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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
Priority for Pediatric Cures Act
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Mikaela Naylon Give Kids a Chance Act
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Source: Senate LDA
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
Cameron’s Law
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Cameron’s Law
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Accelerating Kids’ Access to Care Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
Scientific EXPERT Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
Scientific EXPERT Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Scientific EXPERT Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Newborn Screening Saves Lives Reauthorization Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
Newborn Screening Saves Lives Reauthorization Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Newborn Screening Saves Lives Reauthorization Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Safe Step Act
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Safe Step Act
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Genomic Answers for Children’s Health Act of 2026
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Genomic Answers for Children’s Health Act of 2026
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Safe Step Act
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Safe Step Act
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Accelerating Kids’ Access to Care Act
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
Scientific EXPERT Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Scientific EXPERT Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
Scientific EXPERT Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act
Give Kids a Chance Act of 2025
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) · Firm: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
Mikaela Naylon Give Kids a Chance Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act
Mikaela Naylon Give Kids a Chance Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Mikaela Naylon Give Kids a Chance Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Mikaela Naylon Give Kids a Chance Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
Accelerating Kids’ Access to Care Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act
Accelerating Kids’ Access to Care Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
Accelerating Kids’ Access to Care Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Accelerating Kids’ Access to Care Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Newborn Screening Saves Lives Reauthorization Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Newborn Screening Saves Lives Reauthorization Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Accelerating Kids’ Access to Care Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Accelerating Kids’ Access to Care Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
Accelerating Kids’ Access to Care Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act
Accelerating Kids’ Access to Care Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Scientific EXPERT Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act
Give Kids a Chance Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act
Give Kids a Chance Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Give Kids a Chance Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Give Kids a Chance Act of 2025
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
Give Kids a Chance Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
Give Kids a Chance Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Give Kids a Chance Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Innovation in Pediatric Drugs Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Innovation in Pediatric Drugs Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
Innovation in Pediatric Drugs Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
Creating Hope Reauthorization Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
Creating Hope Reauthorization Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Creating Hope Reauthorization Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Creating Hope Reauthorization Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Scientific EXPERT Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
RARE Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
Creating Hope Reauthorization Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Creating Hope Reauthorization Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
Creating Hope Reauthorization Act of 2024
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act.
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act.
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act.
Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act.
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act.
HELP Copays Act
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act.
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act.
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act
BENEFIT Act of 2023
Client: EVERYLIFE FOUNDATION FOR RARE DISEASES · Firm: EVERYLIFE FOUNDATION FOR RARE DISEASES
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act.
2026 · second_quarter · Q2
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2025 · fourth_quarter · Q4
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2025 · third_quarter · Q3
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2025 · second_quarter · Q2
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 1 - One Big Beautiful Bill Act
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2025 · first_quarter · Q1
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2024 · fourth_quarter · Q4
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023; H.R. 9979 - Scientific External Process for Educated Review of Therapeutics (EXPERT) Act of 2024; H.R. 3433 - Give Kids a Chance Act
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2024 · third_quarter · Q3
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2024 · second_quarter · Q2
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384, S. 4583 - Creating Hope Reauthorization Act; H.R. 7383, S. 1214 - RARE Act; H.R. 3433 - Give Kids a Chance Act of 2023; H.R. 6664 - Innovation in Pediatric Drugs Act of 2023
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2024 · first_quarter · Q1
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act; H.R. 7384 - Creating Hope Reauthorization Act; H.R. 7383; S. 1214 - RARE Act
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2023 · fourth_quarter · Q4
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act; Technical corrections to the IRA; H.R. 6094 - PROTECT Rare Act
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2023 · third_quarter · Q3
Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2023 · second_quarter · Q2
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act; Safe Step Act; Accelerating Kids Access to Care Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2023 · first_quarter · Q1
Newborn Screening Save Lives Reauthorization Act; ARPA-H; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Access to Genetic Counselor Services Act; Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act; MVP Act; H.R. 830 - HELP Copays Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2022 · fourth_quarter · Q4
H.R. 1730, S. 670 - STAT Act; H.R. 482, S. 350 - Newborn Screening Save Lives Reauthorization Act; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations; S. 373, H.R. 4472 - Better Empowerment Now to Enhance Framework to Improve Treatments (BENEFIT) Act; H.R. 2144, S. 1450 - Access to Genetic Counselor Services Act; H.R. 5989 - Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2022 · third_quarter · Q3
H.R. 1730, S. 670 - STAT Act; H.R. 482, S. 350 - Newborn Screening Save Lives Reauthorization Act; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations; S. 373, H.R. 4472 - Better Empowerment Now to Enhance Framework to Improve Treatments (BENEFIT) Act; H.R. 2144, S. 1450 - Access to Genetic Counselor Services Act; H.R. 5989 - Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2022 · second_quarter · Q2
H.R. 1730, S. 670 - STAT Act; H.R. 482, S. 350 - Newborn Screening Save Lives Reauthorization Act; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations; S. 373, H.R. 4472 - Better Empowerment Now to Enhance Framework to Improve Treatments (BENEFIT) Act; H.R. 2144, S. 1450 - Access to Genetic Counselor Services Act; H.R. 5989 - Precision Medicine Answers for Kids Today Act (PMAKTA); VALID Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2022 · first_quarter · Q1
H.R. 1730, S. 670 - STAT Act; H.R. 482, S. 350 - Newborn Screening Save Lives Reauthorization Act; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations; S. 373, H.R. 4472 - Better Empowerment Now to Enhance Framework to Improve Treatments (BENEFIT) Act; H.R. 2144, S. 1450 - Access to Genetic Counselor Services Act; H.R. 5989 - Precision Medicine Answers for Kids Today Act (PMAKTA).
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2021 · fourth_quarter · Q4
H.R. 1730, S. 670 - STAT Act; H.R. 482, S. 350 - Newborn Screening Save Lives Reauthorization Act; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations; S. 373, H.R. 4472 - Better Empowerment Now to Enhance Framework to Improve Treatments (BENEFIT) Act; H.R. 2144, S. 1450 - Access to Genetic Counselor Services Act; H.R. 4393 - Advancing Precision Medicine Act; H.R. 3783, S. 2013 - Medical Nutrition Equity Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2021 · third_quarter · Q3
H.R. 1730, S. 670 - STAT Act; H.R. 482, S. 350 - Newborn Screening Save Lives Reauthorization Act; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations; S. 373, H.R. 4472 - Better Empowerment Now to Enhance Framework to Improve Treatments (BENEFIT) Act; H.R. 2144, S. 1450 - Access to Genetic Counselor Services Act; H.R. 4393 - Advancing Precision Medicine Act; H.R. 3783, S. 2013 - Medical Nutrition Equity Act.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2021 · second_quarter · Q2
H.R. 1730, S. 670 - STAT Act; H.R. 482, S. 350 - Newborn Screening Save Lives Reauthorization Act; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
EVERYLIFE FOUNDATION FOR RARE DISEASES via EVERYLIFE FOUNDATION FOR RARE DISEASES
2021 · second_quarter · RR
STAT Act - H.R. 1730, S. 670; Newborn Screening Save Lives Reauthorization Act - H.R. 482, S. 350; Cures 2.0; PDUFA; ARPA-H; Telehealth; Covid-relief; Appropriations