ALS Disability Insurance Access Act of 2016

Health care issues affecting individuals with neuromuscular disease, including transitional health care issues; increased FY 2017 appropriations for the NIH and FDA; newborn screening; and reauthorization of the Prescription Drug User Fee Act (PDUFA). H.R. 6, 21st Century Cures and Innovation for Healthier Americans initiatives; S. 1604, Transition to Independence Act; H.R. 1516/S. 1013, Ensuring Access to Quality Complex Rehabilitation Technology Act of 2015; S. 2030, Advancing Targeted Therapies for Rare Diseases Act; H.R. 3229, Enforce the Medicare Improvements for Patients and Providers Act of 2015; S. 2702/H.R. 4795, ABLE to Work Act; S. 2703/H.R. 4794, ABLE Financial Planning Act; S. 2704/H.R. 4813, ABLE Age Adjustment Act; S. 2904/H.R. 5103, ALS Disability Insurance Act

Client expense: $70,000 · Firm income: Not reported

Government targets: Executive Office of the President (EOP), Federal Aviation Administration (FAA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT)

Health care issues affecting individuals with neuromuscular disease, including transitional health care issues and increased FY 2017 appropriations for the NIH, FDA, and newborn screening. H.R. 6, 21st Century Cures and Innovation for Healthier Americans initiatives; S. 1604, Transition to Independence Act; H.R. 1516/S. 1013, Ensuring Access to Quality Complex Rehabilitation Technology Act of 2015; S. 2030, Advancing Targeted Therapies for Rare Diseases Act; H.R. 3229, Enforce the Medicare Improvements for Patients and Providers Act of 2015; S. 2702/H.R. 4795, ABLE to Work Act; S. 2703/H.R. 4794, ABLE Financial Planning Act; S. 2704/H.R. 4813, ABLE Age Adjustment Act; S. 2904/H.R. 5103, ALS Disability Insurance Act

Client expense: $80,000 · Firm income: Not reported

Government targets: Federal Aviation Administration (FAA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT)

H.Con.Res. 125, Establishing the congressional budget for the United States Government for fiscal year 2017 and setting forth the appropriate budgetary levels for fiscal years 2018 through 2026 Unnumbered House bill, Congressional Progressive Caucus, The Peoples Budget, provisions related to sustainable defense and funding for refugee account Unnumbered House bill, Department of Defense Appropriations Act, 2017, all provisions Unnumbered House bill, Energy and Water Development Appropriations Act, 2017, Title III, provisions relating to Atomic Energy Defense Activities Unnumbered House bill, Department of Homeland Security Appropriations Act, 2017, provisions as it relates to beds maintained in immigrant detention Unnumbered House bill, Department of the Interior, Environment, and Related Agencies Appropriations Act, 2017, Title I, provisions related to Bureau of Indian Education schools, Unnumbered House Bill, Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, provisions relating to low-income programs Unnumbered House Bill, Department of State, Foreign Operations, and Related Programs Appropriations Act, 2017, Title I, provisions related to Contributions to International Organizations, and Contributions for International Peacekeeping Activities; Title III, provisions related to Transition Initiatives, Complex Crises Fund, Conflict Stabilization Operations, Democracy Fund, International Disaster Assistance, Migration and Refugee Assistance, and U.S. Emergency Refugee and Migration Assistance Fund; Title IV, provision related to Peacekeeping Operations; Title VII, provisions related to the Green Climate Fund and Central America; and Title VIII, provisions related to Conflict Stabilization Operations, Contributions to International Organizations, Peace Operations Response Mechanism, Transition Initiatives, Complex Crises Fund, and Peacekeeping Operations Unnumbered Senate bill, later introduced as S. 2904, Energy and Water Development and Related Agencies Appropriations Act, 2017, Title III, provisions relating to Atomic Energy Defense Activities Unnumbered Senate bill, Department of Defense Appropriations Act, 2017, all provisions Unnumbered Senate bill, Department of the Interior, Environment, and Related Agencies Appropriations Act, 2017, Title I, provisions related to Bureau of Indian Education schools, Unnumbered Senate Bill, Department of State, Foreign Operations, and Related Programs Appropriations Act, 2017, Title I, provisions related to Conflict Stabilization Operations, Contributions to International Organizations, Contributions for International Peacekeeping Activities; Title III, provisions related to Complex Crises Fund, Transition Initiatives, Democracy Fund, International Disaster Assistance, Migration and Refugee Assistance, and U.S. Emergency Refugee and Migration Assistance Fund ; Title IV, provision related to Peacekeeping Operations; Title VII, provisions related to the Green Climate Fund and Central America; and Title VIII, provisions related to Conflict Stabilizations Operations, Contributions to International Organizations, Contributions for International Peacekeeping Activities, Transition Initiatives, and Peacekeeping Operations Unnumbered Senate Bill, Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2017, provisions relating to low-income programs Unnumbered Senate Bill, Transportation, Housing and Urban Development, and Related Agencies Appropriations Act, 2017, provisions relating to low-income housing assistance

Client expense: $770,000 · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE, State, Dept of (DOS), U.S. Agency for International Development (USAID)