RACHEL PATTERSON

-S. 464/H.R. 2163, Safe Step Act, support passage. -H.R. 8454, Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -S.4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

BUDGET -H.R. 2471, Consolidated Appropriations Act, 2022, support passage to ensure funding for important epilepsy-related programs, research and services including the CDC epilepsy program and the VA Epilepsy Centers of Excellence. -Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program; $164 million for the CDC's Safe Motherhood & Infant Health Program including more funding for the SUID & SDY Case Registry; $49 billion for the NIH; and $5 million for the National Neurological Conditions Surveillance System. - Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.

-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $49 billion for the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs. -H.R. 2617, Consolidated Appropriations Act 2023, support increased funding for epilepsy-related programs and research, extension of Medicare telehealth flexibilities and other programs that support the epilepsy community.

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.

-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $49 billion for the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs. -H.R. 6833 Continuing Appropriations and Ukraine Supplemental Appropriations Act, support passage to ensure federal funding for programs and research important to the epilepsy community through December 16, 2022.

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-S. 464/H.R. 2163, Safe Step Act, support passage. -H.R. 8454, Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -S.4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-S. 464/H.R. 2163, Safe Step Act, support passage. -H.R. 8454, Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -S.4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-S. 464/H.R. 2163, Safe Step Act, support passage. -H.R. 8454, Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -S.4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.

-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-S. 464/H.R. 2163, Safe Step Act, support passage. -H.R. 8454, Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -S.4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development

-H.R. 1319, American Rescue Plan, support dedicated funding for Medicaid home- and community-based services; including adult dependents in Economic Impact Payments; extension of emergency paid leave tax credits; and provisions to improve affordability of health coverage including subsidizing premium costs for those on COBA and increasing subsidies to purchase coverage through the Affordable Care Act. -Oppose weakening of Medicares Six Protected Classes contained in Calendar Year 2022 Request for Applications for the Part D Payment Modernization Model. -S. 464, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; adding vision, dental, and hearing coverage to Medicare; raising asset limits and other improvements to supplemental security income; expanding low-income subsidies in Medicare. -Ensure access to medications in emergencies in pandemic preparedness legislation. -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -Support creation of a Neuroscience Center of Excellence at the FDA.

-Address affordability of health insurance premiums, out-of-pocket costs, support and expand Medicaid coverage and limit inadequate short-term limited duration and other non-compliant plans. -Create an out-of-pocket cap in Medicare Part D with smoothing mechanism, bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; improve Medicare coverage for low income beneficiaries; add vision, dental, and hearing coverage to Medicare -Include provisions ensuring access to medications in emergencies in pandemic preparedness legislation -S. 2210, Better Care Better Jobs Act, support passage to enhance funding for and expand access to Medicaid home- and community-based services (HCBS) and permanently reauthorize Money Follows the Person -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -Provide a $400 billion investment in Medicaid home-and community-based services (HCBS) as outlined in the Build Back Better Agenda -S. 464/H.R. 2163, Safe Step Act, support passage -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -Ensure access to medications in emergencies in pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and HR 5657 Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, support passage and creation of a Neuroscience Center of Excellence at the FDA.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -Ensure access to medications in emergencies in pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and HR 5657 Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, support passage and creation of a Neuroscience Center of Excellence at the FDA.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -Ensure access to medications in emergencies in pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and HR 5657 Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, support passage and creation of a Neuroscience Center of Excellence at the FDA.

-Address affordability of health insurance premiums, out-of-pocket costs, support and expand Medicaid coverage and limit inadequate short-term limited duration and other non-compliant plans. -Create an out-of-pocket cap in Medicare Part D with smoothing mechanism, bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; improve Medicare coverage for low income beneficiaries; add vision, dental, and hearing coverage to Medicare -Include provisions ensuring access to medications in emergencies in pandemic preparedness legislation -S. 2210, Better Care Better Jobs Act, support passage to enhance funding for and expand access to Medicaid home- and community-based services (HCBS) and permanently reauthorize Money Follows the Person -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -Provide a $400 billion investment in Medicaid home-and community-based services (HCBS) as outlined in the Build Back Better Agenda -S. 464/H.R. 2163, Safe Step Act, support passage -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products.

-H.R. 1319, American Rescue Plan, support dedicated funding for Medicaid home- and community-based services; including adult dependents in Economic Impact Payments; extension of emergency paid leave tax credits; and provisions to improve affordability of health coverage including subsidizing premium costs for those on COBA and increasing subsidies to purchase coverage through the Affordable Care Act. -Oppose weakening of Medicares Six Protected Classes contained in Calendar Year 2022 Request for Applications for the Part D Payment Modernization Model. -S. 464, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; adding vision, dental, and hearing coverage to Medicare; raising asset limits and other improvements to supplemental security income; expanding low-income subsidies in Medicare. -Ensure access to medications in emergencies in pandemic preparedness legislation. -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -Support creation of a Neuroscience Center of Excellence at the FDA.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -Ensure access to medications in emergencies in pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and HR 5657 Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, support passage and creation of a Neuroscience Center of Excellence at the FDA.

-Address affordability of health insurance premiums, out-of-pocket costs, support and expand Medicaid coverage and limit inadequate short-term limited duration and other non-compliant plans. -Create an out-of-pocket cap in Medicare Part D with smoothing mechanism, bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; improve Medicare coverage for low income beneficiaries; add vision, dental, and hearing coverage to Medicare -Include provisions ensuring access to medications in emergencies in pandemic preparedness legislation -S. 2210, Better Care Better Jobs Act, support passage to enhance funding for and expand access to Medicaid home- and community-based services (HCBS) and permanently reauthorize Money Follows the Person -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -Provide a $400 billion investment in Medicaid home-and community-based services (HCBS) as outlined in the Build Back Better Agenda -S. 464/H.R. 2163, Safe Step Act, support passage -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products.

-Address affordability of health insurance premiums, out-of-pocket costs, support and expand Medicaid coverage and limit inadequate short-term limited duration and other non-compliant plans. -Create an out-of-pocket cap in Medicare Part D with smoothing mechanism, bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; improve Medicare coverage for low income beneficiaries; add vision, dental, and hearing coverage to Medicare -Include provisions ensuring access to medications in emergencies in pandemic preparedness legislation -S. 2210, Better Care Better Jobs Act, support passage to enhance funding for and expand access to Medicaid home- and community-based services (HCBS) and permanently reauthorize Money Follows the Person -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -Provide a $400 billion investment in Medicaid home-and community-based services (HCBS) as outlined in the Build Back Better Agenda -S. 464/H.R. 2163, Safe Step Act, support passage -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -Ensure access to medications in emergencies in pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and HR 5657 Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, support passage and creation of a Neuroscience Center of Excellence at the FDA.

-H.R. 1319, American Rescue Plan, support dedicated funding for Medicaid home- and community-based services; including adult dependents in Economic Impact Payments; extension of emergency paid leave tax credits; and provisions to improve affordability of health coverage including subsidizing premium costs for those on COBA and increasing subsidies to purchase coverage through the Affordable Care Act. -Oppose weakening of Medicares Six Protected Classes contained in Calendar Year 2022 Request for Applications for the Part D Payment Modernization Model. -S. 464, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage.

-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; adding vision, dental, and hearing coverage to Medicare; raising asset limits and other improvements to supplemental security income; expanding low-income subsidies in Medicare. -Ensure access to medications in emergencies in pandemic preparedness legislation. -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -Support creation of a Neuroscience Center of Excellence at the FDA.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 7614, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2021, support funding for epilepsy programs and research including $11.5 million for the CDCs Epilepsy program, $44.7 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System, and $10 million for Lifespan Respite Care Program -H.R. 7610, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2021, support robust funding for the Food & Drug Administration. -H.R. 7617, Defense Appropriations Act, 2021, support robust funding for the Congressionally Directed Medical Research Programs. -H.R. 7617, Defense, Commerce, Justice, Science, Energy and Water Development, Financial Services and General Government, Labor, Health and Human Services, Education, Transportation, Housing, and Urban Development Appropriations Act, 2021, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 1549, Air Carrier Access Amendments Act, support passage to make air travel more accessible for people with disabilities

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.

-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.

-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.

-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.