ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

Credit for Caregiving Act (H.R. 2036 and S. 925), The Multigenerational Caregiving Data Act (H.R. 8792 / S. 4513), The Essential Caregivers Act of 2026 (H.R. 9641/S. 3492, OMB Federal Financial Assistance Rule)

Client expense: $46,949 · Firm income: —

Matched citations: S. 4513

Credit for Caregiving Act (H.R. 2036 and S. 925), The Multigenerational Caregiving Data Act (H.R. 8792 / S. 4513), The Essential Caregivers Act of 2026 (H.R. 9641/S. 3492, OMB Federal Financial Assistance Rule)

Client expense: $46,949 · Firm income: —

Matched citations: S. 925

HR 2036 HEALTHY BRAINS Act NOT-OD-26-047: Inviting Comments and Suggestions on a Framework for the NIH-Wide Strategic Plan for Fiscal Years 2027-2031

Client expense: — · Firm income: $45,000

Matched citations: HR 2036

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Client expense: — · Firm income: $45,000

Matched citations: HR 2036

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Client expense: — · Firm income: $45,000

Matched citations: HR 6766

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Client expense: — · Firm income: $45,000

Matched citations: HR 8792

H.R.9260: Labor, Health and Human Services, Education, and Related Agencies FY 2027 No bill number, Senate: Defense FY 2027

Client expense: — · Firm income: $45,000

Matched citations: H.R.9260

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Client expense: — · Firm income: $45,000

Matched citations: S3492

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Client expense: — · Firm income: $45,000

Matched citations: S.4513

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Client expense: — · Firm income: $45,000

Matched citations: S 925

H.R. 2036/ S.925: Credit for Caring Act

Client expense: — · Firm income: $45,000

Matched citations: H.R. 2036

H.R. 5304/S. 2587: Labor, Health and Human Services, Education, and Related Agencies FY 2026

Client expense: — · Firm income: $45,000

Matched citations: H.R. 5304

H.R. 5304/S. 2587: Labor, Health and Human Services, Education, and Related Agencies FY 2026

Client expense: — · Firm income: $45,000

Matched citations: S. 2587

H.R. 2036/ S.925: Credit for Caring Act

Client expense: — · Firm income: $45,000

Matched citations: S.925

H.R. 2036/ S.925: Credit for Caring Act

Client expense: — · Firm income: $45,000

Matched citations: H.R. 2036

H.R. 5304/S. 2587: Labor, Health and Human Services, Education, and Related Agencies FY 2026

Client expense: — · Firm income: $45,000

Matched citations: H.R. 5304

H.R. 5304/S. 2587: Labor, Health and Human Services, Education, and Related Agencies FY 2026

Client expense: — · Firm income: $45,000

Matched citations: S. 2587

H.R. 2036/ S.925: Credit for Caring Act

Client expense: — · Firm income: $45,000

Matched citations: S.925

H.R. 2036/ S.925: Credit for Caring Act

Client expense: — · Firm income: $45,000

Matched citations: H.R. 2036

H.R. 2036/ S.925: Credit for Caring Act

Client expense: — · Firm income: $45,000

Matched citations: S.925

No bill number: Labor, Health and Human Services, Education, and Related Agencies FY 2026 No bill number: Agriculture, Rural Development, Food and Drug Administration, and Related Agencies FY 2026 H.R. 1968: FY2025 Full-Year Continuing Appropriations and Extensions Act

Client expense: — · Firm income: $45,000

Matched citations: H.R. 1968