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Health Data Use and Privacy Commission Act
Legislative Progress
Momentum (last 30 days)
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0 actions · 0 new cosponsors · 0 votes
Speed vs cohort
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vs 5,357 other S bills in the 117th — cohort avg 38d
Health Data Use and Privacy Commission Act This bill temporarily establishes a commission with members appointed through the Government Accountability Office to study and report on issues related to protecting individual privacy while advancing the use of personal health information. The study must address, for example, the use of personal health information by federal, state, and local governments for public health activities and the various statutory and regulatory requirements that apply to such information. In addition, the bill restricts the commission's use and disclosure of any personal health information or proprietary business and financial information obtained in conducting the study. The commission must report its findings, conclusions, and recommendations (as well as those of any dissenting members of the commission) for balancing privacy protections and the appropriate use of personal health information. The commission terminates 30 days after submitting its final report.
These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.
Filing registrants (7)
2023 · first_quarter · Health Issues
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced in Senate
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Sources: Congress.gov
S. 3620, (117th Cong.) Health Data Use and Privacy Commission Act Issues related to healthcare and telemedicine.
Client expense: $500,000 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
Monitor the following: S.3904/H.R.8806, Healthcare Cybersecurity Act of 2022, Product related issues S.3620, Health Data Use and Privacy Commission Act, HIPAA Modernization related issues H.R.8403, Proactive Cyber Initiatives Act of 2022, Product related issues
Client expense: $10,000 · Firm income: Not reported
2022 · fourth_quarter · Health Issues
S. 3620, Health Data Use and Privacy Commission Act Issues related to healthcare and telemedicine
Client expense: $410,000 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · third_quarter · Health Issues
S. 3620, Health Data Use and Privacy Commission Act Issues related to healthcare and telemedicine
Client expense: $300,000 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
Monitor the following: S.3904/H.R.8806, Healthcare Cybersecurity Act of 2022, Product related issues S.3620, Health Data Use and Privacy Commission Act, HIPAA Modernization related issues H.R.8403, Proactive Cyber Initiatives Act of 2022, Product related issues
Client expense: Not reported · Firm income: Not reported
Monitor the following: S.3904, Healthcare Cybersecurity Act of 2022, Product related issues S.3620, Health Data Use and Privacy Commission Act, HIPPA Modernization related issues
Client expense: Not reported · Firm income: Not reported
2022 · second_quarter · Health Issues
S. 3620, Health Data Use and Privacy Commission Act Issues related to healthcare and telemedicine
Client expense: $490,000 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, SENATE
2022 · first_quarter · Health Issues
United Spinal Association supports HR 2168 / S 3193 Expanded Telehealth Access Act. United Spinal Association supports HR 3932 / S 2076 The Pioneering Antimicrobial Subscriptions to End Up surging Resistance (PASTEUR) Act. United Spinal Association/VetsFirst supports The Advanced Safe Testing at Residence Telehealth (A-START) Act of 2021. Increase Funding for Spinal Cord Injury Model Systems - House/Senate. Discussed the need for SCIMS increased funding and next steps with Director Anjali Forber-Pratt, Dir., NIDILRR. United Spinal Association raised concerns: regarding accessibility of COVID-19 tests; MA and Part D programs, notice of benefit and payment parameters; support CMS access to dental surgical services, support the DMEPOS Relief Act (H.R. 6641); share concerns re the CMS ACA Exchange Rule; support the Health Data Use and Privacy Commission Act (S. 3620); shared concerns with CMS regarding access to DME in times of public health emergency. United Spinal advocacy and policy staff participated in a meeting with representatives from the CDC, CMS, and ACL urging the CDC to issue guidance on census reduction of nursing homes and other institutional settings as an infection control measure. United Spinal supported comments as part of the Disability and Rehabilitation Research Coalition on the draft Strategic Plan for the NIH Chief Officer for Scientific Workforce Diversity (COSWD). Support significant investment into home and community-based services and supports. Met with House and Senate in support of improvements in health equity (Ways and Means Committee Subcommittee on Health United States House of Representatives; testimony); SUPPORT EQUITABLE REFORMS TO THE MEDICARE PHYSICIAN FEE SCHEDULE; SUPPORT H.R. 944 TO ADDRESS SPECIALTY MEDICINE PHYSICIAN SHORTAGES IN RURAL AREAS; SUPPORT H.R. 2256/S. 834 TO INCREASE THE NUMBER OF GME RESIDENCY SLOTS; SUPPORT H.R. 2903/S. 1512; SUPPORT H.R. 5030/S.2706 TO IMPROVE DIVERSITY IN CLINICAL TRIALS TO PERMANENTLY EXPAND TELEHEALTH SERVICES
2022 · first_quarter · Health Issues
General issues related to consumer health data privacy; general issues related to Medicare reimbursement for telehealth services; general issues related to digital health equity; issues related to funding for Telehealth Resource Centers; issues related to funding for the National Quality Forum; Telehealth Modernization Act of 2021 (HR 1332/S 368); CONNECT for Health Act (HR 2903/S 1512); Protecting Rural Telehealth Access Act (HR 5425/S 1988); Expanded Telehealth Access Act (HR 2168); PREVENT DIABETES Act (S 2173); Social Determinants Accelerator Act (HR 2503); Telemental Health Care Access Act (HR 4058/S 2061); Telehealth Extension Act (HR 6202);The Telehealth Extension and Evaluation Act (S. 3953), The Health Data Use & Privacy Commission Act (S.3620), and The Healthcare Cybersecurity Act (S.3904); general issues related to health data interoperability and implementation of the HHS Cures Act final rule; issues related to the extension of HDHP-HSA telehealth provisions.
Client expense: Not reported · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
2022 · first_quarter · Computer Industry
Legislative & Regulatory Issues Related to Technology Policy, including R&D, Cybersecurity, Privacy, Health IT & Technology Procurement: Emerging technologies: Blockchain, cloud computing, 5G, Artificial Intelligence (AI) and AI regulatory governance, AI impact assessments, AI bias, facial recognition policy, quantum computing, privacy legislation, and weather modeling; implementation of H.R. 6227, S. 3143, the National Quantum Initiative Act (P.L. 115-368); H.R. 1837, the Quantum User Expansion for Science and Technology Program (QUEST) Act; H.R. 1866, Quantum Network Infrastructure Act; Reform of Section 230 of the Communications Decency Act of 1996; S. 797, the Platform Accountability and Consumer Transparency (PACT) Act; S. 1260, the U.S. Innovation and Competition Act (USICA), provisions relating to manufacturing and research and development in the U.S. semiconductor industry; H.R. 4521, America COMPETES Act of 2022; H.R. 2225, the National Science Foundation for the Future Act; H.R. 3593, Department of Energy Science for the Future Act; H.R. 21, The FedRAMP Authorization Act; S. 2499, SAFE DATA Act; S. 3195, Consumer Online Privacy Rights Act; S. 1494, Consumer Data Privacy and Security Act of 2021; S. 3620, Health Data Use and Privacy Commission Act. Supply chain security / DHS ICT Supply Chain Task Force; Encryption policy; provisions related to state and local funding for cybersecurity planning, defense and response activities; Executive Order 14028, Improving the Nation's Cybersecurity provisions on software bill of materials, zero trust and cloud security architecture and standards to improve software supply chain security; Executive Order 14071, Securing America's Critical Supply Chain scope of year long review of ICT; incident response policy; H.R. 6497, Federal Information Security Modernization Act of 2022; S. 3600, Strengthening American Cybersecurity Act; cyber incident reporting provision within Consolidated Appropriations Act of 2022; Cybersecurity Framework 2.0.
2022 · first_quarter · Health Issues
H.R. 1384, Mainstreaming Addiction Treatment (MAT) Act of 2021, all provisions S. 445, Mainstreaming Addiction Treatment (MAT) Act of 2021, all provisions H.R. 1218, Data Mapping to Save Moms Lives Act, all provisions S. 198, Data Mapping to Save Moms' Lives Act, all provisions H.R. 4387, Maternal Health Quality Improvement Act of 2021, all provisions S. 1675, Maternal Health Quality Improvement Act, all provisions H.R. 1446, Enhanced Background Checks Act of 2021, all provisions H.R. 8, Bipartisan Background Checks Act of 2021, all provisions H.R. 1667, Dr. Lorna Breen Health Care Provider Protection Act, all provisions S. 610, Dr. Lorna Breen Health Care Provider Protection Act, all provisions H.R. 379, Improving Social Determinants of Health Act of 2021, all provisions S. 104, Improving Social Determinants of Health Act of 2021, all provisions S. 54, Strengthening Americas Health Care Readiness Act, all provisions H.R. 5248, Temporary Responders for Immediate Aid in Grave Emergencies (TRIAGE) Act of 2021, all provisions H.R. 3753, Parity Implementation Assistance Act, all provisions S. 1962, Parity Implementation Assistance Act, all provisions S. 3904, Healthcare Cybersecurity Act of 2022, all provisions H.R. 4128, Verifying Accurate Leading-edge IVCT Development (VALID) Act of 2021, all provisions S. 2209, Verifying Accurate Leading-edge IVCT Development (VALID) Act of 2021, all provisions H.R. 6000, Cures 2.0 Act, all provisions S. 3799, Prepare for and Respond to Existing Viruses, Emerging New Threats, and (PREVENT) Pandemics Act, all provisions S. 253, Cannabidiol and Marihuana Research Expansion Act, all provisions S. 2866, Treatment Restoration for Emergency Antibody Therapeutics (TREAT) Act, all provisions H.R. 708, Temporary Reciprocity to Ensure Access to Treatment (TREAT) Act, provisions relating to waste, fraud, and abuse in telehealth S. 168, Temporary Reciprocity to Ensure Access to Treatment (TREAT) Act, provisions relating to waste, fraud, and abuse and telehealth H.R. 4480, Telehealth Coverage and Payment Parity Act, all provisions H.R. 1306, National Coronavirus Commission Act of 2021, all provisions S. 412, National Coronavirus Commission Act of 2021, all provisions H.R. 1843, COVID-19 Hate Crimes Act, all provisions S.937, COVID-19 Hate Crimes Act, all provisions H.R. 6279, Opioid Treatment Access Act of 2022, all provisions H.R. 3778, Nullifying Opportunities for Variants to Infect and Decimate (NOVID) Act, all provisions S. 1976, Nullifying Opportunities for Variants to Infect and Decimate (NOVID) Act, all provisions H.R. 6904, Patients Before Profits Act of 2022, all provisions H.R. 2503, Social Determinants Accelerator Act of 2021, all provisions S. 3039, Social Determinants Accelerator Act of 2021, all provisions H.R. 6072, Leveraging Integrated Networks in Communities (LINC) to Address Social Needs Act of 2021, all provisions S. 509, Leveraging Integrated Networks in Communities (LINC) to Address Social Needs Act of 2021, all provisions H.R. 5224, Preventing Overdoses and Saving Lives Act of 2021, all provisions H.R. 925, Data to Save Moms Act, all provisions H.R. 3352, Midwives for MOMS Act of 2021, all provisions H.R. 847, Promoting Digital Privacy Technologies Act, all provisions S. 224, Promoting Digital Privacy Technologies Act, all provisions H.R. 4098, Non-Opioid Directive Act, all provisions S. 3620, Health Data Use and Privacy Commission Act, all provisions Emergency Room Hero and Patient Safety Act Primary Care Physician Reentry Act 21st Century Cures Act/implementation Affordable Care Act (ACA)/Stabilization Ryan Haight Act/telemedicine/controlled substances No Surprises Act/implementation Physician workforce issues Opioid overdose epidemic Medical device user fee reauthorization Telehealth study COVID-19/vaccine distribution/vaccine in physician offices COVID-19/health equity/vaccine COVID-19/testing/personal protective equipment(PPE)/misinformation Pandemic preparedness and public health Health insurance affordability Mental health parity Prior authorization Health equity and technology/biometric technologies Health Equity COVID-19/Provider Relief Fund Modifier 25/OIG Information blocking/Patient privacy Naloxone/over the counter (OTC) EHR Certification Precision medicine/diagnostics/coverage/payment/coding Digital health/AI/Digital therapeutics/transparency/equity
S.3904, Healthcare Cybersecurity Act of 2022, Product related issues S.3620, Health Data Use and Privacy Commission Act, HIPPA Modernization related issues
Client expense: Not reported · Firm income: Not reported
Government targets: SENATE
2022 · first_quarter · Medicare/Medicaid
H.R. 708 Temporary Reciprocity to Ensure Access to Treatment Act S. 168, Temporary Reciprocity to Ensure Access to Treatment Act H.R. 2148 Prescription Drug Price Relief Act S. 909, the Prescription Drug Price Relief Act H.R. 2255, the Healthcare Workforce Resilience Act S. 1024, the Healthcare Workforce Resilience Act H.R. 2471, the "Consolidated Appropriations Act" H.R. 2503, the Social Determinants Accelerator Act S. 3039, the Social Determinants Accelerator Act H.R. 3320, the Allied Health Workforce Diversity Act S. 1679, the Allied Health Workforce Diversity Act H.R. 3321, the Credit for Caring Act S. 1670, the Credit for Caring Act H.R. 3932, the "PASTEUR Act" S. 2076, the "PASTEUR Act" H.R 4131, the Better Care Better Jobs Act S. 2210, the Better Care Better Jobs Act H.R. 5030, the DIVERSE Trials Act S.2706, the DIVERSE Trials Act H.R. 5620, the "Medical and Health Stockpile Accountability Act" H.R. 6000, Cures 2.0 Act H.R. 6072, the LINC to Address Social Needs Act H.R. 7053 the Hospital Inpatient Services Modernization Act S.3792, the Hospital Inpatient Services Modernization Act S. 176, the "Ensuring Understanding of COVID-19 to Protect Public Health Act" S. 920, the Affordable and Safe Prescription Drug Reimportation Act S. 3620, the Health Data Use and Privacy Commission Act S. 3799, the Prepare for and Respond to Existing Viruses, Emerging New Threats, and Pandemics Act
Client expense: $140,000 · Firm income: Not reported
2022 · first_quarter · Health Issues
H.R. 708 Temporary Reciprocity to Ensure Access to Treatment Act S. 168, Temporary Reciprocity to Ensure Access to Treatment Act H.R. 2148 Prescription Drug Price Relief Act S. 909, the Prescription Drug Price Relief Act H.R. 2255, the Healthcare Workforce Resilience Act S. 1024, the Healthcare Workforce Resilience Act H.R. 2471, the "Consolidated Appropriations Act" H.R. 2503, the Social Determinants Accelerator Act S. 3039, the Social Determinants Accelerator Act H.R. 3320, the Allied Health Workforce Diversity Act S. 1679, the Allied Health Workforce Diversity Act H.R. 3321, the Credit for Caring Act S. 1670, the Credit for Caring Act H.R. 3932, the "PASTEUR Act" S. 2076, the "PASTEUR Act" H.R 4131, the Better Care Better Jobs Act S. 2210, the Better Care Better Jobs Act H.R. 5030, the DIVERSE Trials Act S.2706, the DIVERSE Trials Act H.R. 5620, the "Medical and Health Stockpile Accountability Act" H.R. 6000, Cures 2.0 Act H.R. 6072, the LINC to Address Social Needs Act H.R. 7053 the Hospital Inpatient Services Modernization Act S.3792, the Hospital Inpatient Services Modernization Act S. 176, the "Ensuring Understanding of COVID-19 to Protect Public Health Act" S. 920, the Affordable and Safe Prescription Drug Reimportation Act S. 3620, the Health Data Use and Privacy Commission Act S. 3799, the Prepare for and Respond to Existing Viruses, Emerging New Threats, and Pandemics Act
Client expense: $140,000 · Firm income: Not reported
Client expense: Not reported · Firm income: $75,000
Government targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, White House Office
Client expense: $1,040,000 · Firm income: Not reported
Government targets: Commerce, Dept of (DOC), Equal Employment Opportunity Commission (EEOC), HOUSE OF REPRESENTATIVES, Homeland Security, Dept of (DHS), Natl Institute of Standards & Technology (NIST), Natl Security Council (NSC), Office of Science & Technology Policy (OSTP), SENATE, White House Office
Client expense: $6,520,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Office of Natl Drug Control Policy (NDCP), Office of Science & Technology Policy (OSTP), SENATE, White House Office
Government targets: Centers For Medicare and Medicaid Services (CMS), Congressional Budget Office (CBO), Executive Office of the President (EOP), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Government targets: Centers For Medicare and Medicaid Services (CMS), Congressional Budget Office (CBO), Executive Office of the President (EOP), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE