Essential Caregivers Act of 2025

Medicare and Medicaid coverage, access, and affordability of treatments for Parkinsons disease and other chronic conditions, including beneficiary access to care, prescription drug coverage, and utilization management policies. The Alleviating Barriers for Caregivers (ABC) Act (H.R. 2491 / S. 1227), including advocacy related to simplifying Medicare and Social Security processes and improving access to benefits for caregivers and individuals with chronic conditions. The Essential Caregivers Act of 2025 (H.R. 6766 / S. 3492), including advocacy related to ensuring access for designated essential caregivers in health care facilities during periods of restricted visitation under Medicare and Medicaid. The Alzheimers Screening and Prevention (ASAP) Act (H.R. 6130 / S. 3267), including advocacy related to Medicare coverage of blood-based biomarker tests for early detection of Alzheimers disease and related dementias. Centers for Medicare & Medicaid Services (CMS) policies, including advocacy related to Medicare Part D and Medicare Advantage, prescription drug affordability, formulary design, utilization management, and beneficiary protections.

Client expense: $150,000 · Firm income: Not reported

Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

General Parkinsons disease information, including disease burden, symptoms, health coverage, health care costs, environmental risk factors, and access to care for underserved communities. Implementation of the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinsons Act (Public Law No. 118-66), including advocacy related to the development and execution of the National Parkinsons Project (NPP), interagency coordination, advisory council establishment, reporting requirements, and congressional oversight, as well as appropriations to support implementation activities. Federal funding for Parkinsons disease and neurodegenerative disease research at the National Institutes of Health (NIH), including advocacy for increased appropriations across NIH institutes (including the National Institute of Neurological Disorders and Stroke (NINDS) and National Institute on Aging (NIA)) and support for related congressional appropriations requests and communications. National Institute of Neurological Disorders and Stroke (NINDS) Morris K. Udall Centers of Excellence for Parkinsons Disease Research, including advocacy in appropriations to re-establish and expand Udall Centers, related report language, and coordination with the National Parkinsons Project. Advanced Research Projects Agency for Health (ARPA-H) and neurodegenerative disease research, including advocacy for report language directing prioritization of high-risk, high-reward research on Parkinsons disease and related neurodegenerative conditions. Alzheimers Disease and Alzheimers Disease-Related Dementias (AD/ADRD) research, including advocacy for report language to expand funding eligibility to Parkinsons disease and related dementias and support research on the intersection of Parkinsons disease and dementia. Centers for Disease Control and Prevention (CDC) National Neurological Conditions Surveillance System (NNCSS), including advocacy for continued appropriations to support data collection and surveillance of Parkinsons disease and related conditions. Department of Health and Human Services (HHS) coordination on environmental risk factors and neurodegenerative disease prevention, including advocacy for report language and funding to support interagency coordination and research on toxic exposures and Parkinsons disease and related conditions. The Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act (H.R. 7779), including advocacy for cosponsorship and provisions supporting research on environmental risk factors and toxic exposures linked to neurodegenerative diseases. Environmental risk factors and Parkinsons disease, including advocacy related to pesticide exposure and paraquat, and support for Environmental Protection Agency (EPA) action to reassess and restrict or ban paraquat due to links to Parkinsons disease. The Paraquat Prevention Act (H.R. 9357): This legislation would direct EPA to cancel all registrations for the herbicide paraquat, revoke food-residue tolerances, prohibit the sale and use of existing stocks, and permanently bar re-registration, citing evidence linking paraquat exposure to an increased risk of Parkinsons disease. H.Amdt.196: An amendment to the 2026 Farm Bill (H.R. 7567, the Farm, Food, and National Security Act of 2026) that removed three pesticide-related provisions. The amendment eliminated language that would have: (1) limited certain lawsuits against pesticide manufacturers by making it more difficult to bring failure-to-warn claims based on health risks not included on EPA-approved labels; (2) restricted state and local governments from adopting pesticide requirements that exceed federal standards; and (3) modified environmental permitting and oversight requirements for pesticide use, including provisions affecting implementation of the Clean Water Act and other environmental laws. The Alzheimers Screening and Prevention (ASAP) Act (H.R. 6130 / S. 3267), including advocacy related to early detection of Alzheimers disease and related dementias and access to diagnostic tools. The Lowering Costs for Caregivers Act (S. 1565 / H.R. 138), including advocacy related to expanding the use of tax-advantaged health accounts (including HSAs, FSAs, and HRAs) to cover medical expenses for family caregivers and improving affordability of care. The Essential Caregivers Act of 2025 (H.R. 6766 / S. 3492), including advocacy related to ensuring access for designated essential caregivers in health care facilities during periods of restricted visitation under Medicare and Medicaid.

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Client expense: Not reported · Firm income: $45,000

Government targets: Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, SENATE

S. 3439/H.R. 6735, Connecting Caregivers to Medicare Act. S. 1227/H.R. 2491, Alleviating Barriers for Caregivers Act. P.L. 119-21, the One Big Beautiful Bill Act. H.R. 6766/S. 3492, the Essential Caregivers Act. H.R. 7966/S. 4118, Hospice Care Accountability, Reform, and Enforcement (Hospice CARE) Act. H.R. 7618, Stopping Addiction and Falls for the Elderly (SAFE) Act. S. 2237/H.R. 4313, Hospital Inpatient Services Modernization Act. H.R. 8100, Safe Staffing Saves Lives Act. S. 3886, Nurses Belong in Nursing Homes Act. H.R. 7966/S. 4118, Hospice Care Accountability, Reform, and Enforcement (Hospice CARE) Act. S. 3886, Nurses Belong in Nursing Homes Act. No bill number. Discussed Medicare payment models. No bill number. Discussed Medicare waste, fraud, and abuse. No bill number. Discussed health technology, data security, enrollee accounts, and access. No bill number. Discussed Medicaid and waste, fraud, and abuse. No bill number. Discussed Medicaid community engagement requirements and Data Strategy for Family Caregiver Verification. No bill number. Discussed nursing home staffing standards, safety, and quality. No bill number. Discussed nursing home transparency and ownership requirements. No bill number. Discussed home health, hospice, and long-term care. No bill number. Discussed Medicare Advantage. No bill number. Discussed the Medicare Prescription Drug Benefit Program. No bill number. Discussed the Medicare Cost Plan Program. No bill number. Discussed Medicare Advantage Capitation Rates. No bill number. Discussed Medicare Part C and Part D payment policies. No bill number. Discussed Medicare Comprehensive Regulations to Uncover Suspicious Healthcare (CRUSH). No bill number. Discussed AI tools for Medicare Experience modernization. No bill number. Discussed Medicare Advantage provider networks. No bill number. Discussed fraud in Medicare and Medicaid. No bill number. Discussed long-term services and supports. No bill number. Discussed home and community-based services. No bill number. Discussed the Money Follows the Person Rebalancing Demonstration Program. No bill number. Discussed Medicaid home and community-based services (HCBS) spousal impoverishment protections. No bill number. Discussed the direct care workforce. No bill number. Discussed family caregiver exemption from Medicaid community engagement requirements. No bill number. Discussed falls prevention. No bill number. Discussed age-friendly communities. No bill number. Discussed health at home. No bill number. Discussed the National Strategy to Support Family Caregivers. No bill number. Discussed the Older Americans Act reauthorization. No bill number. Discussed Medicaid HCBS waivers. No bill number. Discussed the health care workforce.

S. 925/H.R. 2036, Credit for Caring Act. S. 1565/H.R. 138, Lowering Costs for Caregivers Act. S. 3439/H.R. 6735, Connecting Caregivers to Medicare Act. S. 1227/H.R. 2491, Alleviating Barriers for Caregivers Act. P.L. 119-21, One Big Beautiful Bill Act. S. 830/H.R. 2560, the Lifespan Respite Care Reauthorization Act. H.R. 3089, the More Paid Leave for More Americans Act. H.R. 8100, the Safe Staffing Saves Lives Act. S. 3886, the Nurses Belong in Nursing Homes Act. H.R. 6766/S. 3492, the Essential Caregivers Act of 2025. H.R. 7966/S. 4118, the Hospice Care Accountability, Reform, and Enforcement (Hospice CARE) Act S.2120, the Older Americans Act Reauthorization Act of 2025. H.R. 5575, the Firefighters Assisting Seniors to Emergency Response (FASTER) Act of 2025. H.R. 7567, the Farm, Food, and National Security Act of 2026. HR 1538, the Delivering for Rural Seniors Act of 2025. H.R. 1782, the Supporting all Healthy Options when Purchasing Produce (SHOPP) Act of 2025. S. 2237/H.R. 4313, the Hospital Inpatient Services Modernization Act. No bill number. Discussed paid leave for family caregivers. No bill number. Discussed support for family caregivers. No bill number. Discussed minimum staffing standards for long-term care facilities. No bill number. Discussed the Senior Hunger Prevention Act. No bill number. Discussed Nursing Home staffing standards, safety, and quality. No bill number. Discussed Nursing home transparency and ownership requirements. No bill number. Discussed SNAP, TEFAP, OAA nutrition programs, senior nutrition and food security. No bill number. Discussed home health, hospice, and long-term care. No bill number. Discussed falls prevention. No bill number. Discussed social isolation. No bill number. Discussed family caregiver exemption from Medicaid community engagement requirements and Data Strategy for Family Caregiver Verification. No bill number. Discussed fraud in Medicare and Medicaid, long-term services and supports, and home and community-based services. No bill number. Discussed research and data on family caregivers. No bill number. Discussed Medicare Comprehensive Regulations to Uncover Suspicious Healthcare (CRUSH). No bill number Discussed the direct care workforce. No bill number. Discussed family caregiver exemption from Medicaid community engagement requirements. No bill number. Discussed falls prevention. No bill number. Discussed health at home. No bill number. Discussed the National Strategy to Support Family Caregivers. No bill number. Discussed the Older Americans Act reauthorization. No bill number. Discussed Medicaid HCBS waivers. No bill number. Discussed the health care workforce. No bill number. Discussed end-of-life. No bill number. Discussed Assisting Caregivers Today (ACT) Caucus. No bill number. Discussed long-term care affordability. No bill number. Discussed long-term care.

S. 3439/H.R. 6735, Connecting Caregivers to Medicare Act. S. 1227/H.R. 2491, Alleviating Barriers for Caregivers Act. S. 2237/H.R. 4313, Hospital Inpatient Services Modernization Act. H.R. 8100, Safe Staffing Saves Lives Act. S. 3886, Nurses Belong in Nursing Homes Act. H.R. 6766/S. 3492, the Essential Caregivers Act. H.R. 7966/S. 4118, Hospice Care Accountability, Reform, and Enforcement (Hospice CARE) Act. S.2120, the Older Americans Act Reauthorization Act. H.R. 5575, the Firefighters Assisting Seniors to Emergency Response (FASTER) Act. S. 668/H.R. 3183, Supporting Access to Falls Education and Prevention and Strengthening Training Efforts and Promoting Safety Initiatives (SAFE STEPS) for Veterans Act. H.R. 7618, Stopping Addiction and Falls for the Elderly (SAFE) Act. No bill number. Discussed minimum staffing standards. No bill number. Discussed Nursing Home staffing standards, safety, and quality. No bill number. Discussed Nursing home transparency and ownership requirements. No bill number. Discussed health technology, data security, and access. No bill number. Discussed senior nutrition and food security programs. No bill number. Discussed home health, hospice, and long-term care. No bill number. Discussed falls prevention. No bill number. Discussed social isolation. No bill number. Discussed enhanced premium tax credits for health insurance. No bill number. Discussed artificial intelligence in clinical care. No bill number. Discussed Health Data, Technology, and Interoperability (HTI-5) Proposed Rule. No bill number. Discussed Affordable Care Act Benefit and Payment Parameters. No bill number. Discussed electronic notification by health insurance plans. No bill number. Discussed fraud in Medicare and Medicaid. No bill number. Discussed long-term services and supports. No bill number. Discussed home and community-based services. No bill number. Discussed Medicaid HCBS. No bill number. Discussed Medicare Comprehensive Regulations to Uncover Suspicious Healthcare (CRUSH). No bill number Discussed direct care workforce. No bill number. Discussed family caregiver exemption from Medicaid community engagement requirements. No bill number. Discussed falls prevention. No bill number. Discussed health at home. No bill number. Discussed the National Strategy to Support Family Caregivers. No bill number. Discussed the Older Americans Act reauthorization. No bill number. Discussed Medicaid HCBS waivers. No bill number. Discussed the health care workforce. No bill number. Discussed end-of-life. No bill number. Discussed health savings accounts. No bill number. Discussed prescription drugs. No bill number. Discussed health care workforce issues.

Medicare and Medicaid coverage, access, and affordability of treatments for Parkinsons disease and other chronic conditions, including beneficiary access to care, prescription drug coverage, and utilization management policies. The Alleviating Barriers for Caregivers (ABC) Act (H.R. 2491 / S. 1227), including advocacy related to simplifying Medicare and Social Security processes and improving access to benefits for caregivers and individuals with chronic conditions. The Essential Caregivers Act of 2025 (H.R. 6766 / S. 3492), including advocacy related to ensuring access for designated essential caregivers in health care facilities during periods of restricted visitation under Medicare and Medicaid. The Alzheimers Screening and Prevention (ASAP) Act (H.R. 6130 / S. 3267), including advocacy related to Medicare coverage of blood-based biomarker tests for early detection of Alzheimers disease and related dementias. Centers for Medicare & Medicaid Services (CMS) policies, including advocacy related to Medicare Part D and Medicare Advantage, prescription drug affordability, formulary design, utilization management, beneficiary protections, and the CY 2027 Advance Notice.

Client expense: $190,000 · Firm income: Not reported

General Parkinsons disease information, including disease burden, symptoms, health coverage, health care costs, environmental risk factors, and access to care for underserved communities. Implementation of the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinsons Act (Public Law No. 118-66), including advocacy related to the development and execution of the National Parkinsons Project (NPP), interagency coordination, advisory council establishment, reporting requirements, and congressional oversight, as well as appropriations to support implementation activities. Federal funding for Parkinsons disease and neurodegenerative disease research at the National Institutes of Health (NIH), including advocacy for increased appropriations across NIH institutes (including the National Institute of Neurological Disorders and Stroke (NINDS) and National Institute on Aging (NIA)) and support for related congressional appropriations requests and communications. National Institute of Neurological Disorders and Stroke (NINDS) Morris K. Udall Centers of Excellence for Parkinsons Disease Research, including advocacy in appropriations to re-establish and expand Udall Centers, related report language, and coordination with the National Parkinsons Project. Advanced Research Projects Agency for Health (ARPA-H) and neurodegenerative disease research, including advocacy for report language directing prioritization of high-risk, high-reward research on Parkinsons disease and related neurodegenerative conditions. Alzheimers Disease and Alzheimers Disease-Related Dementias (AD/ADRD) research, including advocacy for report language to expand funding eligibility to Parkinsons disease and related dementias and support research on the intersection of Parkinsons disease and dementia. Centers for Disease Control and Prevention (CDC) National Neurological Conditions Surveillance System (NNCSS), including advocacy for continued appropriations to support data collection and surveillance of Parkinsons disease and related conditions. Department of Health and Human Services (HHS) coordination on environmental risk factors and neurodegenerative disease prevention, including advocacy for report language and funding to support interagency coordination and research on toxic exposures and Parkinsons disease and related conditions. The Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act (H.R. 7779), including advocacy for cosponsorship and provisions supporting research on environmental risk factors and toxic exposures linked to neurodegenerative diseases. Environmental risk factors and Parkinsons disease, including advocacy related to pesticide exposure and paraquat, and support for Environmental Protection Agency (EPA) action to reassess and restrict or ban paraquat due to links to Parkinsons disease. The Alzheimers Screening and Prevention (ASAP) Act (H.R. 6130 / S. 3267), including advocacy related to early detection of Alzheimers disease and related dementias and access to diagnostic tools. The Lowering Costs for Caregivers Act (S. 1565 / H.R. 138), including advocacy related to expanding the use of tax-advantaged health accounts (including HSAs, FSAs, and HRAs) to cover medical expenses for family caregivers and improving affordability of care. The Essential Caregivers Act of 2025 (H.R. 6766 / S. 3492), including advocacy related to ensuring access for designated essential caregivers in health care facilities during periods of restricted visitation under Medicare and Medicaid.

S. 3439/H.R. 6735, the Connecting Caregivers to Medicare Act of 2025. P.L. 119-21, One Big Beautiful Bill Act. No bill number. Discussed permanent extension of enhanced ACA tax credits. H.Res. 780, Providing for consideration of legislation that would extend enhanced ACA tax credits for three-years. H.R. 6766/S. 3492, the Essential Caregivers Act of 2025. H.R.3954, the Improving Access to Medicare Coverage Act of 2025. S. 2237/H.R. 4313, the Hospital Inpatient Services Modernization Act. H.R. 2085, the Mental Health Research Accelerator Act of 2025. H.R. 5861, the Legacy Act of 2025. S.2120, the Older Americans Act Reauthorization Act of 2025. H.R. 5575, the Firefighters Assisting Seniors to Emergency Response (FASTER) Act of 2025. No bill number. Discussed resolution for November for Hospice and Palliative Care Month. No bill number. Discussed older adults and end of life. No bill number. Discussed health savings accounts. No bill number. Discussed health care affordability. No bill number. Discussed artificial intelligence in health care. No bill number. Discussed Nursing Home staffing standards, safety, and quality. No bill number. Discussed home health, hospice and long-term care. No bill number. Discussed falls prevention. No bill number. Discussed social isolation. No bill number. Discussed SNAP, TEFAP, Nutrition and food security.

Client expense: $5,300,000 · Firm income: Not reported

S. 3439/H.R. 6735, Connecting Caregivers to Medicare Act of 2025. S. 1227/H.R. 2491, Alleviating Barriers for Caregivers Act of 2025. P.L. 119-21, One Big Beautiful Bill Act of 2025. S. 2466/H.R. 6210, the Senior Savings Protection Act of 2025. S. 1261/H.R. 4206, the CONNECT for Health Act of 2025. S. 639/HR 227, the Clergy Act of 2026. S.1105, the No UPCODE Act of 2025. S. 1816, the Improving Seniors Timely Access to Care Act of 2025. H.R. 6766/S. 3492. Essential Caregivers Act of 2025. H.R.3954. Improving Access to Medicare Coverage Act of 2025. No bill number. Discussed family caregiver exemption from Medicaid community engagement requirements. S. 2237/H.R. 4313, the Hospital Inpatient Services Modernization Act. No bill number. Discussed prior authorization and artificial intelligence in Medicare. No bill number. Discussed Medicare fraud. No bill number. Discussed Money Follows the person Rebalancing Demonstration Program and Medicaid home and community-based services (HCBS) spousal impoverishment protections. No bill number. Discussed Medicare Part B premiums. No bill number. Discussed support for family caregivers. No bill number. Discussed respite care. No bill number. Discussed Medicaid home and community-based services (HCBS), No bill number. Discussed Medicares support for family caregivers. No bill number. Discussed Medicare open enrollment. No bill number. Discussed timing for provider claims filings. No bill number. Discussed access to digital tools. No bill number. Nursing Home staffing standards, safety, and quality. No bill number. Home Health, Hospice and Long-term care.

Client expense: $5,300,000 · Firm income: Not reported

S.925/H.R. 2036 Credit for Caring Act of 2025. S. 1565/H.R. 138, the Lowering Costs for Caregivers Act of 2025. S. 3439/H.R. 6735, the Connecting Caregivers to Medicare Act of 2025. S. 1227/H.R. 2491, the Alleviating Barriers for Caregivers Act of 2025. H.R.395, the Improving Access to Medicare Coverage Act of 2025. P.L. 119-21, One Big Beautiful Bill Act. S. 2237/H.R. 4313, the Hospital Inpatient Services Modernization Act of 2025. S. 3271, the In-Home Caregiver Assessment Resources and Education Act of 2025. H. Res. 898/S. Res. 502, Recognizing November 2025 as National Family Caregivers Month H.R. 6766/S. 3492, the Essential Caregivers Act of 2025. S. 830, Lifespan Respite Care Reauthorization Act of 2025. S.2120. Older Americans Act Reauthorization Act of 2025 H.R. 5575. Firefighters Assisting Seniors to Emergency Response (FASTER) Act of 2025. H.R. 6678, the Senior Legal Hotline Act of 2025. H.R. 6900, the American Affordability Act of 2025. No bill number. Discussed family caregivers. No bill number - Discussed paid leave for working family caregivers. No bill number. Discussed family caregiver exemption from Medicaid community engagement requirements. No bill number. Discussed financial challenges facing family caregivers. No bill number. Discussed tax policy to support family caregivers. No bill number. Discussed employers supporting family caregivers. No bill number. Discussed family caregivers and technology. No bill number. Discussed support for family caregivers (including Medicare and CMMI care models). No bill number. Discussed Medicare Caregiver Training Services. No bill number. Discussed the Guiding an Improved Dementia Experience (GUIDE) Model. No bill number Discussed respite care. No bill number. Discussed Medicaid home and community-based services (HCBS), No bill number. Discussed Medicares support for family caregivers. No bill number. Discussed Older Americans Act reauthorization. No bill number. Discussed the health, long-term care, and caregiving needs of older adults and end of life. No bill number. Discussed nursing Home staffing standards, safety, and quality. No bill number. Discussed home health, hospice and long-term care. No bill number. Discussed falls prevention. No bill number. Discussed social isolation. No bill number. Discussed Farm Bill Reauthorization. No bill number. Discussed SNAP and nutrition assistance programs.