Reported covered position: Senior Director of Advocacy & Policy
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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
To amend title XVIII of the Social Security Act to expand practitioners eligible to furnish telehealth services under the Medicare program.
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
UNITED SPINAL ASSOCIATION via UNITED SPINAL ASSOCIATION
2026 · second_quarter · Q2
United Spinal, along with many other members and allies of the Consortium for Constituents with Disabilities (CCD) Rights and Technology Task Forces submitted comments express our strong opposition to the Interim Final Rule (IFR) published by the Department of Justice (Department) extending the compliance dates for the 2024 Nondiscrimination on the Basis of Disability; Accessibility of Web Content and Mobile Applications of Recipients of Departmental Financial Assistance Final Rule (2024 Final Rule) (RIN 1190-AA82). The comments read in part, Delaying the compliance dates by a full year on the eve of the compliance date for large public entities without first seeking public comment is arbitrary and capricious because: (1) the delay is based on information that was already fully considered in the Departments 2024 Final Rule, (2) the delay is based on factual errors and unfounded assumptions, (3) the Interim Final Rule fails to consider the significant harms to people with disabilities, and (4) the Interim Final Rules economic analysis contains significant omissions. United Spinal wrote to the Commissioners of the Federal Communications Commission to request that the Commission not only maintain Lifeline support for households which currently have voice only service, in addition, we also requested that the FCC market the availability of this support opportunity to other households that could benefit from it. This includes those who have voice only service. These comments were in response to the following dockets, Lifeline and Link Up Reform and Modernization; Bridging the Digital Divide for Low Income Consumers; Telecommunications Carriers Eligible for Universal Service Support; Affordable Connectivity Program; Emergency Broadband Benefit Program, WC Docket Nos. 11-42, 17-287, 09-197, 21-450, 20-445, Notice of Proposed Rulemaking (February 18, 2026). United Spinal, along with a broad coalition of disability rights organizations, expressed unequivocal opposition to the Department of Justices Interim Final Rule extending the compliance deadline for the Title II digital accessibility rule as unacceptable and undermining timely access to digital services for people with disabilities in a public statement that may be reviewed at: https://www.aapd.com/leading-disability-organizations-oppose-extending-title-ii-deadline/
Source: Senate LDA
Choices for Increased Mobility Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. United Spinal participated in and invited members of Congress and their staffs to participate in the National Coalition for Assistive and Rehab Technology (NCART), the International Registry of Rehabilitation Technology Suppliers (iNRRTS), and U.S. Rehab sponsored Complex Rehab Technology (CRT) Product Expo in Washington, D.C. on May 13, 2026. This event was designed to educate Members of Congress about CRT equipment and the individuals who rely on it every day to live safely and independently. We advocated on three issues with members of Congress and their staff about Complex Rehab Technology equipment and services, specifically: 1.Opening the Power Standing Coverage Determination process with the Centers for Medicare and Medicaid Services. 2.Passage of H.R. 1703 / S. 247 - the Choices for Increased Mobility Act of 2005, 3.Passage H. R. 9364, eliminate Prior Authorization for Wheelchair Repairs for Medicare Advantage United Spinal, along with other members of the. Disability and Rehabilitation Research Coalition (DRRC) wrote to Health and Human Services Secretary Kennedy to express our serious concern regarding the significant delay in the release of the Notice of Funding Opportunity (NOFO) for the National Paralysis Resource Center, which is currently operated by the Christopher & Dana Reeve Foundation under a cooperative agreement with the Administration for Community Living (ACL). United Spinal submitted comments to the Access Boards development of standards for Universal Changing Stations, Docket Number: ATBCB-2026-0001, RIN Number: 3014-AA50. In our comments, we thanked Senator Maggie Hassan for her leadership in establishing the requirement for Universal Changing Stations in the bipartisan Federal Aviation Administration (FAA) Reauthorization Act of 2024. The comments included the following summary: The United Spinal Associations recommendation to use existing industry standards is consistent with the National Technology Transfer and Advancement Act of 1995 (NTTAA) which encourages Agencies to use and participate in the development voluntary consensus standards. The Board is a valued member of the ICC A117.1 Standards development team and has considerable influence over the process and the ultimate requirements. It would be unfortunate if the Board were not to exploit this work by using it to advance its own mission. Collaboration of this type maximizes the Boards resources and encourages better understanding of the needs of all parties. As follow-up to our Virtual Advocacy Day held in March, United Spinal continued to advocate with members of Congress and or their staff on the following issues: Insert language into the FY27 Labor-HHS-Education appropriations bills committee report providing $2.5 million to fund four additional SCI Model System Suggested programmatic language: The inclusion of ostomy, urological and tracheostomy supplies in the Medicare competitive bidding program may conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. Competitive bidding threatens to transfer this market to foreign competitors who have no commitment to American workers, American communities or American patients. And or: Suggested appropriations report language: Competitive Bidding for Ostomy, Tracheostomy, and Urological Supplies - The Committee is concerned about the Centers for Medicare & Medicaid Services decision to include ostomy, tracheostomy, and urological prosthetic supplies in the Medicare Competitive Bidding Program (CBP). These prosthetic devices have never been included in the program. The Committee is concerned that subjecting these prosthetic devices to competitive bidding without sufficient analysis could disrupt patient access, compromise clinician decision-making, harm domestic manufacturing, and increase Medicare costs. Accordingly, the Committee directs CMS to delay the implementation of competitive bidding for ostomy, tracheostomy, and urological supplies until the Administrator submits a report to the Committees on Appropriations, providing: (1) an assessment of the prospective downstream costs to the Medicare Part A program for adverse health events due to patients seeing limited or no access to the supplies of their choice; and (2) an evaluation of the potential impact on the US domestic supply chain, including manufacturing and distribution capacity and service industries associated with patient management if no or a limited number of US businesses are selected for the CBP. The Committee directs CMS to collect citable data from patient, clinician and manufacturer stakeholders. The Committee directs CMS to maintain current payment methodologies for these prosthetic devices until the Committee is briefed by CMS on all findings. United Spinals annual advocacy event, Roll on Capitol Hill, was held on June 24th. Advocates met with members of Congress and of their staff seeking action on four issues: Support Rep. Ayanna Pressleys (D-MA) bill, H. R. 9364, the FAST Repairs for Wheelchairs Act, which would prohibit Medicare Advantage plans from requiring prior authorization for wheelchair repairs. Carbon fiber and titanium wheelchairs are lighter, stronger and more responsive than standard wheelchairs chairs. But because of a policy change, Medicare beneficiaries have to pay the full cost out of pocket. The Choices for Increased Mobility Act (H.R. 1703/S. 247) would explicitly require Medicare to create new codes to allow suppliers to bill consumers for just the cost of the upgrade to an ultralight manual wheelchair. This bill is sponsored in the House by Reps. John Joyce (R-PA), Vern Buchanan (R-FL), and Kim Schrier (D-WA), and in the Senate by Senators Marsha Blackburn (R-TN) and Tammy Duckworth (D-IL). Support forthcoming legislation that will exclude ostomy and urological supplies from Medicares durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) competitive bidding program for a period of five years while requiring the Centers for Medicare and Medicaid Services (CMS) to undertake a more comprehensive and clinically informed review of the impact that competitive bidding policies could have on beneficiary access, product choice, and patient outcomes. And other related provisions. urging Members of Congress to protect and strengthen home and community based services (HCBS), which already operates within a fragile system challenged by workforce shortages, long waiting lists, and inadequate funding. Millions of older adults and people with disabilities rely on HCBS to live independently in their homes and communities, and demand for these services will continue to grow as the population ages. Further cuts or restrictions would worsen existing barriers, increase the risk of institutionalization, and leave many without the support they need. Investing in and preserving HCBS is essential to ensure current and future generations can access quality care at home. United Spinal supported, S. Res. 685, sponsored by Senator Edward J. Markey (D-Mass.), member of the Commerce, Science, and Transportation Committee, and Senator Kevin Cramer (R-N.D.) designating April 22, 2026, as National Assistive Technology Awareness Day.
Choices for Increased Mobility Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
Disability Access to Transportation Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinals SecureRide Coalition advocated for the wheelchair securement research study provision in H. R. 7389, the Motor Vehicle Safety Modernization Act. United Spinals SecureRide Coalition met with Department of Transportation officials to advocate for safe and independent wheelchair securement across all modes of transportation. United Spinal, along with other disability advocates from organizations and communities across the United States who are committed to advancing mobility, independence, and full community participation for people with disabilities, wrote to the leadership of the Federal Transit Administration to support the continued modernization of accessible transportation and ADA paratransit services. The letter read in part, Accessible transportation remains one of the most important gateways to opportunity-enabling individuals to travel to employment, education, healthcare, and civic life. United Spinal discussed provisions of H.R.8128, the Same-Day Paratransit Innovation Act, with congressional staff. United Spinal, through our SecureRide Coalition discussed disability accessibility issues with the Autonomous Vehicle Industry Association ("AVIA") in reference to its statement for the record regarding the Subcommittee on Surface Transportation, Freight, Pipelines, and Safety hearing, "The Need for Speed: How Technological Advances are Driving Transportation Innovation. United Spinal advocated for accessibility provisions to be included in H. R. 8870, the BUILD America 250 Act. United Spinal advocated for the development of an autonomous wheelchair securement system as a co-lead in our SecureRide Coalition with the Department of Transportation. United Spinal, as a co-lead of our SecureRide Coalition submitted an application to participate in the Department of Transportations SecureRide Coalition's submission Roadway Safety Innovation Expo. United Spinal Associations SecureRide Coalition wrote to the bipartisan leadership of the House Energy and Commerce Committee and it Commerce, Manufacturing and Trade Subcommittee to support the automated wheelchair securement research provision included in the amendment in the nature of a substitute for H. R. 7389, the Motor Vehicle Modernization Act, filed in advance of the full committee markup on Thursday, May 21, 2026, at 10:00 a.m. (ET) as the motor vehicle safety title of the upcoming surface transportation reauthorization measure. The measure addresses a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other stakeholders wrote to the bipartisan leadership and membership of the House Energy and Commerce Committee and the Subcommittee on Commerce, Manufacturing and Trade to voice our support for the progress made on the SELF DRIVE Act, which was introduced by Representative Bob Latta. The letter read in part, the SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal submitted comments to the Administrator of the National Highway Traffic Safety Administration supporting Zooxs petition for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, Docket No. NHTSA-2025-0523. The comments read in part, We recognize that achieving these benefits requires careful attention to accessibility standards, inclusive design, and equal access to purpose-built wheelchair accessible autonomous vehicle deployment. With proper planning and regulation, Zoox can expand opportunities for independence, employment, healthcare access, and civic and social engagement, thereby improving the quality of life for people with spinal cord injuries and other mobility challenges. We respectfully request that you support Zooxs petition, Docket No. NHTSA-2025-0523, to enable the safe, federally supervised commercial operation of its all-electric autonomous vehicles. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force signed onto a letter responding to the request for public comments on the Zoox application for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, NHTSA-2025-0523-0003. The Comments strongly urged, the National Highway Traffic Safety Administration (NHTSA) to compel Zoox to operate a vehicle that is fully accessible for people with disabilities, consistent with the public interest. Given NHTSAs safety mandate and mission, it is essential to integrate accessibility into exemption approvals because it is inextricably linked to the safety of people with disabilities. United Spinal, along with numerous other disability organizations, wrote to the leadership of the Federal Transit Administration leadership about the need for modernizing paratransit services. The letter read in part, In particular, we encourage the FTA to continue advancing regulatory guidance and policy interpretations that support modernization of paratransit services and allow transit agencies to incorporate new mobility solutions-including on-demand service models and partnerships with ride share and TNC providers-into the ADA paratransit ecosystem. Where existing regulatory flexibilities exist, additional clarity and encouragement from the FTA could help agencies confidently expand these models in ways that enhance service for rider. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Administration for Community Living officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Access Board officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with National Council on Disability officials. United Spinal continues to advocate for H.R. 4116, the Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities.
Disability Access to Transportation Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
Discussing a potential presentation to the Accessible Transportation Research Center on autonomous vehicles impact on the disability community and United Spinals SecureRide Coalitions wheelchair securement work. United Spinal, as a Co-Lead in the SecureRide Coalition, met with Department of Transportation representatives to discuss and advocate for issues related to wheelchair securement during transit. United Spinal is advocating for the research provision for wheelchair securement contained in H.R. 7389, the Motor Vehicle Modernization Act of 2026. United Spinal staff, and numerous other disability organizations, met with the Department of Transportations Office of Aviation Consumer Protection and other officials to discuss disability and accessibility related issues. United Spinal wrote to the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee respectfully requesting that the Senate include a National Autonomous Vehicle (AV) Framework in the upcoming surface transportation reauthorization bill. The letter read in part, The AV moment is upon us. The time to enact a life-saving, life-changing technology national safety baseline and regulatory certainty for new market expansion is now. An AV framework is a critical opportunity for the United States to lead the world in advancing safe mobility technology with the promise to expand freedom and independence for millions of Americans in both rural and urban sectors, especially for the nations 5.5 million wheelchair users. Additionally, stressed the need for research on the modified universal docking integrated geometry (UDIG) RESNA standard to secure users wheelchairs in vehicles, both AVS and vehicles across various modes of transportation, including land, rail and air. United Spinal sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee, advocating for the automated wheelchair securement research provision in the discussion draft of the Motor Vehicle Modernization Act as the Commerce, Manufacturing and Trades Subcommittee developed the safety title of the upcoming surface transportation reauthorization measure. The letter read in part, As you know, safe automated wheelchair securement has been a significant challenge to the autonomous vehicle industry in developing a purpose-built fully accessible autonomous vehicle (AV). The United Spinal Associations SecureRide Coalition, in a letter to the bipartisan leadership of the Energy and Commerce Committee, supported the automated wheelchair securement research provision included in the discussion draft of the Motor Vehicle Modernization Act as the Commerce, Manufacturing and Trades Subcommittee developed the safety title of the upcoming surface transportation reauthorization measure. The letter read in part, Thank you for addressing a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other organizations, sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee for the progress made on the bipartisan SELF DRIVE Act discussion draft. The letter read in part, The SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 10, 2026, markup of legislation to strengthen motor vehicle safety and advance U.S. automative leadership. To allow people with disabilities to benefit from autonomous vehicles (AVs), the, vehicles must accommodate passengers to remain in their personal wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities, vehicles must be able to detect all types of disabled pedestrians, and disabled passengers and pedestrians rights and access to courts must be protected. We acknowledge additional research into automated securement is proposed in the Motor Vehicle Modernization Act and that vulnerable road user detection, including pedestrians and wheelchair users, is proposed in the Magnus White Safe Streets for Everyone Act. We support the automated securement provision and the Magnus White bill. https://c-c-d.org/fichiers/EC-AV-Markup-Disability-Letter-for-the-Record-020926-Final.pdf United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted comments for the record for the January 13, 2026 hearing on strengthening motor vehicle safety and cementing U.S. automative leadership. The comments read in part, While the question was asked of witnesses how the draft legislation would ensure access for people with disabilities, no concrete answers were given. To ensure people with disabilities benefit from autonomous vehicles (AVs) the vehicles must accommodate passengers who remain in their wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities and AVs must be able to detect all types of disabled pedestrians. We acknowledge additional research into automated securement is proposed in the Motor Vehicle Modernization Act and vulnerable road user detection is proposed in the Safe Streets for Everyone Act. Access and safety for disabled passengers is not addressed in the SELF DRIVE Act of 2026. To ensure American leadership in AVs and automated driving system (ADS)-equipped vehicles, we urge you to consider and prioritize the safety and access needs of disabled passengers and pedestrians. United Spinal and other organizations as members of the United for Autonomy coalition, which has come together in recognition of the significant benefits that autonomous vehicles (AVs) will bring the American public and to encourage policymakers to set in place a federal policy framework on Avs, wrote to the bipartisan leadership of the Senate Committee on Commerce, Science, and Transportation. The letter read in part, It is imperative that the United States create a federal policy framework on A Vs. In recent years, U.S. states have set the pace on AV policy, and it is long past time for the federal government to establish federal policy that supports safe autonomous deployment. We believe that such a framework will help ensure that millions of Americans are able to access the benefits of autonomous vehicles, which provide safer roads, greater supply chain resilience, and create new economic and enhanced accessibility opportunities for people with disabilities. https://www.acb.org/sites/default/files/United%20for%20Autonomy%20letter%20to%20Senate%20Commerce%20hearing%20(1).pdf United Spinal supported the testimony of Jeff Farrah, Chief Executive Officer, Autonomous Vehicle Association before the U. S. Senate Committee on Commerce, Science, and Transportation on February 4, 2026, entitled hit the road, Mac: The Future of Self Driving Cars that dealt with wheelchair securement in vehicles. https://cdn.prod.website-files.com/67ee365c25e6530594bd40c2/6983967231abcd56d42a55f4_Jeff%20Farrah%20-%20AVIA%20-%20Written%20Testimony%20-%20Hit%20the%20Road%20Mac.pdf United Spinal, along with numerous other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 4, 2026, hearing titled Hit the Road, Mac: The Future of Self-Driving Cars. The letter read in part, As noted in the hearing announcement, autonomous vehicles (AVs) have the potential to save lives and could also significantly expand mobility and independence for people with disabilities who are unable to drive, improving access to employment, healthcare, and the community. https://c-c-d.org/fichiers/Commerce-AV-Hearing-Disability-Letter-for-the-Record-Final020426.pdf United Spinal, along with numerous other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 10, 2026, markup of legislation before the Subcommittee on Commerce, Manufacturing and Trade to strengthen motor vehicle safety and advance U.S. automative leadership. The letter read in part, to allow people with disabilities to benefit from autonomous vehicles (AVs), the vehicles must accommodate passengers to remain in their personal wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities, vehicles must be able to detect all types of disabled pedestrians, and disabled passengers and pedestrians rights and access to courts must be protected. https://c-c-d.org/fichiers/EC-AV-Markup-Disability-Letter-for-the-Record-020926-Final.pdf United Spinal submitted comments in response to the Department of Transportations request for contributions to the Transportation Research and Development Strategic Plan, DOT-OST-2025-2085. The comments read in part, For the nations 5.5 million wheelchair users, strategic research and development planning can ultimately help in meeting daily transportation needs. That includes fulfilling employment or education needs, healthcare and fitness needs, but also civic and recreational opportunities. It will enrich families and social activities. All this stimulates economic benefits to the general economy. https://downloads.regulations.gov/DOT-OST-2025-2085-0075/attachment_1.pdf United Spinal continues to advocate for H.R. 4116 Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities. https://www.congress.gov/bill/119th-congress/house-bill/4116/
CONNECT for Health Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. United Spinal participated in and invited members of Congress and their staffs to participate in the National Coalition for Assistive and Rehab Technology (NCART), the International Registry of Rehabilitation Technology Suppliers (iNRRTS), and U.S. Rehab sponsored Complex Rehab Technology (CRT) Product Expo in Washington, D.C. on May 13, 2026. This event was designed to educate Members of Congress about CRT equipment and the individuals who rely on it every day to live safely and independently. We advocated on three issues with members of Congress and their staff about Complex Rehab Technology equipment and services, specifically: 1.Opening the Power Standing Coverage Determination process with the Centers for Medicare and Medicaid Services. 2.Passage of H.R. 1703 / S. 247 - the Choices for Increased Mobility Act of 2005, 3.Passage H. R. 9364, eliminate Prior Authorization for Wheelchair Repairs for Medicare Advantage United Spinal, along with other members of the. Disability and Rehabilitation Research Coalition (DRRC) wrote to Health and Human Services Secretary Kennedy to express our serious concern regarding the significant delay in the release of the Notice of Funding Opportunity (NOFO) for the National Paralysis Resource Center, which is currently operated by the Christopher & Dana Reeve Foundation under a cooperative agreement with the Administration for Community Living (ACL). United Spinal submitted comments to the Access Boards development of standards for Universal Changing Stations, Docket Number: ATBCB-2026-0001, RIN Number: 3014-AA50. In our comments, we thanked Senator Maggie Hassan for her leadership in establishing the requirement for Universal Changing Stations in the bipartisan Federal Aviation Administration (FAA) Reauthorization Act of 2024. The comments included the following summary: The United Spinal Associations recommendation to use existing industry standards is consistent with the National Technology Transfer and Advancement Act of 1995 (NTTAA) which encourages Agencies to use and participate in the development voluntary consensus standards. The Board is a valued member of the ICC A117.1 Standards development team and has considerable influence over the process and the ultimate requirements. It would be unfortunate if the Board were not to exploit this work by using it to advance its own mission. Collaboration of this type maximizes the Boards resources and encourages better understanding of the needs of all parties. As follow-up to our Virtual Advocacy Day held in March, United Spinal continued to advocate with members of Congress and or their staff on the following issues: Insert language into the FY27 Labor-HHS-Education appropriations bills committee report providing $2.5 million to fund four additional SCI Model System Suggested programmatic language: The inclusion of ostomy, urological and tracheostomy supplies in the Medicare competitive bidding program may conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. Competitive bidding threatens to transfer this market to foreign competitors who have no commitment to American workers, American communities or American patients. And or: Suggested appropriations report language: Competitive Bidding for Ostomy, Tracheostomy, and Urological Supplies - The Committee is concerned about the Centers for Medicare & Medicaid Services decision to include ostomy, tracheostomy, and urological prosthetic supplies in the Medicare Competitive Bidding Program (CBP). These prosthetic devices have never been included in the program. The Committee is concerned that subjecting these prosthetic devices to competitive bidding without sufficient analysis could disrupt patient access, compromise clinician decision-making, harm domestic manufacturing, and increase Medicare costs. Accordingly, the Committee directs CMS to delay the implementation of competitive bidding for ostomy, tracheostomy, and urological supplies until the Administrator submits a report to the Committees on Appropriations, providing: (1) an assessment of the prospective downstream costs to the Medicare Part A program for adverse health events due to patients seeing limited or no access to the supplies of their choice; and (2) an evaluation of the potential impact on the US domestic supply chain, including manufacturing and distribution capacity and service industries associated with patient management if no or a limited number of US businesses are selected for the CBP. The Committee directs CMS to collect citable data from patient, clinician and manufacturer stakeholders. The Committee directs CMS to maintain current payment methodologies for these prosthetic devices until the Committee is briefed by CMS on all findings. United Spinals annual advocacy event, Roll on Capitol Hill, was held on June 24th. Advocates met with members of Congress and of their staff seeking action on four issues: Support Rep. Ayanna Pressleys (D-MA) bill, H. R. 9364, the FAST Repairs for Wheelchairs Act, which would prohibit Medicare Advantage plans from requiring prior authorization for wheelchair repairs. Carbon fiber and titanium wheelchairs are lighter, stronger and more responsive than standard wheelchairs chairs. But because of a policy change, Medicare beneficiaries have to pay the full cost out of pocket. The Choices for Increased Mobility Act (H.R. 1703/S. 247) would explicitly require Medicare to create new codes to allow suppliers to bill consumers for just the cost of the upgrade to an ultralight manual wheelchair. This bill is sponsored in the House by Reps. John Joyce (R-PA), Vern Buchanan (R-FL), and Kim Schrier (D-WA), and in the Senate by Senators Marsha Blackburn (R-TN) and Tammy Duckworth (D-IL). Support forthcoming legislation that will exclude ostomy and urological supplies from Medicares durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) competitive bidding program for a period of five years while requiring the Centers for Medicare and Medicaid Services (CMS) to undertake a more comprehensive and clinically informed review of the impact that competitive bidding policies could have on beneficiary access, product choice, and patient outcomes. And other related provisions. urging Members of Congress to protect and strengthen home and community based services (HCBS), which already operates within a fragile system challenged by workforce shortages, long waiting lists, and inadequate funding. Millions of older adults and people with disabilities rely on HCBS to live independently in their homes and communities, and demand for these services will continue to grow as the population ages. Further cuts or restrictions would worsen existing barriers, increase the risk of institutionalization, and leave many without the support they need. Investing in and preserving HCBS is essential to ensure current and future generations can access quality care at home. United Spinal supported, S. Res. 685, sponsored by Senator Edward J. Markey (D-Mass.), member of the Commerce, Science, and Transportation Committee, and Senator Kevin Cramer (R-N.D.) designating April 22, 2026, as National Assistive Technology Awareness Day.
CONNECT for Health Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
Ensuring Patient Access to Critical Breakthrough Products Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose the Centers for Medicare and Medicaid Services rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program which will harm people who depend upon these supplies to live and will increase healthcare costs. It may conflict with the Presidents directives on deregulation, trade, and domestic industrial strength. United Spinal continues advocating for Medicare coverage of power wheelchairs standing systems. United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee. The letter read in part, we write to express our strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA)-designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. We respectfully urge the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR) and the Habilitation Benefits (HAB) Coalition submitted joint comments on the HHS Notice of Benefit Payment Parameters for the 2027 Plan Year proposed rule (proposed rule), which was published in the Federal Register on February 11, 2026, CMS-98883-P. The joint comments focused on key proposals related to enrollees in need of the essential health benefit (EHB) category of rehabilitation and habilitation services and devices. They addressed historical identification of these benefits as EHBs and discussed our recommendations to eliminate caps in therapy benefits. Also addressed our concerns with the proposed expansion of catastrophic plans that do not require EHB coverage, followed by the proposed rules reversal of policy involving state defrayal of EHB benefits. https://preserverehab.org/wp-content/uploads/2026/03/cpr-hab-coalition-comment-letter-in-response-to-hhs-nbpp-for-2027-proposed-rule-final-version.pdf United Spinal, along with 106 other members of CCDs Long-Term Services and Supports (LTSS), Rights, Health, and Developmental Disabilities, Autism and Family Support Task Forces and the Disability and Aging Collaborative (DAC) and allies responded to the Request for Information (RFI) Related to Comprehensive Regulations to Uncover Suspicious Healthcare, CMS-6098-NC. The letter read part, The undersigned organizations are deeply concerned about the Centers for Medicare & Medicaid Services (CMS) recent actions. Individuals with disabilities and older adults rely on many of the Medicaid services that CMS is targeting in its actions in Minnesota, as well as many of the services that CMS has flagged for investigation in New York, Maine, California, and Florida. When funding for such services is wholesale suspended or frozen, as it has been in Minnesota, Medicaid enrollees are ultimately harmed, not protected. https://downloads.regulations.gov/CMS-2026-0826-0249/attachment_1.pdf
Ensuring Patient Access to Critical Breakthrough Products Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
Seniors Deserve SMARTER Care Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
United Spinal as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition supported S. 3988, the Veterans Spinal Trauma Access to New Devices (STAND) Act and earlier in the year we supported the House version, H.R. 6835. This bipartisan legislation would direct the Secretary of Veterans Affairs to offer annual preventative health evaluations to veterans with spinal cord injuries and disorders and increase access to state-of-the-art assistive mobility technologies, such as Exoskeletal systems and other neuromodulation technologies, which allow paralyzed veterans the ability to improve their function and even walk again.
United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, sent a letter to express support for H.R. 6835, the Veterans Spinal Trauma Access to New Devices (STAND) Act of 2025, to the Chairman of the House Committee on Veterans Affairs and other House sponsors. This bipartisan legislation would direct the Secretary of Veterans Affairs to offer annual preventative health evaluations to veterans with spinal cord injuries and disorders and increase access to state-of-the-art assistive mobility technologies, such as Exoskeletal systems and other neuromodulation technologies, which allow paralyzed veterans the ability to improve their function and even walk again. https://itemcoalition.org/wp-content/uploads/2026/01/item-coalition-support-letter-for-h.r.-6835-the-veterans-stand-act-final.pdf United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition sent a letter to sponsors of S. 3138, the Veterans Supporting Prosthetics Opportunities and Recreational Therapy (SPORT) Act, which would provide coverage under the Department of Veterans Affairs (VA) benefit for prosthetic limbs that veterans with limb loss use to participate in physical activities in order to remain fit, healthy, and as functional as possible to express support. Specifically, this bill would recognize coverage of activity-specific prosthetic limbs as medically necessary under the VA benefit which the ITEM Coalition fully supports. As its title suggests, access to activity-specific prostheses would entail access to the recreational therapy veterans may need to learn how to safely perform these physical activities. https://itemcoalition.org/wp-content/uploads/2026/01/item-letter-of-support-for-s.-3138-the-veterans-sport-act-final.pdf
Motor Vehicle Modernization Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinals SecureRide Coalition advocated for the wheelchair securement research study provision in H. R. 7389, the Motor Vehicle Safety Modernization Act. United Spinals SecureRide Coalition met with Department of Transportation officials to advocate for safe and independent wheelchair securement across all modes of transportation. United Spinal, along with other disability advocates from organizations and communities across the United States who are committed to advancing mobility, independence, and full community participation for people with disabilities, wrote to the leadership of the Federal Transit Administration to support the continued modernization of accessible transportation and ADA paratransit services. The letter read in part, Accessible transportation remains one of the most important gateways to opportunity-enabling individuals to travel to employment, education, healthcare, and civic life. United Spinal discussed provisions of H.R.8128, the Same-Day Paratransit Innovation Act, with congressional staff. United Spinal, through our SecureRide Coalition discussed disability accessibility issues with the Autonomous Vehicle Industry Association ("AVIA") in reference to its statement for the record regarding the Subcommittee on Surface Transportation, Freight, Pipelines, and Safety hearing, "The Need for Speed: How Technological Advances are Driving Transportation Innovation. United Spinal advocated for accessibility provisions to be included in H. R. 8870, the BUILD America 250 Act. United Spinal advocated for the development of an autonomous wheelchair securement system as a co-lead in our SecureRide Coalition with the Department of Transportation. United Spinal, as a co-lead of our SecureRide Coalition submitted an application to participate in the Department of Transportations SecureRide Coalition's submission Roadway Safety Innovation Expo. United Spinal Associations SecureRide Coalition wrote to the bipartisan leadership of the House Energy and Commerce Committee and it Commerce, Manufacturing and Trade Subcommittee to support the automated wheelchair securement research provision included in the amendment in the nature of a substitute for H. R. 7389, the Motor Vehicle Modernization Act, filed in advance of the full committee markup on Thursday, May 21, 2026, at 10:00 a.m. (ET) as the motor vehicle safety title of the upcoming surface transportation reauthorization measure. The measure addresses a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other stakeholders wrote to the bipartisan leadership and membership of the House Energy and Commerce Committee and the Subcommittee on Commerce, Manufacturing and Trade to voice our support for the progress made on the SELF DRIVE Act, which was introduced by Representative Bob Latta. The letter read in part, the SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal submitted comments to the Administrator of the National Highway Traffic Safety Administration supporting Zooxs petition for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, Docket No. NHTSA-2025-0523. The comments read in part, We recognize that achieving these benefits requires careful attention to accessibility standards, inclusive design, and equal access to purpose-built wheelchair accessible autonomous vehicle deployment. With proper planning and regulation, Zoox can expand opportunities for independence, employment, healthcare access, and civic and social engagement, thereby improving the quality of life for people with spinal cord injuries and other mobility challenges. We respectfully request that you support Zooxs petition, Docket No. NHTSA-2025-0523, to enable the safe, federally supervised commercial operation of its all-electric autonomous vehicles. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force signed onto a letter responding to the request for public comments on the Zoox application for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, NHTSA-2025-0523-0003. The Comments strongly urged, the National Highway Traffic Safety Administration (NHTSA) to compel Zoox to operate a vehicle that is fully accessible for people with disabilities, consistent with the public interest. Given NHTSAs safety mandate and mission, it is essential to integrate accessibility into exemption approvals because it is inextricably linked to the safety of people with disabilities. United Spinal, along with numerous other disability organizations, wrote to the leadership of the Federal Transit Administration leadership about the need for modernizing paratransit services. The letter read in part, In particular, we encourage the FTA to continue advancing regulatory guidance and policy interpretations that support modernization of paratransit services and allow transit agencies to incorporate new mobility solutions-including on-demand service models and partnerships with ride share and TNC providers-into the ADA paratransit ecosystem. Where existing regulatory flexibilities exist, additional clarity and encouragement from the FTA could help agencies confidently expand these models in ways that enhance service for rider. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Administration for Community Living officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Access Board officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with National Council on Disability officials. United Spinal continues to advocate for H.R. 4116, the Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities.
Motor Vehicle Modernization Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
Discussing a potential presentation to the Accessible Transportation Research Center on autonomous vehicles impact on the disability community and United Spinals SecureRide Coalitions wheelchair securement work. United Spinal, as a Co-Lead in the SecureRide Coalition, met with Department of Transportation representatives to discuss and advocate for issues related to wheelchair securement during transit. United Spinal is advocating for the research provision for wheelchair securement contained in H.R. 7389, the Motor Vehicle Modernization Act of 2026. United Spinal staff, and numerous other disability organizations, met with the Department of Transportations Office of Aviation Consumer Protection and other officials to discuss disability and accessibility related issues. United Spinal wrote to the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee respectfully requesting that the Senate include a National Autonomous Vehicle (AV) Framework in the upcoming surface transportation reauthorization bill. The letter read in part, The AV moment is upon us. The time to enact a life-saving, life-changing technology national safety baseline and regulatory certainty for new market expansion is now. An AV framework is a critical opportunity for the United States to lead the world in advancing safe mobility technology with the promise to expand freedom and independence for millions of Americans in both rural and urban sectors, especially for the nations 5.5 million wheelchair users. Additionally, stressed the need for research on the modified universal docking integrated geometry (UDIG) RESNA standard to secure users wheelchairs in vehicles, both AVS and vehicles across various modes of transportation, including land, rail and air. United Spinal sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee, advocating for the automated wheelchair securement research provision in the discussion draft of the Motor Vehicle Modernization Act as the Commerce, Manufacturing and Trades Subcommittee developed the safety title of the upcoming surface transportation reauthorization measure. The letter read in part, As you know, safe automated wheelchair securement has been a significant challenge to the autonomous vehicle industry in developing a purpose-built fully accessible autonomous vehicle (AV). The United Spinal Associations SecureRide Coalition, in a letter to the bipartisan leadership of the Energy and Commerce Committee, supported the automated wheelchair securement research provision included in the discussion draft of the Motor Vehicle Modernization Act as the Commerce, Manufacturing and Trades Subcommittee developed the safety title of the upcoming surface transportation reauthorization measure. The letter read in part, Thank you for addressing a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other organizations, sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee for the progress made on the bipartisan SELF DRIVE Act discussion draft. The letter read in part, The SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 10, 2026, markup of legislation to strengthen motor vehicle safety and advance U.S. automative leadership. To allow people with disabilities to benefit from autonomous vehicles (AVs), the, vehicles must accommodate passengers to remain in their personal wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities, vehicles must be able to detect all types of disabled pedestrians, and disabled passengers and pedestrians rights and access to courts must be protected. We acknowledge additional research into automated securement is proposed in the Motor Vehicle Modernization Act and that vulnerable road user detection, including pedestrians and wheelchair users, is proposed in the Magnus White Safe Streets for Everyone Act. We support the automated securement provision and the Magnus White bill. https://c-c-d.org/fichiers/EC-AV-Markup-Disability-Letter-for-the-Record-020926-Final.pdf United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted comments for the record for the January 13, 2026 hearing on strengthening motor vehicle safety and cementing U.S. automative leadership. The comments read in part, While the question was asked of witnesses how the draft legislation would ensure access for people with disabilities, no concrete answers were given. To ensure people with disabilities benefit from autonomous vehicles (AVs) the vehicles must accommodate passengers who remain in their wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities and AVs must be able to detect all types of disabled pedestrians. We acknowledge additional research into automated securement is proposed in the Motor Vehicle Modernization Act and vulnerable road user detection is proposed in the Safe Streets for Everyone Act. Access and safety for disabled passengers is not addressed in the SELF DRIVE Act of 2026. To ensure American leadership in AVs and automated driving system (ADS)-equipped vehicles, we urge you to consider and prioritize the safety and access needs of disabled passengers and pedestrians. United Spinal and other organizations as members of the United for Autonomy coalition, which has come together in recognition of the significant benefits that autonomous vehicles (AVs) will bring the American public and to encourage policymakers to set in place a federal policy framework on Avs, wrote to the bipartisan leadership of the Senate Committee on Commerce, Science, and Transportation. The letter read in part, It is imperative that the United States create a federal policy framework on A Vs. In recent years, U.S. states have set the pace on AV policy, and it is long past time for the federal government to establish federal policy that supports safe autonomous deployment. We believe that such a framework will help ensure that millions of Americans are able to access the benefits of autonomous vehicles, which provide safer roads, greater supply chain resilience, and create new economic and enhanced accessibility opportunities for people with disabilities. https://www.acb.org/sites/default/files/United%20for%20Autonomy%20letter%20to%20Senate%20Commerce%20hearing%20(1).pdf United Spinal supported the testimony of Jeff Farrah, Chief Executive Officer, Autonomous Vehicle Association before the U. S. Senate Committee on Commerce, Science, and Transportation on February 4, 2026, entitled hit the road, Mac: The Future of Self Driving Cars that dealt with wheelchair securement in vehicles. https://cdn.prod.website-files.com/67ee365c25e6530594bd40c2/6983967231abcd56d42a55f4_Jeff%20Farrah%20-%20AVIA%20-%20Written%20Testimony%20-%20Hit%20the%20Road%20Mac.pdf United Spinal, along with numerous other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 4, 2026, hearing titled Hit the Road, Mac: The Future of Self-Driving Cars. The letter read in part, As noted in the hearing announcement, autonomous vehicles (AVs) have the potential to save lives and could also significantly expand mobility and independence for people with disabilities who are unable to drive, improving access to employment, healthcare, and the community. https://c-c-d.org/fichiers/Commerce-AV-Hearing-Disability-Letter-for-the-Record-Final020426.pdf United Spinal, along with numerous other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 10, 2026, markup of legislation before the Subcommittee on Commerce, Manufacturing and Trade to strengthen motor vehicle safety and advance U.S. automative leadership. The letter read in part, to allow people with disabilities to benefit from autonomous vehicles (AVs), the vehicles must accommodate passengers to remain in their personal wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities, vehicles must be able to detect all types of disabled pedestrians, and disabled passengers and pedestrians rights and access to courts must be protected. https://c-c-d.org/fichiers/EC-AV-Markup-Disability-Letter-for-the-Record-020926-Final.pdf United Spinal submitted comments in response to the Department of Transportations request for contributions to the Transportation Research and Development Strategic Plan, DOT-OST-2025-2085. The comments read in part, For the nations 5.5 million wheelchair users, strategic research and development planning can ultimately help in meeting daily transportation needs. That includes fulfilling employment or education needs, healthcare and fitness needs, but also civic and recreational opportunities. It will enrich families and social activities. All this stimulates economic benefits to the general economy. https://downloads.regulations.gov/DOT-OST-2025-2085-0075/attachment_1.pdf United Spinal continues to advocate for H.R. 4116 Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities. https://www.congress.gov/bill/119th-congress/house-bill/4116/
Same-Day Paratransit Innovation Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinals SecureRide Coalition advocated for the wheelchair securement research study provision in H. R. 7389, the Motor Vehicle Safety Modernization Act. United Spinals SecureRide Coalition met with Department of Transportation officials to advocate for safe and independent wheelchair securement across all modes of transportation. United Spinal, along with other disability advocates from organizations and communities across the United States who are committed to advancing mobility, independence, and full community participation for people with disabilities, wrote to the leadership of the Federal Transit Administration to support the continued modernization of accessible transportation and ADA paratransit services. The letter read in part, Accessible transportation remains one of the most important gateways to opportunity-enabling individuals to travel to employment, education, healthcare, and civic life. United Spinal discussed provisions of H.R.8128, the Same-Day Paratransit Innovation Act, with congressional staff. United Spinal, through our SecureRide Coalition discussed disability accessibility issues with the Autonomous Vehicle Industry Association ("AVIA") in reference to its statement for the record regarding the Subcommittee on Surface Transportation, Freight, Pipelines, and Safety hearing, "The Need for Speed: How Technological Advances are Driving Transportation Innovation. United Spinal advocated for accessibility provisions to be included in H. R. 8870, the BUILD America 250 Act. United Spinal advocated for the development of an autonomous wheelchair securement system as a co-lead in our SecureRide Coalition with the Department of Transportation. United Spinal, as a co-lead of our SecureRide Coalition submitted an application to participate in the Department of Transportations SecureRide Coalition's submission Roadway Safety Innovation Expo. United Spinal Associations SecureRide Coalition wrote to the bipartisan leadership of the House Energy and Commerce Committee and it Commerce, Manufacturing and Trade Subcommittee to support the automated wheelchair securement research provision included in the amendment in the nature of a substitute for H. R. 7389, the Motor Vehicle Modernization Act, filed in advance of the full committee markup on Thursday, May 21, 2026, at 10:00 a.m. (ET) as the motor vehicle safety title of the upcoming surface transportation reauthorization measure. The measure addresses a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other stakeholders wrote to the bipartisan leadership and membership of the House Energy and Commerce Committee and the Subcommittee on Commerce, Manufacturing and Trade to voice our support for the progress made on the SELF DRIVE Act, which was introduced by Representative Bob Latta. The letter read in part, the SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal submitted comments to the Administrator of the National Highway Traffic Safety Administration supporting Zooxs petition for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, Docket No. NHTSA-2025-0523. The comments read in part, We recognize that achieving these benefits requires careful attention to accessibility standards, inclusive design, and equal access to purpose-built wheelchair accessible autonomous vehicle deployment. With proper planning and regulation, Zoox can expand opportunities for independence, employment, healthcare access, and civic and social engagement, thereby improving the quality of life for people with spinal cord injuries and other mobility challenges. We respectfully request that you support Zooxs petition, Docket No. NHTSA-2025-0523, to enable the safe, federally supervised commercial operation of its all-electric autonomous vehicles. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force signed onto a letter responding to the request for public comments on the Zoox application for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, NHTSA-2025-0523-0003. The Comments strongly urged, the National Highway Traffic Safety Administration (NHTSA) to compel Zoox to operate a vehicle that is fully accessible for people with disabilities, consistent with the public interest. Given NHTSAs safety mandate and mission, it is essential to integrate accessibility into exemption approvals because it is inextricably linked to the safety of people with disabilities. United Spinal, along with numerous other disability organizations, wrote to the leadership of the Federal Transit Administration leadership about the need for modernizing paratransit services. The letter read in part, In particular, we encourage the FTA to continue advancing regulatory guidance and policy interpretations that support modernization of paratransit services and allow transit agencies to incorporate new mobility solutions-including on-demand service models and partnerships with ride share and TNC providers-into the ADA paratransit ecosystem. Where existing regulatory flexibilities exist, additional clarity and encouragement from the FTA could help agencies confidently expand these models in ways that enhance service for rider. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Administration for Community Living officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Access Board officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with National Council on Disability officials. United Spinal continues to advocate for H.R. 4116, the Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities.
Medicare Advantage Improvement Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal with other stakeholders discussed with members of Congress introducing legislation to delay the implementation of competitive bidding for ostomy and urological supplies under the Medicare program. United Spinal, along with other members of the Coalition to Preserve Rehabilitation (CPR), submitted comments to the administrator of the Centers for Medicare & Medicaid Services (CMS) in response to Fiscal Year 2027 Inpatient Rehabilitation Facility Prospective Payment System (IRF PPS) Proposed Rule (proposed rule), (CMS-1845-P). The comments read in part, Our comments focus on key provisions of the proposed rule-including proposed updates impacting IRF coverage and documentation, proposed changes to the IRF Quality Reporting Program, proposed updates to the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program, and responses to the various requests for information included in the proposed rule-with the goal of ensuring that Medicare beneficiaries continue to have access to the full range of medically necessary rehabilitation services, including those provided in inpatient rehabilitation hospitals. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the administrator of the Centers for Medicare and Medicaid Services (CMS) requesting a meeting to discuss the status of the long-pending National Coverage Analysis (NCA) for standing systems in Group 3 power wheelchairs. The letter read in part, We strongly urge CMS to proceed expeditiously with opening this NCA for public comment without further delay. As the 36th Anniversary of the Americans with Disabilities Act (ADA) approaches on July 26th, we believe there is no better way to celebrate the successes of this landmark law for people with disabilities over the past three and a half decades than for CMS to open this critically important NCA to address the mobility needs of individuals with disabilities. United Spinal, along with numerous other organizations, signed onto comments from the Not Dead Yet, a grassroots disability rights organization that opposes assisted suicide and Euthanasia. The comments were in response to a notice: Medicare Program; FY 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements The comments in part read, appreciates the opportunity to respond to the Centers for Medicare and Medicaid ServicesNot Dead Yet supports CMS intent to improve transparency and institute data guardrails for hospice care. This will help in the gathering of important data on U.S. patients as the population ages, potentially increasing the demand for hospice options. Not Dead Yets comments, since we are not hospice care providers, primarily introduce additional issues related to assisted suicide and palliative care. United Spinal, along with numerous other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the Congressional Vision Caucus to bring to their attention a Medicare regulation-the Medicare Low Vision Aid Exclusion at 42 C.F.R. 411.15(b)-that significantly limits beneficiary access to technologies and devices essential to the treatment of low vision. The letter read in part, We respectfully request your support in encouraging the Centers for Medicare and Medicaid Services (CMS) to rescind that outdated and overly broad regulation. Specifically, we request that you send a bipartisan Congressional sign-on letter to CMS, as well as a Dear Colleague letter to garner co-signers supporting this effort. United Spinal continues to oppose the Centers for Medicare and Medicaid Services rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program which will harm people who depend upon these supplies to live and will increase healthcare costs. It may conflict with the Presidents directives on deregulation, trade, and domestic industrial strength. United Spinal continues advocating for Medicare coverage of power wheelchairs standing systems. United Spinal supports legislation introduced by U.S. Representative Ayanna Pressley (D-MA-07), H. R. 9364, the FAST Repairs for Wheelchairs Act, that would eliminate prior authorization requirements for Complex Rehabilitation Technology (CRT) wheelchair maintenance and repairs under the Medicare Advantage (MA) program, aligning MA with traditional Medicare, which generally does not impose these barriers. United Spinal policy staff met with Centers for Medicare and Medicaid Services officials to advocate against implementing the agencys final rule about competitively bidding urological and ostomy supplies: The Centers for Medicare & Medicaid Services (CMS) is making some important changes in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) so that we can protect the Medicare Trust Funds and lower copays for beneficiaries. For more details, refer to the Calendar Year (CY) 2026 Home Health Prospective Payment System Final Rule (CMS-1828-F) displayed in the Federal Register on November 28, 2025. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition met with officials from the Office of Management and Budget to advocate against the Centers for Medicare and Medicaid Services rule about competitively bidding urological and ostomy supplies. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) in strong opposition to the proposed revisions to the Local Coverage Determination (LCD) DL33789, which would restrict Medicare coverage for certain power mobility devices, specifically, Group 2 standard power wheelchairs with seat elevation systems but without complex rehabilitative technology (CRT) capability. If finalized, this restriction in access to these critical devices would negatively impact Medicare beneficiaries who rely on such features to reach, transfer, and perform or participate in Mobility Related Activities of Daily Living (MRADLs) in their homes, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determination. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, submitted comments to the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) on the proposed Local Coverage Determination (LCD) for Wheelchair Options/Accessories (DL33792). The ITEM Coalition strongly opposes the proposed determination that power seat elevation systems used with standard, non-complex rehabilitation technology (CRT) power wheelchairs are not reasonable and necessary, and urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to reconsider and withdraw this proposed LCD as soon as possible. For the reasons outlined below, if finalized, this change in policy would significantly restrict access to a critical functional mobility technology for Medicare beneficiaries who rely on power wheelchairs to perform mobility-related activities of daily living (MRADLs) within the home, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determinations. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the Centers for Medicare and Medicaid Services to reiterate significant concerns with the Agencys decision to include ostomy and urological supplies in the next round of the Medicare Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP). Combined with the implementation of a national Remote Item Delivery (RID) program for distributing these items to Medicare beneficiaries, this policy represents a fundamental shift away from patient-centered, clinically appropriate care for individuals with disabilities and complex medical needs. United Spinal signed onto a letter, along with 358 members of the Disability and Aging Collaborative (DAC), the Health and Long Term Services and Supports (LTSS) Taskforces of the Consortium for Constituents with Disabilities (CCD), and allied organizations to urge the bipartisan, bicameral leadership of the Congress to exclude any funding cuts or harmful changes to Medicaid from any budget reconciliation or other legislation. The letter read in part, Medicaid is our communities lifeline, and that lifeline just suffered the largest cut in funding since its inception. We cannot afford any further cuts, and we urge Congress to prioritize reinvesting in Medicaid. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for H.R. 8375, the Medicare Advantage Improvement Act to its bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for S. 4384, the Medicare Advantage Improvement Act toots bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation facility (IRF) care, to achieve optimal recovery and maintain independence. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes.
United Spinals SecureRide Coalition advocated for the wheelchair securement research study provision in H. R. 7389, the Motor Vehicle Safety Modernization Act. United Spinals SecureRide Coalition met with Department of Transportation officials to advocate for safe and independent wheelchair securement across all modes of transportation. United Spinal, along with other disability advocates from organizations and communities across the United States who are committed to advancing mobility, independence, and full community participation for people with disabilities, wrote to the leadership of the Federal Transit Administration to support the continued modernization of accessible transportation and ADA paratransit services. The letter read in part, Accessible transportation remains one of the most important gateways to opportunity-enabling individuals to travel to employment, education, healthcare, and civic life. United Spinal discussed provisions of H.R.8128, the Same-Day Paratransit Innovation Act, with congressional staff. United Spinal, through our SecureRide Coalition discussed disability accessibility issues with the Autonomous Vehicle Industry Association ("AVIA") in reference to its statement for the record regarding the Subcommittee on Surface Transportation, Freight, Pipelines, and Safety hearing, "The Need for Speed: How Technological Advances are Driving Transportation Innovation. United Spinal advocated for accessibility provisions to be included in H. R. 8870, the BUILD America 250 Act. United Spinal advocated for the development of an autonomous wheelchair securement system as a co-lead in our SecureRide Coalition with the Department of Transportation. United Spinal, as a co-lead of our SecureRide Coalition submitted an application to participate in the Department of Transportations SecureRide Coalition's submission Roadway Safety Innovation Expo. United Spinal Associations SecureRide Coalition wrote to the bipartisan leadership of the House Energy and Commerce Committee and it Commerce, Manufacturing and Trade Subcommittee to support the automated wheelchair securement research provision included in the amendment in the nature of a substitute for H. R. 7389, the Motor Vehicle Modernization Act, filed in advance of the full committee markup on Thursday, May 21, 2026, at 10:00 a.m. (ET) as the motor vehicle safety title of the upcoming surface transportation reauthorization measure. The measure addresses a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other stakeholders wrote to the bipartisan leadership and membership of the House Energy and Commerce Committee and the Subcommittee on Commerce, Manufacturing and Trade to voice our support for the progress made on the SELF DRIVE Act, which was introduced by Representative Bob Latta. The letter read in part, the SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal submitted comments to the Administrator of the National Highway Traffic Safety Administration supporting Zooxs petition for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, Docket No. NHTSA-2025-0523. The comments read in part, We recognize that achieving these benefits requires careful attention to accessibility standards, inclusive design, and equal access to purpose-built wheelchair accessible autonomous vehicle deployment. With proper planning and regulation, Zoox can expand opportunities for independence, employment, healthcare access, and civic and social engagement, thereby improving the quality of life for people with spinal cord injuries and other mobility challenges. We respectfully request that you support Zooxs petition, Docket No. NHTSA-2025-0523, to enable the safe, federally supervised commercial operation of its all-electric autonomous vehicles. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force signed onto a letter responding to the request for public comments on the Zoox application for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, NHTSA-2025-0523-0003. The Comments strongly urged, the National Highway Traffic Safety Administration (NHTSA) to compel Zoox to operate a vehicle that is fully accessible for people with disabilities, consistent with the public interest. Given NHTSAs safety mandate and mission, it is essential to integrate accessibility into exemption approvals because it is inextricably linked to the safety of people with disabilities. United Spinal, along with numerous other disability organizations, wrote to the leadership of the Federal Transit Administration leadership about the need for modernizing paratransit services. The letter read in part, In particular, we encourage the FTA to continue advancing regulatory guidance and policy interpretations that support modernization of paratransit services and allow transit agencies to incorporate new mobility solutions-including on-demand service models and partnerships with ride share and TNC providers-into the ADA paratransit ecosystem. Where existing regulatory flexibilities exist, additional clarity and encouragement from the FTA could help agencies confidently expand these models in ways that enhance service for rider. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Administration for Community Living officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Access Board officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with National Council on Disability officials. United Spinal continues to advocate for H.R. 4116, the Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities.
FAST Repairs for Wheelchairs Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. United Spinal participated in and invited members of Congress and their staffs to participate in the National Coalition for Assistive and Rehab Technology (NCART), the International Registry of Rehabilitation Technology Suppliers (iNRRTS), and U.S. Rehab sponsored Complex Rehab Technology (CRT) Product Expo in Washington, D.C. on May 13, 2026. This event was designed to educate Members of Congress about CRT equipment and the individuals who rely on it every day to live safely and independently. We advocated on three issues with members of Congress and their staff about Complex Rehab Technology equipment and services, specifically: 1.Opening the Power Standing Coverage Determination process with the Centers for Medicare and Medicaid Services. 2.Passage of H.R. 1703 / S. 247 - the Choices for Increased Mobility Act of 2005, 3.Passage H. R. 9364, eliminate Prior Authorization for Wheelchair Repairs for Medicare Advantage United Spinal, along with other members of the. Disability and Rehabilitation Research Coalition (DRRC) wrote to Health and Human Services Secretary Kennedy to express our serious concern regarding the significant delay in the release of the Notice of Funding Opportunity (NOFO) for the National Paralysis Resource Center, which is currently operated by the Christopher & Dana Reeve Foundation under a cooperative agreement with the Administration for Community Living (ACL). United Spinal submitted comments to the Access Boards development of standards for Universal Changing Stations, Docket Number: ATBCB-2026-0001, RIN Number: 3014-AA50. In our comments, we thanked Senator Maggie Hassan for her leadership in establishing the requirement for Universal Changing Stations in the bipartisan Federal Aviation Administration (FAA) Reauthorization Act of 2024. The comments included the following summary: The United Spinal Associations recommendation to use existing industry standards is consistent with the National Technology Transfer and Advancement Act of 1995 (NTTAA) which encourages Agencies to use and participate in the development voluntary consensus standards. The Board is a valued member of the ICC A117.1 Standards development team and has considerable influence over the process and the ultimate requirements. It would be unfortunate if the Board were not to exploit this work by using it to advance its own mission. Collaboration of this type maximizes the Boards resources and encourages better understanding of the needs of all parties. As follow-up to our Virtual Advocacy Day held in March, United Spinal continued to advocate with members of Congress and or their staff on the following issues: Insert language into the FY27 Labor-HHS-Education appropriations bills committee report providing $2.5 million to fund four additional SCI Model System Suggested programmatic language: The inclusion of ostomy, urological and tracheostomy supplies in the Medicare competitive bidding program may conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. Competitive bidding threatens to transfer this market to foreign competitors who have no commitment to American workers, American communities or American patients. And or: Suggested appropriations report language: Competitive Bidding for Ostomy, Tracheostomy, and Urological Supplies - The Committee is concerned about the Centers for Medicare & Medicaid Services decision to include ostomy, tracheostomy, and urological prosthetic supplies in the Medicare Competitive Bidding Program (CBP). These prosthetic devices have never been included in the program. The Committee is concerned that subjecting these prosthetic devices to competitive bidding without sufficient analysis could disrupt patient access, compromise clinician decision-making, harm domestic manufacturing, and increase Medicare costs. Accordingly, the Committee directs CMS to delay the implementation of competitive bidding for ostomy, tracheostomy, and urological supplies until the Administrator submits a report to the Committees on Appropriations, providing: (1) an assessment of the prospective downstream costs to the Medicare Part A program for adverse health events due to patients seeing limited or no access to the supplies of their choice; and (2) an evaluation of the potential impact on the US domestic supply chain, including manufacturing and distribution capacity and service industries associated with patient management if no or a limited number of US businesses are selected for the CBP. The Committee directs CMS to collect citable data from patient, clinician and manufacturer stakeholders. The Committee directs CMS to maintain current payment methodologies for these prosthetic devices until the Committee is briefed by CMS on all findings. United Spinals annual advocacy event, Roll on Capitol Hill, was held on June 24th. Advocates met with members of Congress and of their staff seeking action on four issues: Support Rep. Ayanna Pressleys (D-MA) bill, H. R. 9364, the FAST Repairs for Wheelchairs Act, which would prohibit Medicare Advantage plans from requiring prior authorization for wheelchair repairs. Carbon fiber and titanium wheelchairs are lighter, stronger and more responsive than standard wheelchairs chairs. But because of a policy change, Medicare beneficiaries have to pay the full cost out of pocket. The Choices for Increased Mobility Act (H.R. 1703/S. 247) would explicitly require Medicare to create new codes to allow suppliers to bill consumers for just the cost of the upgrade to an ultralight manual wheelchair. This bill is sponsored in the House by Reps. John Joyce (R-PA), Vern Buchanan (R-FL), and Kim Schrier (D-WA), and in the Senate by Senators Marsha Blackburn (R-TN) and Tammy Duckworth (D-IL). Support forthcoming legislation that will exclude ostomy and urological supplies from Medicares durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) competitive bidding program for a period of five years while requiring the Centers for Medicare and Medicaid Services (CMS) to undertake a more comprehensive and clinically informed review of the impact that competitive bidding policies could have on beneficiary access, product choice, and patient outcomes. And other related provisions. urging Members of Congress to protect and strengthen home and community based services (HCBS), which already operates within a fragile system challenged by workforce shortages, long waiting lists, and inadequate funding. Millions of older adults and people with disabilities rely on HCBS to live independently in their homes and communities, and demand for these services will continue to grow as the population ages. Further cuts or restrictions would worsen existing barriers, increase the risk of institutionalization, and leave many without the support they need. Investing in and preserving HCBS is essential to ensure current and future generations can access quality care at home. United Spinal supported, S. Res. 685, sponsored by Senator Edward J. Markey (D-Mass.), member of the Commerce, Science, and Transportation Committee, and Senator Kevin Cramer (R-N.D.) designating April 22, 2026, as National Assistive Technology Awareness Day.
FAST Repairs for Wheelchairs Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal with other stakeholders discussed with members of Congress introducing legislation to delay the implementation of competitive bidding for ostomy and urological supplies under the Medicare program. United Spinal, along with other members of the Coalition to Preserve Rehabilitation (CPR), submitted comments to the administrator of the Centers for Medicare & Medicaid Services (CMS) in response to Fiscal Year 2027 Inpatient Rehabilitation Facility Prospective Payment System (IRF PPS) Proposed Rule (proposed rule), (CMS-1845-P). The comments read in part, Our comments focus on key provisions of the proposed rule-including proposed updates impacting IRF coverage and documentation, proposed changes to the IRF Quality Reporting Program, proposed updates to the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program, and responses to the various requests for information included in the proposed rule-with the goal of ensuring that Medicare beneficiaries continue to have access to the full range of medically necessary rehabilitation services, including those provided in inpatient rehabilitation hospitals. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the administrator of the Centers for Medicare and Medicaid Services (CMS) requesting a meeting to discuss the status of the long-pending National Coverage Analysis (NCA) for standing systems in Group 3 power wheelchairs. The letter read in part, We strongly urge CMS to proceed expeditiously with opening this NCA for public comment without further delay. As the 36th Anniversary of the Americans with Disabilities Act (ADA) approaches on July 26th, we believe there is no better way to celebrate the successes of this landmark law for people with disabilities over the past three and a half decades than for CMS to open this critically important NCA to address the mobility needs of individuals with disabilities. United Spinal, along with numerous other organizations, signed onto comments from the Not Dead Yet, a grassroots disability rights organization that opposes assisted suicide and Euthanasia. The comments were in response to a notice: Medicare Program; FY 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements The comments in part read, appreciates the opportunity to respond to the Centers for Medicare and Medicaid ServicesNot Dead Yet supports CMS intent to improve transparency and institute data guardrails for hospice care. This will help in the gathering of important data on U.S. patients as the population ages, potentially increasing the demand for hospice options. Not Dead Yets comments, since we are not hospice care providers, primarily introduce additional issues related to assisted suicide and palliative care. United Spinal, along with numerous other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the Congressional Vision Caucus to bring to their attention a Medicare regulation-the Medicare Low Vision Aid Exclusion at 42 C.F.R. 411.15(b)-that significantly limits beneficiary access to technologies and devices essential to the treatment of low vision. The letter read in part, We respectfully request your support in encouraging the Centers for Medicare and Medicaid Services (CMS) to rescind that outdated and overly broad regulation. Specifically, we request that you send a bipartisan Congressional sign-on letter to CMS, as well as a Dear Colleague letter to garner co-signers supporting this effort. United Spinal continues to oppose the Centers for Medicare and Medicaid Services rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program which will harm people who depend upon these supplies to live and will increase healthcare costs. It may conflict with the Presidents directives on deregulation, trade, and domestic industrial strength. United Spinal continues advocating for Medicare coverage of power wheelchairs standing systems. United Spinal supports legislation introduced by U.S. Representative Ayanna Pressley (D-MA-07), H. R. 9364, the FAST Repairs for Wheelchairs Act, that would eliminate prior authorization requirements for Complex Rehabilitation Technology (CRT) wheelchair maintenance and repairs under the Medicare Advantage (MA) program, aligning MA with traditional Medicare, which generally does not impose these barriers. United Spinal policy staff met with Centers for Medicare and Medicaid Services officials to advocate against implementing the agencys final rule about competitively bidding urological and ostomy supplies: The Centers for Medicare & Medicaid Services (CMS) is making some important changes in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) so that we can protect the Medicare Trust Funds and lower copays for beneficiaries. For more details, refer to the Calendar Year (CY) 2026 Home Health Prospective Payment System Final Rule (CMS-1828-F) displayed in the Federal Register on November 28, 2025. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition met with officials from the Office of Management and Budget to advocate against the Centers for Medicare and Medicaid Services rule about competitively bidding urological and ostomy supplies. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) in strong opposition to the proposed revisions to the Local Coverage Determination (LCD) DL33789, which would restrict Medicare coverage for certain power mobility devices, specifically, Group 2 standard power wheelchairs with seat elevation systems but without complex rehabilitative technology (CRT) capability. If finalized, this restriction in access to these critical devices would negatively impact Medicare beneficiaries who rely on such features to reach, transfer, and perform or participate in Mobility Related Activities of Daily Living (MRADLs) in their homes, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determination. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, submitted comments to the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) on the proposed Local Coverage Determination (LCD) for Wheelchair Options/Accessories (DL33792). The ITEM Coalition strongly opposes the proposed determination that power seat elevation systems used with standard, non-complex rehabilitation technology (CRT) power wheelchairs are not reasonable and necessary, and urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to reconsider and withdraw this proposed LCD as soon as possible. For the reasons outlined below, if finalized, this change in policy would significantly restrict access to a critical functional mobility technology for Medicare beneficiaries who rely on power wheelchairs to perform mobility-related activities of daily living (MRADLs) within the home, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determinations. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the Centers for Medicare and Medicaid Services to reiterate significant concerns with the Agencys decision to include ostomy and urological supplies in the next round of the Medicare Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP). Combined with the implementation of a national Remote Item Delivery (RID) program for distributing these items to Medicare beneficiaries, this policy represents a fundamental shift away from patient-centered, clinically appropriate care for individuals with disabilities and complex medical needs. United Spinal signed onto a letter, along with 358 members of the Disability and Aging Collaborative (DAC), the Health and Long Term Services and Supports (LTSS) Taskforces of the Consortium for Constituents with Disabilities (CCD), and allied organizations to urge the bipartisan, bicameral leadership of the Congress to exclude any funding cuts or harmful changes to Medicaid from any budget reconciliation or other legislation. The letter read in part, Medicaid is our communities lifeline, and that lifeline just suffered the largest cut in funding since its inception. We cannot afford any further cuts, and we urge Congress to prioritize reinvesting in Medicaid. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for H.R. 8375, the Medicare Advantage Improvement Act to its bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for S. 4384, the Medicare Advantage Improvement Act toots bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation facility (IRF) care, to achieve optimal recovery and maintain independence. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes.
Choices for Increased Mobility Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. United Spinal participated in and invited members of Congress and their staffs to participate in the National Coalition for Assistive and Rehab Technology (NCART), the International Registry of Rehabilitation Technology Suppliers (iNRRTS), and U.S. Rehab sponsored Complex Rehab Technology (CRT) Product Expo in Washington, D.C. on May 13, 2026. This event was designed to educate Members of Congress about CRT equipment and the individuals who rely on it every day to live safely and independently. We advocated on three issues with members of Congress and their staff about Complex Rehab Technology equipment and services, specifically: 1.Opening the Power Standing Coverage Determination process with the Centers for Medicare and Medicaid Services. 2.Passage of H.R. 1703 / S. 247 - the Choices for Increased Mobility Act of 2005, 3.Passage H. R. 9364, eliminate Prior Authorization for Wheelchair Repairs for Medicare Advantage United Spinal, along with other members of the. Disability and Rehabilitation Research Coalition (DRRC) wrote to Health and Human Services Secretary Kennedy to express our serious concern regarding the significant delay in the release of the Notice of Funding Opportunity (NOFO) for the National Paralysis Resource Center, which is currently operated by the Christopher & Dana Reeve Foundation under a cooperative agreement with the Administration for Community Living (ACL). United Spinal submitted comments to the Access Boards development of standards for Universal Changing Stations, Docket Number: ATBCB-2026-0001, RIN Number: 3014-AA50. In our comments, we thanked Senator Maggie Hassan for her leadership in establishing the requirement for Universal Changing Stations in the bipartisan Federal Aviation Administration (FAA) Reauthorization Act of 2024. The comments included the following summary: The United Spinal Associations recommendation to use existing industry standards is consistent with the National Technology Transfer and Advancement Act of 1995 (NTTAA) which encourages Agencies to use and participate in the development voluntary consensus standards. The Board is a valued member of the ICC A117.1 Standards development team and has considerable influence over the process and the ultimate requirements. It would be unfortunate if the Board were not to exploit this work by using it to advance its own mission. Collaboration of this type maximizes the Boards resources and encourages better understanding of the needs of all parties. As follow-up to our Virtual Advocacy Day held in March, United Spinal continued to advocate with members of Congress and or their staff on the following issues: Insert language into the FY27 Labor-HHS-Education appropriations bills committee report providing $2.5 million to fund four additional SCI Model System Suggested programmatic language: The inclusion of ostomy, urological and tracheostomy supplies in the Medicare competitive bidding program may conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. Competitive bidding threatens to transfer this market to foreign competitors who have no commitment to American workers, American communities or American patients. And or: Suggested appropriations report language: Competitive Bidding for Ostomy, Tracheostomy, and Urological Supplies - The Committee is concerned about the Centers for Medicare & Medicaid Services decision to include ostomy, tracheostomy, and urological prosthetic supplies in the Medicare Competitive Bidding Program (CBP). These prosthetic devices have never been included in the program. The Committee is concerned that subjecting these prosthetic devices to competitive bidding without sufficient analysis could disrupt patient access, compromise clinician decision-making, harm domestic manufacturing, and increase Medicare costs. Accordingly, the Committee directs CMS to delay the implementation of competitive bidding for ostomy, tracheostomy, and urological supplies until the Administrator submits a report to the Committees on Appropriations, providing: (1) an assessment of the prospective downstream costs to the Medicare Part A program for adverse health events due to patients seeing limited or no access to the supplies of their choice; and (2) an evaluation of the potential impact on the US domestic supply chain, including manufacturing and distribution capacity and service industries associated with patient management if no or a limited number of US businesses are selected for the CBP. The Committee directs CMS to collect citable data from patient, clinician and manufacturer stakeholders. The Committee directs CMS to maintain current payment methodologies for these prosthetic devices until the Committee is briefed by CMS on all findings. United Spinals annual advocacy event, Roll on Capitol Hill, was held on June 24th. Advocates met with members of Congress and of their staff seeking action on four issues: Support Rep. Ayanna Pressleys (D-MA) bill, H. R. 9364, the FAST Repairs for Wheelchairs Act, which would prohibit Medicare Advantage plans from requiring prior authorization for wheelchair repairs. Carbon fiber and titanium wheelchairs are lighter, stronger and more responsive than standard wheelchairs chairs. But because of a policy change, Medicare beneficiaries have to pay the full cost out of pocket. The Choices for Increased Mobility Act (H.R. 1703/S. 247) would explicitly require Medicare to create new codes to allow suppliers to bill consumers for just the cost of the upgrade to an ultralight manual wheelchair. This bill is sponsored in the House by Reps. John Joyce (R-PA), Vern Buchanan (R-FL), and Kim Schrier (D-WA), and in the Senate by Senators Marsha Blackburn (R-TN) and Tammy Duckworth (D-IL). Support forthcoming legislation that will exclude ostomy and urological supplies from Medicares durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) competitive bidding program for a period of five years while requiring the Centers for Medicare and Medicaid Services (CMS) to undertake a more comprehensive and clinically informed review of the impact that competitive bidding policies could have on beneficiary access, product choice, and patient outcomes. And other related provisions. urging Members of Congress to protect and strengthen home and community based services (HCBS), which already operates within a fragile system challenged by workforce shortages, long waiting lists, and inadequate funding. Millions of older adults and people with disabilities rely on HCBS to live independently in their homes and communities, and demand for these services will continue to grow as the population ages. Further cuts or restrictions would worsen existing barriers, increase the risk of institutionalization, and leave many without the support they need. Investing in and preserving HCBS is essential to ensure current and future generations can access quality care at home. United Spinal supported, S. Res. 685, sponsored by Senator Edward J. Markey (D-Mass.), member of the Commerce, Science, and Transportation Committee, and Senator Kevin Cramer (R-N.D.) designating April 22, 2026, as National Assistive Technology Awareness Day.
Choices for Increased Mobility Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, sent a letter to express support for H.R. 6835, the Veterans Spinal Trauma Access to New Devices (STAND) Act of 2025, to the Chairman of the House Committee on Veterans Affairs and other House sponsors. This bipartisan legislation would direct the Secretary of Veterans Affairs to offer annual preventative health evaluations to veterans with spinal cord injuries and disorders and increase access to state-of-the-art assistive mobility technologies, such as Exoskeletal systems and other neuromodulation technologies, which allow paralyzed veterans the ability to improve their function and even walk again. https://itemcoalition.org/wp-content/uploads/2026/01/item-coalition-support-letter-for-h.r.-6835-the-veterans-stand-act-final.pdf United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition sent a letter to sponsors of S. 3138, the Veterans Supporting Prosthetics Opportunities and Recreational Therapy (SPORT) Act, which would provide coverage under the Department of Veterans Affairs (VA) benefit for prosthetic limbs that veterans with limb loss use to participate in physical activities in order to remain fit, healthy, and as functional as possible to express support. Specifically, this bill would recognize coverage of activity-specific prosthetic limbs as medically necessary under the VA benefit which the ITEM Coalition fully supports. As its title suggests, access to activity-specific prostheses would entail access to the recreational therapy veterans may need to learn how to safely perform these physical activities. https://itemcoalition.org/wp-content/uploads/2026/01/item-letter-of-support-for-s.-3138-the-veterans-sport-act-final.pdf
Seniors Deserve SMARTER Care Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
United Spinal as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition supported S. 3988, the Veterans Spinal Trauma Access to New Devices (STAND) Act and earlier in the year we supported the House version, H.R. 6835. This bipartisan legislation would direct the Secretary of Veterans Affairs to offer annual preventative health evaluations to veterans with spinal cord injuries and disorders and increase access to state-of-the-art assistive mobility technologies, such as Exoskeletal systems and other neuromodulation technologies, which allow paralyzed veterans the ability to improve their function and even walk again.
Medicare Advantage Improvement Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal with other stakeholders discussed with members of Congress introducing legislation to delay the implementation of competitive bidding for ostomy and urological supplies under the Medicare program. United Spinal, along with other members of the Coalition to Preserve Rehabilitation (CPR), submitted comments to the administrator of the Centers for Medicare & Medicaid Services (CMS) in response to Fiscal Year 2027 Inpatient Rehabilitation Facility Prospective Payment System (IRF PPS) Proposed Rule (proposed rule), (CMS-1845-P). The comments read in part, Our comments focus on key provisions of the proposed rule-including proposed updates impacting IRF coverage and documentation, proposed changes to the IRF Quality Reporting Program, proposed updates to the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program, and responses to the various requests for information included in the proposed rule-with the goal of ensuring that Medicare beneficiaries continue to have access to the full range of medically necessary rehabilitation services, including those provided in inpatient rehabilitation hospitals. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the administrator of the Centers for Medicare and Medicaid Services (CMS) requesting a meeting to discuss the status of the long-pending National Coverage Analysis (NCA) for standing systems in Group 3 power wheelchairs. The letter read in part, We strongly urge CMS to proceed expeditiously with opening this NCA for public comment without further delay. As the 36th Anniversary of the Americans with Disabilities Act (ADA) approaches on July 26th, we believe there is no better way to celebrate the successes of this landmark law for people with disabilities over the past three and a half decades than for CMS to open this critically important NCA to address the mobility needs of individuals with disabilities. United Spinal, along with numerous other organizations, signed onto comments from the Not Dead Yet, a grassroots disability rights organization that opposes assisted suicide and Euthanasia. The comments were in response to a notice: Medicare Program; FY 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements The comments in part read, appreciates the opportunity to respond to the Centers for Medicare and Medicaid ServicesNot Dead Yet supports CMS intent to improve transparency and institute data guardrails for hospice care. This will help in the gathering of important data on U.S. patients as the population ages, potentially increasing the demand for hospice options. Not Dead Yets comments, since we are not hospice care providers, primarily introduce additional issues related to assisted suicide and palliative care. United Spinal, along with numerous other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the Congressional Vision Caucus to bring to their attention a Medicare regulation-the Medicare Low Vision Aid Exclusion at 42 C.F.R. 411.15(b)-that significantly limits beneficiary access to technologies and devices essential to the treatment of low vision. The letter read in part, We respectfully request your support in encouraging the Centers for Medicare and Medicaid Services (CMS) to rescind that outdated and overly broad regulation. Specifically, we request that you send a bipartisan Congressional sign-on letter to CMS, as well as a Dear Colleague letter to garner co-signers supporting this effort. United Spinal continues to oppose the Centers for Medicare and Medicaid Services rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program which will harm people who depend upon these supplies to live and will increase healthcare costs. It may conflict with the Presidents directives on deregulation, trade, and domestic industrial strength. United Spinal continues advocating for Medicare coverage of power wheelchairs standing systems. United Spinal supports legislation introduced by U.S. Representative Ayanna Pressley (D-MA-07), H. R. 9364, the FAST Repairs for Wheelchairs Act, that would eliminate prior authorization requirements for Complex Rehabilitation Technology (CRT) wheelchair maintenance and repairs under the Medicare Advantage (MA) program, aligning MA with traditional Medicare, which generally does not impose these barriers. United Spinal policy staff met with Centers for Medicare and Medicaid Services officials to advocate against implementing the agencys final rule about competitively bidding urological and ostomy supplies: The Centers for Medicare & Medicaid Services (CMS) is making some important changes in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) so that we can protect the Medicare Trust Funds and lower copays for beneficiaries. For more details, refer to the Calendar Year (CY) 2026 Home Health Prospective Payment System Final Rule (CMS-1828-F) displayed in the Federal Register on November 28, 2025. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition met with officials from the Office of Management and Budget to advocate against the Centers for Medicare and Medicaid Services rule about competitively bidding urological and ostomy supplies. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) in strong opposition to the proposed revisions to the Local Coverage Determination (LCD) DL33789, which would restrict Medicare coverage for certain power mobility devices, specifically, Group 2 standard power wheelchairs with seat elevation systems but without complex rehabilitative technology (CRT) capability. If finalized, this restriction in access to these critical devices would negatively impact Medicare beneficiaries who rely on such features to reach, transfer, and perform or participate in Mobility Related Activities of Daily Living (MRADLs) in their homes, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determination. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, submitted comments to the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) on the proposed Local Coverage Determination (LCD) for Wheelchair Options/Accessories (DL33792). The ITEM Coalition strongly opposes the proposed determination that power seat elevation systems used with standard, non-complex rehabilitation technology (CRT) power wheelchairs are not reasonable and necessary, and urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to reconsider and withdraw this proposed LCD as soon as possible. For the reasons outlined below, if finalized, this change in policy would significantly restrict access to a critical functional mobility technology for Medicare beneficiaries who rely on power wheelchairs to perform mobility-related activities of daily living (MRADLs) within the home, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determinations. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the Centers for Medicare and Medicaid Services to reiterate significant concerns with the Agencys decision to include ostomy and urological supplies in the next round of the Medicare Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP). Combined with the implementation of a national Remote Item Delivery (RID) program for distributing these items to Medicare beneficiaries, this policy represents a fundamental shift away from patient-centered, clinically appropriate care for individuals with disabilities and complex medical needs. United Spinal signed onto a letter, along with 358 members of the Disability and Aging Collaborative (DAC), the Health and Long Term Services and Supports (LTSS) Taskforces of the Consortium for Constituents with Disabilities (CCD), and allied organizations to urge the bipartisan, bicameral leadership of the Congress to exclude any funding cuts or harmful changes to Medicaid from any budget reconciliation or other legislation. The letter read in part, Medicaid is our communities lifeline, and that lifeline just suffered the largest cut in funding since its inception. We cannot afford any further cuts, and we urge Congress to prioritize reinvesting in Medicaid. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for H.R. 8375, the Medicare Advantage Improvement Act to its bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for S. 4384, the Medicare Advantage Improvement Act toots bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation facility (IRF) care, to achieve optimal recovery and maintain independence. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes.
A resolution designating April 22, 2026, as "National Assistive Technology Awareness Day".
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. United Spinal participated in and invited members of Congress and their staffs to participate in the National Coalition for Assistive and Rehab Technology (NCART), the International Registry of Rehabilitation Technology Suppliers (iNRRTS), and U.S. Rehab sponsored Complex Rehab Technology (CRT) Product Expo in Washington, D.C. on May 13, 2026. This event was designed to educate Members of Congress about CRT equipment and the individuals who rely on it every day to live safely and independently. We advocated on three issues with members of Congress and their staff about Complex Rehab Technology equipment and services, specifically: 1.Opening the Power Standing Coverage Determination process with the Centers for Medicare and Medicaid Services. 2.Passage of H.R. 1703 / S. 247 - the Choices for Increased Mobility Act of 2005, 3.Passage H. R. 9364, eliminate Prior Authorization for Wheelchair Repairs for Medicare Advantage United Spinal, along with other members of the. Disability and Rehabilitation Research Coalition (DRRC) wrote to Health and Human Services Secretary Kennedy to express our serious concern regarding the significant delay in the release of the Notice of Funding Opportunity (NOFO) for the National Paralysis Resource Center, which is currently operated by the Christopher & Dana Reeve Foundation under a cooperative agreement with the Administration for Community Living (ACL). United Spinal submitted comments to the Access Boards development of standards for Universal Changing Stations, Docket Number: ATBCB-2026-0001, RIN Number: 3014-AA50. In our comments, we thanked Senator Maggie Hassan for her leadership in establishing the requirement for Universal Changing Stations in the bipartisan Federal Aviation Administration (FAA) Reauthorization Act of 2024. The comments included the following summary: The United Spinal Associations recommendation to use existing industry standards is consistent with the National Technology Transfer and Advancement Act of 1995 (NTTAA) which encourages Agencies to use and participate in the development voluntary consensus standards. The Board is a valued member of the ICC A117.1 Standards development team and has considerable influence over the process and the ultimate requirements. It would be unfortunate if the Board were not to exploit this work by using it to advance its own mission. Collaboration of this type maximizes the Boards resources and encourages better understanding of the needs of all parties. As follow-up to our Virtual Advocacy Day held in March, United Spinal continued to advocate with members of Congress and or their staff on the following issues: Insert language into the FY27 Labor-HHS-Education appropriations bills committee report providing $2.5 million to fund four additional SCI Model System Suggested programmatic language: The inclusion of ostomy, urological and tracheostomy supplies in the Medicare competitive bidding program may conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. Competitive bidding threatens to transfer this market to foreign competitors who have no commitment to American workers, American communities or American patients. And or: Suggested appropriations report language: Competitive Bidding for Ostomy, Tracheostomy, and Urological Supplies - The Committee is concerned about the Centers for Medicare & Medicaid Services decision to include ostomy, tracheostomy, and urological prosthetic supplies in the Medicare Competitive Bidding Program (CBP). These prosthetic devices have never been included in the program. The Committee is concerned that subjecting these prosthetic devices to competitive bidding without sufficient analysis could disrupt patient access, compromise clinician decision-making, harm domestic manufacturing, and increase Medicare costs. Accordingly, the Committee directs CMS to delay the implementation of competitive bidding for ostomy, tracheostomy, and urological supplies until the Administrator submits a report to the Committees on Appropriations, providing: (1) an assessment of the prospective downstream costs to the Medicare Part A program for adverse health events due to patients seeing limited or no access to the supplies of their choice; and (2) an evaluation of the potential impact on the US domestic supply chain, including manufacturing and distribution capacity and service industries associated with patient management if no or a limited number of US businesses are selected for the CBP. The Committee directs CMS to collect citable data from patient, clinician and manufacturer stakeholders. The Committee directs CMS to maintain current payment methodologies for these prosthetic devices until the Committee is briefed by CMS on all findings. United Spinals annual advocacy event, Roll on Capitol Hill, was held on June 24th. Advocates met with members of Congress and of their staff seeking action on four issues: Support Rep. Ayanna Pressleys (D-MA) bill, H. R. 9364, the FAST Repairs for Wheelchairs Act, which would prohibit Medicare Advantage plans from requiring prior authorization for wheelchair repairs. Carbon fiber and titanium wheelchairs are lighter, stronger and more responsive than standard wheelchairs chairs. But because of a policy change, Medicare beneficiaries have to pay the full cost out of pocket. The Choices for Increased Mobility Act (H.R. 1703/S. 247) would explicitly require Medicare to create new codes to allow suppliers to bill consumers for just the cost of the upgrade to an ultralight manual wheelchair. This bill is sponsored in the House by Reps. John Joyce (R-PA), Vern Buchanan (R-FL), and Kim Schrier (D-WA), and in the Senate by Senators Marsha Blackburn (R-TN) and Tammy Duckworth (D-IL). Support forthcoming legislation that will exclude ostomy and urological supplies from Medicares durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) competitive bidding program for a period of five years while requiring the Centers for Medicare and Medicaid Services (CMS) to undertake a more comprehensive and clinically informed review of the impact that competitive bidding policies could have on beneficiary access, product choice, and patient outcomes. And other related provisions. urging Members of Congress to protect and strengthen home and community based services (HCBS), which already operates within a fragile system challenged by workforce shortages, long waiting lists, and inadequate funding. Millions of older adults and people with disabilities rely on HCBS to live independently in their homes and communities, and demand for these services will continue to grow as the population ages. Further cuts or restrictions would worsen existing barriers, increase the risk of institutionalization, and leave many without the support they need. Investing in and preserving HCBS is essential to ensure current and future generations can access quality care at home. United Spinal supported, S. Res. 685, sponsored by Senator Edward J. Markey (D-Mass.), member of the Commerce, Science, and Transportation Committee, and Senator Kevin Cramer (R-N.D.) designating April 22, 2026, as National Assistive Technology Awareness Day.
Safeguarding Americans From Extremist Risk (SAFER) at the Border Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports legislation that Rep. Dina Titus and Senator Tammy Baldwin introduced, H.R. 9373/S. 4829, the Air Carrier Access Amendment Act (ACAAA) of 2026. As a member of the ACAA Working Group, United Spinal signed onto a letter to the Department of Transportations Secretary, Sean Duffy, requesting updates on the status of DOTs implementation of the disability-related provisions of the FAA Reauthorization Act of 2024 (P.L. 118-63) and urging DOT to meet the requirements specified by Congress. The letter emphasizes the importance of the disability-related provisions. This includes the reauthorization of the Air Carrier Access Act Advisory Committee; data on mishandled wheelchairs; public reports; rulemaking on seating accommodations; the service animal travel pilot program; minimum technology accessibility standards; aisle chair standards; and rulemaking on in-flight entertainment. The letter also urges DOT to uphold the Wheelchair User Rule's improved training requirements effective June 17, 2026. United Spinal met with members of Congress to discuss the implementation of accessibility provisions in the FAA Reauthorization Act of 2024.
Hearing Device Coverage Clarification Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports legislation that Rep. Dina Titus and Senator Tammy Baldwin introduced, H.R. 9373/S. 4829, the Air Carrier Access Amendment Act (ACAAA) of 2026. As a member of the ACAA Working Group, United Spinal signed onto a letter to the Department of Transportations Secretary, Sean Duffy, requesting updates on the status of DOTs implementation of the disability-related provisions of the FAA Reauthorization Act of 2024 (P.L. 118-63) and urging DOT to meet the requirements specified by Congress. The letter emphasizes the importance of the disability-related provisions. This includes the reauthorization of the Air Carrier Access Act Advisory Committee; data on mishandled wheelchairs; public reports; rulemaking on seating accommodations; the service animal travel pilot program; minimum technology accessibility standards; aisle chair standards; and rulemaking on in-flight entertainment. The letter also urges DOT to uphold the Wheelchair User Rule's improved training requirements effective June 17, 2026. United Spinal met with members of Congress to discuss the implementation of accessibility provisions in the FAA Reauthorization Act of 2024.
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal, as a member of the Health and Long-Term Services and Supports Task force of the Consortium for Constituents with Disabilities (CCD), the Disability and Aging Collaborative (DAC), and allied organizations wrote to the Administrator of the Centers for Medicare and Medicaid Services to provide feedback on implementation of the new community engagement requirements enacted by the budget reconciliation act of 2025 (H.R. 1). The comments read in part, Congress intended to exempt people with disabilities and their caregivers from the community engagement requirements. With that in mind, we urge the Administration to use guidance and rulemaking to provide maximum protection for people with disabilities, older adults, and caregivers from coverage loss or disruption. The letter may be reviewed at: https://www.c-c-d.org/fichiers/Letter-from-Aging-and-Disability-Organizations-on-Medicaid-Community-Engagement-Requirements.pdf United Spinal supported and urged members of Congress to sign on to a letter to Dr. Mehmet Oz, Administrator, Centers for Medicare & Medicaid Services with concerns about expanding the agencys Competive Bidding Program. The letter read in part, As Members of Congress committed to advancing President Trumps America First agenda, we write to express serious concern that the Centers for Medicare and Medicaid Services proposed rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program may conflict with thePresidents directives on deregulation, trade, and domestic industrial strength. We respectfully urge CMS to pause and re-evaluate these provisions to ensure that they fully align with the Administrations goal of rebuilding American manufacturing, protecting Main Street businesses, and fostering innovation. United Spinal supported and advocated for members of Congress to sign onto a letter submitted țo the Administrator of the Centers for Medicare and Medicaid Services and the Director of the Office of Management and Budget. The letter read in part, We write to express our concerns regarding the Centers for Medicare & Medicaid Services (CMS) proposed Calendar Year (CY) Home Health proposed rules inclusion of ostomy, urological, and tracheostomy supplies in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program. We respectfully request that the proposal for inclusion of these products be withdrawn as we believe it would conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. United Spinal, along with numerous other disability organizations and as members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the House Ways and Means and Energy and Commerce Committees as well as the Senate Finance Committee to encourage the leadership of the Senate and House committees of jurisdiction over the Medicare program to continue working with the Centers for Medicare and Medicaid Services (CMS) to enable Medicare beneficiaries living with disabilities and chronic obesity to access anti-obesity medications (AOMs) through the Medicare Part D program. The ITEM Coalition firmly believes that Medicare beneficiaries living with obesity, especially individuals with mobility impairments, should have equal access to the full continuum of obesity treatment options available to those living with chronic diseases such as diabetes and cardiovascular conditions, conditions where AOMs are already covered. The House letter may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/11/item-letter-to-congressional-committee-leadership-on-anti-obesity-medications-final.pdf United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition (https://itemcoalition.org/), supported a Coalitions press statement that expressed deep disappointment with a final rule that exposes Medicare patients to the lowest bidder for ostomy and urological supplies, as well as certain orthotic braces, under the Medicare program. To make matters worse, CMS accelerated the timeline and some of the changes go into effect as early as next year. The full statement may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/12/item-coalition-competitive-bidding-program-expansion-press-statement-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to express our strong support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent-as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to Senate Sponsors: ITEM Coalition Letter of Support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the House sponsors of H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, to express our strong support and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to House Sponsors: ITEM Coalition Letter of Support for H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition strongly supported the expansion of Medicare coverage of sterile intermittent catheter kits for individuals with a spinal cord injury (SCI) regardless of the level of injury and submitted comments to the Durable Medical Equipment Medicare Administrative Contractors that read in part, While we support the proposed changes to the Local Coverage Determination (LCD, specifically, DL33803), we respectfully urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to go further in the final LCD or in future LCDs to consider evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of etiology, including congenital conditions. United Spinal provided comments to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments read in part, United Spinal has long sought the physical and mental relief your proposed LCD will provide to those living with a spinal cord injury (SCI) by not requiring an individual to acquire two urinary tract infections (UTIs) within a 12-month period. Therefore, we are most pleased to comment on the proposal and to suggest how it could be expanded to further lower Americans health risks and further lower Americas healthcare costs. United Spinals policy fellow verbally commented to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments, in part read: United Spinal has long objected to the truly barbaric requirement that if you have a spinal cord injury, an SCI, you must have two urinary tract infections within twelve months before closed system Intermittent catheters will be covered. So, on behalf of those with SCIs across America, thank you for your proposed Local Coverage Determination (LCD). We do ask please that in the final LCD you clarify that having a SCI equates to immunosuppression. That will save America and countless Americans a lot of time and money. Thank you also for considering and acting favorably on the clinical evidence about the immunosuppression of those of us with a SCI. But most respectfully, there is also more you must do. We urge you to please go further in the final LCD to consider clinical evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of cause, including congenital conditions.
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
To amend title XVIII of the Social Security Act to expand practitioners eligible to furnish telehealth services under the Medicare program.
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
To amend title XVIII of the Social Security Act to expand practitioners eligible to furnish telehealth services under the Medicare program.
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
Continued to meet with congressional offices following NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). United Spinal supported S.Res.440 - A resolution designating September 2025 as National Spinal Cord Injury Awareness Month. United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal, as a member of the Disability Rehabilitation Research Coalition, along with numerous other disability organizations, signed onto a letter to the bipartisan Senate leadership. The letter read in part, The undersigned members of the Disability and Rehabilitation Research Coalition (DRRC) write to express our strong support for passage of the bipartisan Senate Committee on Appropriations Labor, Health and Human Services, Education and Related Agencies (L-HHS) fiscal year (FY) 2026 appropriations bill that includes sustained investment in disability and medical rehabilitation research programs that greatly benefit Americans living with disabilities. We urge you to fully fund these programs for the remainder of FY 2026 to continue the research thatdrives innovation in assistive technologies, informs evidence-based policies, advances medical treatments, and improves quality of life for the more than 70 million Americans living with disabilities. The letter may be reviewed at: https://drrc-coalition.org/wp-content/uploads/2025/11/drrc-letter-11.25.2025.pdf United Spinal participated in and supported the Administration for Community Livings (ACLs) The Power of Caregivers for a Healthy America: Building a Better Future Together event on Tuesday, November 18, 2025. Secretary Kennedy and Secretary Collins from the Department of Veterans Affairs also attended. As followup, United Spinal policy staff reached out to the Administration for Community Living staff to express our interest in collaborating with the Administration on its AI Caregiving Challenge that was announced at the event on how we can help involve our community in the challenge. United Spinal, along with numerous other organizations submitted a letter to the bipartisan leadership of the House of Representatives and the Senate. United Spinal has been advocating for appropriations being restored and continued for the Spinal Cord Injury Research Program historically funded through the Congressionally Directed Medical Research Programs (CDMRP). The letter read in part, we urge you to work toward the enactment of the fiscal year (FY) 2026 Defense Appropriations Act, to ensure full funding levels for the Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP). We collectively represent millions of American veterans, military retirees, military families, and civilians who benefit from the ongoing research funded by the CDMRP. https://www.hematology.org/-/media/hematology/files/advocacy/testimony-and-correspondence/2025/ash-joins-coalition-of-150-groups-urging-congress-to-enact-the-fy26-defense-appropriations-act.pdf
Choices for Increased Mobility Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
Choices for Increased Mobility Act of 2026
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
Continued to meet with congressional offices following NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). United Spinal supported S.Res.440 - A resolution designating September 2025 as National Spinal Cord Injury Awareness Month. United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal, as a member of the Disability Rehabilitation Research Coalition, along with numerous other disability organizations, signed onto a letter to the bipartisan Senate leadership. The letter read in part, The undersigned members of the Disability and Rehabilitation Research Coalition (DRRC) write to express our strong support for passage of the bipartisan Senate Committee on Appropriations Labor, Health and Human Services, Education and Related Agencies (L-HHS) fiscal year (FY) 2026 appropriations bill that includes sustained investment in disability and medical rehabilitation research programs that greatly benefit Americans living with disabilities. We urge you to fully fund these programs for the remainder of FY 2026 to continue the research thatdrives innovation in assistive technologies, informs evidence-based policies, advances medical treatments, and improves quality of life for the more than 70 million Americans living with disabilities. The letter may be reviewed at: https://drrc-coalition.org/wp-content/uploads/2025/11/drrc-letter-11.25.2025.pdf United Spinal participated in and supported the Administration for Community Livings (ACLs) The Power of Caregivers for a Healthy America: Building a Better Future Together event on Tuesday, November 18, 2025. Secretary Kennedy and Secretary Collins from the Department of Veterans Affairs also attended. As followup, United Spinal policy staff reached out to the Administration for Community Living staff to express our interest in collaborating with the Administration on its AI Caregiving Challenge that was announced at the event on how we can help involve our community in the challenge. United Spinal, along with numerous other organizations submitted a letter to the bipartisan leadership of the House of Representatives and the Senate. United Spinal has been advocating for appropriations being restored and continued for the Spinal Cord Injury Research Program historically funded through the Congressionally Directed Medical Research Programs (CDMRP). The letter read in part, we urge you to work toward the enactment of the fiscal year (FY) 2026 Defense Appropriations Act, to ensure full funding levels for the Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP). We collectively represent millions of American veterans, military retirees, military families, and civilians who benefit from the ongoing research funded by the CDMRP. https://www.hematology.org/-/media/hematology/files/advocacy/testimony-and-correspondence/2025/ash-joins-coalition-of-150-groups-urging-congress-to-enact-the-fy26-defense-appropriations-act.pdf
Mobility Means Freedom Tax Credit Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal advocated against Medicaid cuts. United Spinal asked members of Congress to sign onto letters of support with their colleagues, as part of United Spinal's virtual advocacy day urging bipartisan congressional leadership on the respective appropriations subcommittee to support increased federal funding for Spinal Cord Injury Model Systems as well as at the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. Advocate to save DOD CDMRP Spinal Cord Injury Research Program (SCIRP). The Federal Budget Resolution that was passed on 3.14.25 cut 57% - approximately $850 million - out of the Congressionally Directed Medical Research Program (CDMRP). This is a Department of Defense program that funds biomedical research programs, including spinal cord injury. United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), supported a letter the DRRC co-coordinators submitted to the Acting Director of the Office of Management and Budget about the deep concerns the members of the Coalition had with the OMB Memorandum Pausing Federal Financial Assistance (M-25-13). United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), signed onto a letter to the Office of Management and Budget, U. S. Department of Health and Human Services and the National Institutes of Health about major concerns with cuts to NIH funding through indirect cost cap. The letter read in part, The Disability & Rehabilitation Research Coalition (DRRC) appreciates and supports maximizing the federal return on investment in medical research but has serious concerns about the recently published Supplemental Guidance from the National Institutes of Health (NIH) capping indirect costs for grantees at 15 percent. This unprecedented policy change will have significant and permanent negative consequences on biomedical research, particularly the science of medical rehabilitation, disability, and chronic illness. We strongly urge you to reconsider this announcement and work with our coalition and other research organizations to chart an alternative path forward. United Spinal joined the American Association of People with Disabilities, along with numerous disability, civil rights, aging, and mental health organizations, in submitting a letter expressing deep concerns about the plan to re-organize the Department of Health and Human Services. especially the plan to eliminate the Administration for CommunityLiving (ACL) and split its functions across three other agencies, as well as the consolidation of the Office for Civil Rights (OCR) and Substance Abuse and Mental Health Services Agency (SAMHSA). United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), signed onto a letter to urge and meet with HHS Secretary Kennedy to reconsider plans to dismantle the Administration for Community Living (ACL), including the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR), in order to meet with national disability, rehabilitation, and other stakeholder organizations to discuss the future of ACL, and seriously reconsider the reorganization of this essential government agency for older Americans and individuals with disabilities. As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal endorsed comments submitted to the Office of Management and Budget (OMB) about OMB Memorandum Pausing Federal Financial Assistance (M-25-13). United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), wrote to commend the National Institutes of Health (NIH) and the Division of Program Coordination, Planning, and Strategic Initiatives (DPCPSI) for their work to improve disability research across NIH on behalf of the one in four Americans with disabilities. Supporting disability research and investing in training the next generation of disability researchers must be a central goal at NIH given the critical need for biomedical, functional, and outcomes research. United Spinal, as members of the Disability and Aging Collaborative (DAC), the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations wrote to the bipartisan leadership of the House Energy and Commerce Committee to urge excluding Medicaid cuts, work requirements, or any changes that limit funding or eligibility, from budget reconciliation or other legislation. The letter read in part, People with disabilities, older adults, family caregivers and their children, direct care workers, and other low-income individuals and families depend on Medicaid every day for their health, safety, and independence. Medicaid enables them to go to work and to care for their loved ones. It is our communities' lifeline, and we cannot afford for any part of it to be cut. United Spinal advocacy and policy staff met with staff for Sen. Tammy Duckworth (D-IL) to discuss legislation to address wheelchair repair issues, as well as an appropriations letter for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal advocacy and policy staff met with House and Senate to discuss signing an appropriations letter in support of the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal advocacy and policy staff signed a CCD co-chairs statement expressing dismay and concern about the reorganization of the Department of Health and Human Services. United Spinal supports H.R. 2320, the Mobility Means Freedom Tax Credit Act.
Disability Access to Transportation Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to advocate for H.R. 4116 Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities. https://www.congress.gov/bill/119th-congress/house-bill/4116/text?s=3&r=1 United Spinal, along with numerous other disability organizations as members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and fellow advocates in a letter urged the bipartisan leadership of the bicameral committees with jurisdiction in vehicle safety to consider and prioritize the safety and access needs of disabled passengers and pedestrians in any stand-alone autonomous vehicle (AV) legislation or surface transportation provisions. Recommendations in this letter reference Congressman Lattas 2023 SELF DRIVE Act discussion draft (SELF DRIVE Act Draft) and Congresswoman Dingells AV framework proposal (AV Framework Proposal). We recognize Representative Dingell and Lattas leadership of the Congressional Autonomous Vehicle Caucus and are grateful for their acknowledgement that disability rights advocates must be at the table as AV frameworks are developed. We are also providing Disability Access in AVs and Motor Vehicles draft bill text (Access in AVs Draft) for your consideration. The letter may be reviewed at: https://www.c-c-d.org/fichiers/Disability-AV-Leg-Priorities-Hill-Letter-122325.pdf United Spinal policy staff participated in the National Highway Traffic Safety Administrations (NHTSAs) Safety Research Portfolio Public Meeting in Washington, D. C. in November. Discussed the research opportunities for the United Spinal Associations SecureRide Coalitions automated wheelchair securement system. Policy staff followed up with NHTSA and Department of Transportation officials after the meetings. United Spinal policy staff provided feedback to members of Congress on potential legislation that would improve access to parking lots, especially for wheelchair users through data collection and an accessible parking standards analysis by the Government Accountability Office. United Spinal staff discussed potential legislative options to provide federal research with congressional staff to further develop automated securement for wheelchairs in motor vehicles. This would significantly improve the safety and independence of wheelchair users. United Spinal policy staff discussed highlighting United Spinals SecureRide automated wheelchair securement system initiative with National Council on Disability (NCD) staff to advance safer more independent wheelchair securement across all modes of transportation at a forthcoming autonomous vehicle industry meeting. United Spinals SecureRide initiative was highlighted in the NCDs recent report on ground transportation as a potential accessibility solution for automated vehicles. Currently most wheelchair users must rely on additional human assistance to secure their wheelchairs. The Report can be accessed here: https://www.ncd.gov/report/ground-transportation-for-people-with-mobility-disabilities-2025-challenges-and-progress/. United Spinal submitted comments in response to the Department of Transportations Request for Information: Research Ideas to Support Nationwide Automated Vehicle Deployment (DOT-OST-2025-1029-0038). The letter addressed safe wheelchair securement in motor vehicles and infrastructure needs. The letter read in part, For the nations 5.5 million wheelchair users, autonomous vehicles will be a game-changer, not only in meeting daily transportation needs but in vastly improving quality of lives. That includes fulfilling employment or education needs, healthcare and fitness needs but also civic and recreational opportunities. It will enrich families and social activities. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0038/attachment_1.pdf United Spinal supported comments submitted by the the Autonomous Vehicle Industry Association (AVIA) in response to the U.S.Department of Transportations (USDOT) Office of the Assistant Secretary for Research and Technologys (OST-R) Request for Information (RFI) on Research Ideas To Support Nationwide Automated Vehicle (AV) Deployment. As the leading organization focused on the development and deployment of autonomous vehicles (AVs), AVIA appreciates the USDOTs interest in coordinating research to support the nationwide deployment of automated driving system- (ADS) equipped transportation technology. AVs are a key emerging transportation technology, and the United States continues to lead the world on AV advancement. Further research and development of AV technologies-while simultaneously accelerating safe AV deployment across the country-can help ensure the United States maintains this leadership in the years and decades to come. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0026/attachment_1.pdf United Spinal supported comments submitted by the co-chairs of the Consortium for Constituents with Disabilities (CCD) Transportation on the proposed questions regarding research ideas to support nationwide automated vehicle deployment in response to the request for information (DOT-OST-2025-1029).The comments read part, further research is especially needed on developing independent, automated wheelchair and mobility device securement and activation of ramps or lifts. One area of research entails expanding the use of universal docking systems, such as a deployable anchor that automatically attaches to a users wheelchair or mobility device. Such restraint and securement standards could be expanded to personal vehicles for wheelchair users who drive, as well as to paratransit and rideshare service vans. This research ultimately could influence the development of independent securement standards across a wide range of transportation modes, including rail, air travel, or shuttles, in which people who use mobility devices currently have less access and safety than people without disabilities. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0037/attachment_1.pdf United Spinal supported comments submitted by the Disability Rights Education and Defense Fund (DREDF) which submitted comments in response to the Office of the Assistant Secretary for Research and Technologys request for information regarding research ideas to support nationwide automated vehicle (AV) deployment. United Spinals SecureRide Coalitions automated wheelchair securement system research needs are reflected in DREDFs AV research priorities. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0044/attachment_1.pdf United Spinal policy staff connected with a Department of Transportation official about our SecureRide Coalitions interest in providing the Department an informational update on the Coalitions automated wheelchair securement system initiative.
CONNECT for Health Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
Continued to meet with congressional offices following NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). United Spinal supported S.Res.440 - A resolution designating September 2025 as National Spinal Cord Injury Awareness Month. United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal, as a member of the Disability Rehabilitation Research Coalition, along with numerous other disability organizations, signed onto a letter to the bipartisan Senate leadership. The letter read in part, The undersigned members of the Disability and Rehabilitation Research Coalition (DRRC) write to express our strong support for passage of the bipartisan Senate Committee on Appropriations Labor, Health and Human Services, Education and Related Agencies (L-HHS) fiscal year (FY) 2026 appropriations bill that includes sustained investment in disability and medical rehabilitation research programs that greatly benefit Americans living with disabilities. We urge you to fully fund these programs for the remainder of FY 2026 to continue the research thatdrives innovation in assistive technologies, informs evidence-based policies, advances medical treatments, and improves quality of life for the more than 70 million Americans living with disabilities. The letter may be reviewed at: https://drrc-coalition.org/wp-content/uploads/2025/11/drrc-letter-11.25.2025.pdf United Spinal participated in and supported the Administration for Community Livings (ACLs) The Power of Caregivers for a Healthy America: Building a Better Future Together event on Tuesday, November 18, 2025. Secretary Kennedy and Secretary Collins from the Department of Veterans Affairs also attended. As followup, United Spinal policy staff reached out to the Administration for Community Living staff to express our interest in collaborating with the Administration on its AI Caregiving Challenge that was announced at the event on how we can help involve our community in the challenge. United Spinal, along with numerous other organizations submitted a letter to the bipartisan leadership of the House of Representatives and the Senate. United Spinal has been advocating for appropriations being restored and continued for the Spinal Cord Injury Research Program historically funded through the Congressionally Directed Medical Research Programs (CDMRP). The letter read in part, we urge you to work toward the enactment of the fiscal year (FY) 2026 Defense Appropriations Act, to ensure full funding levels for the Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP). We collectively represent millions of American veterans, military retirees, military families, and civilians who benefit from the ongoing research funded by the CDMRP. https://www.hematology.org/-/media/hematology/files/advocacy/testimony-and-correspondence/2025/ash-joins-coalition-of-150-groups-urging-congress-to-enact-the-fy26-defense-appropriations-act.pdf
Medicare Orthotics and Prosthetics Patient-Centered Care Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
Medicare Orthotics and Prosthetics Patient-Centered Care Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal, as a member of the Health and Long-Term Services and Supports Task force of the Consortium for Constituents with Disabilities (CCD), the Disability and Aging Collaborative (DAC), and allied organizations wrote to the Administrator of the Centers for Medicare and Medicaid Services to provide feedback on implementation of the new community engagement requirements enacted by the budget reconciliation act of 2025 (H.R. 1). The comments read in part, Congress intended to exempt people with disabilities and their caregivers from the community engagement requirements. With that in mind, we urge the Administration to use guidance and rulemaking to provide maximum protection for people with disabilities, older adults, and caregivers from coverage loss or disruption. The letter may be reviewed at: https://www.c-c-d.org/fichiers/Letter-from-Aging-and-Disability-Organizations-on-Medicaid-Community-Engagement-Requirements.pdf United Spinal supported and urged members of Congress to sign on to a letter to Dr. Mehmet Oz, Administrator, Centers for Medicare & Medicaid Services with concerns about expanding the agencys Competive Bidding Program. The letter read in part, As Members of Congress committed to advancing President Trumps America First agenda, we write to express serious concern that the Centers for Medicare and Medicaid Services proposed rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program may conflict with thePresidents directives on deregulation, trade, and domestic industrial strength. We respectfully urge CMS to pause and re-evaluate these provisions to ensure that they fully align with the Administrations goal of rebuilding American manufacturing, protecting Main Street businesses, and fostering innovation. United Spinal supported and advocated for members of Congress to sign onto a letter submitted țo the Administrator of the Centers for Medicare and Medicaid Services and the Director of the Office of Management and Budget. The letter read in part, We write to express our concerns regarding the Centers for Medicare & Medicaid Services (CMS) proposed Calendar Year (CY) Home Health proposed rules inclusion of ostomy, urological, and tracheostomy supplies in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program. We respectfully request that the proposal for inclusion of these products be withdrawn as we believe it would conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. United Spinal, along with numerous other disability organizations and as members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the House Ways and Means and Energy and Commerce Committees as well as the Senate Finance Committee to encourage the leadership of the Senate and House committees of jurisdiction over the Medicare program to continue working with the Centers for Medicare and Medicaid Services (CMS) to enable Medicare beneficiaries living with disabilities and chronic obesity to access anti-obesity medications (AOMs) through the Medicare Part D program. The ITEM Coalition firmly believes that Medicare beneficiaries living with obesity, especially individuals with mobility impairments, should have equal access to the full continuum of obesity treatment options available to those living with chronic diseases such as diabetes and cardiovascular conditions, conditions where AOMs are already covered. The House letter may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/11/item-letter-to-congressional-committee-leadership-on-anti-obesity-medications-final.pdf United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition (https://itemcoalition.org/), supported a Coalitions press statement that expressed deep disappointment with a final rule that exposes Medicare patients to the lowest bidder for ostomy and urological supplies, as well as certain orthotic braces, under the Medicare program. To make matters worse, CMS accelerated the timeline and some of the changes go into effect as early as next year. The full statement may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/12/item-coalition-competitive-bidding-program-expansion-press-statement-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to express our strong support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent-as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to Senate Sponsors: ITEM Coalition Letter of Support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the House sponsors of H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, to express our strong support and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to House Sponsors: ITEM Coalition Letter of Support for H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition strongly supported the expansion of Medicare coverage of sterile intermittent catheter kits for individuals with a spinal cord injury (SCI) regardless of the level of injury and submitted comments to the Durable Medical Equipment Medicare Administrative Contractors that read in part, While we support the proposed changes to the Local Coverage Determination (LCD, specifically, DL33803), we respectfully urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to go further in the final LCD or in future LCDs to consider evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of etiology, including congenital conditions. United Spinal provided comments to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments read in part, United Spinal has long sought the physical and mental relief your proposed LCD will provide to those living with a spinal cord injury (SCI) by not requiring an individual to acquire two urinary tract infections (UTIs) within a 12-month period. Therefore, we are most pleased to comment on the proposal and to suggest how it could be expanded to further lower Americans health risks and further lower Americas healthcare costs. United Spinals policy fellow verbally commented to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments, in part read: United Spinal has long objected to the truly barbaric requirement that if you have a spinal cord injury, an SCI, you must have two urinary tract infections within twelve months before closed system Intermittent catheters will be covered. So, on behalf of those with SCIs across America, thank you for your proposed Local Coverage Determination (LCD). We do ask please that in the final LCD you clarify that having a SCI equates to immunosuppression. That will save America and countless Americans a lot of time and money. Thank you also for considering and acting favorably on the clinical evidence about the immunosuppression of those of us with a SCI. But most respectfully, there is also more you must do. We urge you to please go further in the final LCD to consider clinical evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of cause, including congenital conditions.
Transformation to Competitive Integrated Employment Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports H. R. 4771/ S. 2438, the Transformation to Competitive Integrated Employment Act, which phases out the payment of subminimum wages under Section 14(c) of the FLSA over a five-year period. This legislation provides States, service providers, subminimum wage certificate holders, and other agencies with the resources they need to create competitive integrated employment service delivery models and the inclusive wraparound services that some e disabilities will need when subminimum wages are phased out. This legislation will align the treatment of workers with disabilities with existing federal policies.
CONNECT for Health Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
Medicare Orthotics and Prosthetics Patient-Centered Care Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
Medicare Orthotics and Prosthetics Patient-Centered Care Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal, as a member of the Health and Long-Term Services and Supports Task force of the Consortium for Constituents with Disabilities (CCD), the Disability and Aging Collaborative (DAC), and allied organizations wrote to the Administrator of the Centers for Medicare and Medicaid Services to provide feedback on implementation of the new community engagement requirements enacted by the budget reconciliation act of 2025 (H.R. 1). The comments read in part, Congress intended to exempt people with disabilities and their caregivers from the community engagement requirements. With that in mind, we urge the Administration to use guidance and rulemaking to provide maximum protection for people with disabilities, older adults, and caregivers from coverage loss or disruption. The letter may be reviewed at: https://www.c-c-d.org/fichiers/Letter-from-Aging-and-Disability-Organizations-on-Medicaid-Community-Engagement-Requirements.pdf United Spinal supported and urged members of Congress to sign on to a letter to Dr. Mehmet Oz, Administrator, Centers for Medicare & Medicaid Services with concerns about expanding the agencys Competive Bidding Program. The letter read in part, As Members of Congress committed to advancing President Trumps America First agenda, we write to express serious concern that the Centers for Medicare and Medicaid Services proposed rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program may conflict with thePresidents directives on deregulation, trade, and domestic industrial strength. We respectfully urge CMS to pause and re-evaluate these provisions to ensure that they fully align with the Administrations goal of rebuilding American manufacturing, protecting Main Street businesses, and fostering innovation. United Spinal supported and advocated for members of Congress to sign onto a letter submitted țo the Administrator of the Centers for Medicare and Medicaid Services and the Director of the Office of Management and Budget. The letter read in part, We write to express our concerns regarding the Centers for Medicare & Medicaid Services (CMS) proposed Calendar Year (CY) Home Health proposed rules inclusion of ostomy, urological, and tracheostomy supplies in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program. We respectfully request that the proposal for inclusion of these products be withdrawn as we believe it would conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. United Spinal, along with numerous other disability organizations and as members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the House Ways and Means and Energy and Commerce Committees as well as the Senate Finance Committee to encourage the leadership of the Senate and House committees of jurisdiction over the Medicare program to continue working with the Centers for Medicare and Medicaid Services (CMS) to enable Medicare beneficiaries living with disabilities and chronic obesity to access anti-obesity medications (AOMs) through the Medicare Part D program. The ITEM Coalition firmly believes that Medicare beneficiaries living with obesity, especially individuals with mobility impairments, should have equal access to the full continuum of obesity treatment options available to those living with chronic diseases such as diabetes and cardiovascular conditions, conditions where AOMs are already covered. The House letter may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/11/item-letter-to-congressional-committee-leadership-on-anti-obesity-medications-final.pdf United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition (https://itemcoalition.org/), supported a Coalitions press statement that expressed deep disappointment with a final rule that exposes Medicare patients to the lowest bidder for ostomy and urological supplies, as well as certain orthotic braces, under the Medicare program. To make matters worse, CMS accelerated the timeline and some of the changes go into effect as early as next year. The full statement may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/12/item-coalition-competitive-bidding-program-expansion-press-statement-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to express our strong support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent-as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to Senate Sponsors: ITEM Coalition Letter of Support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the House sponsors of H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, to express our strong support and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to House Sponsors: ITEM Coalition Letter of Support for H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition strongly supported the expansion of Medicare coverage of sterile intermittent catheter kits for individuals with a spinal cord injury (SCI) regardless of the level of injury and submitted comments to the Durable Medical Equipment Medicare Administrative Contractors that read in part, While we support the proposed changes to the Local Coverage Determination (LCD, specifically, DL33803), we respectfully urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to go further in the final LCD or in future LCDs to consider evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of etiology, including congenital conditions. United Spinal provided comments to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments read in part, United Spinal has long sought the physical and mental relief your proposed LCD will provide to those living with a spinal cord injury (SCI) by not requiring an individual to acquire two urinary tract infections (UTIs) within a 12-month period. Therefore, we are most pleased to comment on the proposal and to suggest how it could be expanded to further lower Americans health risks and further lower Americas healthcare costs. United Spinals policy fellow verbally commented to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments, in part read: United Spinal has long objected to the truly barbaric requirement that if you have a spinal cord injury, an SCI, you must have two urinary tract infections within twelve months before closed system Intermittent catheters will be covered. So, on behalf of those with SCIs across America, thank you for your proposed Local Coverage Determination (LCD). We do ask please that in the final LCD you clarify that having a SCI equates to immunosuppression. That will save America and countless Americans a lot of time and money. Thank you also for considering and acting favorably on the clinical evidence about the immunosuppression of those of us with a SCI. But most respectfully, there is also more you must do. We urge you to please go further in the final LCD to consider clinical evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of cause, including congenital conditions.
Transformation to Competitive Integrated Employment Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports H. R. 4771/ S. 2438, the Transformation to Competitive Integrated Employment Act, which phases out the payment of subminimum wages under Section 14(c) of the FLSA over a five-year period. This legislation provides States, service providers, subminimum wage certificate holders, and other agencies with the resources they need to create competitive integrated employment service delivery models and the inclusive wraparound services that some e disabilities will need when subminimum wages are phased out. This legislation will align the treatment of workers with disabilities with existing federal policies.
Choices for Increased Mobility Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
Choices for Increased Mobility Act of 2025
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
Continued to meet with congressional offices following NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). United Spinal supported S.Res.440 - A resolution designating September 2025 as National Spinal Cord Injury Awareness Month. United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal, as a member of the Disability Rehabilitation Research Coalition, along with numerous other disability organizations, signed onto a letter to the bipartisan Senate leadership. The letter read in part, The undersigned members of the Disability and Rehabilitation Research Coalition (DRRC) write to express our strong support for passage of the bipartisan Senate Committee on Appropriations Labor, Health and Human Services, Education and Related Agencies (L-HHS) fiscal year (FY) 2026 appropriations bill that includes sustained investment in disability and medical rehabilitation research programs that greatly benefit Americans living with disabilities. We urge you to fully fund these programs for the remainder of FY 2026 to continue the research thatdrives innovation in assistive technologies, informs evidence-based policies, advances medical treatments, and improves quality of life for the more than 70 million Americans living with disabilities. The letter may be reviewed at: https://drrc-coalition.org/wp-content/uploads/2025/11/drrc-letter-11.25.2025.pdf United Spinal participated in and supported the Administration for Community Livings (ACLs) The Power of Caregivers for a Healthy America: Building a Better Future Together event on Tuesday, November 18, 2025. Secretary Kennedy and Secretary Collins from the Department of Veterans Affairs also attended. As followup, United Spinal policy staff reached out to the Administration for Community Living staff to express our interest in collaborating with the Administration on its AI Caregiving Challenge that was announced at the event on how we can help involve our community in the challenge. United Spinal, along with numerous other organizations submitted a letter to the bipartisan leadership of the House of Representatives and the Senate. United Spinal has been advocating for appropriations being restored and continued for the Spinal Cord Injury Research Program historically funded through the Congressionally Directed Medical Research Programs (CDMRP). The letter read in part, we urge you to work toward the enactment of the fiscal year (FY) 2026 Defense Appropriations Act, to ensure full funding levels for the Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP). We collectively represent millions of American veterans, military retirees, military families, and civilians who benefit from the ongoing research funded by the CDMRP. https://www.hematology.org/-/media/hematology/files/advocacy/testimony-and-correspondence/2025/ash-joins-coalition-of-150-groups-urging-congress-to-enact-the-fy26-defense-appropriations-act.pdf
A resolution designating September 2025 as "National Spinal Cord Injury Awareness Month".
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
Continued to meet with congressional offices following NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). United Spinal supported S.Res.440 - A resolution designating September 2025 as National Spinal Cord Injury Awareness Month. United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal, as a member of the Disability Rehabilitation Research Coalition, along with numerous other disability organizations, signed onto a letter to the bipartisan Senate leadership. The letter read in part, The undersigned members of the Disability and Rehabilitation Research Coalition (DRRC) write to express our strong support for passage of the bipartisan Senate Committee on Appropriations Labor, Health and Human Services, Education and Related Agencies (L-HHS) fiscal year (FY) 2026 appropriations bill that includes sustained investment in disability and medical rehabilitation research programs that greatly benefit Americans living with disabilities. We urge you to fully fund these programs for the remainder of FY 2026 to continue the research thatdrives innovation in assistive technologies, informs evidence-based policies, advances medical treatments, and improves quality of life for the more than 70 million Americans living with disabilities. The letter may be reviewed at: https://drrc-coalition.org/wp-content/uploads/2025/11/drrc-letter-11.25.2025.pdf United Spinal participated in and supported the Administration for Community Livings (ACLs) The Power of Caregivers for a Healthy America: Building a Better Future Together event on Tuesday, November 18, 2025. Secretary Kennedy and Secretary Collins from the Department of Veterans Affairs also attended. As followup, United Spinal policy staff reached out to the Administration for Community Living staff to express our interest in collaborating with the Administration on its AI Caregiving Challenge that was announced at the event on how we can help involve our community in the challenge. United Spinal, along with numerous other organizations submitted a letter to the bipartisan leadership of the House of Representatives and the Senate. United Spinal has been advocating for appropriations being restored and continued for the Spinal Cord Injury Research Program historically funded through the Congressionally Directed Medical Research Programs (CDMRP). The letter read in part, we urge you to work toward the enactment of the fiscal year (FY) 2026 Defense Appropriations Act, to ensure full funding levels for the Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP). We collectively represent millions of American veterans, military retirees, military families, and civilians who benefit from the ongoing research funded by the CDMRP. https://www.hematology.org/-/media/hematology/files/advocacy/testimony-and-correspondence/2025/ash-joins-coalition-of-150-groups-urging-congress-to-enact-the-fy26-defense-appropriations-act.pdf
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024. United Spinal co-led and participated in virtual events with a coalition of disability organizations and the Service Employees International Union, inviting members of Congress and their staffs to learn about the importance of urging the US Department of Transportation to finalize its rule to ensure the safety and dignity of wheelchair users in air travel.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act/ S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024. United Spinal co-led and participated in virtual events with a coalition of disability organizations and the Service Employees International Union, inviting members of Congress and their staffs to learn about the importance of urging the US Department of Transportation to finalize its rule to ensure the safety and dignity of wheelchair users in air travel.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024. United Spinal co-led and participated in virtual events with a coalition of disability organizations and the Service Employees International Union, inviting members of Congress and their staffs to learn about the importance of urging the US Department of Transportation to finalize its rule to ensure the safety and dignity of wheelchair users in air travel.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024. United Spinal co-led and participated in virtual events with a coalition of disability organizations and the Service Employees International Union, inviting members of Congress and their staffs to learn about the importance of urging the US Department of Transportation to finalize its rule to ensure the safety and dignity of wheelchair users in air travel.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act/ S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Good Jobs for Good Airports Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act/ S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Communications, Video, and Technology Accessibility Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
Choices for Increased Mobility Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal met with staff for the Senate Aging Committee to discuss next steps to increase funding for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal seeks legislative or report language directing the National Institute of Disability, Independent Living and Rehabilitation Research (NIDILRR) and the National Institute of Neurological Disorders and Stroke (NINDS) to collaboratively conduct a pilot program measuring the potential beneficial health and functional short- and long-term outcomes and health cost savings achieved from extended lengths of stay in initial traumatic spinal cord injury (SCI) rehabilitation settings by employing needed technologies and enhancing consumer training. United Spinal Association supports "Connect For Health Act" which protects and extends Medicare reimbursement for telehealth. United Spinal supports legislation to improve wheelchair service repair and reform. United Spinal supports Medicare coverage for transanal irrigation for bowel management for individuals with neurogenic bowel. United Spinal supports Choices for Increased Mobility Act, H.R. 5371/S.5154 that will allow Medicare beneficiaries to obtain access to titanium and carbon fiber wheelchair frames. Congress must act to reinstate beneficiaries ability to upgrade to titanium and carbon fiber wheelchairs, at their own cost, if they so wish. Spoke with Senator Marco Rubio (R-FL) on the continuation of recognizing September's Spinal Cord Injury Awareness Month along with Sen. Tammy Baldwin (D-WI, now that Sen. Rubio has been nominated as Secretary of State. As a member of the Disability & Rehabilitation Research Coalition, United Spinal signed onto comments in response to the Request for Information (RFI): Eunice Kennedy Shriver National Institute of Child Health and Human Developments (NICHD) Strategic Plan for 2025-2029 (NOT-HD-24-028). Following the September implantable brain computer interface collaborative workshop at the U.S. Food and Drug Administration, United Spinal participated in workshop meetings with FDA staff and other stakeholders through the Fall. United Spinal Association endorsed a Coalition to Preserve Rehabilitation/Habilitation Benefits Coalition letter to the Center for Consumer Information and Insurance Oversight (CCIIO) at CMS about possible solutions to therapy caps.
Choices for Increased Mobility Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal met with staff for the Senate Aging Committee to discuss next steps to increase funding for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal seeks legislative or report language directing the National Institute of Disability, Independent Living and Rehabilitation Research (NIDILRR) and the National Institute of Neurological Disorders and Stroke (NINDS) to collaboratively conduct a pilot program measuring the potential beneficial health and functional short- and long-term outcomes and health cost savings achieved from extended lengths of stay in initial traumatic spinal cord injury (SCI) rehabilitation settings by employing needed technologies and enhancing consumer training. United Spinal Association supports "Connect For Health Act" which protects and extends Medicare reimbursement for telehealth. United Spinal supports legislation to improve wheelchair service repair and reform. United Spinal supports Medicare coverage for transanal irrigation for bowel management for individuals with neurogenic bowel. United Spinal supports Choices for Increased Mobility Act, H.R. 5371/S.5154 that will allow Medicare beneficiaries to obtain access to titanium and carbon fiber wheelchair frames. Congress must act to reinstate beneficiaries ability to upgrade to titanium and carbon fiber wheelchairs, at their own cost, if they so wish. Spoke with Senator Marco Rubio (R-FL) on the continuation of recognizing September's Spinal Cord Injury Awareness Month along with Sen. Tammy Baldwin (D-WI, now that Sen. Rubio has been nominated as Secretary of State. As a member of the Disability & Rehabilitation Research Coalition, United Spinal signed onto comments in response to the Request for Information (RFI): Eunice Kennedy Shriver National Institute of Child Health and Human Developments (NICHD) Strategic Plan for 2025-2029 (NOT-HD-24-028). Following the September implantable brain computer interface collaborative workshop at the U.S. Food and Drug Administration, United Spinal participated in workshop meetings with FDA staff and other stakeholders through the Fall. United Spinal Association endorsed a Coalition to Preserve Rehabilitation/Habilitation Benefits Coalition letter to the Center for Consumer Information and Insurance Oversight (CCIIO) at CMS about possible solutions to therapy caps.
United Spinal staff participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal staff participated in a meeting with Amtrak to review their plans for their replacement long-distance trainsets. United Spinal staff met with DOT staff to provide information about the results of United Spinals data gathering efforts regarding the availability of accessible parking spaces in different states and urging DOT to support updating the current ADA minimum standards for the number of accessible parking spaces required in lots and garages. House Senate United Spinal supported the accessibility provisions in, H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). https://www.congress.gov/bill/118th-congress/house-bill/7126/all-info?s=1&r=3 Department of Labor Department of Transportation United Spinal contributed comments and responded to comments of others in an IdeaScale: Dialogue about Exploring the Future of Public Transportation Research: A National Online Dialogue Comments in part included topic about research keeping pace with the continuing development of technologies that could improve accessibility for people with disabilities. Department of Transportation United Spinal supported the Department of Transportations future initiative to address the substantive issues involved with the service animal rule. The comments read in part, We request that as soon as possible you also convene meetings and conduct outreach throughout the disability community ,including wheelchair users, to address issues specific to the usefulness of the form, its role in the equitable air travel rights and responsibilities of passengers with disabilities as well as evaluating how well the current regulatory environment assist individuals using service animals in air travel. Department of Transportation United Spinal, along with numerous other disability organizations, as members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force signed on to comments on the Department of Transportations request for information (RFI) on accessibility improvements for transportation facilities, Docket No: DOT-OST-2023-0166. United Spinal submitted our own comments to the U. S. Department of Transportations (DOT) request for information on accessibility improvements for transportation facilities, Docket No: DOT-OST-2023-0166. The comments read in part: United Spinal contributed to and wholeheartedly supports the comments submitted by the Consortium for Constituents with Disabilities (CCD) in response to this RFI. We wish to further comment on some topics specifically from the perspective of the wheelchair user. Department of Transportation United Spinal, as a member of the SecureRide Coalition, helped draft and signed a letter to Tool, Inc., a company that has submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment. The letter read in part: The SecureRide Coalition strongly supports Tool, Inc.s application for the U. S. Department of Transportations (DOT) Phase I Small Business Innovation Research (SBIR) 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment. Due to the obvious efficiencies that can be achieved by employing integrated research, design and development methodologies with the two essential components of a wheelchair securement system, SecureRide also fully supports Tool., Inc.s SBIR application, 24-NH6: Anchor Design for Universal Docking Interface Geometry. National Highway Traffic Safety Administration United Spinal, as a member of SecureRide, met with National Highway TrafficSafety Administration officials in the Human Factors/Engineering Integration Division to discuss coordination of development of safe wheelchair securement standards. United Spinal Association appreciated the opportunity to provide comments on the Department of Transportations (DOT) renewal of the Service Animal Behavior and Health Attestation Form and supported the Department of Transportations future initiative to address the substantive issues involved with the service animal rule. The comments read in part, We request that as soon as possible you also convene meetings and conduct outreach throughout the disability community, including wheelchair users, to address issues specific to the usefulness of the form, its role in the equitable air travel rights and responsibilities of passengers with disabilities as well as evaluating how well the current regulatory environment assist individuals using service animals in air travel.
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act/ S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
AID Local Government Leadership Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports the accessibility provisions in, H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act, introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supported the accessibility provisions in H.R. 7389 / S. 3748, Accessible Voting Act of 2024, introduced respectively by Representative Mary Gay Scanlon (D-PA-5) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supports the accessibility provisions in H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act (the AID Local Government Act) introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal participated in White House Office of Public Engagement Aging and Disability Communities Calls on 2.29.24, 3/7/2024, 3/21/24. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD), signed on to comments the CCD submitted in response to the Department of Justices request, Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities (DOJ-CRT-2024-0001). United Spinal also submitted our own comments on the above opportunity, DOJ-CRT-2024-0001-0001. The comments read in part, United Spinal Association supports DOJs efforts to apply specific requirements to accessible medical equipment. Inaccessible MDE effectively excludes certain people with disabilities from accessing routine examinations and specialized medical care. United Spinal participated in the National Council on Disabilitys virtual discussion about ground transportation for wheelchair users, sharing our lived experiences with the barriers commonly encountered. United Spinal staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community.
AID Local Government Leadership Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
Removing Access Barriers to Running for Elected Office for People with Disabilities Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
Removing Access Barriers to Running for Elected Office for People with Disabilities Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports the accessibility provisions in, H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act, introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supported the accessibility provisions in H.R. 7389 / S. 3748, Accessible Voting Act of 2024, introduced respectively by Representative Mary Gay Scanlon (D-PA-5) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supports the accessibility provisions in H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act (the AID Local Government Act) introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal participated in White House Office of Public Engagement Aging and Disability Communities Calls on 2.29.24, 3/7/2024, 3/21/24. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD), signed on to comments the CCD submitted in response to the Department of Justices request, Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities (DOJ-CRT-2024-0001). United Spinal also submitted our own comments on the above opportunity, DOJ-CRT-2024-0001-0001. The comments read in part, United Spinal Association supports DOJs efforts to apply specific requirements to accessible medical equipment. Inaccessible MDE effectively excludes certain people with disabilities from accessing routine examinations and specialized medical care. United Spinal participated in the National Council on Disabilitys virtual discussion about ground transportation for wheelchair users, sharing our lived experiences with the barriers commonly encountered. United Spinal staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community.
Accessible Voting Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports the accessibility provisions in, H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act, introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supported the accessibility provisions in H.R. 7389 / S. 3748, Accessible Voting Act of 2024, introduced respectively by Representative Mary Gay Scanlon (D-PA-5) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supports the accessibility provisions in H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act (the AID Local Government Act) introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal participated in White House Office of Public Engagement Aging and Disability Communities Calls on 2.29.24, 3/7/2024, 3/21/24. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD), signed on to comments the CCD submitted in response to the Department of Justices request, Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities (DOJ-CRT-2024-0001). United Spinal also submitted our own comments on the above opportunity, DOJ-CRT-2024-0001-0001. The comments read in part, United Spinal Association supports DOJs efforts to apply specific requirements to accessible medical equipment. Inaccessible MDE effectively excludes certain people with disabilities from accessing routine examinations and specialized medical care. United Spinal participated in the National Council on Disabilitys virtual discussion about ground transportation for wheelchair users, sharing our lived experiences with the barriers commonly encountered. United Spinal staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community.
Accessible Voting Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act/ S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
FAA Reauthorization Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
Communications, Video, and Technology Accessibility Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
Removing Access Barriers to Running for Elected Office for People with Disabilities Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports the accessibility provisions in, H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act, introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supported the accessibility provisions in H.R. 7389 / S. 3748, Accessible Voting Act of 2024, introduced respectively by Representative Mary Gay Scanlon (D-PA-5) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supports the accessibility provisions in H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act (the AID Local Government Act) introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal participated in White House Office of Public Engagement Aging and Disability Communities Calls on 2.29.24, 3/7/2024, 3/21/24. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD), signed on to comments the CCD submitted in response to the Department of Justices request, Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities (DOJ-CRT-2024-0001). United Spinal also submitted our own comments on the above opportunity, DOJ-CRT-2024-0001-0001. The comments read in part, United Spinal Association supports DOJs efforts to apply specific requirements to accessible medical equipment. Inaccessible MDE effectively excludes certain people with disabilities from accessing routine examinations and specialized medical care. United Spinal participated in the National Council on Disabilitys virtual discussion about ground transportation for wheelchair users, sharing our lived experiences with the barriers commonly encountered. United Spinal staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community.
Removing Access Barriers to Running for Elected Office for People with Disabilities Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
Accessible Voting Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports the accessibility provisions in, H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act, introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supported the accessibility provisions in H.R. 7389 / S. 3748, Accessible Voting Act of 2024, introduced respectively by Representative Mary Gay Scanlon (D-PA-5) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supports the accessibility provisions in H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act (the AID Local Government Act) introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal participated in White House Office of Public Engagement Aging and Disability Communities Calls on 2.29.24, 3/7/2024, 3/21/24. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD), signed on to comments the CCD submitted in response to the Department of Justices request, Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities (DOJ-CRT-2024-0001). United Spinal also submitted our own comments on the above opportunity, DOJ-CRT-2024-0001-0001. The comments read in part, United Spinal Association supports DOJs efforts to apply specific requirements to accessible medical equipment. Inaccessible MDE effectively excludes certain people with disabilities from accessing routine examinations and specialized medical care. United Spinal participated in the National Council on Disabilitys virtual discussion about ground transportation for wheelchair users, sharing our lived experiences with the barriers commonly encountered. United Spinal staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community.
Accessible Voting Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
AID Local Government Leadership Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports the accessibility provisions in, H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act, introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supported the accessibility provisions in H.R. 7389 / S. 3748, Accessible Voting Act of 2024, introduced respectively by Representative Mary Gay Scanlon (D-PA-5) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supports the accessibility provisions in H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act (the AID Local Government Act) introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal participated in White House Office of Public Engagement Aging and Disability Communities Calls on 2.29.24, 3/7/2024, 3/21/24. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD), signed on to comments the CCD submitted in response to the Department of Justices request, Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities (DOJ-CRT-2024-0001). United Spinal also submitted our own comments on the above opportunity, DOJ-CRT-2024-0001-0001. The comments read in part, United Spinal Association supports DOJs efforts to apply specific requirements to accessible medical equipment. Inaccessible MDE effectively excludes certain people with disabilities from accessing routine examinations and specialized medical care. United Spinal participated in the National Council on Disabilitys virtual discussion about ground transportation for wheelchair users, sharing our lived experiences with the barriers commonly encountered. United Spinal staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community.
AID Local Government Leadership Act
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
Choices for Increased Mobility Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal met with staff for the Senate Aging Committee to discuss next steps to increase funding for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal seeks legislative or report language directing the National Institute of Disability, Independent Living and Rehabilitation Research (NIDILRR) and the National Institute of Neurological Disorders and Stroke (NINDS) to collaboratively conduct a pilot program measuring the potential beneficial health and functional short- and long-term outcomes and health cost savings achieved from extended lengths of stay in initial traumatic spinal cord injury (SCI) rehabilitation settings by employing needed technologies and enhancing consumer training. United Spinal Association supports "Connect For Health Act" which protects and extends Medicare reimbursement for telehealth. United Spinal supports legislation to improve wheelchair service repair and reform. United Spinal supports Medicare coverage for transanal irrigation for bowel management for individuals with neurogenic bowel. United Spinal supports Choices for Increased Mobility Act, H.R. 5371/S.5154 that will allow Medicare beneficiaries to obtain access to titanium and carbon fiber wheelchair frames. Congress must act to reinstate beneficiaries ability to upgrade to titanium and carbon fiber wheelchairs, at their own cost, if they so wish. Spoke with Senator Marco Rubio (R-FL) on the continuation of recognizing September's Spinal Cord Injury Awareness Month along with Sen. Tammy Baldwin (D-WI, now that Sen. Rubio has been nominated as Secretary of State. As a member of the Disability & Rehabilitation Research Coalition, United Spinal signed onto comments in response to the Request for Information (RFI): Eunice Kennedy Shriver National Institute of Child Health and Human Developments (NICHD) Strategic Plan for 2025-2029 (NOT-HD-24-028). Following the September implantable brain computer interface collaborative workshop at the U.S. Food and Drug Administration, United Spinal participated in workshop meetings with FDA staff and other stakeholders through the Fall. United Spinal Association endorsed a Coalition to Preserve Rehabilitation/Habilitation Benefits Coalition letter to the Center for Consumer Information and Insurance Oversight (CCIIO) at CMS about possible solutions to therapy caps.
Choices for Increased Mobility Act of 2024
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal met with staff for the Senate Aging Committee to discuss next steps to increase funding for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal seeks legislative or report language directing the National Institute of Disability, Independent Living and Rehabilitation Research (NIDILRR) and the National Institute of Neurological Disorders and Stroke (NINDS) to collaboratively conduct a pilot program measuring the potential beneficial health and functional short- and long-term outcomes and health cost savings achieved from extended lengths of stay in initial traumatic spinal cord injury (SCI) rehabilitation settings by employing needed technologies and enhancing consumer training. United Spinal Association supports "Connect For Health Act" which protects and extends Medicare reimbursement for telehealth. United Spinal supports legislation to improve wheelchair service repair and reform. United Spinal supports Medicare coverage for transanal irrigation for bowel management for individuals with neurogenic bowel. United Spinal supports Choices for Increased Mobility Act, H.R. 5371/S.5154 that will allow Medicare beneficiaries to obtain access to titanium and carbon fiber wheelchair frames. Congress must act to reinstate beneficiaries ability to upgrade to titanium and carbon fiber wheelchairs, at their own cost, if they so wish. Spoke with Senator Marco Rubio (R-FL) on the continuation of recognizing September's Spinal Cord Injury Awareness Month along with Sen. Tammy Baldwin (D-WI, now that Sen. Rubio has been nominated as Secretary of State. As a member of the Disability & Rehabilitation Research Coalition, United Spinal signed onto comments in response to the Request for Information (RFI): Eunice Kennedy Shriver National Institute of Child Health and Human Developments (NICHD) Strategic Plan for 2025-2029 (NOT-HD-24-028). Following the September implantable brain computer interface collaborative workshop at the U.S. Food and Drug Administration, United Spinal participated in workshop meetings with FDA staff and other stakeholders through the Fall. United Spinal Association endorsed a Coalition to Preserve Rehabilitation/Habilitation Benefits Coalition letter to the Center for Consumer Information and Insurance Oversight (CCIIO) at CMS about possible solutions to therapy caps.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
Air Carrier Access Amendments Act of 2023
Client: UNITED SPINAL ASSOCIATION · Firm: UNITED SPINAL ASSOCIATION
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
As a member of the Consortium for Constituents with Disabilities, United Spinal strongly condemned a memo written by the Office of Legal Counsel that attacks the integration mandate of the Americans with Disabilities Act and Section 504 of the Rehabilitation Act.
United Spinal with other stakeholders discussed with members of Congress introducing legislation to delay the implementation of competitive bidding for ostomy and urological supplies under the Medicare program. United Spinal, along with other members of the Coalition to Preserve Rehabilitation (CPR), submitted comments to the administrator of the Centers for Medicare & Medicaid Services (CMS) in response to Fiscal Year 2027 Inpatient Rehabilitation Facility Prospective Payment System (IRF PPS) Proposed Rule (proposed rule), (CMS-1845-P). The comments read in part, Our comments focus on key provisions of the proposed rule-including proposed updates impacting IRF coverage and documentation, proposed changes to the IRF Quality Reporting Program, proposed updates to the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program, and responses to the various requests for information included in the proposed rule-with the goal of ensuring that Medicare beneficiaries continue to have access to the full range of medically necessary rehabilitation services, including those provided in inpatient rehabilitation hospitals. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the administrator of the Centers for Medicare and Medicaid Services (CMS) requesting a meeting to discuss the status of the long-pending National Coverage Analysis (NCA) for standing systems in Group 3 power wheelchairs. The letter read in part, We strongly urge CMS to proceed expeditiously with opening this NCA for public comment without further delay. As the 36th Anniversary of the Americans with Disabilities Act (ADA) approaches on July 26th, we believe there is no better way to celebrate the successes of this landmark law for people with disabilities over the past three and a half decades than for CMS to open this critically important NCA to address the mobility needs of individuals with disabilities. United Spinal, along with numerous other organizations, signed onto comments from the Not Dead Yet, a grassroots disability rights organization that opposes assisted suicide and Euthanasia. The comments were in response to a notice: Medicare Program; FY 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements The comments in part read, appreciates the opportunity to respond to the Centers for Medicare and Medicaid ServicesNot Dead Yet supports CMS intent to improve transparency and institute data guardrails for hospice care. This will help in the gathering of important data on U.S. patients as the population ages, potentially increasing the demand for hospice options. Not Dead Yets comments, since we are not hospice care providers, primarily introduce additional issues related to assisted suicide and palliative care. United Spinal, along with numerous other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the Congressional Vision Caucus to bring to their attention a Medicare regulation-the Medicare Low Vision Aid Exclusion at 42 C.F.R. 411.15(b)-that significantly limits beneficiary access to technologies and devices essential to the treatment of low vision. The letter read in part, We respectfully request your support in encouraging the Centers for Medicare and Medicaid Services (CMS) to rescind that outdated and overly broad regulation. Specifically, we request that you send a bipartisan Congressional sign-on letter to CMS, as well as a Dear Colleague letter to garner co-signers supporting this effort. United Spinal continues to oppose the Centers for Medicare and Medicaid Services rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program which will harm people who depend upon these supplies to live and will increase healthcare costs. It may conflict with the Presidents directives on deregulation, trade, and domestic industrial strength. United Spinal continues advocating for Medicare coverage of power wheelchairs standing systems. United Spinal supports legislation introduced by U.S. Representative Ayanna Pressley (D-MA-07), H. R. 9364, the FAST Repairs for Wheelchairs Act, that would eliminate prior authorization requirements for Complex Rehabilitation Technology (CRT) wheelchair maintenance and repairs under the Medicare Advantage (MA) program, aligning MA with traditional Medicare, which generally does not impose these barriers. United Spinal policy staff met with Centers for Medicare and Medicaid Services officials to advocate against implementing the agencys final rule about competitively bidding urological and ostomy supplies: The Centers for Medicare & Medicaid Services (CMS) is making some important changes in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) so that we can protect the Medicare Trust Funds and lower copays for beneficiaries. For more details, refer to the Calendar Year (CY) 2026 Home Health Prospective Payment System Final Rule (CMS-1828-F) displayed in the Federal Register on November 28, 2025. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition met with officials from the Office of Management and Budget to advocate against the Centers for Medicare and Medicaid Services rule about competitively bidding urological and ostomy supplies. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) in strong opposition to the proposed revisions to the Local Coverage Determination (LCD) DL33789, which would restrict Medicare coverage for certain power mobility devices, specifically, Group 2 standard power wheelchairs with seat elevation systems but without complex rehabilitative technology (CRT) capability. If finalized, this restriction in access to these critical devices would negatively impact Medicare beneficiaries who rely on such features to reach, transfer, and perform or participate in Mobility Related Activities of Daily Living (MRADLs) in their homes, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determination. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, submitted comments to the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) on the proposed Local Coverage Determination (LCD) for Wheelchair Options/Accessories (DL33792). The ITEM Coalition strongly opposes the proposed determination that power seat elevation systems used with standard, non-complex rehabilitation technology (CRT) power wheelchairs are not reasonable and necessary, and urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to reconsider and withdraw this proposed LCD as soon as possible. For the reasons outlined below, if finalized, this change in policy would significantly restrict access to a critical functional mobility technology for Medicare beneficiaries who rely on power wheelchairs to perform mobility-related activities of daily living (MRADLs) within the home, which is the standard for coverage under the power wheelchair and seat elevation National Coverage Determinations. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the Centers for Medicare and Medicaid Services to reiterate significant concerns with the Agencys decision to include ostomy and urological supplies in the next round of the Medicare Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP). Combined with the implementation of a national Remote Item Delivery (RID) program for distributing these items to Medicare beneficiaries, this policy represents a fundamental shift away from patient-centered, clinically appropriate care for individuals with disabilities and complex medical needs. United Spinal signed onto a letter, along with 358 members of the Disability and Aging Collaborative (DAC), the Health and Long Term Services and Supports (LTSS) Taskforces of the Consortium for Constituents with Disabilities (CCD), and allied organizations to urge the bipartisan, bicameral leadership of the Congress to exclude any funding cuts or harmful changes to Medicaid from any budget reconciliation or other legislation. The letter read in part, Medicaid is our communities lifeline, and that lifeline just suffered the largest cut in funding since its inception. We cannot afford any further cuts, and we urge Congress to prioritize reinvesting in Medicaid. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for H.R. 8375, the Medicare Advantage Improvement Act to its bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes. United Spinal, along with other members of the Coalition to Preserve Rehabilitation, wrote in strong support for S. 4384, the Medicare Advantage Improvement Act toots bipartisan sponsors. Medicare Advantage (MA) increasingly serves Medicare beneficiaries with complex, disabling conditions who depend on timely access in medical rehabilitation services of all kinds, including inpatient rehabilitation facility (IRF) care, to achieve optimal recovery and maintain independence. However, persistent utilization management barriers-including prior authorization delays, inappropriate denials, and disruptions in care-continue to impede access to medically necessary rehabilitation services and undermine patient outcomes.
United Spinal supports legislation that Rep. Dina Titus and Senator Tammy Baldwin introduced, H.R. 9373/S. 4829, the Air Carrier Access Amendment Act (ACAAA) of 2026. As a member of the ACAA Working Group, United Spinal signed onto a letter to the Department of Transportations Secretary, Sean Duffy, requesting updates on the status of DOTs implementation of the disability-related provisions of the FAA Reauthorization Act of 2024 (P.L. 118-63) and urging DOT to meet the requirements specified by Congress. The letter emphasizes the importance of the disability-related provisions. This includes the reauthorization of the Air Carrier Access Act Advisory Committee; data on mishandled wheelchairs; public reports; rulemaking on seating accommodations; the service animal travel pilot program; minimum technology accessibility standards; aisle chair standards; and rulemaking on in-flight entertainment. The letter also urges DOT to uphold the Wheelchair User Rule's improved training requirements effective June 17, 2026. United Spinal met with members of Congress to discuss the implementation of accessibility provisions in the FAA Reauthorization Act of 2024.
United Spinal supported the comments submitted to the Administrator of the Social Security Administration by the Co-Chairs of the Social Security Task Force (SSTF) of the Consortium for Constituents with Disabilities (CCD) in response to a request for comments, Agency Information Collection: Comment Request (Docket No: SSA-2026-0331). The comments thanked the Administrator for the meaningful changes that the agency has made to the SAP Policy since March 2025, but further discussed that, SSAs Hybrid Process Fails to Adequately Serve the Needs of the American Public and SSA underestimates the average wait time in field office and teleserve centers. Also urged, SSA to reconsider this process and instead suggest a less burdensome process for the majority of beneficiaries and representative payees who are unable to successfully navigate the proposed SAP process.
United Spinals SecureRide Coalition advocated for the wheelchair securement research study provision in H. R. 7389, the Motor Vehicle Safety Modernization Act. United Spinals SecureRide Coalition met with Department of Transportation officials to advocate for safe and independent wheelchair securement across all modes of transportation. United Spinal, along with other disability advocates from organizations and communities across the United States who are committed to advancing mobility, independence, and full community participation for people with disabilities, wrote to the leadership of the Federal Transit Administration to support the continued modernization of accessible transportation and ADA paratransit services. The letter read in part, Accessible transportation remains one of the most important gateways to opportunity-enabling individuals to travel to employment, education, healthcare, and civic life. United Spinal discussed provisions of H.R.8128, the Same-Day Paratransit Innovation Act, with congressional staff. United Spinal, through our SecureRide Coalition discussed disability accessibility issues with the Autonomous Vehicle Industry Association ("AVIA") in reference to its statement for the record regarding the Subcommittee on Surface Transportation, Freight, Pipelines, and Safety hearing, "The Need for Speed: How Technological Advances are Driving Transportation Innovation. United Spinal advocated for accessibility provisions to be included in H. R. 8870, the BUILD America 250 Act. United Spinal advocated for the development of an autonomous wheelchair securement system as a co-lead in our SecureRide Coalition with the Department of Transportation. United Spinal, as a co-lead of our SecureRide Coalition submitted an application to participate in the Department of Transportations SecureRide Coalition's submission Roadway Safety Innovation Expo. United Spinal Associations SecureRide Coalition wrote to the bipartisan leadership of the House Energy and Commerce Committee and it Commerce, Manufacturing and Trade Subcommittee to support the automated wheelchair securement research provision included in the amendment in the nature of a substitute for H. R. 7389, the Motor Vehicle Modernization Act, filed in advance of the full committee markup on Thursday, May 21, 2026, at 10:00 a.m. (ET) as the motor vehicle safety title of the upcoming surface transportation reauthorization measure. The measure addresses a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other stakeholders wrote to the bipartisan leadership and membership of the House Energy and Commerce Committee and the Subcommittee on Commerce, Manufacturing and Trade to voice our support for the progress made on the SELF DRIVE Act, which was introduced by Representative Bob Latta. The letter read in part, the SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal submitted comments to the Administrator of the National Highway Traffic Safety Administration supporting Zooxs petition for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, Docket No. NHTSA-2025-0523. The comments read in part, We recognize that achieving these benefits requires careful attention to accessibility standards, inclusive design, and equal access to purpose-built wheelchair accessible autonomous vehicle deployment. With proper planning and regulation, Zoox can expand opportunities for independence, employment, healthcare access, and civic and social engagement, thereby improving the quality of life for people with spinal cord injuries and other mobility challenges. We respectfully request that you support Zooxs petition, Docket No. NHTSA-2025-0523, to enable the safe, federally supervised commercial operation of its all-electric autonomous vehicles. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force signed onto a letter responding to the request for public comments on the Zoox application for a temporary exemption from various requirements of the Federal Motor Vehicle Safety Standards (FMVSS) for an automated driving system (ADS) - equipped vehicle, NHTSA-2025-0523-0003. The Comments strongly urged, the National Highway Traffic Safety Administration (NHTSA) to compel Zoox to operate a vehicle that is fully accessible for people with disabilities, consistent with the public interest. Given NHTSAs safety mandate and mission, it is essential to integrate accessibility into exemption approvals because it is inextricably linked to the safety of people with disabilities. United Spinal, along with numerous other disability organizations, wrote to the leadership of the Federal Transit Administration leadership about the need for modernizing paratransit services. The letter read in part, In particular, we encourage the FTA to continue advancing regulatory guidance and policy interpretations that support modernization of paratransit services and allow transit agencies to incorporate new mobility solutions-including on-demand service models and partnerships with ride share and TNC providers-into the ADA paratransit ecosystem. Where existing regulatory flexibilities exist, additional clarity and encouragement from the FTA could help agencies confidently expand these models in ways that enhance service for rider. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Administration for Community Living officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with Access Board officials. United Spinal advocated for its SecureRide Coalition wheelchair securement standard efforts with National Council on Disability officials. United Spinal continues to advocate for H.R. 4116, the Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities.
United Spinal as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition supported S. 3988, the Veterans Spinal Trauma Access to New Devices (STAND) Act and earlier in the year we supported the House version, H.R. 6835. This bipartisan legislation would direct the Secretary of Veterans Affairs to offer annual preventative health evaluations to veterans with spinal cord injuries and disorders and increase access to state-of-the-art assistive mobility technologies, such as Exoskeletal systems and other neuromodulation technologies, which allow paralyzed veterans the ability to improve their function and even walk again.
On behalf of the disability and rehabilitation research community, United Spinal, along with numerous other organizations, wrote to the bipartisan leadership of the House and Senate Subcommittees on Labor, Health and Human Services, Education and Related Agencies of the respective Committees on Appropriations to urge funding the National Institute on Disability,Independent Living, and Rehabilitation Research (NIDILRR) at $150 million in the Fiscal Year (FY) 2027 Labor, Health and Human Services, Education, and Related Agencies Appropriations bill. The letter read in part that, We believe that a $150 million investment in NIDILRR is a long-overdue and necessary increase to strengthen the nations disability and rehabilitation research infrastructure and advance outcomes for people with disabilities. On behalf of the disability and rehabilitation research community, United Spinal, along with numerous other organizations, wrote to the bipartisan leadership of the House and Senate Subcommittees on Labor, Health and Human Services, Education and Related Agencies of the respective Committees on Appropriations to provide full funding for medical rehabilitation and disability-related research at the National Institutes of Health (NIH). The letter read in part, In particular, we are requesting continued and robust funding for the National Center for Medical Rehabilitation Research (NCMRR) within the Eunice Kennedy Shriver National. Institute of Child Health and Human Development (NICHD), in the FY 2027 Labor, Health and Human Services, Education, and Related Agencies Appropriations bill. United Spinal, along with numerous other organizations, signed onto a letter submitted to the bipartisan leadership of the House and Senate Subcommittees on Defense of the respective Committees on Appropriations seeking funding for essential research. The letter read in part, As you begin work on the Fiscal Year (FY) 2027 Defense Appropriations Act, we thank you for your continued support of the critical and highly successful Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DoD). The CDMRP plays a vital role in advancing research that protects the health and readiness of our Armed Forces, military families, and veterans, while also benefiting civilian populations. For FY 2027, we urge you to increase funding for these critical programs above FY 2024 levels by at least five percent plus inflation, to approximately $1.62 billion. This investment is essential to ensure our nation is prepared to meet current and future public health-related threats and challenges to our national security. An increase in funding is particularly vital to mitigate the impact of inflation on the purchasing power of individual CDMRP programs, as well as the 57 percent reduction in spending for these programs resulting from the enactment of the Full-Year Continuing Appropriations and Extensions Act (Public Law 119-4). United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). United Spinal advocates for an additional $2.5 million for the Spinal Cord Injury Model Systems program at the Administration for Community Living.
United Spinal continues to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. United Spinal participated in and invited members of Congress and their staffs to participate in the National Coalition for Assistive and Rehab Technology (NCART), the International Registry of Rehabilitation Technology Suppliers (iNRRTS), and U.S. Rehab sponsored Complex Rehab Technology (CRT) Product Expo in Washington, D.C. on May 13, 2026. This event was designed to educate Members of Congress about CRT equipment and the individuals who rely on it every day to live safely and independently. We advocated on three issues with members of Congress and their staff about Complex Rehab Technology equipment and services, specifically: 1.Opening the Power Standing Coverage Determination process with the Centers for Medicare and Medicaid Services. 2.Passage of H.R. 1703 / S. 247 - the Choices for Increased Mobility Act of 2005, 3.Passage H. R. 9364, eliminate Prior Authorization for Wheelchair Repairs for Medicare Advantage United Spinal, along with other members of the. Disability and Rehabilitation Research Coalition (DRRC) wrote to Health and Human Services Secretary Kennedy to express our serious concern regarding the significant delay in the release of the Notice of Funding Opportunity (NOFO) for the National Paralysis Resource Center, which is currently operated by the Christopher & Dana Reeve Foundation under a cooperative agreement with the Administration for Community Living (ACL). United Spinal submitted comments to the Access Boards development of standards for Universal Changing Stations, Docket Number: ATBCB-2026-0001, RIN Number: 3014-AA50. In our comments, we thanked Senator Maggie Hassan for her leadership in establishing the requirement for Universal Changing Stations in the bipartisan Federal Aviation Administration (FAA) Reauthorization Act of 2024. The comments included the following summary: The United Spinal Associations recommendation to use existing industry standards is consistent with the National Technology Transfer and Advancement Act of 1995 (NTTAA) which encourages Agencies to use and participate in the development voluntary consensus standards. The Board is a valued member of the ICC A117.1 Standards development team and has considerable influence over the process and the ultimate requirements. It would be unfortunate if the Board were not to exploit this work by using it to advance its own mission. Collaboration of this type maximizes the Boards resources and encourages better understanding of the needs of all parties. As follow-up to our Virtual Advocacy Day held in March, United Spinal continued to advocate with members of Congress and or their staff on the following issues: Insert language into the FY27 Labor-HHS-Education appropriations bills committee report providing $2.5 million to fund four additional SCI Model System Suggested programmatic language: The inclusion of ostomy, urological and tracheostomy supplies in the Medicare competitive bidding program may conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. Competitive bidding threatens to transfer this market to foreign competitors who have no commitment to American workers, American communities or American patients. And or: Suggested appropriations report language: Competitive Bidding for Ostomy, Tracheostomy, and Urological Supplies - The Committee is concerned about the Centers for Medicare & Medicaid Services decision to include ostomy, tracheostomy, and urological prosthetic supplies in the Medicare Competitive Bidding Program (CBP). These prosthetic devices have never been included in the program. The Committee is concerned that subjecting these prosthetic devices to competitive bidding without sufficient analysis could disrupt patient access, compromise clinician decision-making, harm domestic manufacturing, and increase Medicare costs. Accordingly, the Committee directs CMS to delay the implementation of competitive bidding for ostomy, tracheostomy, and urological supplies until the Administrator submits a report to the Committees on Appropriations, providing: (1) an assessment of the prospective downstream costs to the Medicare Part A program for adverse health events due to patients seeing limited or no access to the supplies of their choice; and (2) an evaluation of the potential impact on the US domestic supply chain, including manufacturing and distribution capacity and service industries associated with patient management if no or a limited number of US businesses are selected for the CBP. The Committee directs CMS to collect citable data from patient, clinician and manufacturer stakeholders. The Committee directs CMS to maintain current payment methodologies for these prosthetic devices until the Committee is briefed by CMS on all findings. United Spinals annual advocacy event, Roll on Capitol Hill, was held on June 24th. Advocates met with members of Congress and of their staff seeking action on four issues: Support Rep. Ayanna Pressleys (D-MA) bill, H. R. 9364, the FAST Repairs for Wheelchairs Act, which would prohibit Medicare Advantage plans from requiring prior authorization for wheelchair repairs. Carbon fiber and titanium wheelchairs are lighter, stronger and more responsive than standard wheelchairs chairs. But because of a policy change, Medicare beneficiaries have to pay the full cost out of pocket. The Choices for Increased Mobility Act (H.R. 1703/S. 247) would explicitly require Medicare to create new codes to allow suppliers to bill consumers for just the cost of the upgrade to an ultralight manual wheelchair. This bill is sponsored in the House by Reps. John Joyce (R-PA), Vern Buchanan (R-FL), and Kim Schrier (D-WA), and in the Senate by Senators Marsha Blackburn (R-TN) and Tammy Duckworth (D-IL). Support forthcoming legislation that will exclude ostomy and urological supplies from Medicares durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) competitive bidding program for a period of five years while requiring the Centers for Medicare and Medicaid Services (CMS) to undertake a more comprehensive and clinically informed review of the impact that competitive bidding policies could have on beneficiary access, product choice, and patient outcomes. And other related provisions. urging Members of Congress to protect and strengthen home and community based services (HCBS), which already operates within a fragile system challenged by workforce shortages, long waiting lists, and inadequate funding. Millions of older adults and people with disabilities rely on HCBS to live independently in their homes and communities, and demand for these services will continue to grow as the population ages. Further cuts or restrictions would worsen existing barriers, increase the risk of institutionalization, and leave many without the support they need. Investing in and preserving HCBS is essential to ensure current and future generations can access quality care at home. United Spinal supported, S. Res. 685, sponsored by Senator Edward J. Markey (D-Mass.), member of the Commerce, Science, and Transportation Committee, and Senator Kevin Cramer (R-N.D.) designating April 22, 2026, as National Assistive Technology Awareness Day.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Federal Aviation Administration (FAA), Federal Communications Commission (FCC), Federal Transit Administration (FTA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Council on Disability, Natl Highway Traffic Safety Administration (NHTSA), Office of Management & Budget (OMB), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS)
UNITED SPINAL ASSOCIATION via UNITED SPINAL ASSOCIATION
2026 · first_quarter · Q1
United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, wrote to the bipartisan leadership of the Senate Appropriations Subcommittee on Transportation, Housing, Urban Development and Related Agencies to respectfully request support for the inclusion of $10.5 million in the Fiscal Year (FY) 2027 Senate Transportation, Housing, Urban Development and Related Agencies bill to fund the United States Access Board. This funding request represents a $500,000 increase from FY2026 and is critical to strengthening enforcement of the Architectural Barriers Act of 1968. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, wrote to the bipartisan leadership of the Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies to respectfully request support for the inclusion of $10.5 million in the Fiscal Year (FY) 2027 House Transportation, Housing, Urban Development and Related Agencies bill to fund the United States Access Board. This funding request represents a $500,000 increase from FY2026 and is critical to strengthening enforcement of the Architectural Barriers Act of 1968. United Spinal and other members of the Consortium for Constituents with Disabilities Technology and Telecommunications Task Force, wrote to the bipartisan leadership of the Senate Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies requesting the inclusion of $42 million in the Fiscal Year (FY) 2027 Senate Labor, Health and Human Services and Education Appropriations (LHHS) bill for the Assistive Technology (AT) Act Programs. Further, respectfully requested that instructions be included to eliminate the following language from the Labor, Health, and Human Services Appropriations Act (AT Act) that states provide $2,000,000 for competitive grants to support existing and new alternative financing programs that provide for the purchase of AT devices. With this change, we further request that the available $2 million be allocated directly to the AT Act (which contributes to the increased total requested of $42 million). United Spinal and other members of the Consortium for Constituents with Disabilities Technology and Telecommunications Task Force, requested the bipartisan leadership of the House Appropriations Committees Subcommittee on labor, Health and Human Services, Education and Related Agencies to support including $42 million in the Fiscal Year (FY) 2027 House Labor, Health and Human Services and Education Appropriations (LHHS) bill for the Assistive Technology (AT) Act Programs. The letter read in part, Further, we respectfully request instructions be included to eliminate the following language from the Labor, Health, and Human Services Appropriations Act (AT Act) that states provide $2,000,000 for competitive grants to support existing and new alternative financing programs that provide for the purchase of AT devices.With this change, we further request that the available $2 million be allocated directly to the AT Act (which contributes to the increased total requested of $42 million).
United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. https://www.congress.gov/bill/119th-congress/house-bill/4206 United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United spinal continues to advocate about the concerns we have about proposals for major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. United Spinal continues to support timely wheelchair repairs legislation that is currently being drafted in the Senate. United Spinal continues to support S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs, which will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info United Spinal continues advocating for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal provided a letter of support for research proposal addressing chronic pain for submission to the Patient Centered Outcomes Research Institute (PCORI) PLACER mechanism. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, along with numerous other organizations, wrote to the bipartisan leadership of the House Energy and Commerce Committee to express strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA) designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. The letter urged the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition steering committee, along with numerous other organizations, submitted comments of support in response to the U.S. Customs and Border Protections (CBP) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. United Spinal, along with numerous other steering committee members of the Coalition to Preserve Rehabilitation (CPR), wrote to thank the bipartisan leadership of the House of Representatives and their appropriations colleagues for including critical funding for programs that are essential to individuals with disabilities, chronic conditions, and injuries in the Fiscal Year (FY) 2026 Labor, Health and Health and Human Services, Education, and Related Agencies (Labor-HHS-Education) appropriations conference report. The letter urged the House of Representatives to pass the important legislative package as expeditiously as possible to avoid another federal government shutdown on February 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-to-house-leadership-re-fy-2026-labor-hhs-education-appropriations-package-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR),wrote the sponsors of H.R. 5940/S. 3480, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 to express strong support for this bipartisan legislation. The letter read in part, CPR believes this important legislation is urgently needed to protect Medicare beneficiaries from harmful disruptions in care by preventing the implementation of the Wasteful and Inappropriate Services Reduction (WISeR) model, scheduled to begin on January 1, 2026. https://preserverehab.org/wp-content/uploads/2026/01/cpr-letter-of-support-for-h.r.5940-the-seniors-deserve-smarter-care-act-final.pdf United Spinal staff attended Unite2Fights 20th Annual Science & Advocacy Symposium Congressional briefing to advocate for spinal cord injury research and related issues. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, submitted comments in response to the Department of Educations Request for Information about Artificial Intelligence, HHS Health Sector AI RFI, RIN 0955-AA13. The comments read in part, People with disabilities and their caregivers have significant concerns about the adoption and use of AI in clinical care. These concerns include a lack of transparency that make it hard or impossible to understand the basis for treatment reductions or denials, or even whether technology is being used, inadequate testing and auditing of the data and algorithms that drive AI decisions, and the absence of meaningful federal regulation and oversight. We urge the Department to review and consider the growing body of research and lived experience which shows that AI poses serious risks of harm,especially to people with disabilities. HHS must prioritize protecting people by carefully collecting, analyzing, and publicly sharing disaggregated data from all developers and deployers and by evaluating long-term patient outcomes before rapidly deploying new technology. HHS should not sacrifice these essential safeguards for health and safety for the sake of administrative convenience and speed. https://c-c-d.org/fichiers/CCD-Health-HHS-RFI-on-AI-2.23.2026.pdf
United Spinal continues to oppose the Centers for Medicare and Medicaid Services rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program which will harm people who depend upon these supplies to live and will increase healthcare costs. It may conflict with the Presidents directives on deregulation, trade, and domestic industrial strength. United Spinal continues advocating for Medicare coverage of power wheelchairs standing systems. United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee. The letter read in part, we write to express our strong support for H.R. 5343, the Ensuring Patient Access to Critical Breakthrough Products Act. This bipartisan legislation would ensure that Food and Drug Administration (FDA)-designated breakthrough devices and technologies are covered under Medicare during a four-year transitional period, while also establishing a pathway to make a permanent coverage determination. The ITEM Coalition believes this bill would be a positive step in the right direction towards ensuring timely access to breakthrough devices and technologies for millions of Medicare beneficiaries. We respectfully urge the House Energy & Commerce Committee to hold a markup on H.R. 5343 as soon as possible in the second session of the 119th Congress. https://itemcoalition.org/wp-content/uploads/2026/03/item-letter-to-ec-re-h.r.5343-the-ensuring-patient-access-to-critical-breakthrough-products-act-final.pdf United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR) and the Habilitation Benefits (HAB) Coalition submitted joint comments on the HHS Notice of Benefit Payment Parameters for the 2027 Plan Year proposed rule (proposed rule), which was published in the Federal Register on February 11, 2026, CMS-98883-P. The joint comments focused on key proposals related to enrollees in need of the essential health benefit (EHB) category of rehabilitation and habilitation services and devices. They addressed historical identification of these benefits as EHBs and discussed our recommendations to eliminate caps in therapy benefits. Also addressed our concerns with the proposed expansion of catastrophic plans that do not require EHB coverage, followed by the proposed rules reversal of policy involving state defrayal of EHB benefits. https://preserverehab.org/wp-content/uploads/2026/03/cpr-hab-coalition-comment-letter-in-response-to-hhs-nbpp-for-2027-proposed-rule-final-version.pdf United Spinal, along with 106 other members of CCDs Long-Term Services and Supports (LTSS), Rights, Health, and Developmental Disabilities, Autism and Family Support Task Forces and the Disability and Aging Collaborative (DAC) and allies responded to the Request for Information (RFI) Related to Comprehensive Regulations to Uncover Suspicious Healthcare, CMS-6098-NC. The letter read part, The undersigned organizations are deeply concerned about the Centers for Medicare & Medicaid Services (CMS) recent actions. Individuals with disabilities and older adults rely on many of the Medicaid services that CMS is targeting in its actions in Minnesota, as well as many of the services that CMS has flagged for investigation in New York, Maine, California, and Florida. When funding for such services is wholesale suspended or frozen, as it has been in Minnesota, Medicaid enrollees are ultimately harmed, not protected. https://downloads.regulations.gov/CMS-2026-0826-0249/attachment_1.pdf
Discussing a potential presentation to the Accessible Transportation Research Center on autonomous vehicles impact on the disability community and United Spinals SecureRide Coalitions wheelchair securement work. United Spinal, as a Co-Lead in the SecureRide Coalition, met with Department of Transportation representatives to discuss and advocate for issues related to wheelchair securement during transit. United Spinal is advocating for the research provision for wheelchair securement contained in H.R. 7389, the Motor Vehicle Modernization Act of 2026. United Spinal staff, and numerous other disability organizations, met with the Department of Transportations Office of Aviation Consumer Protection and other officials to discuss disability and accessibility related issues. United Spinal wrote to the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee respectfully requesting that the Senate include a National Autonomous Vehicle (AV) Framework in the upcoming surface transportation reauthorization bill. The letter read in part, The AV moment is upon us. The time to enact a life-saving, life-changing technology national safety baseline and regulatory certainty for new market expansion is now. An AV framework is a critical opportunity for the United States to lead the world in advancing safe mobility technology with the promise to expand freedom and independence for millions of Americans in both rural and urban sectors, especially for the nations 5.5 million wheelchair users. Additionally, stressed the need for research on the modified universal docking integrated geometry (UDIG) RESNA standard to secure users wheelchairs in vehicles, both AVS and vehicles across various modes of transportation, including land, rail and air. United Spinal sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee, advocating for the automated wheelchair securement research provision in the discussion draft of the Motor Vehicle Modernization Act as the Commerce, Manufacturing and Trades Subcommittee developed the safety title of the upcoming surface transportation reauthorization measure. The letter read in part, As you know, safe automated wheelchair securement has been a significant challenge to the autonomous vehicle industry in developing a purpose-built fully accessible autonomous vehicle (AV). The United Spinal Associations SecureRide Coalition, in a letter to the bipartisan leadership of the Energy and Commerce Committee, supported the automated wheelchair securement research provision included in the discussion draft of the Motor Vehicle Modernization Act as the Commerce, Manufacturing and Trades Subcommittee developed the safety title of the upcoming surface transportation reauthorization measure. The letter read in part, Thank you for addressing a major challenge to fulfilling wheelchair users safe and independent transportation needs. United Spinal, along with numerous other organizations, sent a letter of support to the bipartisan leadership of the House Energy and Commerce Committee for the progress made on the bipartisan SELF DRIVE Act discussion draft. The letter read in part, The SELF DRIVE Act would help ensure that millions of Americans are able to access the benefits of autonomous vehicles (A Vs), which provide safer roads, greater supply chain resilience, create new economic and enhanced accessibility opportunities. United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 10, 2026, markup of legislation to strengthen motor vehicle safety and advance U.S. automative leadership. To allow people with disabilities to benefit from autonomous vehicles (AVs), the, vehicles must accommodate passengers to remain in their personal wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities, vehicles must be able to detect all types of disabled pedestrians, and disabled passengers and pedestrians rights and access to courts must be protected. We acknowledge additional research into automated securement is proposed in the Motor Vehicle Modernization Act and that vulnerable road user detection, including pedestrians and wheelchair users, is proposed in the Magnus White Safe Streets for Everyone Act. We support the automated securement provision and the Magnus White bill. https://c-c-d.org/fichiers/EC-AV-Markup-Disability-Letter-for-the-Record-020926-Final.pdf United Spinal and other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted comments for the record for the January 13, 2026 hearing on strengthening motor vehicle safety and cementing U.S. automative leadership. The comments read in part, While the question was asked of witnesses how the draft legislation would ensure access for people with disabilities, no concrete answers were given. To ensure people with disabilities benefit from autonomous vehicles (AVs) the vehicles must accommodate passengers who remain in their wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities and AVs must be able to detect all types of disabled pedestrians. We acknowledge additional research into automated securement is proposed in the Motor Vehicle Modernization Act and vulnerable road user detection is proposed in the Safe Streets for Everyone Act. Access and safety for disabled passengers is not addressed in the SELF DRIVE Act of 2026. To ensure American leadership in AVs and automated driving system (ADS)-equipped vehicles, we urge you to consider and prioritize the safety and access needs of disabled passengers and pedestrians. United Spinal and other organizations as members of the United for Autonomy coalition, which has come together in recognition of the significant benefits that autonomous vehicles (AVs) will bring the American public and to encourage policymakers to set in place a federal policy framework on Avs, wrote to the bipartisan leadership of the Senate Committee on Commerce, Science, and Transportation. The letter read in part, It is imperative that the United States create a federal policy framework on A Vs. In recent years, U.S. states have set the pace on AV policy, and it is long past time for the federal government to establish federal policy that supports safe autonomous deployment. We believe that such a framework will help ensure that millions of Americans are able to access the benefits of autonomous vehicles, which provide safer roads, greater supply chain resilience, and create new economic and enhanced accessibility opportunities for people with disabilities. https://www.acb.org/sites/default/files/United%20for%20Autonomy%20letter%20to%20Senate%20Commerce%20hearing%20(1).pdf United Spinal supported the testimony of Jeff Farrah, Chief Executive Officer, Autonomous Vehicle Association before the U. S. Senate Committee on Commerce, Science, and Transportation on February 4, 2026, entitled hit the road, Mac: The Future of Self Driving Cars that dealt with wheelchair securement in vehicles. https://cdn.prod.website-files.com/67ee365c25e6530594bd40c2/6983967231abcd56d42a55f4_Jeff%20Farrah%20-%20AVIA%20-%20Written%20Testimony%20-%20Hit%20the%20Road%20Mac.pdf United Spinal, along with numerous other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 4, 2026, hearing titled Hit the Road, Mac: The Future of Self-Driving Cars. The letter read in part, As noted in the hearing announcement, autonomous vehicles (AVs) have the potential to save lives and could also significantly expand mobility and independence for people with disabilities who are unable to drive, improving access to employment, healthcare, and the community. https://c-c-d.org/fichiers/Commerce-AV-Hearing-Disability-Letter-for-the-Record-Final020426.pdf United Spinal, along with numerous other members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and friends submitted a letter for the record for the February 10, 2026, markup of legislation before the Subcommittee on Commerce, Manufacturing and Trade to strengthen motor vehicle safety and advance U.S. automative leadership. The letter read in part, to allow people with disabilities to benefit from autonomous vehicles (AVs), the vehicles must accommodate passengers to remain in their personal wheelchairs, the human machine interface (HMI) must be accessible for people with sensory and cognitive disabilities, vehicles must be able to detect all types of disabled pedestrians, and disabled passengers and pedestrians rights and access to courts must be protected. https://c-c-d.org/fichiers/EC-AV-Markup-Disability-Letter-for-the-Record-020926-Final.pdf United Spinal submitted comments in response to the Department of Transportations request for contributions to the Transportation Research and Development Strategic Plan, DOT-OST-2025-2085. The comments read in part, For the nations 5.5 million wheelchair users, strategic research and development planning can ultimately help in meeting daily transportation needs. That includes fulfilling employment or education needs, healthcare and fitness needs, but also civic and recreational opportunities. It will enrich families and social activities. All this stimulates economic benefits to the general economy. https://downloads.regulations.gov/DOT-OST-2025-2085-0075/attachment_1.pdf United Spinal continues to advocate for H.R. 4116 Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities. https://www.congress.gov/bill/119th-congress/house-bill/4116/
United Spinal, along with numerous other disability organizations, submitted comments in response to the notice of proposed guidance from the U.S. Department of Transportation (DOT), Office of Aviation Consumer Protection (OACP) on investigatory and enforcement policies and procedures of the OACP, DOT-OST-2025-2514, RIN 2105-ZA20. The comments read in part, We write to emphasize that OACP must continue to conduct enforcement, including assessment of monetary penalties, as appropriate, against air carriers that fail to comply with federal regulations, especially the Air Carrier Access Act (ACAA). Such enforcement is authorized by Congress and is necessary to safeguard the safety of people with disabilities in air travel and their right to be treated with dignity and respect. https://downloads.regulations.gov/DOT-OST-2025-2514-0013/attachment_1.pdf United Spinal, along with numerous other disability organizations, submitted comments in response to a request from the U.S. Department of Transportation (DOT), Office of Aviation Consumer Protection on reporting requirements for disability-related complaints. The comments read in part, We write to emphasize the importance of collecting information on air travel disability-related complaints. This information is necessary to ensure that people with disabilities are being treated in a safe manner that respects their dignity in air travel and carriers comply with the requirements of the Air Carrier Access Act of 1986 (ACAA). When the ACAA was enacted, Congress directed the department to promulgate regulations to provide safe carriage for passengers with disabilities, consistent with that provided to passengers without disabilities, and prohibited disability discrimination in commercial air travel. Moreover, the Secretary of Transportation must regularly review all complaints received by carriers alleging discrimination on the basis of disability and report annually to Congress on the results of such review. For DOT to comply with these requirements, the department must continue to collect disability-related complaint data from the carriers. DOT may also rely on this information to inform policy changes and for enforcement matters. With the complaint data, we also urge DOT to conduct investigations and engage in ACAA enforcement efforts, as appropriate. https://downloads.regulations.gov/DOT-OST-2010-0054-0015/attachment_1.pdf United Spinal, along with numerous other disability organizations, participated in a periodic meeting to discuss airlines services with the Department of Transportations Office of Aviation Consumer Protection.
United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, sent a letter to express support for H.R. 6835, the Veterans Spinal Trauma Access to New Devices (STAND) Act of 2025, to the Chairman of the House Committee on Veterans Affairs and other House sponsors. This bipartisan legislation would direct the Secretary of Veterans Affairs to offer annual preventative health evaluations to veterans with spinal cord injuries and disorders and increase access to state-of-the-art assistive mobility technologies, such as Exoskeletal systems and other neuromodulation technologies, which allow paralyzed veterans the ability to improve their function and even walk again. https://itemcoalition.org/wp-content/uploads/2026/01/item-coalition-support-letter-for-h.r.-6835-the-veterans-stand-act-final.pdf United Spinal and other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition sent a letter to sponsors of S. 3138, the Veterans Supporting Prosthetics Opportunities and Recreational Therapy (SPORT) Act, which would provide coverage under the Department of Veterans Affairs (VA) benefit for prosthetic limbs that veterans with limb loss use to participate in physical activities in order to remain fit, healthy, and as functional as possible to express support. Specifically, this bill would recognize coverage of activity-specific prosthetic limbs as medically necessary under the VA benefit which the ITEM Coalition fully supports. As its title suggests, access to activity-specific prostheses would entail access to the recreational therapy veterans may need to learn how to safely perform these physical activities. https://itemcoalition.org/wp-content/uploads/2026/01/item-letter-of-support-for-s.-3138-the-veterans-sport-act-final.pdf
United Spinal expressed interest to a member of Congress in again supporting legislation entitled, Domenic and Eds Law. The bipartisan legislation would allow a parent whose child develops a total and permanent disability to be eligible for a student loan discharge. Under current law, a student who suffers an injury or illness resulting in a total and permanent disability (TPD) is eligible to have their federal student loans discharged. However, parents who have taken out student loans on their childs behalf do not have a similar recourse available. These parents are often left with the challenges of providing care for a disabled child while seeking to pay back loans for education their child can no longer fully take advantage of. United Spinal and other members of the Coalition to Preserve Rehabilitation (CPR), submitted comments to the Secretary of Education in response to the Department of Educations proposal implementing the student financial aid provisions under Public Law 119-21, commonly referred to as the One Big Beautiful Bill Act (OBBBA), specifically the definition of professional degree programs. The comments read in part, CPR has significant concerns with this proposal and believes that all students pursuing accredited post-baccalaureate health professional degrees generally required for licensure or certification-regardless of discipline-should be treated equitably in loan eligibility, borrowing limits, and access to repayment programs. https://preserverehab.org/wp-content/uploads/2026/03/cpr-comments-to-doe-on-professional-degrees-final.pdf
United Spinal along with the American Association of People with Disabilities (AAPD) and numerous other organizations wrote to the Senate Majority Leader requesting the Department of Homeland Security (DHS) funding be separated from the minibus appropriations package that included funding for the Departments of Education, Health and Human Services, Housing and Urban Development, Labor, and Transportation (DOT https://aahd.us/wp-content/uploads/2026/01/AAPD-led-Letter-to-Senate-separate-HHS-and-DHS-funding-package-vote-01292026.pdf United Spinal contacted local advocates to advise them of the National Council on Disabilitys January meeting in Orlando, Florida, focusing on disaster emergency and relief services and the opportunity to speak.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Council on Disability, SENATE, Transportation, Dept of (DOT), U.S. Customs & Border Protection
UNITED SPINAL ASSOCIATION via UNITED SPINAL ASSOCIATION
2025 · fourth_quarter · Q4
Continued to meet with congressional offices following NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). United Spinal supported S.Res.440 - A resolution designating September 2025 as National Spinal Cord Injury Awareness Month. United Spinal continued to advocate for H.R. 4206, the CONNECT for Health Act. United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal, as a member of the Disability Rehabilitation Research Coalition, along with numerous other disability organizations, signed onto a letter to the bipartisan Senate leadership. The letter read in part, The undersigned members of the Disability and Rehabilitation Research Coalition (DRRC) write to express our strong support for passage of the bipartisan Senate Committee on Appropriations Labor, Health and Human Services, Education and Related Agencies (L-HHS) fiscal year (FY) 2026 appropriations bill that includes sustained investment in disability and medical rehabilitation research programs that greatly benefit Americans living with disabilities. We urge you to fully fund these programs for the remainder of FY 2026 to continue the research thatdrives innovation in assistive technologies, informs evidence-based policies, advances medical treatments, and improves quality of life for the more than 70 million Americans living with disabilities. The letter may be reviewed at: https://drrc-coalition.org/wp-content/uploads/2025/11/drrc-letter-11.25.2025.pdf United Spinal participated in and supported the Administration for Community Livings (ACLs) The Power of Caregivers for a Healthy America: Building a Better Future Together event on Tuesday, November 18, 2025. Secretary Kennedy and Secretary Collins from the Department of Veterans Affairs also attended. As followup, United Spinal policy staff reached out to the Administration for Community Living staff to express our interest in collaborating with the Administration on its AI Caregiving Challenge that was announced at the event on how we can help involve our community in the challenge. United Spinal, along with numerous other organizations submitted a letter to the bipartisan leadership of the House of Representatives and the Senate. United Spinal has been advocating for appropriations being restored and continued for the Spinal Cord Injury Research Program historically funded through the Congressionally Directed Medical Research Programs (CDMRP). The letter read in part, we urge you to work toward the enactment of the fiscal year (FY) 2026 Defense Appropriations Act, to ensure full funding levels for the Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP). We collectively represent millions of American veterans, military retirees, military families, and civilians who benefit from the ongoing research funded by the CDMRP. https://www.hematology.org/-/media/hematology/files/advocacy/testimony-and-correspondence/2025/ash-joins-coalition-of-150-groups-urging-congress-to-enact-the-fy26-defense-appropriations-act.pdf
United Spinal signed onto an October 14th Washington, D.C. press release as part of a broad coalition of national, state, and local disability, civil rights, and education organizations sounding the alarm over sweeping layoffs at the U.S. Department of Education. The release read in part: The undersigned organizations urge the Administration - and call on Congress to do the same - to reverse course immediately and restore staffing and transparency at the U.S. Department of Education. Strong federal leadership is not optional-its a moral and legal obligation for our nation's children with disabilities. The press release may be reviewed at: https://www.aapd.com/department-of-education-condemned-for-ending-support-for-students-with-disabilities/ United Spinal, along with numerous other disability organizations, signed onto a letter to the bipartisan leadership of the Senate Health, Education, Labor and Pensions Committee requesting they conduct an oversight hearing of the Executive Branch as it actively seeks to dismantle the U.S. Department of Education (Department) and decimate implementation of key education and disability laws. The letter, red in part, Actions taken to date are of great concern, have not been approved by Congress, and create immediate risks of harm to every qualifying individual with a disability and their families. There are 9.5 million children, youth, and young adults with disabilities (ages 0-21) and the adults eligible for vocational rehabilitation. RE: Executive violations of statutory requirements under the Individuals with Disabilities Education Act and the Rehabilitation Act of 1973 (as amended by the Workforce Innovation Opportunity Act). United Spinal endorsed a letter led by Rep. McBath opposing a severe round of reduction in force termination s in the U.S. Department of Education submitted to the Secretary of Education and the Director of the Office of Management and Budget. The letter read in part, We write to you to share our deep opposition to your decision to lay off federal employees dedicated to the education and support of students with disabilities and their families. We demand that you immediately reverse course and rescind the termination notices that were sent to these workers. The press release may be reviewed at: https://mcbath.house.gov/press-releases?ID=EFA0256A-408F-4B2B-B13E-8C900EE8427A
United Spinal continues to advocate for H.R. 4116 Disability Access to Transportation Act (DATA) Paratransit one stop and data collection pilot program. The bill would establish an extra stop per trip program for passengers using paratransit serves and enhance data collection for paratransit programs to increase accessible transportation for individuals with disabilities. https://www.congress.gov/bill/119th-congress/house-bill/4116/text?s=3&r=1 United Spinal, along with numerous other disability organizations as members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force and fellow advocates in a letter urged the bipartisan leadership of the bicameral committees with jurisdiction in vehicle safety to consider and prioritize the safety and access needs of disabled passengers and pedestrians in any stand-alone autonomous vehicle (AV) legislation or surface transportation provisions. Recommendations in this letter reference Congressman Lattas 2023 SELF DRIVE Act discussion draft (SELF DRIVE Act Draft) and Congresswoman Dingells AV framework proposal (AV Framework Proposal). We recognize Representative Dingell and Lattas leadership of the Congressional Autonomous Vehicle Caucus and are grateful for their acknowledgement that disability rights advocates must be at the table as AV frameworks are developed. We are also providing Disability Access in AVs and Motor Vehicles draft bill text (Access in AVs Draft) for your consideration. The letter may be reviewed at: https://www.c-c-d.org/fichiers/Disability-AV-Leg-Priorities-Hill-Letter-122325.pdf United Spinal policy staff participated in the National Highway Traffic Safety Administrations (NHTSAs) Safety Research Portfolio Public Meeting in Washington, D. C. in November. Discussed the research opportunities for the United Spinal Associations SecureRide Coalitions automated wheelchair securement system. Policy staff followed up with NHTSA and Department of Transportation officials after the meetings. United Spinal policy staff provided feedback to members of Congress on potential legislation that would improve access to parking lots, especially for wheelchair users through data collection and an accessible parking standards analysis by the Government Accountability Office. United Spinal staff discussed potential legislative options to provide federal research with congressional staff to further develop automated securement for wheelchairs in motor vehicles. This would significantly improve the safety and independence of wheelchair users. United Spinal policy staff discussed highlighting United Spinals SecureRide automated wheelchair securement system initiative with National Council on Disability (NCD) staff to advance safer more independent wheelchair securement across all modes of transportation at a forthcoming autonomous vehicle industry meeting. United Spinals SecureRide initiative was highlighted in the NCDs recent report on ground transportation as a potential accessibility solution for automated vehicles. Currently most wheelchair users must rely on additional human assistance to secure their wheelchairs. The Report can be accessed here: https://www.ncd.gov/report/ground-transportation-for-people-with-mobility-disabilities-2025-challenges-and-progress/. United Spinal submitted comments in response to the Department of Transportations Request for Information: Research Ideas to Support Nationwide Automated Vehicle Deployment (DOT-OST-2025-1029-0038). The letter addressed safe wheelchair securement in motor vehicles and infrastructure needs. The letter read in part, For the nations 5.5 million wheelchair users, autonomous vehicles will be a game-changer, not only in meeting daily transportation needs but in vastly improving quality of lives. That includes fulfilling employment or education needs, healthcare and fitness needs but also civic and recreational opportunities. It will enrich families and social activities. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0038/attachment_1.pdf United Spinal supported comments submitted by the the Autonomous Vehicle Industry Association (AVIA) in response to the U.S.Department of Transportations (USDOT) Office of the Assistant Secretary for Research and Technologys (OST-R) Request for Information (RFI) on Research Ideas To Support Nationwide Automated Vehicle (AV) Deployment. As the leading organization focused on the development and deployment of autonomous vehicles (AVs), AVIA appreciates the USDOTs interest in coordinating research to support the nationwide deployment of automated driving system- (ADS) equipped transportation technology. AVs are a key emerging transportation technology, and the United States continues to lead the world on AV advancement. Further research and development of AV technologies-while simultaneously accelerating safe AV deployment across the country-can help ensure the United States maintains this leadership in the years and decades to come. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0026/attachment_1.pdf United Spinal supported comments submitted by the co-chairs of the Consortium for Constituents with Disabilities (CCD) Transportation on the proposed questions regarding research ideas to support nationwide automated vehicle deployment in response to the request for information (DOT-OST-2025-1029).The comments read part, further research is especially needed on developing independent, automated wheelchair and mobility device securement and activation of ramps or lifts. One area of research entails expanding the use of universal docking systems, such as a deployable anchor that automatically attaches to a users wheelchair or mobility device. Such restraint and securement standards could be expanded to personal vehicles for wheelchair users who drive, as well as to paratransit and rideshare service vans. This research ultimately could influence the development of independent securement standards across a wide range of transportation modes, including rail, air travel, or shuttles, in which people who use mobility devices currently have less access and safety than people without disabilities. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0037/attachment_1.pdf United Spinal supported comments submitted by the Disability Rights Education and Defense Fund (DREDF) which submitted comments in response to the Office of the Assistant Secretary for Research and Technologys request for information regarding research ideas to support nationwide automated vehicle (AV) deployment. United Spinals SecureRide Coalitions automated wheelchair securement system research needs are reflected in DREDFs AV research priorities. The comments may be reviewed at: https://downloads.regulations.gov/DOT-OST-2025-1029-0044/attachment_1.pdf United Spinal policy staff connected with a Department of Transportation official about our SecureRide Coalitions interest in providing the Department an informational update on the Coalitions automated wheelchair securement system initiative.
United Spinal submitted comments in strong support of U.S. Customs and Border Protections (CBPs) proposal to revoke rulings that currently allow certain portable aluminum ramps from China to enter the United States duty-free under subheading 9817.00.96 of the Harmonized Tariff Schedule pursuant to the Nairobi Protocol. Re: Customs Bulletin Vol 59, November 26, 2025, No. 41, Notice of proposed modification of nineteen (19) ruling letters and proposed revocation of treatment relating to the applicability of subheading 9817.00.96, Harmonized Tariff Schedule of the United States (HTSUS) to certain ramps. United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition (https://itemcoalition.org/), sent comments in response to the Department of Commerces Section 232 investigation into imports of personal protective equipment (PPE), medical consumables, medical equipment, and medical devices. Re: Comments in Response to Section 232 National Security Investigation of Imports of Personal Protective Equipment, Medical Consumables, and Medical Equipment and Devices (BIS-2025-0258; XRIN 0694-XC134). The comments may be reviewed at: ITEM Coalition Steering Committee Comment Letter in Response to Section 232 National Security Investigation into Medical Equipment and Devices.
United Spinal, along with other members of the Coalition to Preserve Rehabilitation (CPR) submitted a letter of concern to the Department of Veterans Affairs (VA) requesting it reverse its decisions to: (1) discontinue the use of CARF International (CARF) accreditation for Veterans Health Administration (VHA) rehabilitation programs; and (2) terminate the uSPEQ veteran experience survey within CARF-accredited VHA rehabilitation programs.
The undersigned members of the Rights, Health, and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD) write to express our strong opposition to the proposed public charge ground of inadmissibility regulation, DHS Docket No. USCIS-2025-0304. CCD is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The letter may be reviewed at: https://www.c-c-d.org/fichiers/CCD-Rights-Health-LTSS-comment-on-public-charge-NPRM2025-12-19.pdf United Spinal, along with numerous other organizations, signed onto a letter, led by the American Association of People with Disabilities (AAPD) expressing our strong opposition to the Public Charge Ground of Inadmissibility Notice of Proposed Rulemaking (NPRM). The letter addressed to the Secretary of Homeland Security read in part, AAPD strongly urges the Department of Homeland Security (DHS) to withdraw the proposed rule, which would remove the current well-grounded regulations on public charge without replacing them. Most notably, it would replace the current clear guidelines with a void of information about what programs can and cannot be considered in a public charge assessment. Such a void invites discrimination against people with disabilities and their families. The NPRM would remove the clarity the current regulations provide on which public benefits can be considered in the public charge assessment. It suggests that the Administration proposes to consider any type of public benefits received or applied forby noncitizens at any time and for any duration, even on behalf of U.S. citizen or lawful permanent resident (LPR) family members, as relevant to the public charge determination.
United Spinal, as a member of the Health and Long-Term Services and Supports Task force of the Consortium for Constituents with Disabilities (CCD), the Disability and Aging Collaborative (DAC), and allied organizations wrote to the Administrator of the Centers for Medicare and Medicaid Services to provide feedback on implementation of the new community engagement requirements enacted by the budget reconciliation act of 2025 (H.R. 1). The comments read in part, Congress intended to exempt people with disabilities and their caregivers from the community engagement requirements. With that in mind, we urge the Administration to use guidance and rulemaking to provide maximum protection for people with disabilities, older adults, and caregivers from coverage loss or disruption. The letter may be reviewed at: https://www.c-c-d.org/fichiers/Letter-from-Aging-and-Disability-Organizations-on-Medicaid-Community-Engagement-Requirements.pdf United Spinal supported and urged members of Congress to sign on to a letter to Dr. Mehmet Oz, Administrator, Centers for Medicare & Medicaid Services with concerns about expanding the agencys Competive Bidding Program. The letter read in part, As Members of Congress committed to advancing President Trumps America First agenda, we write to express serious concern that the Centers for Medicare and Medicaid Services proposed rule (CMS-1828-P) to expand and redesign the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program may conflict with thePresidents directives on deregulation, trade, and domestic industrial strength. We respectfully urge CMS to pause and re-evaluate these provisions to ensure that they fully align with the Administrations goal of rebuilding American manufacturing, protecting Main Street businesses, and fostering innovation. United Spinal supported and advocated for members of Congress to sign onto a letter submitted țo the Administrator of the Centers for Medicare and Medicaid Services and the Director of the Office of Management and Budget. The letter read in part, We write to express our concerns regarding the Centers for Medicare & Medicaid Services (CMS) proposed Calendar Year (CY) Home Health proposed rules inclusion of ostomy, urological, and tracheostomy supplies in the Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program. We respectfully request that the proposal for inclusion of these products be withdrawn as we believe it would conflict with the Administrations goals to strengthen American manufacturing, secure our medical supply chains from foreign adversaries, and protect the health and well-being of our nations most vulnerable citizens. United Spinal, along with numerous other disability organizations and as members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the bipartisan leadership of the House Ways and Means and Energy and Commerce Committees as well as the Senate Finance Committee to encourage the leadership of the Senate and House committees of jurisdiction over the Medicare program to continue working with the Centers for Medicare and Medicaid Services (CMS) to enable Medicare beneficiaries living with disabilities and chronic obesity to access anti-obesity medications (AOMs) through the Medicare Part D program. The ITEM Coalition firmly believes that Medicare beneficiaries living with obesity, especially individuals with mobility impairments, should have equal access to the full continuum of obesity treatment options available to those living with chronic diseases such as diabetes and cardiovascular conditions, conditions where AOMs are already covered. The House letter may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/11/item-letter-to-congressional-committee-leadership-on-anti-obesity-medications-final.pdf United Spinal, along with other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition (https://itemcoalition.org/), supported a Coalitions press statement that expressed deep disappointment with a final rule that exposes Medicare patients to the lowest bidder for ostomy and urological supplies, as well as certain orthotic braces, under the Medicare program. To make matters worse, CMS accelerated the timeline and some of the changes go into effect as early as next year. The full statement may be reviewed at: https://itemcoalition.org/wp-content/uploads/2025/12/item-coalition-competitive-bidding-program-expansion-press-statement-final.pdf United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to express our strong support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent-as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to Senate Sponsors: ITEM Coalition Letter of Support for S. 2329, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, wrote to the House sponsors of H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act, to express our strong support and thank you for sponsoring this important bill. As you know, this bipartisan and bicameral legislation would help Medicare beneficiaries who use orthoses and prostheses to be as functional and independent as possible while limiting waste, fraud, and abuse in the Medicare orthotic and prosthetic benefit. We applaud your leadership in sponsoring this bill and hope to work with you and your colleagues in the relevant committees of jurisdiction and leadership to enact this bill into law as soon as practicable. Letter to House Sponsors: ITEM Coalition Letter of Support for H.R. 4475, the Medicare Orthotics and Prosthetics (O&P) Patient-Centered Care Act. United Spinal, as a member of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition strongly supported the expansion of Medicare coverage of sterile intermittent catheter kits for individuals with a spinal cord injury (SCI) regardless of the level of injury and submitted comments to the Durable Medical Equipment Medicare Administrative Contractors that read in part, While we support the proposed changes to the Local Coverage Determination (LCD, specifically, DL33803), we respectfully urge the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to go further in the final LCD or in future LCDs to consider evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of etiology, including congenital conditions. United Spinal provided comments to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments read in part, United Spinal has long sought the physical and mental relief your proposed LCD will provide to those living with a spinal cord injury (SCI) by not requiring an individual to acquire two urinary tract infections (UTIs) within a 12-month period. Therefore, we are most pleased to comment on the proposal and to suggest how it could be expanded to further lower Americans health risks and further lower Americas healthcare costs. United Spinals policy fellow verbally commented to the DME MACs (Durable Medical Equipment Medicare Administrative Contractors) who had proposed Local Coverage Determination (LCD) for urological supplies. The comments, in part read: United Spinal has long objected to the truly barbaric requirement that if you have a spinal cord injury, an SCI, you must have two urinary tract infections within twelve months before closed system Intermittent catheters will be covered. So, on behalf of those with SCIs across America, thank you for your proposed Local Coverage Determination (LCD). We do ask please that in the final LCD you clarify that having a SCI equates to immunosuppression. That will save America and countless Americans a lot of time and money. Thank you also for considering and acting favorably on the clinical evidence about the immunosuppression of those of us with a SCI. But most respectfully, there is also more you must do. We urge you to please go further in the final LCD to consider clinical evidence demonstrating that coverage should be expanded to all individuals with neurogenic bladder regardless of cause, including congenital conditions.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Commerce, Dept of (DOC), Education, Dept of, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Natl Council on Disability, Natl Highway Traffic Safety Administration (NHTSA), SENATE, Transportation, Dept of (DOT), U.S. Customs & Border Protection, Veterans Affairs, Dept of (VA)
UNITED SPINAL ASSOCIATION via UNITED SPINAL ASSOCIATION
2025 · third_quarter · Q3
United Spinal supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal policy staff participated in the U.S. Department of Transportations periodic Disability Rights Advocacy meeting. United Spinal, along with numerous other disability organizations, wrote to Transportation Secretary, Sean Duffy, to respectfully request that the U.S. Department of Transportation (Department) protect the safety and dignity of air travel passengers with disabilities who use wheelchairs and scooters in air travel by maintaining the provisions in the final rule titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (Rule) (DOT-OST-2022-0144). We also urged the Department to refrain from imposing any new regulatory burdens on disabled veterans and all passengers with disabilities in air travel.
United Spinal continues to oppose H.R. 1, the One Big Beautiful Bill Act, for the adverse effects it will have on people with disabilities, especially in cutting Medicaid programs and benefits. United Spinal continues to advocate about the concerns we have about the major restructuring of the Department of Health and Human Services programs. We want to make sure that critical programs, services, and funding for the disability and aging communities, such as the Centers for Independent Living, Home and Community-Based Services and the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR) are not negatively impacted. Participated in NCARTs annual Fly In. Met with members of Congress/staff on the following issues: Supported timely wheelchair repairs legislation that is currently being drafted in the Senate. Supported S.247 and H.R.1703, Improving access to lightweight carbon fiber and titanium wheelchairs will allow individuals with mobility challenges to choose the wheelchair that is best suited for their medical, functional, and lifestyle needs and preferences, without increasing costs to the Medicare program. https://www.congress.gov/bill/119th-congress/house-bill/1703/all-info Advocated for Medicare coverage of power wheelchairs standing systems. Advocated for restoring federal appropriations for the Department of Defenses Spinal Cord Injury Research Program (SCIRP). Advocated for Congress extending the current telehealth provisions before the last deadline and also support H.R. 1614 to make physical therapists and occupational therapists permanently authorized providers of telehealth under Medicare. H.R. 1614, the Expand Practitioners Eligible to Furnish Telehealth Services Under the Medicare Program Act, introduced by Representatives Mike Kelly (R-PA), Mike Thompson (D-CA), and Adrian Smith (R-NE) has bipartisan support to eliminate the need for continued extensions, instructing Centers for Medicare and Medicaid Services to permanently adopt the temporary waiver of restrictions on payment for telehealth services delivered by physical therapists, occupational therapists, and other qualified healthcare. United Spinal supports H. R. 4475/S. 2329, the Medicare Orthotics and Prosthetics Patient-Centered Care Act. This bipartisan, bicameral bill will ensure Medicare beneficiaries can access the orthotics and prosthetics devices they need. Under current Medicare requirements, beneficiaries are at risk of receiving orthotic and prosthetic devices without the necessary services and customization required for the best use. The bill will clarify the law and permit Medicare beneficiaries who require prosthetics and orthotics to receive these important services. United Spinal advocacy and policy staff met with officials in the Department of Health and Human Services Administration for Community Living to express their concerns about proposed cuts to their budget and proposed departmental reorganization proposals. Staff stressed the importance of programs under the agency that serve people with disabilities. Discussed ways we could collaborate on highlighting the importance of the research completed enhancing peoples daily lives. United Spinal advocates for S. 1261, the CONNECT for Health Act, introduced by Senator Brian Schatz (D-HI) The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them.
United Spinal staff discussed potential legislative options to provide recognition of Spinal Cord Injury Awareness Month with congressional staff. United Spinal, along with numerous other disability organizations and as members of the Multiple Sclerosis Coalition supported a letter the Coalition sent to the Food and Drug Administration that read in part, we thank the U.S. Food and Drug Administration (Agency) for the opportunity to submit this letter of support for the approval of a first product for the treatment of non-relapsing progressive forms of multiple sclerosis (MS). Treatment for non-relapsing progressive MS is an unmet need, and we hope our comments below provide valuable information as the Agency considers its decision on tolebrutinib. United Spinal continues to advocate with members of Congress for increased federal funding for the Spinal Cord Injury Model Systems as well as the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities.
United Spinal, along with numerous other organizations, as members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition submitted comments in response to the Department of Health and Human Services (HHS) Request for Information (RFI) entitled, Ensuring Lawful Regulation and Unleashing Innovation to Make American Healthy Again. The comments specifically requested: CMS should direct the Durable Medical Equipment Medicare Administrative Contractors (DME MACs) to remove language in Local Coverage Article (LCA) A52504 indicating that Medicare does not cover power standing features. In addition, with the new Administration in place and CMS now under your leadership, the ITEM Coalition respectfully urges the agency to move forward with opening the long-pending National Coverage Analysis (NCA) for power standing systems as soon as possible. United Spinal advocacy and policy staff, as members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition met with a representative of the Centers for Medicare and Medicaid Services to urge the agency to move forward with opening the long-pending National Coverage Analysis (NCA) for power standing systems as soon as possible. This request was originally submitted jointly with the request for power seat elevation in September 2020. Clinical evidence demonstrates that Power Standing Systems offer substantial medical benefits, enabling individuals with disabilities to maintain their independence in the home and community. This delay is resulting in denied access for individuals with mobility impairments. Policy staff followed up the meeting with written comments. United Spinal signed onto a letter supporting the Centers for Medicare and Medicaid Servicess decision to issue a positive final Benefit Category Determination (BCD) for transanal irrigation (TAI) devices and accessories, designating devices with rectal catheters that have a sealing function (e.g., balloon or cone-based catheters) as prosthetic devices. The BCD opens the opportunity for TAI devices to be reimbursed by Medicare. The BCD was effective on April 1, 2025. CMS also issued revisions to the existing CPCS Level II codes: It is crucial for all beneficiaries to have access to TAI to meet their medical and individual needs without delays or interruptions. We encourage you to establish coverage for TAI, implement the modified codes into your systems and assign sustainable reimbursement, the letter read in part. United Spinal advocacy and policy staff met separately with officials from the Centers for Medicare and Medicaid Services (CMS) and the Office of Management and Budget opposing a CMS Proposed Rule that would severely restrict Medicare beneficiaries access to medically necessary urological, ostomy and tracheostomy supplies. The DME industry and disability organization are calling on CMS to pause consideration of the DMEPOS Competitive Bidding provisions included in the CY 2026 proposed rule, in order to prevent irreversible harm to suppliers and ensure continued access for Medicare beneficiaries. United Spinal submitted comments to the Centers for Medicare and Medicaid Services (CMS) in response to the Calendar Year (CY) 2026, CMS-1828-P, Home Health Prospective Payment System and Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) proposed rule that was published in the Federal Register on June 30, 2025. The comments focus on our serious concerns regarding the proposal to include tracheostomy, ostomy and urological supplies in the list of items CMS may subject to DMEPOS Competitive Bidding. We strongly oppose this proposal for the reasons discussed in the comment letter which may be reviewed at: https://downloads.regulations.gov/CMS-2025-0242-14479/attachment_1.pdf United Spinal, along with numerous other stakeholders of the ostomy, urological and tracheostomy patient communities, submitted comments in response to the Calendar Year (CY) 2026 Home Health Prospective Payment System and Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) proposed rule that was published in the Federal Register on June 30, 2025. The comments specifically focus on our grave concerns regarding the proposal to include ostomy, urological, and tracheostomy supplies in the list of items CMS may subject to DMEPOS Competitive Bidding Program. We strongly oppose this proposal for the following reasons: revising the definition of ostomy neurological and tracheostomy supplies is overstepping CMSs statutory authority. It also threatens patient health, safety, dignity and quality of life. The comments may be reviewed at:https://www.ostomy.org/wp-content/uploads/2025/09/2025_CMS-1828-P_Proposal_Opposition_Sign-On_Letter.pdf United Spinal, along with numerous other disability organizations, as members of the Consortium for Constituents with Disabilities (CCD) Health Task Force, signed onto a letter to the Centers for Medicare and Medicaid Services (CMS) to submit comments in response to the Calendar Year (CY) 2026 Home Health Prospective Payment System and Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) proposed rule that was published in the Federal Register on June 30, 2025. The comments focus on our serious concerns regarding the proposal to include ostomy and urological supplies in the list of items CMS may subject to DMEPOS Competitive Bidding. We strongly oppose this proposal for the reasons discussed in the comment letter. The letter may be reviewed at: https://downloads.regulations.gov/CMS-2025-0242-14519/attachment_1.pdf United Spinal, along with numerous other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, signed onto a letter to the Centers for Medicare and Medicaid Services (CMS) to submit comments in response to the Calendar Year (CY) 2026 Home Health Prospective Payment System and Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program (CBP) proposed rule that was published in the Federal Register on June 30, 2025. The comments focus on our serious concerns regarding the proposal to include ostomy and urological supplies in the list of items CMS may subject to DMEPOS Competitive Bidding. We strongly oppose this proposal for the reasons discussed in the comment letter. The letter may be reviewed at: https://downloads.regulations.gov/CMS-2025-0242-14640/attachment_1.pdf United Spinal, along with numerous other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, signed onto a letter to the Centers for Medicare and Medicaid Services (CMS) to submit comments in response to the Calendar Year 2026 Home Health Prospective Payment System and Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program proposed rule that was published in the Federal Register on June 30, 2025. The comments focus on our significant concerns regarding the proposal to include off-the-shelf (OTS) orthotics in the list of items CMS may subject to DMEPOS CBP, the proposed changes to the DMEPOS supplier accreditation process, and the proposed prior authorization exemption pathway for compliant DMEPOS suppliers. The comments may be reviewed at: https://downloads.regulations.gov/CMS-2025-0242-14648/attachment_1.pdf United Spinal, along with numerous other members of the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition, signed onto a letter encouraging the Centers for Medicare and Medicaid Services (CMS) to initiate future rulemaking as soon as possible to create and establish a more timely and predictable pathway for Medicare coverage of Food and Drug Administration (FDA)-designated breakthrough medical technologies. The letter read in part, Such a policy would remove unnecessary regulatory barriers and accelerate patient access to critical innovations-supporting clinicians in delivering the best possible care and helping improve health outcomes for millions of individuals with disabilities, functional limitations, and chronic conditions. https://itemcoalition.org/wp-content/uploads/2025/08/item-coalition-letter-to-cms-re-medicare-coverage-pathway-for-breakthrough-technology-final.pdf United Spinal, along with numerous other disability and clinical organizations, wrote to the bipartisan, bicameral leadership of Congress to express our profound concern and opposition over the proposal in the Calendar Year (CY) 2026 Home Health Prospective Payment System proposed rule (proposed rule) (CMS-1828-P), which proposes to wrongfully add ostomy, tracheostomy, and urological products-including catheters-to the Medicare Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS) Competitive Bidding Program. We urged Congressional leadership to engage with the Trump Administration, without delay, to ensure this proposal does not become final policy. Patient lives, disability rights, the integrity of American manufacturing and the proper application of federal law are at imminent risk. The letter may be review at: https://aahd.us/wp-content/uploads/2025/09/MedicareOstomyCompetitiveBidding-09152025-toCongress-ITEM-led.pdf United Spinal advocated for members of the House of Representatives to sign onto a letter to the Centers for Medicare and Medicaid Services (CMS) being led by Representatives Neal Dunn (R-FL) and Greg Murphy (R-NC) urging the agency not to move forward with the proposed expansion of the DMEPOS Competitive Bidding Program to include ostomy, tracheostomy and urological supplies. The letter expresses concern that the proposal conflicts with the goal of strengthening American manufacturing, securing our medical supply chains from foreign adversaries, and protecting the health and well-being of our nation's most vulnerable citizens.
United Spinal policy staff provided feedback to members of Congress on potential legislation that would improve access to parking lots, especially for wheelchair users through data collection and an accessible parking standards analysis by the Government Accountability Office. United Spinal policy staff participated in a panel discussion to advocate for United Spinals SecureRide initiative at the August 2025 meeting of the National Council on Disability (NCD) to advance safer more independent wheelchair securement across all modes of transportation. United Spinals SecureRide initiative was highlighted in the NCDs recent report on ground transportation as a potential accessibility solution for automated vehicles. Currently most wheelchair users must rely on additional human assistance to secure their wheelchairs. A recording of the presentation may be reviewed here: https://www.youtube.com/watch?v=jbc5lEC5jBY&t=13329s. The Report can be accessed here: https://www.ncd.gov/report/ground-transportation-for-people-with-mobility-disabilities-2025-challenges-and-progress/. United Spinal staff discussed potential legislative options to provide federal research with congressional staff to further develop automated securement for wheelchairs in motor vehicles. This would significantly improve the safety and independence of wheelchair users. United Spinal participated in Amtrak's quarterly call with disability community leaders.
United Spinal supports H. R. 4771/ S. 2438, the Transformation to Competitive Integrated Employment Act, which phases out the payment of subminimum wages under Section 14(c) of the FLSA over a five-year period. This legislation provides States, service providers, subminimum wage certificate holders, and other agencies with the resources they need to create competitive integrated employment service delivery models and the inclusive wraparound services that some e disabilities will need when subminimum wages are phased out. This legislation will align the treatment of workers with disabilities with existing federal policies.
United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the Office of Management and Budget regarding the Department of Justice regulation under Title II of the Americans with Disabilities Act (ADA) covering the accessibility of state and local government websites and mobile applications (the website rule) and in response to the letter you received from the American Council on Education (ACE) dated May 12, 2025 on that subject. The letter read in part, As a coalition of professionals and advocates dedicated to accessibility, we reject ACEs call for modifications to the website rule. We do not believe any such delay, rescission, or alteration to the website rule is necessary or appropriate and is, in fact, counterproductive. Greater accessibility to education not only improves educational outcomes for those with disabilities but all students. A comprehensive approach to that accessibility is long overdue, and the US Department of Justice Title II Rule brings us a big step in the right direction.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Council on Disability, Office of Management & Budget (OMB), SENATE, Transportation, Dept of (DOT)
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2025 · first_quarter · Q1
United Spinal advocacy and policy staff participated in a quarterly meeting of the Disability Community Advisory Group with DC HSEMA.
United Spinal policy staff provided feedback to a member of Congress on potential legislation that would improve the timeliness of repairs made to individually customized, medically prescribed wheelchairs. United Spinal endorsed the reintroduction of the CONNECT for Health Act in the 119th Congress. The CONNECT for Health Act will expand coverage of telehealth services through Medicare, make COVID-19 telehealth flexibilities permanent, improve health outcomes, and make it easier for patients to connect with their doctors. Current flexibilities are set to expire on September 30 unless Congress extends them. Engage with House and Senate and CMS to ensure a benefciary coding decision for transanal irrigation devices to be categorized as prosthetic devices. Met with CMS to discuss access to ostomy supplies. As a member of the Coalition to Preserve Rehabilitation Steering Committee - Support coverage of anti-obesity medications for people with disabilities. - Provided comments to the 2026 Medicare Advantage and Part D proposed rule. - Submitted New Policy Statement on Public Comment for Agency Rulemaking.
United Spinal advocated against Medicaid cuts. United Spinal asked members of Congress to sign onto letters of support with their colleagues, as part of United Spinal's virtual advocacy day urging bipartisan congressional leadership on the respective appropriations subcommittee to support increased federal funding for Spinal Cord Injury Model Systems as well as at the Burn Model Systems and the Traumatic Brain Injury Model Systems. Increased funding at all three Model Systems, including the Model Systems Knowledge Translation Center is needed to translate data, research, and clinical knowledge into resources to benefit the SCI, TBI and burn injury communities. Advocate to save DOD CDMRP Spinal Cord Injury Research Program (SCIRP). The Federal Budget Resolution that was passed on 3.14.25 cut 57% - approximately $850 million - out of the Congressionally Directed Medical Research Program (CDMRP). This is a Department of Defense program that funds biomedical research programs, including spinal cord injury. United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), supported a letter the DRRC co-coordinators submitted to the Acting Director of the Office of Management and Budget about the deep concerns the members of the Coalition had with the OMB Memorandum Pausing Federal Financial Assistance (M-25-13). United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), signed onto a letter to the Office of Management and Budget, U. S. Department of Health and Human Services and the National Institutes of Health about major concerns with cuts to NIH funding through indirect cost cap. The letter read in part, The Disability & Rehabilitation Research Coalition (DRRC) appreciates and supports maximizing the federal return on investment in medical research but has serious concerns about the recently published Supplemental Guidance from the National Institutes of Health (NIH) capping indirect costs for grantees at 15 percent. This unprecedented policy change will have significant and permanent negative consequences on biomedical research, particularly the science of medical rehabilitation, disability, and chronic illness. We strongly urge you to reconsider this announcement and work with our coalition and other research organizations to chart an alternative path forward. United Spinal joined the American Association of People with Disabilities, along with numerous disability, civil rights, aging, and mental health organizations, in submitting a letter expressing deep concerns about the plan to re-organize the Department of Health and Human Services. especially the plan to eliminate the Administration for CommunityLiving (ACL) and split its functions across three other agencies, as well as the consolidation of the Office for Civil Rights (OCR) and Substance Abuse and Mental Health Services Agency (SAMHSA). United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), signed onto a letter to urge and meet with HHS Secretary Kennedy to reconsider plans to dismantle the Administration for Community Living (ACL), including the National Institute for Disability, Independent Living, and Rehabilitation Research (NIDILRR), in order to meet with national disability, rehabilitation, and other stakeholder organizations to discuss the future of ACL, and seriously reconsider the reorganization of this essential government agency for older Americans and individuals with disabilities. As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal endorsed comments submitted to the Office of Management and Budget (OMB) about OMB Memorandum Pausing Federal Financial Assistance (M-25-13). United Spinal, as a member of the Disability & Rehabilitation Research Coalition (DRRC), wrote to commend the National Institutes of Health (NIH) and the Division of Program Coordination, Planning, and Strategic Initiatives (DPCPSI) for their work to improve disability research across NIH on behalf of the one in four Americans with disabilities. Supporting disability research and investing in training the next generation of disability researchers must be a central goal at NIH given the critical need for biomedical, functional, and outcomes research. United Spinal, as members of the Disability and Aging Collaborative (DAC), the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations wrote to the bipartisan leadership of the House Energy and Commerce Committee to urge excluding Medicaid cuts, work requirements, or any changes that limit funding or eligibility, from budget reconciliation or other legislation. The letter read in part, People with disabilities, older adults, family caregivers and their children, direct care workers, and other low-income individuals and families depend on Medicaid every day for their health, safety, and independence. Medicaid enables them to go to work and to care for their loved ones. It is our communities' lifeline, and we cannot afford for any part of it to be cut. United Spinal advocacy and policy staff met with staff for Sen. Tammy Duckworth (D-IL) to discuss legislation to address wheelchair repair issues, as well as an appropriations letter for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal advocacy and policy staff met with House and Senate to discuss signing an appropriations letter in support of the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal advocacy and policy staff signed a CCD co-chairs statement expressing dismay and concern about the reorganization of the Department of Health and Human Services. United Spinal supports H.R. 2320, the Mobility Means Freedom Tax Credit Act.
United Spinal provided feedback to the National Council on Disability on autonomous vehicle accessibility for a forthcoming report on transportation. United Spinal advocacy and policy staff participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal advocacy and policy staff met with staff for Rep. Steve Cohen (D-TN) to discuss federal legislation to address accessible parking issues.
United Spinal signed a CCD comment letter in support of a Notice of Proposed Rulemaking that would begin phasing out the 14(c) subminimum wage program for people with disabilities.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Labor, Dept of (DOL), Natl Council on Disability, Natl Highway Traffic Safety Administration (NHTSA), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), White House Office
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2024 · fourth_quarter · 4A
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024. United Spinal co-led and participated in virtual events with a coalition of disability organizations and the Service Employees International Union, inviting members of Congress and their staffs to learn about the importance of urging the US Department of Transportation to finalize its rule to ensure the safety and dignity of wheelchair users in air travel.
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2024 · third_quarter · 3A
United Spinal policy staff attended the 9.9.24 White House celebration of Disability Pride & the ADA's 34th Anniversary.
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
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2024 · fourth_quarter · Q4
United Spinal Association participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
United Spinal Association participated in a meeting with Amtraks Board of Directors and senior leadership along with other representatives from disability organizations. United Spinal Association met with the U.S. Access Board to discuss United Spinals SecureRide Coalition, access to U.S postal facilities and the need for increased accessible parking spaces.
United Spinal participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal signed onto a coalition letter to President Biden in support of finalizing consumer protections in air travel for wheelchair users United Spinal met with DOT leadership celebrating passage of final rule: Ensuring Safe Accommodations for Air Travelers With Disabilities Using Wheelchairs. United Spinal urged many provisions to be included in final rule. Met with Department of Transportation official regarding opportunities to create transportation options for people with disabilities. Met with White House official to urge action on the U.S. Department of Transportations (Department) rulemaking titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144) and the Centersfor Medicare and Medicaid services national coverage determination on power wheelchair standing systems. United Spinal participated in a Department of Transportation update about Transportation Secretary Buttigiegs announcement of a $50 million fine against American Airlines for violating the rights of passengers with disabilities under the ACAA. As a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force, United Spinal, along with numerous other disability organizations, commented on the Department of Transportations Notice of Proposed Rulemaking, Family Seating in Air Transportation (DOT-OST-2024-0091). The NPRM explains that the department-initiated rulemaking is based on the nature, severity, and increased number of family seating complaints. While we understand the departments actions to ensure safety for children, in any rulemaking, the department must also guarantee passengers with disabilities maintain their rights to boarding and seating accommodations under the Air Carrier Access Act (ACAA). United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). Senate Through United Spinals social media, recognized Senator Tammy Duckworths work in 2018 to change federal reporting requiring wheelchair and scooter mishandling to be more transparent. Urged the Senator to support US Department of Transportation to finalize the rule on ensuring the safety and dignity of wheelchair users in air travel. Media outreach recognizing contributions of Senator Tammy Duckworth on the Senators work to make the nations rail stations more accessible.United Spinal is pleased to have supported the All Stations Accessibility Programs Act. Engaged with the U.S. Access Board regarding United Spinal's advances on automated wheelchair securement as part of our SecureRide Coalition activities, including being awarded a DOT Small Business Innovation Research grant to two of the Coalition's partners.
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2024 · third_quarter · Q3
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act. S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
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2024 · second_quarter · Q2
United Spinal participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
United Spinal supports: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act/ S. 1939, FAA Reauthorization Act of 2023 H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal, along with numerous other disability organizations, signed on to a letter respectfully requesting that the U.S. Department of Transportation deny any requests for an extension of the comment period for the notice of proposed rulemaking (NPRM) titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST-2022-0144. United Spinal, along with numerous other disability organizations, helped draft and submitted comments in response to the U.S. Department of Transportations Notice of Proposed Rulemaking (NPRM), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, (DOT- OST-2022-0144). United Spinal submitted comments in response to the Department of Transportations Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144). United Spinal submitted comments in response to the National Council on Disabilitys (NCD) call for public comment on public facilities and transportation issues. The letter read in part, United Spinal applauds the work of the NCD in raising awareness of issues so vital and critical to our community. NCD serves as an essential bully pulpit to air our communitys legitimate grievances and continues to remind its fellow federal agencies, the White House and members of Congress about the unfinished accessibility work across America. Indeed, as we point out below, the issue of accessibility demands constant vigil in the federal community, lest we regress on this basic fundamental right. United Spinal had a conversation with the National Council on Disability regarding accessibility activities in autonomous vehicle design and accessible transportation. United Spinal supports H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). United Spinal, as a member of the SecureRide Coalition, continued to coordinate with Tool, Inc., a company that has successfully submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH 4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment.
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2024 · first_quarter · Q1
United Spinal staff participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal staff participated in a meeting with Amtrak to review their plans for their replacement long-distance trainsets. United Spinal staff met with DOT staff to provide information about the results of United Spinals data gathering efforts regarding the availability of accessible parking spaces in different states and urging DOT to support updating the current ADA minimum standards for the number of accessible parking spaces required in lots and garages. House Senate United Spinal supported the accessibility provisions in, H.R. 7126, the Autonomous Vehicle Accessibility Act, introduced by Representative Greg Stanton (D-AZ-4). https://www.congress.gov/bill/118th-congress/house-bill/7126/all-info?s=1&r=3 Department of Labor Department of Transportation United Spinal contributed comments and responded to comments of others in an IdeaScale: Dialogue about Exploring the Future of Public Transportation Research: A National Online Dialogue Comments in part included topic about research keeping pace with the continuing development of technologies that could improve accessibility for people with disabilities. Department of Transportation United Spinal supported the Department of Transportations future initiative to address the substantive issues involved with the service animal rule. The comments read in part, We request that as soon as possible you also convene meetings and conduct outreach throughout the disability community ,including wheelchair users, to address issues specific to the usefulness of the form, its role in the equitable air travel rights and responsibilities of passengers with disabilities as well as evaluating how well the current regulatory environment assist individuals using service animals in air travel. Department of Transportation United Spinal, along with numerous other disability organizations, as members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force signed on to comments on the Department of Transportations request for information (RFI) on accessibility improvements for transportation facilities, Docket No: DOT-OST-2023-0166. United Spinal submitted our own comments to the U. S. Department of Transportations (DOT) request for information on accessibility improvements for transportation facilities, Docket No: DOT-OST-2023-0166. The comments read in part: United Spinal contributed to and wholeheartedly supports the comments submitted by the Consortium for Constituents with Disabilities (CCD) in response to this RFI. We wish to further comment on some topics specifically from the perspective of the wheelchair user. Department of Transportation United Spinal, as a member of the SecureRide Coalition, helped draft and signed a letter to Tool, Inc., a company that has submitted an application for a Department of Transportation Small Business Innovation Research (SBIR) Program 24-NH4 Phase I Pre-Offer, Re: 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment. The letter read in part: The SecureRide Coalition strongly supports Tool, Inc.s application for the U. S. Department of Transportations (DOT) Phase I Small Business Innovation Research (SBIR) 24-NH4: Lightweight Universal Docking Interface Geometry Manual Wheelchair Attachment. Due to the obvious efficiencies that can be achieved by employing integrated research, design and development methodologies with the two essential components of a wheelchair securement system, SecureRide also fully supports Tool., Inc.s SBIR application, 24-NH6: Anchor Design for Universal Docking Interface Geometry. National Highway Traffic Safety Administration United Spinal, as a member of SecureRide, met with National Highway TrafficSafety Administration officials in the Human Factors/Engineering Integration Division to discuss coordination of development of safe wheelchair securement standards. United Spinal Association appreciated the opportunity to provide comments on the Department of Transportations (DOT) renewal of the Service Animal Behavior and Health Attestation Form and supported the Department of Transportations future initiative to address the substantive issues involved with the service animal rule. The comments read in part, We request that as soon as possible you also convene meetings and conduct outreach throughout the disability community, including wheelchair users, to address issues specific to the usefulness of the form, its role in the equitable air travel rights and responsibilities of passengers with disabilities as well as evaluating how well the current regulatory environment assist individuals using service animals in air travel.
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2023 · fourth_quarter · Q4
United Spinal led a delegation of disability organizations in a meeting with Assistant Attorney General, DOJ, Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community. United Spinal signed a thank you letter to the Department of Health and Human Services for publishing its proposed rule updating Section 504 regulations. Section 504 - Rehabilitation Act - United Spinal Association submitted comments in response to the Notice of Proposed Rulemaking on Discrimination on the Basis of Disability in Health and Human Service Programs or Activities. Docket No: 2023-19149, RIN: 0945-AA15. United Spinal also endorsed and drafted comments submitted by the Consortium of Citizens with Disabilities. United Spinal Association. as members of the Disability & Rehabilitation Research Coalition (DRRC) endored/drafted comments to the U.S. Department of Health and Human Services (HHS). United Spinal, along with numerous other disability organizations, as members of multiple Task Forces of the Consortium for Citizens with Disabilities (CCD) submitted comments about the proposed Department of Justices Notice of Proposed Rulemaking (NPRM) implementing Title II of the Americans with Disabilities Act for web- and mobile-app-based information and services. United Spinal signed and drafted a Consortium for Constituents with Disabilities comment letter to the Department of Health and Human Services providing comments on its proposed rule updating Section 504 regulations. in response to the landmark proposed rule that would update and advance protections for people with disabilities pursuant to Section 504 of the Rehabilitation Act of 1973. United Spinal signed and wrote a comment letter to HHS on its proposed rule updating Section 504 regulations. United Spinal signed a letter to the Department of Justice applauding the release of the Notice of Proposed Rulemaking implementing Title II of the ADA for web- and mobile-app-based information and services and providing comments. United Spinal signed a letter to the Census Bureau opposing proposed changes to the definition of disability in the American Community Survey. On November 29th, United Spinal staff participated remotely in a hybrid Capitol Hill briefing from members of the Consortium for Constituents with Disabilities (CCD) for members of Congress. Supports REAADI for Disasters Act/S. 1049/H.R. 2371. Endorsed American Spinal Injury Association/Academy of Spinal Cord Injury Professionals' Letter to the U.S. Census Bureau raising concerns about diminished calculations of the disability population. Discussed pending nominations with White House Office. Discussed advocating for Medicare coverage of standing CRT under the DMEPOS benefit with White House Office.
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2023 · third_quarter · Q3
United Spinal Association: participated in a quarterly call with Amtrak along with other representatives from disability organizations. participated in a roundtable discussion with Amtraks Board of Directors. participated in a meeting with Amtrak to review their plans for their replacement long-distance trainsets. United Spinal Association submitted comments in response to the U. S. Department of Transportation, National Highway Traffic Safety Administration New Car Assessment Program - Crashworthiness Pedestrian Protection, Docket No. NHTSA-2023-0020. United Spinal submitted comments on the U. S. Department of Transportations Request for Information on Potential Research and Development Areas of Interest for the Advanced Research Projects Agency-Infrastructure (ARPA-I) (Docket No. DOT-OST-2023-0092). United Spinal Association commented on DOT NHTSA notice of proposed rulemaking (NPRM) to adopt a new Federal Motor Vehicle Safety Standard to require automatic emergency braking (AEB), including pedestrian AEB (PAEB), systems on light vehicles, [Docket No. NHTSA-2023-0021]. United Spinal Association, along with numerous other disability organizations, as members of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force and fellow advocates, signed on to comments to the bipartisan congressional leadership of the House Energy and Commerce Committee for the record of a hearing held on July 26th, Self-Driving Vehicle Legislation on Framework: Enhancing Safety, Improving Lives and Mobility, and Beating China. United Spinal Association, as a member of the Transportation Task Force of the Consortium for Citizens with Disabilities (CCD), supported comments submitted by the task Forces co-chairs on Bus Compartment Redesign and Bus of the Future Initiatives, Docket No. FTA-2023-0013.
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2023 · second_quarter · Q2
United Spinal supports the Air Carrier Access Amendments Act S. 545/H.R. 1267, the Prioritizing Accountability and Accessibility for Aviation Consumers Act H.R. 1445/S. 400, H.R. 3762 / S.1765 - the Emergency Vacating of Aircraft Cabin Act, the Airline Safety Information and Entertainment Access Act, S. 1119, the MOBILE Act introduced by U.S. Rep. Steve Cohen (D-TN-09) H.R. 3802/S. 1459; H.R.3743, a bill To amend the FAA Reauthorization Act of 2018 to extend the advisory committee on the air travel needs of passengers with disabilities. United Spinal supports H.R.1772, the wheelchairs on Airplanes Act introduced by U.S. Representative Dina Titus (D-NV-01). The would help prevent discrimination against airline passengers with disabilities who use lithium-ion-powered wheelchairs and mobility aids that are safe for air travel. United Spinal supports the disability-related provisions contained in the FAA Reauthorization Act of 2023, S. 1939. Prioritizing Accountability and Accessibility for Aviation Consumers Act of 2023:requires the U.S. Department of Transportation (DOT) publish an annual report on how quickly, effectively and efficiently consumer complaints related to traveling with a disability are received, addressed and resolved by DOT. Mobility Aids On Board Improve Lives and Empower All (MOBILE) Act: requires DOT issue an advisory circular that provides guidance to airlines on publishing information related to powered wheelchairs, including the dimensions of aircraft cargo holds, and evaluate the frequency and types of mishandling of mobility aids and take actions towards making in-flight wheelchair seating available. Access and Dignity for All People who Travel (ADAPT) Act: requires DOT issue regulations regarding seating accommodations for passengers with disabilities that takes into account being seated next to their companion and requires the Secretary of Transportation establish an optional Known Service Animal Travel Pilot Program, providing service animal users the opportunity to participate in a streamlined pre-registration process. Equal Accessibility to Passenger Portals (Equal APP) Act: requires DOT issue regulations to ensure that customer-facing websites, applications and information communication technologies (ICT) of airlines and airports are accessible. It would require the Secretary to conduct regular audits of such websites, applications and ICTs and allow the Secretary to hold non-compliant entities accountable by issuing civil penalties. Store On-board Wheelchairs in Cabin (STOWIC) Act: requires airlines provide information on the airline website-and anywhere people can make reservations- regarding the rights and responsibilities of both airlines and passengers as to the availability of on-board wheelchairs. It would also require annual staff training regarding assisting people with disabilities on the use of on-board wheelchairs and the right to request an on-board wheelchair. It would allow the Secretary to issue enhanced civil penalties if airlines fail to provide an on-board wheelchair. Airport Accessibility Grants: authorizes a pilot grant program to help airports make their facilities more accessible. The program would be funded at $20 million per year from Airport Improvement Program (AIP) funds. Provisions of the Air Carrier Access Amendments Act. United Spinal supports the disability-related provisions contained in the FAA Reauthorization Act of 2023, H. R. 3935, the Securing Growth and Robust Leadership in American Aviation Act including provisions of the Air Carrier Access Amendments Act. United Spinal supports H.R. 1499/ S. 753, the Good Jobs for Good Airports Act. United Spinal endorsed a letter, dated May 3, 2023, U.S. Representatives Dina Titus (D-NV 1st), Steve Cohen (D-TN-09) and Abigail Spanberger (D-VA-07) submitted to U.S. Department of Transportation (DOT) Secretary Pete Buttigieg seeking greater transparency of disability-related air travel complaints the DOT receives
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2023 · first_quarter · Q1
United Spinal supports the Air Carrier Access Amendments Act S. 545/H.R. 1267. United Spinal supports the Mobility Aids On Board Improve Lives and Empower All (MOBILE) Act/Sen. Duckworth. United Spinal supports Equal Accessibility to Passenger Portals Act.
United Spinal participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal participated in a call with Amtrak providing an update on the new Acela trainsets. United Spinal participated in calls with staff for Rep. Dina Titus (D-NV) and Sen. Bob Menendez (D-NJ) about reintroduction of the Disability Access to Transportation Act. United Spinal agreed to support a transportation bill drafted by Representative Joe Wilson (D-SC-2). The legislation would direct the Secretary of Transportation to establish a program to provide grants to protection and advocacy systems to advocate for individuals with disabilities to access transportation, and for other purposes. United Spinal supports the EVAC Act (Sen. Duckworth).
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2022 · fourth_quarter · Q4
United Spinal advocacy and policy staff endorsed a CCD letter to the Chairs and Ranking Members of the House Financial Services Committee and Senate Banking Committee urging Congress to provide policy solutions to prevent the forced removal and institutionalization of people with disabilities due to failures in the social safety net.
Met with U.S. Department of Labor, Office of Disability Employment Policy, along with numerous other disability organizations, to discuss employment challenges for the disabled workforce.
United Spinal policy staff, along with numerous other disability organizations, participated in a U.S. Department of Transportation (DOT) - Disability Advocates Meeting. Policy staff raised concerns about whether DOT had adequate staffing and resources to more effectively and expeditiously respond to passengers with disabilities air travel complaints. Currently, complaints administered by the DOTs Office of Aviation Consumer Protection are averaging a response timeframe of over a year. To ensure safer, more accessible air travel for people with disabilities, United Spinal in response to the Federal Aviation Administrations request for comments on minimum seat dimensions necessary for safety of air passengers, (Emergency Evacuation) submitted comments to Docket No. FAA-2022-1001. United Spinal, as members of the Consortium for Constituents with Disabilities (CCD) Transportation and Emergency Management Task Forces, United Spinal supported comments the Task Force Co-Chairs submitted. United Spinal also supported comments made by Paralyzed Veterans of America on Docket No. FAA-2022-1001. To ensure safer, more accessible air travel for people with disabilities, especially wheelchair users, United Spinal submitted written testimony for the hearing record of the House Committee On Transportation And Infrastructure Subcommittee on Aviation: Accessible air travel: addressing challenges for passengers with disabilities, held on November 17, 2022. United Spinals comments addressed the reauthorization of the Federal Aviation Administration next year and our longstanding priority that the provisions of H.R.1696 - Air Carrier Access Amendments Act of 2021 (ACAAA) be included in the reauthorization. To ensure safer, more accessible air travel by people with disabilities, especially wheelchair users, United Spinal submitted comments in response to a Notice of Proposed Rulemaking (NPRM) on airline ticket refunds and airline consumer protections, DOT-OST-2022-0089. Co-sponsor and pass S. 642/H.R. 1696, the Air Carrier Access Amendments Act (ACAA) of 2021.
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2022 · third_quarter · Q3
United Spinal Association supports HR 3932 / S 2076 The Pioneering Antimicrobial Subscriptions to End Up surging Resistance (PASTEUR) Act. Signed onto letter to Sen. Schumer and Sen. McConnell asking to extend coverage for telehealth services under Medicare to continue for another 2 years following the end of the Public Health Emergency (PHE). Support increased funding for SCI Model Systems via NIDILRR funding. Support catheter coding reform Support Medicare coverage of seat elevation and standing devices in poweer wheelchairs and support regulation to lift the 'in-the-home' restriction on Medicare coverage of wheelchairs. Support the H.R. 4040, the Advancing Telehealth Beyond COVID-19 Act." Financial Assistance for complex rehab technology wheelchair manufacturers and wheelchair service providers to encourage federal financial assistance to address unsustainable cost increases CRT suppliers have incurred over the past two years to allow them to maintain critical access to CRT and the supporting services for people with disabilities. CRT providers and manufacturers have incurred significant operating challenges and increased expenses over the past two years. Supports increaed funding for home and community-based services. To increase health outcomes, safety and accessibility,on August 3, United Spinal, a member of the Steering Committee of the ITEM Coalition, participated in a virtual roundtable discussion on Medicare coverage of seat elevation and standing systems used in power wheelchairs hosted by the National Council on Disability. United Spinal also submitted comments to NCD on the need for Medicare coverage. On 9.14.22, United Spinal GR Staff presented at and United Spinal, as Steering Committee member of the ITEM Coalition, co-hosted an ITEM Coalition Congressional Briefing on Medicare Coverage of Seat Elevation and Standing Systems in Power Wheelchairs. It featured remarks from Members of Congress, wheelchair users advocates and clinicians. United Spinal, as a member of the ITEM Coalition, advocated for members of Congress to sign on to hosue and Senate Dear Colleague letters to support Medicare Coverage of Seat Elevation and Standing Systems in Power Wheelchairs. Submitted comments to CMS National Coverage Analysis to urge for Medicare coverage of seat elevation in power wheelchairs and to urge for Medicare coverage of standindg devices systems in power wheelchairs. Submitted comments to HHS to ensure non-discrimination protections for people with disabilities under Section 1557. Support H.R. 8746 "Access to Inpatient Rehabilitation Therapy Act" or three hour rule bill. Endorsed a Colaiton to Preserv Rehabilitation comment letter for Calendar Year (CY) 2023 Physician Fee Schedule proposed rule. This letter focuses on two main provisions in the rule, in line with past CPR comment letters (in particularly our comments on the CY 2021 Proposed Rule). 1.The impact of proposed reimbursement cuts that will potentially impact patient access to care; and 2.The treatment of telehealth as the federal government prepares for the expiration of the public health emergency.
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2022 · second_quarter · Q2
Ask Senators/Representatives to work with United Spinal to draft legislation to direct Centers for Medicare and Medicaid Services (CMS) to lift the in the home restriction in order to allow access to mobility devices that meet wheelchair users needs both in the home AND/OR in the community and to ensure that CMS holds to its commitment of opening the National Coverage Determination for wheelchair seat elevation and standing device coverage no later than August. United Spinal submitted a letter to CMS on behalf of United Spinal's Access and Care Coalition for the need to reform catheter coding.
To advocate for equitable and inclusive accessibility in air travel for people with disabilities, especially wheelchair users, United Spinal public policy staff met with congressional staff in support of the Air Carrier Access Amendments Act H.R. 1696/S. 642. To advocate for equitable and inclusive accessibility in air travel for people with disabilities, especially wheelchair users, United Spinal submitted additional comments to the US Department of Transportations Docket No. DOT-OST-2022-0014, Air Travel by Persons Who Use Wheelchairs. To increase accessibility in air travel, United Spinal submitted comments to the U.S. Department of Transportation (DOT) regarding the proposed rule, Accessible Lavatories on Single-Aisle Aircraft: Part 2, RIN 2105-AE89, DOT-OST-2021-0137. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force, supported comments submitted to the Department of Transportation (DOT) in response to the proposed rule, Accessible Lavatories on Single-Aisle Aircraft: Part 2, RIN 2105-AE89. United Spinal, along with numerous other disability and veterans organizations, coordinated by Paralyzed Veterans of America submitted programming recommendations for inclusion in the Fiscal Year 2023 Federal Aviation Administration Reauthorization to the Senate Commerce Committee.
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2022 · first_quarter · Q1
United Spinal advocacy and policy staff met with staff for Senator Mike Crapo (R-ID) to ask for his support for the ABLE Age Adjustment Act (S. 331).
United Spinal advocacy and policy staff raised issues to discuss in a conversation with Senator Duckworths (D-IL) office about disability rights issues that office would like to pursue. United Spinal raised concerns about access to healthcare with HHS OCR and Section 504 of the Rehabilitation Act. United Spinal advocacy and policy staff helped to organize and participated in a listening session with representatives from the U.S. Department of Justices Civil Rights Division on issues of importance to the disability community, including enforcement of the Olmstead decision, web accessibility, medical discrimination, the 988 hotline, discrimination against students, AI discrimination, voting, guardianship issues, and coordination with other agencies.
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2021 · fourth_quarter · Q4
United Spinal advocacy and policy staff discussed accessibility concerns in a quarterly meeting of the Disability Community Advisory Group with the District of Columbia Homeland Security Emergency Management Agency.
United Spinal advocacy and policy staff participated shared concerns around access in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal advocacy and policy staff, along with our CEO, met with several Congressional offices to discuss priorities, including the Disability Access to Transportation Act (H.R. 1697/S. 2038), and the Air Carrier Access Amendments Act (H.R. 1696/S. 642). United Spinal continued partnering wtih May Mobility and other partners on a project for further consideration with the U.S. Department of Transportations Inclusive Design Challenge to create more accessibility for people with disabilities as well as everyone else, particularly in utilizing new technologies with automated vehicles and related infrastructure.
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2021 · second_quarter · 2A
â--�United Spinal advocacy and policy staff worked with staff from the office of Rep. Lucy McBath (D-GA) in support of a House sign-on letter to the House Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022. â--�United Spinal advocacy and policy staff submitted House and Senate appropriations requests in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022.
â--�United Spinal advocacy and policy staff worked with the staff of Sen. Bob Casey (D-PA) and Sen. Jerry Moran (R-KS) to introduce and pass S. Res. 278, a Senate resolution recognizing United Spinals 75th anniversary. â--�United Spinal advocacy and policy staff discussed disability representation among Congressional staff, with Rep. Ayanna Pressley as well as other issues such as Spinal Cord Injury Model Systems funding and United Spinals 75th anniversary resolution. â--�United Spinal advocacy and policy staff met with staff from the House Select Committee on the Modernization of Congress to discuss the recruitment, hiring, development, and retention of people with disabilities as Congressional staffers, as well as the need for every Congressional office to formally designate a staffer or legislative team to cover disability issues as a part of their issue portfolio.
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2021 · third_quarter · Q3
United Spinal advocacy and policy staff met with staff from Sen. Young (R-IN) to discuss the ABLE Age Adjustment Act (S. 331) which United Spinal supports.
Met with White House Equity Task Force to discuss issues impacting people with disabilities. United Spinal support the Disabled Access Credit Expansion Act in the Senate.
United Spinal Association signed onto a letter to the Department of Justice in support of their interim final rule revoking their previous interim final rules related to the use of guidance by the Department.
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2021 · first_quarter · 1A
United Spinal advocacy and policy staff participated in a Consortium for Citizens with Disabilities co-chairs meeting with EEOC Chair Charlotte Burrows, Vice Chair Jocelyn Samuels, and staff to discuss employment-related issues, including potential guidance on employer mandates for COVID vaccination, policies for recruiting and hiring people with disabilities for federal jobs, and hiring discrimination. United Spinal signed a Consortium for Citizens with Disabilities letter of support for the Pregnant Workers Fairness Act (H.R. 1065). United Spinal signed a letter to House and Senate Democratic leaders and committee chairs asking that any proposal to increase the minimum wage include commensurate Medicaid funding for rate increases to cover the increased labor costs.
To maximize the return on the federal research investment with the goal of improving the ability of Americans with disabilities, United Spinal as a member of the the Disability and Rehabilitation Research Coalition (DRRC), along with numerous other disability organizations, signed onto DRRC comments on the draft Strategic Plan for the National Institute for Neurological Disorders and Stroke. To support federal funding for assistive technology through supporting the Assistive Technology Act and to share with members of Congress how AT plays a role in people with disabilities lives, the Consortium for Citizens with Disabilities Telecommunications and Technology Task Force promoted National Assistive Technology Awareness Day to be held April 14, 2021. United Spinal advocacy and policy staff met with ACL Acting Administrator Alison Barkoff and staff to discuss the Paralysis Resource Center grant and United Spinals support of increased funding for the Spinal Cord Injury Model Systems program, which is funded through ACL. United Spinal signed a letter to HHS supporting moving forward with a Request for Information regarding disability rights, withdrawing and revising a proposed rule on HIPAA, and revisiting a final rule on the ACAs nondiscrimination provisions. United Spinal advocacy and policy staff participated in a meeting with Marcella Nunez-Smith, Chair of the COVID-19 Equity Task Force, and officials from HHS and the White House Domestic Policy Council to discuss COVID-19 equity issues for the disability community. United Spinal advocacy and policy staff met with Rep. Lucy McBath and staff to discuss support for United Spinals application for the Paralysis Resource Center, a funding increase for the Spinal Cord Injury Model Systems program at the National Institute on Disability, Independent Living, and Rehabilitation Research, and a Congressional resolution marking United Spinals 75th anniversary. United Spinal advocacy and policy staff met with Rep. Grace Meng and staff to discuss support for United Spinals application for the Paralysis Resource Center, a funding increase for the Spinal Cord Injury Model Systems program at the National Institute on Disability, Independent Living, and Rehabilitation Research, and a Congressional resolution marking United Spinals 75th anniversary. United Spinal signed a Consortium for Citizens with Disabilities letter of support for the Mental Health Justice Act (H.R. 1368/S. 515). Signed on to a Consortium for Citizens with Letter to the House and Senate thanking them for dedicated HCBS funding. Signed onto letters of support for protections for durable medical equipment, complex rehab technology and rehabilitation. United Spinal supports: * Protecting Access to Post-COVID-19 Telehealth Act, bipartisan legislation introduced by Reps. Mike Thompson (D-CA), Peter Welch (VT-AL), David Schweikert (R-AZ), Bill Johnson (R-OH), and Doris Matsui (D-CA * Expanded Telehealth Access Act (H.R. 2168), a bipartisan bill introduced by Reps. Mikie Sherrill (D-NJ) and David McKinley (R-WV). To promote healthcare of wheelchair users, United Spinal submitted comments in support of the National Institutes of Health (NIH) Pathways to Prevention Workshop: Physical Activity and Health for Wheelchair Users draft (Draft) report.
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2021 · second_quarter · Q2
United Spinal advocacy and policy staff participated in a quarterly meeting of the Disability Community Advisory Group with DC HSEMA on emergency preparedness issues for the disability community.
â--�United Spinal advocacy and policy staff worked with the staff of Sen. Bob Casey (D-PA) and Sen. Jerry Moran (R-KS) to introduce and pass S. Res. 278, a Senate resolution recognizing United Spinals 75th anniversary. â--�United Spinal advocacy and policy staff discussed disability representation among Congressional staff, with Rep. Ayanna Pressley as well as other issues such as Spinal Cord Injury Model Systems funding and United Spinals 75th anniversary resolution. â--�United Spinal advocacy and policy staff met with staff from the House Select Committee on the Modernization of Congress to discuss the recruitment, hiring, development, and retention of people with disabilities as Congressional staffers, as well as the need for every Congressional office to formally designate a staffer or legislative team to cover disability issues as a part of their issue portfolio.
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2021 · first_quarter · Q1
United Spinal advocacy and policy staff participated in a Consortium for Citizens with Disabilities co-chairs meeting with EEOC Chair Charlotte Burrows, Vice Chair Jocelyn Samuels, and staff to discuss employment-related issues, including potential guidance on employer mandates for COVID vaccination, policies for recruiting and hiring people with disabilities for federal jobs, and hiring discrimination. United Spinal signed a Consortium for Citizens with Disabilities letter of support for the Pregnant Workers Fairness Act (H.R. 1065). United Spinal signed a letter to House and Senate Democratic leaders and committee chairs asking that any proposal to increase the minimum wage include commensurate Medicaid funding for rate increases to cover the increased labor costs.
To maximize the return on the federal research investment with the goal of improving the ability of Americans with disabilities, United Spinal as a member of the the Disability and Rehabilitation Research Coalition (DRRC), along with numerous other disability organizations, signed onto DRRC comments on the draft Strategic Plan for the National Institute for Neurological Disorders and Stroke. To support federal funding for assistive technology through supporting the Assistive Technology Act and to share with members of Congress how AT plays a role in people with disabilities lives, the Consortium for Citizens with Disabilities Telecommunications and Technology Task Force promoted National Assistive Technology Awareness Day to be held April 14, 2021. United Spinal advocacy and policy staff met with ACL Acting Administrator Alison Barkoff and staff to discuss the Paralysis Resource Center grant and United Spinals support of increased funding for the Spinal Cord Injury Model Systems program, which is funded through ACL. United Spinal signed a letter to HHS supporting moving forward with a Request for Information regarding disability rights, withdrawing and revising a proposed rule on HIPAA, and revisiting a final rule on the ACAs nondiscrimination provisions. United Spinal advocacy and policy staff participated in a meeting with Marcella Nunez-Smith, Chair of the COVID-19 Equity Task Force, and officials from HHS and the White House Domestic Policy Council to discuss COVID-19 equity issues for the disability community. United Spinal advocacy and policy staff met with Rep. Lucy McBath and staff to discuss support for United Spinals application for the Paralysis Resource Center, a funding increase for the Spinal Cord Injury Model Systems program at the National Institute on Disability, Independent Living, and Rehabilitation Research, and a Congressional resolution marking United Spinals 75th anniversary. United Spinal advocacy and policy staff met with Rep. Grace Meng and staff to discuss support for United Spinals application for the Paralysis Resource Center, a funding increase for the Spinal Cord Injury Model Systems program at the National Institute on Disability, Independent Living, and Rehabilitation Research, and a Congressional resolution marking United Spinals 75th anniversary. United Spinal signed a Consortium for Citizens with Disabilities letter of support for the Mental Health Justice Act (H.R. 1368/S. 515). Signed on to a Consortium for Citizens with Letter to the House and Senate thanking them for dedicated HCBS funding. Signed onto letters of support for protections for durable medical equipment, complex rehab technology and rehabilitation. United Spinal supports: * Protecting Access to Post-COVID-19 Telehealth Act, bipartisan legislation introduced by Reps. Mike Thompson (D-CA), Peter Welch (VT-AL), David Schweikert (R-AZ), Bill Johnson (R-OH), and Doris Matsui (D-CA * Expanded Telehealth Access Act (H.R. 2168), a bipartisan bill introduced by Reps. Mikie Sherrill (D-NJ) and David McKinley (R-WV). To promote healthcare of wheelchair users, United Spinal submitted comments in support of the National Institutes of Health (NIH) Pathways to Prevention Workshop: Physical Activity and Health for Wheelchair Users draft (Draft) report.
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2020 · fourth_quarter · Q4
District of Columbia Homeland Security Emergency Management Agency - Emergency Management United Spinal and DC CIL litigation against the District. United Spinal advocacy and policy staff participate in bi-weekly calls with DC HSEMA and DC Office of Disability Rights on DCs COVID-19 response. District of Columbia Homeland Security Emergency Management Agency Due to the COVID-19 public health emergency, DCs work on deliverables as part of United Spinals and the District of Columbia Center for Independent Livings emergency management litigation was on pause but started back up at the end of the year.
Support H.R. 8581/S. 4343, the Assistive Technology and Devices for Americans Study Act (Triple A Study Act). Consortium for Citizens with Disabilities - Vaccine Allocation Comments United Spinal signed onto a CCD letter to the Advisory Committee on Immunization Practices at the Centers for Disease Control and Prevention regarding vaccine allocation for the disability community. In short, we urge the committee to: 1. Include all residents of congregate facilities in Phase 1 along with long term care residents. Protect the civil rights of people with disabilities in allocation decisions 3. Ensure that the physical distribution and administration of the vaccine is accessible to people with disabilities. National Institutes of Health (NIH) United Spinal advocacy and policy staff and Resource Center staff met with NIH personnel and shared our suggestions for research priorities for the SCI/D community related to functional and quality of life issues. Advocate for the need for increased funding for Spinal Cord Injury Model Systems as well as restoring the number of federally-funded Model Systems back to 18, as it was in 2000, from the present 14. United Spinal advocacy and policy staff met with staff from the Administration for Community Living to discuss funding issues. U.S. Department of Health and Human Services (PCHAlliance) - Chronic Disease Management Landscape Analysis to Leverage Novel Technologies for Chronic Disease Management for Aging Underserved Populations United Spinal, as a member of the Personal Connected Health Alliance (PCHAlliance), supported comments to Health and Suman Services Department submitted by the Healthcare Information and Management Systems Society (HIMSS) and the PCHAlliance on the U.S. Department of Health and Human Services Request for Information - Landscape Analysis to Leverage Novel Technologies for Chronic Disease Management for Aging Underserved Populations. Over 60 national organizations representing all ages and disabilities, including United Spinal supported increased funding, $10 million for FY 2021, for the Lifespan Respite Care Program, administered by the Administration on Aging, Administration for Community Living.
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2020 · third_quarter · Q3
As a member of ITEM Coalition's Steering Committee, support and advocate for Medicare coverage of seat elevation and standing systems. The ITEM Coalition is engaging in multiple virtual Congressional Hill visits on this issue and has met with the National Council on Disability, and the Centers for Medicare and Medicaid Services along with United Spinal advocates. The Coalition submitted comments to CMS urging coverage of these features. As a member of the Coalition to Preserve Rehabilitation Steering Committee, United Spinal supported a Dear Colleague letter, led by Sens. Pat Toomey (R-PA) and Michael Bennet (D-CO), to the Centers for Medicare and Medicaid Services from CMS to review and delay the implementation of a unified payment system for post-acute care (PAC) under the Improving Medicare Post-Acute Care Transformation (IMPACT) Act of 2014. United Spinal submitted comments to the Commission on Safety and Quality in Nursing Homes in favor of increased responsiveness regarding care delivery and maximized quality of life for all residents. United Spinal signed onto a letter opposing H.R. 7059, a bill that would give broad liability protections for nursing homes and other health care providers for the duration of the public health emergency. United Spinal sent letters to Capitol Hill requesting increased funding for the Spinal Cord Injury Model Systems - including sending out Congressional action alerts. United Spinal sent letters to Capitol Hill one support of $5 million in funding for the National Neurological Conditions Surveillance System (NNCSS) - including sending out Congressional action alerts. Shared with grassroots a Congressional action alert in support of United Spinals priorities for a fourth federal COVID-19 relief package - including increased HCBS funding. Medicare and Medicaid Programs; CY 2021 Home Health Prospective Payment System Rate Update; Home Health Quality Reporting Requirements; and Home Infusion Therapy Services Requirements As a member of the Personal Connected Health Alliance (PCHAlliance), United Spinal supported written comments in response to the Medicare and Medicaid Programs; CY 2021 Home Health Prospective Payment System Rate Update; Home Health Quality Reporting Requirements; and Home Infusion Therapy Services Requirements Proposed Rule, published in the Federal Register April 6, 2020. PCHAlliance supports the CMS proposal to make permanent the use of technology under the Home Health and the Hospice benefits. Advocated for Congressional sign-ons to a Dear Colleague led by Representatives John Larson (D-CT) and Lee Zeldin (R-NY) which ensures people with disabilities who use complex manual wheelchairs are treated the same as those using complex power wheelchairs regarding coverage of critical manual components, that is competitive bidding pricing should not apply to complex manual wheelchair components such as seating and positioning features. United Spinal urged members of Congress to amend the HEALS Act, because it fails to include any dedicated funding for Medicaid home and community-based services (HCBS) and because it would roll back portions of the ADA related to civil rights for people with disabilities in employment and in places of public accommodation. As a member of the Coalition to Preserve Rehab - Steering Committee, United Spinal requested that CMS authorize a series of speech language pathology, audiology, and speech generating devices (SGD)-related codes for provision via telehealth during the COVID-19 public health emergency. United Spinal also endorsed a letter to Medicare expanding telehealth services to assist with rehab care as part of the Medicare Physician Fee Schedule comments: the proposed cuts to reimbursement across specialties, particularly with regards to the impact for rehabilitation-related services (PT, OT, SLP, physical medicine) and the expansion of telehealth. United Spinal supported Improving Seniors Timely Access to Care Act (H.R. 3107) recently introduced by Reps. Suzan DelBene (D-WA), Mike Kelly (R-PA), Roger Marshall (R-KS), and Ami Bera (D-CA). This bipartisan legislation would help protect patients from unnecessary delays in care by streamlining and standardizing prior authorization under the Medicare Advantage program, providing much-needed oversight and transparency of health insurance for Americas seniors. We urge you to join your colleagues in supporting this important legislation. Physician Fee Schedule - CMS 1743-P Medicare Program United Spinal as a member of the Personal Connected Health Alliance and the Healthcare Information and Management Systems Society (HIMSS) supported comments submitted to the Centers for Medicare & Medicaid Services in response to the Medicare Program; CY 2021 Payment Policies. When our nations COVID-19 Public Health Emergency (PHE) declaration ends, the waivers and temporary healthcare standards and policies that have been adopted for Medicare, Medicaid, private payers, and professional licensure will require a transition, rather than a sudden termination, to ensure stability, embed resilience, and develop a modern, value-based, health delivery system. We believe a framework focused on advancing value-based, patient-centered healthcare should guide the phasing down of some waivers and the transition to permanence of others. CY2021 Revisions to Payment Policies under the Physician Fee Schedule and Other Changes to Part B Payment Policies; etc. (CMS-1734-P) Personal Connected Health Alliance (PCHAlliance), with United Spinal as a member, signed onto multi-stakeholder comments to the Centers for Medicare and Medicaid Services on the need for the expanded use of connected health technologies in healthcare.
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2020 · second_quarter · Q2
COVID-19 Advocacy/CARES Act Support A one-year expansion of federal funding for Medicaid home and community-based services (HCBS), from July 1, 2020 to June 30, 2021. An expansion of the paid leave program to cover family caregiving of adults with disabilities, which would allow all family members, not just parents, to take paid leave for caregiving. Additional pay of up to $10,000 for personal care attendants, home health aides, and direct support professionals for their work during the COVID-19 pandemic. An additional round of Economic Impact Payments, resolving bureaucratic issues for SSI, SSDI, and VA benefits recipients, and fixing an issue that left adult dependents ineligible for these payments. A requirement that that the Department of Health and Human Services (HHS) make specific plans to ensure that COVID-19 testing is accessible to people with disabilities and people with underlying health conditions or compromised immune systems. A requirement that States ensure that absentee or mail-in ballots are accessible for people with disabilities. Support All Dependent Children Count Act introduced by Rep. Craig in the House (H.R. 6420), and Sen. Smiths All Dependents Count Act, S. 3652. Support H.R. 6680 which would disregard unemployment benefits from eligibility consideration for means-tested programs such as SSI and SNAP - Strengthening UI for Coronavirus Impacted Workers and Students Act. Department of Health and Human Services Supported letter to Secretary Azar and Director Severino to express our strong and urgent support for the Departments Office for Civil Rights to issue additional guidance to ensure that schemes to ration scarce health care resources during the coronavirus disease 2019 (COVID-19) pandemic comply with federal nondiscrimination laws. Justice in Aging request HHS Secretary Azar to Remove Barriers for Medicare Enrollment During COVID Pandemic United Spinal joined Justice in Aging and numerous organizations requesting the Department of Health and Human Services take action to remove barriers and to streamline enrollment in health insurance coverage for low-income older adults and people with disabilities who are at highest risk of serious illness and death from COVID-19. United Spinal advocated to exempt non-invasive ventilators from Medicares competitive bidding program which limits choice for consumers and cuts reimbursement to Medicare providers. During the COVID-19 pandemic, it is the wrong time to place additional restrictions on access to life-saving equipment. United Spinal sent in its own letter to Congress along with other stakeholders such as the ALS Association and the company RESMED. As a CCD Rights Task Force co-chair, United Spinal advocacy and policy staff signed a letter to HHS Secretary Alex Azar, CMS Administrator Seema Verma, and CDC Director Robert Redfield urging them to collect and report data on the impact of COVID-19 on people with disabilities, including numbers of tests, testing rates, numbers and rates of positive tests, hospitalizations, deaths and death rates, recoveries, transfers from community living to institutional settings and discharges from institutional settings, and analysis of that data to identify trends and correlational factors. United Spinal advocacy and policy staff provided comments as part of the Disability and Rehabilitation Research Coalition (DRRC) to Senator Warren (D-MA) and Reps. Pressley (D-MA) & Kelly (D-IL) on a bill to require the CDC to collect and report demographic data related to COVID-19; we urged them to include data collection on disability factors. oOn April 14, Reps. Ayanna Pressley, Robin Kelly, and other members of the Congressional Black Caucus, along with Sen. Elizabeth Warren and others introduced the Equitable Data Collection and Disclosure on COVID-19 Act, which would require the Department of Health and Human Services (HHS) to collect and report racial, ethnic, and other demographic data on COVID testing, treatment, and fatality rates. The introduced legislation did mention disability but did not include significant focus on the importance of disability data collection. oMembers of the DRRC, which includes United Spinal, along with other stakeholders, drafted revisions to the legislation. The edits were intended to achieve three purposes: 1) integrate the concerns and interests of the disability community throughout the bill to ensure that disability rights are universally considered civil rights, 2) include on the mandated data collection commission agencies with disability, independent living, and rehabilitation research portfolios, and 3) authorize targeted COVID research funding to NIDILRR comparable to the targeted funding provided to other research agencies. These edits were shared with Sen. Warrens office along with other congressional disability champions, including Sen. Bob Casey (D-PA) and Rep. Jim Langevin (D-RI). Following work in March that resulted in Federal guidance being issued by the Office for Civil Rights (OCR) at the Department of Health and Human Services to remind States and health care providers of their responsibilities under Federal law not to discriminate against people with disabilities in providing health care, United Spinal signed onto a guidance document developed by the disability community outlining principles for states and health care providers to follow in adhering to the Federal guidance. United Spinal also joined over 400 organizations in calling on HHS for additional Federal guidance on nondiscrimination in health care to be issued by OCR. United Spinal, as a member of the ITEM Coalition Steering Committee, endorsed a letter to HHS Secretary Alex Azar urging for improved access to this treatment. We have written to CMS before about the complex and burdensome billing requirements associated with the dNPWT benefit that have resulted in decreased patient access to this important treatment. Proposed Rule and Medicare Advantage (MA), Medicare Part D and Medicaid United Spinal, as a Steering Committee member of CPR endorsed comments to the Centers for Medicare and Medicaid Services highlighting important provisions of benefit to Medicare and Medicaid beneficiaries: Revisions to supplemental benefits for beneficiaries with chronic conditions (SSBCI), Network adequacy requirements for MA plans, Star rating program enhancements, and New tools for beneficiaries under the Medicare prescription drug benefit program (Part D). PCHAlliance Proposed Rule and Medicare Advantage (MA), Medicare Part D and Medicaid United Spinal, as a member of PCHAlliance signed onto this coalitions letter: Interoperable, connected health, requires a broad ecosystem of shared digital health information. It is particularly noteworthy that this proposed rule advances Medicare Advantage coverage of patient centered digital, interoperable, connected healthcare. PCHAlliance members support the advancement of evidence based connected health. CMS work to develop and ensure appropriate use of connected care is particularly noteworthy as one of the key enablers of modernizing Medicare for the use of evidence based connected care is to improve patient outcomes. United Spinal comments on FY 2021-2025 NIH-Wide Strategic Plan Framework United Spinal provided comments on the National Institutes of Healths (NIH) Request for Information on the FY 2021-2025 NIH-Wide Strategic Plan Framework, in support of strengthening and advancing disability and rehabilitation research and included support of the comments submitted by the Disability and Rehabilitation Research Coalition, of which United Spinal Association is a member. United Spinal supports COVID-19 Recovery for Seniors and People with Disabilities Act - S. 3740. United Spinal supports Nursing Home COVID-19 Protection and Prevention Act - S. 3768. United States Postal Services (USPS) - COVID-19 United Spinal signed onto a letter, facilitated by AARP, to House and Senate leadership in support of USPS continued funding in order to provide the vital services that millions of Americans, especially older Americans and those with chronic conditions, depend upon, especially during this pandemic, as it relates to pharmacy and medical supplies needs as well as access to voting. United Spinal sent a letter to the U.S. Senate Aging Committee thanking them for holding a hearing examining the devastating impact COVID-19 has had on nursing homes and urging them to engage the disability community as they seek solutions. Support increased appropriations funding for the SCI Model Systems under the NIDILRR grant. Support continued appropriations funding for CDC's National Neurological Conditions Surveillance System. As a member of the Coalition to Preserve Rehabilitation Steering Committee, United Spinal endorsed these comments: Medicare Program; Prospective Payment System and Consolidated Billing for Skilled Nursing Facilities; Updates to the Value-Based Purchasing Program for Federal Fiscal Year 2021 [CMS-1737-P, RIN: 0938-AU13] - Concerns with the Patient-Driven Payment Model. CPR continues to be concerned with the observed and ongoing impact of the Patient-Driven Payment Model (PDPM) implemented in the SNF PPS effective October 1, 2019. CMS implemented this new case-mix classification model to group patients admitted to SNFs during covered Medicare Part A stays, replacing the Resource Utilization Group, Version IV (RUG-IV) system. As a member of the Coalition to Preserve Rehabilitation Steering Committee, United Spinal endorsed these comments: Medicare Program; Inpatient Rehabilitation Facility Prospective Payment System for Federal Fiscal Year 2021 Proposed Rule [CMS-1729-P; RIN 0938-AU05]. Under this proposal, non-physician practitioners would be able to conduct or designate another certified clinician to conduct the preadmission screening (PAS), review and concur with the findings of the preadmission screening, conduct the post-admission physician evaluation (PAPE), which CMS proposes to eliminate, lead the required weekly interdisciplinary team meetings, conduct required face-to-face visits with the patient, and develop and modify the patients plan of care. In sum, CMS proposes to defer to the IRF to determine whether a non-physician practitioner has sufficient specialized training and experience in inpatient rehabilitation to essentially fulfill the role of the rehabilitation physician. CPR views this proposal as a major broadside attack on the integrity and value of care provided by inpatient rehabilitation hospitals and units. We strongly oppose this proposal and believe that, if finalized, it would materially undercut IRF care and decrease the level and quality of care provided in an IRF, potentially causing significant harm to patients with complex conditions who need an intensive, coordinated, interdisciplinary course of inpatient hospital-level rehabilitation treatment.
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2020 · first_quarter · Q1
After initial engagement with the offices of Senator Udall (D-NM) and Representative Lowenthal (D-CA) on their proposed legislation that would ban single-use plastic bags and make it prohibitively difficult to obtain single-use plastic straws, United Spinal staff sent a follow-up letter with formal comments on a revised version. United Spinal staff continues to engage with these offices on the negative effects their legislation would have on the disability community.
Support reauthorizing the Older Americans Act, Supporting Older Americans Act of 2020, H.R. 4334
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2019 · fourth_quarter · Q4
United Spinal Association signed onto a Consortium for Citizens with Disabilities letter to the U.S. Housing of Urban Development opposing their notice of proposed rulemaking (NPRM) that would dramatically increase the burden of bringing a housing discrimination case under the disparate impact standard of the Fair Housing Act.
Support S. 978 - Work Opportunity Tax Credit and Jobs Act (Support renewal of the Work Opportunity Tax Credit). Support SSI Restoration Act - H.R. 4280/S. 2753. Support the Disability Employment Incentive Act, H.R 3992/S. 255. Support the ABLE Age Adjustment Act. - S. 651/H.R. 1814. Support H.R 4280/S. 2753 - Supplemental Security Income (SSI) Restoration Act. Support Senior Care Act - H.R. 5429/S. 3010.
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2019 · third_quarter · Q3
United Spinal supports S. 651/H.R 1814, the ABLE Age Adjustment Act and engaged in Hill meetings.
United Spinal and the DC Center for Independent Living as plaintiffs in litigation against the Government of the District of Columbia attended and presented at the launch of the DC Homeland Security and Emergency Management Agency Disability Integration Initiative at Gallaudet University. The litigation was completed and signed by both parties earlier in the year. Both United Spinal and the DC CIL are co-chairs of the DC Disability Community Advisory Group which include representatives of the disability community representing individuals who are deaf, blind, who have cognitive and intellectual disabilities etc. DC HSEMA is engaging in workgroup activity, as required by the settlement, in the following areas: post-emergency canvassing operations, communications, sheltering, accessible transportation, high-rise evacuation etc.
United Spinal met with staff for the Senate Aging Committee to discuss next steps to increase funding for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal seeks legislative or report language directing the National Institute of Disability, Independent Living and Rehabilitation Research (NIDILRR) and the National Institute of Neurological Disorders and Stroke (NINDS) to collaboratively conduct a pilot program measuring the potential beneficial health and functional short- and long-term outcomes and health cost savings achieved from extended lengths of stay in initial traumatic spinal cord injury (SCI) rehabilitation settings by employing needed technologies and enhancing consumer training. United Spinal Association supports "Connect For Health Act" which protects and extends Medicare reimbursement for telehealth. United Spinal supports legislation to improve wheelchair service repair and reform. United Spinal supports Medicare coverage for transanal irrigation for bowel management for individuals with neurogenic bowel. United Spinal supports Choices for Increased Mobility Act, H.R. 5371/S.5154 that will allow Medicare beneficiaries to obtain access to titanium and carbon fiber wheelchair frames. Congress must act to reinstate beneficiaries ability to upgrade to titanium and carbon fiber wheelchairs, at their own cost, if they so wish. Spoke with Senator Marco Rubio (R-FL) on the continuation of recognizing September's Spinal Cord Injury Awareness Month along with Sen. Tammy Baldwin (D-WI, now that Sen. Rubio has been nominated as Secretary of State. As a member of the Disability & Rehabilitation Research Coalition, United Spinal signed onto comments in response to the Request for Information (RFI): Eunice Kennedy Shriver National Institute of Child Health and Human Developments (NICHD) Strategic Plan for 2025-2029 (NOT-HD-24-028). Following the September implantable brain computer interface collaborative workshop at the U.S. Food and Drug Administration, United Spinal participated in workshop meetings with FDA staff and other stakeholders through the Fall. United Spinal Association endorsed a Coalition to Preserve Rehabilitation/Habilitation Benefits Coalition letter to the Center for Consumer Information and Insurance Oversight (CCIIO) at CMS about possible solutions to therapy caps.
United Spinal participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal signed onto a coalition letter to President Biden in support of finalizing consumer protections in air travel for wheelchair users United Spinal met with DOT leadership celebrating passage of final rule: Ensuring Safe Accommodations for Air Travelers With Disabilities Using Wheelchairs. United Spinal urged many provisions to be included in final rule. Met with Department of Transportation official regarding opportunities to create transportation options for people with disabilities. Met with White House official to urge action on the U.S. Department of Transportations (Department) rulemaking titled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144) and the Centersfor Medicare and Medicaid services national coverage determination on power wheelchair standing systems. United Spinal participated in a Department of Transportation update about Transportation Secretary Buttigiegs announcement of a $50 million fine against American Airlines for violating the rights of passengers with disabilities under the ACAA. As a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force, United Spinal, along with numerous other disability organizations, commented on the Department of Transportations Notice of Proposed Rulemaking, Family Seating in Air Transportation (DOT-OST-2024-0091). The NPRM explains that the department-initiated rulemaking is based on the nature, severity, and increased number of family seating complaints. While we understand the departments actions to ensure safety for children, in any rulemaking, the department must also guarantee passengers with disabilities maintain their rights to boarding and seating accommodations under the Air Carrier Access Act (ACAA). United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). Senate Through United Spinals social media, recognized Senator Tammy Duckworths work in 2018 to change federal reporting requiring wheelchair and scooter mishandling to be more transparent. Urged the Senator to support US Department of Transportation to finalize the rule on ensuring the safety and dignity of wheelchair users in air travel. Media outreach recognizing contributions of Senator Tammy Duckworth on the Senators work to make the nations rail stations more accessible.United Spinal is pleased to have supported the All Stations Accessibility Programs Act. Engaged with the U.S. Access Board regarding United Spinal's advances on automated wheelchair securement as part of our SecureRide Coalition activities, including being awarded a DOT Small Business Innovation Research grant to two of the Coalition's partners.
United Spinal Association participated in a meeting with Amtraks Board of Directors and senior leadership along with other representatives from disability organizations. United Spinal Association met with the U.S. Access Board to discuss United Spinals SecureRide Coalition, access to U.S postal facilities and the need for increased accessible parking spaces.
United Spinal participated in meetings with leadership of the Department of Justices Civil Rights Division, to discuss issues affecting the disability community. United Spinal submitted comments to the U.S. Access Board on artificial intelligence related to accessibility and the disability community - ATBCB-2024-0005-0001. As members of the Consortium for Constituents with Disabilities (CCD) Education Task Force as well as the CCD Technology and Telecommunications Task Force, United Spinal signed onto a policy statement: Access to Assistive Technology, Auxiliary Aids, Services, and Accommodations When Policy Intends to Limit or Ban Use of Assistive Technology in PreK-16 Schools. Engaged Congress regarding the need to confirm David M. Capozzi, United Spinal Board of Directors to the AMTRAK Board of Directors which was accomplished prior to the end of 2024. Engaged with the Department of Labor and the Department of Transportation regarding the need for appropriate transit protections and regulations for passengers with disabilities.
United Spinal Association participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Architectural & Transportation Barriers Compliance Board, Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Highway Traffic Safety Administration (NHTSA), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), White House Office
United Spinal Association participated in a meeting with Amtraks Board of Directors and senior leadership along with other representatives from disability organizations. United Spinal Association met with the U.S. Access Board to discuss United Spinals SecureRide Coalition, access to U.S postal facilities and the need for increased accessible parking spaces.
United Spinal Association participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Architectural & Transportation Barriers Compliance Board, Commerce, Dept of (DOC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), White House Office
United Spinal participated in meetings with leadership of the Department of Justices Civil Rights Division, to discuss issues affecting the disability community. United Spinal submitted comments to the U.S. Access Board on artificial intelligence related to accessibility and the disability community - ATBCB-2024-0005-0001. As members of the Consortium for Constituents with Disabilities (CCD) Education Task Force as well as the CCD Technology and Telecommunications Task Force, United Spinal signed onto a policy statement: Access to Assistive Technology, Auxiliary Aids, Services, and Accommodations When Policy Intends to Limit or Ban Use of Assistive Technology in PreK-16 Schools. Engaged Congress regarding the need to confirm David M. Capozzi, United Spinal Board of Directors to the AMTRAK Board of Directors which was accomplished prior to the end of 2024. Engaged with the Department of Labor and the Department of Transportation regarding the need for appropriate transit protections and regulations for passengers with disabilities.
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024. United Spinal co-led and participated in virtual events with a coalition of disability organizations and the Service Employees International Union, inviting members of Congress and their staffs to learn about the importance of urging the US Department of Transportation to finalize its rule to ensure the safety and dignity of wheelchair users in air travel.
United Spinal met with staff for the Senate Aging Committee to discuss next steps to increase funding for the National Institute on Disability, Independent Living, and Rehabilitation Research. United Spinal seeks legislative or report language directing the National Institute of Disability, Independent Living and Rehabilitation Research (NIDILRR) and the National Institute of Neurological Disorders and Stroke (NINDS) to collaboratively conduct a pilot program measuring the potential beneficial health and functional short- and long-term outcomes and health cost savings achieved from extended lengths of stay in initial traumatic spinal cord injury (SCI) rehabilitation settings by employing needed technologies and enhancing consumer training. United Spinal Association supports "Connect For Health Act" which protects and extends Medicare reimbursement for telehealth. United Spinal supports legislation to improve wheelchair service repair and reform. United Spinal supports Medicare coverage for transanal irrigation for bowel management for individuals with neurogenic bowel. United Spinal supports Choices for Increased Mobility Act, H.R. 5371/S.5154 that will allow Medicare beneficiaries to obtain access to titanium and carbon fiber wheelchair frames. Congress must act to reinstate beneficiaries ability to upgrade to titanium and carbon fiber wheelchairs, at their own cost, if they so wish. Spoke with Senator Marco Rubio (R-FL) on the continuation of recognizing September's Spinal Cord Injury Awareness Month along with Sen. Tammy Baldwin (D-WI, now that Sen. Rubio has been nominated as Secretary of State. As a member of the Disability & Rehabilitation Research Coalition, United Spinal signed onto comments in response to the Request for Information (RFI): Eunice Kennedy Shriver National Institute of Child Health and Human Developments (NICHD) Strategic Plan for 2025-2029 (NOT-HD-24-028). Following the September implantable brain computer interface collaborative workshop at the U.S. Food and Drug Administration, United Spinal participated in workshop meetings with FDA staff and other stakeholders through the Fall. United Spinal Association endorsed a Coalition to Preserve Rehabilitation/Habilitation Benefits Coalition letter to the Center for Consumer Information and Insurance Oversight (CCIIO) at CMS about possible solutions to therapy caps.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Architectural & Transportation Barriers Compliance Board, Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Highway Traffic Safety Administration (NHTSA), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), White House Office
United Spinal Association participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
United Spinal Association participated in a meeting with Amtraks Board of Directors and senior leadership along with other representatives from disability organizations. United Spinal Association met with the U.S. Access Board to discuss United Spinals SecureRide Coalition, access to U.S postal facilities and the need for increased accessible parking spaces.
United Spinal Association supports H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal supports and participates in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal submitted comments to the Department of Transportations proposed rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs (DOT-OST-2022-0144), along with other stakeholders. United Spinal, along with numerous other organizations, sent a letter to Transportation Secretary Pete Buttigieg requesting that the U.S. Department of Transportation close the deadline outlined in the notice of proposed rulemaking (NPRM) entitled, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs, DOT-OST 2022-0144 sooner rather than later. The comment period for the NPRM was extended just 30 days and closed on June 12, 2024.
United Spinal policy staff attended the 9.9.24 White House celebration of Disability Pride & the ADA's 34th Anniversary.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Architectural & Transportation Barriers Compliance Board, Commerce, Dept of (DOC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), White House Office
United Spinal staff participated in two quarterly calls with Amtrak along with other representatives from disability organizations.
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Bureau of the Census, Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Council on Disability, Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), White House Office
United Spinal Association supports: H.R. 3935/S. 1939 Securing Growth and Robust Leadership in American Aviation Act/FAA Reauthorization Act of 2023 United Spinal Association supports full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA) and H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. As one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations: a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights - United Spinal partcipated and provided recommendations. United Spinal Association supported is participating in the U.S. Department of Transportation's Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). In support of Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure letter sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters.
United Spinal participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
United Spinal supports the accessibility provisions in, H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act, introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supported the accessibility provisions in H.R. 7389 / S. 3748, Accessible Voting Act of 2024, introduced respectively by Representative Mary Gay Scanlon (D-PA-5) and Senator Robert P. Casey, Jr. (D-PA). United Spinal supports the accessibility provisions in H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act (the AID Local Government Act) introduced by Representative Madeleine Dean (D-PA-4) and Senator Robert P. Casey, Jr. (D-PA). United Spinal participated in White House Office of Public Engagement Aging and Disability Communities Calls on 2.29.24, 3/7/2024, 3/21/24. United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD), signed on to comments the CCD submitted in response to the Department of Justices request, Nondiscrimination on the Basis of Disability: Accessibility of Medical Diagnostic Equipment of State and Local Government Entities (DOJ-CRT-2024-0001). United Spinal also submitted our own comments on the above opportunity, DOJ-CRT-2024-0001-0001. The comments read in part, United Spinal Association supports DOJs efforts to apply specific requirements to accessible medical equipment. Inaccessible MDE effectively excludes certain people with disabilities from accessing routine examinations and specialized medical care. United Spinal participated in the National Council on Disabilitys virtual discussion about ground transportation for wheelchair users, sharing our lived experiences with the barriers commonly encountered. United Spinal staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Architectural & Transportation Barriers Compliance Board, Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Council on Disability, Natl Highway Traffic Safety Administration (NHTSA), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), White House Office
Support the Transportation Assistance for Individuals with Disabilities Act - H.R. 5859 United Spinal participated in a quarterly call with AMTRAK along with other representatives from disability organizations. United Spinal Association staff participated in a meeting with AMTRAK to review their plans for their replacement long-distance trainsets. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) ongoing efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS). United Spinal policy staff, as members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force, met with representatives from the National Highway Traffic Safety Administration to discuss issues related to wheelchair securement in ground transportation. United Spinal Association staff, as members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force, met with representatives from the National Highway Traffic Safety Administration to discuss issues related to wheelchair securement in ground transportation. Met with the U.S. Access Board to discuss wheelchair securement in ground transportation. Supports Disaster Relief Medicaid Act - S. 3120/H.R. 6029.
United Spinal Association supports accessibility provisions for people with disabilities in the following bills to reauthorize the Federal Aviation Administrations programs: H.R. 3935, Securing Growth and Robust Leadership in American Aviation Act - S. 1939, FAA Reauthorization Act of 2023, United Spinal Association support full inclusion of all of the provisions contained in H.R. 1267/ S. 545, the Air Carrier Access Amendments Act (ACAAA), H.R. 1499 / S. 753, the Good Jobs for Good Airports (GJGA) Act. United Spinal Association supported a letter sent by Democratic Committee Members of the U.S. House Committee on Transportation and Infrastructure sent to Airlines for America (A4A) President and CEO Nicholas Calio expressing concern and dismay regarding the continued trend of mishandled wheelchairs and scooters, most recently on display in a video showing airline employees mistreatment of a passengers wheelchair at the Miami International Airport (MIA). United Spinal Association supported and participated in a working group, dedicated to implementing one of the Air Carrier Access Act (ACAA) Advisory Committee recommendations, a U.S. Department of Transportation (DOT) Public Awareness Campaign to Ensure Air Travelers with Disabilities Know Their Rights. United Spinal Association supported and participated in the U.S. Department of Transportations Office of Aviation Consumer Protection (OACP) on-going efforts to launch a new database, Aviation Complaint, Enforcement, and Reporting System (ACERS).
United Spinal participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Bureau of the Census, Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), Government Accountability Office (GAO), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), White House Office
United Spinal supports the Air Carrier Access Amendments Act S. 545/H.R. 1267, the Prioritizing Accountability and Accessibility for Aviation Consumers Act H.R. 1445/S. 400, H.R. 3762 / S.1765 - the Emergency Vacating of Aircraft Cabin Act, the Airline Safety Information and Entertainment Access Act, S. 1119, the MOBILE Act introduced by U.S. Rep. Steve Cohen (D-TN-09) H.R. 3802/S. 1459; H.R.3743, a bill To amend the FAA Reauthorization Act of 2018 to extend the advisory committee on the air travel needs of passengers with disabilities. United Spinal supports H.R.1772, the wheelchairs on Airplanes Act introduced by U.S. Representative Dina Titus (D-NV-01). The would help prevent discrimination against airline passengers with disabilities who use lithium-ion-powered wheelchairs and mobility aids that are safe for air travel. United Spinal supports the disability-related provisions contained in the FAA Reauthorization Act of 2023, S. 1939. Prioritizing Accountability and Accessibility for Aviation Consumers Act of 2023:requires the U.S. Department of Transportation (DOT) publish an annual report on how quickly, effectively and efficiently consumer complaints related to traveling with a disability are received, addressed and resolved by DOT. Mobility Aids On Board Improve Lives and Empower All (MOBILE) Act: requires DOT issue an advisory circular that provides guidance to airlines on publishing information related to powered wheelchairs, including the dimensions of aircraft cargo holds, and evaluate the frequency and types of mishandling of mobility aids and take actions towards making in-flight wheelchair seating available. Access and Dignity for All People who Travel (ADAPT) Act: requires DOT issue regulations regarding seating accommodations for passengers with disabilities that takes into account being seated next to their companion and requires the Secretary of Transportation establish an optional Known Service Animal Travel Pilot Program, providing service animal users the opportunity to participate in a streamlined pre-registration process. Equal Accessibility to Passenger Portals (Equal APP) Act: requires DOT issue regulations to ensure that customer-facing websites, applications and information communication technologies (ICT) of airlines and airports are accessible. It would require the Secretary to conduct regular audits of such websites, applications and ICTs and allow the Secretary to hold non-compliant entities accountable by issuing civil penalties. Store On-board Wheelchairs in Cabin (STOWIC) Act: requires airlines provide information on the airline website-and anywhere people can make reservations- regarding the rights and responsibilities of both airlines and passengers as to the availability of on-board wheelchairs. It would also require annual staff training regarding assisting people with disabilities on the use of on-board wheelchairs and the right to request an on-board wheelchair. It would allow the Secretary to issue enhanced civil penalties if airlines fail to provide an on-board wheelchair. Airport Accessibility Grants: authorizes a pilot grant program to help airports make their facilities more accessible. The program would be funded at $20 million per year from Airport Improvement Program (AIP) funds. Provisions of the Air Carrier Access Amendments Act. United Spinal supports the disability-related provisions contained in the FAA Reauthorization Act of 2023, H. R. 3935/S. 1939, the Securing Growth and Robust Leadership in American Aviation Act including provisions of the Air Carrier Access Amendments Act. United Spinal Association supports H.R. 1499/ S. 753, the Good Jobs for Good Airports Act. SEIU members from across the nation joined United Spinal Association, the National Association for the Advancement of Colored People and National Disability Rights Network in thanking U.S. Senator Edward Markey (D-MA) for his leadership on the Good Jobs for Good Airports bill. Met with Sen.Ted Budd to express support fo GJGA. United Spinal submitted comments in response to the U.S. Department of Transportations (DOT) Request for Information (RFI) about the critical role Advanced Air Mobility (AAM), Docket:(DOT-OST-2023-0079), should play in the lives of people with disabilities, especially wheelchair users. United Spinal, along with numerous other disability organizations, met periodically with U. S. Department of Transportation, Office of Aviation Consumer Protection, to discuss disability rights advocacy. United Spinal, along with numerous other disability organizations and aviation industry representatives, participated in a U.S. Department of Transportation public awareness campaign to increase awareness of the different types and levels of accommodations that airlines can provide to passengers with disabilities. United Spinal staff consulted with House Congressional staff per their request on potential legislative language regarding accessible adult changing stations in airports. On September 28th, as part of a coalition of nonprofit organizations advocating for safe and accessible air travel, Paralyzed Veterans of America, Hand In Hand, the Christopher & Dana Reeve Foundation, and United Spinal Association issued a joint statement in response to a settlement agreement reached by the U.S. Department of Transportation and United Airlines following a complaint from the late disability rights advocate Engracia Figueroa.
United Spinal Association advocated for and expressed thanks to Senator Marco Rubio (R-FL) and Senator Tammy Baldwin (D-Wisconsin) for championing the passage of a resolution designating September 2023 as National Spinal Cord Injury Awareness Month. United Spinal Association, as a member of the Consortium for Constituents with Disabilities (CCD) and several of its task forces, signed on to a letter commending and thanking the Secretary of the Department of Health and Human Services, Xavier Becerra, and Melanie Fontes Rainer, Director Office for Civil Rights for the publication of its historic proposed rule, Discrimination on the Basis of Disability in Health and Human Service Programs or Activities - the 504 rule/Rehabilitation Act. United Spinal Association, along with numerous other disability organizations, as members of the Disability Rehabilitation Research Consortium, signed a letter to the bipartisan leadership of the U. S. Senates Committee on Appropriations, expressing serious concerns with the proposed $14 billion in cuts and eliminations of programs for the Department of Health & Human Services (HHS) in the House of Representatives proposed FY 2024 Labor, Health and Human Services, Education, and Related Agencies (L-HHS) appropriations bill. On September 26, the National Institutes of Health (NIH) announced that it had people with disabilities as a population with health disparities for research supported by the NIH. United Spinal Association, as a member of the Disability Rehabilitation Research Coalition along with numerous other organizations, has long sought the designation. United Spinal, along with numerous other disability organizations, as members of the Disability Rehabilitation Research Consortium (DRRC), signed a letter to the National Institute on Minority Health and Health Disparities (NIMHD) and the Agency for Healthcare Research and Quality (AHRQ) expressing the need to the agencies to move forward with the Advisory Committee to the Director (ACD) Working Group on Diversity, Subgroup on Individuals with Disabilities recommendation to recognize people with disabilities as a health disparities population. United Spinal, along with 1,290 healthcare providers, researchers, caregivers, organizations, and people with disabilities signed on to a letter urging the US Department of Health and Human Services (DHHS) to reconsider the recent National Institute of Minority Health and Health Disparities (NIMHD) working group recommendation to reject designating people with disabilities as a health disparities population. On 9.19.23 United Spinal Association submitted the following question for the 9.21.23 @ 2:00pm White House Office of Public Engagement Aging and Disability Communities Call: Will the President assist to reconsider NIMHD working group recommendation to reject designating people with disabilities as a health disparities population? United SpinalAssociation, along with numerous other disability organizations, as members of the Disability Rehabilitation Research Consortium (DRRC), met with National Institutes of Health (NIH) leaders, Dr. Alison Cernich, Deputy Director, National Institute of Child Health and Human Development and Dr. Theresa Hayes Cruz, Director, NICHD National Center for Medical Rehabilitation Research (NCMRR). Discussion topics included: Current Status of Disability and Rehabilitation Research at NIH Status of ACD Recommendations and DEIA at NIH Engagement with Other Federal Agencies FY 2024 Appropriations and Funding of NIH Policy staff also asked about any response that had been received from researchers to: Home and Community-Based Physical Activity Interventions to Improve the Health of Wheelchair Users (R01 Clinical Trial Required): https://grants.nih.gov/grants/guide/rfa-files/RFA-HD-22-017.html Dr. Cruz responded, We received a strong number of applications to this RFA and were able to fund two R01s. United Spinal Association supports H.R. 5308 - Rural Telehealth and Education Enhancement Act of 2023, reauthorizing the Distance Learning and Telemedicine Program administered by the Department of Agriculture (USDA) which allocates grants to assist rural communities in acquiring the essential technology and training needed to establish connections between educational and medical experts, students, teachers, and patients residing in rural areas. United Spinal Association met with NIDILRR, along with other staleholders, as part of the ITEM Coalition, to dsicuss improved access to bowel and bladder management supplies under Medicare. United Spinal Association endorsed MS Coalition comments to ICER reagrding evaluation of patient-reported outcomes in regards to MS therapies. United Spinal Association supported, as part of the Coalition to Preserve Rehabilition, Rep. Pascrells NDAA amendments that would require the U.S. Department of Defense to conduct two separate studies on (1) eliminating outpatient rehabilitation limits for active duty servicemembers suffering from TBI; and (2) recognizing non-governmental bodies for accrediting brain injury treatment programs for servicemembers. These studies will provide critical information to the Department of Defense and Congress about the possible expansion of rehabilitation treatment to our service members that have suffered a brain injury while serving this great country.
Met with Jeremy Buzzell from the National Park Service to discuss a presentation to United Spinal's Outdoor Access Working Group.
United Spinal Association led a delegation of disability organizations in a follow-up meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community. United Spinal Association met with the White House to discuss accessible transportation. United Spinal Association submitted comments to the U.S. Access Board in support of 17 inch low transfer surface height of accessible medical diagnostic equipment.
United Spinal Association met with staff for Senate Majority Leader Chuck Schumer to ask that the nomination of Karla Gilbride to serve as General Counsel of the Equal Employment Opportunity Commission be brought to the Senate floor for a vote as soon as possible.
United Spinal participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), Natl Park Service (NPS), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), White House Office
United Spinal participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal asked for support of Disability Access to Transportation Act (H.R. 3845/S. 1813). United Spinal, along with numerous other disability organizations, signed onto a letter led by the American Council of the Blind to U.S. Representative Cathy McMorris Rodgers, Chair of the House Energy and Commerce Committee to support the continued development and deployment of autonomous vehicles in the United States, which could significantly enhance the lives of millions of disabled Americans and their loved ones, and ask that Congress take swift action to ensure ongoing development of this industry can occur in this country. United Spinal Submitted comments on the U. S. Department of Transportations (DOT) Request for Information on Department of Transportation Equity Action Plan Update (Docket No. DOT-OST-2023-0087). United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force, supported comments from the Task Forces co-chairs submitted to the U.S. Department of Transportation providing feedback on the 2023 update to the Equity Action Plan. The letter read in part,It is important to ensure that equity measures advance access to and availability of transportation options for people with disabilities. The comments may be reviewed at:
United Spinal participated in a quarterly meeting of the Disability Community Advisory Group with DC Homeland Security Emergency Management Agency.
United Spinal advocacy and policy staff led a delegation of disability organizations in a meeting with Assistant Attorney General Kristen Clarke and Civil Rights Division section leaders to discuss many critical issues facing the disability community. United Spinal advocacy and policy staff met with Phil Brest from the White House Counsels office to urge that the White House take the opportunities it has to nominate more individuals with disabilities to the federal bench. United Spinal, along with numerous other disability organizations, as members the Consortium for Constituents with Disabilities Technology and Telecommunications Task Force, submitted requests for the inclusion of $49 million in the Fiscal Year (FY) 2024 House and Senate Labor, Health and Human Services and Education Appropriations (LHHS) bills for the Assistive Technology (AT) Act Programs. On Global Accessibility Awareness Day 2023, United Spinal Association and 51 other national disability organizations celebrate the transformative impact of accessible technology and call on the federal government to require websites and software applications to be accessible to and usable by people with disabilities. The roughly 61 million people with disabilities in the United States have a right to access employment, businesses, programs, and services, regardless of whether they are delivered in-person or online.
United Spinal urges the Congress to ask CMS to lift the in-the-home rule restricting Medicare wheelchair coverage and provide Medicare coverage of standing systems in power wheelchairs - House Dear Colleaugue letter led by Rep. Debbie Dingell and Rep. Brian Fitzpatrick. Asking Senators to support the same concept. We thanked CMS for providing coverage for seat elevation tied to power wheelchairs. For decades, Spinal Cord Injury Model Systems funding has not kept pace with inflation even though the SCI population has doubled. The critical research and innovative services SCIMS provide encompass the entire spectrum of rehabilitation, from emergency services when an SCI is initially sustained through an individuals return to full participation in employment and their community. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal signed onto a letter the leadership of the DRRC submitted to the National Institutes of Health (NIH) and the Advisory Committee to the Director (ACD) commending the agencies formally endorsing the landmark recommendations from the ACD Working Group on Diversity, Subgroup on Individuals with Disabilities (the Subgroup). United Spinal policy staff participated in the June 28th Interagency Committee on Disability Research (ICDR) Stakeholder Meeting hosted by the Administration for Community Living. Policy staff followed up with the Deputy Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development to obtain a copy of the Deputy Directors presentation which included progress on a number of issues important to wheelchair users health and functional abilities. United Spinal provided information to Congressional staff on the issue of exoskeleton technology to assist individuals with spinal cord injuries (SCI) and the question of Medicare coverage. Private sector health insurance providers as well as select Medicare Advantage plans and public sector providers namely, the U.S. Department of Veterans Affairs, in certain cases provide coverage of exoskeletons for individuals with an SCI. Exoskeleton technogoiy is another option to help with rehabilitation but has to be selected appropriately for individuals who need it. United Spinal, as a member of the Steering Committee of the Coalition to Preserve Rehabilitation (CPR), signed on to comments submitted to the Centers for Medicare and Medicaid Services (CMS) on the Inpatient Rehabilitation Facility Prospective Payment System (IRF PPS) for Fiscal Year (FY) 2024 Proposed Rule, published in the Federal Register on April 3, 2023. The comments read in part, .the CPR Coalition continues to have serious concerns with the impact the IRF RCD will have on patient access to care.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), Natl Telecommunications & Information Administration (NTIA), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA), White House Office
United Spinal participated in a quarterly meeting of the Disability Community Advisory Group with DC HSEMA.
United Spinal participated in calls with staff for Sen. Bob Casey (D-PA) about a sign-on letter for funding for the Model Systems programs at the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). United Spinal discussed the need for increased funding for the Model Systems programs at NIDILRR with House and Senate offices. United Spinal requested the Director of National Institute on Disability, Independent Living and Rehabilitation Research Centers to stress the critical role that adaptive FITNESS programs can play for the vast majority of members in the disability community who dont participate in any sports during her presentation in an upcoming webinar on adaptive sports. United Spinal commented on the Centers for Medicare and Medicaid Services (CMS) proposed National Coverage Decision (NCD) for seat elevation systems in Complex Rehabilitation Technology (CRT) power wheelchairs.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), Veterans Affairs, Dept of (VA), White House Office
●United Spinal advocacy and policy staff participated in a quarterly meeting of the Disability Community Advisory Group with DC HSEMA.
United Spinal advocacy and policy staff participated in a meeting with Department of Health and Human Service General Counsel Sam Bagenstos and colleagues. Topics discussed included how to guard against judicial erosion of disability rights, Medicares in-the-home rule for wheelchairs, Medicare coverage of seat elevation and standing systems for wheelchairs, and accessible medical diagnostic equipment. United Spinal Association endorsed a Consortium for Constituents with Disabilities letter to the Office of Civil Rights at the Department of Health and Human Services in support of proposed rulemaking related to Section 1557 of the Affordable Care Act and provided comments and suggestions. United Spinal policy staff submitted comments to the National Institute on Disability, Independent Living, and Rehabilitation Researchs (NIDILRR) to help develop its Long-Range Plan for 2024-2028. As a member of the Disability Rehabilitation Research Coalition (DRRC), United Spinal also signed on to the DRCC comments made on NIDILRRs Plan. Submitted comments on Section 1557 proposed rule to HHS, Health Equity comments to the White House and to CMS. Increase funding for Spinal Cord Injury Model Systems. Met with the Director of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Dr. Anjali Forber-Pratt, to discuss research opportunities in the area of therapy caps and catastrophic exception from rehabilitation lengths of stay for spinal cord injury. Recommended catheter coding reform. Met with the Director of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Dr. Anjali Forber-Pratt, to discuss research opportunities in the area of therapy caps and catastrophic exception from rehabilitation lengths of stay for spinal cord injury.
Active Transportation Infrastructure Investment Program Funding Wrote letters to both the House and Senate appropriations committees and their subcommittee on Transportation, Housing, Urban Development, and Related Agencies thanking them for their funding and stating that we supported the House Appropriations funding amount of $100 million over the Senates $25 million. Description: CONNECTING AMERICAS ACTIVE TRANSPORTATION SYSTEM ACT (H.R> 2991/S. 684) while passed was not fully funded. This bill directs the Department of Transportation (DOT) to carry out an active transportation investment program to provide competitive grants to state, local, and regional government entities, and Indian tribes to construct projects that connect walking and bicycling infrastructure within and between communities, metropolitan regions, or states. ●United Spinal advocacy and policy staff participated in a quarterly call with Amtrak along with other representatives from disability organizations. ●United Spinal advocacy and policy staff participated in a call with Amtrak along with other representatives from disability organizations to discuss a marketing research plan regarding service between Chicago, IL and St. Louis, MO. United Spinal advocacy and policy staff participated in a meeting with staff for Sen. Menendez (D-NJ) to discuss reintroduction of the Disability Access to Transportation Act in the 118th Congress. To ensure safer, more accessible rail travel for people with disabilities and as a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force, United Spinal supported a letter the Task Forces Co Chairs sent to Amtraks President & CEO regarding a meeting held on July 21, 2022 at the Marriott Marquis Hotel in Washington, D.C. The letter read in part: We appreciated receiving updates on Amtraks latest activities to ensure its services and facilities are accessible. However, our organizations were disappointed that the meeting was less interactive with the Board than anticipated. Additionally, concerns remain that were not addressed. We request a new meeting with the Amtrak Board and leadership to act as a catalyst to spur further conversation.
United Spinal Association urged members of Congress and CMS for Medicare Coverage of Seat Elevation and Standing Systems in Power Wheelchairs. Lift in-the-home restriction on Medicare coverage.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Labor, Dept of (DOL), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), Veterans Affairs, Dept of (VA), White House Office
Support increaed funding for the Section 811 housing program.
United Spinal advocacy and policy staff, as a co-chair of the CCD Rights Task Force, met with Department of Justice officials regarding disability community priorities. United Spinal advocacy and policy staff met with House offices to urge support for passage of the ABLE Age Adjustment Act (H.R. 1219) as part of a larger package of retirement-focused legislation. United Spinal advocacy and policy staff, as a co-chair of the CCD Rights Task Force, co-signed a letter to Susan Rice, Director of the Domestic Policy Council, urging that the Administration take steps to achieve digital accessibility in federal agencies as required by Section 508 of the Rehabilitation Act. United Spinal advocacy and policy staff, as a co-chair of the CCD Rights Task Force, co-signed a letter to the Senate Aging Committee thanking them for holding a hearing on digital accessibility under Section 508. On July 26th, to increase accessibility and protect and promote the civil rights of people with disabilities, United Spinal attended the Bipartisan Disabilities Caucus Celebration of the 32nd Anniversary of the Americans with Disabilities Act including a discussion about accessible transportation and the next generation of caucus leadership. To increase accessibility, United Spinal, along with numerous other disability organizations signed on to a Statement for the Written Record as Members of the Consortium for Constituents with Disabilities (CCD) which was submitted to the Special Committee on Aging United States Senate for its Hearing "Accessible Federal Technology for People with Disabilities, Older Americans, and Veterans held on July 28, 2022. The hearing addressed the critical issue of ensuring that federal agencies are held accountable for achieving digital accessibility under Section 508 of the Rehabilitation Act. To increase accessibility, United Spinal, as a member of the Consortium for Constituents with Disabilities (CCD) Technology & Telecommunications and Rights Task Forces, endorsed a letter sent to the Director of the White House Domestic Policy Councils Director in support of the Administrations efforts to advance diversity, equity, inclusion, and accessibility (DEIA) in the federal workforce. Throughout July, to increase accessibility and protect and promote the civil rights of people with disabilities, United Spinal participated in the White House Office of Public Engagement, Disabled Stakeholder Calls for Disability Pride Month which addressed critical issues of the disability community. To increase accessibility and protect and promote the civil rights of people with disabilities, United Spinal attended the U.S. Department of Transportations celebration of Disability Pride Month and the 32nd Anniversary of the Americans with Disabilities Act held on July 28th.
United Spinal advocacy and policy staff discussed accessibility concerns in a quarterly meeting of the Disability Community Advisory Group with the District of Columbia Homeland Security Emergency Management Agency.
United Spinal advocacy and policy staff, as a co-chair of the CCD Rights Task Force, co-signed a letter to the Department of Education responding to the Departments request for recommendations on how to improve current Section 504 regulations.
United Spinal advocacy and policy staff participated in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal advocacy and policy staff participated in a call with Amtrak along with other representatives from disability organizations to discuss updates regarding Amtraks new intercity trainsets. On July 26th, to increase accessibility and protect and promote the civil rights of people with disabilities, United Spinal attended the U.S. Department of Transportations celebration of Disability Pride Month and the 32nd Anniversary of the Americans with Disabilities Act at the Washington, D.C. headquarters. On July 13th, to increase accessibility and protect and promote the civil rights of people with disabilities, United Spinal spoke with a US Department of Transportation, Office of Aviation Consumer Protection, as part of a DOT Consumer Advisory Meeting for updates on: Rule makings, ACAA Advisory Committee, Service Animal Complaints and Mishandled wheelchairs and scooters Discussed our support for Disability Access to Transportation Act (S. 2038) To increase accessibility at electric vehicle charging stations, United Spinal submitted comments to the Federal Highway Administrations request, National Electric Vehicle Infrastructure (NEVI) Program (Docket: FHWA-2022-0008). In its comments, United Spinal also supported the comments submitted by the Paralyzed Veterans of America. And United Spinal also supported the comments submitted by Consortium for Constituents with Disabilities Transportation Task Force. To increase accessibility for transit, United Spinal supported comments by the Consortium for Constituents with Disabilities (CCD) Transportation Task Force Co-Chairs submitted in response to the US Department of Transportation (USDOT) Federal Transit Administration (FTA) request for information on transit bus automation research and demonstrations, Docket Number: FTA-2022-0012. As a member of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force United Spinal, along with numerous other disability organizations, endorsed the response the Task Force submitted to questions posed by the National Highway Traffic Safety Administration (NHTSA) regarding Ford's and General Motors' petitions for exemptions from the Federal Motor Vehicle Safety Standards for autonomous vehicles (AVs) Docket No. NHTSA- 2022-0067. The responses read in part: We urge NHTSA to make full accessibility for all people with disabilities a primary condition and prerequisite to granting any exemption allowing the operation of autonomous vehicle services. United Spinal submitted a response to questions posed by the National Highway Traffic Safety Administration (NHTSA) in support of General Motors petition for exemptions from the Federal Motor Vehicle Safety Standards for autonomous vehicles (Avs) Docket No. NHTSA- 2022-0067. Submitted complaint letter to DOT regarding mishandling/injurying (including damage to his wheelchair) and dropping of United Spinal's President and CEO (a wheelchair user) on two recent flights.
United Spinal submitted a letter to CMS on behalf of United Spinal's Access and Care Coalition for the need to reform catheter coding. Following up on a request to United Spinal's Access and Care Coalition made to the Amerian Urological Association (AUA) in June, the AUA sent a letter to CMS supporting our position on the need for coding reform and requesting that they work with United Spinal's Access and Care Coalition. Met with CMS in August to discuss the need for catheter coding reform. United Spinal participated in a CMS contractor roundtable discussion regarding dual-eligibles and physical access issues for people with disabilities along with NIDILIRR Director, Anjali Forber-Pratt.
United Spinal supports H.R.2373/S.3238 - Transformation to Competitive Integrated Employment Act. United Spinal submitted comments as Co-Chair of the Consortium of Constituents with Disabilities (CCD) to the RFI from Rep. Cathy McMorris Rodgers on employment landscape for people with disabilities. Also endorsed CCD wide comments.
To advocate for equitable and inclusive accessibility in air travel for people with disabilities, especially wheelchair users, United Spinal public policy staff met with congressional staff in support of the Air Carrier Access Amendments Act H.R. 1696/S. 642. United Spinal policy staff provided feedback to Senate office on disability related provisions that may be considered in the next Federal Aviation Administration reauthorization bill. United Spinal policy staff participated in the 20th Annual Transportation Security Administration (TSA) Coalition meeting.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Education, Dept of, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Natl Council on Disability, SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), White House Office
United Spinal advocacy and policy staff met with Senate HELP Committee staff to discuss ADA anniversary commemorations, including putting together a briefing for Congressional staff on housing issues. United Spinal, along with numerous other disability organizations, and as members of the Consortium for Constituents with Disabilities(CCD), supported a letter Senators Tammy Duckworth (D-IL) and Dick Durbin (D-IL and Chair of the Senate Judiciary Committee) sent to the Department of Justice calling on the agency to take regulatory and subregulatory action to ensure that state and local governments and public accommodations covered under Titles II and III of the Americans with Disabilities Act are accessible to and usable by people with disabilities. United Spinal submitted comments to the U.S. Access Board on accessible medical diagnostic equipment and wheelchair height. United Spinal endorsed an ITEM Coalition letter to DOT highlighting the concerns of the lack of training in the airline industry as it relates to the handling of wheelchairs. Incorrect information was shared by the airline industry at a DOT Public meeting in March regarding Air Travel and Persons with Disabilities.
United Spinal advocacy and policy staff discussed accessibility concerns in a quarterly meeting of the Disability Community Advisory Group with the District of Columbia Homeland Security Emergency Management Agency.
United Spinal advocacy and policy staff met with staff for Sen. Susan Collins (R-ME) to urge that the Senator cosponsor the ABLE Age Adjustment Act (S. 331).
United Spinal supports H.R.2373/S.3238 - Transformation to Competitive Integrated Employment Act.
United Spinal/VetsFirst supports the AUTO for Veterans Act - S. 444/H.R. 1361, the Care Access Resources for Veterans Act/CARS for Vets Act/H.R. 3304 and the S. 910 SAFE Banking Act.
United Spinal advocacy and policy staff met with staff for Sen. Bob Casey (D-PA) to discuss initiatives to promote accessibility for people with disabilities in the National Park System.
United Spinal advocacy and policy staff participated shared concerns around access in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal advocacy and policy staff attended a site visit of a soft mockup of Amtraks forthcoming intercity trainset cars. United Spinal advocacy and policy staff attended a site visit of the new Amtrak Acela trainset. United Spinal supports the Disability Access to Transportation Act (H.R. 1697/S. 2038) (supports including in FY23 transportation appropriations the intermediate one stop pilot program contained in H.R. 1697 and the Air Carrier Access Amendments Act (H.R. 1696/S. 642). United Spinal continued partnering with May Mobility and other partners on a project for further consideration with the U.S. Department of Transportations Inclusive Design Challenge to create more accessibility for people with disabilities as well as everyone else, particularly in utilizing new technologies with automated vehicles and related infrastructure. United Spinal staff continue to partner with May Mobility on the US Department of Transportations Inclusive Design Challenge on automated vehicle accessible components and technologies. United Spinal policy staff participated in a virtual US Department of Transportation Information Session on DOT Priorities. United Spinal, along with numerous other disability organizations, and as members of the Consortium for Constituents with Disabilities Transportation Task Force adopted AV principles and recommendations in the areas of: autonomous vehicle accessibility; costs; data; infrastructure; legislation; licensing and insurance; research and funding; resiliency, regulation, equivalent and integrated service; safety; and workforce for regulatory and legislative considerations. United Spinal, along with numerous other disability organizations, as members of the Consortium for Constituents with Disabilities (CCD) Transportation Task Force submitted comments to the National Highway Traffic Safety Administration (NHTSA) on their New Car Assessment Program (NCAP), Docket No. NHTSA-2021- 0002. The comments read in part, We are grateful for the U.S. Department of Transportations (DOTs) attention to the safety of people traveling outside of vehicles in the NCAP and its inclusion of pedestrian automatic emergency braking (PAEB) and other Advanced Driver Assistance Systems (ADAS).
United Spinal signed a comment letter to United States Citizenship and Immigration Services providing comments on a proposed rule related to the public charge rulemaking and its impact on people with disabilities.
United Spinal Association supports HR 3932 / S 2076 The Pioneering Antimicrobial Subscriptions to End Up surging Resistance (PASTEUR) Act. United Spinal advocacy and policy staff met with staff for Sen. Bob Casey (D-PA) to discuss support for increasing funding for the Spinal Cord Injury Model Systems program at NIDILIRR. To advocate for the disability community being included as a population In equitable diversity efforts and as a member of the Disability Rehabilitation Research Coalition (DRRC), United Spinal endorsed DRRCs Comments to NIH on the NIH-Wide Strategic Plan Framework for Diversity, Equity, Inclusion, and Accessibility. As a member of the Disability Rehabilitation Research Coalition (DRRC), United Spinal supported DRRCs Comments on submitted comments to National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) on their proposed rule updating the peer review criteria to increase consideration of how projects employ and reach out to people with disabilities. As a member of the Disability Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed onto DRRCs Comments to NIH and AHRQ urging consideration of designating people with disabilities as a health disparity population for purposes of federal research conducted at the National Institute on Minority Health and Health Disparities (NIMHD) and across the National Institutes of Health (NIH). Ask the House and Senate for Increased Funding for Spinal Cord Injury Model Systems at NIDILRR. United Spinal supports the Improving Seniors' Timely Access to Care Act - H.R 3173/S. 3018. United Spinal provided comments to CMS on the proposed IRF payment rule - our comments focus on CMS Request for Information (RFI) regarding potential application of the home health transfer policy to IRFs, as well as broader concerns with access to appropriate rehabilitation for complex conditions in the Medicare IRF benefit.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Agency for Healthcare Research & Quality (AHRQ), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS)
United Spinal Association supports HR 2168 / S 3193 Expanded Telehealth Access Act. United Spinal Association supports HR 3932 / S 2076 The Pioneering Antimicrobial Subscriptions to End Up surging Resistance (PASTEUR) Act. United Spinal Association/VetsFirst supports The Advanced Safe Testing at Residence Telehealth (A-START) Act of 2021. Increase Funding for Spinal Cord Injury Model Systems - House/Senate. Discussed the need for SCIMS increased funding and next steps with Director Anjali Forber-Pratt, Dir., NIDILRR. United Spinal Association raised concerns: regarding accessibility of COVID-19 tests; MA and Part D programs, notice of benefit and payment parameters; support CMS access to dental surgical services, support the DMEPOS Relief Act (H.R. 6641); share concerns re the CMS ACA Exchange Rule; support the Health Data Use and Privacy Commission Act (S. 3620); shared concerns with CMS regarding access to DME in times of public health emergency. United Spinal advocacy and policy staff participated in a meeting with representatives from the CDC, CMS, and ACL urging the CDC to issue guidance on census reduction of nursing homes and other institutional settings as an infection control measure. United Spinal supported comments as part of the Disability and Rehabilitation Research Coalition on the draft Strategic Plan for the NIH Chief Officer for Scientific Workforce Diversity (COSWD). Support significant investment into home and community-based services and supports. Met with House and Senate in support of improvements in health equity (Ways and Means Committee Subcommittee on Health United States House of Representatives; testimony); SUPPORT EQUITABLE REFORMS TO THE MEDICARE PHYSICIAN FEE SCHEDULE; SUPPORT H.R. 944 TO ADDRESS SPECIALTY MEDICINE PHYSICIAN SHORTAGES IN RURAL AREAS; SUPPORT H.R. 2256/S. 834 TO INCREASE THE NUMBER OF GME RESIDENCY SLOTS; SUPPORT H.R. 2903/S. 1512; SUPPORT H.R. 5030/S.2706 TO IMPROVE DIVERSITY IN CLINICAL TRIALS TO PERMANENTLY EXPAND TELEHEALTH SERVICES
United Spinal advocacy and policy staff signed a letter to Senator Grassley urging him to cosponsor the ABLE Age Adjustment Act (S. 331) and urged for support with other Senate offices.
United Spinal advocacy and policy staff participated shared concerns around access in a quarterly call with Amtrak along with other representatives from disability organizations. United Spinal supports the Disability Access to Transportation Act (H.R. 1697/S. 2038), and the Air Carrier Access Amendments Act (H.R. 1696/S. 642). United Spinal continued partnering with May Mobility and other partners on a project for further consideration with the U.S. Department of Transportations Inclusive Design Challenge to create more accessibility for people with disabilities as well as everyone else, particularly in utilizing new technologies with automated vehicles and related infrastructure. Shared concerns regarding the DOT Public Meeting on Air Travel for Passengers with Disabilities. Submitted comments to Department of Transportations Research, Development, and Technology (RD&T) Strategic Plan for fiscal years (FY) 2022-2026. Submitted comments to the Federal Highway Administration regarding electric vehicles and chargers.
United Spinal advocacy and policy staff discussed accessibility concerns in a quarterly meeting of the Disability Community Advisory Group with the District of Columbia Homeland Security Emergency Management Agency.
United Spinal advocacy and policy staff signed a letter to the Attorney General to urge the Department of Justice to immediately pursue regulatory and additional subregulatory initiatives under Titles II and III of the ADA to ensure that state and local governments and public accommodations procure, design, maintain, and use websites, mobile apps, online systems, and other forms of information and communication technology that are accessible to and usable by people with disabilities. United Spinal raised concerns with DOJ on access to medical diagnostic equipment, home testing and related accessible communications.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), White House Office
United Spinal advocacy and policy staff met with staff for Rep. Grace Meng (D-NY) to discuss her introduction of a resolution recognizing United Spinals 75th anniversary. United Spinal advocacy and policy staff met with staff for Sen. Richard Blumenthal (D-CT) to discuss possible legislation related to guardianship reform. United Spinal signed onto a letter to DOJ re reupping rulemaking on web access, Next Gen 911, and access to medical diagnostic/other equipment & furniture. Public Charge Ground of Inadmissibility, Advance Notice of Proposed Rulemaking, DHS Docket No. USCIS- 2021-0013, RIN 1615-AC74 (Aug. 23, 2021). United Spinal signed onto this Consortium for Citizens with Disabilities letter - While elimination of the rule is a matter for Congress, we urge DHS to adopt the narrowest possible interpretation of the rule within its authority, to avoid needless harms to our immigrant communities, including immigrants with disabilities. Comments for the Record of October 20, 2021 Hearing on Oversight of the Americans with Disabilities Act of 1990: The Current State of Integration of People With Disabilities to the House Judiciary Committee. United Spinal is a member of the CCD Rights Task Force and Employment and Training Task Force: submitted these comments for the record of the above-captioned hearing on the Americans with Disabilities Act. We applaud you for conducting a hearing concerning implementation of the Americans with Disabilities Act (ADA) and its integration mandate. As you and others observed at the hearing, the full promise of the ADA remains unrealized for far too many people with disabilities. Implementation and enforcement of the integration mandate and the Supreme Courts Olmstead decision are critically important to the lives of disabled people.
United Spinal advocacy and policy staff, along with our CEO, met with several Congressional offices to discuss priorities, including funding for caregiving, funding for Spinal Cord Injury Model Systems, telehealth. United Spinal advocacy and policy staff were invited to meet with staff from Sen. Tim Kaines (D-VA) office to discuss legislation addressing the effects of long COVID. United Spinal met with the HHS Office of Inspector General to discuss challenges with Medicare and Medicaid coverage of urological supplies for people with disabilities. As a member of the Disability and Rehabilitation Research Coalition, United Spinal supported comments submitted by the Coalition on the Draft HHS Strategic Plan Fiscal Years 2022 - 2026. United Spinal supports provisions in H.R.5376 - the Build Back Better Act. To improve transportation options and accessibility for all, especially people with disabilities, United Spinal advocated for enactment of Senate Amendment 2137 to H.R. 3684, the Infrastructure Investment and Jobs Act. To modernize and increase federal investment for in-home care for people with disabilities, United Spinal partnered with the White House on a Roundtable on Funding for Home and Community-Based Services on October 6, 2021. To bring increased awareness to people living with spinal cord injuries and other neurological conditions, United Spinal advocated for the enactment of S.Res.278 - A resolution recognizing the 75th anniversary of United Spinal Association, a leading national advocacy organization that is dedicated to promoting the independence and enhancing the quality of life of all people living with spinal cord injuries and neurological disorders, including veterans, and providing support and information to their loved ones, care providers, and personal support networks. To encourage maintaining the policy changes that allowed 35 million Americans with high-deductible health plans coupled with Health Savings Accounts (HDHP-HSAs) to receive telehealth benefits from their employer or insurer pre-deductible, United Spinal, as a member of the Personal Connected Health Alliance ( PCHAlliance), supported a letter the PCHAlliance signed onto and that was submitted to bipartisan congressional leadership urging telehealth benefits to be maintained. To bring increased awareness to people living with spinal cord injuries and other neurological conditions, United Spinal advocated for the enactment of S.Res.698 - A resolution designating September 2020 as "National Spinal Cord Injury Awareness Month". To support health care delivery, including behavioral health services, through the use of information and technology which serves serve as the backbone to evidence-based health care, United Spinal, as a member of the Personal Connected Health Alliance ( PCHAlliance), supported a memo the PCHAlliance sent to bipartisan congressional leadership, U.S. Senate Finance Committee Chairman Ron Wyden and Ranking Member Mike Crapo, responding to the Finance Committees outreach to obtain input on evidence-based policies to enhance and improve access to behavioral health services. The memo addressed the following topics, strengthening workforce, Increasing Integration, Coordination and Access to Care and expanding telehealth, specifically including a call for Equitable Access to affordable, reliable, and quality broadband. As a member of the Disability and Rehabilitation Research Coalition, United Spinal supported comments submitted by the Coalition on the COVID-19 Health Equity Task Forces, Office of Minority Health, U.S. Department of Health and Human Services Final Report and Recommendations. United Spinal supported the House passage of the Build Back Better Act. Signed on as subgrantee recipient and partner for the National Institutes of Health All of Us program. Medicare Coverage of Innovative Technology (MCIT) and Definition of Reasonable and Necessary [CMS-3372-P2; RIN: 0938-AT88] - As a steering Committee member of the ITEM Coalition, United Spinal signed onto these comments where the ITEM Coalition strongly supported the proposal to create the MCIT pathway and allow immediate Medicare coverage of FDA-designated and market-approved breakthrough devices. Thus, we are disappointed in the agencys decision to back away from this proposal and recommend that CMS reconsider whether this is the most appropriate stance to protect Medicare beneficiaries and press forward with an alternative that accomplishes a similar purpose the final rule was intended to achieve. Proposed Review Choice Demonstration for Inpatient Rehabilitation Facility Services (CMS-10765). As a Steering Committee member of the Coalition to Preserve Rehabilitation, United Spinal signed onto a letter raising concerns about the proposed demonstration and the consequences it would have for patient access to care in inpatient rehabilitation hospitals and rehabilitation units of acute care hospitals. Unfortunately, these concerns were not adequately addressed by CMS as a result of the initial comment period in February 2021, and CMS continues to signal its intention to move forward with this expansive new demonstration project that disproportionately impacts Medicare beneficiaries with disabilities and chronic conditions. We therefore urge CMS to withdraw this proposal in its entirety and discuss with stakeholders other, less problematic ways to achieve its program integrity goals.
United Spinal supports H.R.2373/S.3238 - Transformation to Competitive Integrated Employment Act United Spinal presented on a panel as part of a Congressional Briefing for National Disability Employment Awareness Month on the challenges with finding employment for people with disabilities.
United Spinal advocacy and policy staff met with staff for Senator Mike Crapo (R-ID) to ask for his support for the ABLE Age Adjustment Act (S. 331).
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA), White House Office
United Spinal supports H.R 1697/ S. 2038 - the Disability Access to Transportation Act. United Spinal supports the Air Carrier Access Amendments Act. S. 642/H.R.1696. To outline the transportation limitations and needs of persons with disabilities in order to access the imperative COVID-19 vaccine, United Spinal Signed on to a letter to the Biden Administration organized by two Task Forces of the Consortium for Citizens with Disabilities. To advocate for greater accessibility in transportation and to respond to the request for comments on the Automated Driving Systems (ADS) Framework, United Spinal supported a letter to U.S. Secretary of Transportation Buttigieg by the Co Chairs of the Consortium for Citizens with Disabilities Transportation Task Force. To provide competitive grants to assist State and local governmental authorities in addressing accessibility needs of legacy rail fixed guideway public transportation systems, United Spinal supported a Consortium for Citizens with Disabilities Transportation Task Force Co-Chairs letter supporting supporting Senator Tammy Duckworths introducing the All Station Accessibility Program Act of 2021 or the ASAP Act. As Congress and the Administration craft major infrastructure legislation, United Spinal help draft and signed onto letters, along with numerous other stakeholders, to congressional leaders and administration officials seeking to harness innovations in transportation to dramatically improve equitable services in public transportation, particularly for those with disabilities, seniors, and underserved populations by: (1) Increasing investment in on-demand microtransit while ensuring accessibility in those and any other future transit services; and (2) Creating a federal grant program to bring innovation to ADA paratransit services. To enhance transportation opportunities and efficiencies in transit and paratransit, United Spinal, along with numerous other disability organizations and organizations and Via, a transit technology company, shared a letter with members of Congress and their staffs advocating for increased focus and federal funding for micro transit on demand transportation technologies programs and services.
United Spinal advocacy and policy staff participated in a quarterly meeting of the Disability Community Advisory Group with DC HSEMA on emergency preparedness issues for the disability community.
â--�United Spinal advocacy and policy staff worked with staff from the office of Rep. Lucy McBath (D-GA) in support of a House sign-on letter to the House Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022. â--�United Spinal advocacy and policy staff submitted appropriations requests to House and Senate in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022. â--�United Spinal advocacy and policy staff worked with chapters and advocates around the country to secure letters of support from members of Congress for United Spinals application for the National Paralysis Resource Center federal grant from the Department of Health and Human Services. Support: Increased funding for Spinal Cord Injury Model Systems; increased funding for Medicaid home and community-based services (HCBS); Support: CONNECT for Health Act - S. 1512/H.R. 2903 and HOUSE: Protecting Access to Post-COVID-19 Telehealth Act - H.R. 366 and Expanded Telehealth Access Act - H.R. 2168 support expanding telehealth access beyond the pandemic. To continue efforts to achieve a more equitable culture within the biomedical research enterprise and to break down barriers to equity in the workforce, United Spinal, as a member of the Disability Rehabilitation Research Coalition, signed on to a letter to the Director of the National Institutes of Health (NIH) in response to NIHs Request for Information to Advance and Strengthen Racial Equity, Diversity, and Inclusion in the Biomedical Research Workforce and Advance Health Disparities and Health Equity Research (NOT-OD-21-066). To recognize that disability cuts across all demographics and almost all areas of research conducted by the NIH and should be recognized as such in its Strategic Plan, United Spinal, as a member of the Disability Rehabilitation Research Coalition (DRRC), supported the DRRCs letter on the on FY 2021-2025 NIH-Wide Strategic Plan Framework. Support telehealth expansion and improvements in the delivery of rehabilitation and access to assistive devices and assistive technology. To support federal research impacting people with disabilities, illnesses, injuries, and chronic conditions, especially those suffering from acute or long-term impacts of COVID-19, United Spinal signed onto a letter of recommendations and requests for program funding in Fiscal Year (FY) 2022 to congressional appropriations leadership as a member of the Disability and Rehabilitation Research Coalition (DRRC). To expand the knowledge base around access to assistive technologies and devices (AT) and lay the groundwork for improvements in care and policy solutions to support people with limb loss and limb difference, United Spinal as a member of the Disability and Rehabilitation Research Coalition (DRRC), signed onto letters of support for legislation recently introduced by Reps. G.K. Butterfield (D-NC) and Brett Guthrie (R-KY), the Access to Assistive Technology and Devices for Americans Study Act (the Triple A Study Act, H.R. 2461), urging members of Congress to cosponsor this bipartisan legislation. To advocate for people with disabilities,United Spinal supported a Disability and Rehabilitation Research Coalition letter of welcome and congratulations to Dr. Anjali Forber-Pratt, the new Director of the National Institute on Disability, Independent Living, and Rehabilitation Research. To increase access to telemental health care, United Spinal as a member of the Personal Connected Health Alliance, supported letters the PCHAlliance sent endorsing the Telemental Health Care Access Act to Senator Bill Cassidy and other Senate supporters and to U.S. Representatives Doris Matsui and Bill Johnson.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA), White House Office
United Spinal advocacy and policy staff participated in a quarterly meeting of the Disability Community Advisory Group with DC HSEMA on emergency preparedness issues for the disability community.
United Spinal advocacy and policy staff met with staff from Sen. Menendezs office to discuss a possible Dear Colleague to seek cosponsors for the Disability Access to Transportation Act (S. 2038). United Spinal advocacy and policy staff participated in a quarterly call with Amtrak along with other representatives from disability organizations. To promote access to transportation, United Spinal, as a member of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force drafted a letter to support the Disability Access to Transportation Act (H.R.1697 / S. 2038). To help ensure safety for people with disabilities using public transit, United Spinal as a member of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force supported comments the Task Force Co Chairs submitted to the US Department of Transportation in response to the Request for Information on Transit Safety Concerns Docket No. FTA 2021-0011. The comments read in part, We urge the Federal Transit Administration to account for the accessibility of the safety systems that are put into effect and to actively seek rider-oriented perspectives on safety priorities. United Spinal supports the All Stations Access Program (Sen. Duckworth). House INVEST Act - United Spinal supports various consumer protections provisions for people with disabilities in the INVEST Act. Met with Rep. Titus to thank her for her leadership on DATA - H.R. 1697 and discuss next steps.
United Spinal advocacy and policy staff facilitated virtual meetings with staff for Senate Appropriations Committee lead offices to discuss increased funding for Spinal Cord Injury Model Systems in the Senates FY22 Labor-HHS-Education appropriations bill. These offices were Sen. Leahy (D-VT), Sen. Shelby (R-AL), Sen. Murray (D-WA), and Sen. Blunt (R-MO). To promote greater accessibility to healthcare, United Spinal, as a member of the Personal Connected Healthcare Alliance, PCHAlliance, along with numerous other organizations, supported a letter sent to Congressional leadership outlining priorities for Medicare Telehealth reform. To improve the delivery of new health care treatments and cures through federal legislation building on the 21st Century Cures Act of 2016 which accelerated the discovery, development, and delivery of new treatments and cures for patients and which have had a tremendous impact on our health care ecosystem, United Spinal supported a memo submitted to select members of Congress by the Healthcare Information and Management Systems Society (HIMSS) and the Personal Connected Health Alliance (PCHAlliance). United Spinal is a member of the PCHAlliance. To advance accessibility in standards for remote patient monitoring, United Spinal supported a memo from the Healthcare Information and Management Systems Society (HIMSS) and the Personal Connected Health Alliance (PCHAlliance) in response to National Committee on Vital and Health Statistics on standard setting for remote patient monitoring. Response to National Committee on Vital and Health Statistics (NCVHS) Request for Information on Data Standards, Harmonization of Standards, and Code Sets. To improve health outcomes for people with disabilities, United Spinal, as a member of the Disability Rehabilitation Research Coalition (DRRC), supported comments submitted by the DRRC in response to a request from the Congressional Social Determinants of Health (SDOH) Caucus for information from stakeholders. To improve accessible health outcomes for people with disabilities, United Spinal, as a member of the Personal Connected Health Alliance (PCHAlliance) supported comments on telehealth the PCHAlliance, along with the Healthcare Information and Management Systems Society (HIMSS), submitted in response to the Notice of Proposed Rule Making (NPRM) on Medicare Program; CY 2022 Payment Policies Under the Physician Fee Schedule and Other Changes to Part B Payment Policies; Medicare Shared Savings Program Requirements; Provider Enrollment Regulation Updates; Provider and Supplier Prepayment and Post- Payment Medical Review Requirements (CMS 1751-P). To improve accessible health outcomes for people with disabilities, United Spinal, as a member of the Personal Connected Health Alliance (PCHAlliance) supported comments on telehealth the PCHAlliance, along with numerous other health related organizations, submitted in response to theNotice of Proposed Rule Making (NPRM) on Medicare Program; CY 2022 Payment Policies Under the Physician Fee Schedule and Other Changes to Part B Payment Policies; Medicare Shared Savings Program Requirements; Provider Enrollment Regulation Updates; Provider and Supplier Prepayment and Post-Payment Medical Review Requirements (CMS 1751-P). United Spinal Association signed a letter to the CDC asking for a meeting to discuss the importance of guidance calling for census reduction in congregate care facilities during a pandemic. SCI Awareness Month - worked with Senators Rubio and Baldwin to pass SCI Awareness Month resolution in the Senate.
United Spinal advocacy and policy staff participated in calls with Senate offices to promote funding for Medicaid home and community-based services in the upcoming reconciliation bill. These offices were Sen. Van Hollen (D-MD), Sen. Cardin (D-MD), Sen. Menendez (D-NJ), and Sen. Coons (D-DE). United Spinal advocacy and policy staff met with the White House and planned a Roundtable featuring United Spinal members on the subject of increasing funding for caregiving in the Build Back Better Act. United Spinal advocacy and policy staff provided comments and guidance on the National Council on Disabilitys 2022-2026 strategic plan. To help ensure independent living for people with disabilities, United Spinal, along with numerous other disability organizations, signed on to a letter, led by AAPD, to Congressional leadership expressing support for the full $400 billion for Medicaid Home and Community Based Services (HCBS). United Spinal Association signed onto a letter to CMS commenting on their interim final rule related to vaccine requirements for residents and staff of long-term care facilities. United Spinal joined Coalition for Citizens with Disabilities Comments to the House and Senate on supporting the Better Care Better Jobs Act. The Coalition to Preserve Rehabilitation (CPR), including United Spinal Association, appreciate the opportunity to comment on the Calendar Year 2022 Home Health Prospective Payment System proposed rule. Our comments focus on the proposal to expand the Home Health Value-Based Purchasing Model (HHVBP) nationwide and the broader impact of the recently implemented Patient-Driven Groupings Model (PDGM) on access to care for Medicare beneficiaries in the home health setting. CY 2022 Home Health Prospective Payment System Rate Update; Home Health Value-Based Purchasing Model Requirements and Proposed Model Expansion; Home Health Quality Reporting Requirements Proposed Rule [CMS-1747-P; RIN: 0938-AU37] United Spinal supported efforts to increase access to complex rehab technology for customized wheelchairs.
United Spinal Association signed onto a letter to the Department of Housing and Urban Development in support of their proposed rule to rescind their 2020 final rule related to disparate impact discrimination and reinstate their 2013 final rule.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Disease Control & Prevention (CDC), Federal Aviation Administration (FAA), Federal Communications Commission (FCC), Federal Transit Administration (FTA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Housing & Urban Development, Dept of (HUD), Justice, Dept of (DOJ), Office of Management & Budget (OMB), SENATE, Transportation Security Administration (TSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), White House Office
United Spinal advocacy and policy staff participated in a Consortium for Citizens with Disabilities co-chairs meeting with ACL Acting Administrator Alison Barkoff and officials from ACL, HUD, and DOJ to discuss ways federal agencies can coordinate to enforce the Olmstead decision, and to transfer and divert people with disabilities from nursing homes or congregate settings to community settings. United Spinal advocacy and policy staff participated in a Consortium for Citizens with Disabilities Rights Task Force co-chairs meeting with Kim Knackstedt, Disability Policy Director for the White House Domestic Policy Council to discuss disability representation in the federal workforce, the Biden Administrations commitments on caregiving, and ending the subminimum wage, disability rights initiatives. United Spinal signed a Consortium for Citizens with Disabilities letter of support for a resolution (H. Res. 183/S. Res. 86) supporting disability rights and the role of the disability community in the struggle for civil rights, marking the 20th anniversary of the installation of a statue of President Franklin Delano Roosevelt in a wheelchair at the FDR Memorial in Washington, DC. United Spinal signed a Consortium for Citizens with Disabilities letter to the Senate Judiciary Committee in support of the nomination of Vanita Gupta to be Associate Attorney General. United Spinal signed a National Coalition on Accessible Voting position statement on the For the People Act (S. 1), expressing concerns with a paper ballot mandate and asking for several changes to the bill in order to ensure that people with disabilities have the right to a private and independent vote consistent with their rights under the law. United Spinal and VetsFirst signed onto Consortium for Citizens with Disabilities priority statements for the Administration and Congress on all issues impacting the disability community including disabled veterans.
United Spinal signed a Consortium for Citizens with Disabilities letter of support for the ABLE Age Adjustment Act (H.R. 1219/S. 331).
To help achieve United Spinals goal of greater accessibility in transportation and to congratulate Secretary Buttigieg on his confirmation, United Spinal sent the Secretary a letter advocating for the Consortium for Citizens with Disabilities Transportation Task Force request for a meeting with him and his modal administrators to discuss the shared goals of President Bidens and his agenda, along with our priorities and urged he adopt Senator Tammy Duckworths recommendation that his senior leadership team include a staff person to focus on accessibility and universal design. The staff person would ideally engage with all modal administrators and have significant experience working with the disability community. United Spinal advocacy and policy staff participated in a virtual call with Amtrak, where they discussed their settlement with the Department of Justice over violations of the ADA. United Spinal advocacy and policy staff participated in a quarterly disability community meeting with Amtrak. United Spinal advocacy and policy staff met with Josh Sanders, Legislative Assistant for Sen. Bob Menendez (D-NJ) to discuss introducing a Senate companion bill to the Disability Access to Transportation Act (H.R. 1697). United Spinal supports H.R 1697 - the Disability Access to Transportation Act. United Spinal supports the Air Carrier Access Amendments Act. S. 642/H.R.1696. United Spinal supports the Disability Employment Incentive Act. S. 630. To promote transportation accessibility, United Spinal supported the comments of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force Co-Chairs to the US Department of Transportation (DOT) on its draft Strategic Plan on Accessible Transportation (Strategic Plan): United Spinal signed onto comments submitted by the Paralyzed Veterans of America. United Spinal also submitted comments. To promote transportation opportunities for people with disabilities, United Spinal signed onto a congratulatory welcome letter from the Consortium for Citizens with Disabilities (CCD) Transportation Task Force to the US Department of Transportation (DOT) Secretary Pete Buttigieg. United Spinal supported a similar letter submitted by the Co Chairs of the Consortium for Citizens with Disabilities (CCD) telecommunications and Technology Task Force. To promote greater transportation opportunities for people with disabilities, United Spinal provided comments in response to the U.S. Department of Transportations Request for Information for the Inclusive Design Reference Hub. To help balance vehicle safety and accessibility for people with disabilities United Spinal supported comments submitted by the Consortium for Citizens with Disabilities Transportation Task Force CoChairs to the Nation Highway Traffic Safety Administrations (NHTSA) Supplemental Notice of Proposed Rulemaking (SNPRM) Docket Number: NHTSA-2016-0031. United Spinal submitted its own comments as well.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Equal Employment Opportunity Commission (EEOC), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Housing & Urban Development, Dept of (HUD), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA), White House Office
â--�United Spinal advocacy and policy staff worked with staff from the office of Rep. Lucy McBath (D-GA) in support of a House sign-on letter to the House Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022. â--�United Spinal advocacy and policy staff submitted appropriations requests to House and Senate in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022. â--�United Spinal advocacy and policy staff worked with chapters and advocates around the country to secure letters of support from members of Congress for United Spinals application for the National Paralysis Resource Center federal grant from the Department of Health and Human Services. Support: Increased funding for Spinal Cord Injury Model Systems; increased funding for Medicaid home and community-based services (HCBS); Support: CONNECT for Health Act - S. 1512/H.R. 2903 and HOUSE: Protecting Access to Post-COVID-19 Telehealth Act - H.R. 366 and Expanded Telehealth Access Act - H.R. 2168 support expanding telehealth access beyond the pandemic. To continue efforts to achieve a more equitable culture within the biomedical research enterprise and to break down barriers to equity in the workforce, United Spinal, as a member of the Disability Rehabilitation Research Coalition, signed on to a letter to the Director of the National Institutes of Health (NIH) in response to NIHs Request for Information to Advance and Strengthen Racial Equity, Diversity, and Inclusion in the Biomedical Research Workforce and Advance Health Disparities and Health Equity Research (NOT-OD-21-066). To recognize that disability cuts across all demographics and almost all areas of research conducted by the NIH and should be recognized as such in its Strategic Plan, United Spinal, as a member of the Disability Rehabilitation Research Coalition (DRRC), supported the DRRCs letter on the on FY 2021-2025 NIH-Wide Strategic Plan Framework. Support telehealth expansion and improvements in the delivery of rehabilitation and access to assistive devices and assistive technology. To support federal research impacting people with disabilities, illnesses, injuries, and chronic conditions, especially those suffering from acute or long-term impacts of COVID-19, United Spinal signed onto a letter of recommendations and requests for program funding in Fiscal Year (FY) 2022 to congressional appropriations leadership as a member of the Disability and Rehabilitation Research Coalition (DRRC). To expand the knowledge base around access to assistive technologies and devices (AT) and lay the groundwork for improvements in care and policy solutions to support people with limb loss and limb difference, United Spinal as a member of the Disability and Rehabilitation Research Coalition (DRRC), signed onto letters of support for legislation recently introduced by Reps. G.K. Butterfield (D-NC) and Brett Guthrie (R-KY), the Access to Assistive Technology and Devices for Americans Study Act (the Triple A Study Act, H.R. 2461), urging members of Congress to cosponsor this bipartisan legislation. To advocate for people with disabilities,United Spinal supported a Disability and Rehabilitation Research Coalition letter of welcome and congratulations to Dr. Anjali Forber-Pratt, the new Director of the National Institute on Disability, Independent Living, and Rehabilitation Research. To increase access to telemental health care, United Spinal as a member of the Personal Connected Health Alliance, supported letters the PCHAlliance sent endorsing the Telemental Health Care Access Act to Senator Bill Cassidy and other Senate supporters and to U.S. Representatives Doris Matsui and Bill Johnson.
â--�United Spinal advocacy and policy staff worked with staff from the office of Rep. Lucy McBath (D-GA) in support of a House sign-on letter to the House Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022. â--�United Spinal advocacy and policy staff submitted House and Senate appropriations requests in support of additional funding for Spinal Cord Injury Model Systems, the National Spinal Cord Injury Statistical Center, and the Model Systems Knowledge Translation Center in Fiscal Year 2022.
United Spinal supports H.R 1697/ S. 2038 - the Disability Access to Transportation Act. United Spinal supports the Air Carrier Access Amendments Act. S. 642/H.R.1696. To outline the transportation limitations and needs of persons with disabilities in order to access the imperative COVID-19 vaccine, United Spinal Signed on to a letter to the Biden Administration organized by two Task Forces of the Consortium for Citizens with Disabilities. To advocate for greater accessibility in transportation and to respond to the request for comments on the Automated Driving Systems (ADS) Framework, United Spinal supported a letter to U.S. Secretary of Transportation Buttigieg by the Co Chairs of the Consortium for Citizens with Disabilities Transportation Task Force. To provide competitive grants to assist State and local governmental authorities in addressing accessibility needs of legacy rail fixed guideway public transportation systems, United Spinal supported a Consortium for Citizens with Disabilities Transportation Task Force Co-Chairs letter supporting supporting Senator Tammy Duckworths introducing the All Station Accessibility Program Act of 2021 or the ASAP Act. As Congress and the Administration craft major infrastructure legislation, United Spinal help draft and signed onto letters, along with numerous other stakeholders, to congressional leaders and administration officials seeking to harness innovations in transportation to dramatically improve equitable services in public transportation, particularly for those with disabilities, seniors, and underserved populations by: (1) Increasing investment in on-demand microtransit while ensuring accessibility in those and any other future transit services; and (2) Creating a federal grant program to bring innovation to ADA paratransit services. To enhance transportation opportunities and efficiencies in transit and paratransit, United Spinal, along with numerous other disability organizations and organizations and Via, a transit technology company, shared a letter with members of Congress and their staffs advocating for increased focus and federal funding for micro transit on demand transportation technologies programs and services.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA), White House Office
To help achieve United Spinals goal of greater accessibility in transportation and to congratulate Secretary Buttigieg on his confirmation, United Spinal sent the Secretary a letter advocating for the Consortium for Citizens with Disabilities Transportation Task Force request for a meeting with him and his modal administrators to discuss the shared goals of President Bidens and his agenda, along with our priorities and urged he adopt Senator Tammy Duckworths recommendation that his senior leadership team include a staff person to focus on accessibility and universal design. The staff person would ideally engage with all modal administrators and have significant experience working with the disability community. United Spinal advocacy and policy staff participated in a virtual call with Amtrak, where they discussed their settlement with the Department of Justice over violations of the ADA. United Spinal advocacy and policy staff participated in a quarterly disability community meeting with Amtrak. United Spinal advocacy and policy staff met with Josh Sanders, Legislative Assistant for Sen. Bob Menendez (D-NJ) to discuss introducing a Senate companion bill to the Disability Access to Transportation Act (H.R. 1697). United Spinal supports H.R 1697 - the Disability Access to Transportation Act. United Spinal supports the Air Carrier Access Amendments Act. S. 642/H.R.1696. United Spinal supports the Disability Employment Incentive Act. S. 630. To promote transportation accessibility, United Spinal supported the comments of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force Co-Chairs to the US Department of Transportation (DOT) on its draft Strategic Plan on Accessible Transportation (Strategic Plan): United Spinal signed onto comments submitted by the Paralyzed Veterans of America. United Spinal also submitted comments. To promote transportation opportunities for people with disabilities, United Spinal signed onto a congratulatory welcome letter from the Consortium for Citizens with Disabilities (CCD) Transportation Task Force to the US Department of Transportation (DOT) Secretary Pete Buttigieg. United Spinal supported a similar letter submitted by the Co Chairs of the Consortium for Citizens with Disabilities (CCD) telecommunications and Technology Task Force. To promote greater transportation opportunities for people with disabilities, United Spinal provided comments in response to the U.S. Department of Transportations Request for Information for the Inclusive Design Reference Hub. To help balance vehicle safety and accessibility for people with disabilities United Spinal supported comments submitted by the Consortium for Citizens with Disabilities Transportation Task Force CoChairs to the Nation Highway Traffic Safety Administrations (NHTSA) Supplemental Notice of Proposed Rulemaking (SNPRM) Docket Number: NHTSA-2016-0031. United Spinal submitted its own comments as well.
United Spinal signed a Consortium for Citizens with Disabilities letter of support for the ABLE Age Adjustment Act (H.R. 1219/S. 331).
United Spinal advocacy and policy staff participated in a Consortium for Citizens with Disabilities co-chairs meeting with ACL Acting Administrator Alison Barkoff and officials from ACL, HUD, and DOJ to discuss ways federal agencies can coordinate to enforce the Olmstead decision, and to transfer and divert people with disabilities from nursing homes or congregate settings to community settings. United Spinal advocacy and policy staff participated in a Consortium for Citizens with Disabilities Rights Task Force co-chairs meeting with Kim Knackstedt, Disability Policy Director for the White House Domestic Policy Council to discuss disability representation in the federal workforce, the Biden Administrations commitments on caregiving, and ending the subminimum wage, disability rights initiatives. United Spinal signed a Consortium for Citizens with Disabilities letter of support for a resolution (H. Res. 183/S. Res. 86) supporting disability rights and the role of the disability community in the struggle for civil rights, marking the 20th anniversary of the installation of a statue of President Franklin Delano Roosevelt in a wheelchair at the FDR Memorial in Washington, DC. United Spinal signed a Consortium for Citizens with Disabilities letter to the Senate Judiciary Committee in support of the nomination of Vanita Gupta to be Associate Attorney General. United Spinal signed a National Coalition on Accessible Voting position statement on the For the People Act (S. 1), expressing concerns with a paper ballot mandate and asking for several changes to the bill in order to ensure that people with disabilities have the right to a private and independent vote consistent with their rights under the law. United Spinal and VetsFirst signed onto Consortium for Citizens with Disabilities priority statements for the Administration and Congress on all issues impacting the disability community including disabled veterans.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Equal Employment Opportunity Commission (EEOC), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Housing & Urban Development, Dept of (HUD), Justice, Dept of (DOJ), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA), White House Office
Raised concerns in two letters to the Senate, led by the Bazelon Center, about the views of Judge Amy Coney Barrett regarding the Affordable Care Act, her dissent from a decision in the Seventh Circuit Court of Appeals that concluded that the Trump administrations public charge rule discriminates against people with disabilities, and her decision finding that Wisconsin didnt discriminate against children with learning disabilities by forcing them to apply for placement in school districts separately from other children and allowing their exclusion on the basis of their service needs. Discussed with U.S. Department of Housing and Urban Development the accessibility of their website. Department of Labor - Office of Disability Employment Policy Proposed Transfer of Ticket to Work Program Raised concerns regarding the Presidents budget proposal to transfer the Ticket to Work Program from the Social Security Administration to the U.S. Department of Labor. United Spinal has raised concerns with the moving of the program due to limited staff expertise on the TTW Program at DOL and other issues. Department of Health and Human Services - Office for Civil Rights United Spinal endorsed a letter to OCR, facilitated by Not Dead Yet, regarding the need for nondiscrimination regulations in organ transplants and suicide prevention. Health Innovation Alliance coalition - United Spinal signed on to a Congressional letter in support of the need to build on and clarify existing statute to modernize public health data collection, transmission, and reporting systems, through specific partnerships with expertise in the private sector, the Centers for Disease Control and Prevention (CDC) and the Department of Health and Human Services (HHS) to make necessary data available for public health officials, policy makers, and frontline providers to improve decision making, care delivery, and patient outcomes. United Spinal Association signed onto a letter led by the Leadership Conference on Civil and Human Rights to the EEOC, asking them to extend the comment period on a Notice of Proposed Rulemaking that would significantly change their conciliation procedures and potentially make it harder for people experiencing workplace discrimination from seeking redress. United Spinal signed onto a petition to the Federal Communications Commission, along with many in the disability community, (the National Disability Leadership Alliance) urging FCC to reconsider and revise its Order in this proceeding to mandate that, by July 16, 2022 - i.e., the same deadline that applies to the covered providers implementation of voice calling to 988 - wireless carriers and covered text providers, as defined in the Text-to-911 proceeding, also must implement text-to-988 capability to communicate with the National Suicide Prevention Lifeline (Lifeline) and its trained counselors, so that the benefits of the easy-to-remember and -dial 988 code will be equally available to deaf, hard-of-hearing, late-deafened, deafblind, speech-disabled, or deaf with other disabilities people in crisis and to others in crisis for whom texting is the predominant mode of mobile communication. Provided recommendations to the Community-Based Response Act, S. 4791, legislation that would provide grants to establish non-police emergency response for certain crisis interventions. The disability community is seeking to engage Congressional offices interested in this area to ensure that the disability perspective is considered in the development of such legislation. Opposed H.R. 8478, the Online Accessibility Act. This bill would significantly weaken the ADAs protections regarding website accessibility.
Filing targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Equal Employment Opportunity Commission (EEOC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Housing & Urban Development, Dept of (HUD), Labor, Dept of (DOL), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), SENATE, Social Security Administration (SSA), Veterans Affairs, Dept of (VA), White House Office
United Spinal Association was saddened and outraged by the events surrounding the death of Michael Hickson, age 46, in Austin, Texas on June 11, 2020. Mr. Hickson, a black man and father of five, was a quadriplegic and had a brain injury due to a sudden cardiac arrest while driving in 2017. United Spinal called on HHS Office for Civil Rights to investigate the death of Mr. Hickson. United Spinal signed a letter to House and Senate leadership asking that they take specific steps to make voting and voter registration processes more accessible. These include emphasizing website accessibility, protecting and expanding in-person and early voting options, requiring multiple accessible voting options, and providing funding to research, create, and test systems to improve access for voters with disabilities. United Spinal engaged with House and Senate officers in conducting a series of ADA30 briefings throughout the summer. Support Coronavirus Language Access Act (S. 4526). Was asked to speak to the Office of Representative Lisa Blunt Rochester (D-DE). Discussed disability rights issues including transportation issues, autonomous vehicles and Money Follows the Person funding which allows for states to help individuals transition out of institutional care into their communities.
As a member of the PCHAlliance, United Spinal joined comments on the Draft Technical Brief titled Automated-Entry Patient-Generated Health Data for Chronic Conditions: The Evidence on Health Outcomes to the Agency for Health Research and Quality. Support H.R. 7663, the Protecting Access to Post-COVID-19 Telehealth Act of 2020. United Spinal provided comments for the National Institutes at Health regarding Research Topics on Disability & COVID as part of the Disability and Rehabilitation Research Coalition and discussed with NIH, United Spinal's own priorities regarding access to medical devices and supplies and physical fitness and nutrition. Support legislation to address specialty medicine physician shortages in rural areas - H.R. 5924 would encourage urologists and other specialty medicine providers to practice in rural communities by creating a student loan forgiveness program. The legislation is introduced by Rep. David McKinley (R-WV-1st). National Institutes of Health - COVID-19 Research As a member of the Disability and Rehabilitation Research Coalition, United Spinal signed onto a letter to NIH in support for Federal investment into COVID-19 Research on disability, independent living, and rehabilitation. National Institutes of Health - National Center for Medical Rehabilitation Research (NCMRR) As a member of the Disability Rehabilitation Research Consortium, United Spinal supported a letter the DRRC sent congratulating Dr. Theresa Hayes Cruz on her appointment as the permanent Director of the National Center for Medical Rehabilitation Research (NCMRR) within the National Institutes of Health. Public Health Infrastructure - Congressional Outreach United Spinal endorsed a letter to House Energy and commerce Committee leadership and Senate Health Education, Labor and Pensions leadership urging them to act quickly to modernize public health systems by establishing the network required under 319D of the Public Health Service Act. United Spinal advocacy and policy staff organized SCI Virtual Hill visits with Congressional staffers for the House Appropriations Committee - greater funding for the SCI Model Systems, including restoring them from 14 back to 18 funded Model Systems, and for continued funding for the National Neurological Conditions Surveillance System (NNCSS) at the CDC, including spinal cord injury in the NNCSS, which would allow for a national SCI registry. There is also dialogue on these two important issues with the Senate Appropriations Committee leadership. United Spinal worked with Congress to introduce a National Spinal Cord Injury Awareness Month resolution and sent out an action alert urging U.S. Senators to cosponsor the National Spinal Cord Injury Awareness Month resolution, introduced by Senators Marco Rubio (R-FL) and Tammy Baldwin (D-WI).
United Spinal signed a statement led by the Consortium for Citizens with Disabilities objecting to the Department of Housing and Urban Development finalizing regulations weakening protections against discrimination under the Fair Housing Act and urging the department to reinstate the previous regulations in order to uphold the departments commitment to fair housing and inclusive communities.
United Spinal signed onto a letter to Senators Mitch McConnell (R-KY) and Chuck Schumer (D-NY), organized by the National Coalition for Accessible Voting, of which United Spinal is a member, expressing our concerns over reports of delays in deliveries and reductions in the capacity of the U.S. Postal Service. The letter expresses concerns not only for the implications for the upcoming election, but on the ability of people with disabilities to receive timely delivery of medications, benefit checks, and basic necessities.
District of Columbia Homeland Security Emergency Management Agency - Emergency Management United Spinal and DC CIL litigation against the District. United Spinal advocacy and policy staff participate in bi-weekly calls with DC HSEMA and DC Office of Disability Rights on DCs COVID-19 response. DCHSEMA has requested a 2nd delay in starting the litigation deliverables again (1st delay requested due to COVID-19 pandemic).
Filing targets: Agency for Healthcare Research & Quality (AHRQ), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Housing & Urban Development, Dept of (HUD), Natl Council on Disability, Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), Veterans Affairs, Dept of (VA), White House Office
United Spinal and American Council of the Blind and numerous other organizations that actively represent and work to advance civil rights for people with disabilities wrote to Congressional leadership to express concern that the CARES Act, H.R. 748, fails to reinforce to states that they must ensure equal access to Federal elections for voters with disabilities when administering funds pursuant to this Act.
Social Security Administration and Veterans beneficiaries - COVID-19 Consortium for Citizens with Disabilities (CCD) Social Security Task Force United Spinal, along with numerous other disability organizations and are members and allies of the Consortium for Citizens with Disabilities (CCD), wrote in response to the recently announced deadline for Social Security beneficiaries to file taxes or utilize the new web tool to claim economic impact payments for child dependents under the age of 17 or wait until 2021 to claim the payments. We are extremely concerned by the unexpected announcement of this very short deadline. Announcing a Wednesday deadline on a Monday afternoon is simply put, not enough time. Media reports that the deadline is noon on Wednesday (with the time zone unspecified) add to the urgency and the confusion. Social Security Administration - COVID-19 United Spinal, as a member of the Consortium for Citizens with Disabilities (CCD) Social Security Task Force supported a letter the Task Forces Co-Chairs sent the Social Security Commissioner urging further response to the COVID19 pandemic. Thank you for all the work you and your staff are doing to adapt the Social Security Administrations activities and keep the public informed during these challenging times. We, the undersigned co-chairs of the Consortium for Citizens with Disabilities Social Security Task Force, realize this is an enormous task, but one that is vital to the nearly 70 million Americans who receive Social Security benefits and the millions more who use SSAs other services. We appreciate your efforts to make automatic economic impact payments for recipients of SSI and Title II benefits. We encourage you to continue working with the Treasury Department so that SSI and Title II beneficiaries who use the IRS non-filer portal (for example, those with dependent children) can elect to have their stimulus payments sent to their Direct Express cards. Consortium for Citizens with Disabilities (CCD) letter to Internal Revenue Service (IRS) on Electronic Impact Payments United Spinal, along with numerous other organizations, and as a member of the Consortium for Citizens with Disabilities (CCD) submitted a letter to the IRS detailing our concerns with how the non-filer tool has been functioning, how Electronic Impact Payments have been and will be issued, and reiterating our position from last month that we believe that there should not be a deadline for filing for dependent credits.
District of Columbia Homeland Security Emergency Management Agency - Emergency Management United Spinal and DC CIL litigation against the District United Spinal, along with co-plaintiff DC Center for Independent Living, sent a letter to DC Mayor Muriel Bowser outlining several areas of transportation in which the DC government should improve its response to COVID-19 for people with disabilities. United Spinal advocacy and policy staff participate, ask questions of the District, in weekly COVID-19 calls with DC HSEMA and DC Office of Disability Rights on DCs COVID-19 response. United Spinal advocacy and policy staff provide comments to quarterly reports and additional documentation related to the emergency response including a United Spinal/DC CIL letter to DC Mayor Bowser urging for improved transportation service for people with disabilities. United Spinal advocacy and policy staff participated in a virtual town hall on DCs upcoming revised Olmstead community integration plan to support people with disabilities living in the community.
United Spinal endorsed comments from the Consortium of Citizens with Disabilities Transportation Task Force to the Department of Transportation on the agencys Design Challenge Initiative, highlighting recommendations in accessible design. United Spinal also sent in its own comments. United Spinal, as a member of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force, supported a letter to the U.S. House and U.S. Senate submitted by the Task Forces Co-Chairs urging increased funding for Department of Transportation (DOT) programs impacting people with disabilities in the FY 2021 Transportation, Housing and Urban Development, and Related Agencies (T-HUD) appropriations bill. United Spinal, as a member of the Consortium for Citizens with Disabilities (CCD) Transportation Task, supported a Task Force Co-Chairs letter to House leadership to urge amending mask and protective face covering requirements for all passengers in transit, Amtrak and air travel in in the HEROES Act, and to take into consideration the needs of people with disabilities. United Spinal supports the Disability Access to Transportation Act, H.R 6248. U.S. Department of Transportation - Autonomous Vehicles United Spinal signed onto a letter sent to the Department of Transportation offering comments on the National Highway Traffic Safety Administrations proposed rulemaking on Occupant Protection for Automated Driving Systems. This proposed rulemaking seeks to update safety standards to take into account the inherent differences between typical road-worthy vehicles and autonomous vehicles. The letter offers several suggestions for incorporating the needs of people with disabilities. Comments Concerning Occupant Protection for Automated Driving Systems Docket Number: NHTSA-2020-0014 United Spinal, along with numerous disability organizations, as members of the Consortium for Citizens with Disabilities (CCD) Transportation Task submitted comments in response to the National Highway Traffic Safety Administration (NHTSA) request for comments regarding Occupant Protection for Automated Driving Systems (ADSs). The letter read in part: The promise and safety of ADS-equipped vehicles will only be realized if vehicles equipped with ADS and without steering wheels are fully accessible, the Americans with Disabilities Act upheld, and safety elements take into account the needs of people with disabilities. We view this time of innovation and reimaging as an opportunity to not only maintain the current level of protection and performance offered by the 200 Series Federal Motor Vehicle Safety Standards (FMVSS), but also to improve the levels of safety and accessibility that they afford. Surface Transportation Legislative Proposals and PrioritiesUnited Spinal, along with numerous disability organizations, as members of the Consortium for Citizens with Disabilities (CCD) Transportation Task developed Surface Transportation Legislative Proposals and Priorities. Transportation is necessary for 57 million people with disabilities in the U.S. to contribute to and participate in their communities, support and spend time with family and friends, and live their lives to the fullest; however, significant barriers to accessible, equitable, reliable transportation remain across modes. Priorities cited include: Assess and increase the availability of fully-accessible, integrated transit and on-demand mobility services. Assess and address continued discrimination in transit and on-demand mobility services through partnerships and public accommodation and other issues.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
United Spinal continues dialogue with Congressional offices and with members of other disability advocacy organizations as we work together to agree on legislative language that would both advance accessibility in transportation and protect the hard-won gains of the ADA. United Spinal responded to the Congressional request for continued feedback on the bicameral, bipartisan self-driving car legislation. United Spinal noted that automakers need to include information on their accessibility features as part of their consumer education; include accessibility and universal design expertise in their personnel and staffing hiring; include a process for taking preventative and corrective actions to mitigate against vulnerabilities, including cybersecurity incident response plans which must address accessibility; and, we must make certain that the Model Minimum Uniform Crash Criteria address disability and accessibility matters. United Spinal also supported similar comments to Congress, drafted by the Consortium for Citizens with Disabilities Transportation Task Force. United Spinal has provided input to the U.S. Access Board on: A Study Initiated on Equipping Passenger Aircraft with Wheelchair Restraint Systems on January 13, 2020. The Access Board is undertaking a study that has the potential to advance access to air travel for passengers who use wheelchairs. As directed by Congress, this project will assess the feasibility of equipping passenger planes with restraint systems so that passengers can remain in their wheelchairs on flights. Having to transfer out of wheelchairs makes air travel very difficult, if not impossible, for many people with disabilities. Accessible Lavatories on Single-Aisle Aircraft Consortium for Citizens with Disabilities (CCD) Transportation Task Force United Spinal, as a member of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force, supported a letter in response to a rulemaking on Accessible Lavatories on Single-Aisle Aircraft; Part 1. While the ability to access an aircraft lavatory inflight is an opportunity most air travelers take for granted, people with disabilities often face barriers to the use of the aircraft lavatory that requires changes to their ability and willingness to fly. The Department of Transportation must support further defining accessible with respect to call buttons and door locks. Transportation Access and Safety for People with Disabilities During and After COVID-19 As a member of the Consortium for Citizens with Disabilities (CCD) Transportation Task Force along with numerous other disability organizations, United Spinal signed on to a letter to urge US Department of Transportation Secretary Chao to ensure that transportation service responses to COVID-19 do not discriminate based on disability, that service is maintained in line with public health and social distancing standards, and the needs of workers and passengers with disabilities are met. Transportation for America United Spinal, along with numerous other organizations, signed on to a letter to Congress requesting additional funding to ensure access to public transportation during the COVID-19 pandemic. Rep. Jim Langevin (D-RI) introduced the Disability Access to Transportation Act (H.R. 6248) on March 12, 2020, along with Representatives Dina Titus (D-NV-1) and John Katko (R-NY-24). This bill is the result of months of discussions initiated by United Spinal staff with Rep. Langevins staff about the disability communitys transportation accessibility needs and what improvements can be included in the next 5-year surface transportation bill that is due to be considered this year. Provisions include a paratransit pilot program to allow for one stop during a paratransit trip; finalizing public rights of way, Proposed Accessibility Guidelines for Pedestrian Facilities in the Public Right-of-Way from July 2011; an improved accessibility complaints process and an accessibility data collection system on transportation modes. United Spinal signed onto a press release, spearheaded by American Association for Justice along with Disability Rights Education and Defense Fund, Access Living and others highlighting the need to remove forced arbitration from litigation options which can negatively impact the rights of people with disabilities and others if there are any accessibility standards violated. AAJ and others met with Congress on this issue.
Social Security Administration - Continuing Disability Reviews We agree that the Social Security Administration (SSA) is required by Congress to perform periodic Continuing Disability Reviews (CDR) on recipients of Supplemental Security Income (SSI) or Title II Social Security benefits awarded on the basis of disability. We also agree with SSA that no changes to the current Medical Improvement Review Standard are appropriate. However, we have significant concerns about SSAs proposal to perform more CDRs, more frequently. Given a lack of data or evidence to change the CDR process, we found the proposed rule so vague commenters cannot do so in a meaningful way. We urge SSA to withdraw this rule since it fails to comply with the Administrative Procedure Act. United Spinal submitted its own comments and endorsed comments of the Consortium for Citizens with Disabilities Social Security Task Force. Support SSI Restoration Act - H.R. 4280/S. 2753. Support the Disability Employment Incentive Act, H.R 3992/S. 255. Support the ABLE Age Adjustment Act. - S. 651/H.R. 1814. Support H.R 4280/S. 2753 - Supplemental Security Income (SSI) Restoration Act. Support Senior Care Act - H.R. 5429/S. 3010.
Administration for Community Living - Rehabilitation Research and Training Center (RRTC) Programs RRTC programs conduct coordinated, integrated, and advanced programs of research, training, and information dissemination in topical areas that are specified by the Department of Health and Human Services National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). RRTCs conduct research to improve rehabilitation methodology and service delivery systems; improve health and functioning; and promote employment, independent living, family support, and economic and social self-sufficiency for individuals with disabilities. United Spinal is subcontracting with Medstar Washington Hospital on an educational grant on the issue of Neurogenic Lower Urinary Tract Dysfunction (NLUTD) which is a term used for neurogenic bladder. U.S. Food & Drug Administration - Public Workshop - Evolving Role of Artificial Intelligence in Radiological Imaging United Spinal was asked to participate in a consumer panel representing the North American Spinal Cord Injury Consortium to discuss the challenges manual and power wheelchair users face when using medical devices at home. United Spinal has been fully engaged in Congressional and grassroots advocacy related to COVID-19 relief for the disability community, with continual discussions with Congressional offices, and Consortium for Citizens with Disabilities advocacy, highlighting United Spinal priorities, engaging in adding Congressional signatories to letters to Vice President Mike Pence, head of the White House Coronavirus Task Force on the needs of the disability community regarding accessible communications, caregiving and supplies. Coronavirus Aid, Relief, and Economic Security Act, the CARES Act, S. 3548/H.R. 748. The SCI/D community achieved important priorities in this bill including: increased funding for Aging and Disability Resource Centers, Administration for Community Living Aging and Disability Services Programs, and an extension of Money Follows the Person funding through November 30, 2020 and other provisions Support S.3544/H.R. 6305 - Coronavirus Relief for Seniors and People with Disabilities Act of 2020 H.R. 6074, the Coronavirus Preparedness and Response Supplemental Appropriations Act, 2020, provided the Secretary of Health and Human Services (HHS) with limited waiver authority over Medicare telehealth restrictions during the 2019 Coronavirus public health emergency. While we applaud your efforts to bring these safe and cost-effective services to additional Medicare beneficiaries who are otherwise ineligible to receive telehealth benefits, we believe additional changes are needed to further reduce barriers to timely care, decrease risk of transmission for health care workers and patients, and maximize the benefits of a connected health ecosystem during this public health emergency. 1)Modify the qualified provider section of the to remove administratively cumbersome and overly restrictive barriers to telehealth delivery of care. 2)Provide secretarial authority to add Medicare Part B coverage for remote physiological monitoring for those testing positive for COVID-19 during the public health emergency. Lifespan Respite Care Program Action Alert United Spinal advocacy and policy staff created and distributed an action alert in support of a Congressional appropriations letter seeking $10 million in funding for the Lifespan Respite Care Program in fiscal year 2021. Support the Accessible Voting Act (S. 3206). Congressional Disability Policy Accountability Project United Spinal formally proposed and received support from other disability organizations for the Congressional Disability Policy Accountability Project. The goal of this project is to increase competency in disability policy issues among Congressional staff by ensuring that each Congressional office assigns disability issues to the issues portfolio of at least one policy staffer in that office. Engaged with Congressional House offices on this issue. Support "Recognizing the Role of Direct Support Professionals Act (S. 3369)/(H.R. 6045). Worked with the National Multiple Sclerosis Society on the Real Emergency Access for Aging and Disability Inclusion (REAADI), and Disaster Relief Medicaid Act (DRMA); access to MS medications and increased funding for Congressionally-Directed Medical Research Programs focused on MS research. Brain Injury Awareness Day - Congressional Briefing United Spinal advocacy and policy staff attended a Brain Injury Awareness Day Congressional Briefing. The SCI/D community and the traumatic brain injury (TBI) community are working together on reviewing avenues of funding and the provision of rehab and program expertise. Health Innovation Alliance United Spinal signed onto a letter to Congress in support of an updated Federal Data framework to allow for interoperability with health IT, artificial intelligence and portable medical devices. Coalition to Preserve Rehabilitation Department of Health and Human Services (HHS) Notice of Benefit and Payment Parameters As a Steering Committee member of CPR, United Spinal signed onto a comment letter in response to HHS proposed rule focusing on benefit and payment provisions focusing on Rehabilitative Services and Devices protections under the ACA; Changes to the Automatic Enrollment Process under the Proposed Rule and Expanding Special Enrollment Periods under the Proposed Rule. As a member of the Disability Rehabilitation and Research Coalition, United Spinal commented on NIHs framework for the strategic plan, which identifies cross-cutting themes and three major objectives for the agency - specifically related to disability and rehabilitation research. Signed onto a CPR/ITEM Coalition letter to Congress for the exemption for non-invasive ventilators (NIVs) in the next round of the Medicare competitive bidding program scheduled to begin on January 1, 2021. United Spinal also send a similar letter to Congress on behalf of our own Access and Care Coalition as well as onto a ResMed and ALS Association facilitated letter to Congress. Signed onto an AAPD letter to Congress on the priorities of the disability community during this time of the COVID-19 pandemic. Public Comments on Notice of Benefit and Payment Parameters for 2021 (RIN 0938-AT98, CMS-9916-P) United Spinal, as a member of the Coalition to Preserve Rehabilitation (CPR) commented on the Department of Health and Human Services (HHS) proposed rule, Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 20211 (the Proposed Rule). CPR is a coalition of national consumer, clinician, and membership organizations that advocate for policies to ensure access to rehabilitative care so that individuals with injuries, illnesses, disabilities, and chronic conditions may regain and/or maintain their maximum level of health and independent function. The Proposed Rule sets forth benefit and payment parameters, changes the automatic enrollment process, expands special enrollment periods, and sets out many other policies implementing the Patient Protection and Affordable Care Act (ACA). This comment letter will focus on key proposed provisions that specifically impact enrollees in need of medical rehabilitation and post-acute care. Signed on to ACLU Coalition letter to HHS OCR re: Withholding of Life-Sustaining Treatment.
DC Government Homeland Security and Management Agency As one of two plaintiffs, (United Spinal Association and the DC Center for Independent Living) to the lawsuit against the District Government for failing to provide adequate emergency management and preparedness services for people with disabilities. In the month of January, United Spinal provided comments to the attorneys who filed our case, Disability Rights Advocates, on sheltering needs and wayfinding analysis and submitted comments on their biannual report. Disability Community Advisory Group (DCAG) - 3rd quarterly meeting As co-plaintiffs in the United Spinal Association, et al. v. District of Columbia litigation settlement with the District Government, the 3rd quarterly meeting took place to address: the Districts COVID-19 response as well as components of the settlement including: Emergency Public Communications; High-Rise Task Force progress (gap analysis due August 3, 2020); PECO plan progress (PECO plan due August 3, 2020); Emergency Sheltering and Power and Accessible Transportation for Evacuation. Also beginning in March, there have been weekly COVID-19 check-in conference calls with the District Government.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Federal Communications Commission (FCC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Postal Regulatory Commission, SENATE, Social Security Administration (SSA), Transportation, Dept of (DOT), Vice President of the U.S.
H.R. 3208/S. 1755: Real Emergency Access for Aging and Disability Inclusion for Disasters Act Signed onto letter of support as part of the Coalition of Citizens with Disabilities in support of the REAADI Act which aims to ensure that older adults and individuals with disabilities are prepared for disasters, and for other purposes. United Spinal supports Disaster Relief Medicaid Act - S. 1754/H.R. 3215.
United Spinal supports S. 651/H.R 1814, the ABLE Age Adjustment Act and engaged in Hill meetings.
Support Disability Integration Act - HR. 555/S. 117. United Spinal staff attended and gave public comment before the U.S. Commission on Civil Rights briefing on the 14(c) program, which allows certain employers to run sheltered workshops for employees with disabilities and pay them less than the minimum wage. United Spinal supports the Transformation to Competitive Employment Act (S. 260/H.R 873), which is legislation that would responsibly end the 14(c) program. Submitted comment letter to Sen. Udall and Rep. Lowenthal opposing their ban on single-use plastic straws in all retail and service establishments. Single-use plastic straws are used by members of the disability community (those who do not have use of their hands) to drink. Support Domestic Workers Bill of Rights Act - S. 2112/H.R 3760
United Spinal signed onto a Leadership Council of Aging Organizations letter to Congressional leadership urging them to reauthorize the Older Americans Act (OAA). The OAA is the authorizing vehicle for a number of important programs, including those focused on caregiving. United Spinal was invited to attend a meeting at the CDC to discuss and provide input on SCI registries. United Spinal had signed onto House and Senate Congressional letters in support of the Prescription Drug Pricing Reduction Act, which includes provisions of increased support for low-income beneficiaries and caps on out-of-pocket costs and supports preservation and improvement of the Medicare Rebate Drug Program. Personal Connected Health Alliance (United Spinal is a member) Committee on Ways & Means Rural and Underserved Communities Health Task Force - the Committees forum to convene Members and experts to discuss the delivery and financing of health care and related social determinants in urban and rural underserved areas and identify strategies to address the challenges that contribute to health inequities, issued a Request for Information (RFI) soliciting input on priority topics that affect health status and outcomes for consideration and discussion in future Member sessions of the Task Force. United Spinal supported increased Federal Government funding at NIH. United Spinal signed onto House and Senate letters, in support of extending the 7.5% threshold for the medical expense deduction, S. 110, The Medical Expense Savings Act, introduced by Sen. Susan Collins (R-ME) and a similar bill in the House, H.R. 2073, introduced by Rep. Katie Porter (D- CA 45). National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Medstar Health Research Institute MHRI and United Spinal Association - United Spinal Association finalized an agreement in December with MHRI as a subcontracting partnership to NIDILIRRs Rehabilitation Research and Training Center (RRTC) Program which conducts research to improve rehabilitation methodology and service delivery systems; improves health and functioning; and promotes employment, independent living, family support, and economic and social self-sufficiency for individuals with disabilities. United Spinal will be assisting with recruiting participants for research projects and reviewing educational material: Rehabilitation and Research Training Center on Health and Function for People with Physical Disabilities focused on Neurogenic Lower Urinary Tract Dysfunction.
Discussed ADA compliance with AMTRAK. Sent comments on accessible autonomous vehicles to House and Senate. Discussed TNC Accountability, public transits, paratransit and ridesharing with Congressional House staffers. Advocated at DOT Access and Mobility for All Summit -for accessible road transportation for people with disabilities Submitted comments to U.S. Access Board regarding non-binding advisory guidelines for wheelchairs used within aircraft cabins. United Spinal provided comments to eh GAO on mobility disabilities and airplane restrooms for an upcoming GAO report.
United Spinal and DC Center for Independent Living met with DC HSEMA for an after-action meeting following the launch, at the end of September, of the D.C. Disability Community Advisory Group and of the implementation of the litigation settlement on emergency preparedness for the disability community in the District. United Spinal attended a mediation meeting, with plaintiff attorneys to resolve the issue of the hiring of a subject matter expert (SME) on high-rise evacuation as part of the litigation settlement.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), Food & Drug Administration (FDA), Government Accountability Office (GAO), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Housing & Urban Development, Dept of (HUD), Labor, Dept of (DOL), Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), U.S. Commission on Civil Rights
H.R. 3208/S. 1755: Real Emergency Access for Aging and Disability Inclusion for Disasters Act Signed onto letter of support as part of the Coalition of Citizens with Disabilities in support of the REAADI Act which aims to ensure that older adults and individuals with disabilities are prepared for disasters, and for other purposes. United Spinal supports Disaster Relief Medicaid Act - S. 1754/H.R. 3215.
Discussed ADA compliance in AMTRAK railcars with AMTRAK. Sent comments on accessible autonomous vehicles to House and Senate. Discussed TNC Accountability with Congressional House staffers. U.S. Department of Transportation (DOT) Secretary Elaine L. Chao announced the formation of the Air Carrier Access Act Advisory Committee (ACAA Advisory Committee) and the appointment of 19 members, including Nicholas LiBassi, Vice President, Partnership Expansion, United Spinal Association, as representative of national disability organizations and James Sinocchi of JP Morgan Chase. The ACAA Advisory Committee is being established pursuant to the FAA Reauthorization Act of 2018 (FAA Act). United Spinal staff attended Transportation Security Administration (TSA) Annual Disability & Multicultural Coalition Conference 2019 to discuss agency outreach to the disability community. U.S. Access Board Released Voluntary Guidelines for Onboard Wheelchairs United Spinal is advocating for increased accessibility in airline travel in relation to the U.S. Access Board releasing for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight. United Spinal Policy staff monitored a hearing the Board held on September 12 on the guidelines. The Board notice read in part, These onboard wheelchairs are provided by air carriers as a means of facilitating the transfer of passengers with disabilities to aircraft lavatories since personal wheelchairs cannot be used in the cabin. The Department of Transportation (DOT) has expressed its intention to supplement its regulations under the Air Carrier Access Act (ACAA) to include performance standards for onboard wheelchairs on covered aircraft. The Board is developing these non-binding guidelines as technical assistance to air carriers and manufacturers of onboard wheelchairs by providing an example of how to meet DOT's planned performance standards. United Spinal will be submitting comments to the U.S. Access Board.
Filing targets: AMTRAK - Natl Railroad Passenger Corporation, Architectural & Transportation Barriers Compliance Board, Centers For Medicare and Medicaid Services (CMS), Consumer Financial Protection Bureau (CFPB), Federal Communications Commission (FCC), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Labor, Dept of (DOL), Natl Institutes of Health (NIH), SENATE, Transportation Security Administration (TSA), Transportation, Dept of (DOT)