A resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to sickle cell disease.
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(This measure has not been amended since it was introduced. The summary of that version is repeated here.) Expresses support for the goals and ideals of Sickle Cell Disease Awareness Month. (Sickle cell disease is an inherited blood disorder than can lead to pain, anemia, infections, and stroke.) Encourages people to hold events and activities to raise awareness of preventive care programs, treatments, and other patient services for those suffering from sickle cell disease.
These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.
Filing registrants (2)
2016 · third_quarter · Health Issues
Implementation of Health care reform generally pertaining to pediatric healthcare and autism services Medicaid program reforms, including hospital outpatient department regulations H.R. 546 and S.298 (ACE Kids Act of 2015), all provisions Section 340B Drug Pricing program H.R. 6 (21st century cures Act), entire bill and senate companion FDA reform legislation generally Stark Law Reform generally H.R. 5273 (Helping Hospitals Improve Patient Care Act of 2016), Section 201, regarding hospital outpatient departments H.R. 1807 (Sickle Cell Disease research, Surveillance, Prevention, and treatment Act of 2015), entire bill Hospital Outpatient Prospective payment system regulations regarding hospital outpatient department regulations Federal Policy regarding United Network for Organ Sharing (UNOS) and allocation of donated organs Reauthorization of Children's Hospital Graduate Medical Education program S.2873 and H.R.5395 (Expanding Capacity for Health Outcomes Act), all provisions S.1878 and H.R.1537 (Advancing Hope Act), all provisions S.Res.592 (A resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month"), all provisions Centers for Medicare & Medicaid Services Patient Billing Issues
Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S6256-6257; text as passed Senate: CR S6274)
Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent.(consideration: CR S6256-6257; text as passed Senate: CR S6274)
Introduced in Senate
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Sources: Congress.gov
Client expense: $123,999 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2016 · third_quarter · Medical/Disease Research/Clinical Labs
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015 (H.R. 1807) Advancing Hope Act (H.R. 1537/S. 1878) Resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" (S.Res. 592/H.Res. 903) Sickle Cell Disease/Trait Issues Hematology/Oncology Treatment Issues General Hematology Public Health and Research Issues Clinical Trials Regulations 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Regulation of laboratory developed tests Cancer "Moonshot" initiative
Client expense: $30,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of the Vice President of the United States, SENATE, Veterans Affairs, Dept of (VA)
2016 · third_quarter · Health Issues
Patients' Access to Treatments Act (H.R. 1600) Cancer Drug Coverage Parity Act (S. 1566/H.R. 2739) Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015 (H.R. 1807) Advancing Hope Act (H.R. 1537/S. 1878) Resolution expressing support for the designation of the month of September 2016 as "Sickle Cell Disease Awareness Month" (S.Res. 592/H.Res. 903) Implementation of Health Reform Legislation/Patient Protection and Affordable Care Act (P.L. 111-148) Hematology and Oncology Drug Research and Approval Issues Implementation of the Food and Drug Administration Safety and Innovation Act (FDASIA) (P.L. 112-144) Clinical Trials Regulations and Coverage 21st Century Cures Act (H.R. 6) Innovation for Healthier Americans initiative Issues impacting coverage for hematologic diseases and conditions
Client expense: $30,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of the Vice President of the United States, SENATE, Veterans Affairs, Dept of (VA)