vs 9,062 other HR bills in the 116th — cohort avg 39d
Summary
All Dependent Children Count Act This bill extends the 2020 recovery rebates of the Coronavirus Aid, Relief, and Economic Security Act to all taxpayer dependents.
Lobbying filings that explicitly cite this bill (16)
These links require the bill number to appear in the filing's source-reported specific issue text. Client expenses and lobbying-firm income are separate disclosure fields.
Cited source text, amounts, lobbyists, and targets
-H.R. 6420 / S. 3652 All Dependents Count Act, support passage.
-H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage.
-H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage.
-H.R. 2279/S. 2546, Safe Step Act, support passage-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless-H.R. 2093/S. 1028, STATES Act, support passage-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage-
H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage
-H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.
-H.R. 133, Consolidated Appropriations Act, support funding for epilepsy programs and research, COVID-19 relief and ending surprise medical billing.
Client expense: $50,000 · Firm income: Not reported
Cited source text, amounts, lobbyists, and targets
H.R. 748, the CARES Act
H.R. 1814/S. 651, the ABLE Age Adjustment Act
H.R. 2073/S. 110
H.R. 4045/S. 2290, the Disabled Access Credit Expansion Act
H.R. 6420, the All Dependent Children Count Act
H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions Act or the HEROES Act
S. 1628, the Paid Family Leave Pilot Extension Act
S. 3652, the All Dependents Count Act
Senate COVID Relief Package--Health, Economic Assistance, Liability Protection, and Schools (HEALS) Act
Senate COVID Relief Package-- Delivering Immediate Relief to Americas Families, Schools and Small Businesses Act (ANS to S. 178)
Implementation of the CARES Act (Public Law 116-136)
Senate Draft Bill, Automatic Cash Assistance Act
Client expense: $74,880 · Firm income: Not reported
Government targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Federal Emergency Management Agency (FEMA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Housing & Urban Development, Dept of (HUD), Internal Revenue Service (IRS), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), Veterans Affairs, Dept of (VA), Veterans Employment & Training Service
Cited source text, amounts, lobbyists, and targets
H.R. 133, Consolidated Appropriations Act, 2021, provisions related to increased funding for home and community-based services, reauthorization of the Money Follows the Person program, special education funding, telehealth, and supplemental funding for research institutions and Fiscal Year 2021 autism funding at the Department of Health and Human Services (including the National Institutes of Health, Centers for Disease Control, and Health Resources and Services Administration), Department of Labor, and the Department of Housing and Urban Development.
H.R. 6420, All Dependent Children Count Act/S. 3652, All Dependents Count Act of 2020; all provisions.
H.R.8523/S. 4100 - Supporting Children with Disabilities During COVID-19 Act, all provisions.
H.R. 7308, Research Investment to Spark the Economy Act, provisions related to supplemental funding for Institute for Education Services.
Pub. L. No. 114-255, 21st Century Cures Act, provision related to electronic visit verification.
Pub. L. No. 116-60, Autism Collaboration, Accountability, Research, Education, and Support Act of 2019, provisions related to the Interagency Autism Coordinating Committee.
Pub. L. No. 116-136, CARES Act, provisions related to vaccine allocation and provider relief fund payments.
A bill not yet introduced to improve professional development opportunities for educators.
A bill not yet introduced to provide COVID-19 relief, provisions to assist the autism community, especially increased special education funding.
A bill not yet introduced relating to autism services.
A bill not yet introduced to create patient-centered health reform.
A bill not yet introduced to appropriate funds for autism research at the Department of Health and Human Services (including the National Institutes of Health, Centers for Disease Control, and Health Resources and Services Administration).
A bill not yet introduced to amend Section 14(c) of the Fair Labor Standards Act related to subminimum wage for certain workers.
A bill not yet introduced to provide criminal justice system reforms that would benefit autistic individuals.
Expanding access for autistic individuals to Medicaids Early and Periodic Screening, Diagnostic, and Treatment benefit.
Expanding access for autistic individuals to CHAMPVA benefits.
Ensuring autistic individuals benefit from the Health Resources and Services Administrations programs for Children and Youth with Special Health Care Needs.
Outreach to presidential transition team regarding autism community priorities.
Ensuring autistic individuals have access to Indian Health Service services.
Client expense: $90,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Education, Dept of, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Indian Health Service, Natl Institute of Mental Health (NIMH), SENATE, Veterans Affairs, Dept of (VA)
Cited source text, amounts, lobbyists, and targets
H.R. 4795, STABLE Act (generally no specific provisions).
S. 3652 All Dependents Count Act (generally no specific provisions).
H.R. 6420 All Dependent Children Count Act (generally no specific provisions).
S.4318 American Workers, Families, and Employers Assistance Act (Provision extending the $500 dependent tax rebate to disabled adult children)
Client expense: $50,000 · Firm income: Not reported
Government targets: HOUSE OF REPRESENTATIVES, Labor, Dept of (DOL), Office of Personnel Management (OPM), SENATE, Small Business Administration (SBA), Social Security Administration (SSA), Treasury, Dept of, Veterans Affairs, Dept of (VA)
Cited source text, amounts, lobbyists, and targets
-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities.
-H.R. 6420 / S. 3652 All Dependents Count Act, support passage.
-H.R. 6680 / S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage.
-H.R. 6305 / S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage.
-H.R. 2279/S. 2546, Safe Step Act, support passage
-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless
-H.R. 2093/S. 1028, STATES Act, support passage
-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage
-H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage
-H.R. 1425, Patient Protection and Affordable Care Enhancement Act, support passage.
Client expense: $50,000 · Firm income: Not reported
Cited source text, amounts, lobbyists, and targets
H.R. 748, the CARES Act
H.R. 1814/S. 651, the ABLE Age Adjustment Act
H.R. 2073/S. 110
H.R. 4045/S. 2290, the Disabled Access Credit Expansion Act
H.R. 6420, the All Dependent Children Count Act
H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions Act or the HEROES Act
S. 1628, the Paid Family Leave Pilot Extension Act
S. 3652, the All Dependents Count Act
Senate COVID Relief Package--Health, Economic Assistance, Liability Protection, and Schools (HEALS) Act
Senate COVID Relief Package-- Delivering Immediate Relief to Americas Families, Schools and Small Businesses Act (ANS to S. 178)
Implementation of the CARES Act (Public Law 116-136)
Senate Draft Bill, Automatic Cash Assistance Act
Client expense: $78,368 · Firm income: Not reported
Cited source text, amounts, lobbyists, and targets
A bill not yet introduced to provide COVID-19 relief/H.R. 6800, The Heroes Act, provisions to assist the autism community, including increased funding for home and community-based services, special education funding, telehealth, and supplemental funding for research institutions.
H.R.7120, George Floyd Justice in Policing Act of 2020, provisions related to law enforcement training.
H.R.6420, All Dependent Children Count Act/S. 3652, All Dependents Count Act of 2020, all provisions.
H.R.7308, Research Investment to Spark the Economy Act, provisions related to supplemental funding for Institute for Education Services.
H.R.8523/S.4100, Supporting Children with Disabilities During COVID-19 Act, all provisions.
S.1895, Lower Health Care Costs Act, provisions related to improving public health.
S.1122, Mental Health Services for Students Act of 2019, all provisions.
Pub. L. No. 114-255, 21st Century Cures Act, provision related to electronic visit verification.
Pub. L. No. 116-60, Autism Collaboration, Accountability, Research, Education, and Support Act of 2019, all provisions.
Pub. L. No. 116-136, CARES Act, provisions related to recovery rebates for individuals and educational waivers.
A bill not yet introduced making appropriations for Fiscal Year 2021, provisions related to autism funding at the National Institutes of Health, Centers for Disease Control and Prevention, the Health Resources and Services Administration, Department of Defense, Department of Education, and other entities.
A bill not yet introduced relating to autism services.
A bill not yet introduced relating to open access for federally funded research.
A bill not yet introduced to create patient-centered health reform.
A bill not yet introduced to improve professional development opportunities for educators.
Expanding access to and continuing flexibility for telehealth services for autistic individuals.
Expanding access for autistic individuals to CHAMPVA benefits.
Expanding access for autistic individuals to Medicaid's Early and Periodic Screening, Diagnostic, and Treatment benefit.
Ensuring autistic individuals benefit from the Health Resources and Services Administration's programs for Children and Youth with Special Health Care Needs.
Ensuring autistic individuals have access to Indian Health Service services.
Cited source text, amounts, lobbyists, and targets
H.R. 4795, STABLE Act (generally no specific provisions).
S. 3652 All Dependents Count Act (generally no specific provisions).
H.R. 6420 All Dependent Children Count Act (generally no specific provisions).
S.4318 American Workers, Families, and Employers Assistance Act (Provision extending the $500 dependent tax rebate to disabled adult children)
Client expense: $50,000 · Firm income: Not reported
Cited source text, amounts, lobbyists, and targets
Support Congressional leaders acting swiftly to install actors who will take their oversight duties seriously and prioritize the public interest in naming commissioners to oversee the COVID stimulus money
Support $2 to 3 billion per month for the duration of the COVID-19 emergency to support access to broadband that is adequate to meet the needs of multiple people sheltering-in-place while working and learning via video technology simultaneously
Support include student debt cancellation in the next coronavirus package, and to extend suspension of those payments through the end of 2020
Support the enactment of policies and sufficient funding to protect low- and moderate-income people from economic disaster and to meet the urgent needs of the most vulnerable people in our nation.
Support increasing FMAP to states and increasing incentive for states to expand Medicaid. Ensure access to affordable health insurance coverage for all; provide states, localities, and tribes with the financial support they need to respond effectively; protect the health and safety of the health care workforce; organize national public health capacity; and protect all patients access to care and prohibit price gouging of health care services.
Support nonprofits being protected by including additional emergency funding bill to address the COVID-19 pandemic
Support Congress applying strong conditions on current and future Covid-19 aid laws to prevent personal profiteering by senior executives of recipient corporations
Support the All Dependent Children Count Act, (H.R. 6420), and Sen. Smiths All Dependents Count Act, both of which ensure that dependents who are currently ineligible for the qualifying dependent stimulus payments of $500 per dependent authorized by the CARES Act to receive those stimulus payments.
Support Congress providing robust funding for the United States Postal Service in the next coronavirus response package.
Support the Emergency Rental Assistance and Rental Market Stabilization Act which would provide $100 billion in emergency rental assistance.
Support $300 million in grants for allied health programs and $10 million for outreach to encourage careers in nutrition and dietetics
support hr 6800, the HEROES act which provides more than $3 trillion to various governments, at all levels, small businesses, and individuals
SUPPORT the Paycheck Protection Program and Health Care Enhancement Act, or H.R. 266
Support the Paycheck Protection Flexibility Act, which modifies provisions related to the forgiveness of loans made to small businesses under the Paycheck Protection Program
Cited source text, amounts, lobbyists, and targets
Support providing crucial supports to families facing the stress and disruptions resulting from the COVID-19 pandemic, by equipping the prevention and child welfare systems with the tools it needs to handle the crisis.
Support at least $50 billion in funding dedicated to child care as part of the next stimulus package
Support the dedication of resources and the creation of policies that address the urgent safety needs and long-term stability needs of survivors and their children in the next federal COVID relief package.
Support the All Dependent Children Count Act, (H.R. 6420), and Sen. Smiths All Dependents Count Act, both of which ensure that dependents who are currently ineligible for the qualifying dependent stimulus payments of $500 per dependent authorized by the CARES Act to receive those stimulus payments.
Support Opportunity Youth, youth of color, youth experiencing poverty, and the programs that serve them have the funding and tools to handle this once-in-a-lifetime crisis
Client expense: $290,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Bureau of Prisons (BOP), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Commodity Futures Trading Commission (CFTC), Consumer Financial Protection Bureau (CFPB), Defense, Dept of (DOD), Education, Dept of, Employment & Training Administration, Equal Employment Opportunity Commission (EEOC), Federal Communications Commission (FCC), Federal Deposit Insurance Corporation (FDIC), Federal Emergency Management Agency (FEMA), Federal Energy Regulatory Commission (FERC), Federal Housing Finance Agency (FHFA), Federal Reserve System, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Housing & Urban Development, Dept of (HUD), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Credit Union Administration (NCUA), Office of Management & Budget (OMB), Office of the Comptroller of the Currency (OCC), President of the U.S., SENATE, Securities & Exchange Commission (SEC), Small Business Administration (SBA), Social Security Administration (SSA), State, Dept of (DOS), Treasury, Dept of, Veterans Affairs, Dept of (VA), Vice President of the U.S.
Cited source text, amounts, lobbyists, and targets
COVID-19 Advocacy/CARES Act
Support A one-year expansion of federal funding for Medicaid home and community-based services (HCBS), from July 1, 2020 to June 30, 2021.
An expansion of the paid leave program to cover family caregiving of adults with disabilities, which would allow all family members, not just parents, to take paid leave for caregiving.
Additional pay of up to $10,000 for personal care attendants, home health aides, and direct support professionals for their work during the COVID-19 pandemic.
An additional round of Economic Impact Payments, resolving bureaucratic issues for SSI, SSDI, and VA benefits recipients, and fixing an issue that left adult dependents ineligible for these payments.
A requirement that that the Department of Health and Human Services (HHS) make specific plans to ensure that COVID-19 testing is accessible to people with disabilities and people with underlying health conditions or compromised immune systems.
A requirement that States ensure that absentee or mail-in ballots are accessible for people with disabilities.
Support All Dependent Children Count Act introduced by Rep. Craig in the House (H.R. 6420), and Sen. Smiths All Dependents Count Act, S. 3652.
Support H.R. 6680 which would disregard unemployment benefits from eligibility consideration for means-tested programs such as SSI and SNAP - Strengthening UI for Coronavirus Impacted Workers and Students Act.
Department of Health and Human Services
Supported letter to Secretary Azar and Director Severino to express our strong and urgent support for the Departments Office for Civil Rights to issue additional guidance to ensure that schemes to ration scarce health care resources during the coronavirus disease 2019 (COVID-19) pandemic comply with federal nondiscrimination laws.
Justice in Aging request HHS Secretary Azar to Remove Barriers for Medicare Enrollment During COVID Pandemic
United Spinal joined Justice in Aging and numerous organizations requesting the Department of Health and Human Services take action to remove barriers and to streamline enrollment in health insurance coverage for low-income older adults and people with disabilities who are at highest risk of serious illness and death from COVID-19.
United Spinal advocated to exempt non-invasive ventilators from Medicares competitive bidding program which limits choice for consumers and cuts reimbursement to Medicare providers. During the COVID-19 pandemic, it is the wrong time to place additional restrictions on access to life-saving equipment. United Spinal sent in its own letter to Congress along with other stakeholders such as the ALS Association and the company RESMED.
As a CCD Rights Task Force co-chair, United Spinal advocacy and policy staff signed a letter to HHS Secretary Alex Azar, CMS Administrator Seema Verma, and CDC Director Robert Redfield urging them to collect and report data on the impact of COVID-19 on people with disabilities, including numbers of tests, testing rates, numbers and rates of positive tests, hospitalizations, deaths and death rates, recoveries, transfers from community living to institutional settings and discharges from institutional settings, and analysis of that data to identify trends and correlational factors.
United Spinal advocacy and policy staff provided comments as part of the Disability and Rehabilitation Research Coalition (DRRC) to Senator Warren (D-MA) and Reps. Pressley (D-MA) & Kelly (D-IL) on a bill to require the CDC to collect and report demographic data related to COVID-19; we urged them to include data collection on disability factors.
oOn April 14, Reps. Ayanna Pressley, Robin Kelly, and other members of the Congressional Black Caucus, along with Sen. Elizabeth Warren and others introduced the Equitable Data Collection and Disclosure on COVID-19 Act, which would require the Department of Health and Human Services (HHS) to collect and report racial, ethnic, and other demographic data on COVID testing, treatment, and fatality rates. The introduced legislation did mention disability but did not include significant focus on the importance of disability data collection.
oMembers of the DRRC, which includes United Spinal, along with other stakeholders, drafted revisions to the legislation. The edits were intended to achieve three purposes: 1) integrate the concerns and interests of the disability community throughout the bill to ensure that disability rights are universally considered civil rights, 2) include on the mandated data collection commission agencies with disability, independent living, and rehabilitation research portfolios, and 3) authorize targeted COVID research funding to NIDILRR comparable to the targeted funding provided to other research agencies. These edits were shared with Sen. Warrens office along with other congressional disability champions, including Sen. Bob Casey (D-PA) and Rep. Jim Langevin (D-RI).
Following work in March that resulted in Federal guidance being issued by the Office for Civil Rights (OCR) at the Department of Health and Human Services to remind States and health care providers of their responsibilities under Federal law not to discriminate against people with disabilities in providing health care, United Spinal signed onto a guidance document developed by the disability community outlining principles for states and health care providers to follow in adhering to the Federal guidance. United Spinal also joined over 400 organizations in calling on HHS for additional Federal guidance on nondiscrimination in health care to be issued by OCR.
United Spinal, as a member of the ITEM Coalition Steering Committee, endorsed a letter to HHS Secretary Alex Azar urging for improved access to this treatment. We have written to CMS before about the complex and burdensome billing requirements associated with the dNPWT benefit that have resulted in decreased patient access to this important treatment.
Proposed Rule and Medicare Advantage (MA), Medicare Part D and Medicaid
United Spinal, as a Steering Committee member of CPR endorsed comments to the Centers for Medicare and Medicaid Services highlighting important provisions of benefit to Medicare and Medicaid beneficiaries:
Revisions to supplemental benefits for beneficiaries with chronic conditions (SSBCI),
Network adequacy requirements for MA plans,
Star rating program enhancements, and
New tools for beneficiaries under the Medicare prescription drug benefit program (Part D).
PCHAlliance
Proposed Rule and Medicare Advantage (MA), Medicare Part D and Medicaid
United Spinal, as a member of PCHAlliance signed onto this coalitions letter:
Interoperable, connected health, requires a broad ecosystem of shared digital health information. It is particularly noteworthy that this proposed rule advances Medicare Advantage coverage of patient centered digital, interoperable, connected healthcare. PCHAlliance members support the advancement of evidence based connected health. CMS work to develop and ensure appropriate use of connected care is particularly noteworthy as one of the key enablers of modernizing Medicare for the use of evidence based connected care is to improve patient outcomes.
United Spinal comments on FY 2021-2025 NIH-Wide Strategic Plan Framework
United Spinal provided comments on the National Institutes of Healths (NIH) Request for Information on the FY 2021-2025 NIH-Wide Strategic Plan Framework, in support of strengthening and advancing disability and rehabilitation research and included support of the comments submitted by the Disability and Rehabilitation Research Coalition, of which United Spinal Association is a member.
United Spinal supports COVID-19 Recovery for Seniors and People with Disabilities Act - S. 3740.
United Spinal supports Nursing Home COVID-19 Protection and Prevention Act - S. 3768.
United States Postal Services (USPS) - COVID-19
United Spinal signed onto a letter, facilitated by AARP, to House and Senate leadership in support of USPS continued funding in order to provide the vital services that millions of Americans, especially older Americans and those with chronic conditions, depend upon, especially during this pandemic, as it relates to pharmacy and medical supplies needs as well as access to voting.
United Spinal sent a letter to the U.S. Senate Aging Committee thanking them for holding a hearing examining the devastating impact COVID-19 has had on nursing homes and urging them to engage the disability community as they seek solutions.
Support increased appropriations funding for the SCI Model Systems under the NIDILRR grant.
Support continued appropriations funding for CDC's National Neurological Conditions Surveillance System.
As a member of the Coalition to Preserve Rehabilitation Steering Committee, United Spinal endorsed these comments:
Medicare Program; Prospective Payment System and Consolidated Billing for Skilled Nursing Facilities; Updates to the Value-Based Purchasing Program for Federal Fiscal Year 2021 [CMS-1737-P, RIN: 0938-AU13] - Concerns with the Patient-Driven Payment Model.
CPR continues to be concerned with the observed and ongoing impact of the Patient-Driven Payment Model (PDPM) implemented in the SNF PPS effective October 1, 2019. CMS implemented this new case-mix classification model to group patients admitted to SNFs during covered Medicare Part A stays, replacing the Resource Utilization Group, Version IV (RUG-IV) system.
As a member of the Coalition to Preserve Rehabilitation Steering Committee, United Spinal endorsed these comments:
Medicare Program; Inpatient Rehabilitation Facility Prospective Payment System for Federal Fiscal Year 2021 Proposed Rule [CMS-1729-P; RIN 0938-AU05].
Under this proposal, non-physician practitioners would be able to conduct or designate another certified clinician to conduct the preadmission screening (PAS), review and concur with the findings of the preadmission screening, conduct the post-admission physician evaluation (PAPE), which CMS proposes to eliminate, lead the required weekly interdisciplinary team meetings, conduct required face-to-face visits with the patient, and develop and modify the patients plan of care. In sum, CMS proposes to defer to the IRF to determine whether a non-physician practitioner has sufficient specialized training and experience in inpatient rehabilitation to essentially fulfill the role of the rehabilitation physician.
CPR views this proposal as a major broadside attack on the integrity and value of care provided by inpatient rehabilitation hospitals and units. We strongly oppose this proposal and believe that, if finalized, it would materially undercut IRF care and decrease the level and quality of care provided in an IRF, potentially causing significant harm to patients with complex conditions who need an intensive, coordinated, interdisciplinary course of inpatient hospital-level rehabilitation treatment.
Cited source text, amounts, lobbyists, and targets
-H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with epilepsy including increased federal support for state Medicaid programs and targeted support for Medicaid home- and community-based services; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; institute guardrails and protections around step therapy and other utilization management; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities.
-H.R. 6420/S. 3652 All Dependents Count Act, support passage.
-H.R. 6680/S. 3619 Strengthening Unemployment Insurance for Coronavirus Impacted Workers and Students Act, support passage.
-H.R. 6305/S. 3544 Coronavirus Relief for Seniors and People with Disabilities, support passage.
-H.R. 2279/S. 2546, Safe Step Act, support passage.
-H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless.
-H.R. 2093/S. 1028, STATES Act, support passage.
-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage.
-H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage.
Client expense: $60,000 · Firm income: Not reported
Cited source text, amounts, lobbyists, and targets
Health care issues affecting individuals with neuromuscular disease including therapy development, newborn screening, screening and diagnosis, adequate insurance coverage, and access to care.
Advocated for passage of H.R. 4393, the Advancing Access to Precision Medicine Act, provide for a State option under the State Medicaid plan to provide DNA sequencing clinical services for certain children.
Advocated for funding for the FDA Orphan Products Grants Program.
Advocated for passage of H.R. 3235, the Access to Genetic Counselor Services Act of 2019, to provide for expanded coverage of services provided by genetic counselors.
Advocated for the passage of the Newborn Screening Saves Lives Reauthorization Act, H.R. 2507 / S. 2158, to encourage investment in the national newborn screening program in order to detect more neuromuscular conditions early to speed appropriate interventions for patients.
Advocated for increased funding for National Institutes of Health, Food and Drug Administration, Health Resources and Services Administration, and other health agencies that conduct research on neuromuscular disease and provide services to those with these conditions.
Advocated for adequate, affordable, accessible health coverage for individuals with neuromuscular conditions.
Issues related to surprise medical billing, including HR 3630, the No Surprises Act; S 1895, the Lower Health Care Costs Act; S 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019.
Advocated for maintaining strong incentives for rare disease drug development included within the Orphan Drug Act (PL 97-414)
Advocated on the Promising Pathway Act (S.3872) and the ACT for ALS Act (H.R.7071).
Advocated for access to healthcare via telemedicine/telehealth throughout and after the COVID-19 public health emergency.
H.R. 6800, HEROES Act and Senate-led COVID-19 package, support various provisions relevant to people with NMDs including increased federal support for state Medicaid programs; Medicaid maintenance of effort provisions; nationwide reopening of Marketplace special enrollment period; expansion of paid sick leave and paid family and medical leave; making permanent flexibilities to allow Medicare beneficiaries to continue accessing healthcare through telehealth; more resources to enhance testing and contact tracing in underserved communities; opposing waivers from IDEA and the Rehab Act; and better data collection on the impact of COVID-19 on people with disabilities.
H.R. 6420/S. 3652 All Dependents Count Act, support passage.
H.R. 3630, No Surprises Act; S. 1895, Lower Health Care Costs Act; S. 1531, the Stopping the Outrageous Practice of Surprise Medical Bills Act of 2019; H.R. 5800, Ban Surprise Billing Act; H.R. 5826 Consumer Protections Against Surprise Medical Bills Act, support passage of legislation to protect patients from surprise medical billing that holds patients harmless
H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage
Cited source text, amounts, lobbyists, and targets
H.R. 748, the CARES Act
H.R. 1814/S. 651, the ABLE Age Adjustment Act
H.R. 2073/S. 110
H.R. 4045/S. 2290, the Disabled Access Credit Expansion Act
H.R. 6420, the All Dependent Children Count Act
H.R. 6800, the Health and Economic Recovery Omnibus Emergency Solutions Act or the HEROES Act
S. 1628, the Paid Family Leave Pilot Extension Act
S. 3652, the All Dependents Count Act
Implementation of the CARES Act (Public Law 116-136)
Senate Draft Bill, Automatic Cash Assistance Act
Client expense: $71,212 · Firm income: Not reported
Government targets: AMTRAK - Natl Railroad Passenger Corporation, Architectural & Transportation Barriers Compliance Board, Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Federal Emergency Management Agency (FEMA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Housing & Urban Development, Dept of (HUD), Internal Revenue Service (IRS), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA), Veterans Employment & Training Service
Cited source text, amounts, lobbyists, and targets
A bill not yet introduced to provide COVID-19 relief/H.R. 6800, The Heroes Act, provisions to assist the autism community, including increased funding for home and community-based services, special education funding, telehealth, and supplemental funding for research institutions.
H.R 7120, George Floyd Justice in Policing Act of 2020, provisions related to law enforcement training.
H.R. 6420, All Dependent Children Count Act/S. 3652, All Dependents Count Act of 2020, all provisions.
H.R.7308, Research Investment to Spark the Economy Act, all provisions.
S.4100, Supporting Children with Disabilities During COVID-19 Act, all provisions.
S. 1895, Lower Health Care Costs Act, provisions related to improving public health.
Pub. L. No. 115-199, RAISE Family Caregivers Act, all provisions
Pub. L. No. 116-60, Autism Collaboration, Accountability, Research, Education, and Support Act of 2019, all provisions.
Pub. L. No. 116-136, CARES Act, provisions related to recovery rebates for individuals and educational waivers.
A bill not yet introduced making appropriations for Fiscal Year 2021, provisions related to autism funding at the National Institutes of Health, Centers for Disease Control and Prevention, the Health Resources and Services Administration, Department of Defense, Department of Education, and other entities.
A bill not yet introduced to create a navigator program for individuals with autism and other developmental disabilities
A bill not yet introduced to create patient-centered health reform
Expanding access to and continuing flexibility for telehealth services for autistic individuals
Providing additional COVID-19 relief for the autism community
Client expense: $100,000 · Firm income: Not reported
Cited source text, amounts, lobbyists, and targets
H.R. 4795, STABLE Act (generally no specific provisions).
S. 3652 All Dependents Count Act (generally no specific provisions).
H.R. 6420 All Dependent Children Count Act (generally no specific provisions).
Client expense: $50,000 · Firm income: Not reported
Government targets: AMTRAK - Natl Railroad Passenger Corporation, Centers For Medicare and Medicaid Services (CMS), Education, Dept of, Federal Emergency Management Agency (FEMA), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Housing & Urban Development, Dept of (HUD), Internal Revenue Service (IRS), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Institutes of Health (NIH), SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), U.S. Architectural & Transportation Barriers Compliance Board (ACCESS), Veterans Affairs, Dept of (VA), Veterans Employment & Training Service
Client expense: $90,000 · Firm income: Not reported
Government targets: Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Defense, Dept of (DOD), Education, Dept of, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Health Resources & Services Administration (HRSA), Indian Health Service, Natl Institute of Mental Health (NIMH), SENATE, Veterans Affairs, Dept of (VA)
Client expense: $290,000 · Firm income: Not reported
Government targets: Agriculture, Dept of (USDA), Bureau of Prisons (BOP), Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Commodity Futures Trading Commission (CFTC), Consumer Financial Protection Bureau (CFPB), Defense, Dept of (DOD), Education, Dept of, Employment & Training Administration, Equal Employment Opportunity Commission (EEOC), Federal Communications Commission (FCC), Federal Deposit Insurance Corporation (FDIC), Federal Emergency Management Agency (FEMA), Federal Energy Regulatory Commission (FERC), Federal Housing Finance Agency (FHFA), Federal Reserve System, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Homeland Security, Dept of (DHS), Housing & Urban Development, Dept of (HUD), Justice, Dept of (DOJ), Labor, Dept of (DOL), Natl Credit Union Administration (NCUA), Office of Management & Budget (OMB), Office of the Comptroller of the Currency (OCC), President of the U.S., SENATE, Securities & Exchange Commission (SEC), Small Business Administration (SBA), Social Security Administration (SSA), State, Dept of (DOS), Treasury, Dept of, Veterans Affairs, Dept of (VA), Vice President of the U.S.
Client expense: Not reported · Firm income: $75,000
Government targets: Centers For Medicare and Medicaid Services (CMS), Federal Communications Commission (FCC), HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), SENATE, Social Security Administration (SSA), Transportation Security Administration (TSA), Transportation, Dept of (DOT), Veterans Affairs, Dept of (VA)
Government targets: Centers For Medicare and Medicaid Services (CMS), Federal Aviation Administration (FAA), Food & Drug Administration (FDA), HOUSE OF REPRESENTATIVES, SENATE, Transportation, Dept of (DOT)
Government targets: Centers For Disease Control & Prevention (CDC), Education, Dept of, HOUSE OF REPRESENTATIVES, Health & Human Services, Dept of (HHS), Natl Institute of Mental Health (NIMH), SENATE, Social Security Administration (SSA), Treasury, Dept of, Veterans Affairs, Dept of (VA)