EVERYLIFE FOUNDATION FOR RARE DISEASES

View full entity profile (contributions, contracts, SEC) →

This entity appears on both sides of lobbying disclosures. The firm tab shows registrant-reported income; the client tab shows client-reported lobbying spend. Contract awards are separate and are not included here.

Lobbying Spend

$670K

Filings

Firms Hired

Active Period

2011–2026

Lobbying Spend by Year

Client-reported lobbying expenses on LDA filings

Year	Lobbying Spend	Filings	Firms
2026	$170,000	6	2
2025	$150,000	8	2
2024	$120,000	12	3
2023	$90,000	8	2
2022	$80,000	8	2
2021	$60,000	8	2
2020	—	4	1
2018	—	4	1
2017	—	4	1
2016	—	4	1
2015	—	4	1
2014	—	4	1
2013	—	4	1
2012	—	4	1
2011	—	3	1

Hired Firms

Lobbying firms retained by this client; amounts are client-reported expenses when available

Firm Name	Reported Spend	Filings
EVERYLIFE FOUNDATION FOR RARE DISEASES	$670,000	23
Polsinelli PC	—	31
FAEGRE DRINKER BIDDLE & REATH LLP	—	27
IPOLICY SOLUTIONS	—	4

Government Bodies Lobbied

Government entities explicitly identified as targets in LDA filings

Government Body	Filings
HOUSE OF REPRESENTATIVES	79
SENATE	71
Executive Office of the President (EOP)	4
Centers For Medicare and Medicaid Services (CMS)	1

Top Issues

Most frequently reported lobbying issues

Issue Code	Description	Reports
Health Issues	Health Issues	81
Budget/Appropriations	Budget/Appropriations	25
Medicare/Medicaid	Medicare/Medicaid	13
Taxation/Internal Revenue Code	Taxation/Internal Revenue Code	1

Bills Explicitly Cited (25)

Bill numbers found in source-reported LDA specific issue text; broad topic matches are excluded

H.R. 10359119th Congress

Priority for Pediatric Cures Act

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: H.R. 10359

H.R. 1414119th Congress

Cameron’s Law

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: H.R. 1414

H.R. 1532119th Congress

Scientific EXPERT Act of 2025

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: H.R. 1532

H.R. 4709119th Congress

Newborn Screening Saves Lives Reauthorization Act of 2025

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: H.R. 4709

Show 21 more cited filings

H.R. 5509119th Congress

Safe Step Act

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: H.R. 5509

H.R. 7118119th Congress

Genomic Answers for Children’s Health Act of 2026

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: H.R. 7118

S. 2903119th Congress

Safe Step Act

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: S. 2903

S. 822119th Congress

Scientific EXPERT Act of 2025

2026 · third_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $60,000 · Firm income: —

Matched citations: S. 822

H.R. 1414119th Congress

Cameron’s Law

2026 · second_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $40,000 · Firm income: —

Matched citations: H.R. 1414

H.R. 1532119th Congress

Scientific EXPERT Act of 2025

2026 · second_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $40,000 · Firm income: —

Matched citations: H.R. 1532

H.R. 4709119th Congress

Newborn Screening Saves Lives Reauthorization Act of 2025

2026 · second_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $40,000 · Firm income: —

Matched citations: H.R. 4709

H.R. 5509119th Congress

Safe Step Act

2026 · second_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $40,000 · Firm income: —

Matched citations: H.R. 5509

H.R. 7118119th Congress

Genomic Answers for Children’s Health Act of 2026

2026 · second_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $40,000 · Firm income: —

Matched citations: H.R. 7118

S. 2903119th Congress

Safe Step Act

2026 · second_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $40,000 · Firm income: —

Matched citations: S. 2903

S. 822119th Congress

Scientific EXPERT Act of 2025

2026 · second_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $40,000 · Firm income: —

Matched citations: S. 822

H.R. 1262119th Congress

Mikaela Naylon Give Kids a Chance Act

2026 · first_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $70,000 · Firm income: —

Matched citations: H.R. 1262

H.R. 1509119th Congress

Accelerating Kids’ Access to Care Act of 2025

2026 · first_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $70,000 · Firm income: —

Matched citations: H.R. 1509

H.R. 1532119th Congress

Scientific EXPERT Act of 2025

2026 · first_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $70,000 · Firm income: —

Matched citations: H.R. 1532

H.R. 4709119th Congress

Newborn Screening Saves Lives Reauthorization Act of 2025

2026 · first_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $70,000 · Firm income: —

Matched citations: H.R. 4709

S. 752119th Congress

Accelerating Kids’ Access to Care Act

2026 · first_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $70,000 · Firm income: —

Matched citations: S. 752

S. 822119th Congress

Scientific EXPERT Act of 2025

2026 · first_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $70,000 · Firm income: —

Matched citations: S. 822

S. 932119th Congress

Give Kids a Chance Act of 2025

2026 · first_quarter · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: $70,000 · Firm income: —

Matched citations: S. 932

H.R. 1509119th Congress

Accelerating Kids’ Access to Care Act of 2025

2026 · first_quarter · Firm: FAEGRE DRINKER BIDDLE & REATH LLP

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: — · Firm income: $40,000

Matched citations: H.R. 1509

S. 752119th Congress

Accelerating Kids’ Access to Care Act

2026 · first_quarter · Firm: FAEGRE DRINKER BIDDLE & REATH LLP

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: — · Firm income: $40,000

Matched citations: S.752

H.R. 1119th Congress

An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.

2025 · fourth_quarter · Firm: FAEGRE DRINKER BIDDLE & REATH LLP

Open original LDA filing ↗

Cited source text and reported amounts

Client expense: — · Firm income: $20,000

Matched citations: H.R. 1

Source: Senate LDA

EVERYLIFE FOUNDATION FOR RARE DISEASES — Lobbying Disclosure | Poliscope