ROXANNE YAGHOUBI

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-Department of Education, oppose Reductions of Force at and changes to (including moving sections of) the Dept. of Education that could impede the rights of students with disabilities -Department of Education, support increased funding -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-Department of Education, oppose Reductions of Force at and changes to (including moving sections of) the Dept. of Education that could impede the rights of students with disabilities -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-Department of Education, oppose Reductions of Force at and changes to (including moving sections of) the Dept. of Education that could impede the rights of students with disabilities -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-Department of Education, oppose Reductions of Force at and changes to (including moving sections of) the Dept. of Education that could impede the rights of students with disabilities -Department of Education, support increased funding -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-Department of Education, oppose Reductions of Force at and changes to (including moving sections of) the Dept. of Education that could impede the rights of students with disabilities -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-Department of Education, oppose Reductions of Force at and changes to (including moving sections of) the Dept. of Education that could impede the rights of students with disabilities -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1968, Full-Year Continuing Appropriations and Extensions Act, support funding for epilepsy programs and research including $12.5 Million for the CDC Epilepsy Program; $48.9 Billion for the National Institutes of Health; $680.4 Million for the BRAIN Initiative; $26.8 Million for the VA Epilepsy Centers of Excellence; and within the Congressionally Directed Medical Research Programs: $12 Million for the Epilepsy Research Program, $8 Million for the Tuberous Sclerosis Complex Program, and $175 Million for the TBI and Psychological Health Program.

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-Oppose changes to and Reductions of Force at the Department of Education that could impede the rights of students with disabilities -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-Oppose changes to and Reductions of Force at the Department of Education that could impede the rights of students with disabilities -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage

-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services