Think Differently Database Act

H.R.2630/S. 652SafeStepAct - Continued call for passage H.R.9774 /S.5194 - Health Care Affordability Act of 2024 - Endorsed and in person advocacy H.R. 1691 - Ensuring Patient Access to Critical Breakthrough Products Act of 2023 - Signed letter of support H.R.8412 - Clinical Trial Modernization Act - Endorsed H.R. 670/S.4174 - Think Differently Act - Endorsed

Client expense: $20,000 · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE

Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, newborn screening, newborn screening funding, coverage of rare disease treatments, care, and devices, including intermittent catheter (IC) coding, HCBS Access Act (H.R. 1493, S. 762), BENEFIT Act (H.R. 1092, S. 526), Safe Step Act (S. 652, H.R. 2630), Protecting Health Care for All Patients Act of 2023 (H.R. 485), Supporting Our Direct Care Workforce & Family Caregivers Act (S. 1298), Long-Term Care Workforce Support Act (S.4120/H.R.7994); HCBS Relief Act (S. 3118, H.R. 6296); Recognizing the Role of Direct Support Professionals Act (S. 1332), Medicaid unwinding protections for people with SMA and other disabilities, direct care workforce shortage, healthcare discrimination (i.e., quality adjusted life years), Ensuring Patient Access to Critical Breakthrough Products Act (H.R. 1691); Creating Hope Reauthorization Act (H.R.7384/ S. 4583) - FDA priority review voucher program, healthcare utilization protocols (i.e., prior authorization and step therapy), Patient Protection and Affordable Care Act (111-148), Inflation Reduction Act (P.L. 117-169), Supporting accessible medical diagnostic equipment, Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183), Lifespan Respite Reauthorization Act (H.R. 6160), Stop Unfair Medicaid Recoveries Act (H.R. 7573), accessible medical diagnostic equipment, durable medical equipment, intermittent catheter coding, FDA Rare Disease Center of Excellence, Think Differently Database Act (H.R.670/ S. 4174), Accelerating Kids Access to Care Act ((H.R.4758/S.2372); Ensuring Access to Medicaid Buy-In Programs Act (H.R.8107/ S.5070); Defense Health Research Programs (Congressionally Directed Medical Research Programs)

Client expense: $75,000 · Firm income: Not reported

Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE

Medicaid home and community-based services, continuation of HCBS services following the public health emergency, Medicaid unwinding, healthcare access and coverage, including to patient preferred treatment, assistive technology devices, accessible diagnostic equipment, and durable medical equipment, such as power wheelchairs and power wheelchair features such as seat elevators and standing systems, intermittent catheter coding, HCBS Access Act (H.R. 1493, S. 762), HCBS Relief Act (S. 3118, H.R. 6296), Supporting Our Direct Care Workforce & Family Caregivers Act (S. 1298), Recognizing the Role of Direct Support Professionals Act (S.1332), Stop Unfair Medicaid Recoveries Act (H.R. 7573), Long-term Care Workforce Support Act ((S.4120/H.R.7994), Creating Hope Reauthorization Act (H.R.7384/ S. 4583); Think Differently Database Act (H.R.670/ S. 4174); Ensuring Access to Medicaid Buy-In Programs Act (H.R.8107 / S. 5070)

Client expense: $75,000 · Firm income: Not reported

Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

Support for H.R. 670 / S. 4174, a bill that requires the federal Department of Health and Human Services to set up a website that provides critical information, including periodically updated eligibility, availability, waitlist, and Medicaid waiver information, on how to find/receive care provider services within U.S. states.

Client expense: $10,000 · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE

Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, newborn screening, newborn screening funding, coverage of rare disease treatments, care, and devices, including intermittent catheter (IC) coding, HCBS Access Act (H.R. 1493, S. 762), BENEFIT Act (H.R. 1092, S. 526), Safe Step Act (S. 652, H.R. 2630), Protecting Health Care for All Patients Act of 2023 (H.R. 485), Supporting Our Direct Care Workforce & Family Caregivers Act (S. 1298), Long-Term Care Workforce Support Act (S.4120/H.R.7994); HCBS Relief Act (S. 3118, H.R. 6296); Recognizing the Role of Direct Support Professionals Act (S. 1332), Medicaid unwinding protections for people with SMA and other disabilities, direct care workforce shortage, healthcare discrimination (i.e., quality adjusted life years), Ensuring Patient Access to Critical Breakthrough Products Act (H.R. 1691); Creating Hope Reauthorization Act (H.R.7384/ S. 4583), healthcare utilization protocols (i.e., prior authorization and step therapy), Patient Protection and Affordable Care Act (111-148), Inflation Reduction Act (P.L. 117-169), Supporting accessible medical diagnostic equipment, Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183), Lifespan Respite Reauthorization Act (H.R. 6160), Stop Unfair Medicaid Recoveries Act (H.R. 7573), accessible medical diagnostic equipment, durable medical equipment, intermittent catheter coding, FDA Rare Disease Center of Excellence, Think Differently Database Act (H.R.670/ S. 4174), Accelerating Kids Access to Care Act ((H.R.4758/S.2372)

Client expense: $75,000 · Firm income: Not reported

Medicaid home and community-based services, continuation of HCBS services following the public health emergency, Medicaid unwinding, healthcare access and coverage, including to patient preferred treatment, assistive technology devices, accessible diagnostic equipment, and durable medical equipment, such as power wheelchairs and power wheelchair features such as seat elevators and standing systems, intermittent catheter coding, HCBS Access Act (H.R. 1493, S. 762), HCBS Relief Act (S. 3118, H.R. 6296), Supporting Our Direct Care Workforce & Family Caregivers Act (S. 1298), Recognizing the Role of Direct Support Professionals Act (S.1332), Stop Unfair Medicaid Recoveries Act (H.R. 7573), Long-term Care Workforce Support Act ((S.4120/H.R.7994), Creating Hope Reauthorization Act (H.R.7384/ S. 4583); Think Differently Database Act (H.R.670/ S. 4174)

Client expense: $75,000 · Firm income: Not reported

Government targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE

-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of Medicare Part Ds Six Protected Classes policy -H.R. 9774 /S. 5194, Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge the federal government to collect better data on the disability community -Urge patient priorities like standardized health plans and network adequacy in the 2026 Notice of Benefit and Payment Parameters rule. -Support regulations to limit access to association health plans -Urge finalization of regulations important to patients and consumers with acute and chronic health conditions including the 1557 rule -Ensure any regulation of cannabis protects safe and legal access -Ensure continued access to needed healthcare via telehealth including prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support H.R. 670, S. 4174, Think Differently Database Act -Support S. 4325, the Lifespan Respite Care Program Reauthorization Act -Support the parity of coverage of mental health treatments -Support legislation and regulations that incentivize the development of rare disease treatments -Support regulations on the use of diversity action plans for clinical trials -Support legislation and regulations that help to advance health equity for people with epilepsy -S. 5065/H.R. 9635, Seizure Awareness and Preparedness Act, support passage -Support legislation and regulations that would ban the use of electric shock devices that apply a shock to a persons skin to reduce or cease self-injurious or aggressive behaviors -Supporting legislation and regulations that protect the current structure of the National Institutes of Health -Support legislation and regulations to keep insurance brokers accountable -Support H.R. 7573, Stop Medicaid Recovery Act -Support legislation and regulations on continuous eligibility in Medicaid -Support H.R. 4758/S.2372, Accelerating Kids Access to Care Act -Support legislation and regulations to streamline prior authorization processes -Support the creation of an Office of Caregiving at the Department of Health and Human Services -Comments on the next phase of 21st Century Cures -Comments on the Hospital Outpatient Prospective Payment System (OPPS) Proposed Rule -Support legislation and regulations to reduce the burden of medical debt -Support legislation and regulation on the responsible use of AI in healthcare

Support for the Recognizing the Role of Direct Support Professionals Act (S. 1332 / H.R. 2941), to urge the Office of Management and Budget to revise the Standard Occupational Classification system to establish a separate code for direct support professionals. Support for HCBS Relief Act (S. 3118/ H.R. 6296), which would authorize increased federal match for states for Medicaid Home and Community-Based Services. Support for the Disability Community Act (H.R. 7267), which would provide increased funding for Medicaid intellectual and developmental disability services to offset costs of compliance with regulations, including the DOL proposed overtime rule. Advocated for better coordination between HHS and DOL for recognition of the impact of regulatory changes including the Overtime Rule on the cost of services for providers and the need for updated state reimbursement rates. Advocated for increased funding and reimbursement rates in response to CMS' proposed HCBS access rule. Long-Term Care Workforce Act (S.4120/H.R. 7794), which would provide support to direct care workers through grants, and an increased federal match for states. Think Differently Database Act (S. 4174/H.R. 670), requires the Department of Health and Human Services (HHS) to establish an online clearinghouse of resources and other information for individuals with an intellectual disability (and their caregivers and families) that is searchable by zip code

Client expense: Not reported · Firm income: Not reported

H.R.2630/S. 652SafeStepAct - Continued call for passage H.R.9774 /S.5194 - Health Care Affordability Act of 2024 - Endorsed and in person advocacy H.R. 1691 - Ensuring Patient Access to Critical Breakthrough Products Act of 2023 - Signed letter of support H.R.8412 - Clinical Trial Modernization Act - Endorsed H.R. 670/S.4174 - Think Differently Act - Endorsed

Client expense: $30,000 · Firm income: Not reported

Government targets: HOUSE OF REPRESENTATIVES, SENATE