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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
Accelerating Kids’ Access to Care Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Medicare / Medicaid issues impacting patients with rare diseases. H.R.3089/S.1544: Accelerating Kids Access to Care Act. Inflation Reduction Act Implementation.
Inflation Reduction Act of 2022
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Rare disease initiatives. Newborn screening. Genetic testing. Affordable Care Act (ACA) Issues and Enhancements as it Relates to H.R.5376 - Build Back Better Act. Telehealth legislation.
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2023 · first_quarter · Q1
Appropriations impacting patients with rare diseases. National Institute of Health (NIH) NCATS Appropriations. Advanced Research Projects Agency-Health (ARPA-H) Appropriations.
Rare Disease Initiatives. Newborn Screening. Genetic Testing Access. Affordable Care Act (ACA) Issues and Enhancements. Telehealth.
Source: Senate LDA
Inflation Reduction Act of 2022
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Rare disease initiatives. Newborn screening. Genetic testing. Affordable Care Act (ACA) Issues and Enhancements as it Relates to H.R.5376 - Build Back Better Act. Telehealth legislation.
Accelerating Kids’ Access to Care Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Medicare / Medicaid issues impacting patients with rare diseases. H.R.3089/S.1544: Accelerating Kids Access to Care Act. Inflation Reduction Act Implementation.
Fairness in Orphan Drug Exclusivity Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Pharmaceutical issues impacting patients with rare diseases. Drug Pricing and Orphan Drug Act. Accelerated Approval Pathway. Orphan Drug Tax Credit. H.R.1629 - Fairness in Orphan Drug Exclusivity Act. Cures 2.0.
Inflation Reduction Act of 2022
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Rare disease initiatives. Newborn screening. Affordable Care Act (ACA) issues and enhancements as it relates to H.R.5376 - Build Back Better Act. Paid Medical and Family Leave as it relates to H.R.5376 - Build Back Better Act. Cares 2.0.
Inflation Reduction Act of 2022
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Medicare / Medicaid issues impacting patients with rare diseases. Medicare Part D Program as it relates to H.R.5376 - Build Back Better Act.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Rare disease initiatives. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Clinical trials. Newborn screening. User Fee Negotiations. Value Based Purchasing. Affordable Care Act (ACA) issues. Affordable Care Act (ACA) enhancements. COVID-19 Related Issues.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Rare disease initiatives. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Newborn screening. Genetic testing. Health equity. Affordable Care Act (ACA) issues. Affordable Care Act (ACA) enhancements. Drug Pricing and Orphan Drug Act. COVID-19 Related Issues. Medical Nutrition.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Rare disease initiatives. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Newborn screening. Genetic testing. Health equity. Affordable Care Act (ACA) issues. Affordable Care Act (ACA) enhancements. Drug Pricing and Orphan Drug Act. COVID-19 Related Issues. Medical Nutrition.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Rare disease initiatives. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Clinical trials. Newborn screening. User Fee Negotiations. Value Based Purchasing. Affordable Care Act (ACA) issues. Affordable Care Act (ACA) enhancements. COVID-19 Related Issues.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Telehealth. Medical Foods. Step Therapy. H.R.2279/S.2546: Safe Step Act. Surprise Medical Billing. Physician Fee Schedule. Value Based Purchasing. Grandfathered Plans - Affordable Care Act. COVID-19 Related Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Notice of Benefit Payment Parameters. Surprise Medical Billing. Pre-Existing Conditions. User Fee Negotiations. Physician Fee Schedule. Value Based Purchasing. Integrated Review Panel. Regulation and Guidance Reform. Affordable Care Act. COVID-19 Related Issues.
CARES Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Telehealth. Medical Foods. Step Therapy. H.R.2279/S.2546: Safe Step Act. Surprise Medical Billing. Physician Fee Schedule. Value Based Purchasing. Grandfathered Plans - Affordable Care Act. COVID-19 Related Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
CARES Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. International Classification of Diseases (ICD-10). FDA Clinical Trials Step Therapy. Gene Therapy. Biosimilars. Medical Foods. Public Law No: 111-148: The Patient Protection and Affordable Care Act. HHS/OCR Anti discrimination. Health Care Access Affordability. Surprise Medical Billing. Value Based Purchasing. Paid Leave. COVID-19 Related Issues. COVID-19 Related Home Infusion Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Telehealth. Medical Foods. Step Therapy. H.R.2279/S.2546: Safe Step Act. Surprise Medical Billing. Physician Fee Schedule. Value Based Purchasing. Grandfathered Plans - Affordable Care Act. COVID-19 Related Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
Safe Step Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Notice of Benefit Payment Parameters. Surprise Medical Billing. Pre-Existing Conditions. User Fee Negotiations. Physician Fee Schedule. Value Based Purchasing. Integrated Review Panel. Regulation and Guidance Reform. Affordable Care Act. COVID-19 Related Issues.
CARES Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. International Classification of Diseases (ICD-10). FDA Clinical Trials Step Therapy. Gene Therapy. Biosimilars. Medical Foods. Public Law No: 111-148: The Patient Protection and Affordable Care Act. HHS/OCR Anti discrimination. Health Care Access Affordability. Surprise Medical Billing. Value Based Purchasing. Paid Leave. COVID-19 Related Issues. COVID-19 Related Home Infusion Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
CARES Act
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) · Firm: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Health issues impacting patients with rare diseases. Telehealth. Medical Foods. Step Therapy. H.R.2279/S.2546: Safe Step Act. Surprise Medical Billing. Physician Fee Schedule. Value Based Purchasing. Grandfathered Plans - Affordable Care Act. COVID-19 Related Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. User Fee Agreements. Inflation Reduction Act Implementation.
Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2022 · fourth_quarter · Q4
Rare disease initiatives. Newborn Screening. Genetic Testing Access. Medical Nutrition. Affordable Care Act (ACA) Issues and Enhancements.
Medicare / Medicaid issues impacting patients with rare diseases. H.R.3089/S.1544: Accelerating Kids Access to Care Act. Inflation Reduction Act Implementation.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2022 · third_quarter · Q3
Rare disease initiatives. Affordable Care Act (ACA) Issues and Enhancements.
Medicare / Medicaid issues impacting patients with rare diseases.
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Rare Disease Trial Design. Prescription Drug User Fee Act (PDUFA) Reauthorization. User Fee Agreements. Clinical Trial Diversity. Patient-focused drug development.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2022 · second_quarter · Q2
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. User Fee Agreements. Prescription Drug User Fee Act (PDUFA) Reauthorization.
Medicare / Medicaid issues impacting patients with rare diseases.
Rare disease initiatives. Newborn screening. Affordable Care Act (ACA) Issues and Enhancements.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2022 · first_quarter · 1A
Rare disease initiatives. Newborn screening. Genetic testing. Affordable Care Act (ACA) Issues and Enhancements as it Relates to H.R.5376 - Build Back Better Act. Telehealth legislation.
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. User Fee Agreements. Prescription Drug User Fee Act (PDUFA).
Medicare / Medicaid issues impacting patients with rare diseases.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2022 · first_quarter · Q1
Rare disease initiatives. Newborn screening. Genetic testing. Affordable Care Act (ACA) Issues and Enhancements as it Relates to H.R.5376 - Build Back Better Act. Telehealth legislation.
Medicare / Medicaid issues impacting patients with rare diseases.
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. User Fee Agreements. Prescription Drug User Fee Act (PDUFA).
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2021 · fourth_quarter · Q4
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act.
Medicare / Medicaid issues impacting patients with rare diseases. Medicare Part D Program as it relates to H.R.5376 - Build Back Better Act.
Rare disease initiatives. Newborn screening. Affordable Care Act (ACA) issues and enhancements as it relates to H.R.5376 - Build Back Better Act. Paid Medical and Family Leave as it relates to H.R.5376 - Build Back Better Act. Cares 2.0.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2021 · third_quarter · Q3
Pharmaceutical issues impacting patients with rare diseases. Drug Pricing and Orphan Drug Act. Accelerated Approval Pathway. Orphan Drug Tax Credit. H.R.1629 - Fairness in Orphan Drug Exclusivity Act. Cures 2.0.
Health issues impacting patients with rare diseases. Rare disease initiatives. Telehealth. Step Therapy. User Fee Negotiations. Newborn screening. Affordable Care Act (ACA) issues. Affordable Care Act (ACA) enhancements. COVID-19 Related Issues. Medical Nutrition. Paid Medical and Family Leave
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2021 · second_quarter · Q2
Medicare / Medicaid issues impacting patients with rare diseases. Medicare Part D Program. Section 1115 Medicaid Waivers. Medicaid Drug Rebates. Prescription Drug Pricing.
Health issues impacting patients with rare diseases. Rare disease initiatives. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Newborn screening. Genetic testing. Health equity. Affordable Care Act (ACA) issues. Affordable Care Act (ACA) enhancements. Drug Pricing and Orphan Drug Act. COVID-19 Related Issues. Medical Nutrition.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2021 · first_quarter · Q1
Medicaid issues impacting patients with rare diseases. Section 1115 Medicaid Waivers. Medicaid Drug Rebates.
Health issues impacting patients with rare diseases. Rare disease initiatives. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Clinical trials. Newborn screening. User Fee Negotiations. Value Based Purchasing. Affordable Care Act (ACA) issues. Affordable Care Act (ACA) enhancements. COVID-19 Related Issues.
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2020 · fourth_quarter · Q4
Health issues impacting patients with rare diseases. Telehealth. Step Therapy. H.R.2279/S.2546: Safe Step Act. Notice of Benefit Payment Parameters. Surprise Medical Billing. Pre-Existing Conditions. User Fee Negotiations. Physician Fee Schedule. Value Based Purchasing. Integrated Review Panel. Regulation and Guidance Reform. Affordable Care Act. COVID-19 Related Issues.
Pharmaceutical issues impacting patients with rare diseases. Prescription Drug Pricing. NBPP Proposed Rule. Biosimilar User Fee Act (BsUFA). Prescription Drug User Fee Act (PDUFA).
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2020 · third_quarter · Q3
Health issues impacting patients with rare diseases. Telehealth. Medical Foods. Step Therapy. H.R.2279/S.2546: Safe Step Act. Surprise Medical Billing. Physician Fee Schedule. Value Based Purchasing. Grandfathered Plans - Affordable Care Act. COVID-19 Related Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
Medicare issues impacting patients with rare diseases. Medicaid issues impacting patients with rare diseases. COVID-19 Relief. Medicare Part D Program. Section 1115 Medicaid Waivers. Medicaid Drug Rebates. Medicaid Expansion. Value-Based Payments. Pass-Through Payments.
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) via NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
2020 · second_quarter · Q2
Health issues impacting patients with rare diseases. International Classification of Diseases (ICD-10). FDA Clinical Trials Step Therapy. Gene Therapy. Biosimilars. Medical Foods. Public Law No: 111-148: The Patient Protection and Affordable Care Act. HHS/OCR Anti discrimination. Health Care Access Affordability. Surprise Medical Billing. Value Based Purchasing. Paid Leave. COVID-19 Related Issues. COVID-19 Related Home Infusion Issues. Implementation of H.R.748/S.3548: Coronavirus Aid, Relief, and Economic Security Act (CARES) Act.
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Drug Pricing. Pediatric Priority Review Vouchers.
Medicare issues impacting patients with rare diseases. Medicaid issues impacting patients with rare diseases. Medicare Part D Program. Section 1115 Medicaid Waivers. Medicaid Drug Rebates. Medicaid Expansion. Value-Based Payments. Prior Authorization.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Office of Management & Budget (OMB), SENATE
Pharmaceutical issues impacting patients with rare diseases. Drug Pricing.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Medicare issues impacting patients with rare diseases. Medicare Part A Program. COVID-19 Relief for Home Infusion Under Medicare Part B. Medicare Part D Program. Medicaid Best Price. Section 1115 Medicaid Waivers. Medicaid Block Grants.
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE