality and Morbidity (general); Graduate Medical Education (general); Contraception (general); Abortion (general); Indian Health (general); Teaching Health Centers Graduate Medical Education (general); Community Health Centers (general); National Health Service Corps (general); Health care workforce (general; Sexually Transmitted Infections (general); Access and Provision of Medication for Opioid Use Disorder (HHS); Research in Pregnant and Breastfeeding Women (general); Health Care Reform (general); Title X Family Planning Program (general); Womens Preventive Services (general); Administrative Burden (general); COVID-19 Response (general); COVID-19 Vaccines (general); Pandemic Preparedness (general); Risk Evaluation and Mitigation Strategies (general); Data Collection (general); Health Insurance and Portability and Accountability Act (general); Social Determinants of Health (General); Maternal Mental Health (general); Online misinformation (general); EMTALA (general); Father Engagement (general); Care for Individuals with Disabilities (general); H.R. 3755/S. 1975, Womens Health Protection Act; implementation of P.L. 115-320, Improving Access to Maternity Care Act; implementation of Maternal Health Quality Improvement Act contained in P.L. 117-103; H.R. 959/ S. 346, Black Maternal Health Momnibus Act; H.R. 1065/S. 1486, Pregnant Workers Fairness Act; H.R. 1350/ S.408, Supporting Best Practices for Healthy Moms Act; H.R. 3407/S. 411, MOMMAs Act; implementation of P.L. 117-2, the American Rescue Plan Act of 2021; H.R. 2007/S. 2444, Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021; H.R. 3110/S. 1658, PUMP for Nursing Mothers Act; H.R. 2903/S.1515, CONNECT for Health Act; H.R. 3671/S.1958, Doctors of Community (DOC) Act; Implementation of P.L. 114-255, the 21st Century Cures Act; Implementation of the No Surprises Act contained in P.L. 116-260; H.R. 482/S. 350, Newborn Screening Saves Lives Reauthorization Act; H.R. 804/S. 248, FAMILY Act; H.R. 5/S. 393, Equality Act; Implementation of P.L. 117-168, Inflation Reduction Act of 2022; H.R. 5218, Collaborate in an Orderly and Cohesive Manner Act; H.R. 5239/ S. 2941, Good Samaritan Health Professionals Act of 2021; H.R. 7073/S.3824, Into the Light for MMH and SUD Act of 2022; H.R.5487/S.3972, SHINE for Autumn Act of 2021; Maternal, Infant, and Early Childhood Home Visiting Program (MIECHV) (general); H.R.7011/S.3797, Maternal and Child Health Stillbirth Prevention Act of 2022; H.R. 2234/S. 1021, Equal Access to Abortion Coverage (EACH) Act; S. 4467, Protecting Access to Medication Abortion Act; S.Res.664, A resolution expressing opposition to the criminalization of essential healthcare, including the full range of sexual and reproductive healthcare such as abortion, gender-affirming care, and contraceptive care, and disapproving of the criminalization of pregnancy outcomes; H.Res.589, Expressing the sense of the House of Representatives that policies governing access to medication abortion care in the United States should be equitable and based on science; H.R. 7894/S. 4347, Affordability is Access Act; H.R. 6005/S. 3223, Access to Birth Control Act; H.R. 7845, NIH Clinical Trial Diversity Act of 2022; H.R. 4217/S. 2779, TRIUMPH for New Moms Act of 2021; H.R. 7974, Endometriosis CARE Act of 2022; H.R. 7666, Restoring Hope for Mental Health and Well-Being Act of 2022; Safety and efficacy of noninvasive prenatal screening tests (FDA/CMS); COVID-19 public health emergency unwinding (general); Implementation of the Maternal Health Quality Improvement Act and Rural MOMS Act included in P.L. 117-103; Implementation of P.L. 117-103, Consolidated Appropriations Act, 2022;; health care provider conscience protections (general);; H.R. 9247, Abortion Care Awareness Act; H.R. 9220, Informing New Factors and Options for Reproductive Care Act; H.R. 8834, EQUIP Act; S. 4688, Reproductive Freedom for All Act; S. 4748, Protecting National Access to Reproductive Care Act; H.R. 4040, Advancing Telehealth Beyond COVID-19 Act of 2021; Reproductive health care workforce (general); S.4467, Protecting Access to Medication Abortion Act; S.4723, Let Doctors Provide Reproductive Health Care Act; H.R. 8373, Right to Contraception Act; S.4764, Reproductive Health Care Accessibility Act; H.R. 9487, Advancing Safe Medications for Moms and Babies Act of 2022; H.R. 9602, Maternal Health Pandemic Response Act of 2022; Reauthorization of P.L. 115-328, PREEMIE Reauthorization Act of 2018; H.R. __, Improving Access to Prenatal Telehealth Care Act of 2022; H.R. 9689, Know Your Body Act; S.5276, Right to Build Families Act of 2022; S.5227/H.R.8452, Reproductive Health Travel Fund Act of 2022; H.R. 6216/S. 3389, Sickle Cell Disease Comprehensive Care Act
Client expense: $120,000 · Firm income: Not reported
Government targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Executive Office of the President (EOP), Food & Drug Administration (FDA), Government Accountability Office (GAO), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), SENATE, Substance Abuse & Mental Health Services Administration (SAMHSA), White House Office
2022 · fourth_quarter · Medicare/Medicaid
S.3389/ H.R.6216 - Sickle Cell Disease Comprehensive Care Act H.R. 2617 - Consolidated Appropriations Act of 2023 - Medicare provisions to eliminate cuts in physician payment and Medicaid provisions related to inclusion of S.3389/HR 6216. Making permanent Medicare telehealth expansions allowed during Public Health Emergency Legislation to eliminate CMS planned reductions to Medicare Physician Fee Schedule Conversion Factor and other payment reductions in Medicare proposed for 2022 The Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Need for expert panel to advise CMS on improving values for evaluation and management services National Coverage Determination on myelodysplastic syndromes (MDS) Request for a Center for Medicare and Medicaid Innovation demonstration program for sickle cell disease
Client expense: Not reported · Firm income: $45,000
Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, SENATE
2022 · fourth_quarter · Health Issues
Sickle Cell Disease Comprehensive Care Act (S. 3389/ H.R. 6216) MARCH for Military Servicemembers Act (S.4354/ H.R.7945) the Stop Anti-Abortion Disinformation Act (SAD Act) (S.4469/ H. R. 8210) Access to Infertility Treatment and Care Act (S. 2352/H.R. 4450) Veterans Infertility Treatment Act of 2021 (H.R. 1957) Robin Danielson Menstrual Product and Intimate Care Product Safety Act (H.R.3865) Protecting Families from Fertility Fraud Act (H.R.8600) The Access to Reproductive Care for Servicemembers Act (H.R. 8916) The Comprehensive Cancer Survivorship Act (S.5295/ H.R.9565) The Right to Build Families Act of 2022 (S.5276)
Client expense: Not reported · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · fourth_quarter · Health Issues
Education about access to innovative sickle cell disease therapies and proposed legislation to increase funding and care coordination for patients with sickle cell disease. H.R.6216/S.4866 - Sickle Cell Disease Comprehensive Care Act.
Client expense: Not reported · Firm income: $50,000
Government targets: HOUSE OF REPRESENTATIVES
2022 · fourth_quarter · Health Issues
H. RES. 1330 H.R. 6216/S. 3389, the Sickle Cell Disease Comprehensive Care Act H.R. 8855/S. 4866, the Sickle Cell Disease Treatment Centers Act of 2022 S. 1644/H.R. 3761, the Promising Pathway Act S. 373/H.R. 4472, the BENEFIT Act of 2021 H.R.2623, Camerons Law
Client expense: Not reported · Firm income: $30,000
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · third_quarter · Medicare/Medicaid
S.3389/ H.R.6216 - Sickle Cell Disease Comprehensive Care Act Making permanent Medicare telehealth expansions allowed during Public Health Emergency Legislation to eliminate CMS planned reductions to Medicare Physician Fee Schedule Conversion Factor and other payment reductions in Medicare proposed for 2022 The Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Need for expert panel to advise CMS on improving values for evaluation and management services Medicare Program; Hospital Inpatient Prospective Payment Systems for Acute Care Hospitals and the Long-Term Care Hospital Prospective Payment System and Proposed Policy Changes and Fiscal Year 2023 Rates Comments in response to CY2023 Medicare Physician Fee Schedule (CMS-1770-P) National Coverage Determination on myelodysplastic syndromes (MDS) Issues related to Medicare coverage of childhood vaccines for patients post-stem cell transplant
Client expense: Not reported · Firm income: $45,000
2022 · third_quarter · Medicare/Medicaid
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Advancing Telehealth Beyond COVID Act (H.R. 4040)
Client expense: $30,000 · Firm income: Not reported
2022 · third_quarter · Health Issues
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177/S.4425) Women's Health Protection Act (S. 1975/ H.R. 3755/S. 4132) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Health Equity and Accountability Act (H.R. 7585) Issues related to maternal health care and abortion access Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348) Affordability of employer coverage for family members/"family glitch Sickle Cell Disease Treatment Centers Act of 2022 (S. 4866/ H.R. 8855) Advancing Telehealth Beyond COVID Act (H.R. 4040) Resolution supporting the designation of September 2022 as "Sickle Cell Disease Awareness Month" (H.Res.1330)
2022 · third_quarter · Health Issues
Sickle Cell Disease Comprehensive Care Act (S. 3389/ H.R. 6216) MARCH for Military Servicemembers Act (S.4354/ H.R.7945) the Stop Anti-Abortion Disinformation Act (SAD Act) (S.4469/ H. R. 8210) Access to Infertility Treatment and Care Act (S. 2352/H.R. 4450) Veterans Infertility Treatment Act of 2021 (H.R. 1957) Robin Danielson Menstrual Product and Intimate Care Product Safety Act (H.R.3865) Protecting Families from Fertility Fraud Act (H.R.8600)
Client expense: Not reported · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · second_quarter · Health Issues
12-Month Continuous Eligibility for Children in Medicaid/CHIP Easy Enrollment in Health Care Act of 2021 Provider Relief Fund Reporting Requirements Accelerating Kids Access to Care Act (H.R. 3089/S. 1544) Connect for Health Act of 2021 Medicaid Payment Parity Coronavirus Medicaid Response Act (S. 4108) H.R. 2347, Strengthening the Vaccines for Children Program Act HR 1025, the Kids Access to Primary Care Act S. 1833 The Ensuring Access to Primary Care for Women and Children Act of 2021 Medicaid Maintenance of Effort (MOE) Protections Comprehensive Access to Robust Insurance Now Guaranteed (CARING) for Kids Act (H.R.66) H.R. 1791 Childrens Health Insurance Program Permanency (CHIPP) Act Stabilize Medicaid and CHIP Coverage Act (H.R. 1738) Permanent CHIP Funding Extension Permanent Extension of Express Lane Eligibility Option Pediatrics Home and Community-Based Services (HCBS) in Medicaid Medicaid Reentry Act Accelerating Kids Access to Care Act Expanding Medicaid HCBS Services for Children Access to Care in Medicaid/CHIP Maternal Health H.R. 4996 Helping Moms Act H.R.4995 - Maternal Health Quality Improvement Act of 2020 Postpartum Medicaid Extension and Maternal Health Improvements Closing the Medicaid Coverage Gap Adult Medicaid Vaccine Access Increased Funding for Childrens Hospitals Graduate Medical Education COVID-19 Response Medicaid/CHIP Eligibility Redeterminations post PHE Build Back Better Act Payment for COVID-19 Vaccine Counseling Coding Changes for COVID-19 Counseling Payment Standards in CBP Custody Standards in ICE Family Detention Standards in ORR Custody Licensure of ORR Shelters Emergency Intake Sites Public Charge Child Nutrition Reauthorization/WIC SNAP Mental Health for Children H.R. 6, DREAM Act Family Separation and Detention Medical Nutrition Equity Act Build Back Better Act Lift the Bar Act CARE for Families Act HR 3107 WIC Act Keep Families Together Act Breastfeeding Peer Counseling Program Public Health Preparedness and Response Research for Pregnant and Lactating Women Funding for Pediatric Device Consortia Funding for Emergency Medical Services for Children Program Funding for HRSA Pediatric Mental Health Care Access Program PUMP Act DEMAND Act Dietary Guidelines Child Poverty Coronavirus Response Legislation Asylum Child Poverty Reduction Act Suicide Prevention CBP Medical Services Contract Child Nutrition Waivers School Meal Standards Universal School Meals Equality Act Mental Health Services for Students Act Medicaid Bump Act Youth Mental Health and Suicide Prevention Act Child Tax Credit Comprehensive Mental Health in Schools Pilot Program Supporting Childrens Mental Health Care Access Act Protect Infants from Formula Shortages Act Infant Formula Shortage White House Conference on Hunger, Nutrition, and Health Mental Health Reform Reauthorization Act Restoring Hope for Mental Health and Well-Being Act FY23 Labor, Health and Human Services, and Education Appropriations Bill: Pediatric Subspecialty Loan Repayment Program, Firearm Injury and Mortality Prevention Research, Pediatric Mental Health Care Access Program, Emergency Medical Services for Children, National Center for Birth Defects and Developmental Disabilities, Global Immunization, Sudden Unexpected Infant Death and Sudden Death in Childhood, Vaccine Injury Compensation Program, VACCINES Act, Antimicrobial Resistance, Maternal and Child Health, School Based Health Centers COVID-19 Supplemental Appropriations H.R.482 / S.350 - Newborn Screening Saves Lives Reauthorization Act FY23 National Defense Authorization Act and Halting Reductions to Military Medical Personnel Defense Health Agency - Autism Care Demonstration H.R.6783 - Autism Family Caregiver Act H.R.5551 - Improving the Health of Children Act H.R.5561 / S.4052 - Early Hearing Detection and Intervention Act of 2021 H.R.2347 / S.2691 - Strengthening the Vaccines for Children Program Act of 2021 Childrens Literacy Initiative on Military Bases (CLIMB) Act of 2022 - H.R. 8208 Advancing FASD Research, Services and Prevention Act - S. 2238 / H.R. 4151 Home and Community Based Services - Reconciliation Bill Banning Electronic Stimulation Devices - FDA User Fee Bills (H.R. 7667/S. 4348) Womens Health Protection Act (H.R. 3755/S. 1975) Kids Online Safety Act (S. 3663) Children and Teens Online Privacy Protection Act (S. 1628) Kids PRIVCY Act (H.R. 4801) KIDS Act (H.R. 5439/S. 2918) American Data Privacy and Protection Act (H.R. 8152) Pediatric Subspecialty Loan Repayment Program Implementation Regulation of Menthol Cigarettes and Flavored Cigars Premarket Tobacco Product Application Process for E-Cigarettes Sickle Cell Disease Comprehensive Care Act (H.R. 6216/S. 3389) FY 2023 Funding for HHS Office of Adolescent Health FY 2023 Funding for Pediatric Subspecialty Loan Repayment Program FY 2023 Funding for Eunice Kennedy Shriver National Institute of Child Health and Human Development Appropriations - global child and youth-focused global health subaccounts at USAID (Vulnerable Children, Maternal and Child Health, Nutrition) and CDC Global Immunization Division Global Child Thrive Act Implementation Strengthening Efforts to End Violence Against Children Act Reach Every Mother and Child Act Gun violence prevention research funding Child passenger safety (H.R. 5736) Appropriations for the Indian Health Service Maternal, Infant, and Early Childhood Home Visiting Program Infant sleep product safety (S. 1259, H.R. 3182) Lead exposure prevention Food safety Paid family and medical leave Regulation of high-powered magnet sets Climate change Vehicle emissions standards Button battery ingestions (H.R. 5313, S. 3278) Early childhood education Access to genetic sequencing Child product safety and injury prevention Furniture tip-over prevention Child Abuse Prevention and Treatment Act reauthorization, CAPTA Reauthorization Act of 2021 CAPTA Plans of safe care grants Family First Prevention Services Act implementation Issues related to the COVID-19 pandemic and providing supports for the child welfare community CAPTA Fatalities Prevention and Response Title IV-B Reauthorization Ensuring Medicaid continuity for Children in Foster Care Act (S. 2689/H.R. 5414) Congregate care reform Mental health supports for foster youth/former foster youth
2022 · second_quarter · Medicare/Medicaid
S.3389/ H.R.6216 - Sickle Cell Disease Comprehensive Care Act Making permanent Medicare telehealth expansions allowed during Public Health Emergency Legislation to eliminate CMS planned reductions to Medicare Physician Fee Schedule Conversion Factor and other payment reductions in Medicare proposed for 2022 The Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Need for expert panel to advise CMS on improving values for evaluation and management services National Coverage Determination on myelodysplastic syndromes (MDS) Issues related to Medicare coverage of childhood vaccines for patients post-stem cell transplant
Client expense: Not reported · Firm income: $45,000
Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, SENATE
2022 · second_quarter · Medicare/Medicaid
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018)
Client expense: $30,000 · Firm income: Not reported
2022 · second_quarter · Health Issues
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177/S.4425) Women's Health Protection Act (S. 1975/ H.R. 3755/S. 4132) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018) Health Equity and Accountability Act (H.R. 7585) Issues related to maternal health care and abortion access Verifying Accurate Leading-edge IVCT Development (VALID) Act (H.R. 4128/S. 2209) Food and Drug Administration Safety and Landmark Advancements (FDASLA) Act (S. 4348) Affordability of employer coverage for family members/"family glitch
2022 · second_quarter · Medicare/Medicaid
Medicaid and Social Determinants of Health (SDOH) legislation (proposal under development related to social determinants of health) S. 1798 and H.R.1397, Telehealth Improvement for Kids' Essential Services Act or the TIKES Act (provisions of the TIKES Act were included in the Bipartisan Safer Communities Act (P.L.# 117-159)) H.R. 7236, Strengthen Kids Mental Health Now Act of 2022 S.2112 and H.R.4036, Enhance Access to Support Essential Behavioral Health Services (EASE) Act S. 3389 and H.R. 6216, Sickle Cell Disease Comprehensive Care Act Senate Finance Committee's Youth Mental Health Discussion Draft
Client expense: $174,436 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · second_quarter · Health Issues
Sickle Cell Disease Comprehensive Care Act (S. 3389/ H.R. 6216) MARCH for Military Servicemembers Act (S.4354/ H.R.7945) the Stop Anti-Abortion Disinformation Act (SAD Act) (S.4469/ H. R. 8210) Access to Infertility Treatment and Care Act (S. 2352/H.R. 4450) Veterans Infertility Treatment Act of 2021 (H.R. 1957)
Client expense: Not reported · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · first_quarter · Medicare/Medicaid
S.3389/ H.R.6216 - Sickle Cell Disease Comprehensive Care Act Making permanent Medicare telehealth expansions allowed during Public Health Emergency Legislation to eliminate CMS planned reductions to Medicare Physician Fee Schedule Conversion Factor and other payment reductions in Medicare proposed for 2022 The Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Need for expert panel to advise CMS on improving values for evaluation and management services National Coverage Determination on myelodysplastic syndromes (MDS) The Sickle Cell Care Expansion Act (H.R. 7177)
Client expense: Not reported · Firm income: $45,000
Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, SENATE
2022 · first_quarter · Medicare/Medicaid
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Issues related to CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018)
Client expense: $30,000 · Firm income: Not reported
2022 · first_quarter · Health Issues
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Issues related to CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389) Impact of climate change on health Dr. Lorna Breen Health Care Provider Protection Act (H.R. 1667/S. 610) Resolution expressing support for healthcare personnel and condemning assaults on healthcare personnel as the U.S. healthcare system faces unprecedented staffing shortages and increased workplace-related stressors (H.Res. 909) Sickle Cell Care Expansion Act (H.R. 7177) Women's Health Protection Act (S. 1975/ H.R. 3755) Newborn Screening Saves Lives Reauthorization Act (H.R. 482/S. 350) Prior authorization Improving Seniors Timely Access to Care Act (H.R. 3173/S. 3018)
Client expense: $30,000 · Firm income: Not reported
2021 · fourth_quarter · Medicare/Medicaid
S.3389/ H.R.6216 - Sickle Cell Disease Comprehensive Care Act Making permanent Medicare telehealth expansions allowed during Public Health Emergency Legislation to eliminate CMS planned reductions to Medicare Physician Fee Schedule Conversion Factor and other payment reductions in Medicare proposed for 2022 The Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Need for expert panel to advise CMS on improving values for evaluation and management services National Coverage Determination on myelodysplastic syndromes (MDS)
Client expense: Not reported · Firm income: $45,000
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health Resources & Services Administration (HRSA), SENATE
2021 · fourth_quarter · Medicare/Medicaid
Coverage of blood transfusions under Medicare Hospice Benefit Improving Access to Transfusion Care for Hospice Patients Act of 2021 (S. 2566) Reimbursement for CAR-T/cellular and gene therapies Implementation of the Medicare Access and CHIP Reauthorization Act pf 2015 (P.L. 114-10) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) CMS national coverage determinations Medicaid coverage for sickle cell disease Issues impacting opioid access/use for patients with hematologic disease and disorders Issues related to implementation of Coronavirus Aid, Relief, and Economic Security (CARES) Act (P.L. 116-136) Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to telemedicine/telehealth Funding for Graduate Medical Education (GME) COVID-19 vaccination policies/prioritization Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Cures 2.0 Act (H.R. 6000) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389)
Client expense: $30,000 · Firm income: Not reported
2021 · fourth_quarter · Health Issues
Resident Physician Shortage Reduction Act (H.R. 2256/S. 834) Healthcare Workforce Resilience Act (H.R. 2255/S. 1024) Implementation of the Patient Protection and Affordable Care Act (P.L. 111-148) Hematology/oncology drug research and approval issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical trials regulations and coverage Issues impacting coverage for hematologic diseases and conditions Reimbursement for CAR-T/cellular and gene therapies Issues impacting opioid access/use for patients with hematologic disease and disorders Issues impacting blood supply shortages/safety Issues related to convalescent plasma Issues related to health equity/disproportionate impact of COVID-19 on minority populations Issues related to diversity, equity, and inclusion (DEI) in hematology research, practice, and training Cures 2.0 Act (H.R. 6000) Implementation of No Surprises Act (P.L. 116-260) Cancer Patient Equity Act of 2021 (H.R.5377) HELP Copays Act (H.R. 5801) Cancer Drug Parity Act of 2021 (H.R. 4385 / S. 3080) Sickle cell disease/trait issues Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S.3389)
Client expense: $30,000 · Firm income: Not reported
2021 · fourth_quarter · Medicare/Medicaid
Medicaid and Social Determinants of Health (SDOH) legislation (proposal under development related to social determinants of health) S. 1798 and H.R.1397, TIKES Act H.R.3894, CARING for Social Determinants Act of 2021 S.2112 and H.R.4036, The Enhance Access to Support Essential Behavioral Health Services (EASE) Act S.1554 and H.R.3089, Accelerating Kids Access to Care Act H.R.6216, Sickle Cell Disease Comprehensive Care Act H.R.2503, Social Determinants Accelerator Act of 2021 S.1727 and H.R. 3450, The Medicaid BUMP Act
Client expense: $227,157 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
| Democratic |
| NY |
| Barbara Lee | Democratic | CA |
| Bill Foster | Democratic | IL |
| Bobby L. Rush | Democratic | IL |
| Eleanor Holmes Norton | Democratic | DC |
| Gwen Moore | Democratic | WI |
| Karen Bass | Democratic | CA |
| Lucille Roybal-Allard | Democratic | CA |
| Michael C. Burgess | Republican | TX |
| Pete Aguilar | Democratic | CA |
| Rashida Tlaib | Democratic | MI |
| Sanford D. Bishop, Jr. | Democratic | GA |
| Terri A. Sewell | Democratic | AL |
| Yvette D. Clarke | Democratic | NY |
Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, SENATE
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Client expense: $30,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Internal Revenue Service (IRS), Natl Institutes of Health (NIH), SENATE
Client expense: $200,000 · Firm income: Not reported
Government targets: Administration for Children & Families (ACF), Agriculture, Dept of (USDA), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Consumer Product Safety Commission (CPSC), Defense, Dept of (DOD), Environmental Protection Agency (EPA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Homeland Security, Dept of (DHS), Indian Health Service, Natl Highway Traffic Safety Administration (NHTSA), Natl Institutes of Health (NIH), Office of Science & Technology Policy (OSTP), SENATE, U.S. Agency for International Development (USAID), U.S. Customs & Border Protection, U.S. Immigration & Customs Enforcement (ICE), White House Office
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Client expense: $30,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Internal Revenue Service (IRS), Natl Institutes of Health (NIH), SENATE
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), Office of Science & Technology Policy (OSTP), President of the U.S., SENATE