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Income and expense are whole-filing amounts associated with this lobbyist, not personal compensation or an allocated share.
No topic inference: each bill number appears in source LDA issue text assigned to this lobbyist.
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Specific issues are shown only where the LDA source assigned them to this lobbyist. Targets apply to the associated filing.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2026 · third_quarter · Q3
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492/S.832 - EPIC Act of 2025 - Discussion around encouraging innovation and research transparency for rare disease drugs.
Source: Senate LDA
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Lowering Costs for Caregivers Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
Lowering Costs for Caregivers Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
Lowering Costs for Caregivers Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program.
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492/S.832 - EPIC Act of 2025 - Discussion around encouraging innovation and research transparency for rare disease drugs.
To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program.
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492 - To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program - Discussion around encouraging innovation and research transparency for rare disease drugs.
To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program.
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492/S.832 - EPIC Act of 2025 - Discussion around encouraging innovation and research transparency for rare disease drugs.
Maintaining Investments in New Innovation Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492 - To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program - Discussion around encouraging innovation and research transparency for rare disease drugs.
Maintaining Investments in New Innovation Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492/S.832 - EPIC Act of 2025 - Discussion around encouraging innovation and research transparency for rare disease drugs.
Maintaining Investments in New Innovation Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492/S.832 - EPIC Act of 2025 - Discussion around encouraging innovation and research transparency for rare disease drugs.
Justice for ALS Veterans Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
Justice for ALS Veterans Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
Justice for ALS Veterans Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death . H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS.
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
Preserving Patient Access to Home Infusion Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Preserving Patient Access to Home Infusion Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Mobility Means Freedom Tax Credit Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
Mobility Means Freedom Tax Credit Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
Mobility Means Freedom Tax Credit Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
H.R8490/S.4396 - Social Security Caregiver Credit Act - All provisions S 1234/H.R.2540-SSI Savings Penalty Elimination Act - All provisions
Lifespan Respite Care Reauthorization Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Lifespan Respite Care Reauthorization Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Lifespan Respite Care Reauthorization Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Lifespan Respite Care Reauthorization Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
Lifespan Respite Care Reauthorization Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Improving Seniors’ Timely Access to Care Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
Improving Seniors’ Timely Access to Care Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Improving Seniors’ Timely Access to Care Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Protecting Health Care for All Patients Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Protecting Health Care for All Patients Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Protecting Health Care for All Patients Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205 - To amend the Accelerating Access to Critical Therapies for ALS Act to reauthorize the provisions of such Act through fiscal year 2031, and for other purposes. All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. General Discussions/Draft Language - Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance.
Department of Defense Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Department of Defense Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Department of Defense Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death . H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS.
Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
Access to Genetic Counselor Services Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Access to Genetic Counselor Services Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Access to Genetic Counselor Services Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
H.R. 8205 - To amend the Accelerating Access to Critical Therapies for ALS Act to reauthorize the provisions of such Act through fiscal year 2031, and for other purposes. All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. General Discussions/Draft Language - Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance.
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205 - To amend the Accelerating Access to Critical Therapies for ALS Act to reauthorize the provisions of such Act through fiscal year 2031, and for other purposes. All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. General Discussions/Draft Language - Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance.
Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Medicare Advantage Improvement Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Medicare Advantage Improvement Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Social Security Caregiver Credit Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R8490/S.4396 - Social Security Caregiver Credit Act - All provisions
Social Security Caregiver Credit Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R8490/S.4396 - Social Security Caregiver Credit Act - All provisions S 1234/H.R.2540-SSI Savings Penalty Elimination Act - All provisions
Timely Access to Coverage Decisions Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Timely Access to Coverage Decisions Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Air Carrier Access Amendments Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.9373 - Air Carrier Access Amendments Act of 2026 - Provisions relating to remedies and enforcement mechanisms for air passengers with disabilities.
Air Carrier Access Amendments Act of 2026
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.9373 - Air Carrier Access Amendments Act of 2026 - Provisions relating to remedies and enforcement mechanisms for air passengers with disabilities.
Supports the designation of "ALS Awareness Month".
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Supports the designation of "ALS Awareness Month".
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
Preserving Patient Access to Home Infusion Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Preserving Patient Access to Home Infusion Act
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R8490/S.4396 - Social Security Caregiver Credit Act - All provisions S 1234/H.R.2540-SSI Savings Penalty Elimination Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
Lowering Costs for Caregivers Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
Lowering Costs for Caregivers Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
Lowering Costs for Caregivers Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
Improving Seniors’ Timely Access to Care Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
Improving Seniors’ Timely Access to Care Act of 2025
Client: THE ALS ASSOCIATION · Firm: THE ALS ASSOCIATION
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R8490/S.4396 - Social Security Caregiver Credit Act - All provisions S 1234/H.R.2540-SSI Savings Penalty Elimination Act - All provisions
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions H.R. 9364 FAST Repairs for Wheelchairs Act - All provisions H.R. 10787-the Access to Medical Supplies Act - All provisions
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
S.3971 - Small Business Innovation and Economic Security Act - Provisions relating to the extension and enhancement of the SBIR and STTR programs through 2031, introducing new research security requirements, expanded funding opportunities, administrative streamlining, improved commercialization support, and strengthened data collection to better support small business innovation
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
H.R.9373 - Air Carrier Access Amendments Act of 2026 - Provisions relating to remedies and enforcement mechanisms for air passengers with disabilities.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2026 · second_quarter · Q2
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.
H.R.9373 - Air Carrier Access Amendments Act of 2026 - Provisions relating to remedies and enforcement mechanisms for air passengers with disabilities.
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions
S.3971 - Small Business Innovation and Economic Security Act - Provisions relating to the extension and enhancement of the SBIR and STTR programs through 2031, introducing new research security requirements, expanded funding opportunities, administrative streamlining, improved commercialization support, and strengthened data collection to better support small business innovation
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492/S.832 - EPIC Act of 2025 - Discussion around encouraging innovation and research transparency for rare disease drugs.
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R8490/S.4396 - Social Security Caregiver Credit Act - All provisions
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2026 · first_quarter · Q1
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492 - To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program - Discussion around encouraging innovation and research transparency for rare disease drugs.
Social Security Caregiver Credit Act (Draft Legislation) - All Provisions
H.R. 8205 - To amend the Accelerating Access to Critical Therapies for ALS Act to reauthorize the provisions of such Act through fiscal year 2031, and for other purposes. All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. General Discussions/Draft Language - Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance.
H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death . H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2025 · first_quarter · 1A
H.R.1968 -Full-Year Continuing Appropriations and Extensions Act, 2025 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. Conversations surrounding Appropriations for Fiscal Year 2026 (No Bill Number) Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials
Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance. HEALTHY BRAINS Act (Draft legislation) - All Provisions
ALS Better Care Act (Draft legislation) - Discussion around re introduction and provisions related to supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (S.864) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. CONNECT for Health Act (S.1261) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Alleviating Barriers for Caregivers (ABC) Act (H.R.2491) - All provisions. Lifespan Respite Care Reauthorization Act (H.R. 2560/S.830) - all provisions
Justice for ALS Veterans Act (H.R 1685 / S. 749) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Credit for Caring Act of 2025 (H.R.2036/S. 925) - All provisions. Clinical Trial Tax Credit (Draft legislation) - All provisions. Mobility Means Freedom Tax Credit Act (H.R. 2320) - All provisions
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2025 · fourth_quarter · Q4
ALS Better Care Act (No Bill Number)- Discussion around re introduction and provisions related to supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - all provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607 - Genetic Counselor Services Act - All provisions
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
ACT for ALS Act (draft legislation) - discussion on reauthorization of legislation to increase the development of critical new therapies for ALS and an expanded natural history study of ALS. HEALTHY BRAINS Act (Draft legislation) - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. General Discussions/Draft Language - Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance.
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R.6001 - ALS Veteran Reporting Act - Discussion around ALS prevention for the military and access to care for veterans living with ALS.
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492 - To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program - Discussion around encouraging innovation and research transparency for rare disease drugs.
Social Security Caregiver Credit Act (Draft Legislation) - All Provisions
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2025 · third_quarter · Q3
H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2025 · second_quarter · Q2
Justice for ALS Veterans Act (H.R 1685 / S. 749) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Credit for Caring Act of 2025 (H.R.2036/S. 925) - All provisions. Clinical Trial Tax Credit (Draft legislation) - All provisions. Mobility Means Freedom Tax Credit Act (H.R. 2320) - All provisions
HEALTHY BRAINS Act (Draft legislation) All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. General Discussions/Draft Language Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2025 · first_quarter · Q1
H.R.1968 -Full-Year Continuing Appropriations and Extensions Act, 2025 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. Conversations surrounding Appropriations for Fiscal Year 2026 (No Bill Number) Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2024 · fourth_quarter · Q4
Caregiver Credit Act (H.R3729 / S.1211) - All provisions, including those which give individuals serving as caregivers of dependent relatives with deemed wages for up to five (5) years of such service.
Further Consolidated Appropriations Act of 2024 (HR 2882) & Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. Consolidated Appropriations Act of 2024 (HR 4366) . Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Continuing Appropriations and Extensions Act, 2025 (H.R.9747) - Provisions related to continuing resolution funding for public health programs, veterans administration, and the Food and Drug Administration. Conversations surrounding Appropriations for Fiscal Year 2025
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2024 · third_quarter · Q3
Promising Pathways Act (S.1906) - Discussion around a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS and coverage for these drugs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data.
Credit for Caring Act of 2024 (H.R.7165/S. 3702) - All provisions. Clinical Trial Tax Credit (H.R. 7418) - All provisions.
Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance. Seniors Timely Access to Care (S.4532 / H.R. 8702) - CONNECT for Health Act of 2023 (H.R.4189/S.2016) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Telehealth Modernization Act (H.R. 7623 / S. 3967) - All Provisions. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data. Connecting Caregivers to Medicare Act of 2024 (H.R. 7274/S. 3766) - All provisions. Ensuring Patient Access to Critical Breakthrough Products Act (H.R. 1691) - All provisions HEALTHY BRAINS Act (H.R. 9233) - All Provisions relating to creating a research grant program to study environmental toxin exposure, its impact on the development of neurodegenerative diseases like ALS, and developing strategies to prevent, treat, and slow the progression of neurodegenerative diseases.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2024 · second_quarter · Q2
Justice for ALS Veterans Act (H.R 3790 / S. 1590) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Caregiver Credit Act (H.R3729 / S.1211) - All provisions, including those which give individuals serving as caregivers of dependent relatives with deemed wages for up to five (5) years of such service.
HR 2882, Further Consolidated Appropriations Act of 2024 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. HR 4366, the Consolidated Appropriations Act of 2024. Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Conversations surrounding Appropriations for Fiscal Year 2025 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2025 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Department of Defense Appropriations Act (H.R. 4365) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2024 · first_quarter · Q1
Promising Pathways Act (H.R. 4408/S. 1906) - Discussion around a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS and coverage for these drugs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data.
HR 2882, Further Consolidated Appropriations Act of 2024 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. HR 4366, the Consolidated Appropriations Act of 2024. Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Conversations surrounding Appropriations for Fiscal Year 2025 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2025 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Department of Defense Appropriations Act (H.R. 4365) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2023 · fourth_quarter · Q4
Promising Pathways Act (H.R. 4408/S. 1906) - Discussion around a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS and coverage for these drugs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data.
Caregiver Credit Act (H.R3729 / S.1211) - All provisions, including those which give individuals serving as caregivers of dependent relatives with deemed wages for up to five (5) years of such service.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2023 · third_quarter · Q3
Justice for ALS Veterans Act (H.R 3790 / S. 1590) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs.
Conversations surrounding Appropriations for Fiscal Year 2024 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. - Department of Defense Appropriations Act (H.R. 4365) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2023 · second_quarter · Q2
Promising Pathways Act (S.1906) - Discussion around a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS.
Conversations surrounding Appropriations for Fiscal Year 2024 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (no bill number) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (no bill number) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Department of Defense Appropriations Act (no bill number) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2023 · first_quarter · Q1
Justice for ALS Veterans Act (draft legislation. no bill number) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Conversations surrounding Appropriations for Fiscal Year 2024 Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (no bill number) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue the National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (no bill number) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Department of Defense Appropriations Act (no bill number) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2022 · fourth_quarter · Q4
-Inflation Reduction Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; the establishment Advanced Research Projects Agency for Health (ARPA-H); provisions related to extending marketplace subsidies under the Patient Protection and Affordable Care Act; and provisions related to an out-of-pocket maximum for Medicare beneficiaries' prescription drugs. Advancing Telehealth Beyond COVID-19 Act of 2021 (H.R. 4040) -- Provisions related to extension of Medicare flexibilities including originating site, allowance of occupational and physical therapists, speech-language pathologists, and audiologists to continue to provide services, allowance for qualified health centers and rural health clinics to serve as a distant site, behavioral services to continue to be provided via audio-only technology, and allowance of hospice physicians and nurse practitioners to complete patient recertification via telehealth. Additional provisions related to delay of in-person evaluation requirements for mental health services until January 1, 2025 or end of emergency period. -The Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act (H.R. 2903 / S. 1512) Provisions related to the Centers for Medicare & Medicaid Services (CMS) to waive certain restrictions, such as geographic restrictions, for services provided in high-need health professional shortage areas; excludes mental health and emergency medical services, as well as services provided at rural health clinics, federally qualified health centers, and Indian Health Service facilities, from such geographic restrictions; and waive coverage restrictions during national emergencies. -Temporary Reciprocity to Ensure Access to Treatment (TREAT) Act (H.R. 708 / S. 168) temporarily authorizes the interstate provision of in-person and telehealth services. This authorization applies during, and for at least 180 days after, the COVID-19 (i.e. coronavirus disease 2019) emergency. Specifically, subject to scope of practice and other requirements, a health care professional may provide health services in any U.S. jurisdiction based on that individual's authorization to practice in any one state or territory. The bill also provides certain related powers to health care professional regulatory bodies, such as medical boards. Specifically, a regulatory may investigate and take disciplinary actions against a processional who provides services pursuant to this bill to a patient in that body's jurisdiction. -CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. -Medicare Payment Reform for People with ALS (H.R.9638) Provides supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. -Seniors Timely Access to Care Act (H.R.3173 / S.3018) -- Requires streamlined prior authorization process under Medicare Advantage Plans.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2022 · third_quarter · Q3
-Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2023 (H.R.8295) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $135 million for ALS research at NIH in fiscal year 2023 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $10 million to continue the National ALS Registry and Biorepository in fiscal year 2023 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and collect biospecimens that will lead to a better understanding of who may develop ALS. Requested funding to establish the Advanced Research Projects Agency for Health to fund new research into Amyotrophic Lateral Sclerosis. - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2023 (H.R.8239) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2023 to to implement P.L. 117-79 to establish the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide grants for clinical trials for ALS and other neurodegenerative diseases.- - Department of Defense Appropriations Act, 2023 (H.R.8236) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $60 million for the ALS Research Program in fiscal year 2023 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2022 · second_quarter · Q2
-The Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act (H.R. 2903/ S. 1512) expands coverage of telehealth services under Medicare. Among other things, the bill allows the Centers for Medicare & Medicaid Services (CMS) to waive certain restrictions, such as geographic restrictions, for services provided in high-need health professional shortage areas; excludes mental health and emergency medical services, as well as services provided at rural health clinics, federally qualified health centers, and Indian Health Service facilities, from such geographic restrictions; and allows the CMS to generally waive coverage restrictions during national emergencies. Additionally, the Medicare Payment Advisory Commission must report on information relating to the access of Medicare beneficiaries to telehealth services at home. The Center for Medicare and Medicaid Innovation may also test alternative payment models relating to expanded telehealth services. -CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. -Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; the establishment Advanced Research Projects Agency for Health (ARPA-H); and provisions related to an out-of-pocket maximum for Medicare beneficiaries' prescription drugs. -Temporary Reciprocity to Ensure Access to Treatment (TREAT) Act (H.R.708/S.168) temporarily authorizes the interstate provision of in-person and telehealth services. This authorization applies during, and for at least 180 days after, the COVID-19 (i.e. coronavirus disease 2019) emergency. Specifically, subject to scope of practice and other requirements, a health care professional may provide health services in any U.S. jurisdiction based on that individuals authorization to practice in any on e state or territory. The bill also provides certain related powers to health care professional regulatory bodies, such as medical boards. Specifically, a regulatory may investigate and take disciplinary actions against a processional who provides services pursuant to this bill to a patient in that body's jurisdiction.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2022 · first_quarter · Q1
- CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. - Conversations surrounding Prescription Drug User Fee Act VII (PDUFA VII) -- provisions related to modernization of regulatory evidence generation and drug development tools through novel clinical trial design and modeling, improving accountability and transparency of the FDA, enhancing staff retention and resource management.
- Air Carrier Amendments Act HR1619/S642 -- provisions related to prohibiting discrimination against disabled individuals by an air carrier. - Disability Employment Incentive Act HR 3765/S630 - Provisions related to adding SSDI recipients to qualified Work Opportunity Tax Credits, doubling and extending the Work Opportunity Tax Credit, doubling the Disability Access Expenditures Tax Credit, and increasing the Architectural and Transportation Barrier Tax Credit.
THE ALS ASSOCIATION via THE ALS ASSOCIATION
2021 · fourth_quarter · Q4
-Temporary Reciprocity to Ensure Access to Treatment (TREAT) Act (H.R. 708/ S. 168) temporarily authorizes the interstate provision of in-person and telehealth services. This authorization applies during, and for at least 180 days after, the COVID-19 (i.e., coronavirus disease 2019) emergency. Specifically, subject to scope of practice and other requirements, a health care professional may provide health services in any U.S. jurisdiction based on that individual's authorization to practice in any one state or territory. The bill also provides certain related powers to health care professional regulatory bodies, such as medical boards. Specifically, a regulatory body may investigate and take disciplinary actions against a professional who provides services pursuant to this bill to a patient in that body's jurisdiction. -The Promising Pathway Act (S. 1644) would establish a new time-limited "provisional approval" path at the FDA for drug sponsors to market drugs that show promise while additional testing takes place and before full FDA approval is achieved. -Accelerating Access to Critical Therapies (ACT) for ALS Act (H.R. 3537/ S. 1813) would create 1) a new framework for delivering experimental therapies to people with rare neurodegenerative diseases such as ALS; 2) create a new research grant program at the FDA to such diseases, and; 3) create a new Public-Private Partnership at the Department of Health and Human Services to coordinate federal efforts on developing and approving treatments for such diseases. -Promising Pathway Act (H.R. 3761/S. 1644) would create a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS. CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; and the establishment Advanced Research Projects Agency for Health (ARPA-H). Telehealth Modernization Act (H.R. 1332/S. 368) -- Provisions related to the modification of requirements relating to coverage of telehealth services under Medicare bill, including certain flexibilities that were initially authorized during the public health emergency relating to COVID-19.
HEALTHY BRAINS Act (Draft legislation) - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. General Discussions/Draft Language - Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance.
ALS Better Care Act (No Bill Number)- Discussion around re introduction and provisions related to supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - all provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. Genetic Counselor Services Act (no bill number) - All provisions
H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. ALS Veteran Reporting Act (no bill number) - Discussion around ALS prevention for the military and access to care for veterans living with ALS.
H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions
H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492 - To amend title XI of the Social Security Act to equalize the negotiation period between small-molecule and biologic candidates under the Drug Price Negotiation Program - Discussion around encouraging innovation and research transparency for rare disease drugs.
H.R. 3729 / S.1211 - Social Security Caregiver Credit Act - All Provisions
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
ALS Better Care Act (Draft legislation) - Discussion around re introduction and provisions related to supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (S.864) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. CONNECT for Health Act (S.1261) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Alleviating Barriers for Caregivers (ABC) Act (H.R.2491) - All provisions. Lifespan Respite Care Reauthorization Act (H.R. 2560/S.830) - all provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans.
H.R.1968 -Full-Year Continuing Appropriations and Extensions Act, 2025 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2025 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2025 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2025 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2025. H.R 4016 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4142 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. Discussions Surrounding Appropriations for Labor Health and Human Services (No Bill Number) Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - The Big Beautiful Bill Act Discussions around changes to Medicaid, specifically service changes for home and community based services, altered coverage for family caregivers, and provisions which reduce federal investment and introduce an increased investment from state budgets that impact access to care.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance. HEALTHY BRAINS Act (Draft legislation) - All Provisions
ALS Better Care Act (Draft legislation) - Discussion around re introduction and provisions related to supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (S.864) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. CONNECT for Health Act (S.1261) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Alleviating Barriers for Caregivers (ABC) Act (H.R.2491) - All provisions. Lifespan Respite Care Reauthorization Act (H.R. 2560/S.830) - all provisions
Justice for ALS Veterans Act (H.R 1685 / S. 749) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Credit for Caring Act of 2025 (H.R.2036/S. 925) - All provisions. Clinical Trial Tax Credit (Draft legislation) - All provisions. Mobility Means Freedom Tax Credit Act (H.R. 2320) - All provisions
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Justice for ALS Veterans Act (H.R 3790 / S. 1590) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs.
Discussions around improving access, coverage, and prior authorization for treatments and drugs under Medicare, Medicare Advantage, and private insurance. Seniors Timely Access to Care (S.4532 / H.R. 8702) - CONNECT for Health Act of 2023 (H.R.4189/S.2016) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Telehealth Modernization Act (H.R. 7623 / S. 3967) - All Provisions. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data. Connecting Caregivers to Medicare Act of 2024 (H.R. 7274/S. 3766) - All provisions. Ensuring Patient Access to Critical Breakthrough Products Act (H.R. 1691) - All provisions HEALTHY BRAINS Act (H.R. 9233) - All Provisions relating to creating a research grant program to study environmental toxin exposure, its impact on the development of neurodegenerative diseases like ALS, and developing strategies to prevent, treat, and slow the progression of neurodegenerative diseases. Seniors Timely Access to Care (S.4532 / H.R. 8702) - All provisions
ALS Better Care Act (H.R 5663/S.3258) - Discussion around supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. Access to Genetic Counselor Services Act of 2023 (H.R.3876) - Provisions related to modernization of Medicare to keep pace with generic and genomic medicine innovation. Improves the ability for practitioners to refer patients to genetic counselors, Provides 85% reimbursement of physicians fee schedule amount for service. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Close the Medigap Act (HR 35) -Discussion around Medigap guarantee issue provisions for people living with ALS aged under 65. Alleviating Barriers for Caregivers (ABC) Act (S.3109/H.R.8018) - All provisions. Connecting Caregivers to Medicare Act of 2024 (H.R. 7274/S. 3766) - All provisions
Credit for Caring Act of 2024 (H.R.7165/S. 3702) - All provisions. Clinical Trial Tax Credit (H.R. 7418) - All provisions.
Promising Pathways Act (S.1906) - Discussion around a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS and coverage for these drugs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data. RARE Act (H.R.7383) - All provisions
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
ALS Better Care Act (H.R 5663/S.3258) - Discussion around supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. Access to Genetic Counselor Services Act of 2023 (H.R.3876) - Provisions related to modernization of Medicare to keep pace with generic and genomic medicine innovation. Improves the ability for practitioners to refer patients to genetic counselors, Provides 85% reimbursement of physicians fee schedule amount for service. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Close the Medigap Act (HR 35) -Discussion around Medigap guarantee issue provisions for people living with ALS aged under 65. Alleviating Barriers for Caregivers (ABC) Act (S.3109/H.R.8018) - All provisions. Connecting Caregivers to Medicare Act of 2024 (H.R. 7274/S. 3766) - All provisions
Caregiver Credit Act (H.R3729 / S.1211) - All provisions, including those which give individuals serving as caregivers of dependent relatives with deemed wages for up to five (5) years of such service.
Further Consolidated Appropriations Act of 2024 (HR 2882) & Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. Consolidated Appropriations Act of 2024 (HR 4366) . Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. Continuing Appropriations and Extensions Act, 2025 (H.R.9747) - Provisions related to continuing resolution funding for public health programs, veterans administration, and the Food and Drug Administration. Conversations surrounding Appropriations for Fiscal Year 2025
Justice for ALS Veterans Act (H.R 3790 / S. 1590) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Discussion around improving the prior authorization process for treatments and drugs under Medicare, Medicare Advantage, and private insurance. CONNECT for Health Act of 2023(H.R.4189/S.2016) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data. H.R. 7274/S. 3766 - Connecting Caregivers to Medicare Act of 2024 - All provisions. H.R. 1691, Ensuring Patient Access to Critical Breakthrough Products Act - All provisions
ALS Better Care Act (H.R 5663/S.3258) - Discussion around supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. Access to Genetic Counselor Services Act of 2023 (H.R.3876) - Provisions related to modernization of Medicare to keep pace with generic and genomic medicine innovation. Improves the ability for practitioners to refer patients to genetic counselors, Provides 85% reimbursement of physicians fee schedule amount for service. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Close the Medigap Act (HR 35) -Discussion around Medigap guarantee issue provisions for people living with ALS aged under 65.
Promising Pathways Act (H.R. 4408/S. 1906) - Discussion around a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS and coverage for these drugs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data.
H.R.7165/S. 3702 - Credit for Caring Act of 2024 - All provisions
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
ALS Better Care Act (H.R 5663/S.3258) - Discussion around supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. Access to Genetic Counselor Services Act of 2023 (H.R.3876) - Provisions related to modernization of Medicare to keep pace with generic and genomic medicine innovation. Improves the ability for practitioners to refer patients to genetic counselors, Provides 85% reimbursement of physicians fee schedule amount for service. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Close the Medigap Act (HR 35) -Discussion around Medigap guarantee issue provisions for people living with ALS aged under 65.
H.R.7165/S. 3702 - Credit for Caring Act of 2024 - All provisions
Caregiver Credit Act (H.R3729 / S.1211) - All provisions, including those which give individuals serving as caregivers of dependent relatives with deemed wages for up to five (5) years of such service.
Discussion around improving the prior authorization process for treatments and drugs under Medicare, Medicare Advantage, and private insurance. CONNECT for Health Act of 2023(H.R.4189/S.2016) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data. H.R. 7274/S. 3766 - Connecting Caregivers to Medicare Act of 2024 - All provisions.
Justice for ALS Veterans Act (H.R 3790 / S. 1590) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Justice for ALS Veterans Act (H.R 3790 / S. 1590) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Discussion around improving the prior authorization process for treatments and drugs under Medicare, Medicare Advantage, and private insurance. CONNECT for health Act of 2023(H.R.4189/S.2016) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data.
Conversations surrounding Appropriations for Fiscal Year 2024 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations (S. 2624) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $150 million for ALS research at NIH in fiscal year 2024 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2024 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations (H.R. 4368) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2024 to fund P.L. 117-79 the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide ALS research grants. - Department of Defense Appropriations Act (H.R. 4365) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2024 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
ALS Better Care Act (H.R. 5663/S.3258) - Discussion around supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. Access to Genetic Counselor Services Act of 2023 (H.R.3876) - Provisions related to modernization of Medicare to keep pace with generic and genomic medicine innovation. Improves the ability for practitioners to refer patients to genetic counselors, Provides 85% reimbursement of physicians fee schedule amount for service. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Close the Medigap Act (H.R. 35) -Discussion around Medigap guarantee issue provisions for people living with ALS aged under 65.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data.
CONNECT for health Act of 2023(H.R.4189/S.2016) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. BENEFIT Act of 2023 (H.R.1092/S.526) - Provisions related to increases in patient and advocate role in FDA benefit-risk framework for drug approval through leveraging patient experience, PFDD, and related data. (No bill number) - Discussion Surrounding improving the prior authorization process in Medicare, Medicare Advantage, and private / individual insurance marketplaces.
ALS Better Care Act (H.R 5663) - Discussion around supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. Access to Genetic Counselor Services Act of 2023 (H.R.3876) - Provisions related to modernization of Medicare to keep pace with generic and genomic medicine innovation. Improves the ability for practitioners to refer patients to genetic counselors, Provides 85% reimbursement of physicians fee schedule amount for service. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. MMM - CONNECT for health Act of 2023(H.R.4189/S.2016) - provisions related to permanent telehealth services in Medicare and interstate telehealth services.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
(No bill number) - Discussion Surrounding improving the prior authorization process in Medicare, Medicare Advantage, and private / individual insurance marketplaces. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. Elizabeth Dole Home Care Act of 2023 (H.R. 542 / S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs. HELP Copays Act (H.R.830 / S.1375) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs.
Justice for ALS Veterans Act (H.R 3790 / S. 1590) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
ALS Better Care Act (Draft Legislation. no bill number) - Provides supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
ALS Better Care Act (Draft Legislation. no bill number) - Provides supplemental payment to designated ALS clinics that provide multidisciplinary services to people living with ALS. Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services.
Promising Pathways Act (draft legislation. no bill number) - would create a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS.
Discussion around Telehealth permanence (no bill number) - provisions related to permanent telehealth services in Medicare and interstate telehealth services. Protecting Health Care for All Patients Act of 2023 (H.R. 485) - provisions to ban the usage of quality adjusted life years in public insurance programs. Elizabeth Dole Home Care Act of 2023 (H.R. 542/S.141) - would raise the cap on the Veterans Administrations payments for home care from 65% to 100% and would expand VA home care programs. HELP Copays Act (H.R.830) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Inflation Reduction Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave.
Justice for ALS Veterans Act (H.R. 5607 / S.3483) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
-Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2023 (H.R.8295) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $135 million for ALS research at NIH in fiscal year 2023 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $10 million to continue the National ALS Registry and Biorepository in fiscal year 2023 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and collect biospecimens that will lead to a better understanding of who may develop ALS. Requested funding to establish the Advanced Research Projects Agency for Health to fund new research into Amyotrophic Lateral Sclerosis. - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2023 (H.R.8239) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2023 to to implement P.L. 117-79 to establish the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide grants for clinical trials for ALS and other neurodegenerative diseases.- - Department of Defense Appropriations Act, 2023 (H.R.8236) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $60 million for the ALS Research Program in fiscal year 2023 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. - Consolidated Appropriations Act (H.R.2617) -- supported provisions in legislation related to ALS research funding directed towards NIH, FDA, CDC, and DOD.
- CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. -Food and Drug Amendments of 2022 (H.R. 7667) / PDUFA VII-- provisions related to accelerated approval program, clinical trial diversity, novel clinical trial design and modeling, improving accountability and transparency of the FDA.
-Promising Pathway Act (H.R. 3761/S. 1644) would create a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS. -CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. - Inflation Reduction Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; the establishment Advanced Research Projects Agency for Health (ARPA-H); provisions related to extending marketplace subsidies under the Patient Protection and Affordable Care Act; and provisions related to an out-of-pocket maximum for Medicare beneficiaries' prescription drugs. - Telehealth Modernization Act (H.R. 1332/S. 368) -- Provisions related to the modification of requirements relating to coverage of telehealth services under Medicare, including certain flexibilities that were initially authorized during the public health emergency relating to COVID-19. - HELP Copays Act (H.R.5801) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs.
- Air Carrier Access Amendments Act (H.R. 1619 / S. 642) -- provisions related to prohibiting discrimination against disabled individuals by an air carrier. - Disability Employment Incentive Act (H.R. 3765 / S. 630) - Provisions related to adding SSDI recipients to qualified Work Opportunity Tax Credits, doubling and extending the Work Opportunity Tax Credit, doubling the Disability Access Expenditures Tax Credit, and increasing the Architectural and Transportation Barrier Tax Credit.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Justice for ALS Veterans Act (H.R. 5607 / S.3483) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
-Inflation Reduction Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; the establishment Advanced Research Projects Agency for Health (ARPA-H); provisions related to extending marketplace subsidies under the Patient Protection and Affordable Care Act; and provisions related to an out-of-pocket maximum for Medicare beneficiaries' prescription drugs. Advancing Telehealth Beyond COVID-19 Act of 2021 (H.R. 4040) -- Provisions related to extension of Medicare flexibilities including originating site, allowance of occupational and physical therapists, speech-language pathologists, and audiologists to continue to provide services, allowance for qualified health centers and rural health clinics to serve as a distant site, behavioral services to continue to be provided via audio-only technology, and allowance of hospice physicians and nurse practitioners to complete patient recertification via telehealth. Additional provisions related to delay of in-person evaluation requirements for mental health services until January 1, 2025 or end of emergency period. -The Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act (H.R. 2903 / S. 1512) Provisions related to the Centers for Medicare & Medicaid Services (CMS) to waive certain restrictions, such as geographic restrictions, for services provided in high-need health professional shortage areas; excludes mental health and emergency medical services, as well as services provided at rural health clinics, federally qualified health centers, and Indian Health Service facilities, from such geographic restrictions; and waive coverage restrictions during national emergencies. -Temporary Reciprocity to Ensure Access to Treatment (TREAT) Act (H.R. 708 / S. 168) temporarily authorizes the interstate provision of in-person and telehealth services. This authorization applies during, and for at least 180 days after, the COVID-19 (i.e. coronavirus disease 2019) emergency. Specifically, subject to scope of practice and other requirements, a health care professional may provide health services in any U.S. jurisdiction based on that individual's authorization to practice in any one state or territory. The bill also provides certain related powers to health care professional regulatory bodies, such as medical boards. Specifically, a regulatory may investigate and take disciplinary actions against a processional who provides services pursuant to this bill to a patient in that body's jurisdiction. -CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms.
- Air Carrier Access Amendments Act (H.R. 1619 / S. 642) -- provisions related to prohibiting discrimination against disabled individuals by an air carrier. - Disability Employment Incentive Act (H.R. 3765 / S. 630) - Provisions related to adding SSDI recipients to qualified Work Opportunity Tax Credits, doubling and extending the Work Opportunity Tax Credit, doubling the Disability Access Expenditures Tax Credit, and increasing the Architectural and Transportation Barrier Tax Credit.
-Promising Pathway Act (H.R. 3761/S. 1644) would create a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS. -CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. - Inflation Reduction Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; the establishment Advanced Research Projects Agency for Health (ARPA-H); provisions related to extending marketplace subsidies under the Patient Protection and Affordable Care Act; and provisions related to an out-of-pocket maximum for Medicare beneficiaries' prescription drugs. - Telehealth Modernization Act (H.R. 1332/S. 368) -- Provisions related to the modification of requirements relating to coverage of telehealth services under Medicare, including certain flexibilities that were initially authorized during the public health emergency relating to COVID-19. - HELP Copays Act (H.R.5801) -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs.
- CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. -Food and Drug Amendments of 2022 (H.R. 7667) / PDUFA VII-- provisions related to accelerated approval program, clinical trial diversity, novel clinical trial design and modeling, improving accountability and transparency of the FDA.
Inflation Reduction Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
- Air Carrier Amendments Act HR1619/S642 -- provisions related to prohibiting discrimination against disabled individuals by an air carrier. - Disability Employment Incentive Act HR 3765/S630 - Provisions related to adding SSDI recipients to qualified Work Opportunity Tax Credits, doubling and extending the Work Opportunity Tax Credit, doubling the Disability Access Expenditures Tax Credit, and increasing the Architectural and Transportation Barrier Tax Credit.
Justice for ALS Veterans Act (H.R. 5607 / S.3483) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave.
- CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. -Food and Drug Amendments of 2022 (H.R. 7667) / PDUFA VII-- provisions related to accelerated approval program, clinical trial diversity, novel clinical trial design and modeling, improving accountability and transparency of the FDA.
-Promising Pathway Act (H.R. 3761/S. 1644) would create a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS. -CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. - Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; the establishment Advanced Research Projects Agency for Health (ARPA-H); and provisions related to an out-of-pocket maximum for Medicare beneficiaries' prescription drugs. - Telehealth Modernization Act (H.R. 1332/S. 368) -- Provisions related to the modification of requirements relating to coverage of telehealth services under Medicare bill, including certain flexibilities that were initially authorized during the public health emergency relating to COVID-19. - HELP Copays Act (H.R.5801)-- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs.
-Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2023 (H.R.8295) --Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $135 million for ALS research at NIH in fiscal year 2023 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $10 million to continue the National ALS Registry and Biorepository in fiscal year 2023 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and collect biospecimens that will lead to a better understanding of who may develop ALS. Requested funding to establish the Advanced Research Projects Agency for Health to fund new research into Amyotrophic Lateral Sclerosis. - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2023 (H.R.8239) --Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2023 to to implement P.L. 117-79 to establish the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide grants for clinical trials for ALS and other neurodegenerative diseases.- - Department of Defense Appropriations Act, 2023 (H.R.8236) -- Requested the House and Senate Appropriations Defense Subcommittee provide at least $60 million for the ALS Research Program in fiscal year 2023 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
-Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $135 million for ALS research at NIH in fiscal year 2023 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. -Requested the House and Senate Appropriations LHHS Subcommittee provide at least $75 000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). -Requested the House and Senate Appropriations Defense Subcommittee provide at least $60 million for the ALS Research Program in fiscal year 2023 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. -Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2023 to to implement P.L. 117-79 to establish the FDA Rare Neurodegenerative Disease Grant Program which is authorized to provide grants for clinical trials for ALS and other neurodegenerative diseases. -Requested House and Senate Appropriations LHHS Subcommittee provide at least $10 million to continue the National ALS Registry and Biorepository in fiscal year 2023 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and collect biospecimens that will lead to a better understanding of who may develop ALS.
-Temporary Reciprocity to Ensure Access to Treatment (TREAT) Act (H.R. 708/ S. 168) temporarily authorizes the interstate provision of in-person and telehealth services. This authorization applies during, and for at least 180 days after, the COVID-19 (i.e., coronavirus disease 2019) emergency. Specifically, subject to scope of practice and other requirements, a health care professional may provide health services in any U.S. jurisdiction based on that individual's authorization to practice in any one state or territory. The bill also provides certain related powers to health care professional regulatory bodies, such as medical boards. Specifically, a regulatory body may investigate and take disciplinary actions against a professional who provides services pursuant to this bill to a patient in that body's jurisdiction. -The Promising Pathway Act (S. 1644) would establish a new time-limited "provisional approval" path at the FDA for drug sponsors to market drugs that show promise while additional testing takes place and before full FDA approval is achieved. -Accelerating Access to Critical Therapies (ACT) for ALS Act (H.R. 3537/ S. 1813) would create 1) a new framework for delivering experimental therapies to people with rare neurodegenerative diseases such as ALS; 2) create a new research grant program at the FDA to such diseases, and; 3) create a new Public-Private Partnership at the Department of Health and Human Services to coordinate federal efforts on developing and approving treatments for such diseases. -Promising Pathway Act (H.R. 3761/S. 1644) would create a provisional approval path for drugs and biological interventions that meet unmet needs of rare diseases like ALS. CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. - Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; and the establishment Advanced Research Projects Agency for Health (ARPA-H). - Telehealth Modernization Act (H.R. 1332/S. 368) -- Provisions related to the modification of requirements relating to coverage of telehealth services under Medicare bill, including certain flexibilities that were initially authorized during the public health emergency relating to COVID-19. - ACT for ALS (P.L. 117-70) - Conversations surrounding implementation of PL 117-79, the Accessing Critical Therapies for ALS Act.
Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave.
-The Telehealth Modernization Act (H.R. 1332/ S. 368) extends certain COVID telehealth flexibilities. Among other things, the bill allows (1) rural health clinics and federally qualified health centers to serve as the distant site (i.e., the location of the health care practitioner); (2) the home of a beneficiary to serve as the originating site (i.e., the location of the beneficiary) for all services (rather than for only certain services); and (3) all types of practitioners to furnish telehealth services, as determined by the Centers for Medicare & Medicaid Services. -The Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act (H.R. 2903/ S. 1512) expands coverage of telehealth services under Medicare. Among other things, the bill allows the Centers for Medicare & Medicaid Services (CMS) to waive certain restrictions, such as geographic restrictions, for services provided in high-need health professional shortage areas; excludes mental health and emergency medical services, as well as services provided at rural health clinics, federally qualified health centers, and Indian Health Service facilities, from such geographic restrictions; and allows the CMS to generally waive coverage restrictions during national emergencies. Additionally, the Medicare Payment Advisory Commission must report on information relating to the access of Medicare beneficiaries to telehealth services at home. The Center for Medicare and Medicaid Innovation may also test alternative payment models relating to expanded telehealth services. CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; and the establishment Advanced Research Projects Agency for Health (ARPA-H).
Justice for ALS Veterans Act (H.R. 5607 / S.3483) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE
Justice for ALS Veterans Act (H.R. 5607 / S.3483) -- All Provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death.
Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave.
-Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $130 million for ALS research at NIH in fiscal year 2022 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. -Requested the House and Senate Appropriations Defense Subcommittee provide at least $60 million for the ALS Research Program in fiscal year 2022 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. -Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $50 million specifically for ALS research to the FDA Orphan Products Grants Program in fiscal year 2022 to increase the number of ALS clinical trials and allow FDA to apply their own unique regulatory expertise in those trials to expedite treatment development, foster innovative trial designs that complement and speed regulatory processes, and enable natural history studies to more quickly understand ALS progression and pathology. -Requested House and Senate Appropriations LHHS Subcommittee provide at least $10 million to continue the National ALS Registry and Biorepository in fiscal year 2022 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and collect biospecimens that will lead to a better understanding of who may develop ALS. -Requested House and Senate Appropriations LHHS Subcommittee provide at least $1 million for a National Academies of Science, Engineering and Medicine study to develop a plan and policy recommendations for what can be done by the government and all stakeholders to end ALS.
-The Telehealth Modernization Act (H.R. 1332/ S. 368) extends certain COVID telehealth flexibilities. Among other things, the bill allows (1) rural health clinics and federally qualified health centers to serve as the distant site (i.e., the location of the health care practitioner); (2) the home of a beneficiary to serve as the originating site (i.e., the location of the beneficiary) for all services (rather than for only certain services); and (3) all types of practitioners to furnish telehealth services, as determined by the Centers for Medicare & Medicaid Services. -The Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act (H.R. 2903/ S. 1512) expands coverage of telehealth services under Medicare. Among other things, the bill allows the Centers for Medicare & Medicaid Services (CMS) to waive certain restrictions, such as geographic restrictions, for services provided in high-need health professional shortage areas; excludes mental health and emergency medical services, as well as services provided at rural health clinics, federally qualified health centers, and Indian Health Service facilities, from such geographic restrictions; and allows the CMS to generally waive coverage restrictions during national emergencies. Additionally, the Medicare Payment Advisory Commission must report on information relating to the access of Medicare beneficiaries to telehealth services at home. The Center for Medicare and Medicaid Innovation may also test alternative payment models relating to expanded telehealth services. CURES 2.0 Act (H.R. 6000) -- Provisions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms. Build Back Better Act (H.R. 5376) -- Provisions related to providing up to 12 weeks of paid family and medical leave; extending Medicare telehealth flexibilities beyond the COVID-19 public health emergency; and the establishment Advanced Research Projects Agency for Health (ARPA-H).
CURES 2.0 Act (H.R. 6000) -- Previsions related to drug development, research, and access to emerging therapies for Americans with ALS and other rare diseases through the creation of ARPA-H and other mechanisms.
Filing targets: HOUSE OF REPRESENTATIVES, SENATE