Reported covered position: Health Policy Manager
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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
Restoring the Patient's Voice Act of 2017
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Urge Congress to support efforts that increase access to care for individuals living with psoriasis and psoriatic arthritis by supporting the Patients' Access to Treatments Act. This bill limits copayments, coinsurance and other cost-sharing and out of pocket expenses for so-called speciality tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. Urge Congress to support efforts that increase access to care for individuals living with psoriasis and psoriatic arthritis by supporting the Restoring the Patient's Voice Act (HR 2077). The bill reforms step therapy insurance protocols to ensure patients and providers have access to a clear exemption process. It establishes a patient and provider friendly step therapy guidelines in ERISA regulated health insurance plans.
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2017 · second_quarter · Q2
FY18 Appropriations for Psoriatic Disease Allocate $1.5 million in the Fiscal Year 2018 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). Within this funding, the CDC would: - Support the development of public health self-management interventions that would help persons with psoriasis and psoriatic arthritis better manage their health, including their mental health. This project would include collecting and analyzing data to determine what patients must do to achieve optimal health outcomes and would develop new or update existing self-management tools to support these persons. - Better understand linkages between psoriasis and psoriatic arthritis and other multiple chronic conditions, to develop a focused public health applied research agenda for psoriatic disease.
Source: Senate LDA
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses. 6. 21st Century Cures Act, set appropriated funds for biomedical research at NIH and reforms to the FDA to develop and implement a strategic plan for biomedical research
Patients' Access to Treatments Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure 5.21st Century Cures Act - biomedical research bill 6. Crowdsourcing and Citizen Science Act of 2015 American Innovation Act
Patients' Access to Treatments Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Patients' Access to Treatments Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses.
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure 5.21st Century Cures Act - biomedical research bill 6. Crowdsourcing and Citizen Science Act of 2015 American Innovation Act
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses. 6. 21st Century Cures Act, set appropriated funds for biomedical research at NIH and reforms to the FDA to develop and implement a strategic plan for biomedical research
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses.
Personal Care Products Safety Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses.
Personal Care Products Safety Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses. 6. 21st Century Cures Act, set appropriated funds for biomedical research at NIH and reforms to the FDA to develop and implement a strategic plan for biomedical research
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure 5.21st Century Cures Act - biomedical research bill 6. Crowdsourcing and Citizen Science Act of 2015 American Innovation Act
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses.
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses. 6. 21st Century Cures Act, set appropriated funds for biomedical research at NIH and reforms to the FDA to develop and implement a strategic plan for biomedical research
Crowdsourcing and Citizen Science Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses.
Crowdsourcing and Citizen Science Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses. 6. 21st Century Cures Act, set appropriated funds for biomedical research at NIH and reforms to the FDA to develop and implement a strategic plan for biomedical research
Patients' Access to Treatments Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda.
Patients' Access to Treatments Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Patients' Access to Treatments Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Patients' Access to Treatments Act of 2015
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
-Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH.
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
21st Century Cures Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
21st Century Cures Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
21st Century Cures Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda.
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-calledspecialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure. -Ensure that Medicare Advantage networks are providing patients with adequate and timely access to providers with appropriate training and specialty expertise by copsonsoring HR.4998/S.2552
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Access to care for people with psoriasis and psoriatic arthritis. -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure.
Patients' Access to Treatments Act of 2013
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Access to care for people with psoriasis and psoriatic arthritis. -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure.
Patients' Access to Treatments Act of 2013
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
-Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following bill: efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R.460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -Engagement with the Food and Drug Administration (FDA) on the patient focused drug development initiative in the form of submitted comments. Additional engagement with FDA dermatology staff on the latest in psoriasis research, the NPFs current focus and drug therapy development views from the patient community.
Patients' Access to Treatments Act of 2013
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-calledspecialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure. -Ensure that Medicare Advantage networks are providing patients with adequate and timely access to providers with appropriate training and specialty expertise by copsonsoring HR.4998/S.2552
Medicare Advantage Participant Bill of Rights Act of 2014
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-calledspecialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure. -Ensure that Medicare Advantage networks are providing patients with adequate and timely access to providers with appropriate training and specialty expertise by copsonsoring HR.4998/S.2552
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-calledspecialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure. -Ensure that Medicare Advantage networks are providing patients with adequate and timely access to providers with appropriate training and specialty expertise by copsonsoring HR.4998/S.2552
Part D Beneficiary Appeals Fairness Act
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Access to care for people with psoriasis and psoriatic arthritis. -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure.
Medicare Advantage Participant Bill of Rights Act of 2014
Client: NATIONAL PSORIASIS FOUNDATION · Firm: NATIONAL PSORIASIS FOUNDATION
Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-calledspecialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure. -Ensure that Medicare Advantage networks are providing patients with adequate and timely access to providers with appropriate training and specialty expertise by copsonsoring HR.4998/S.2552
Urge Congress to support efforts that increase access to care for individuals living with psoriasis and psoriatic arthritis by supporting the Patients' Access to Treatments Act. This bill limits copayments, coinsurance and other cost-sharing and out of pocket expenses for so-called speciality tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. Urge Congress to support efforts that increase access to care for individuals living with psoriasis and psoriatic arthritis by supporting the Restoring the Patient's Voice Act (HR 2077). The bill reforms step therapy insurance protocols to ensure patients and providers have access to a clear exemption process. It establishes a patient and provider friendly step therapy guidelines in ERISA regulated health insurance plans.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, SENATE
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2017 · first_quarter · Q1
Urge Congress to support efforts that increase access to care for individuals living with psoriasis and psoriatic arthritis by supporting the Patients' Access to Treatments Act (which was awaiting reintroduction). This bill limits copayments, coinsurance and other cost-sharing and out of pocket expenses for so-called speciality tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them.
FY18 Appropriations for Psoriatic Disease Allocate $1.5 million in the Fiscal Year 2018 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). Within this funding, the CDC would: - Support the development of public health self-management interventions that would help persons with psoriasis and psoriatic arthritis better manage their health, including their mental health. This project would include collecting and analyzing data to determine what patients must do to achieve optimal health outcomes and would develop new or update existing self-management tools to support these persons. - Better understand linkages between psoriasis and psoriatic arthritis and other multiple chronic conditions, to develop a focused public health applied research agenda for psoriatic disease.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, SENATE
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2016 · second_quarter · Q2
FY16 Appropriations for Psoriatic Disease Allocate $1.2 million in the Fiscal Year (FY) 2015 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and nongenetic factors, such as environmental exposure and lifestyle,contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the long term impact of psoriasis and psoriatic arthritis.
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure 5.21st Century Cures Act - biomedical research bill 6. Crowdsourcing and Citizen Science Act of 2015 American Innovation Act
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2016 · fourth_quarter · Q4
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses. 6. 21st Century Cures Act, set appropriated funds for biomedical research at NIH and reforms to the FDA to develop and implement a strategic plan for biomedical research
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, SENATE
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2016 · third_quarter · 3A
1. Fiscal Year 2017 Labor, Health and Human Services, Education and Related Agencies Appropriations Act to help patients by urging Congress to implement a public health agenda through the Centers for Disease Control and Prevention by requesting $1.5 million to support a psoriatic disease initiative to better understand linkages between psoriatic disease and other life-threatening health conditions and to develop effective public health strategies to better equip patients to manage their health. 2. S. 1014, the Personal Care Products Safety Act, the bill strengthens FDA authority to regulate personal care products, addresses questions about the safety of certain ingredients (use by many psoriatic disease patients), creates guidance for manufacturers, and would set a national standard for cosmetics oversight. 3. S. 2113 Crowdsourcing and Citizen Science Act of 2015, the bill would encourage and increase the use of crowdsourcing and citizen science within the federal government. 4. Patients Access to Treatments Act (H.R. 1600), the bill limits cost sharing and out-of-pocket expenses for specialty tier drugs. 5. S.1488/ H.R. 2624 The Part D Beneficiary Appeals Fairness Act, the bill would allow Medicare Part D beneficiaries to request lower co-pays for high-cost specialty drugs used to treat chronic illnesses.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, SENATE
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2016 · first_quarter · Q1
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other cost sharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Worked with CDC's Chronic Disease Prevention and Health Promotion on initiative that will develop public health self-management interventions for persons with psoriatic disease and advance knowledge of the links between psoriatic disease and other chronic conditions 4. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2015 · fourth_quarter · Q4
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2015 · third_quarter · Q3
FY16 Appropriations for Psoriatic Disease Allocate $1.2 million in the Fiscal Year (FY) 2014 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and nongenetic factors, such as environmental exposure and lifestyle,contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the long term impact of psoriasis and psoriatic arthritis.
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2015 · second_quarter · Q2
FY16 Appropriations for Psoriatic Disease Allocate $1.2 million in the Fiscal Year (FY) 2014 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and nongenetic factors, such as environmental exposure and lifestyle,contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the longtermimpact of psoriasis and psoriatic arthritis.
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2015 · first_quarter · Q1
FY16 Appropriations for Psoriatic Disease Allocate $1.2 million in the Fiscal Year (FY) 2014 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and nongenetic factors, such as environmental exposure and lifestyle, contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the longtermimpact of psoriasis and psoriatic arthritis.
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2014 · fourth_quarter · Q4
-Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following bill: efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R.460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -Engagement with the Food and Drug Administration (FDA) on the patient focused drug development initiative in the form of submitted comments. Additional engagement with FDA dermatology staff on the latest in psoriasis research, the NPFs current focus and drug therapy development views from the patient community.
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2014 · third_quarter · Q3
Allocate $1.2 million in the Fiscal Year (FY) 2014 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control andPrevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and non-genetic factors, such as environmental exposure and life-style, contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the long-term impact of psoriasis and psoriatic arthritis.
NATIONAL PSORIASIS FOUNDATION via NATIONAL PSORIASIS FOUNDATION
2014 · second_quarter · Q2
Allocate $1.2 million in the Fiscal Year (FY) 2014 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and non-genetic factors, such as environmental exposure and life-style, contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the long-term impact of psoriasis and psoriatic arthritis.
FY16 Appropriations for Psoriatic Disease Allocate $1.2 million in the Fiscal Year (FY) 2015 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and nongenetic factors, such as environmental exposure and lifestyle,contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the long term impact of psoriasis and psoriatic arthritis.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE
FY16 Appropriations for Psoriatic Disease Allocate $1.2 million in the Fiscal Year (FY) 2015 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course and burden of psoriasis; Study how differences in genetic and nongenetic factors, such as environmental exposure and lifestyle,contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the long term impact of psoriasis and psoriatic arthritis.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda. 5. Urge Congress to support HR 2624/S.1488 Medicare Part D Beneficiary Appeals Fairness Act. Allows a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE
1. Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. 2. Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH. 3. Urge Congress to support HR 6, the 21st Century Cures Act. 4. Working with the CDC's National Center for Health Statistics, a division of the CDC, to better understand the current and looming data on psoriasis and psoriatic arthritis held by the NCHS to inform our research agenda.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE
-Urge Congress to support efforts that increase access to care for people with psoriasis and psoriasis arthritis by supporting H.R.1600: Patients' Access to Treatments Act of 2015. This bill limits copayments, coinsurance, and other costsharing and out-of-pocket expenses for so called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -Support efforts to facilitate research efforts on psoriasis and psoriatic arthritis within institutes at the NIH.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE
FY15 Appropriations for Psoriatic Disease Allocate $1.2 million in the Fiscal Year (FY) 2014 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill to implement a public health agenda for psoriasis and psoriatic arthritis at the Centers for Disease Control and Prevention (CDC). With this funding, the CDCs National Center for Health Statistics (NCHS) could begin implementation of the first ever psoriasis and psoriatic arthritis public health agenda by developing survey instruments, which will: Increase the understanding of psoriasis, including the prevalence of the diseases and how age, sex, race, and ethnicity affect the course andburden of psoriasis; Study how differences in genetic and non-genetic factors, such as environmental exposure and life-style, contribute to the occurrence and severity of psoriasis and psoriatic arthritis; Examine the relationship of psoriasis to other serious diseases and develop public health strategies to reduce the burden of diseases and prevent the onset of comorbid conditions; and Gain insight into the long-term impact of psoriasis and psoriatic arthritis.
Filing targets: Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, SENATE
Urge Congress to support efforts that increase access to care for people with psoriasis and psoriatic arthritis by supporting the following efforts: -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-calledspecialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foundation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure. -Ensure that Medicare Advantage networks are providing patients with adequate and timely access to providers with appropriate training and specialty expertise by copsonsoring HR.4998/S.2552
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE
Access to care for people with psoriasis and psoriatic arthritis. -H.R.460: Patients' Access to Treatments Act of 2013: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Patients' Access to Treatments Act of 2013 (introduced in the House as H.R. 460), which limits copayments, coinsurance, and other cost-sharing and out-of-pocket expenses for so-called specialty tier drugs. This bill will help ensure that people with psoriasis and other chronic conditions have access to the therapy that their health care provider determines is most appropriate for them. -S.1365/H.R. 2827: The Part D Beneficiary Appeals Fairness Act: Support efforts to reduce impediments to treatment for individuals with moderate to severe psoriasis. The National Psoriasis Foudation supports the Part D Beneficiary Appeals Fairness Act. The Act amends part D (Voluntary Prescription Drug Benefit Program) of title XVIII (Medicare) of the Social Security Act, with respect to a prescription drug plan (PDP) that provides for any tiered cost-sharing within a formulary (including a structure that provides for different co-payment or coinsurance amounts for drugs in different tiers included within the formulary), to authorize a Medicare part D eligible individual enrolled in the plan to request an exception to the tiered cost-sharing structure.
Filing targets: Centers For Disease Control & Prevention (CDC), HOUSE OF REPRESENTATIVES, Natl Institutes of Health (NIH), SENATE