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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2026 · third_quarter · Q3
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2027, support funding for epilepsy programs and research including $11.581 billion for the CDC including $11.5 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program; language supporting a report about establishing a National Plan for Epilepsy; at least $51.3 billion for the NIH and $468 million for the BRAIN Initiative; increased funding for the Social Security Administration; and language supporting a report about how the newborn screening evidence-based review process will continue to be implemented and language clarifying that Title V can fund state-sponsored genetic screening pilot programs. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2027, support at least $29 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2027, support robust funding for the Food & Drug Administration -Defense Appropriations Act, 2027, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $12 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.
Source: Senate LDA
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Mikaela Naylon Give Kids a Chance Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Accelerating Kids’ Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
Access to Genetic Counselor Services Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Access to Genetic Counselor Services Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
Access to Genetic Counselor Services Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Access to Genetic Counselor Services Act of 2026
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Establishing the congressional budget for the United States Government for fiscal year 2025 and setting forth the appropriate budgetary levels for fiscal years 2026 through 2034.
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
Mikaela Naylon Give Kids a Chance Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Mikaela Naylon Give Kids a Chance Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Accelerating Kids’ Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Accelerating Kids’ Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Full-Year Continuing Appropriations and Extensions Act, 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1968, Full-Year Continuing Appropriations and Extensions Act, support funding for epilepsy programs and research including $12.5 Million for the CDC Epilepsy Program; $48.9 Billion for the National Institutes of Health; $680.4 Million for the BRAIN Initiative; $26.8 Million for the VA Epilepsy Centers of Excellence; and within the Congressionally Directed Medical Research Programs: $12 Million for the Epilepsy Research Program, $8 Million for the Tuberous Sclerosis Complex Program, and $175 Million for the TBI and Psychological Health Program.
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
Ensuring Patient Access to Critical Breakthrough Products Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Access to Genetic Counselor Services Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Seizure Awareness and Preparedness Act
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
Ensuring Patient Access to Critical Breakthrough Products Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Improving Seniors’ Timely Access to Care Act of 2025
Client: EPILEPSY FOUNDATION · Firm: EPILEPSY FOUNDATION
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers; express concerns with the Medicaid work reporting requirements Interim Final Rule -P.L. 119-21, express concerns with the proposed rule implementing the provider tax provisions -Budget Reconciliation Packages, oppose additional cuts to Medicaid -No Surprises Act, ask Congress to address issues with the Independent Dispute Resolution (IDR) process -S. 5428/H.R. 930, Stop the Wait Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Essential Health Benefits (EHB) Proposed Rule, express concerns with changes to EHB -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support safe and legal access to medical cannabis, including supporting rescheduling and expressing concerns about the ban on intoxicating hemp -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving -S. 3607/H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440/H.R. 3521, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Federal Finance Assistance Proposed Rule, express concerns with impact on medical research and nonprofit missions -Healthy People 2030, support the inclusion of an epilepsy objective
Filing targets: Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Education, Dept of, Federal Aviation Administration (FAA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), Office of Management & Budget (OMB), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2026 · second_quarter · Q2
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support legislative and regulatory policies on PBM reform and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -S. 4440, Clinical Trial Modernization Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services -Prescription Drug User Fee Act Reauthorization, support priorities for the rare disease community -Fiscal Year 2027 Hospital Inpatient Prospective Payment Systems Proposed Rule, oppose proposals to repeal the alternative pathway for new technology add-on payments for breakthrough devices and eliminate the hospital outpatient prospective payment system device pass-through payments
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2027, support funding for epilepsy programs and research including $11.581 billion for the CDC including $11.5 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program; language supporting a report about establishing a National Plan for Epilepsy; at least $51.3 billion for the NIH and $468 million for the BRAIN Initiative; increased funding for the Social Security Administration; and language supporting a report about how the newborn screening evidence-based review process will continue to be implemented and language clarifying that Title V can fund state-sponsored genetic screening pilot programs. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2027, support at least $29 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2027, support robust funding for the Food & Drug Administration -Defense Appropriations Act, 2027, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $12 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Education, Dept of, Federal Aviation Administration (FAA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2026 · first_quarter · Q1
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2026, support funding for epilepsy programs and research including $11.581 billion for the CDC including $11.5 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program, at least $48.7 billion for the NIH, $680 million for the BRAIN Initiative, and increased funding for the Social Security Administration. -Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2027, support funding for epilepsy programs and research including $11.581 billion for the CDC including $11.5 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program; language supporting a report about establishing a National Plan for Epilepsy; at least $51.303 billion for the NIH and $468 million for the BRAIN Initiative; increased funding for the Social Security Administration; and language supporting a report about how the newborn screening evidence-based review process will continue to be implemented and language clarifying that Title V can fund state-sponsored genetic screening pilot programs. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2027, support at least $29 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2027, support robust funding for the Food & Drug Administration -Defense Appropriations Act, 2026, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program. -Defense Appropriations Act, 2027, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $12 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program. -Commerce, Justice, Science Appropriations Act, 2026, oppose provisions that could restrict access to CBD and block rescheduling
-P.L. 119-21, Support policies and processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -WISeR Model, express concern with how it could impede access to some epilepsy treatments -PBM Reform, support passage and the inclusion of patient-centric policies -Medicare Part Ds Six Protected Classes policy, support coverage of and access to all epilepsy treatments and express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Enhanced Advance Premium Tax Credits, support reauthorization. -Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan, support patient-centric implementation -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Telehealth, support extensions of telehealth flexibilities including the prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -U.S. Department of Health and Human Services (HHS), support protecting the current structure of HHS and express concerns with HHS staffing changes and cuts -NIH, support the current structure, current facilities and administrative cost structure, and grantmaking process of the NIH; express concerns with leadership and staffing changes and an expansion of multiyear funding -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to medical cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Filing targets: Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Federal Aviation Administration (FAA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2025 · fourth_quarter · Q4
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2026, support funding for epilepsy programs and research including $11.581 billion for the CDC including $11.5 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program, at least $48.7 billion for the NIH, $680 million for the BRAIN Initiative, and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2026, support at least $29.212 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2026, support robust funding for the Food & Drug Administration; oppose provisions that could restrict access to CBD and block rescheduling of cannabis -Defense Appropriations Act, 2026, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program. -Commerce, Justice, Science Appropriations Act, 2026, oppose provisions that could restrict access to CBD and block rescheduling
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
Filing targets: Centers For Medicare and Medicaid Services (CMS), Consumer Financial Protection Bureau (CFPB), Education, Dept of, Energy, Dept of, Federal Aviation Administration (FAA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2025 · third_quarter · Q3
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2026, support funding for epilepsy programs and research including $11.581 billion for the CDC including $12 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program, $51.3 billion for the NIH, $680 million for the BRAIN Initiative, and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2026, support at least $29.212 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2026, support robust funding for the Food & Drug Administration; oppose provisions that could restrict access to CBD and block rescheduling of cannabis -Defense Appropriations Act, 2026, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program. -Commerce, Justice, Science Appropriations Act, 2026, oppose provisions that could restrict access to cannabis and block rescheduling
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864, HELP Copays Act, support passage. -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the FAIR model as an alternative to the facilities and administrative cost structure for the NIH -Express concerns with HHS Reductions in Force related to epilepsy -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 1717/H.R. 5343, Ensuring Patient Access to Critical Breakthrough Products Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -Oppose proposals to add Durable Medical Equipment Prosthetics, Orthotics, and Supplies to the Competitive Bidding Program -Access to Genetic Counselor Services Act, support passage
Filing targets: Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Energy, Dept of, Federal Aviation Administration (FAA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2025 · second_quarter · Q2
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2026, support funding for epilepsy programs and research including $11.581 billion for the CDC including $12 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program, $51.3 billion for the NIH, $680 million for the BRAIN Initiative, and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2026, support at least $29.212 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2026, support robust funding for the Food & Drug Administration. -Defense Appropriations Act, 2026, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.
-H.R. 1, Oppose cuts and changes to Medicaid including instituting work/community engagement requirements, more frequent eligibility checks, higher cost sharing for beneficiaries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Support reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that proposed changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Opposing changes to the Facilities & Administrative Cost Reimbursements at the National Institutes of Health -Support legislation and regulations to reduce the burden of medical debt -Express concerns with HHS Reductions in Force related to epilepsy -Safe Step Act, support passage -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -H.R. 3514/S. 1816, Improving Seniors Timely Access to Care Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Oppose reclassifying scientific positions in federal agencies into Schedule F -Express concerns with proposed changes to the assignment of RNS neurostimulators into Medicare Severity Diagnosis-Related Groups -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Oppose legislative and regulatory policies targeting non-profits, and support legislation encouraging charitable giving
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2025 · first_quarter · Q1
-H.R. 1968, Full-Year Continuing Appropriations and Extensions Act, support funding for epilepsy programs and research including $12.5 Million for the CDC Epilepsy Program; $48.9 Billion for the National Institutes of Health; $680.4 Million for the BRAIN Initiative; $26.8 Million for the VA Epilepsy Centers of Excellence; and within the Congressionally Directed Medical Research Programs: $12 Million for the Epilepsy Research Program, $8 Million for the Tuberous Sclerosis Complex Program, and $175 Million for the TBI and Psychological Health Program.
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2024 · fourth_quarter · Q4
-S. 5353/H.R. 10210, National Plan for Epilepsy Act, support passage. -Support legislation to increase access to home and community-based services. -S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans and network adequacy in the 2026 Notice of Benefit and Payment Parameters rule. -Ensure any regulation of cannabis protects safe and legal access -Ensure continued access to needed healthcare via telehealth including prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support H.R. 670, S. 4174, Think Differently Database Act -Support S. 4325, the Lifespan Respite Care Program Reauthorization Act -Support the parity of coverage of mental health treatments -Support legislation and regulations that incentivize the development of rare disease treatments -Support the Clinical Trial Modernization Act -Support legislation and regulations that help to advance health equity for people with epilepsy -S. 5065/H.R. 9635, Seizure Awareness and Preparedness Act, support passage -Support legislation and regulations that would ban the use of electric shock devices that apply a shock to a persons skin to reduce or cease self-injurious or aggressive behaviors, including supporting the immediate release of a final rule -Supporting legislation and regulations that protect the current structure of the National Institutes of Health -Support legislation and regulations to keep insurance brokers accountable -Support H.R. 7573, Stop Medicaid Recovery Act -Support legislation and regulations on continuous eligibility in Medicaid -Support H.R. 4758/S.2372, Accelerating Kids Access to Care Act -Support legislation and regulations to streamline prior authorization processes -Support the creation of an Office of Caregiving at the Department of Health and Human Services -Comments on Medicare $2 Drug List Model -Support legislation and regulations to reduce the burden of medical debt -Support legislation and regulation on the responsible use of AI in healthcare -Support S.5070, the Ensuring Access to Medicaid Buy-In Programs Act -Support H.R. 7384/S. 4583, The Creating Hope Reauthorization Act -Support the Rare Pediatric Disease Priority Review Voucher Program -Oppose any cuts to Medicaid as part of reconciliation
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2024 · third_quarter · Q3
-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of Medicare Part Ds Six Protected Classes policy -H.R. 9774 /S. 5194, Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge the federal government to collect better data on the disability community -Urge patient priorities like standardized health plans and network adequacy in the 2026 Notice of Benefit and Payment Parameters rule. -Support regulations to limit access to association health plans -Urge finalization of regulations important to patients and consumers with acute and chronic health conditions including the 1557 rule -Ensure any regulation of cannabis protects safe and legal access -Ensure continued access to needed healthcare via telehealth including prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support H.R. 670, S. 4174, Think Differently Database Act -Support S. 4325, the Lifespan Respite Care Program Reauthorization Act -Support the parity of coverage of mental health treatments -Support legislation and regulations that incentivize the development of rare disease treatments -Support regulations on the use of diversity action plans for clinical trials -Support legislation and regulations that help to advance health equity for people with epilepsy -S. 5065/H.R. 9635, Seizure Awareness and Preparedness Act, support passage -Support legislation and regulations that would ban the use of electric shock devices that apply a shock to a persons skin to reduce or cease self-injurious or aggressive behaviors -Supporting legislation and regulations that protect the current structure of the National Institutes of Health -Support legislation and regulations to keep insurance brokers accountable -Support H.R. 7573, Stop Medicaid Recovery Act -Support legislation and regulations on continuous eligibility in Medicaid -Support H.R. 4758/S.2372, Accelerating Kids Access to Care Act -Support legislation and regulations to streamline prior authorization processes -Support the creation of an Office of Caregiving at the Department of Health and Human Services -Comments on the next phase of 21st Century Cures -Comments on the Hospital Outpatient Prospective Payment System (OPPS) Proposed Rule -Support legislation and regulations to reduce the burden of medical debt -Support legislation and regulation on the responsible use of AI in healthcare
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2024 · second_quarter · Q2
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2025, support funding for epilepsy programs and research including $11.581 billion for the CDC including $12.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51.3 billion for the NIH, $740 million for the BRAIN Initiative, $15 million to start considering an epilepsy-related research and clinical consortium at the NIH, $10 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2025, support at least $26.8 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2025, support robust funding for the Food& Drug Administrations BA. -Defense Appropriations Act, 2025, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program,$10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2024 · first_quarter · Q1
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2025, support funding for epilepsy programs and research including $12.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51.3 billion for the NIH, $15 million to start considering an epilepsy-related research and clinical consortium at the NIH, $10 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2025, support at least $26.8 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2025, support robust funding for the Food & Drug Administrations BA. -Defense Appropriations Act, 2025, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.
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2023 · fourth_quarter · Q4
-H.R. 5860, Continuing Appropriations Act, 2024 and Other Extensions Act, support passage. -H.R. 6363, Further Continuing Appropriations and Other Extensions Act, support passage. -Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2024, support funding for epilepsy programs and research including at least $11.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51 billion for the NIH, $10 million to start considering an epilepsy-related research and clinical consortium at the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2024, support at least $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2024, support $3.963 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2024, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.
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2023 · third_quarter · Q3
-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -Support preservation of the Six Protected Classes policy in Medicare Part D. -Support patient-centric implementation of Medicare Part D out-of-pocket cap and smoothing. -Educate about Medicaid and CHIP unwinding to try and reduce coverage losses. -H.R. 485, Protecting Health Care for All Patients Act, support passage. -Ensure any regulation of CBD protects safe and legal access. -Ensure continued access to epilepsy medications that are controlled substances considering potential changes to prescribing via telehealth. -Support implementation and oversight of the mental health parity law to ensure parity of insurance coverage between medical and mental health -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage.
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2024, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51 billion for the NIH, $10 million to start considering an epilepsy-related research and clinical consortium at the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2024, support $23.585 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2024, support $3.963 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2024, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2023 · first_quarter · Q1
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2024, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51 billion for the NIH, $10 million to start considering an epilepsy-related research and clinical consortium at the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2024, support $23.585 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2024, support $3.963 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2024, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.
-S. 652/H.R. 2630, Safe Step Act, support passage. -Identify and make recommendations on improvements to federal law for safe and legal access to medical cannabis and medical cannabis products.
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2022 · fourth_quarter · Q4
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $49 billion for the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs. -H.R. 2617, Consolidated Appropriations Act 2023, support increased funding for epilepsy-related programs and research, extension of Medicare telehealth flexibilities and other programs that support the epilepsy community.
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2022 · third_quarter · Q3
-H.R. 5376 Inflation Reduction Act, support addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; and barring the use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -HR 8454 Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. -S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2022 · second_quarter · Q2
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $49 billion for the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.
-Reconciliation legislation, support additional funding for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation Work has stalled on this, we had success in committee but havent done much on it since we could take it out -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations. - S. 4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development
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2022 · first_quarter · Q1
-Build Back Better Act or similar legislation, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -S. 3799 PREVENT Pandemics Act, incorporate disability into pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and H.R. 5657, Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, S. 3427, Neuroscience Center of Excellence Act and H.R. 6000, Cures 2.0 Act, support creation of a Neuroscience Center of Excellence at the FDA that is patient-focused and related necessary appropriations.
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2021 · fourth_quarter · Q4
-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; add vision, dental, and hearing coverage to Medicare; expand Medicaid. -Ensure access to medications in emergencies in pandemic preparedness legislation. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and HR 5657 Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -H.R. 5435, BRAIN Act, support passage and creation of a Neuroscience Center of Excellence at the FDA.
-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.
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2021 · third_quarter · Q3
-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.
-Build Back Better Act, support $400 billion for Medicaid home- and community-based services; addressing affordability of health insurance premiums; creating an out-of-pocket cap in Medicare Part D with smoothing mechanism; bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; preserving the Orphan Drug Tax Credit; creating a comprehensive paid family and medical leave program; adding vision, dental, and hearing coverage to Medicare; raising asset limits and other improvements to supplemental security income; expanding low-income subsidies in Medicare. -Ensure access to medications in emergencies in pandemic preparedness legislation. -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -S. 464/H.R. 2163, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -Support creation of a Neuroscience Center of Excellence at the FDA.
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2021 · second_quarter · Q2
-Address affordability of health insurance premiums, out-of-pocket costs, support and expand Medicaid coverage and limit inadequate short-term limited duration and other non-compliant plans. -Create an out-of-pocket cap in Medicare Part D with smoothing mechanism, bar use of discriminatory quality-adjusted life year (QALY) in prescription drug legislation; improve Medicare coverage for low income beneficiaries; add vision, dental, and hearing coverage to Medicare -Include provisions ensuring access to medications in emergencies in pandemic preparedness legislation -S. 2210, Better Care Better Jobs Act, support passage to enhance funding for and expand access to Medicaid home- and community-based services (HCBS) and permanently reauthorize Money Follows the Person -HCBS Access Act, support development of legislation that would make Medicaid HCBS mandatory, end the waiting list, enhance HCBS services, and provide proper support to the direct support workforce. -Provide a $400 billion investment in Medicaid home-and community-based services (HCBS) as outlined in the Build Back Better Agenda -S. 464/H.R. 2163, Safe Step Act, support passage -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products.
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2021 · first_quarter · Q1
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.
-H.R. 1319, American Rescue Plan, support dedicated funding for Medicaid home- and community-based services; including adult dependents in Economic Impact Payments; extension of emergency paid leave tax credits; and provisions to improve affordability of health coverage including subsidizing premium costs for those on COBA and increasing subsidies to purchase coverage through the Affordable Care Act. -Oppose weakening of Medicares Six Protected Classes contained in Calendar Year 2022 Request for Applications for the Part D Payment Modernization Model. -S. 464, Safe Step Act, support passage. -S. 253, Marihuana Research Expansion Act and Medical Marijuana Research Act, support passage.
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2020 · fourth_quarter · Q4
-H.R. 7614, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2021, support funding for epilepsy programs and research including $11.5 million for the CDCs Epilepsy program, $44.7 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System, and $10 million for Lifespan Respite Care Program -H.R. 7610, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2021, support robust funding for the Food & Drug Administration. -H.R. 7617, Defense Appropriations Act, 2021, support robust funding for the Congressionally Directed Medical Research Programs. -H.R. 7617, Defense, Commerce, Justice, Science, Energy and Water Development, Financial Services and General Government, Labor, Health and Human Services, Education, Transportation, Housing, and Urban Development Appropriations Act, 2021, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.
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2020 · third_quarter · Q3
-H.R. 7614, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2021, support funding for epilepsy programs and research including $11.5 million for the CDCs Epilepsy program, $44.7 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System, and $10 million for Lifespan Respite Care Program -H.R. 7610, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2021, support robust funding for the Food & Drug Administration. -H.R. 7617, Defense Appropriations Act, 2021, support robust funding for the Congressionally Directed Medical Research Programs. -H.R. 7617, Defense, Commerce, Justice, Science, Energy and Water Development, Financial Services and General Government, Labor, Health and Human Services, Education, Transportation, Housing, and Urban Development Appropriations Act, 2021, support passage.
-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.
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2020 · second_quarter · Q2
-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities. -H.R. 6420/S. 3652 All Dependents Count Act, support passage. -H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage. -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless. -H.R. 2093/S. 1028, STATES Act, support passage. -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage. -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.
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2020 · first_quarter · Q1
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2021, support funding for epilepsy programs and research including $11.5 million for the CDCs Epilepsy program, $44.7 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2021, support robust funding for the Food & Drug Administration. -Defense Appropriations Act, 2021, support robust funding for the Congressionally Directed Medical Research Programs.
-H.R. 6074, Coronavirus Preparedness and Response Supplemental Appropriations Act, support funding for agencies like the NIH, FDA and CDC to research, better treat and raise awareness and education about COVID-19, as well as support providing authority to relax restrictions in Medicare for telehealth services and reimbursement. -H.R. 6201, Families First Coronavirus Response Act, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs; funding for agencies to research, better treat and raise awareness and education about COVID-19; expansion of paid sick leave and paid family and medical leave; and free COVD-19 testing regardless of insurance type. -H., CR. 748, CARES Act, support various provisions relevant to people with epilepsy and nonprofit support including access of up to a 90-day supply of medications through the pandemic; funding for agencies to research, better treat and raise awareness and education about COVID-19; prohibiting waivers of the Individuals with Disabilities Education Act (IDEA) and providing funding to ensure that special education needs are met through the pandemic; eligibility of Social Security beneficiaries for Economic Impact Payments and payments for Social Security beneficiaries without filing tax returns; grants to providers of Home and Community-Based Services; and allowing 501(c)(3) organizations and organizations that provide Medicaid services to apply for small business loans. -H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program, as well as permanent authorization of the Money Follows the Person program. (Nicole and I did a bunch of these visits together since the two issues got linked). -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.
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2019 · fourth_quarter · Q4
-H.R. 4378, Continuing Appropriations Act, 2020, and Health Extenders Act of 2019, support passage. -H.R. 3055, Further Continuing Appropriations Act, 2020, and Further Health Extenders Act of 2019, support passage. -H.R. 1865, Further Consolidated Appropriations Act, 2020, support passage including supporting specific provisions including $9.5 million for the CDCs Epilepsy program, $41.7 billion for the NIH, $3.16 billion for the FDA, 10 year reauthorization of the Patient-Centered Outcomes Research Institute (PCORI) and 5 month extension of Money Follows the Person and spousal impoverishment.
-H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 3, Elijah Cummings Lower Drug Costs Now Act, support specific provisions such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -HR 3630, the No Surprises Act; S 1895, the S. 1895, Lower Health Care Costs Act; S 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019, support passage of legislation to protect patients from surprise medical billing that holds patients harmless -S. 2543, the Prescription Drug Pricing Reduction Act of 2019, support specific provisions such as an out-of-pocket cap in Medicare and improvements to the Medicaid Drug Rebate Program. -S. 1895, Lower Health Care Costs Act, support provisions to increase transparency and address anticompetitive practices in the prescription drug market -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2035/S. 995, Lifespan Respite Reauthorization Act, support passage.
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2019 · third_quarter · Q3
-H.R. 3877, Bipartisan Budget Act, support raising budget caps -H.R. 4378, Continuing Resolution Act, support -H.R. 2740, FY 2020 Labor, Health and Human Services and Education Appropriations Act, support $11.5 million for the Centers for Disease Controls National Center for Chronic Disease Prevention and Health Promotion; $41.6 billion for the National Institutes of Health; $8.56 billion for the Health Resources & Services Administrations (HRSA) discretionary budget authority; $46 million for the Agency for Healthcare Research and Quality (AHRQ); support $20 million for the Lifespan Respite Care Program; and a $1.7 billion increase over 2019 levels for the Individuals with Disabilities Education Act. -H.R. 2968, FY Defense Appropriations Act, support continued funding for the Congressionally Directed Medical Research Program (CDMRP).
-H.R. 2279/S. 2546, Safe Step Act, support passage -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed -H.R. 2328/H.R. 3439, support reauthorization of the Patient-Centered Outcomes Research Institute (PCORI) for a minimum of 7 years -HHS Docket No. HHS-OCR-2019-0007, RIN 0945-AA11, oppose weakening of anti-discrimination provisions of Section 1557 of the Affordable Care Act -H.R. 3, Lower Drug Costs Now Act, support specific provisions that are relevant to the epilepsy community such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs -FY 2020 Revisions to Payment Policies under the Physician Fee Schedule and Other Changes to Part B Payment Policies (CMS-1715-P) and CY 2020 Medicare Hospital Outpatient Prospective Payment System Proposed Rule (CMS-1717-P), expressed concern with reductions in the values for the new long-term EEG (electroencephalograph) and video EEG (VEEG) professional and technical service codes and urge appropriate values be assigned -RIN:0938-AT41, oppose proposed rescission of the existing regulations on Medicaid equal access
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2019 · second_quarter · Q2
-FY 2020 Labor, Health and Human Services and Education Appropriations Act, support $11.5 million for the Centers for Disease Controls National Center for Chronic Disease Prevention and Health Promotion; $41.6 billion for the National Institutes of Health; $8.56 billion for the Health Resources & Services Administrations (HRSA) discretionary budget authority; $46 million for the Agency for Healthcare Research and Quality (AHRQ); support $20 million for the Lifespan Respite Care Program; and a $1.7 billion increase over 2019 levels for the Individuals with Disabilities Education Act. -H.R. 2968, FY Defense Appropriations Act, support continued funding for the Congressionally Directed Medical Research Program (CDMRP).
-Modernizing Part D and Medicare Advantage to Lower Drug Prices and Reduce Out-of-Pocket Expenses (CMS-4180-P), oppose weakening of Medicares Six Protected Classes and urge proposed rule to be rescinded -S. 691, Medicare Extra Rx HELP Act, support passage -H.R. 2279, Safe Step Act, support passage -H.R. 1839, Medicaid Services Investment and Accountability Act, support passage of the ACE Kids Act, reauthorization of Money Follows the Person and extension of spousal impoverishment protections - H.R. 2035 / S. 995, Lifespan Respite Care Reauthorization Act, support passage -HR 1385, SAVE Act, support passage -HR 1386, ENROLL Act, support passage -HR 1425, State Health Care Premium Reduction Act, support passage -HR 987, MORE Health Education Act, support passage -HR 986/S. 466, Protecting Americans with Preexisting Conditions Act, support passage -HR 1010, support passage -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy -H.R. 2093/S. 1028, STATES Act, support passage -H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage -Regulation of products containing cannabis or cannabis-derived compounds -Support reauthorization of the Patient-Centered Outcomes Research Institute (PCORI)
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2019 · first_quarter · Q1
-FY 2020 Labor, Health and Human Services and Education Appropriations Act, support $11.5 million for the Centers for Disease Controls National Center for Chronic Disease Prevention and Health Promotion; $41.6 billion for the National Institutes of Health; $8.56 billion for the Health Resources & Services Administrations (HRSA) discretionary budget authority; $46 million for the Agency for Healthcare Research and Quality (AHRQ); and a $1.7 billion increase over 2019 levels for the Individuals with Disabilities Education Act.
-Modernizing Part D and Medicare Advantage to Lower Drug Prices and Reduce Out-of-Pocket Expenses (CMS-4180-P), oppose weakening of Medicares Six Protected Classes and urge proposed rule to be rescinded -S. 691, Medicare Extra Rx HELP Act, support passage -H.R. 2279, Safe Step Act, support passage -H.R. 1839, Medicaid Services Investment and Accountability Act, support passage of the ACE Kids Act, reauthorization of Money Follows the Person and extension of spousal impoverishment protections - H.R. 2035 / S. 995, Lifespan Respite Care Reauthorization Act, support passage -HR 1385, SAVE Act, support passage -HR 1386, ENROLL Act, support passage -HR 1425, State Health Care Premium Reduction Act, support passage -HR 987, MORE Health Education Act, support passage -HR 986/S. 466, Protecting Americans with Preexisting Conditions Act, support passage -HR 1010, support passage -H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy
EPILEPSY FOUNDATION via EPILEPSY FOUNDATION
2018 · fourth_quarter · Q4
-HR 7217, the IMPROVE Act, support inclusion and passage of the ACE Kids Act, reauthorization of Money Follows the Person and extension of spousal impoverishment protections. -H.R. 2077, Restoring the Patient's Voice Act, support passage. -CMS-4180-P, Modernizing Part D and Medicare Advantage to Lower Drug Prices and Reduce Out-of-Pocket Expenses, oppose weakening of Medicare's Six Protected Classes policy. -H.R. 2, Agriculture Improvement Act, educate about implications of hemp and hemp-derived cannabidiol (CBD) provisions.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, SENATE
Filing targets: Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Energy, Dept of, Federal Aviation Administration (FAA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
Filing targets: Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Federal Aviation Administration (FAA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2025, support funding for epilepsy programs and research including $11.581 billion for the CDC including $12.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $48.9 billion for the NIH, $680.4 million for the BRAIN Initiative, $10 million to start considering an epilepsy-related research and clinical consortium at the NIH, $10 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2025, support at least $26.8 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2025, support robust funding for the Food & Drug Administration. -Defense Appropriations Act, 2025, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $8 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program. -H.R. 10445, Further Continuing Appropriations and Disaster Relief Act, support passage.
Filing targets: Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Federal Aviation Administration (FAA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Institutes of Health (NIH), SENATE, Transportation, Dept of (DOT), Treasury, Dept of, Veterans Affairs, Dept of (VA)
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2025, support funding for epilepsy programs and research including $11.581 billion for the CDC including $12.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51.3 billion for the NIH, $740 million for the BRAIN Initiative, $15 million to start considering an epilepsy-related research and clinical consortium at the NIH, $10 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2025, support at least $26.8 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2025, support robust funding for the Food& Drug Administrations BA. -Defense Appropriations Act, 2025, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program,$10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Labor, Dept of (DOL), SENATE, Transportation, Dept of (DOT), Treasury, Dept of
-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -H.R. 2880, Protecting Patients Against PBM Abuses Act-Support preservation of Medicare Part Ds Six Protected Classes policy. -Protection of the Affordable Care Act and Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Educate about Medicaid and CHIP unwinding to try and reduce coverage losses. -Urge the federal government to collect better data on the disability community -Urge patient priorities like standardized health plans and network adequacy in the 2026 Notice of Benefit and Payment Parameters rule. -Urge rescission of the 2018 Definition of Employer-Association Health Plans final rule (the 2018 AHP Rule). -Urge finalization of regulations important to patients and consumers with acute and chronic health conditions including the 504 rule, short-term limited duration rule and the 1557 rule. -ERISA RFI, comments to help ensure that people with serious acute and chronic health care conditions who are covered by employer-sponsored plans are protected and have coverage that meets their health care needs -Ensure any regulation of cannabis protects safe and legal access -Ensure continued access to needed healthcare via telehealth including prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support the parity of coverage of mental health treatments -Support legislation and regulations that incentivize the development of orphan drugs -Support legislation and regulations that help to advance health equity for people with epilepsy -Provide technical assistance on draft bill that would establish a federal grant and subgrant program to better support students with epilepsy in schools -Support legislation and regulations that would ban the use of electric shock devices that apply a shock to a persons skin to reduce or cease self-injurious or aggressive behaviors -Supporting legislation and regulations that protect the current structure of the National Institutes of Health -Supporting regulations to change the dates for the New Technology Add-On Payment -Support legislation to keep insurance brokers accountable -Support H.R. 7573, Stop Medicaid Recovery Act -Support H.R. 4758/S.2372, Accelerating Kids Access to Care Act -Support legislation and regulations to streamline prior authorization processes -Support the creation of an Office of Caregiving at the Department of Health and Human Services
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Labor, Dept of (DOL), SENATE, Transportation, Dept of (DOT), Treasury, Dept of
-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of Medicare Part Ds Six Protected Classes policy. -Support patient-centric implementation of Medicare Part D out-of-pocket cap and smoothing. -Educate about Medicaid and CHIP unwinding to try and reduce coverage losses. -2025 Notice of Benefit and Payment Parameters rule, comments supporting the proposals -Urge rescission of the 2018 Definition of Employer-Association Health Plans final rule (the 2018 AHP Rule). -Urge finalization of regulations important to patients and consumers with acute and chronic health conditions including the 504 rule, short-term limited duration rule and the 1557 rule. -ERISA RFI, comments to help ensure that people with serious acute and chronic health care conditions who are covered by employer-sponsored plans are protected and have coverage that meets their health care needs -S.2140, The Patent Eligibility Restoration Act, oppose -H.R. 485, Protecting Health Care for All Patients Act, support a ban on the use of quality-adjusted life years -Ensure any regulation of CBD protects safe and legal access. -Ensure continued access to needed healthcare via telehealth including prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support the parity of coverage of mental health treatments -Support legislation and regulations that incentivize the development of orphan drugs -Support legislation and regulations that help to advance health equity for people with epilepsy -Provide technical assistance on draft bill that would establish a federal grant and subgrant program to better support students with epilepsy in schools
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Justice, Dept of (DOJ), Labor, Dept of (DOL), SENATE, Transportation, Dept of (DOT), Treasury, Dept of
-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of the Six Protected Classes policy in Medicare Part D. -Support patient-centric implementation of Medicare Part D out-of-pocket cap and smoothing. -Educate about Medicaid and CHIP unwinding to try and reduce coverage losses. -H.R. 485, Protecting Health Care for All Patients Act, support passage. -Ensure any regulation of CBD protects safe and legal access. -Ensure continued access to epilepsy medications that are controlled substances considering potential changes to prescribing via telehealth. -Support implementation and oversight of the mental health parity law to ensure parity of insurance coverage between medical and mental health -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support adding epilepsy to the Healthy People 2030 objectives
Filing targets: Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Labor, Dept of (DOL), SENATE, Transportation, Dept of (DOT), Treasury, Dept of
Filing targets: Centers For Medicare and Medicaid Services (CMS), Drug Enforcement Administration (DEA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Labor, Dept of (DOL), SENATE, Transportation, Dept of (DOT), Treasury, Dept of
Filing targets: Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, SENATE
-S. 464/H.R. 2163, Safe Step Act, support passage. -H.R. 8454, Medical Marijuana and Cannabidiol Research Expansion Act, support passage. -Identify and make recommendations on improvements to federal law for access to medical cannabis and medical cannabis products. -S.4348 Food and Drug Administration Safety and Landmark Advancements Act of 2022 / H.R. 7667 Food and Drug Amendments Act of 2022, ensure that any new regulation of dietary supplements protects access to CBD, support amendment to ban use of certain electric shock devices, support provisions regarding diverse enrollment in clinical trials, support provisions to support orphan drug development
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $49 billion for the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs. -H.R. 6833 Continuing Appropriations and Ukraine Supplemental Appropriations Act, support passage to ensure federal funding for programs and research important to the epilepsy community through December 16, 2022.
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
BUDGET -H.R. 2471, Consolidated Appropriations Act, 2022, support passage to ensure funding for important epilepsy-related programs, research and services including the CDC epilepsy program and the VA Epilepsy Centers of Excellence. -Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2023, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program; $164 million for the CDC's Safe Motherhood & Infant Health Program including more funding for the SUID & SDY Case Registry; $49 billion for the NIH; and $5 million for the National Neurological Conditions Surveillance System. - Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2023, support $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2023, support $3.653 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2023, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
-H.R. 4502, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2022, support funding for epilepsy programs and research including $13 million for the CDCs Epilepsy program, $46.1 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System. -H.R.4355, Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2022, support $13 million for the VA Epilepsy Centers of Excellence. -H.R. 4356, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2022, support robust funding for the Food & Drug Administration. -H.R. 4432, Defense Appropriations Act, 2022, support robust funding for the Congressionally Directed Medical Research Programs.
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
-H.R. 6420 / S. 3652 All Dependents Count Act, support passage. -H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage. -H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage. -H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage- H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage -H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage. -H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
-H.R. 7614, Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2021, support funding for epilepsy programs and research including $11.5 million for the CDCs Epilepsy program, $44.7 billion for the NIH and $5 million for the National Neurological Conditions Surveillance System and $10 million for Lifespan Respite Care Program. -H.R. 7610, Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2021, support robust funding for the Food & Drug Administration. -H.R. 7617, Defense Appropriations Act, 2021, support robust funding for the Congressionally Directed Medical Research Programs.
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: Centers For Medicare and Medicaid Services (CMS), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE
Filing targets: Centers For Medicare and Medicaid Services (CMS), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE